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| Name: | Cindy |
| E-mail address: | CynthJmn@aol.com |
| Comments: | It was a relief of sorts to see others have gone through the interferon/ribivirin treatment and still have the virus.I was feeling alone,worse the the original diagnois I also found alot about nutrition and herbal stuff that I will try now,this is a good website,lots to read and learn thanks |
| Name: | James T Pereira |
| E-mail address: | jamestpereira@yahoo.com |
| Homepage URL: | http://www.hepatitisc.jamestpereira.com |
| Comments: | Hi, Would like to comment that this is a great resource for hepatitis c patients and keep up the good work. Also would like to advise patients to not only get the Hep B but also the Hep A vaccine, as HCV patients tend to be more susceptible to the other hepatitis infections. Some good news too. the FDA has recently accepted a new regime for genotype 2 and 3 patients. This is a weight adjusted ribavirin dosing with the usual Peginteron dosage. Treatment could be shortened to just 24 weeks. Check with your doctor. |
| Name: | Brent Coletti |
| E-mail address: | coletti_07@yahoo.com |
| Comments: | Just got back from doc.thinks i should start pegalated interferon.I have end stage liver function. |
| Name: | Kit |
| E-mail address: | kitlikesrugby@hotmail.co.uk |
| Comments: | Thankyou very much for this info. I have used it for a school report and as i specially liked the diagrams i chose this website Kit |
| Name: | Teresa |
| E-mail address: | twright@mckinleymtg.com |
| Comments: | My son is currently 4 months into the treatment and he is experiencing some jerking like a nervous twitch. Sometimes it is worse than others. Is this a normal side effect of the treatment and is there any thing that will help that you know of? |
| Name: | trevor |
| E-mail address: | turbosahara@hotmail.com |
| Comments: | gday,i am 28yo male who made some big mistakes when i was younger with drugs. i found out i had hep c when i was 22 and didnt think much of it.when i got my life back on track and i was straight, thats when it hit me. i now have 2 little girls , a wife and a good career. i always beleived my body would fight it off, but it hasnt! i am to scared to try treatment because of the side effects and i am worried i will lose my job as it is very phisical. my family rely on me as the bread winner, so i feel treatment is not realy an option at this stage. being able to share my feelings this way is very good,i thank you all. p.s. i encourage any one who would like to chat with me please do so,it helps alot |
| Name: | Lawrence Wayt |
| E-mail address: | lrw8@cox.net |
| Homepage URL: | http://www.squawpeakhiker.org |
| Comments: | I have Hep C and have had it for a number of years. Due to my age I was unable to handle interferon with a test drug. I was researching my ammonia levels when I came across your great Website. Thanks for the information. |
| Name: | Mike Kent |
| E-mail address: | mike@mikekent.com |
| Comments: | Just received confirmation this afternoon that my wife and soulmate of 27 years has HEPC. Likely since birth having contracted during delivery. We're still in shock but she is ready to take it on and I'll be there for her at every step. C Scans next week and further tests for treatment candidacy at the end of the month. We're going to fight this as a team and win! Thanks for the site and filling the blanks for all of us who want answers to so many questions that arise upon getting the news. |
| Name: | Xarlos Fishbro |
| E-mail address: | xarlos@gmail.com |
| Homepage URL: | http://fishbro.com |
| Comments: | I'm trying to reach you but your email addys don't seem to be wortking. Please email me. |
| Name: | michael |
| E-mail address: | legendone@earthlink.net |
| Comments: | wow .iam so down right now dont no what to do.this hepatitis.god bless all of you |
| Name: | SANTA PATLAN RUIZ |
| E-mail address: | santapruiz64@sbcglobal.net |
| Comments: | WELL I JUST STARTED READING THIS SITE AND IT HELP ME ALOT.I WAS DIOGNOSE W/LIVER CIRROISIS MILD CHRONIC 1A I STILL AM PUZZLED WITH THIS.I HAVE TRIED MEDICATION INTERFURON AND ANOTHER MMED. THAT GOES WITH INT. BUT THAT DID'NT WORK NOW I HAVE GONE THROUGH ALOT MORE OTHER MEDS. I EVEN HAD RESEARCH DONE TO HELP ME WITH MY DESEASES.I HAVE 3 WONDERFULL BOYS AND 3 GREAT GRANDKIDS. NOW MY BIGGEST FEAR IS WILL I SEE THEM GROW.I ALSO HAVE A NICE BOYFRIEND BUT SOMETIMES I FEEL THAT CAN NOT TALK TO HIM..BUT I DO TRY JUST DON'T KNOW FOR HOW LONG.I FEEL THAT HE STILL DON'T KNOW MUCH ABOUT THIS ILLNESS.BUT BY ME WRITTING AND READING ON THE WEB SITE HELPS COPE W/ MY DESEASE. |
| Name: | santa |
| E-mail address: | santapruiz64@sbcglobal.net |
| Comments: | WELL I JUST STARTED READING THIS SITE AND IT HELP ME ALOT.I WAS DIOGNOSE W/LIVER CIRROISIS MILD CHRONIC 1A I STILL AM PUZZLED WITH THIS.I HAVE TRIED MEDICATION INTERFURON AND ANOTHER MMED. THAT GOES WITH INT. BUT THAT DID'NT WORK NOW I HAVE GONE THROUGH ALOT MORE OTHER MEDS. I EVEN HAD RESEARCH DONE TO HELP ME WITH MY DESEASES.I HAVE 3 WONDERFULL BOYS AND 3 GREAT GRANDKIDS. NOW MY BIGGEST FEAR IS WILL I SEE THEM GROW.I ALSO HAVE A NICE BOYFRIEND BUT SOMETIMES I FEEL THAT CAN NOT TALK TO HIM..BUT I DO TRY JUST DON'T KNOW FOR HOW LONG.I FEEL THAT HE STILL DON'T KNOW MUCH ABOUT THIS ILLNESS.BUT BY ME WRITTING AND READING ON THE WEB SITE HELPS COPE W/ MY DESEASE. |
| Name: | Susan Martine |
| Comments: | I did not find "Symptoms of Hep C" |
| Name: | Steve |
| E-mail address: | major.stone@lycos.com |
| Comments: | Is there any positive HBV result? I am HBV positive and my viral load is at the moment low. I will be seeing my doctor this week. All i have read about on this page is mostly related to HCV. Is there any web site where i can interract with people having HBV? I find this page very good.God bless you all |
| Name: | xponse |
| E-mail address: | annie@xponse.com |
| Homepage URL: | http://www.myrxscript.com |
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| Name: | tobywankenobi |
| Comments: | Thank you for the useful information. I was diagnosed with hepC in august'06, but was turned down a blood donation in 1990 due to elevated enzyme levels. I guess I know now! I have my biopsy next month, I am worried but your website has shown me how good my chances really are to live a productive long life. Thanks,and keep the information comming,I've got your site bookmarked. |
| Name: | Annie |
| Comments: | Great Site. Lots of resources. I likes ! Keep it up. |
| Name: | Lori |
| Comments: | Thank you so much for this amazing resource. It's tremendously helpful and reassuring to have more information available, and it's from a patient's point of view, which is just what I was looking for. You've answered so many of my questions. Thanks. |
| Name: | Megan Rowe |
| E-mail address: | meg_renee628@yahoo.com |
| Comments: | thank you for having this website. i really do appreciate it. i just got hepatitis C in june of this year and it has been very scary for me. i am having my biopsy in the next month and i am scared to death. the doctor told me they will giving me naracotics before the surgery so i will be knocked out, but i have never had a surgery in my life so i am really nervous. The doctor also told me that they do not usually find hepatitis C in people my age, so i guess i got lucky that they found it now. It sort of ruins your life when you are told at the age of twenty that you have hepatitis. i guess my whole life will be different now. my friends even look at me funny now because they think that i am going to get them sick. I am in the Air Force and i might not be able to stay in because of me being sick, this is also very depressing to me. Thank you again so much for having this website so i could see what other people experience! |
| Name: | johanna |
| Comments: | I am flat out exhausted all of the time! I could really use some tips on how to others manage their fatigue. I opted out of the current treatments right now because my biopsy came back very good. Although I am almost tempted to go ahead and go through treatments just so I can feel normal again. |
| Name: | Carol |
| Comments: | Thanks for the information! |
| Name: | Astam |
| E-mail address: | astam@hat.com |
| Homepage URL: | http://getyourporno.b4site.com |
| Comments: | This site is really superb. Thank you for you work. Good Luck! Astam Avram USA |
