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| Name: | Penopooly Magilacuddy |
| E-mail address: | nunya@aol.com |
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| Comments: | I take great pleasure signing your guestbook as I have been a victim of not only the devil himself, ENDO, but also the devils angels, which I call the CLAP. So, hear me now as I speak to all who read this informative webpage....I AM THE ANTI CHRIST. JUST KIDDING! HAVE A SENSE OF HUMOR, GEEZ! |
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| Name: | missy29 |
| E-mail address: | missy29@gmail.com |
| Comments: | I really enjoy your site! I have endo and pcos and it has been a long painfull journey both physically and emotionally as you all know very well.You have really inspired me with your story and thank you for such a great site! |
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| Name: | Christina Lawrence |
| E-mail address: | clawrence1984@aol.com |
| Comments: | Hi, My name is Christina Lawrence. I knew of endometriosis at a young age, because my aunt has it. Well my son was about 6 months old when I found out that, I too, have endometriosis. I was only 21. Growing up, I always had painful cramps w/ my period. Miscarried when I was 18. then became pregnant again @ 19. And I see my son as a blessing, seeing that my husband and I cannot seem to get pregnant to save my life! But it was nice reading that Im not the only one out there suffering! Thank You For Starting This Site!
God Bless Christina U.S. Army Wife |
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| Name: | Kimberly Slaughter |
| E-mail address: | kimbline@comcast.net |
| Comments: | I know a few women that suffer from the samething, myself being one of them. I swear, is there something in the water or what?? I have been suffering for 5 years. It started with cysts on my overies. Then I was diagnosed with endometriosis. I've had 4 so far all on my left ovary and they let 2 burst. I was crying in pain, they don't seem to understand or don't care. Then about 2 months ago I was diagnosed with endomyosis too. My doctor has tried one med. for pain, it did not work. Says he is going to try one more then if that don't work he's going to take out my uteris. But he is not really giving me anything for pain, things like naproxin, hell that's an anti-inflamitory drug.I just do not understand some of their methods. |
| How did you find this site?: | looking for info. on endomyosis. |
| Name: | Jamie West |
| E-mail address: | fiesty1133@yahoo.com |
| Comments: | Hi my name is Jamie and my sister in law accidently stumbbled upon this site and thought of me. So, here is my story I started with severe menstural cycles at the age of 9. I like some of the others missed school alomost every month I never saw an OB/GYN till I was pregnant with my first child. So it was never an issue with my mom we never went to the Dr. So I was misdiagnosed many times and for many years. It was very frustrating getting cyst after cyst and noone ever listening to me. I have have been accused of drug seeking and that is even more frustrating because you do start to believe them when it is repettitive. I was misdiagnosed was 5 yrs finally I got an OB/GYN that listened and we disgust many option and felt like a partial hysterectomy was our best option I was24 at the time. I still have my ovaries. My hyst was in May of 07 then in Dec. 07 I had to have emergency surgery my fallopian tubes were twisted and my right tube was filling with fluid. It was huge!!!! then on Dec.30 I was in severe pain for a week finally gave in and had to go to the er and they admitted me for further tests and pain control. On Jan.4 they took me to the O.R. for diagnostic lap. They found massive amount of endometriosis and scrapped and cut and burned every where now I am on Lupron and still in alot of constant pain. I am blessed to have three wonderful and beautiful children ages 3,5, and 6 I would love any advice that can be given. Thank you for the site. Back to the Dr. next week. |
| How did you find this site?: | siter in law told me about it. |
| Name: | Jamie West |
| E-mail address: | fiesty1133@yahoo.com |
| Comments: | Hi my name is Jamie and my sister in law accidently stumbbled upon this site and thought of me. So, here is my story I started with severe menstural cycles at the age of 9. I like some of the others missed school alomost every month I never saw an OB/GYN till I was pregnant with my first child. So it was never an issue with my mom we never went to the Dr. So I was misdiagnosed many times and for many years. It was very frustrating getting cyst after cyst and noone ever listening to me. I have have been accused of drug seeking and that is even more frustrating because you do start to believe them when it is repettitive. I was misdiagnosed was 5 yrs finally I got an OB/GYN that listened and we disgust many option and felt like a partial hysterectomy. I still have my ovaries. My hyst was in May of 07 then in Dec. 07 I had to have emergency surgery my fallopian tubes were twisted and my right tube was filling with fluid. It was huge!!!! then on Dec.30 I was in severe pain for a week finally gave in and had to go to the er and they admitted me for further tests and pain control. On Jan.4 they took me to the O.R. for diagnostic lap. They found massive amount of endometriosis and scrapped and cut and burned every where now I am on Lupron and still in alot of constant pain. I would love any advice that can be given. Thank you for the site. Back to the Dr. next week. |
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| Name: | SARAH TRAYNOR |
| E-mail address: | SARAHTRAYNOR@BLUEYONDER.CO.UK |
| Comments: | THANK YOU FOR THIS SITE THE BEST ONE YET.I.VE HAVE SERVE ENDOMETRIOSIS FOR 21 YEARS. WILL COME BACK AND WRITE MY PROBLEMS IN. BY GOD I'VE GOT THEM. THANK YOU SARAH TRAYNOR |
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| Name: | Lisa |
| E-mail address: | corjosgirl@yahoo.com |
| Comments: | I have been suffering since I was 13. I thought I just was having bad menstural cycles. After years of pain and many dr. appointments and 3 micarriages d&cs. lap. surgery and this year in Jan.07 hysterectomy then pain soon after in June 07 I had an oopherectomy. Now pain again! I feel sad and don't know what is going on? Back to the dr. this week. |
