Endo Angels
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Name: Penopooly Magilacuddy
E-mail address: nunya@aol.com
Homepage URL: http://www.whitehouse.com
Comments:I take great pleasure signing your guestbook as I have been a victim of not only the devil himself, ENDO, but also the devils angels, which I call the CLAP. So, hear me now as I speak to all who read this informative webpage....I AM THE ANTI CHRIST. JUST KIDDING! HAVE A SENSE OF HUMOR, GEEZ!
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Sunday, April 13th 2008 - 03:19:21 PM
Name: missy29
E-mail address: missy29@gmail.com
Comments:I really enjoy your site! I have endo and pcos and it has been a long painfull journey both physically and emotionally as you all know very well.You have really inspired me with your story and thank you for such a great site!
How did you find this site?: surfing the net for answers
Wednesday, February 27th 2008 - 07:09:52 AM
Name: Christina Lawrence
E-mail address: clawrence1984@aol.com
Comments:Hi, My name is Christina Lawrence. I knew of endometriosis at a young age, because my aunt has it. Well my son was about 6 months old when I found out that, I too, have endometriosis. I was only 21. Growing up, I always had painful cramps w/ my period. Miscarried when I was 18. then became pregnant again @ 19. And I see my son as a blessing, seeing that my husband and I cannot seem to get pregnant to save my life! But it was nice reading that Im not the only one out there suffering! Thank You For Starting This Site!

God Bless
Christina
U.S. Army Wife
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Thursday, February 14th 2008 - 04:08:28 AM
Name: Kimberly Slaughter
E-mail address: kimbline@comcast.net
Comments:I know a few women that suffer from the samething, myself being one of them. I swear, is there something in the water or what?? I have been suffering for 5 years. It started with cysts on my overies. Then I was diagnosed with endometriosis. I've had 4 so far all on my left ovary and they let 2 burst. I was crying in pain, they don't seem to understand or don't care. Then about 2 months ago I was diagnosed with endomyosis too. My doctor has tried one med. for pain, it did not work. Says he is going to try one more then if that don't work he's going to take out my uteris. But he is not really giving me anything for pain, things like naproxin, hell that's an anti-inflamitory drug.I just do not understand some of their methods.
How did you find this site?: looking for info. on endomyosis.
Thursday, January 24th 2008 - 11:51:11 PM
Name: Jamie West
E-mail address: fiesty1133@yahoo.com
Comments:Hi my name is Jamie and my sister in law accidently stumbbled upon this site and thought of me. So, here is my story I started with severe menstural cycles at the age of 9. I like some of the others missed school alomost every month I never saw an OB/GYN till I was pregnant with my first child. So it was never an issue with my mom we never went to the Dr. So I was misdiagnosed many times and for many years. It was very frustrating getting cyst after cyst and noone ever listening to me. I have have been accused of drug seeking and that is even more frustrating because you do start to believe them when it is repettitive. I was misdiagnosed was 5 yrs finally I got an OB/GYN that listened and we disgust many option and felt like a partial hysterectomy was our best option I was24 at the time. I still have my ovaries. My hyst was in May of 07 then in Dec. 07 I had to have emergency surgery my fallopian tubes were twisted and my right tube was filling with fluid. It was huge!!!! then on Dec.30 I was in severe pain for a week finally gave in and had to go to the er and they admitted me for further tests and pain control. On Jan.4 they took me to the O.R. for diagnostic lap. They found massive amount of endometriosis and scrapped and cut and burned every where now I am on Lupron and still in alot of constant pain. I am blessed to have three wonderful and beautiful children ages 3,5, and 6 I would love any advice that can be given. Thank you for the site. Back to the Dr. next week.
How did you find this site?: siter in law told me about it.
Saturday, January 19th 2008 - 09:53:46 AM
Name: Jamie West
E-mail address: fiesty1133@yahoo.com
Comments:Hi my name is Jamie and my sister in law accidently stumbbled upon this site and thought of me. So, here is my story I started with severe menstural cycles at the age of 9. I like some of the others missed school alomost every month I never saw an OB/GYN till I was pregnant with my first child. So it was never an issue with my mom we never went to the Dr. So I was misdiagnosed many times and for many years. It was very frustrating getting cyst after cyst and noone ever listening to me. I have have been accused of drug seeking and that is even more frustrating because you do start to believe them when it is repettitive. I was misdiagnosed was 5 yrs finally I got an OB/GYN that listened and we disgust many option and felt like a partial hysterectomy. I still have my ovaries. My hyst was in May of 07 then in Dec. 07 I had to have emergency surgery my fallopian tubes were twisted and my right tube was filling with fluid. It was huge!!!! then on Dec.30 I was in severe pain for a week finally gave in and had to go to the er and they admitted me for further tests and pain control. On Jan.4 they took me to the O.R. for diagnostic lap. They found massive amount of endometriosis and scrapped and cut and burned every where now I am on Lupron and still in alot of constant pain. I would love any advice that can be given. Thank you for the site. Back to the Dr. next week.
How did you find this site?: siter in law told me about it.
Saturday, January 19th 2008 - 09:49:01 AM
Name: SARAH TRAYNOR
E-mail address: SARAHTRAYNOR@BLUEYONDER.CO.UK
Comments:THANK YOU FOR THIS SITE THE BEST ONE YET.I.VE HAVE SERVE ENDOMETRIOSIS FOR 21 YEARS. WILL COME BACK AND WRITE MY PROBLEMS IN. BY GOD I'VE GOT THEM. THANK YOU SARAH TRAYNOR
How did you find this site?: JUST BY LOOKING AT ALL THE OTHER ONES
Sunday, November 18th 2007 - 09:07:26 AM
Name: Lisa
E-mail address: corjosgirl@yahoo.com
Comments:I have been suffering since I was 13. I thought I just was having bad menstural cycles. After years of pain and many dr. appointments and 3 micarriages d&cs. lap. surgery and this year in Jan.07 hysterectomy then pain soon after in June 07 I had an oopherectomy. Now pain again! I feel sad and don't know what is going on? Back to the dr. this week.
How did you find this site?: yahoo search
Tuesday, October 9th 2007 - 06:40:10 PM
Name: vera mccall
E-mail address: sweetpickle1979@yahoo.com
Comments:I have also been suffering from Endo for the past 8 years. It's been a long up hill battle. I sometimes wonder how I will find away to make it through another painful day. If it was not for the love of my husband and 6 year old daughter, I may have taken the easy way out.