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| E-mail address: | denlewright@hotmail.com |
| Comments: | thank you for the work you have done |
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| E-mail address: | croconile-at-inbox-dot-com |
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| Name: | Audra Whiting |
| E-mail address: | whitan4@fccj.students.edu |
| Comments: | I am writing a paper for college on Hep. C. Your site was very helpful. Thank you so much. I am a nurse and thought I knew all I needed to, but boy was I wrong. |
| Name: | Janese Goad |
| E-mail address: | jim4go@aol.com |
| Comments: | My dad found out yesterday that he has hepatitis C. He is 69 years old. He doesn't know were he got it from. The only thing we can figure out was from the time he was in the Navy, which was pre vietnam. I have been franticly reading all I can on this, so I can get a better understanding of it. Your web page was very informative and laid out nicely. Thank you. |
| Name: | miniatures |
| Homepage URL: | http://www.mottsminis.com |
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| Name: | Karen |
| E-mail address: | kalenape@comcast.net |
| Comments: | I was diagnosed with hep.C 6 yrs. ago when I changed jobs..... My biopsy showed mild inflammation. I tried the Peg-intron/riboviran combo but did NOT respond. However - my viral count is low. I have lost 20 lbs., excercise, etc. and have tried to change my way of thinking, etc. I feel great just now. Feeling great is part of the problem though - I some times forget I have hep.C! I went through a divorce a year and a half ago and I just want to date!! I am absolutely terrified about how to handle the sharing of my hepC with a potential love interest, etc. I would like to just read some shared stories from other people about this - their experiences, etc. The idea of being rejected because I have hep C is terrifying to me at this time.very few people, except my closest friends know I have hepC |
| Name: | Karen |
| E-mail address: | kalenape@comcast.net |
| Comments: | I was diagnosed with hep.C 6 yrs. ago when I changed jobs..... My biopsy showed mild inflammation. I tried the Peg-intron/riboviran combo but did NOT respond. However - my viral count is low. I have lost 20 lbs., excercise, etc. and have tried to change my way of thinking, etc. I feel great just now. Feeling great is part of the problem though - I some times forget I have hep.C! I went through a divorce a year and a half ago and I just want to date!! I am absolutely terrified about how to handle the sharing of my hepC with a potential love interest, etc. I would like to just read some shared stories from other people about this - their experiences, etc. The idea of being rejected because I have hep C is terrifying to me at this time.very few people, except my closest friends know I have hepC |
| Name: | Michael |
| E-mail address: | michael@terra.com.br |
| Homepage URL: | http://alivante.balder.prohosting.com/ketoconazole/ |
| Comments: | My friend told me to visit your site because she said its beautiful. She really was telling that truth. Indeed, your site is amazing. Ill surely go visit here again. Keep up the good work! :D |
| Name: | Novik |
| E-mail address: | novik@tuza.ru |
| Homepage URL: | http://girls-girls.net.ru |
| Comments: | Your site have some new, fresh style - this is very interesting |
| Name: | Alison |
| E-mail address: | Perrya@ghrdc.com |
| Comments: | It's been a long time since I've visited this site (maybe approx. 4 years). I took the treatment of Pegalated Interferon (SP?) and it seems to have cured me. I had a tough time with the treatment, with major fatigue; hair loss; weight loss; memory problems, early menopause, to name some of the major problems. I never did start my period again when I got off. I had 2 periods the first two months and then never have again. I feel as though my memory has been permantely damaged. Not a huge amount, but I just don't recall things very well -- it seems to me that it was better before the treatment. I am a 45 years old now and should have a great memory, but I don't. I'm just wondering if others have experienced similar problems. My liver is in great shape now -- it's gone back to normal. Thanks for any information. Alison |
| Name: | August Nicole |
| E-mail address: | august_nicole@juno.com |
| Homepage URL: | http://alemed.t35.com/vioxx/ |
| Comments: | Great job with all the new things added to the website. It is a pleasure to visit it. Happy day to All. You may want to support my site http://alemed.t35.com/vioxx/ too. |
| Name: | Kelly |
| E-mail address: | elb2less@hotmail.com |
| Comments: | I just came upon the website and took the time to read several of your posts. Very inspiring.. I was just diagnosed with HCV and am scared to death of what to expect next...First is the doctors appointment, then I go from there....I have read alot so far but sometimes I think that scares you more before you get there....Oh well..thanks for all the great input, and great feelings from all of you.... |
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| Name: | Rose Mullen |
| E-mail address: | RoMullen@email.uophx.edu |
| Comments: | Thank you for all of the information. I was just diagnosed two weeks ago. I had my biopsy last week--stage 1, grade 2. I will see my doctor next week and discuss treatment options--I'm leaning towards the interferon in hopes of eradicating the virus. I am genotype 1a so I know my category is less responsive but will still proceed. Thank you again--I have visited the website numerous times and am very grateful for all of the helpful information. |
| Name: | Vicki Racine |
| E-mail address: | vickiracine@sbcglobal.net |
| Comments: | I found out in 2004 that I have hep c. I had blood transfusions in 1974 and 1976 after the births of my children. My biggest systom was fatigue. I found out just by dumb luck. I was treated @ IU Medical in Indianapolis, IN and have been clear since May of 2005. I have no one in the South Bend, IN area that I know who has it and we don't have any support groups either. I was in a blinded study with Dr. Paul Kwo. It was difficult but with the help of friends I got through. I'm glad to find your site. |
| Name: | Ray Franklin |
| E-mail address: | RFranklin9@satx.rr.com |
| Comments: | I was diagnosed with hep c several years ago. My clinic told me that since I show no signs of effect on my liver, that I could be one of those people who carry the virus but are not affected by it. Well, I now have end stage kidney disease which my kidney biopsy directly points at the HCV. Meanwhile, my liver doctor keeps saying it's impossible because hep c only affects the liver and nothing else. To complicate things, I can't start treatment because the kidney disease has my iron too low. So, moral of the story is, even the doctors are not up to speed on HCV. Keep up the good fight. |
| Name: | Karin |
| E-mail address: | kvasikatten@tele2.se |
| Comments: | Iīve beaten the Dragon ! I have had treatment for ONE YEAR and I am now free - at last ! I have had genotype 3 since -70īs and have had two treatments before. Both in 6 momnths with different types of Interferon. Finally itīs over ! My tests are negative !!!!!! |
| Name: | Mary-Anne Martin |
| E-mail address: | mamartin13@yahoo.com |
| Comments: | Tonight, a friend told me she has Hep C which I didn't know before. I stumbled into your website by accident - and very happily so! You gave me so much information the disease, and now I can better understand what my friend is going through. I am bookmarking your website so that I can refer to it for information that may help her down the line. I will need to know more from her, but at least I won't appear to be totally ignorant. Yes, I've heard of Hep C, but never had any reason to look into it before. Thanks for being here for me!!! |
| Name: | Jenny Johnson |
| Name: | Charli |
| E-mail address: | charliballew@yahoo.com |
| Comments: | Thanks for the info, I'm 44 yrs old with genotype 1 hep c and I'm getting ready to start interferon treatments, wondering about side effects, mild or severe ???? Any suggestions or info is appreciated. Thanks much C. |
| Name: | Brad Fleming |
| E-mail address: | twinflems@aol.com |