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| Name: | vera mccall |
| E-mail address: | sweetpickle1979@yahoo.com |
| Comments: | I have also been suffering from Endo for the past 8 years. It's been a long up hill battle. I sometimes wonder how I will find away to make it through another painful day. If it was not for the love of my husband and 6 year old daughter, I may have taken the easy way out. |
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| Name: | nickie.murphy |
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| Name: | Michele |
| E-mail address: | JAlyea3600@aol.com |
| Comments: | We have a lot in common. I also suffer with endometriosis and have since the birth of my second daughter in 1995. I have had several laprascopic procedures myself and was finally diagnosed with PCOS a few years ago. I have been down the Lupron route (which lead to other issues). Fortunately, I only have intense pain once or twice a year when a cyst ruptures. Otherwise, I may have some moderate discomfort a few times a week. I have a wonderful and caring OB/GYN. I also have a husband named Jimmy and I love eBaying. I think you have done a wonderful job with your site. I am interested to know how you are doing with breast cancer, since there hasn't been an update recently on your health. Take care. |
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| Name: | Dorcas Annette Laubach |
| E-mail address: | annette62@tx.rr.com |
| Comments: | I am so grateful to you and this web site. I feel some relief in knowing that i am not alone in this excruating pain that I live with on a daily basis... I look forward to learning more from your web site and teling my story soon... thankyou
Annette |
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| Name: | Jackie L. |
| E-mail address: | Dance4j@msn.com |
| Comments: | I was diagnosed with Endometriosis a year and a half ago and I had to get surgery and had 95% of my left ovary removed. I was 20 years old. I suffered from serious pain from the day I got my period when I was 11 years old. I was a dancer and so I think that helped with some of the pain but I remeber feeling myself "ovulate" or the pain of it. I had to miss school and other activies because of the naseau diarrhea and extreme pain. My family all called me a "drama queen" and tole me I was exaggerating. When I had the worst symptome in my second year of college where I couldn't sleep and was vomiting everyday for a month with extreme back pain and lower abdominal pain people shrugged it off and I started to beleive them. I had to emergency surgery and a grapefruit sized chocolate cyst removed from my left ovary that took 95% of it. I know amd starting to feel those "familiar pains" again and I am scared. I want to have children so badly. I know my chances are slimming and I don't want them to pass but I'm just turning 22 next Sunday, I'm still in school and my boyfriend is no where near that stage in his life. I want to enjoy my life too but it is hard. I have been on antidepressants and birthcontrlol continually so I only get my period 3 or four timea a year but it lasts like 10 days. I am goign to the doctor today - ha has been great - when I was misdiagnosed he was the one that brought me into surgery and he is amazing. I am lucky to be in N.Y. but I have never met anyone with this disease. I am praying that I can find suport somewhere and I will be able to have children in the future.
Jackie L. from N.Y.C. |
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| Name: | Iris Williamson |
| E-mail address: | iwyoung@earthlink.net |
| Comments: | Hi -- Spotted your Jes MaHarry ring on eBay, then followed your link to this site. I had endometriosis too, and it's a pain in every sense of the word. I had four awful surgeries until I finally had a hysterectomy at the age of 40. Ironically, it was the least painful of any of my previous surgeries. The only bad thing was, of course, the decision about taking hormone therapy. Good grief. I'm sorry you've had to endure the breast cancer as well. But it seems you've really got a great attitude and a spunky spirit, which I think is half the battle. You're in my prayers, pretty lady. Best, Iris
p.s. I'm the parent of four beautiful cat kids. Wish I could adopt about 20 more! |
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| Name: | L Campbell |
| E-mail address: | ldcampbell@comcast.net |
| Comments: | I am a fellow breast cancer survivor. I have lost two siblings to cancer (my oldest sister was only 27 when she was diagnosed with breast cancer)and feel blessed most of the time, guilty some of the time, that I survived. Guess God isn't done with me. Anyway, I found this website while shopping on your ebay site. I just had to stop in and say hi. Btw, I'm cancer-free 3 1/2 years now! |
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| Name: | Rebecca |
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| Comments: | I am a 30 year young mother of three about for years ago i was having alote of pain in my lower abdomen so my dr felt it best to give me a hystorectomy hes the dr he knew best i was still having alote of pain the thing was i had no periods well over the years the pain still there i hated having intercourse it was so painful but i learned to deal with it untill about januaryy of 06 i went to the ob with sever pain and they told me i had a cyst about 4cm on my left ovary i had no choice it was to big to take with laroscope so they took my left overy and tube they also said i had endo but they said they got it all well 3 mths past and i was still in sever pain taking pain meds every day missing work so i went back they said i had another cyst on my right overy but it was small enough to take out with laproscoepe so i had another surgery they said i had endo on my right side but could not get it all with laproscope so they told me to use the lupron cause the only pain med they could give me was motrin or i could take liquid ibuprofen (childrens) so i had my firt does of lupron in june i go back july for my second im 30 and going to be going through medapause i got another dr to give me a 60 day supply of pain meds but he said that was all he could do for me i would have to talk to my ob dr if i want any more im scared to death im going gto be in pain the rest of my life with this my kids cant play with me the way we use to cause im in so much pain all i want to do is lay around and thank god for my mother cause i get no help from any body else im glad my mom found this site for me.thank you |