How did you find this site?: yahoo search
Monday, September 3rd 2007 - 10:06:24 AM
Name: nickie.murphy
E-mail address: nickie.murphy@oomc.com
How did you find this site?: serching for support group
Tuesday, August 21st 2007 - 10:23:30 AM
Name: Michele
E-mail address: JAlyea3600@aol.com
Comments:We have a lot in common. I also suffer with endometriosis and have since the birth of my second daughter in 1995. I have had several laprascopic procedures myself and was finally diagnosed with PCOS a few years ago. I have been down the Lupron route (which lead to other issues). Fortunately, I only have intense pain once or twice a year when a cyst ruptures. Otherwise, I may have some moderate discomfort a few times a week. I have a wonderful and caring OB/GYN. I also have a husband named Jimmy and I love eBaying. I think you have done a wonderful job with your site. I am interested to know how you are doing with breast cancer, since there hasn't been an update recently on your health. Take care.
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Wednesday, June 27th 2007 - 07:50:25 PM
Name: Dorcas Annette Laubach
E-mail address: annette62@tx.rr.com
Comments:I am so grateful to you and this web site. I feel some relief in knowing that i am not alone in this excruating pain that I live with on a daily basis... I look forward to learning more from your web site and teling my story soon... thankyou
Annette
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Thursday, June 21st 2007 - 03:06:07 PM
Name: Jackie L.
E-mail address: Dance4j@msn.com
Comments:I was diagnosed with Endometriosis a year and a half ago and I had to get surgery and had 95% of my left ovary removed. I was 20 years old. I suffered from serious pain from the day I got my period when I was 11 years old. I was a dancer and so I think that helped with some of the pain but I remeber feeling myself "ovulate" or the pain of it. I had to miss school and other activies because of the naseau diarrhea and extreme pain. My family all called me a "drama queen" and tole me I was exaggerating. When I had the worst symptome in my second year of college where I couldn't sleep and was vomiting everyday for a month with extreme back pain and lower abdominal pain people shrugged it off and I started to beleive them. I had to emergency surgery and a grapefruit sized chocolate cyst removed from my left ovary that took 95% of it. I know amd starting to feel those "familiar pains" again and I am scared. I want to have children so badly. I know my chances are slimming and I don't want them to pass but I'm just turning 22 next Sunday, I'm still in school and my boyfriend is no where near that stage in his life. I want to enjoy my life too but it is hard. I have been on antidepressants and birthcontrlol continually so I only get my period 3 or four timea a year but it lasts like 10 days. I am goign to the doctor today - ha has been great - when I was misdiagnosed he was the one that brought me into surgery and he is amazing. I am lucky to be in N.Y. but I have never met anyone with this disease. I am praying that I can find suport somewhere and I will be able to have children in the future.
Jackie L. from N.Y.C.
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Tuesday, October 10th 2006 - 10:26:27 AM
Name: Iris Williamson
E-mail address: iwyoung@earthlink.net
Comments:Hi -- Spotted your Jes MaHarry ring on eBay, then followed your link to this site. I had endometriosis too, and it's a pain in every sense of the word. I had four awful surgeries until I finally had a hysterectomy at the age of 40. Ironically, it was the least painful of any of my previous surgeries. The only bad thing was, of course, the decision about taking hormone therapy. Good grief. I'm sorry you've had to endure the breast cancer as well. But it seems you've really got a great attitude and a spunky spirit, which I think is half the battle. You're in my prayers, pretty lady. Best, Iris
p.s. I'm the parent of four beautiful cat kids. Wish I could adopt about 20 more!
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Tuesday, September 5th 2006 - 06:50:46 AM
Name: L Campbell
E-mail address: ldcampbell@comcast.net
Comments:I am a fellow breast cancer survivor. I have lost two siblings to cancer (my oldest sister was only 27 when she was diagnosed with breast cancer)and feel blessed most of the time, guilty some of the time, that I survived. Guess God isn't done with me. Anyway, I found this website while shopping on your ebay site. I just had to stop in and say hi. Btw, I'm cancer-free 3 1/2 years now!
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Friday, June 30th 2006 - 04:56:45 PM
Name: Rebecca
E-mail address: winniejillo@yahoo.com
Comments:I am a 30 year young mother of three about for years ago i was having alote of pain in my lower abdomen so my dr felt it best to give me a hystorectomy hes the dr he knew best i was still having alote of pain the thing was i had no periods well over the years the pain still there i hated having intercourse it was so painful but i learned to deal with it untill about januaryy of 06 i went to the ob with sever pain and they told me i had a cyst about 4cm on my left ovary i had no choice it was to big to take with laroscope so they took my left overy and tube they also said i had endo but they said they got it all well 3 mths past and i was still in sever pain taking pain meds every day missing work so i went back they said i had another cyst on my right overy but it was small enough to take out with laproscoepe so i had another surgery they said i had endo on my right side but could not get it all with laproscope so they told me to use the lupron cause the only pain med they could give me was motrin or i could take liquid ibuprofen (childrens) so i had my firt does of lupron in june i go back july for my second im 30 and going to be going through medapause i got another dr to give me a 60 day supply of pain meds but he said that was all he could do for me i would have to talk to my ob dr if i want any more im scared to death im going gto be in pain the rest of my life with this my kids cant play with me the way we use to cause im in so much pain all i want to do is lay around and thank god for my mother cause i get no help from any body else im glad my mom found this site for me.thank you
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Wednesday, June 28th 2006 - 06:31:21 PM
Name: Laura G
E-mail address: lauraaguillen@gmail.com
Comments:Thank you for this website. I enjoyed hearing about other ladies with the same situation as me. It is good to know I am not alone.
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Thursday, January 5th 2006 - 02:26:47 PM
Name: Sharon Kross
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Comments::"(