| Comments: | I have had Hep C for about 35 years now. I contacted it via air injected inoculations in the Navy before going off to Vietnam back in 1971. I was only diagnosed with the virus in 2001 and spent 2002 going thru the Interferon/Ribovirin treatment. Pills everyday and a self inflicted shot once a week to no avail, as I am a genotype 1B. Everyday gets worse with fluid retention, abdominal pain and lack of any "get up and go". I know I am not alone and I would like show my support of Hepper's out there. This Dragon pin looks like a good way to display my support. You mentioned a ribbon, how does one aquire one of these? Please send me information on how to purchase the pin and the ribbon if possible. Thank you, Brad Fleming |
| Name: | D |
| E-mail address: | justd912@comcast.net |
| Comments: | THANKS FOR THE GREAT INFO. I LOST MY FATHER, DAVID AREBALO, TO HCV IN 2001. IT WAS 2 WEEKS AFTER HIS 45TH BIRTHDAY. I AM CURRENTLY INTERNING AS A MEDICAL SOCIAL WORKER AT A H0SPITAL IN SOUTHERN CALIFORNIA. THERE ARE MANY TIMES WHEN I HEAR HOSPITAL STAFF (MD, NURSES, SOCIAL WORKERS) READ A PATIENT'S CHART AND SEE "LIVER DAMAGE" OR "CIRHOSIS". THEY AUTOMATICALLY THINK "MUST BE AN ALCOHOLIC". MY FATHER HAD NOT DRANK ALCOHOL IN OVER 20 YEARS AT THE TIME OF HIS DEATH. I AM CURRENTLY PUTTING TOGETHER A PHAMPLET FOR HCV PATIENTS TO GIVE TO THEIR FAMILY AND FRIENDS WITH INFO ON HCV. I WILL ALSO BE CONDUCTING AN IN-SERVICE FOR THE HOSPITAL SOCIAL WORKERS. THANK YOU FOR THE INFO. |
| Name: | D AREBALO |
| E-mail address: | justd912@comcast.net |
| Comments: | THANSK FOR THE GRETA INFO. I LOST MY FATHER, DAVID AREBALO, TO HCV IN 2001. IT WAS 2 WEEKS AFTER HIS 45TH BIRTHDAY. I AM CURRENTLY INTERNING AS A MEDICAL SOCIAL WORKER AT A H0SPITAL IN SOUTHERN CALIFORNIA. THERE ARE MANY TIMES WHEN I HEAR HOSPITAL STAFF (MD, NURSES, SOCIAL WORKERS) READ A PATIENT'S CHART AND SEE "LIVER DAMAGE" OR "CIRHOSIS". THEY AUTOMATICALLY THINK "MUST BE AN ALCOHOLIC". MY FATHER HAD NOT DRANK ALCOHOL IN OVER 20 YEARS AT THE TIME OF HIS DEATH. I AM CURRENTLY PUTTING TOGETHER A PHAMPLET FOR HCV PATIENTS TO GIVE TO THEIR FAMILY AND FRIENDS WITH INFO ON HCV. I WILL ALSO BE CONDUCTING AN IN-SERVICE FOR THE HOSPITAL SOCIAL WORKERS. THANK YOU FOR THE INFO. |
| Name: | mr kaine |
| E-mail address: | bizwrks_info@yahoo.com |
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| Name: | alisia |
| E-mail address: | playgurl062004@hotmail.com |
| Comments: | I have read the articles and had found it very informative thank you for all your help |
| Name: | Mugu mugu |
| E-mail address: | mugu@yahoo.com |
| Comments: | nice site keep it up |
| Name: | Avram |
| E-mail address: | bla@bla.net |
| Homepage URL: | http://wowwow.5u.com/travel.html |
| Comments: | Great book. I just want to say what a fantastic thing you are doing! Good luck! |
| Name: | mark |
| E-mail address: | mguzzi@thedoctors.com |
| Comments: | My transfusion (2 units) followed a bicycle/car accident on 09-21-84. Diagnosed by biopsy in the early 90's. A round of interferon then put it to sleep. It came back in the late 90's, and I underwent a round of interferon and ribavirin. I'm now 5-years our with the virus undetectible. My annual check-up is now bumped up to 3-years. Word to you- Hang in there and do what needs to be done. Fight the good fight. We're in this together... |
| Name: | Letrice Walton |
| E-mail address: | nolegirl904@yahoo.com |
| Homepage URL: | http://alwaysevian.proboards61.com/ |
| Comments: | I am very appreciative of all of the information. My aunt was diagnosed with HCV. and i wasent exactly sure what it was, and i wanted 2 know. so thank you for having all of this information. ~ Letrice ~ |
| Name: | Linda Szopjak |
| E-mail address: | Lyndys@yahoo.com |
| Comments: | I had end-stage Liver Diease and have developed my own diet. It turns out that I came upon your website and everything that you are doing to help people to sustain life I have been doing myself. The doctors are in a state shock! I started April 2004 to begin my program am still following it. Daily I pray about it and am giving direction on what I need to drink eat or do. I am so happy to see your program because it confirms what I have been doing is correct. No doctor here could help me so I decided to get guideness from God and here I am off the liver transplant program HFH. My concern now is Liver cancer so my focus is a complete daily program that is stress free, exercise, healing foods and drinks made from: anitioxidants, herbal teas & supplements, Whey Protien, fruit and vegetables. Fish broiled & farm raised only. The only meat is white chichen breast or turkey once in a blue moon and it will be a bite or two. The free radical is the cell or cells that I am fighting now I think? It is great to read all this information and see that you offer supplements that may be of great help to me. I have not had the time yet to look into what you have to offer but your website is a place I will be visiting often. I wanted you to know I am out here and Thank You for making me feel I am not alone on my thinking that there can be a healther way before one heads for sugury. I live in Michigan and I am the only person that has made it past sudden liver failure, biopsy stating end-stage liver disease, hyperportal tension, varies and ascities. All is fine now and no medication. Linda Szopjak |
| Name: | Zamir Anjum |
| E-mail address: | zanjum@gmail.com |
| Homepage URL: | http://www.pakidesigners.com |
| Comments: | Its a good and very informative site,,i will be checking it shortly, warm regards Zamir Anjum CEO Pakdesigners Inch www.pakidesigners.com |
| Name: | guada |
| E-mail address: | guada_boracay@yahoo.com |
| Comments: | I am in love with a man with hcv. He's only 29. He's a genotype h1f1. I will do anything and everything for him. If he suffered physically,emotionally and mentally, I suffered too in silence with him. This sight is very helpful. |
| Name: | Samantha Stine |
| E-mail address: | blood_baby9@yahoo.com |
| Comments: | Thank you for this web site. I am doing a report on hepatitis c and am interesting in it because my dad has been told he has it and he may have liver cancer was what he was told. Though i'm not sure if your wanting to give out this infromation but i need to have a bibliography page and it requires the name of the person who created this site could i ask you if i could have your name. If yes will you please email me and tell me. You dont have to and i'm not prying into your life I just ask for a first and last name. Thanks. Sama |
| Name: | bonni |
| E-mail address: | bonniangels@aol.com |
| Comments: | I was told last week I have HEP C.I have fear and sadness that I don't know what to do with . Thank you for your site . |
| Name: | Trudy |
| E-mail address: | mrs.211@hotmail.com |
| Comments: | Hi i am looking for help, usually its the "sick" ones that realy know. I have had a DRAGON for10 Yrs and #3 Therapies. Th 1st was for a trial program for the FDA on INTERFERON. Any way after 10 yrs, 4 yr old son and (cured )three times i am scared . Finally realized that maybe it CAN get me. I am a single Mother, unemployed,no insurance, I thought maybe you or someone you know has an idea Good Luck & thank you for your time. trudy patterson |
| Name: | jeff brown |
| E-mail address: | lazlo81@charter.net |
| Comments: | CAThanks for the website! I am also pretty well-informed, and have chosen to see this as a movement ahead. I have been seen recently by Dr. Kemmer at the U of Cinncinatti Med Center. She has assessed me at Genotype 1, likely contracted in the mid-70's, (IV Drug Use). I have used alfa-interferon and something that I can't remember, and the alfa-interferon and ribavarin. Neither mad any substantial impact on my numbers. She tells me that the progressiion is essentially stable, that with the exception of fatigue and depression, both being managed, I do not have significant problems, (Type II Diabetes, notwithstanding). She says that since I am at genotype 1, and I have (likely) had the virus for 30 years, I will probably outlive my liver disease, e.g. will not progress substantially, not acutely to cirhossis or CA. Does this match other's experience? Thanks Jeff Brown |
| Name: | Tom |
| E-mail address: | tomno77@hotmail.com |
| Homepage URL: | http://www.happycat.fi/index.html |
| Comments: | Just surfing. Great site. Regards from Finland More Photo from Hungarian festivals: http://www.happycat.fi/photoalbum/photoalbum.htm <p><a href="http://www.happycat.fi/photoalbum/photoalbum.htm"> http://www.happycat.fi/photoalbum/photoalbum.htm</a> </p> |