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I am disabled with many very different problems, BUT, your story of searching for doctors, putting up with meds, more meds, side effects AND being treated as a drug seeker, when ALL YOU WANT IS HELP AND TO BE TAKEN SERIOUSLY!!!!!BUT, in great need of pain relief. Also, loosing ALL QUALITY of life. The only place i go is to the doctor!!!!!! I ALSO can totally relate to the loss of friends AND FAMILY and the loss of support when you are in desperste need. i feel totally alone!!!! I am unable to write much due to severe arthrits and another newly undianosed probem with my hands. GOOD FOR YOU!! i tried starting an Ebay budiness. i could not do the work. Find the items , list, pack, ship. it is a LOT OF HARD WORK!!!!! I have to have someone else sell for me. She takes 50%, so i normaly loose a LOT OF MONEY!!! All in all, it is a nightmare.I too have made friends online, but noone can relate to the many isues I have. my son also died, so, which group to find??? I wish anyone and everyone the best and invite you to write. Penelope is a WONDERFUL person, who has sufered so much and I am heartbroken at her recent diagnosis. i write to offer my support and encouragement. We are not alone, even though many have various problems, sadly we feel very alone, even in just finding a good doctor. to all who read this The best of luck. Sheri herman srh1018@aol.com (please excuse typos. i can not even write long enought to tell my story.) IF ANYONE HAS HAD LUCK WITH ANY PAIN MED, I WOULD LOVE TO KNWO WHAT HELPPED. I HAVE FIBRO, HAD 7 CAR ACCIDENTS,MIGRAINES, HORMONE PROBLEMS, DEGENERATIVE DISC, FACET SYNDROME (ALL BACK PROBLEMD) HAD A HYSTERECTOMY AND THE LSUNDRY LIST GOED ON |
| How did you find this site?: | you bought from me via La Stars, I was friends with your mom and knew a lot of your story, but not in this detail! |
| Name: | Jason Miller |
| E-mail address: | info@forex-forecast.atspace.biz |
| Homepage URL: | http://forex-forecast.atspace.biz |
| Comments: | Nice site! Look at my one: Forex forecast - daily and weekly high/low price forecasts for the majors, minors and exotic currencies, including euro cross and pound cross forecasts. |
| How did you find this site?: |
| Name: | aimee |
| E-mail address: | aimeesbunch@aol.com |
| Comments: | Hello everyone, I have been struggling with endometerois for almost 5 years now. My husband and I had been trying to conceive a second child for about a year.When nothing was happening, I made an appointment with a specialist and found out that I had endo. My uterus and cervix were both covered, not to mention my rectum. I went in for the laporscopy, and in 3 months, I was pregnant. Here it is 3 years later and wanting to add to the family, and my doctor performed my yearly pap test and informed me that the endo was definitly back. There was so much of it on the back of my uterus that he could actually fell it while doing the exam. My options now are to see a fertility specialist and go from there. My other option is to be put on lupron for 6 months to slow down the growth of the endo, then check and see how much worse my scarring is from the last surgery. If I do another surgury it will be my 4th one for indo. I desperately want another child, but at the same time I am tired of going under the knife. We have two healthy boys that we thank God for everyday. All we can do is leave it in the Lords hands, and his will, will be done. I am so thrilled to have found this site. God bless you all, and keep your faith in Christ. |
| How did you find this site?: | looking under lupron |
| Name: | Melinda Preciado |
| E-mail address: | alfymel@wmconnect.com |
| How did you find this site?: | searching |
| Name: | naked poker |
| E-mail address: | jane_doe6792@classnet.pl |
| Homepage URL: | http://www.poker-places-4u.com/naked-poker.html |
| Comments: | Take your time to check the sites dedicated to now that you have read the texas holdem poker rules |
| How did you find this site?: | naked poker |
| Name: | Jenn Meanor |
| E-mail address: | jgoogoo79@yahoo.com |
| How did you find this site?: | endo search on google |
| Name: | pc texas hold em |
| E-mail address: | absolut4153@arrivo.br |
| Homepage URL: | http://www.dalin-ina.com/pc-texas-hold-em.html |
| Comments: | You are invited to take a look at some helpful info about partypoker bonus |
| How did you find this site?: | pc texas hold em |
| Name: | Lisa and Jenny |
| E-mail address: | cinn2jenn@hotmail.com |
| Comments: | WOW Penny... we haven't been here in so long and were just so proud to see how you've maintained this site... ever dilligent, thats YOU! We wanted to say that we love you and we are proud of you. Take care and know that you are in our prayers. Love, Lisa and Jenny |
| How did you find this site?: | a bond |
| Name: | michelle |
| E-mail address: | iculkin76@aol.com |
| Comments: | I am very glad I found your website. I was diagnosed with endometreosis 14 years ago. |
| How did you find this site?: | researching endo |
| Name: | Jennifer Grimes |
| E-mail address: | jengrimes4@hotmail.com |
| Comments: | Your story was very helpful to me knowing that I'm not the only one. Like you said in your story you saw doctor after doctor and nobody could tell you anything. It was like I was reading my life story. Some of them looked at me like I was crazy because the way I described the pain I was haveing. I have FINALLY found an awesome doctor who is going to do a laperoscipy next week and also repair my bicornial uterous. Thank you again. |
| How did you find this site?: |
| Name: | Karyn |
| E-mail address: | kmoeskops@hotmail.com |
| Comments: | I'm so happy I found this site, it's fantastic and well put together. I too was diagnosed with Endo in '99. I'm now 24 yrs old and in 19 days I go for my 4th Lap/Laperotomy surgery. I find it's easier to deal with all this when there are wonderful women out there who were brave/smart enough to start sites like this one for other women to share their stories and gain support.
