Welcome to my nifty Dreambook, a free guestbook service from New Dream Network and the DreamHost!If you have a minute, please add your entry to those below by signing my Dreambook!
| Name: | Gavin |
| E-mail address: | gavin@cox.net |
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| Name: | Erma Wallenbock |
| Homepage URL: | http://www.huntington-club.com |
| Comments: | I am so glad that your are here to support our community. Thank you. |
| Name: | Hannah Downer |
| E-mail address: | leahlovegirl@hotmail.com |
| Comments: | I have a very large family and between my 11 aunts and uncles my grandfather my mother and my 9 brothers and sisters we still dont know what do think about the affects of HD. And although we have all been affected some way or another weather one of us has it, or we are just a caregiver, it is still hard to watch and cope day to day. I have read so many books and websites, but nothing is like the documentery 50/50. I sugest every one watches it.
Peace, Love, and Happiness to all that has been affected by HD! |
| Name: | Guy Bacci |
| E-mail address: | guyjbacci@yahoo.com |
| Comments: | From Guy Bacci: I wish that all your fondest wishes and dreams come true. |
| Name: | The Carty Family |
| E-mail address: | csandee@comcast.net |
| Comments: | Our lives were changed forever a year ago. May we live to see a cure for this devastating disease that has stricken our family. |
| Name: | emma jeffries |
| E-mail address: | emmajs1012@yahoo.com |
| Homepage URL: | http://360.yahoo.com/emmajs1012 |
| Comments: | just signing in. have a great weekend.
emma |
| Name: | Beth |
| E-mail address: | eev512@yahoo.com |
| Comments: | I am a student teacher who will become a middle school science teacher in less than a year. I am overjoyed that Fox New Chicago told your story tonight. It's refreshing to hear happy news on TV. I wish the best for you as this story brought tears to my eyes. You have a lot of love from your community - appreciate every second of it. Friendship is a wonderful thing. |
| Name: | Martha Mezyk |
| E-mail address: | mem@eclipsegrp.com |
| Comments: | First and fore most..thank you for what you do in raising awareness for HD.
Today I stumbled upon your website. My dad is 60 year’s old and suffering from HD. He was diagnosed 5 years ago. I have a sister who is 33 and she has made the decision to become tested to see if she is a carrier for the disease. Than there is me (24 years old) and my brother (19 years old). My brother and I are still not ready to take the test. It is starting to become difficult has my dad’s disease progresses and time goes on. If there is anyway you need help in setting up any charity events and/or awareness please feel free to contact me. I know that my family and i would be more than happy to help. Thank you |
| Name: | paul smith |
| E-mail address: | paulsmith123@hotmail.com |
| Comments: | your information on huntingtons is great thank you.
I can't believe how this nasty disease has created much turmoil within my family - please continue with your gallent efforts, It will eventually pay off for many sick people |
| Name: | Loretta Facchini |
| E-mail address: | tdfacchini@comcast.net |
| Comments: | Nancy and family,
I didn't quite understand what HD was until I read your website. I'm so sorry your family has to go thru this.My prayers are with all of you. |
| Name: | Kelly Facchini |
| E-mail address: | kellyfacchini@yahoo.com |
| Comments: | Every year I look forward to the Hope For Huntington's dinner because it's fun and it never ceases to amaze me at how incredible your family is. I think about Trisha and Mark often, as they were like siblings to me growing up. Even though we don't live next door to each other anymore, you are still close in my heart. Love you much!
Kelly |
| Name: | timmy |
| E-mail address: | opuggs@aol.com |
| Comments: | what you guy's do is incredible. |
| Name: | Judy Burgess |
| E-mail address: | judy.burgess@graphicpartners.com |
| Comments: | Dear Nancy, Mike, Trisha and Mark,
I think of you often and you are always in my prayers. I admire the work you are doing in combating this devastating disease. You are a unique family unit and I am proud (and humbled) to call you my friends. |
| Name: | Kristen Campbell |
| E-mail address: | kriscampbell@aol.com |
| Comments: | Thank you for your website! I just lost my grandmother from complications due to Huntington's disease and I have an uncle who has been diagnosed. My family feels cheated and hurt - we're trying to see what we can do to help find a cure. We now know we don't have to sit back and watch it happen, we can be an active part of finding a cure for HD. Thanks again! |
| Name: | Beth |
| E-mail address: | EMBaldy78@aol.com |
| Comments: | Way to go on raising all the funds you have for HD. I too am from Illinois (Berwyn) & my family members see Dr.Shannon. This is a GREAT site & thank you for getting the ourd out about HD. |
| Name: | Angie and Bill Gerlach |
| E-mail address: | fwf@gwflooring.com |
| Comments: | I finally was able to view your website. I am so proud
of you guys and pray and think of you often. You are truly an inspiration and pray that a cure is found quickly. Love-Angie, Bill and Vito |
| Name: | sherry |
| E-mail address: | blinker62@yahoo.com |
| Comments: | I pray for the familys coping with Huntingtons, and pray for mine good luck to all lets hope for a cure. |
| Name: | Nancy Pawlowski |
| E-mail address: | Npawlo321@aool.com |
| Comments: | Mike, Nancy, Trisha and Mark, What a wonderful website. I loved the poem. My prayers are with you always.