| Name: | linda |
| E-mail address: | hiatt36@hotmail.com |
| Comments: | my brother has hep. c . he is in prison so i know he is not well informed about this... i want to help him as much as poss. your site is going to a huge help... thank you, linda |
| Name: | lee fontenot |
| E-mail address: | id7207@yahoo.com |
| Comments: | I was just told I have Hep-c-gen1 during a routine blood test. Biopcie is next. I'm 50 years old and guess if it's pretty bad rsults, I'll ride that bad bull until one of us wins. thanx for the info. |
| Name: | Lynnette McFadzen |
| E-mail address: | lynnette57@netzero.com |
| Homepage URL: | http://www.myspace.com/boop57 |
| Comments: | Thank you..searched all over just to find out what my viral count meant.....big help |
| Name: | FRED |
| E-mail address: | IdeasQuestor@gmail.com |
| Comments: | Six months ago I located my college sweetheart via the internet. With just a first name and an approximate age we quickly located each other and compressed the last 42 years into six months. Today she was told she has HCV....it's complicating her diabetes, but then they previously had told her that her pancreatic, stomach, and bone cancers were terminal. She keeps fighting. We are just a week away to relocating her to a warmer environment. She asked me to find everything about Hep C. Your site is a tremendous start in my research. Yes, she's very frightened. The medics don't understand why she's still surviving. Stubborn love. Thank you for the inspiration and information. My turn to show her that care giving is a major part of life, and love. |
| Name: | thomas |
| E-mail address: | ronte@comcast.net |
| Comments: | Thank you so much for the information on your web site. I will be starting treatment on the 23rd. of Sept. I just hope that I will be able to continue working. your web page is so inspirational I thank you. thomas |
| Name: | Mac |
| E-mail address: | andrewmcfarlane@btinternet.com |
| Comments: | I have found your site very informative and sometimes moving. I was diagnosed with Hep C in 93 and was given the combination therapy in 2003. The treatment has not worked. Good luck to all you fellow sufferers. |
| Name: | being here |
| E-mail address: | yurt_dancer@yahoo.com |
| Comments: | It was a great page, still has a lot of good information, but in all ethical considerations you should either update it or trash all parts that are about studies coming up in the year 2000. Please up date your info, there's a lot more out there now than there was five years ago and some of it contradicts the original theories on HepC, while other studies have confirmed and/or broadened the knowledge base on HepC, particularly on treatment an longevity. As one of the first people diagnosed with Hep I've followed the evolution of our knowledge about the disease with great interest. By doing so I have managed to stay alive, without meds, for 37 years post contraction, though I have been considered chronic active since my first dx in 1990. I am now five years beyond the very best shelf life any doctor would stamp me with and figure on getting at least another five before things go wrong, or maybe even a full life time. I accomplished this by educating myself on HepC, on the liver, on nutrition, on holistic medication. I live on a strict died, don't eat or do drugs and take a fist full of vitimins and minerals every day. The only hard to live with effect of the Hep is CFIDS and the resulting early onset of osteoporosis in my spine, which has reached what my doctors now call the "premature advanced severe osteoarthritis". Aren't they great with the dxs? The whole point here is that the more info we Hep patients can get the better we can treat and take care of ourselves, sans brutal medications. Web sites like yours are appreciated IF they are kept up to date. Thansk for putting it up in the first place. Took a lot of effort and some concern. My guess is that either you or someone you are close to is a Hepper. I have no dragons. I have gold finch, hummingbirds, rose breasted grosbeak, harrier hawks, blue jays, hairy back woodpeckers, downy back woodpeckers, red headed woodpeckers, white breasted nuthatches, titmice, chickadees, mountain blue birds, cardinals, robins, sparrows, red breasted fly catchers and yellow breasted flickers, owls and the occasional pair of Canadian Geese in my back yard. Year round I tend to thier needs and they return my favor with song and wonderous good delight all day and night long. I live with three cats, who share their life and love with me unselfishly and unconditionally. I garden in the warm months, tend a houseful of plants in the cold ones. Best of all, I have a marvelous son. He's an adult now and not living with me, but he makes my heart sing. Why do I share all of this personal beauty? It is more important to my health than my diet, my abstinance from alcohol and recrational drugs, my vitimin and mineral substitutes combinded. The old saying, "healthy mind, healthy body" is not far being wrong. Yes, I have bouts of the Old Hepper Blues, but they don't last long and I get through them waiting for the next good day which I know will as surely as another bad one eventually. You see, in the end life is no different for we heppers than it is for anyone else. For every one life ranges from outragously beautiful to horrifyingly ugly, with usually a litte of each at one time. I am not "dying to live and living to die" I am living to be part of Earth while I'm on it. Not sitting around feeling sorry for myself, nor counting my days nor obsessing on death. Death is a doorway. The next adventure and I'm sure it's a hell of an adrenaline rush. I will get to it in it's own time and go with it, but until then I'm here to live, not to wait to die. Have a great day if you can. If you can't, know that it wil pass as all things good and bad pass. Life is like the weather in Florida. |
| Name: | Robin |
| E-mail address: | RobinBirdT60@aol.com |
| Comments: | Your site is very informative. Thank you. I'm Robin, found out I had hcv in 2000. Had to drop insurance but was able at time to have biopsy and all blood work done. Haven't done tx. Trying to get it free through pharm company. Have appointment in August. Really afraid to do tx. Today I was searching for page about lower right side back pain. Came across your page. I am very glad I found another site. I have done alot of research for this monster. I've been taking Maximum Milk Thistle. Don't know if it is doing any good. Been eating right and drinking alot of water. I have 1a and viral load at 5970000. Not to good. Have read tx not to successful with people with 1a. That is been what I have been debating with myself about. Anyway, thank you for your info. Robin Very good site. |
| Name: | radwheeler honey |
| E-mail address: | laurie.fuller@sbcglobal.net |
| Comments: | I just came upon your site. I am so very happy and pleased to have found your site. I am enjoying it very much. |
| Name: | sl4va |
| E-mail address: | mil@to.net |
| Homepage URL: | http://au-visa.bizhat.com |
| Comments: | good site! |
| Name: | P. CRADDOCK |
| E-mail address: | CHIP@FLORIDABOATLIFTS.COM |
| Comments: | What the hell is everybody talking about "side effects" on interferon? I've been on the treatment for 11 months now & havent felt a thing. I've installed a 18' round swimming pool digging the hole by hand, to ground level. Installed a koi pond,layed 300' of pathways on the property with that mold you get at home depot. I work 10 hrs a day w/ a 1 hour commute each way, volunteer @ my sons high school football program. I never sit down except to commute. Since day one i have never considered defeat. I truly believe your attitude counts alot with this disease. Dont slow down, dont feel sorry for yourself. Drink a red bull if your tired. Dont whine, i dont wanna hear it. |
| Name: | Brittany |
| E-mail address: | lil_punkd_chik@yahoo.com |
| Comments: | My mom was Diagnosed with Hepatitis C last week. I have to get tested for the next year and I'm scared that I have it too. I am a Young Teen, 15, actually, and I don't know if I'll be able to prevent it or anything. If I have it will I die young? Those are the thoughts that run through my mind now. My mom's scared and so are the rest of us. She's only 35 and already her life is limited. I enjoyed reading this because its opened my eyes and made me realize what she'll be going through and the obsticles we'll have to overcome through this whole process. And by process, I don't mean it will be over when the worst has passed... It'll just make us stronger. Once again, God Bless you for this web page.. |