I CRY AS I WRITE THIS, I WANT TO SAY THAT I LOVE THE PERSON WHO DID THIS SITE.
THANK YOU SO MUCH FOR GETTING THE WORD OUT BECAUSE I TOO HAVE ENDO AND SSTILL HAVE IT MY SELF ESTEEM IS GONE:"""(
NEED FRIENDS TO CHAT WITH. I HAVE A STORY I SENT IN.


PLEASE KEEP THIS FIGHT GOING
BECAUSE I WAS TOLD AFTER A HYSTERECTOMY THAT I WAS GOING TO BE OK , THAT WAS BS IM SUFFERING TO DAY:""(

GOD BLESS ALL ENDO ANGELS AND ALL OUR SUPPORTERS

SHARON KROSS
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I am disabled with many very different problems, BUT, your story of searching for doctors, putting up with meds, more meds, side effects AND being treated as a drug seeker, when ALL YOU WANT IS HELP AND TO BE TAKEN SERIOUSLY!!!!!BUT, in great need of pain relief. Also, loosing ALL QUALITY of life. The only place i go is to the doctor!!!!!! I ALSO can totally relate to the loss of friends AND FAMILY and the loss of support when you are in desperste need. i feel totally alone!!!! I am unable to write much due to severe arthrits and another newly undianosed probem with my hands. GOOD FOR YOU!! i tried starting an Ebay budiness. i could not do the work. Find the items , list, pack, ship. it is a LOT OF HARD WORK!!!!! I have to have someone else sell for me. She takes 50%, so i normaly loose a LOT OF MONEY!!! All in all, it is a nightmare.I too have made friends online, but noone can relate to the many isues I have. my son also died, so, which group to find??? I wish anyone and everyone the best and invite you to write. Penelope is a WONDERFUL person, who has sufered so much and I am heartbroken at her recent diagnosis. i write to offer my support and encouragement. We are not alone, even though many have various problems, sadly we feel very alone, even in just finding a good doctor. to all who read this The best of luck. Sheri herman srh1018@aol.com (please excuse typos. i can not even write long enought to tell my story.) IF ANYONE HAS HAD LUCK WITH ANY PAIN MED, I WOULD LOVE TO KNWO WHAT HELPPED. I HAVE FIBRO, HAD 7 CAR ACCIDENTS,MIGRAINES, HORMONE PROBLEMS, DEGENERATIVE DISC, FACET SYNDROME (ALL BACK PROBLEMD) HAD A HYSTERECTOMY AND THE LSUNDRY LIST GOED ON
How did you find this site?: you bought from me via La Stars, I was friends with your mom and knew a lot of your story, but not in this detail!
Monday, August 29th 2005 - 02:09:58 PM
Name: Jason Miller
E-mail address: info@forex-forecast.atspace.biz
Homepage URL: http://forex-forecast.atspace.biz
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How did you find this site?: google
Tuesday, July 26th 2005 - 10:46:30 AM
Name: aimee
E-mail address: aimeesbunch@aol.com
Comments:Hello everyone, I have been struggling with endometerois for almost 5 years now. My husband and I had been trying to conceive a second child for about a year.When nothing was happening, I made an appointment with a specialist and found out that I had endo. My uterus and cervix were both covered, not to mention my rectum. I went in for the laporscopy, and in 3 months, I was pregnant. Here it is 3 years later and wanting to add to the family, and my doctor performed my yearly pap test and informed me that the endo was definitly back. There was so much of it on the back of my uterus that he could actually fell it while doing the exam. My options now are to see a fertility specialist and go from there. My other option is to be put on lupron for 6 months to slow down the growth of the endo, then check and see how much worse my scarring is from the last surgery. If I do another surgury it will be my 4th one for indo. I desperately want another child, but at the same time I am tired of going under the knife. We have two healthy boys that we thank God for everyday. All we can do is leave it in the Lords hands, and his will, will be done. I am so thrilled to have found this site. God bless you all, and keep your faith in Christ.
How did you find this site?: looking under lupron
Monday, July 25th 2005 - 07:34:38 PM
Name: Melinda Preciado
E-mail address: alfymel@wmconnect.com
How did you find this site?: searching
Wednesday, July 20th 2005 - 08:08:06 AM
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Wednesday, June 29th 2005 - 11:57:19 AM
Name: Jenn Meanor
E-mail address: jgoogoo79@yahoo.com
How did you find this site?: endo search on google
Friday, June 24th 2005 - 02:51:19 PM
Name: pc texas hold em
E-mail address: absolut4153@arrivo.br
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How did you find this site?: pc texas hold em
Thursday, June 23rd 2005 - 07:32:20 AM
Name: Lisa and Jenny
E-mail address: cinn2jenn@hotmail.com
Comments:WOW Penny... we haven't been here in so long and were just so proud to see how you've maintained this site... ever dilligent, thats YOU! We wanted to say that we love you and we are proud of you. Take care and know that you are in our prayers. Love, Lisa and Jenny
How did you find this site?: a bond
Wednesday, June 22nd 2005 - 02:28:27 PM
Name: michelle
E-mail address: iculkin76@aol.com
Comments:I am very glad I found your website. I was diagnosed with endometreosis 14 years ago.
How did you find this site?: researching endo
Thursday, June 9th 2005 - 09:32:52 AM
Name: Jennifer Grimes
E-mail address: jengrimes4@hotmail.com
Comments:Your story was very helpful to me knowing that I'm not the only one. Like you said in your story you saw doctor after doctor and nobody could tell you anything. It was like I was reading my life story. Some of them looked at me like I was crazy because the way I described the pain I was haveing. I have FINALLY found an awesome doctor who is going to do a laperoscipy next week and also repair my bicornial uterous. Thank you again.
How did you find this site?: google
Tuesday, May 17th 2005 - 10:52:15 AM
Name: Karyn
E-mail address: kmoeskops@hotmail.com
Comments:I'm so happy I found this site, it's fantastic and well put together. I too was diagnosed with Endo in '99. I'm now 24 yrs old and in 19 days I go for my 4th Lap/Laperotomy surgery. I find it's easier to deal with all this when there are wonderful women out there who were brave/smart enough to start sites like this one for other women to share their stories and gain support.

I truely thank you from the bottom of my heart.
Best wishes,
K
How did you find this site?: Dr. Cook
Thursday, April 28th 2005 - 02:40:33 PM
Name: Tracie
E-mail address: percival@ncweb.com
Comments:I am 31 years old, and was diagnosed with stage IV endometriosis about one month ago. My doctor has tried birth control and a laparoscopy, and nothing is giving me relief. He has suggested Lupron, but I am very scared of what that will do to me. I am a marathon runner, and have been very depressed and unable to run. I am getting so weak and I am in so much pain. I have been married for three years, and I have no children. My uterus and ovaries are so scarred, it doesn't look like I will ever be able to have my own children. Thank God I am a teacher, and I touch children's lives through my career. I think if I already had kids, my doctor would suggest a hysterectomy. He thinks I am very young to do that, but he also told me that it was my body and he respected my choice. I am very confused about Lupron or the hysterectomy and which route is the better one to take. It just feels like Lupron relief is only temporary. My pain is getting so severe though, that I have missed one day of work over the past four weeks. Being a teacher, this is tough on me and my students. I'm sorry to be venting but I just need someone to talk to or some advice from someone who really knows how I feel. Thanks for reading this.
How did you find this site?: endo and hysterectomy search
Wednesday, April 27th 2005 - 04:47:37 PM
Name: Colleen
E-mail address: cruelladevil48038@yahoo.com
Homepage URL: http://groups.yahoo.com/groups/betseyjohnsonfans
How did you find this site?: bid on ebay
Tuesday, April 26th 2005 - 05:04:40 PM
Name: Hilary Jones
E-mail address: hjones77@earthlink.net
Comments:I saw your website while bowsing trying to find more anwsers about Endo. I just had my 2nd sugery.
How did you find this site?: Browsing
Tuesday, April 12th 2005 - 04:43:45 AM
Name: nicole scorsone
E-mail address: lilacwine11@aol.com
Comments:i love pj
How did you find this site?: you
Tuesday, March 22nd 2005 - 04:41:57 PM
Name: Theresa
E-mail address: littlereds01@yahoo.com
Comments:I'm glad to have visited this web site. I was diagnosed with PCOS after having my first son in 1989 and my second child was a girl. I have every symptom there is to having this disease. I have serve pain constantly. I have it on both of my ovaries. I have gained over a 100 pounds and have facial hair constantly growing only to be shaved. I don't think my family really understand the pain and problems that come from this. So I enjoy having this web site. Will drop another line soon..... Thanks
How did you find this site?: web surfing
Tuesday, March 22nd 2005 - 12:15:05 PM
Name: rebecca
E-mail address: becky97precious@yahoo.com
Comments:I have just been diognosed with endometriosis. and like many others I have felt alone and NO ONE understands! this is affecting my whole family and friends. My doctor wants to do a hysterectomy soon, only if I feel I no longer want children. Ive got one son and a stepdaughter so I feel complete and really have NO desire for more children with the shape I'm in with this disease. I'm scared to do death because I'm only 27 and I will be going through menopause before 30!! I don't want to scare my family away no more than I already have and then on top of that gain weight to make my self esteem go down! I'm glad I'm not alone and I pray for each and every one of the people out there that are dealing with this disease! please let me know if anyone can give me advice on there hysterectomy's and there lives afterwards. Thank You for listening I've needed someone to understand for a long time now!!!
How did you find this site?: searchin for answers!
Monday, March 21st 2005 - 06:40:14 PM
Name: elaine abarca
E-mail address: susi_abarca_stacey@yahoo.com
Comments:i just wanted to say that i really liked reading all of this i see now that there are many more people in the world that have similiar problems i was diagnosed with bicornial uterus and i dont have much information on it if anyone has anymore info on this subject plaese email me thanks
How did you find this site?: searching for results on bicornial uterus
Sunday, February 27th 2005 - 05:16:23 PM
Name: insurance quotes
E-mail address: grey_goose4440@arrivo.br
Homepage URL: http://insurance-quotes.rulo.biz/
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Friday, January 21st 2005 - 07:24:29 PM
Name: insurance quotes
E-mail address: grey_goose4440@arrivo.br
Homepage URL: http://insurance-quotes.rulo.biz/
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Friday, January 21st 2005 - 07:24:01 PM
Name: Tara
E-mail address: sten0015@hotmail.com
Comments:Loved your story. I'm 24 and just on the 11th of Jan. had my 3rd surgery for endometriosis. My doctor couldn't do all that she wanted because it would have caused me more complications than good. Thank god I'm in Canada and for now, our Health Care is stable, or I too would be in your predicament. I wish you Hope and Luck on your journey, it's definately a life long battle. Cheers girl!
How did you find this site?: searching
Tuesday, January 18th 2005 - 04:12:25 PM
Name: Vonnie Wise
E-mail address: ehw8588@juno.com
How did you find this site?: Through Dr. Cooks website.
Friday, January 14th 2005 - 11:25:39 PM
Name: vanessa hurst
E-mail address: virgo_vany@yahoo.com
Comments:Hi, my name is vanessa i am 31 and was diagnosed with endo when i was 28 years old. I do not have any children but do wish to have one or more someday, i have been fighting this disease since I was 15 years, always had very painful periods, also went home early from school. I love your web-site out of all the research i have done i have found your site to be very touching & helpful. I am trying to gather information in Miami Florida to start a support group because there are very few people that understand and know about this terrible disease.
How did you find this site?: msn
Sunday, November 28th 2004 - 06:44:37 PM
Name: becky
E-mail address: danceratheart79@aol.com
Comments:I started crying the first time I was on this website. I am so glad that I found it! I have felt so alone even though I know other women have endo. It's hard to talk to people about the constant pain I'm in. They don't understand, I know all you understand. Thank you for what you do!