I truely thank you from the bottom of my heart. Best wishes, K |
| How did you find this site?: | Dr. Cook |
| Name: | Tracie |
| E-mail address: | percival@ncweb.com |
| Comments: | I am 31 years old, and was diagnosed with stage IV endometriosis about one month ago. My doctor has tried birth control and a laparoscopy, and nothing is giving me relief. He has suggested Lupron, but I am very scared of what that will do to me. I am a marathon runner, and have been very depressed and unable to run. I am getting so weak and I am in so much pain. I have been married for three years, and I have no children. My uterus and ovaries are so scarred, it doesn't look like I will ever be able to have my own children. Thank God I am a teacher, and I touch children's lives through my career. I think if I already had kids, my doctor would suggest a hysterectomy. He thinks I am very young to do that, but he also told me that it was my body and he respected my choice. I am very confused about Lupron or the hysterectomy and which route is the better one to take. It just feels like Lupron relief is only temporary. My pain is getting so severe though, that I have missed one day of work over the past four weeks. Being a teacher, this is tough on me and my students. I'm sorry to be venting but I just need someone to talk to or some advice from someone who really knows how I feel. Thanks for reading this. |
| How did you find this site?: | endo and hysterectomy search |
| Name: | Colleen |
| E-mail address: | cruelladevil48038@yahoo.com |
| Homepage URL: | http://groups.yahoo.com/groups/betseyjohnsonfans |
| How did you find this site?: | bid on ebay |
| Name: | Hilary Jones |
| E-mail address: | hjones77@earthlink.net |
| Comments: | I saw your website while bowsing trying to find more anwsers about Endo. I just had my 2nd sugery. |
| How did you find this site?: | Browsing |
| Name: | nicole scorsone |
| E-mail address: | lilacwine11@aol.com |
| Comments: | i love pj |
| How did you find this site?: | you |
| Name: | Theresa |
| E-mail address: | littlereds01@yahoo.com |
| Comments: | I'm glad to have visited this web site. I was diagnosed with PCOS after having my first son in 1989 and my second child was a girl. I have every symptom there is to having this disease. I have serve pain constantly. I have it on both of my ovaries. I have gained over a 100 pounds and have facial hair constantly growing only to be shaved. I don't think my family really understand the pain and problems that come from this. So I enjoy having this web site. Will drop another line soon..... Thanks |
| How did you find this site?: | web surfing |
| Name: | rebecca |
| E-mail address: | becky97precious@yahoo.com |
| Comments: | I have just been diognosed with endometriosis. and like many others I have felt alone and NO ONE understands! this is affecting my whole family and friends. My doctor wants to do a hysterectomy soon, only if I feel I no longer want children. Ive got one son and a stepdaughter so I feel complete and really have NO desire for more children with the shape I'm in with this disease. I'm scared to do death because I'm only 27 and I will be going through menopause before 30!! I don't want to scare my family away no more than I already have and then on top of that gain weight to make my self esteem go down! I'm glad I'm not alone and I pray for each and every one of the people out there that are dealing with this disease! please let me know if anyone can give me advice on there hysterectomy's and there lives afterwards. Thank You for listening I've needed someone to understand for a long time now!!! |
| How did you find this site?: | searchin for answers! |
| Name: | elaine abarca |
| E-mail address: | susi_abarca_stacey@yahoo.com |
| Comments: | i just wanted to say that i really liked reading all of this i see now that there are many more people in the world that have similiar problems i was diagnosed with bicornial uterus and i dont have much information on it if anyone has anymore info on this subject plaese email me thanks |
| How did you find this site?: | searching for results on bicornial uterus |
| Name: | insurance quotes |
| E-mail address: | grey_goose4440@arrivo.br |
| Homepage URL: | http://insurance-quotes.rulo.biz/ |
| Comments: | Please check out some helpful info about valium |
| How did you find this site?: | insurance quotes |
| Name: | insurance quotes |
| E-mail address: | grey_goose4440@arrivo.br |
| Homepage URL: | http://insurance-quotes.rulo.biz/ |
| Comments: | Please check out some helpful info about valium |
| How did you find this site?: | insurance quotes |
| Name: | Tara |
| E-mail address: | sten0015@hotmail.com |
| Comments: | Loved your story. I'm 24 and just on the 11th of Jan. had my 3rd surgery for endometriosis. My doctor couldn't do all that she wanted because it would have caused me more complications than good. Thank god I'm in Canada and for now, our Health Care is stable, or I too would be in your predicament. I wish you Hope and Luck on your journey, it's definately a life long battle. Cheers girl! |
| How did you find this site?: | searching |
| Name: | Vonnie Wise |
| E-mail address: | ehw8588@juno.com |
| How did you find this site?: | Through Dr. Cooks website. |
| Name: | vanessa hurst |
| E-mail address: | virgo_vany@yahoo.com |
| Comments: | Hi, my name is vanessa i am 31 and was diagnosed with endo when i was 28 years old. I do not have any children but do wish to have one or more someday, i have been fighting this disease since I was 15 years, always had very painful periods, also went home early from school. I love your web-site out of all the research i have done i have found your site to be very touching & helpful. I am trying to gather information in Miami Florida to start a support group because there are very few people that understand and know about this terrible disease. |
| How did you find this site?: | msn |
| Name: | becky |
| E-mail address: | danceratheart79@aol.com |
| Comments: | I started crying the first time I was on this website. I am so glad that I found it! I have felt so alone even though I know other women have endo. It's hard to talk to people about the constant pain I'm in. They don't understand, I know all you understand. Thank you for what you do!