| Name: | Owen |
| E-mail address: | owdemer@hotmail.com |
| Comments: | A positive spirit will keep the imune system prime remember you are the one who can enjoy or not |
| Name: | Tammy |
| E-mail address: | ssmoyer@buckeye-express.com |
| Comments: | My father recently found he has failed 45 weeks of Interferon combo treatments. He has hep C genetype 1b, a loving wife and three children. After his physican told him there was nothing further he could do, my step-mother has looked to natural meds. If anyone out there has failed with the combo treatment and has helpful information please contact. For those with no anwser I ask for prayer. Thank You! |
| Name: | Edna |
| E-mail address: | Edna_Vigil@comcast.net |
| Comments: | I have been on treatment for 27 weeks and it's been different. I really don't have anyone to talk too,but now I found you web site and I will continue to read, read,read. The testimonies are all to true Everyone stay on top and don,t get discourage like I do at times. BE STRONG!!!!!!!!! GOD BE WITH US AND OUR FAMILIES. |
| Name: | Cathy Nguyen |
| E-mail address: | lcatn@aol.com |
| Comments: | My husband and I have positive hepatitis C antibody and we are waiting to further test results. We wonder, we worry, we don't know how we get it. We got on internet and learn as much as we can about the silence disease and suddently I found your homepage and beside learning, I feel some comforts and caring. Thank you so much. Cathy Nguyen |
| Name: | gary keife |
| E-mail address: | gmk337@yahoo.com |
| Comments: | I have been coming to this page for information and links for hep c. My time has finally come for a liver transplant. I loss my job and health insurance so everything has been tough getting ready. My main concern is paying for the medicine each month for the rest of my long life. I could use any financial help I can get. My fund raising organization is NTAF. Checks can be mailed to: NTAF care of Gary Keife 3745 W. Chester Pike - suite 230 Newtown Square, PA 19072 Credit cards can done at http://www.transplantfund.org/index.cfm |
| Name: | Roland Bennett |
| E-mail address: | rab1051@juno.com |
| Comments: | I greatly appreciate the balanced and objective info at your site. I recently tested positive for hepc antibodies and am now awaiting a more in depth result. My doctor says I have no outward signs of the "dragon" but even if I do my body may have learned to cope with it over the years. If I have it it is from shooting drugs over thirty years ago. The Bible is right - "Be sure your sin will find you out." Today I am the total opposite person but realize all too well that there are consequences for my actions - even from the distant past. Before I came to your site all I found were gloomy forecasts, especially from sites that were sponsored by drug companies pushing their particular wares. Bless You - RB |
| Name: | Tyrone Tharge |
| E-mail address: | tyront@peoplepc.com |
| Comments: | I am in the process of gathering data for my research paper on Hepatitis C. Your site has "by far" had the largest, most concise and organized information I've found so far. If anyone has another Hepatitis C information website that would benefit my research please email me and let me know. I wish the best for all of you. God Bless.. |
| Name: | Gary & Sue Smith |
| E-mail address: | texoma_sue@hotmail.com |
| Comments: | I am waiting on the results of my viral load as I type this. My husband was checked for Hepatitis and found to be positive several months ago for B & C. He was in denial and never went back for his blood tests for a viral load. I used a lancet about a year ago to draw blood for a blood sugar meter test on him and then used the same lancet on myself out of ignorance to check my blood sugar. I now have tested positive for HCV but not B. Does that mean that he contracted the B after giving me the C? Is the B gotten through sexual transmission? I am so shaken by all this, can someone help me? PLEASE? |
| Name: | Karen |
| E-mail address: | sebekari@hotmail.com |
| Comments: | I was just browsing looking for info on the Pegetron-Ribavirine program my husband is on. Found your site and got a wide variety of thoughts and feelings i've been having. Husband has every side effect and i am having a rough time dealing with it all alone. I have HCV. but because i am on oxygen,specialist believes i will be better off without the treatment. So have a few worries and it was nice to see a site as good as yours. Will definitly keep on top of the messages. Thanks for listening.God bless us all. |
| Name: | Lilith |
| E-mail address: | bearmale1313@yahoo.com |
| Comments: | Have had hep c since 1967! Had gamma gloubulan shots at time of infection. In 2003, disease progressed from phase one to 2 and suffered 48 weeks of pegintron. Treatment failed. Still taking Milk Thistle. Kind of depressing. What to expect? I feel good. Family asks, how long to you expect to be here? Thanks for the vent. |
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| E-mail address: | serje@serje.com |
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| E-mail address: | serje@serje.com |
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| Name: | Tomi |
| E-mail address: | sp@hotmail.com |
| Homepage URL: | http://www.happycat.fi/ |
| Comments: | Hi! Thank you for sharing such a wonderful sites with us. Helsinki - Finland , Europe |
| Name: | arthur turchen |
| E-mail address: | worksofart@charter.net |
| Homepage URL: | http://my yahoo.com |
| Comments: | I am 59 yrs of age and am hep c + since the age of 18 due to contaminated needle. In 1998 I took interferon treatment for 6 mos and since then my doc says my numbers are ok on the blood tests i take every 3 mos. |
| Name: | Mike "the petsitter" |
| E-mail address: | pet.sitter@verizon.net |
| Comments: | Although I'm still reading thru the various links on the site, I find your site to be very informative, sensible and oh so comforting. I was diagnosed in mid December, genotype 1a (the bad news) but feel fine (good news). ALT is 112, AST is 57 viral load is 1530. My gastro will most likely suggest a biopsy in the next few weeks. Like many, the diagnosis has left me reeling and the prospect of a big needle doesn't help. This is where i found your decriptions of the procedure, complete with pain ratings such a comfort. With some of the zany claims and "cures" on the net, your site is refreshing. Many thanks, Mike |
| Name: | Karin |
| E-mail address: | kvasikatten@tele2.se |
| Comments: | I found your site today ! It is so much to read and so interesting stuff. I am during my third period of treatment now and this time is the worst ever - I have so many sideeffects that I cannot count them all. The two times before I could continue my work during the treatment but this time I am a shadow of myself and I will have the treatment for 48 weeks...... I am not halfway yet. But - it costs to stay on top as they say. I will beat the Dragon this time - I WILL !!!!!!!!!!!!! Love and hugs from Karin in Sweden |
| Name: | Tom |
| E-mail address: | tom@catwalktci.com |
| Homepage URL: | http://www.catwalktci.com |
| Comments: | What a lucky visit! All the best, a maximum of Success and Health - from Tom. CATWALK.TCI INC. - Web Hosting in Berlin/Europe http://www.catwalktci.com |
| Name: | Smitty |
| E-mail address: | smitty2@in4web.com |
| Comments: | My first husband and soul mate died from HCV & I took care of him until he became my Special Angel now ion heaven. Then I was diagnosed with HCV years later after marrying again and having two beautiful children. (had I known I had HCV I would never had taken the risk to bear children so God knew what He was doing) I've been undetectable after treatment for HCV for two years now. My children supported me through the treatment and I believe their prayers everyday helped heal me. I work with many women with HCV and addiction problems to encourage & support them through treatment. That's if they find they can handle it because it is damn hard to do but not impossible! My husband became involved with another woman not soon after I had been so sick with the treatment. (I was not the woman he married then) We're in the process of divorce but I am getting back to being the woman I was, only better. I am grateful for a second chance! God bless us all as we trudge the road to recovery from this horrible disease and bless the ones who haven't been able to make it. They are our true heroes. smitty2 |