Love Nancy |
| Name: | Rosa Stefani |
| Comments: | This is a wonderful site. I love you guys and think of you often. You are both in Niko's bedtime prayers.
Love Rosa, Sandro,Niko and Sabrina. |
| Name: | Camille DeRaimo |
| E-mail address: | cderaimo@nssed.k12.il.us |
| Comments: | This is just a wonderful web page. My prayers and best wishes are with you and your family always. |
| Name: | Michelle |
| E-mail address: | Ahooo7@aol.com |
| Comments: | What a great job Thanks for using the poem
I hope that this site gets the word out to the right people I will passs it on!! |
| Name: | Berta Petrillo |
| E-mail address: | BertaPetrillo@aol.com |
| Comments: | Great website! It's not only informative, it's inspiring.
I'll pass it on to my friends. Wishing you success in making Hope become a reality. God bless you all! Berta |
| Name: | Chuck Wallis |
| E-mail address: | cwallis@lakecountypress.com |
| Comments: | Thank you for putting this together. This is TERRIFIC!
Joanne & I are looking forward to attending the 3rd golf outing. |
| Name: | Carol Boslooper |
| E-mail address: | cboslooper@mycambridgehome.com |
| Comments: | Hi guys -
You know that if there is anything I can do to help, just let me know. Carol |
| Name: | Janet Vitacco |
| E-mail address: | jev12@comcast.net |
| Comments: | Mark and Trisha, congratulations to you, your parents, and to Alice for this inspiring website. Congratulations also for your indomitable spirit! And please know that you will always have our love and support.
Janet and Joseph |
| Name: | Lillian Dever |
| E-mail address: | nonidever@aol.com |
| Comments: | It's awsome. |
| Name: | Lara Lucente |
| E-mail address: | llucente@mesirowfinancial.com |
| Comments: | This is a wonderful website.
My prayers are with your family. Lara & Dominek Lucente |
| Name: | Erin Rokicki |
| E-mail address: | erokicki@mac.com |
| Name: | Lea Bacci |
| E-mail address: | bacci2@msn.com |
| Comments: | The webpage is great! I'm so happy your efforts have come so far and I can only hope that together will all of us who love you, we will go as far as we can. You all know how much to mean to myself and my family. We are always here for help and support.
We love you!! Lea & Family |
| Name: | Carmen M. Ferrer |
| E-mail address: | Ccita@optonline.net |
| Comments: | Alice, I am so proud of you!!!! I am so glad that you have put your talents and time into such a good cause. My prayers are with Trisha, Mark and all their families and devoted friends.
Cousin Carmen |
| Name: | Denise, Richard, Jacki, and Courtney |
| E-mail address: | l8bloomr12@aol.com |
| Comments: | Great Job! The website looks fantastic! |
| Name: | MARY BURGESS |
| E-mail address: | MBURGESS@#SELECT-STAFFING.COM |
| Comments: | Thank you for sharing!!! |
| Name: | SHELLY KAUFMANN |
| E-mail address: | SKAUFMANN@NSSED.K12.IL.US |
| Comments: | NANCY, MIKE, TRISHA AND MARK,
THE WEB SITE IS SO IMPRESIVE! THE PHOTO'S AND ALL THE INFORMATION YOU HAVE PROVIDED IS AMAZING. YOU HAVE ACCOMPLISHED SO MUCH IN A SHORT TIME. I KNOW FIRST HAND WHAT IT IS LIKE TO DEAL WITH ILLNESS. YOU ARE SO FORTUNATE TO HAVE THE LOVE AND SUPPORT OF YOUR FAMILY AND FRIENDS. YOUR FAMILY'S DETERMINATION AND THE BOND YOU SHARE ARE SOMETHING TO BE ADMIRED. I CAN ONLY HOPE A CURE FOR THIS HORRIBLE DISEASE IS IN THE NEAR FUTURE. LOVE, SHELLY |
| Name: | Charlene |
| Comments: | Praying that a cure is found soon.