love, becky |
| How did you find this site?: | a friend told me about healingwell.com & i got the link |
| Name: | Kris |
| E-mail address: | TravisBarnette@yahoo.com |
| Comments: | Hi,my name is Kris An i have been suffering with endo for 6 yrs an i am still fighting it. But your website has helped me out alot. I wish i would of seen thi web site years ago. I just want all of you to know that dont give up the fight cause we cant let this beat us we have to beat it. Ill keep fighting for you an also for my family. Cause the thought of my daughter going through this scares me an i dont want her to go through what i am going through. Life is to short to live in pain every day. But its better knowing that there is a support group like this. God bless you all. A new persn to this site. |
| How did you find this site?: | Just clicked on |
| Name: | Renee Dixon |
| E-mail address: | ReneeIDixon@aol.com |
| Comments: | I just wanted to thank you for you web site. I am in the early stages of being diagnosed with Endometriosis, I have been battling with pain and horrible periods for years but the doctors just kept putting me off. I finally convinced them after going back for 3 months in a row. They sent me for an ultrasound and found an endometrioma in my left ovary and when I went back 8 weeks later they found something on my right ovary. I have met with a surgeon and go in on 12/2 for her to do an ultrasound then surgery. It's a bit scary and confusing all at the same time. |
| How did you find this site?: | On Msn |
| Name: | faith |
| E-mail address: | dputney143@aol.com |
| Comments: | I have been diagnosed with a bicornail uterus, my doctor acts like it nothing except you have to get c-sections. Last june I had a tubal pregnancy, since then I cannot become pregnant. Im a scared emotional mess. I've heard of woman who have a bicornail that they have been on bedrest through their prgnancies, and all kinds of things, I am having a hard time finding info on this subject please help, by email asap!!! If anyone knows anything I m desperate. |
| How did you find this site?: |
| Name: | Mark Heck & Denise C. Price |
| E-mail address: | refunds@msn.com |
| Homepage URL: | http://www.belowprice.homestead.com/coupons.html |
| Comments: | What a great site you have here. God bless & we'd like to let others know about saving money to help ease financial stresses.Click on our link,it's FREE |
| How did you find this site?: | Stockpilesrus.com |
| Name: | Trish |
| E-mail address: | originalxena@cox.net |
| Comments: | Thanks for posting this site on Lord G's site! It is really helpful! |
| How did you find this site?: | Lord Goliath's site |
| Name: | Sarah |
| E-mail address: | slm_1971@hotmail.com |
| Comments: | Great Site :-)))) |
| How did you find this site?: | web search |
| Name: | Kat aka ECF |
| E-mail address: | elviscostellofan@ihatecounterfeitbags.info |
| Homepage URL: | http://ihatecounterfeitbags.info |
| Comments: | Penelope ~ I don't know why I never read your "me" page. I am a fellow Endometriosis sufferer! Not a very happy thing to have in common. :-p
Big hugs, Kat ECF |
| How did you find this site?: | eBay |
| Name: | susan b gough |
| E-mail address: | susanbgough04@yahoo.com |
| Comments: | dear penelope, i hope this note fiinds you doing well. i've bought from you in the past just just figured out that you're cheryls daughter! i luv your mom,she's so sweet. when she told me a while back,that she has a daughter named penelope, i thought that you were 12 years old or so, i thought that you were willows big sister!! i guess your mom just looks too young to have a daughter your age!! must be something in that new jersey water!! tee hee!!