| Name: | Smitty |
| E-mail address: | smitty2@in4web.com |
| Comments: | My first husband and soul mate died from HCV & I took care of him until he became my Special Angel now ion heaven. Then I was diagnosed with HCV years later after marrying again and having two beautiful children. (had I known I had HCV I would never had taken the risk to bear children so God knew what He was doing) I've been undetectable after treatment for HCV for two years now. My children supported me through the treatment and I believe their prayers everyday helped heal me. I work with many women with HCV and addiction problems to encourage & support them through treatment. That's if they find they can handle it because it is damn hard to do but not impossible! My husband became involved with another woman after I had been so sick with the treatment. (I was not the woman he married then) We're in the process of divorce but I am getting back to being the woman I was, only better. I am grateful for a second chance! God bless us all as we trudge the road to recovery from this horrible disease and bless the ones who haven't been able to make it. They are our true heroes. smitty2 |
| Name: | Elias |
| E-mail address: | ivou@vergina.eng.auth.gr |
| Comments: | An exceptional, informative and encouraging site. God bless you. |
| Name: | Peggy |
| E-mail address: | tpeggy1010@yahoo.com |
| Comments: | I received blood transfusions when my youngest child was born in 1976. I was diagnosed about 6 weeks ago I will begin Interferon and ribovirin next week. I am frightened but so greatful to have found this site today!!! Peggy |
| Name: | Phil Allard |
| E-mail address: | allardeletter@hotmail.com |
| Comments: | I am doing an oral presentation on Hepatitis C in my Microbiology class. With your quality site I should have no problem getting that 'A'. |
| Name: | johanna |
| E-mail address: | birdsongs@frontiernet.net |
| Comments: | I could really use some feed back from others. I am very scared. I am 36 years old and I have no clue on how I contracted the virus. I found out a couple of weeks ago. Yesterday I went in to have more tests to find out which genotype I have. My main concern is my family. My husband had a negative test and my son we are waiting for the results. My son is 9 and I am praying that he has not contracted it. I would like to hear some feed back on the effects this has had on peoples families. I really need some positive feedback. Thank you so much for being here for me to express my concerns. |
| Name: | johanna |
| E-mail address: | birdsongs@frontiernet.net |
| Comments: | Thank You so much for your website, It has helped me alot. I am very scared, it really helps me to know that other people feel the same as me. Once again Thank You! Johanna |
| Name: | Lorie Yocum |
| E-mail address: | joyfulsister@msn.com |
| Comments: | I just want to know if just doing the blood test once a year is okay. or should I have a liver biopsy to really make sure what condition my liver in really? When I do my blood test I then make an appointment with my Doctor who treats hep c patients. he tells me everything looks fine after seeing my Blood test. And also I want to know if a liver biopsy is painful? |
| Name: | Madalena |
| E-mail address: | madalena.bastos@netcabo.pt |
| Comments: | Long time since my last entry. To make a long story short, I'm 40 years old, mother of a girl and a boy (13 & 6 now) knew I had the virus May 2002, start the combo treatment (ribavirin & interferon) August 2002, till August 2003. Last 21st January I had routine tests and everything is perfect (17 months after ending the treatment). I hope this statment brings hope to you all. Keep fighting and never give up. Madalena |
| Name: | pam sienk |
| E-mail address: | det0028@aol.com |
| Comments: | Have visited here before (transfused 1979, diagnosed 2001). Chair the ALF-sponsored support group here in Detroit area which is continually growing. Treatment 6-mo.; SVR 4-02! Onward & upward for each of us on our journey - together! |
| Name: | richard |
| E-mail address: | caldwell201@sbcglobal.net |
| Comments: | just recently started on treatment. dont know what to say yet but help! |
| Name: | mami |
| E-mail address: | yf326@hotmail.com |
| Comments: | Dear all who are going through this hard time of the virus, I have recently diagnosed with positive in Hepatitis C virus and I am waiting for the results of more detailed tests. Just being in an enourmous shock and half of me is still in a denial. A lot of time when I am at home, I am unable to put myself together and I get very scared to see all negative things that might happen to me. One of my fear is that I lose my ability to continue what I do for my job. I teach and do research at a university and I have been dedicated to my profession. At this time I do not know anything specific about my condition (e.g., viral load, genotype) but I am already pesimistic about the use of treatment due to my original physical condition that is rather weak. I would like to correspond with those who are in the same profession and have the hepatitis C. I am originally from Japan. I would also appreciate e-mail correspondence from anybody who can share and support with in this hardship. Please feel free to e-mail me. Thank you. |
| Name: | Patti |
| E-mail address: | ruane53@yahoo.com |
| Comments: | Thank you...I had a transfusion in 1977....diagnosed in 1990. So goes the battle...widow in 1991, people are so afraid of this, so while I am 51, I remain single. Thank you for your site. God Bless. |
| Name: | Linda Raymen |
| E-mail address: | w_lraymen39@yahoo.com |
| Comments: | Hi, I was diagnosed in 1999 and we figure that I got it in 1968! When I gave birth to my first child. Started treatment in the Fall of 2002(Peg-Intron & Rebetol). Treatment was stopped after 3months. The hardest part of all this, for me, has been getting medical help! There is one group of specialists in my area, 45 miles away, and they don't seem to want to have anything to do with me. Also my primary provider is a young doctor who knows nothing about HepC. Enough sniveling & whining! Thank you for all the great info, and God's Blessings on us all. |
| Name: | TARLENE |
| Comments: | THANKS JOHN! |
| Name: | TARLENE |
| Comments: | THANKS JOHN! |
| Name: | Tarlene |
| E-mail address: | taralynn102002@hotmail.com |
| Comments: | Hi everyone! I just got back from doctor's appointment and found out the treatment is working! I just received the results from my first viral load after starting treatment...there's nothing there! Now the rest of treatment will be a breeze. Take that dragon! God Bless and Be Well Tarlene |
| Name: | john |
| E-mail address: | tcma69@yahoo.com |
| Comments: | Hey yo! Finished my 11 month interferon and copeg treatment mid-august. All clear for now. Look.....you gotta give it a go if you can It's rough but better than the alternative. I also combined eastern medicine alternatives which I'm convinced helped a lot. Good luck to all and let me know if I can be of any help. John P.S. This site helped me so much I can't begin to thank you enough. Hang in there Tarlene! |
| Name: | Christy Price |
| E-mail address: | christyp1956@yahoo.com |