love,
becky
How did you find this site?: a friend told me about healingwell.com & i got the link
Thursday, November 25th 2004 - 11:28:00 PM
Name: Kris
E-mail address: TravisBarnette@yahoo.com
Comments:Hi,my name is Kris An i have been suffering with endo for 6 yrs an i am still fighting it. But your website has helped me out alot. I wish i would of seen thi web site years ago. I just want all of you to know that dont give up the fight cause we cant let this beat us we have to beat it. Ill keep fighting for you an also for my family. Cause the thought of my daughter going through this scares me an i dont want her to go through what i am going through. Life is to short to live in pain every day. But its better knowing that there is a support group like this. God bless you all. A new persn to this site.
How did you find this site?: Just clicked on
Thursday, November 25th 2004 - 08:30:55 AM
Name: Renee Dixon
E-mail address: ReneeIDixon@aol.com
Comments:I just wanted to thank you for you web site. I am in the early stages of being diagnosed with Endometriosis, I have been battling with pain and horrible periods for years but the doctors just kept putting me off. I finally convinced them after going back for 3 months in a row. They sent me for an ultrasound and found an endometrioma in my left ovary and when I went back 8 weeks later they found something on my right ovary. I have met with a surgeon and go in on 12/2 for her to do an ultrasound then surgery. It's a bit scary and confusing all at the same time.
How did you find this site?: On Msn
Tuesday, November 23rd 2004 - 06:29:39 PM
Name: faith
E-mail address: dputney143@aol.com
Comments:I have been diagnosed with a bicornail uterus, my doctor acts like it nothing except you have to get c-sections. Last june I had a tubal pregnancy, since then I cannot become pregnant. Im a scared emotional mess. I've heard of woman who have a bicornail that they have been on bedrest through their prgnancies, and all kinds of things, I am having a hard time finding info on this subject please help, by email asap!!! If anyone knows anything I m desperate.
How did you find this site?: google
Sunday, October 24th 2004 - 07:47:38 PM
Name: Mark Heck & Denise C. Price
E-mail address: refunds@msn.com
Homepage URL: http://www.belowprice.homestead.com/coupons.html
Comments:What a great site you have here. God bless & we'd like to let others know about saving money to help ease financial stresses.Click on our link,it's FREE
How did you find this site?: Stockpilesrus.com
Wednesday, October 13th 2004 - 04:39:53 PM
Name: Trish
E-mail address: originalxena@cox.net
Comments:Thanks for posting this site on Lord G's site! It is really helpful!
How did you find this site?: Lord Goliath's site
Thursday, September 9th 2004 - 03:20:46 PM
Name: Sarah
E-mail address: slm_1971@hotmail.com
Comments:Great Site :-))))
How did you find this site?: web search
Monday, September 6th 2004 - 01:49:27 PM
Name: Kat aka ECF
E-mail address: elviscostellofan@ihatecounterfeitbags.info
Homepage URL: http://ihatecounterfeitbags.info
Comments:Penelope ~ I don't know why I never read your "me" page. I am a fellow Endometriosis sufferer! Not a very happy thing to have in common. :-p
Big hugs,
Kat
ECF
How did you find this site?: eBay
Saturday, August 28th 2004 - 09:02:14 PM
Name: susan b gough
E-mail address: susanbgough04@yahoo.com
Comments:dear penelope, i hope this note fiinds you doing well. i've bought from you in the past just just figured out that you're cheryls daughter! i luv your mom,she's so sweet. when she told me a while back,that she has a daughter named penelope, i thought that you were 12 years old or so, i thought that you were willows big sister!! i guess your mom just looks too young to have a daughter your age!! must be something in that new jersey water!! tee hee!!
anyway, i just wanted to write you a note . your story was very enlightening-i'd never heard of the disease. i'll always keep you in my thoughts and send you positive energy. i hope you're comfortable and not hurting mentally and physically. your husband must be an angel too and your son is beautiful! does he look like his dad???!! tee hee!! bye for now. take care. sincerely, susan
tell your mom it was jades mother. she'll know...
How did you find this site?: ebay
Tuesday, August 10th 2004 - 09:47:40 PM
Name: susan b gough
E-mail address: susanbgough04@yahoo.com
Comments:dear penelope, i hope this note fiinds you doing well. i've bought from you in the past just just figured out that you're cheryls daughter! i luv your mom,she's so sweet. when she told me a while back,that she has a daughter named penelope, i thought that you were 12 years old or so, i thought that you were willows big sister!! i guess your mom just looks too young to have a daughter your age!! must be something in that new jersey water!! tee hee!!
anyway, i just wanted to write you a note . your story was very enlightening-i'd never heard of the disease. i'll always keep you in my thoughts and send you positive energy. i hope you're comfortable and not hurting mentally and physically. your husband must be an angel too and your son is beautiful! does he look like his dad???!! tee hee!! bye for now. take care. sincerely, susan
tell your mom it was jades mother. she'll know...
How did you find this site?: ebay
Tuesday, August 10th 2004 - 09:47:27 PM
Name: MUGU
E-mail address: mugu@mugu.com
Comments:i don reach here o!!!!!!!!!!!!!!!
How did you find this site?: friend
Sunday, August 8th 2004 - 10:09:50 PM
Name: Jane Perez
E-mail address: jane@trustpharma.com
Homepage URL: http://www.trustpharma.com
Comments:Trustpharma.com is your comprehensive and safe online pharmacy for obtaining generic medications. Our online medical store supplies only top-quality generic drugs that are exact equivalent of the brand name drugs.
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Wednesday, July 14th 2004 - 02:13:10 AM
Name: Michelle Unger
E-mail address: Michelle.unger@att.net
Comments:I have tried to have a baby for 6 years. I found out after the dr. tried insemination 2 times. clomid every month. thousands of dollars later. I really had a lot of pain. So much that I could not have sex. i really had a hard time going to the bathroom to take a shit. The dr. went and looked around inside found endometreosis all over my organs. He went in and colorized it or better term burned it. I was pain free for one year. Now I take the loupron shot every 3 months. I really want to have a baby but I dont think thats ever going to happen.
How did you find this site?: loupron
Thursday, July 8th 2004 - 07:10:31 PM
Name: Tammi P. Smith
E-mail address: tfay@tapeanddiscfactory.com
Homepage URL: http://tapeanddiscfactory.com
Comments:I have recently joined Endo Angels, and I thank heaven for this web site. I know now I am not alone in this disruptive disease. Thank you Pennelopy for all your love and concern enough to start up this web site, and especially for your courage to speak out on behalf of yourself, you are worthy, now I know I am worthy too, thank's to YOU!!
How did you find this site?: just by writing the word, "endometriosis"
Friday, June 25th 2004 - 11:57:38 AM
Name: tara
E-mail address: tara_lee2004@sbcglobal.net
Comments:my story starts about 5 years ago. i began having terrible pain on my right side. the doctors thought it was my appendix so the removed them. that worked for about 6 months. next they went in to explore to discover my right tube was about to burts. the removed my tubes and that worked for about 4 months. then they put me on birth controll to take continuously. no perion no pain........hahaha. im february it was back. i still hadnt been diagnosised with endo but they said the only option i had to stop the pain was a hysterectomy. on march 8 i had a hysterctomy but left ovaries and cervix. i started back on the birth controll immediatly after because they said it was endo. i went in for a 6 week check up and scar tissue was already growin on my cervix. now it is june and the pain is back almost as bad as before. i hope some day they find a cure for this because im so sick of takin pain pills or this pill or that pill. im glad to know that im not alone with this.
How did you find this site?: search for endo
Tuesday, June 22nd 2004 - 04:44:16 PM
Name: fenicia canty
E-mail address: feniciacanty@yahoo.com
Comments:I haven't been diagnosed yet but i have all of the symptoms, I went to the doctor and she said everything was fine,but i don't feel fine so i'm going to a gynecologist because i had a pap smear done, a vaginal ultrasound and a regular ultrasound done and it came back normal. I need H E L P!!!!!
How did you find this site?: under endometrious
Monday, June 21st 2004 - 12:48:22 PM
Name: Alisha
E-mail address: aliear1@sbcglobal.net
Homepage URL: http:// don't have one
Comments:I am 29yo and have been going through the painful journey of Endometriosis since I was 20. I have had 9 suregeries and 2 children now. Of course during pregnancy the endo lays dormant (remission). However my oldest is 3 and my youngest is 17mo. Now that I am almost 30, I am in straight menopause!! Having a FULL hysterectomy was my only option. No ovaries, no tubes, cervix, etc. My latest problem is that since I am on the hormone replacement, it now is causing the endo to grow. So pick my poinon. Do I take the hormone replacemnt and stop the hot flashes, moodiness, and allow the endo to keep growing? Or do I get off them and hope like hell it doesn't come back on it's own? It is such a discouraging disease and yet many times people think the pain is all in your head. WRONG!!!!! Here is my favorite response from doctors and outsiders. "Just take some x-tylenol, put a hot pad on your belly and eventually this will go away." My general response to that is, "Do you really think if that worked I would be here spending so much money and time, especially if I know exactly what the symptoms are?" It's not until I get on the operating table and they get a closer look inside, then they realize I wasn't out of my mind. That I really was hurting, how severe it really is, and that I wasn't there just for the pain meds, and then they begin to appoligize all over themselves for being soooo un-feeling. So then they dope you up and wait for the next flair-up. It's just like a viscious circle. When does it stop? Appearently since my hysterectomy, that wasn't the answer. It's now on my bladder, bowel, intestines etc. So for those of you who feel like no one understands and you feel all alone, you're not! It's only those who have been through the miserable experiences who can sympathize with you. I'm on surgey #10 next week and I'm going to insist they just install a zipper begining at my breast bone for all the next surgeries to come. (LOL) You must keep a good sence of humor in situations like mine or else you WILL loose your mind. Just remember, "It's mind over matter, I don't mind and it doesn't matter!!" Good luck to all.
How did you find this site?: research od endo
Monday, June 21st 2004 - 11:38:51 AM
Name: Ashley
E-mail address: Willow486@hotmail.com
Homepage URL: http://dont have one.
Comments:I'm 18 years old, and I have Endometriosis, before I found out I had it, I had never even heard of it. My obgyn gave me a shot thats called Loupron (not sure how to spell that). It puts me into really early Menopause. I really don't know much about Endometriosis, or Loupron either. I got surgery and thats how they found out I had it. I missed alot of my 11th grade year because first I had mono and now I have this. It's been hard, b/c I just feel that I am too young to have to be going through this, maybe I just have bad luck I don't know. I guess that's all I can think of to say. l8er
How did you find this site?: looked up Endometriosis.
Saturday, June 19th 2004 - 06:23:53 PM
Name: june
E-mail address: edonn70293@aol.com
Comments:I'm going to have a hystertomy soon, and hope that the pain , tireness, aches in the joint and muscle go away, my sexual desire comes back. I'll let you know after it is all done.
How did you find this site?: on the web
Wednesday, June 16th 2004 - 06:38:33 PM
Name: Jennifer
E-mail address: purpleheat1975@yahoo.com
Comments:Thank You
How did you find this site?: Searching For It
Monday, June 14th 2004 - 04:39:14 AM
Name: Carolyn Levett
E-mail address: support@endo-resolved.com
Homepage URL: http://www.endo-resolved.com/index.html
Comments:This is a very informative site with lots of resources and useful advice.