God Bless, Charlene & Fam Ont Canada |
| Name: | Pinky Bradley |
| E-mail address: | pinky60099@Yahoo.com |
| Comments: | Hi, Nancy, Mike, Trish, and Mark:
I have the utmost respect and admiration for what you all have attempted and accomplished, within the scope to broaden the awareness for this devastating illness of Huntington's Disease. Such efforts can only add to the magnitude of education surrounding such an illness. (I speak from having 'been there' with various close family members for different illnesses; and they all, no matter what the illness, are heart-wrenching; so I know how hard it can be.) #I applaud your tenacity heart-warming measures of perseverance. #Blessings to you all as you continue to work on this - there need to be more folks like you who work so diligently for people they love! With Love and Admiration, Pinky Bradley |
| Name: | Sue Fox |
| E-mail address: | s-fox2@northwestern.edu |
| Comments: | Your webpage is great! It will hopefully inspire many people either fighting the disease or provide a support network for family and friends suffering through it. Your family spirit is completely admirable.
We'll be in touch. Best regards, Sue (Morimoto Lab) |
| Name: | Pinky Bradley |
| E-mail address: | pinky60099@Yahoo.com |
| Comments: | Dear Nancy, Mike, Trish, & Mark:
It is with great respect and admiration that I write you this note - You are doing a great and wonderful thing, in your determined efforts to make others aware of such a devastating illness. I especially admire your tenacity; as I have been through numerous devastating illnesses with various close family members; and it is the toughest thing to do in this earthly life. #God's blessings to you all as you persevere. It is a humbling joy to see such a close familial bond! Love, Pinky Bradley |
| Name: | Ellen Hill |
| E-mail address: | ehill@nssed.k12.il.us |
| Comments: | Your courage and determination are an inspiration to us all! |
| Name: | Robert J. Tierney |
| E-mail address: | rtierney@allstate.com |
| Comments: | Good Luck! It's a great cause. |
| Name: | Kris Manfredini |
| Comments: | Your family shall always remain in my thoughts and prayers. You were my first neighbors and although I'm not the best in keeping in touch, Mark was pretty much my first friend outside of my family. Your determination is to be admired by all along with your strength and courage. Take care and God Bless!
Kris |
| Name: | Paula Gunnings |
| E-mail address: | Fishtatp@msn.com |
| Comments: | What a wonderfully insightful article. I know this has been a long, educational journey for you all. I am proud and know that your efforts will be rewarded. Good Luck and God Bless. You are always in our thoughts and prayers. |
| Name: | Linda Eckart |
| E-mail address: | lindaeckart@charter.net |
| Comments: | What a wonderful family! Their courage in fighting this disease is admirable. I hope and pray a cure will be found in the near future. I plan to make a donation to help in the research effort. Thank you for sharing this family's story with me, Alice. |
| Name: | Nancze |
| E-mail address: | nanczew@earthlink.net |
| Homepage URL: | http://www.nhisgarden.com |
| Comments: | You have a terrific site. I am a prayer warrior with Alice at Legacy of Hope. I am also a nurse and work in a local nursing home. We have a 50's year old male resident with Huntington's Chorea that we care for. It's a devastating disease and I'm glad to hear that there is hope for a cure. I will pray for you that you have much success in raising the needing fund to find one. I hope that it may be found in time to possible help our resident, but if not maybe his young son, who he just found out has it too. May God Bless. Nancze |
| Name: | Don & Beryl Zerwer |
| E-mail address: | dgz219@hotmail.com |
| Comments: | Best wishes and prayers to all whose lives are touched by this affliction. |
| Name: | Glenn & Nancy Unger |
| E-mail address: | nunger@d112.lake.k12.il.us |
| Comments: | Dear Nancy, Mike, Trisha and Mark,
We cannot express enough how much courage and love you have for each other. You show everyone what a real family is. Our hopes and prayers are with you all and everyday wish that a cure will be found. You will always be in our hearts....all of you! Love, Glenn & Nancy |
| Name: | Liza Hardy |
| E-mail address: | lizahardy@hotmail.com |
| Name: | Gretchen Runyan |
| E-mail address: | grunyan@nssed.k12.il.us |
| Comments: | You all have our prayers, bestest wishes, and admiration. Your family continually proves to both believers and skeptics that anything undertaken in the name of love and hope for our children will blossom, grow, and inspire others. Continue to wish on those Stars and hang your hopes on the Moon...Anything is possible through love and faith. Gretchen and Dennis Runyan |
| Name: | Erin Hicks |
| E-mail address: | ehicks@dist113.org |
| Comments: | Thank you Nancy for asking Loretta to pass this information on. You, Mark and Trisha are in my thoughts and prayers often. If Mark is ever wanting to visit please have him call and stop in; I have missed him. Your family photo at Disney was heart-warming, and it was great to see you all smiling. Please take care, Erin |
| Name: | Jill Menning |
| E-mail address: | jmenning@nssed.k12.il.us |
| Comments: | Wonderful website. My hopes and prayers are with you all. |
| Name: | Loretta Bernardi |
| E-mail address: | lbernardi@dist113.org |
| Comments: | Your courage and determination are an inspiration to all whose lives you have touched. I am convinced that eventually you will prevail and this devasting disease will be conquered. Please know that you and all Huntington families will always be in our thoughts and prayers.
Loretta Bernardi & Family |