| Comments: | Just wanted to sign into the site, I have recovered from the virus after having it for probably 20 years or so, but didn't know I had it until about 6 years ago. My enzme level had escalated, then my Dr. checked my genotype, I was a 3C, one of the strains that responds best to the treatment, I took interferon and Ribovirin for 6 months, the virus was undetectable after the 2nd month. Granted the side effects of the treatment were no fun at all, but it was easier dealing with that then it was the side effects of the virus. I now have enough energy to make it thru the day without having to nap for 3-4 hours. For anyone that may be considering the treatment, I say go for it, what do you have to lose. Yes you will hear horror stories about the side effects, but nothing I wouldn't go thru again, if I had to. I did get very anemic,was always dehydrated, lost weight, some hair, and my taste buds were wiped out. The depression I dealt with, no meds, just tried to keep a positive frame of mind about it. It was most definitely worth it.Feel free to contact me at my email address anytime. The Schering co. that makes the interferon also has a great support program, They supplied me with workbooks that had info about diet,side effects & how to treat them, telling family members & employers,etc. all kinds of great tools for support during the treatment, plus they had a nurse on call 24/7.I'd advise not to hesitate if any of you are planning the interferon treatment. I have been off the treatment since April, my taste buds came back right away, my eyebrows are growing back in, and I put back on the weight I had lost within a month. May you all have the success I did, in fighting the DRAGON, this disease is a silent killer, we are all at an advantage compared to some, as we know we have (or had) it, there are many people that have it and don't even know it. May you find the strength and support you need to conquer the virus, if I can be of support or help to anyone, you may contact me at my email address, I will respond asap. |
| Name: | Christy Price |
| E-mail address: | christyp1956@yahoo.com |
| Comments: | Just wanted to let you know your site is great. I am a Hepatitis C survivor, I had the virus for about 4 years,(that I know of) and I was able to defeat the virus with the interferon and ribovirin combo, it was a horrible experience, but after 2 months of a 6 month treatment, the virus was gone. I can't believe how much better I feel, now that I've slain the dragon(for the time being anyway.The treatment was not fun, however, if I had it to do over again, I would do it, as the side effects from the treatment were bad, but thats what it took to get over it. I now have the energy to enjoy playing and spending time with my grandchildren, prior to the treatment and during the treatment, I would have to nap during the day or I wouldn't be able to finish the day. Now I can go,go,go no problem and work 40+hours a week too.The virus is a silent killer, so many people have it and they aren't even aware they have it. There is a great support program provided by the Schering program(pharmaceutical co.that makes the interferon)they provided me with a workbook with tips about diet, family members, side effects etc. plus they have a nurse on call 24/7 that you can call anytime with questions or concerns. I won't elaborate any further until I hear back from you, but I would like to be supportive of fellow hep c victims as well.Please feel free to contact me at the email address I entered. I really want to express to anyone that may be anticipating doing the interferon treatment, that they will hear horror stories about the side effects, but the side effects of the treatment are easier to deal with than the effects of the virus. I was able to maintain my 40 hr a week job, only missed 4 days of work during the 6 months I took interferon. It is wonderful to not have to worry about passing the dreadful disease onto my grandkids or anyone else I love. I am hear for anyone that wants to discuss their dragon and issues with it. May you find the strength to continue on in the journey to fight this horrendous disease. Much Gratitud and Respect, Christy Price |
| Name: | Christy Price |
| E-mail address: | christyp1956@yahoo.com |
| Comments: | Just wanted to let you know your site is great. I am a Hepatitis C survivor, I had the virus for about 4 years,(that I know of) and I was able to defeat the virus with the interferon and ribovirin combo, it was a horrible experience, but after 2 months of a 6 month treatment, the virus was gone. I can't believe how much better I feel, now that I've slain the dragon(for the time being anyway.The treatment was not fun, however, if I had it to do over again, I would do it, as the side effects from the treatment were bad, but thats what it took to get over it. I now have the energy to enjoy playing and spending time with my grandchildren, prior to the treatment and during the treatment, I would have to nap during the day or I wouldn't be able to finish the day. Now I can go,go,go no problem and work 40+hours a week too.The virus is a silent killer, so many people have it and they aren't even aware they have it. There is a great support program provided by the Schering program(pharmaceutical co.that makes the interferon)they provided me with a workbook with tips about diet, family members, side effects etc. plus they have a nurse on call 24/7 that you can call anytime with questions or concerns. I won't elaborate any further until I hear back from you, but I would like to be supportive of fellow hep c victims as well.Please feel free to contact me at the email address I entered. I really want to express to anyone that may be anticipating doing the interferon treatment, that they will hear horror stories about the side effects, but the side effects of the treatment are easier to deal with than the effects of the virus. I was able to maintain my 40 hr a week job, only missed 4 days of work during the 6 months I took interferon. It is wonderful to not have to worry about passing the dreadful disease onto my grandkids or anyone else I love. I am hear for anyone that wants to discuss their dragon and issues with it. May you find the strength to continue on in the journey to fight this horrendous disease. Much Gratitud and Respect, Christy Price |
| Name: | Tarlene |
| E-mail address: | taralynn102002@yahoo.com |
| Comments: | Hi everyone, its been a while since I've written anything, but I wanted you all to know I started treatment yesterday 7/16/04!!! So far so good, hope the next 48 weeks are the same. Wish me luck! As always, good luck to all of "us" out there to slaying this dragon! I'll update from time-to-time. |
| Name: | Penny |
| E-mail address: | mcpen@copper.net |
| Comments: | I'm new at this, so really enjoyed all the info on your site. Excellent topics, although understanding it all is too overwhelming at this point. I'm genotype 2 and beginning interferon treatment soon so I sit for hours reading all I can Thank you. |
| Name: | Karen |
| E-mail address: | whosspecialme@bellsouth.net |
| Name: | sharron |
| E-mail address: | sharronlonguk |
| Comments: | I HAVE FOUND OUT SO MUCH JUST WANT TO SAY THANK U FOR GIVEING ME HOPE LOTS LOVE TO THE REST OF U THAT ARE FIGHTING HEP C. SHARRON |
| Name: | Barbara |
| E-mail address: | bdye@hotmail.com |
| Comments: | I'm near the end of a year long treatment and it worked, with God's help. When will my hair grow back, will my taste buds change back, too? I look like a totally different person (having taken a picture the day before my first shot and recently) -- I was shocked. Will my eyesight revert back to what it was? Is it o.k. to go in the sun and public pools (chlorine). When will I be normal again and not need meds for anxiety and depression? Thank you to whoever responds. |
| Name: | Jorey |
| E-mail address: | joreyr@prodigy.net |
| Comments: | Great web site! Am interested mostly in the nutrition and supplement areas. I believe I have had HepC for about twenty years. Tried interferon/riboviron (2000)but made it only about 4 of the six months. Enzymes started rising and was pulled off. I feel fine but had a blood test a few weeks ago and my enzymes are up higher than usual. Am scheduled to see a liver specialist soon. Wait and see. Thank you again! |
| Name: | Igor S |
| E-mail address: | igors@xrs.net |
| Comments: | Hi, just found that my dad is Hep. C positive, afther that info I started my web Browser ... to find more info about this, a whole library. Thank you for your spended time here, for concern of other peoples troubles, god bless you. Here I am telling my first thouts, thanks again. P.S. To say sorry for my english but disturbt as I am now I don't speek my language very well now. P.P.S. I would be gratefull if you contact me on the mail. |
| Name: | Sandra Bonnette |
| E-mail address: | cookie07141965@yahoo.com |
| Comments: | Found so very much information. Just wish we had this before my son was so very sick. April 4, 2004 he got a liver trasplant we are very grateful. I am grateful for the transplant but wish we could have healed him with the herbs befor getting so sick. The medication made him sicker than befoe |
| Name: | Jim Bryant |
| E-mail address: | info@liversociety.org |