I used to suffer from endometriosis but after 4 years of Homeopathy, and lots of self help and positive thinking, I was totally healed of this disabling disease.

I have now put together my own supportive website (www.endo-resolved.com) where women can make more informed choices about the treatment route they wish to use. The site contains advice about conventional and alternative treatment, as well as advice about diet, pain management, healing, and some positive testimonials of other women who have fully or partially healed from endometriosis.
How did you find this site?: search-engine
Thursday, May 20th 2004 - 04:49:13 AM
Name: Nancy
E-mail address: ngini_rossi@hotmail.com
Comments:I would like to know any new treatment to treat endo, even the alternatives. I have been suffer endo for a long time but only now I have more information to battle the monster. Only here in the USA I could find help. Thank God I could have a baby but after the pregnancy the endo came back with more power. I'm doing a diet without sugar and it is helping me a lot. However, I cannot understad yet the relationship beetwen endo and diet. Thanks a lot for being there
How did you find this site?: just looking for information
Friday, April 30th 2004 - 04:24:51 PM
Name: Erin
E-mail address: rosegurl1@hotmail.com
Comments:Thank you so much for putting together this website. It's encouraging to know that I am not alone in this.
How did you find this site?: msn search
Monday, April 26th 2004 - 11:59:47 AM
Name: Michele
E-mail address: michele.alexander@primus.ca
Comments:My gyno says I probably have Endo(polysistic ovaries). She has prescribed the pills but they make me sick and dizzy. As a result I have gained weight..and become a reactive hypoglycemic. Thank god I have a beautiful son after having a miscarriage. I wonder when I will feel normal again.
How did you find this site?: surfing web
Saturday, April 24th 2004 - 11:16:56 AM
Name: HILLARI OBRIEN
E-mail address: dhobrien@earthlink.net
Comments:HELLO, HOW WONDERFUL TO FIND YOUR SITE. I AM 39 YEARS AND HAVE HAD ENOMETRIOSIS FOR 3 1/2 YRS. IT BEGAN AFTER THE BIRTH OF MY FIRST CHILD. BY THE TIME MY SECOND CHILD WAS BORN MY HORMONES, MIGRAINES, PELVIC AND OVARIAN PAIN.... BECAME SO SEVERE THAT I WAS IN THE ER ON A BI-WEEKLY BASIS.
THEY FOUND THICKENING OF UTERAN WALL, FLUID BEHIND UTEROUS CAUSED BY CYSTS THAT WOULD BURST. MY MIGRAINES AND PELVIC PAIN WAS CONSISTANT WITH OVULATION AND PERIODS. I WAS ADMITED LAST JUNE WITH WITH MIGRAINES, VOMITING AND SEVERE DIARREAH. HAD MY GALLBLADDER REMOVED AND THE DOC FOUND ENDOMETRIOSIS ON LEFT OVARY. I WENT THROUGH THREE GYNOS AND FOUR DIFFERENT BIRTH CONTROL PILLS TO CONTROL SYMPTOMS. NONE WORKED. I REFUSED TO TRY LUPRON INJECTION FOR FEAR OF MIGRAINES. FOUND A NEW DOCTOR WHO FELT I NEEDED TO HAVE A PARTIAL HYSTORECTOMY. HE REMOVED EVERYTHING ACCEPT MY RIGHT OVARY. I CAME HOME 4 DAYS LATER ON TOP OF THE WORLD! IT'S ONLY BEEN 4 WEEKS BUT I FEEL LIKE IT WAS THE RIGHT CHOICE. I HAVE HAD A FEW ANXIETY ATTACKS THAT THE DOC SAID ARE RELATED TO THE OPERATION AND HORMONAL IMBALANCES. I HAVE HIGH HOPES. READING THIS WEBSITE DOES WORRY ME A BIT ABOUT FUTURE REOCCURENCES. I PRAY ALL IS OVER.