anyway, i just wanted to write you a note . your story was very enlightening-i'd never heard of the disease. i'll always keep you in my thoughts and send you positive energy. i hope you're comfortable and not hurting mentally and physically. your husband must be an angel too and your son is beautiful! does he look like his dad???!! tee hee!! bye for now. take care. sincerely, susan tell your mom it was jades mother. she'll know... |
| How did you find this site?: | ebay |
| Name: | susan b gough |
| E-mail address: | susanbgough04@yahoo.com |
| Comments: | dear penelope, i hope this note fiinds you doing well. i've bought from you in the past just just figured out that you're cheryls daughter! i luv your mom,she's so sweet. when she told me a while back,that she has a daughter named penelope, i thought that you were 12 years old or so, i thought that you were willows big sister!! i guess your mom just looks too young to have a daughter your age!! must be something in that new jersey water!! tee hee!!
anyway, i just wanted to write you a note . your story was very enlightening-i'd never heard of the disease. i'll always keep you in my thoughts and send you positive energy. i hope you're comfortable and not hurting mentally and physically. your husband must be an angel too and your son is beautiful! does he look like his dad???!! tee hee!! bye for now. take care. sincerely, susan tell your mom it was jades mother. she'll know... |
| How did you find this site?: | ebay |
| Name: | MUGU |
| E-mail address: | mugu@mugu.com |
| Comments: | i don reach here o!!!!!!!!!!!!!!! |
| How did you find this site?: | friend |
| Name: | Jane Perez |
| E-mail address: | jane@trustpharma.com |
| Homepage URL: | http://www.trustpharma.com |
| Comments: | Trustpharma.com is your comprehensive and safe online pharmacy for obtaining generic medications. Our online medical store supplies only top-quality generic drugs that are exact equivalent of the brand name drugs. |
| How did you find this site?: | Serch Engine |
| Name: | Michelle Unger |
| E-mail address: | Michelle.unger@att.net |
| Comments: | I have tried to have a baby for 6 years. I found out after the dr. tried insemination 2 times. clomid every month. thousands of dollars later. I really had a lot of pain. So much that I could not have sex. i really had a hard time going to the bathroom to take a shit. The dr. went and looked around inside found endometreosis all over my organs. He went in and colorized it or better term burned it. I was pain free for one year. Now I take the loupron shot every 3 months. I really want to have a baby but I dont think thats ever going to happen. |
| How did you find this site?: | loupron |
| Name: | Tammi P. Smith |
| E-mail address: | tfay@tapeanddiscfactory.com |
| Homepage URL: | http://tapeanddiscfactory.com |
| Comments: | I have recently joined Endo Angels, and I thank heaven for this web site. I know now I am not alone in this disruptive disease. Thank you Pennelopy for all your love and concern enough to start up this web site, and especially for your courage to speak out on behalf of yourself, you are worthy, now I know I am worthy too, thank's to YOU!! |
| How did you find this site?: | just by writing the word, "endometriosis" |
| Name: | tara |
| E-mail address: | tara_lee2004@sbcglobal.net |
| Comments: | my story starts about 5 years ago. i began having terrible pain on my right side. the doctors thought it was my appendix so the removed them. that worked for about 6 months. next they went in to explore to discover my right tube was about to burts. the removed my tubes and that worked for about 4 months. then they put me on birth controll to take continuously. no perion no pain........hahaha. im february it was back. i still hadnt been diagnosised with endo but they said the only option i had to stop the pain was a hysterectomy. on march 8 i had a hysterctomy but left ovaries and cervix. i started back on the birth controll immediatly after because they said it was endo. i went in for a 6 week check up and scar tissue was already growin on my cervix. now it is june and the pain is back almost as bad as before. i hope some day they find a cure for this because im so sick of takin pain pills or this pill or that pill. im glad to know that im not alone with this. |
| How did you find this site?: | search for endo |
| Name: | fenicia canty |
| E-mail address: | feniciacanty@yahoo.com |
| Comments: | I haven't been diagnosed yet but i have all of the symptoms, I went to the doctor and she said everything was fine,but i don't feel fine so i'm going to a gynecologist because i had a pap smear done, a vaginal ultrasound and a regular ultrasound done and it came back normal. I need H E L P!!!!! |
| How did you find this site?: | under endometrious |
| Name: | Alisha |
| E-mail address: | aliear1@sbcglobal.net |
| Homepage URL: | http:// don't have one |