| Homepage URL: | http://www.liversociety.org |
| Comments: | Hi We would like to do a reciprocal link with your site and ours www.liversociety.org Kind Regards Jim Bryant |
| Name: | Tina Felker |
| E-mail address: | nahaa52@yahoo.ca |
| Comments: | Hello, I am currantly trying to make up my mind about another go at hep c treatement. your pages are wonderful and have some much needed info in them, I would like to thank you for the privilidge of finding this site and much needed readind.I am a geno type 1 I was treated with interferon for 1 year 1997, then interferon with riboviran pills for 6 months a year later, it was rough.My liver specialist would now like me to try pegatron and I am scared, thus indesisive.once again thank you!!! Tina....nahaa52@yahoo.ca |
| Name: | joe |
| E-mail address: | rojobarnes@aol.com |
| Comments: | great site. been a firefighter for 26yrs. Had hep c for at least 12yrs. geno 1b. been thru the treatment (1 yr w/ ribo and interferon) it didn't stick. Luck of the draw. Am doing battle with my employer and the state of washington over a workman's comp claim on the hep c. If you have some advice or help would appreciate it. Take care and stay strong, joe |
| Name: | joe |
| E-mail address: | rojobarnes@aol.com |
| Comments: | great site. been a firefighter for 26yrs. Had hep c for at least 12yrs. geno 1b. been thru the treatment (1 yr w/ ribo and interferon) it didn't stick. Luck of the draw. Am doing battle with my employer and the state of washington over a workman's comp claim on the hep c. If you have some advice or help would appreciate it. Take care and stay strong, joe |
| Name: | jackie |
| E-mail address: | rainbow.mackenzie@btinternet.com |
| Comments: | i managed to get a lot of info which is hard to get in scotland |
| Name: | jackie |
| E-mail address: | rainbow.mackenzie@btinternet.com |
| Comments: | i managed to get a lot of info which is hard to get in scotland |
| Name: | jackie |
| E-mail address: | rainbow.mackenzie@btinternet.com |
| Comments: | i managed to get a lot of info which is hard to get in scotland |
| Name: | Don Felder |
| E-mail address: | donkriskor@cs.com |
| Homepage URL: | http://www.kriskor.com |
| Comments: | Thank you for this site. To date it is the best and most informative i've found. Excellent information that I will share with others. |
| Name: | Don Felder |
| E-mail address: | donkriskor@cs.com |
| Homepage URL: | http://www.kriskor.com |
| Comments: | Thank you for this site. To date it is the best and most informative i've found. Excellent information that I will share with others. |
| Name: | Don Felder |
| E-mail address: | donkriskor@cs.com |
| Homepage URL: | http://www.kriskor.com |
| Comments: | Thank you for this site. To date it is the best and most informative i've found. Excellent information that I will share with others. |
| Name: | Tom Croom |
| E-mail address: | tom_croom@hotmail.com |
| Comments: | I have enjoyed your website. I have 10 weeks of interferon treatment left. It truthfully doesn't seem like it is working, but I have been told by the "professionals" that current symptoms may be side effects of treatment. I believe that I will probably be looking for alternative treatments fairly soon and am interested in treatments that are recomended by certified health orgs.. I have little faith in snake oils and unverified statistics. Tom |
| Name: | martha dryoel |
| E-mail address: | dryoel@hotmail.com |
| Comments: | Hi! Well this is the second time around for me. I guess I did'nt know that much about the desease the first time around. I check the internet and there was'nt much there in 2002. There sure is more now. I don't know if the doctor will say its alright for me this time. I went back to my X and got it back. It sure does hurt to leave them behind. I acept that theres not much I can do for the ones that don't want help. They leave the room when I come in. I've already had open heart surgery years ago. I think thats were I got it. I am also a drug addict. I'm getting more and more comfused but still have hope. Martha Dryoel |
| Name: | martha dryoel |
| E-mail address: | dryoel@hotmail.com |
| Comments: | Hi! Well this is the second time around for me. I guess I did'nt know that much about the desease the first time around. I check the internet and there was'nt much there in 2002. There sure is more now. I don't know if the doctor will say its alright for me this time. I went back to my X and got it back. It sure does hurt to leave them behind. I acept that theres not much I can do for the ones that don't want help. They leave the room when I come in. I've already had open heart surgery years ago. I think thats were I got it. I am also a drug addict. I'm getting more and more comfused but still have hope. Martha Dryoel |
| Name: | D.WOLFE |
| E-mail address: | shootawolfe@aol.com |
| Comments: | I AM VERY GRATEFUL TO HAVE FOUND YOUR SITE.IT SEEMS THAT THE SICKER I GET THE MORE ALONE I AM,EVEN WITH A HOUSEFUL OF {NORMIES}.ITS NOT EASY AT ALL,PLANNING FOR MY FUNERAL AND KIDS FUTURES,ECT.BUT,ALONG WITH MY TWO BEST FRIENDS[GOD,MY HUSBAND]I WILL CONTINUE TO LIVE EACH DAY TO THE FULLEST,NO MATTER HOW HARD IT IS GETTING AND NEVER NEVER NEVER GIVE UP! |
| Name: | Tracy |
| E-mail address: | tracymitsu@aol.com |
| Comments: | Hi, my 32 yr old brother has just been diagnosed with chronic hep c. I found your web site a great source of information....tho I can't take it all in just yet because my head is spinning and I don't know what is going to happen. Thanks Tracy |
| Name: | John |
| Comments: | Thought I'd post you all up again. I'm halfway through Peg. treatment. Still undetectable but the Interferon caused my thyroid to stop working. Went on thyrox. about 2 weeks ago. Should help the energy level. Dr. took me off of Peg. for a week cuz I'm having some weird neuro. stuff in my hands but he doesn't really think it's due to the meds. I will say I feel a lot better off the juice for a few days. It kicks your butt some as well as the co-peg, but I've only gotta finish 4 and a half more months. Everyone.....keep the faith and don't give up. We can all kick this thing. Be good, stay clean, no alcohol or liver stressing drugs, clean diet, lots of rest periods and a positive attitude will do it! I love you all. John |
| Name: | Christine |
| E-mail address: | CRider@mts.net |
| Comments: | Hi, I am from Canada. I started treatment on Feb. 6/04. Pegetron and Interferon. One injection per week and 6 pills a day. I am still able to go to work but that is about it. I am nauseated all the time. I am Geno Type 1. It's hard to function. I hope it gets better. Thanks for the informative website. |
| Name: | Madalena |
| E-mail address: | madalena.bastos@netcabo.pt |
| Comments: | Long time since my last entry. Just to let you know that 6 months after the end of the combo treatment my blood results are 100% OK ! I hope this information is bringing hope and strenght to all of you that are in need of it. Madalena |
| Name: | Robert Milne |
| E-mail address: | Jaluta@msn.com |
| Comments: | I found out in 1999 that i contracted Hep C Genotype A Between 1994 & 1999, I was diagnosed with Chronic Liver Damage and have tried treatment of Interferon & Ribavirin. This failed and the doctor said to come back in another two years and hopefully they will have something new to try. |
| Name: | Eve |
| E-mail address: | monkey_see25@hotmail.com |
| Comments: | hi ,,hope all is well with u ,,found out 2 years ago i have hep c,,still can;t believe it..be keeping the faith/ |
| Name: | Eve |
| E-mail address: | monkey_see25@hotmail.com |
| Comments: | hi ,,hope all is well with u ,,found out 2 years ago i have hep c,,still can;t believe it.. |
| Name: | Renee |
| Comments: | Excellent information! Keep up the good work! |
| Name: | lacey |
| Comments: | good work! |
| Name: | Nancy T |
| E-mail address: | nansymarie@yahoo.com |
| Comments: | Thanks for the info and testimonies on your website. I'm 38 and was diagnosed almost 2 years ago and quite depressed about it. It's nice to be reminded there's hope and I'm not alone. |
| Name: | alice |
| E-mail address: | sheriffal@hotmail.com |
| Comments: | HEY EVERYONE, BEEN IN REMISSION FOR 4 YEARS. HAD GENO TYPE 1A HEP C WITH STAGE 3 LIVER DISEASE. UNDERWENT REBETROL AND INTERFERON. THERE IS LIGHT AT THE END OF THE TUNNEL. IF ANYONE NEEDS TO TALK JUST E MAIL ME. |
| Name: | alice |
| Name: | alice engelbrecht |