THANKS SO MUCH!!!
HILLARI OBRIEN
How did you find this site?: GOOGLE.COM
Wednesday, April 7th 2004 - 07:26:30 PM
Name: janine
E-mail address: jackieb162@aol.com
Comments:My sister suffers from this painful disease, it has prevented her from having children. I have PCOS and have children but have every other sympton that goes along with this diagnosis. We are all sisters. janine berkson
How did you find this site?: Ebay
Thursday, March 18th 2004 - 12:00:12 PM
Name: nicole hunt
E-mail address: cole_4202001@yahoo.com
Comments:its good to find that there are support groups for things like this. I am 20 years old and have had endometreosis since i was probably about 18.
How did you find this site?: i just came upon it
Tuesday, March 9th 2004 - 10:53:44 AM
Name: Pam
E-mail address: pamelamartin_4@hotmail.com
Comments:Go to "pelvicpain.com" for more info-
How did you find this site?: web search
Sunday, February 29th 2004 - 05:27:16 PM
Name: Pam
E-mail address: PamelaMartin_4@hotmail.com
Comments:I am 36 years old and have had more pain since I have had my children. I have consulted doctors who haven't given me a concrete diagnosis but I feel I fit into the symtoms I read here. It was suggested that I start Lupron, and from what I understand that will put you into pre-menopausal stages. (I have 2 beautiful, healthy children and I am not planning on having anymore.) In conjunction, they want to give me pregestron to offset the hotflashes. This is also only a temporary solution. I find it to be on and off with pain. Somedays I have a hard time trying to walk and others it is one sided. Intimacy is a challenge when it hurts so bad that you cant get past the pain and discomfort. I was told to try Avlimil, which can help some-
Thank you for having this site available for women to hear others in the same situation. I noticed alot of very young girls. What is a good sight to also get "medical information"?
How did you find this site?: looking up endomyosis
Sunday, February 29th 2004 - 05:03:06 AM
Name: katrina
E-mail address: that_darn_kat2004@hotmail.com
Comments: thank you for this site...it's really help me out alot.
i started to have my pains at the age of 15, and no one could help me- everyone was clueless and it made me very sad that no one wanted to help me. at first i thought killing myself would be the easy way out for me,but every time i tried i failed. i'm not sure how much pain i'll be able to take,but i'm glad that were all in this together.
How did you find this site?: surfing the net
Thursday, February 12th 2004 - 10:30:26 PM
Name: katrina
E-mail address: that_darn_kat2004@hotmail.com
Comments: thank you for this web.site
How did you find this site?: surfing the net
Thursday, February 12th 2004 - 10:19:36 PM
Name: Jen
E-mail address: Twcasnicejt@aol.com
Comments:I wonder why a hysterectomy is the only answer for Endometriosis? I was never diagnosed. I had a lap. and was not told about the endo. 10 months later because of severe pain I had the surgery again and woke up with a complete hysterectomy. Now I worry about taking Premarin and about bone loss. I have shrunk a half an inch. I was only 34 when I had the hysterectomy, I am now 40. Fortunately I had my children when I was much younger but I do feel cheated that my second husband and I never had a chance to have a child. I would encourage woman to explore other options before consenting to have a hysterectomy.
Thanks for the opportunity to tell a little part of my story and for this website that lets me know that I'm not alone in this.
How did you find this site?: just surfing
Thursday, February 5th 2004 - 06:42:21 PM
Name: Amanda Leonard
E-mail address: getnmyway@aol.com
Comments:it is a relief to find a site where there are more people in my situation. I am very afraid and confused about what is happening to me. The site is a big comfort for me
How did you find this site?: surfing the web
Monday, February 2nd 2004 - 06:13:23 PM
Name: Kelly
E-mail address: kdcd@charter.net
Comments:Hi - my name is Kelly and I have suffered with endo for 20 years. I have had several surgeries, including a partial hysterectomy in 1997 and was back in for surgery again in 2002 and now believe it has returned yet again. I have had it on my bladder, colon, appendix, ovaries, tubes, etc. Am looking forward to talking with someone before I go insane. Thanks and I look forward to finding a way to talk with someone.
Sincerely, Kelly
How did you find this site?: search on endo
Monday, January 12th 2004 - 01:28:55 PM
Name: Dolores
E-mail address: doloresmd@msn.com
Comments:Hi. I'm 39 years old and was diagnosed with endo. about 9 years ago but in pain for 20 years. I am also a DES daughter. My pain varies from day to day but never goes away. I have had 7 surgeries since the age of 18. I rely on prescription pain medicine to get through life. I suffer in silence because family and friends don't understand. My doctor tells me that I have the type of body chemistry that makes adhesions. I don't want to have anymore surgeries. I have become a vegetarian, take alot of supplements and hoping one day I will be free of this nightmare. Good luck and good health to everyone.
How did you find this site?: looked up endometriosis
Monday, January 12th 2004 - 09:35:26 AM
Name: Jaime Mackelson
E-mail address: misskittyscrafts@hotmail.com
Comments:I love your site! I have suffered with endo since 19 and I am 26 now. I have had 6 operations and I never knew that there would be a group of people I could talk too! You will hear from me a lot more. I was wondering if you sell the t-shirts with the angels on them, I also wanted to know if you take donations!
How did you find this site?: typed in endo
Sunday, January 11th 2004 - 08:05:16 PM
Name: Jeni
E-mail address: nospamplease@nospam.com
Homepage URL: http://www.fitnessandfreebies.com
Comments:You've done a marvelous job here - keep up the great work and best regards!
How did you find this site?: surfed in
Sunday, January 11th 2004 - 11:12:14 AM
Name: Tina Tranchemontagne
E-mail address: Cutiepatutie1979@hotmail.com
Comments:It is great that woman can come here and read the stories. I have been looking for chats or others to talk to with the same disease as I do.
How did you find this site?: askjeeves
Monday, January 5th 2004 - 06:04:50 PM
Name: MISTY HARPER
E-mail address: C11281970@AOL.COM
Comments:I HAVE BEEN TO YOUR SITE BEFORE AND WHEN I COME TO IT I KNOW THAT I AM NOT ALONE IN HOW I FEEL. I ALSO LIKE TO COMPARE NOTES ON SYMPTOMS TO SEE IF I AM THE ONLY ONE THAT IS HAVING THAT PROBLEM. I ALSO AM HAVING PROBLEMS WITH MY DOCTOR AND THE DECISIONS THAT I HAVE BEEN GIVEN TO DELT WITH. THERE IS TIMES THAT I DON'T KNOW AND AS MUCH AS I LOVE MY FAMILY THAT DO NOT KNOW WHAT IT IS THAT I AM GOING THROUGH. I THANK YOU FOR THIS SITE THAT I CAN VISIT AND NOT FEEL ALONE.
How did you find this site?: I HAVE BEEN TO IT BEFORE.
Tuesday, December 30th 2003 - 08:43:52 PM
Name: Megan
E-mail address: azra920@hotmail.com
Homepage URL: http://msn.com
Comments:I just wanted to thank you for such a wonderful site! This has been very soothing to me as I am again dealing with another "round in the ring" with my endo. I am 24yrs old and have had endo since I was 16yrs old. At the present time I am frustrated and scared and pretty bummed out . I want to let you know this site has been an answer to my prayers and thank you all for posting your stories here to share, it has helped me through this round. I hope to share my story some day with all of you once I get the courage to put it on paper. THANK YOU SO MUCH!!!! Megan
How did you find this site?: researching and and looking for hope
Saturday, December 13th 2003 - 04:08:09 PM
Name: Vicki
E-mail address: vicki1965@hotmail.com
Comments:Hi all endo sufferers, I too am one. I was diagnosed in 1999, but had symptoms from about age 16. I am now 38. October 2001 I had excision surgery, but since then pain and symptoms have been increasing. I have pain every day, but get a really severe pain peak about every 90 days, so I guess that is the point when my endo cysts burst and bleed, starting again the neverending cycle.