| Comments: | I am 29yo and have been going through the painful journey of Endometriosis since I was 20. I have had 9 suregeries and 2 children now. Of course during pregnancy the endo lays dormant (remission). However my oldest is 3 and my youngest is 17mo. Now that I am almost 30, I am in straight menopause!! Having a FULL hysterectomy was my only option. No ovaries, no tubes, cervix, etc. My latest problem is that since I am on the hormone replacement, it now is causing the endo to grow. So pick my poinon. Do I take the hormone replacemnt and stop the hot flashes, moodiness, and allow the endo to keep growing? Or do I get off them and hope like hell it doesn't come back on it's own? It is such a discouraging disease and yet many times people think the pain is all in your head. WRONG!!!!! Here is my favorite response from doctors and outsiders. "Just take some x-tylenol, put a hot pad on your belly and eventually this will go away." My general response to that is, "Do you really think if that worked I would be here spending so much money and time, especially if I know exactly what the symptoms are?" It's not until I get on the operating table and they get a closer look inside, then they realize I wasn't out of my mind. That I really was hurting, how severe it really is, and that I wasn't there just for the pain meds, and then they begin to appoligize all over themselves for being soooo un-feeling. So then they dope you up and wait for the next flair-up. It's just like a viscious circle. When does it stop? Appearently since my hysterectomy, that wasn't the answer. It's now on my bladder, bowel, intestines etc. So for those of you who feel like no one understands and you feel all alone, you're not! It's only those who have been through the miserable experiences who can sympathize with you. I'm on surgey #10 next week and I'm going to insist they just install a zipper begining at my breast bone for all the next surgeries to come. (LOL) You must keep a good sence of humor in situations like mine or else you WILL loose your mind. Just remember, "It's mind over matter, I don't mind and it doesn't matter!!" Good luck to all. |
| How did you find this site?: | research od endo |
| Name: | Ashley |
| E-mail address: | Willow486@hotmail.com |
| Homepage URL: | http://dont have one. |
| Comments: | I'm 18 years old, and I have Endometriosis, before I found out I had it, I had never even heard of it. My obgyn gave me a shot thats called Loupron (not sure how to spell that). It puts me into really early Menopause. I really don't know much about Endometriosis, or Loupron either. I got surgery and thats how they found out I had it. I missed alot of my 11th grade year because first I had mono and now I have this. It's been hard, b/c I just feel that I am too young to have to be going through this, maybe I just have bad luck I don't know. I guess that's all I can think of to say. l8er |
| How did you find this site?: | looked up Endometriosis. |
| Name: | june |
| E-mail address: | edonn70293@aol.com |
| Comments: | I'm going to have a hystertomy soon, and hope that the pain , tireness, aches in the joint and muscle go away, my sexual desire comes back. I'll let you know after it is all done. |
| How did you find this site?: | on the web |
| Name: | Jennifer |
| E-mail address: | purpleheat1975@yahoo.com |
| Comments: | Thank You |
| How did you find this site?: | Searching For It |
| Name: | Carolyn Levett |
| E-mail address: | support@endo-resolved.com |
| Homepage URL: | http://www.endo-resolved.com/index.html |
| Comments: | This is a very informative site with lots of resources and useful advice.
I used to suffer from endometriosis but after 4 years of Homeopathy, and lots of self help and positive thinking, I was totally healed of this disabling disease. I have now put together my own supportive website (www.endo-resolved.com) where women can make more informed choices about the treatment route they wish to use. The site contains advice about conventional and alternative treatment, as well as advice about diet, pain management, healing, and some positive testimonials of other women who have fully or partially healed from endometriosis. |
| How did you find this site?: | search-engine |
| Name: | Nancy |
| E-mail address: | ngini_rossi@hotmail.com |
| Comments: | I would like to know any new treatment to treat endo, even the alternatives. I have been suffer endo for a long time but only now I have more information to battle the monster. Only here in the USA I could find help. Thank God I could have a baby but after the pregnancy the endo came back with more power. I'm doing a diet without sugar and it is helping me a lot. However, I cannot understad yet the relationship beetwen endo and diet. Thanks a lot for being there |
| How did you find this site?: | just looking for information |
| Name: | Erin |
| E-mail address: | rosegurl1@hotmail.com |
| Comments: | Thank you so much for putting together this website. It's encouraging to know that I am not alone in this. |
| How did you find this site?: | msn search |
| Name: | Michele |
| E-mail address: | michele.alexander@primus.ca |
| Comments: | My gyno says I probably have Endo(polysistic ovaries). She has prescribed the pills but they make me sick and dizzy. As a result I have gained weight..and become a reactive hypoglycemic. Thank god I have a beautiful son after having a miscarriage. I wonder when I will feel normal again. |
| How did you find this site?: | surfing web |
| Name: | HILLARI OBRIEN |
| E-mail address: | dhobrien@earthlink.net |
| Comments: | HELLO, HOW WONDERFUL TO FIND YOUR SITE. I AM 39 YEARS AND HAVE HAD ENOMETRIOSIS FOR 3 1/2 YRS. IT BEGAN AFTER THE BIRTH OF MY FIRST CHILD. BY THE TIME MY SECOND CHILD WAS BORN MY HORMONES, MIGRAINES, PELVIC AND OVARIAN PAIN.... BECAME SO SEVERE THAT I WAS IN THE ER ON A BI-WEEKLY BASIS.