To all sufferers, stay positive - I know it's hard, I've been there too.
On the bad days rest, and on the not so bad days fit in as much living as possible. God Bless
How did you find this site?: searched for endo +angel
Thursday, December 4th 2003 - 08:08:36 PM
Name: Blanca
E-mail address: hernandez0808@msn.com
Comments:Hi ... I'd like to be your new endo sister, I've been suffing from endo for 11 years I've had 3 surgeries and having another lap on the 9 th of dec 2003 . I've had a complete hystorectomy 2 years ago exactly and my endo is back with a vengence . I know there are other places we grow endo , the lungs , bladder , rectem, bowel , and adessions all over . I'm in pain and I need to join your group tell me how please . I'm your new endo sister and want to be here to support you in your time of need .
w/b soon . have a pain free week ,
Blanca hernandez0808@msn.com
How did you find this site?: looked up Endo
Thursday, December 4th 2003 - 10:07:33 AM
Name: Faith
E-mail address: way2thin29@yahoo.com
Comments:hi, i am 30 years old and have been dealing with this lovely little "friend" of ours since i was 13. I have had 7 laparoscopy's, and at 27 i had my uterus and cervix removed, leaving my ovaries which i was told were healthy. In August of 03, i had a pain in my right side that left me unable to ove. I assumed it was a cyst but after having a ct scan was told i had a "large mass" in my abdomen. When they went in, my left ovary was the size of a grapefruit and was engulfed my this tumour, which thankfuly came back not cancer. My right ovary they tell me is the size of an orange but they left in in because it is "still working". I have been in pain off and on since my surgery. I thought because they did a laperotomy(the same procedure they use for the hysterectomy) that that was the reason for my pain, just taking a while to heal. Well it has been 11 weeks and i still have the heating pad on my right side every night as well as taking tylenol like they are candy.They wanted to keep my ovary in for at least two years because they said it is a whole new can of worms with hormone replacement therapy, and since i am only 30, they thought i was to young for that just yet. My thoughts are, what difference will 2 years make except put me through more pain and then inevitably another major surgery? They said i have a large amount of scar tissue from the endo and i am not sure but doesn't it cause more scar tissue every time they open you up again? I have one child, who is 8. there are times when i get down because he does not nor will he ever have a sibling. Adoption is not an option because there are so many times i have to rely on family just to look after him. Hospital stays have been so frequent i couldn't do that again to another child. I had a little girl before my son, but she was pre mature, and only lived for a couple of hours. I also had an incompetant cervix which caused her pre mature birth. Female body parts have not been a very pleasent experience with me. I am just thankful i had a boy and he will never have to go through any of this himself. So now i sit and wait, again to see what they (the doctors) are going to do this time.I am told that even when they remove my ovary, the endo that is attached to my other organs can give me problems. Thanks for listening. It is great to have a site that you can speak with people who understand.
How did you find this site?: yahoo
Sunday, November 30th 2003 - 04:13:59 AM
Name: Summer
E-mail address: sball99@hotmail.com
Homepage URL: http://lilsumsum99.dailydiva.net
Comments:Hello fellow endo survivors!
It's amazing how I look at sites like this, and other endo support sites, and see how many women of all ages are suffering from this disease. Yet, you don't hear much about it in the public eye. I wish so many others were educated about it. It's frusturating when people don't understand why we are in so much physical pain, why we pop pain killers like it's an addiction, why we have to call off at work, why we can't go out with our friends on the weekends, etc. It's nice to have sites like this where I can find support in other women who know why I'd rather stay home scrunched up in a ball with my bottle of vicodin than go out dancing. I'd rather go dancing, though.
How did you find this site?: yahoo search
Wednesday, October 22nd 2003 - 10:58:04 AM
Name: Jeanine
E-mail address: Pezgalj@yahoo.com
Comments:I am 34 with three children and was diagnosed with endometriosis and endomyosis two weeks ago. I am currently recovering from surgery. At this point the doctor only cleaned things up. No hysterectomy yet, but I know that is a possibility. Even though I am blessed with three children, it is a difficult thing to accept.
How did you find this site?: ask jeeves
Sunday, October 19th 2003 - 07:48:34 PM
Name: Amalia
E-mail address: gngirl@optonline.net
Comments:I have posted before but it has been a while and I wanted to update my status. It has been over 4 years that I have had endo. I am due for my 4th surgery next month. My last surgery was 8 months ago. In that last surgery the endo has spread all over my bladder. My badder was also attached to other organs by my adhesions. After the surgery things felt much better infact I felt better then I had in a long time, but gradualy over time things have continued to get worse and pain is worse therefore that is why I am due for another surgery. I have my good days and bads, sometimes dealing with the emotional side of things are harder then dealing with the actual pain.
How did you find this site?: Previously Visited
Sunday, October 19th 2003 - 01:55:19 PM
Name: Sarah
E-mail address: cgrizzard@kloke.com
Comments:I have endo. I am 22 with One child by the grace of god, I was never supposed to have her. I am posted op 3 months and have starting having pain again. I have sever endo on my bladder, kindys, and bowls. I hope it is not more promblems. I thought a hysyerectmy would solve it all Guess not. I had 11 surgerys and more scar tissue than I know . I hope all of you have Good luck. Now it is on to adoption for me and my husband. Sarah
How did you find this site?: eno
Saturday, October 18th 2003 - 06:48:22 PM
Name: Samantha
E-mail address: dtats@ukonline.co.uk
Comments:Hi my names Samantha and I was diagnosed with endo when I was 19 - Im now 34 and it has taken me this long to find a Doc (GP) and gyno who are more than understanding about my condition. Im now considering asking them about the drugs Lupron - Synarel - & Zoladex and if I can be treated with them. Thank you for ur site and the ability to talk to other suffers - some times ur made 2 feel like a freak of nature with this disease - but I now know of a good site that I will pass on to the friends I have who suffer as well.
How did you find this site?: searching for some answers
Thursday, October 16th 2003 - 02:57:18 PM
Name: Dawn Kidwell
E-mail address: kidwell04@sbcglobal.net
Comments:I enjoyed looking at all of the personal stories. I had endo for quite some time and on Sept. 26 that all ended. I had a total hysterectomy. The endo was on my bowel and there was quite a bit of it. Keep doing what you are doing as far as information and personal stories for those of us who had to take that big step and felt alone. Keep it up.
Dawn Kidwell
How did you find this site?: ask jeeves
Tuesday, October 14th 2003 - 05:12:24 PM
Name: Bridget
E-mail address: bridgetgates@aol.com
Comments:I had a pelvic ultrasound and the lab tech said everything looked fine except my uterus was a little mottled and it appeared that I probably had endomyosis. So, I'm searching...
How did you find this site?: I typed the word endomyosis
Monday, October 13th 2003 - 10:13:26 PM
Name: shannon
E-mail address: shannondell33@hotmail.com
How did you find this site?: searching for information
Monday, September 29th 2003 - 11:35:22 AM
Name: cindy
E-mail address: cindyk269@netzero.net
Comments:Until last week I was so misinformed about what endo was, let me tell you this website was a shocker and an eye opener. i can't thank you enough for all the information you share...

cindy.
How did you find this site?: looking for the truth, thank you.
Sunday, September 7th 2003 - 09:33:00 PM
Name: Michael Menheer
E-mail address: mamenheer@usfamily.net
Comments:RE: Lisa's Story

Dearest Lisa,

I am without words to speak with you. Please accept my heartfelt pain for your suffering.

I cannot even imagine nor begin to comprehend the pain your heart has known. Might it be your strength that shines when all is so difficult. I have just read your words and i am truely without words.

Your words are so special. They must be a reflection of the person who spoke them. My poems pale in the beauty of you. Might that your heart know peace, your heart calm, and your lips, just a kiss...

with gentlest affection



How did you find this site?: google search
Monday, September 1st 2003 - 06:06:02 PM
Name: Robyn Follr
E-mail address: babygiggles1997@aol.com
Comments:Hi everyone. I was diagnosed with endo back in June on 2001 after many trips to the ER. I had had 5 pap smears and exams in two weeks. They could not find what was making me pass out at my job. I worked in retail so I was constantly on my feet. One day, I was folding clothes, I passed out right in front of the store and my co-manager. That when they decided to do a lap on me. In the middle on July, I had the surgery. I was in the hospital for four days before coming home and staying home for two weeks. I always had problems with my period like irregular, heavy and painful. My husband has been the greatest throughout all of this.
We wanted to start trying to have a baby. I tried for two years before buying those Clear Plan Ferility Monitors and test strips. Well, to make a long story short, I am five months pregnant. Through a routine ultrasound, I was diagnosed having a bicornial uterus. My doctors told me that the baby is fine and I may go early and have to had a c-section. Oh well.
There is hope out there for everyone. I am only 24 years old and have been married for 4 years. My husband is very happy that we were able to conceive. Maybe the monitor was the best thing that I had bought for myself.
Please let me know how everyone is doing and feel about my story. Please feel free to e-mail me with any questions or comments.
How did you find this site?: search engine
Monday, September 1st 2003 - 12:42:07 PM
Name: Joe Klein
E-mail address: sales@global-translation-services.com
Homepage URL: http://www.global-translation-services.com
Comments:I visited your web site and enjoyed its content.

We would like to exchange a reciprocal text link with you. We can establish your link within 24 hours.

We are a Translation company, specializing in Medical translations. Our link information:

Title: Global Medical Translations
Link: http://www.global-translations-services.com

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How did you find this site?: Search Engine
Wednesday, August 20th 2003 - 12:56:43 AM
Name: margie
E-mail address: jazzymargie@cox.net
Homepage URL: http://angeldeamor-75@hotmail.com
Comments: Please help i am 27 with 2 kids 6-8 and i am trying to find ANYONE that has gotten preg .after the loupron inj. my Dr. is not much help at telling me my chances also my left tube is blocked (why he did not un-block it during my lap. God only knows ) needless to say im looking for another Dr. and some answers in the meantime some one PLEASE help. THANKS Margie
How did you find this site?: loupron serches
Wednesday, July 30th 2003 - 02:30:54 PM
Name: Sharon
E-mail address: sharonl41@hotmail.com
Comments:On June 24, 2003, I had a total abdominal hysterectomy, at the age of 34 because of "endo". I totally agree that there should be more funding in finding the "real cause" of it, not just "what they think may cause it". And then find a cure for it. It is a terrible thing to have to have this problem day in and day out. I was very lucky to have found a GREAT dr (who has been a ob/gyn for over 40 yrs, so he has seen this ALOT) It took me a long time (and many dr's to find him) He is my "endo angel" NO WOMEN SHOULD HAVE TO LIVE IN PAIN ALL THE TIME BECAUSE OF THIS!!!!!!!
How did you find this site?: searching
Friday, July 25th 2003 - 05:52:08 AM
Name: rahul
E-mail address: handsomeguy0073@sify.com
How did you find this site?: net
Thursday, July 24th 2003 - 05:17:46 AM
Name: Laura
E-mail address: babiecakes78@yahoo.com
Comments:Your site is absolutely wonderful! Although my family and friends don't understand what I have been through, it makes me feel good to know that someone out there does. I will be sending my "endo story" to you soon. Thanks for all the great resources and stories.
How did you find this site?: surfing the web
Tuesday, July 8th 2003 - 01:24:40 PM
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