THEY FOUND THICKENING OF UTERAN WALL, FLUID BEHIND UTEROUS CAUSED BY CYSTS THAT WOULD BURST. MY MIGRAINES AND PELVIC PAIN WAS CONSISTANT WITH OVULATION AND PERIODS. I WAS ADMITED LAST JUNE WITH WITH MIGRAINES, VOMITING AND SEVERE DIARREAH. HAD MY GALLBLADDER REMOVED AND THE DOC FOUND ENDOMETRIOSIS ON LEFT OVARY. I WENT THROUGH THREE GYNOS AND FOUR DIFFERENT BIRTH CONTROL PILLS TO CONTROL SYMPTOMS. NONE WORKED. I REFUSED TO TRY LUPRON INJECTION FOR FEAR OF MIGRAINES. FOUND A NEW DOCTOR WHO FELT I NEEDED TO HAVE A PARTIAL HYSTORECTOMY. HE REMOVED EVERYTHING ACCEPT MY RIGHT OVARY. I CAME HOME 4 DAYS LATER ON TOP OF THE WORLD! IT'S ONLY BEEN 4 WEEKS BUT I FEEL LIKE IT WAS THE RIGHT CHOICE. I HAVE HAD A FEW ANXIETY ATTACKS THAT THE DOC SAID ARE RELATED TO THE OPERATION AND HORMONAL IMBALANCES. I HAVE HIGH HOPES. READING THIS WEBSITE DOES WORRY ME A BIT ABOUT FUTURE REOCCURENCES. I PRAY ALL IS OVER. THANKS SO MUCH!!! HILLARI OBRIEN |
| How did you find this site?: | GOOGLE.COM |
| Name: | janine |
| E-mail address: | jackieb162@aol.com |
| Comments: | My sister suffers from this painful disease, it has prevented her from having children. I have PCOS and have children but have every other sympton that goes along with this diagnosis. We are all sisters. janine berkson |
| How did you find this site?: | Ebay |
| Name: | nicole hunt |
| E-mail address: | cole_4202001@yahoo.com |
| Comments: | its good to find that there are support groups for things like this. I am 20 years old and have had endometreosis since i was probably about 18. |
| How did you find this site?: | i just came upon it |
| Name: | Pam |
| E-mail address: | pamelamartin_4@hotmail.com |
| Comments: | Go to "pelvicpain.com" for more info- |
| How did you find this site?: | web search |
| Name: | Pam |
| E-mail address: | PamelaMartin_4@hotmail.com |
| Comments: | I am 36 years old and have had more pain since I have had my children. I have consulted doctors who haven't given me a concrete diagnosis but I feel I fit into the symtoms I read here. It was suggested that I start Lupron, and from what I understand that will put you into pre-menopausal stages. (I have 2 beautiful, healthy children and I am not planning on having anymore.) In conjunction, they want to give me pregestron to offset the hotflashes. This is also only a temporary solution. I find it to be on and off with pain. Somedays I have a hard time trying to walk and others it is one sided. Intimacy is a challenge when it hurts so bad that you cant get past the pain and discomfort. I was told to try Avlimil, which can help some-
Thank you for having this site available for women to hear others in the same situation. I noticed alot of very young girls. What is a good sight to also get "medical information"? |
| How did you find this site?: | looking up endomyosis |
| Name: | katrina |
| E-mail address: | that_darn_kat2004@hotmail.com |
| Comments: | thank you for this site...it's really help me out alot.
i started to have my pains at the age of 15, and no one could help me- everyone was clueless and it made me very sad that no one wanted to help me. at first i thought killing myself would be the easy way out for me,but every time i tried i failed. i'm not sure how much pain i'll be able to take,but i'm glad that were all in this together. |
| How did you find this site?: | surfing the net |
| Name: | katrina |
| E-mail address: | that_darn_kat2004@hotmail.com |
| Comments: | thank you for this web.site |
| How did you find this site?: | surfing the net |
| Name: | Jen |
| E-mail address: | Twcasnicejt@aol.com |
| Comments: | I wonder why a hysterectomy is the only answer for Endometriosis? I was never diagnosed. I had a lap. and was not told about the endo. 10 months later because of severe pain I had the surgery again and woke up with a complete hysterectomy. Now I worry about taking Premarin and about bone loss. I have shrunk a half an inch. I was only 34 when I had the hysterectomy, I am now 40. Fortunately I had my children when I was much younger but I do feel cheated that my second husband and I never had a chance to have a child. I would encourage woman to explore other options before consenting to have a hysterectomy.
Thanks for the opportunity to tell a little part of my story and for this website that lets me know that I'm not alone in this. |
| How did you find this site?: | just surfing |
| Name: | Amanda Leonard |
| E-mail address: | getnmyway@aol.com |
| Comments: | it is a relief to find a site where there are more people in my situation. I am very afraid and confused about what is happening to me. The site is a big comfort for me |
| How did you find this site?: | surfing the web |
| Name: | Kelly |
| E-mail address: | kdcd@charter.net |
| Comments: | Hi - my name is Kelly and I have suffered with endo for 20 years. I have had several surgeries, including a partial hysterectomy in 1997 and was back in for surgery again in 2002 and now believe it has returned yet again. I have had it on my bladder, colon, appendix, ovaries, tubes, etc. Am looking forward to talking with someone before I go insane. Thanks and I look forward to finding a way to talk with someone.
Sincerely, Kelly |
| How did you find this site?: | search on endo |
| Name: | Dolores |
| E-mail address: | doloresmd@msn.com |
| Comments: | Hi. I'm 39 years old and was diagnosed with endo. about 9 years ago but in pain for 20 years. I am also a DES daughter. My pain varies from day to day but never goes away. I have had 7 surgeries since the age of 18. I rely on prescription pain medicine to get through life. I suffer in silence because family and friends don't understand. My doctor tells me that I have the type of body chemistry that makes adhesions. I don't want to have anymore surgeries. I have become a vegetarian, take alot of supplements and hoping one day I will be free of this nightmare. Good luck and good health to everyone. |