Thursday, March 20th 2008 - 01:40:33 AM
Denise Laskowsky
Joey, im really glade I found our web page. I was diagnosed 18 yrs ago.Car accident drunk driver,im 44 yrs old and the pain is intoerable and spreading.My kids tell me to stop being a baby.But its tough.Sorry for going on i just feel like no one understnds but thank you for sharing your story.+
Sunday, March 9th 2008 - 05:51:36 PM
Ray
I am so glad I stumbled upon this site, I thought I was the only one, my problem is a little different than yours but nearly the same end results. I hope you don't mind but I would like to give my story also. I was injured on the job several years back, since then I have lost almost everything near and dear to me. It all began with several failed back surgeries, I even had a lower lumbar fusion, where they remove the disc completely and fuse the vertabrae together, after several months with screws, pins, plates and other metal objects holding things in place, the day finally came to remove all the hardware. The only problem was that I was still in chronic pain, it seemed no matter what my doctor tried, I was still in chronic pain. First I lost my wife of sixteen years, she divorced me and took the kids, I still got visitation but that wasn't enough. Somehow I managed to move forward, if it doesn't kill us it makes us stronger right?? I was hoping anyhow. I moved forward, remarried and tried to start my life over. Finally four years later I convinced my doctor I was in too much pain to continue to try and work, he wrote me a work release, told me he could do nothing else for me and then he "passed me on" to a Pain Management Specialist. It seemed as soon as I received the work release my second wife wanted out, if I could no longer work, she could no longer stay with me. After several visits to my new Pain Management doctor, he decided to implant a Medtronic Morphine Pump. I think it was the best decision ever made, it took a while to get the right setting but now I do pretty good. I have had the pump going on eight years now, I still can't work, I finally got my disability so Medicare helps with the cost of the Morphine refills, but it's so expensive, after eight years I still owe the doctor over $16,500 on my part. It has been over eight years now, I'm still alone, I think sometimes about trying to meet somebody new, but I feel it's a waste of time since I can't work anymore. There are people in this world that form opinions based on nothing, if they only new how much pain we tried to live with, it's just so hard to explain to someone how much you hurt when you can see the disbelief in their eyes while you are talking. I do have a question for you Joey, could you tell much difference when your medicine changed from Morphine to Dialaudid? And do you know the cost difference between the to drugs???? If the Dialaudid is less expensive and works just as well, I may question my doctor about changing mine. Thank you for your site and good luck with your future, Ray
Saturday, January 26th 2008 - 01:17:02 AM
robin david hill
I too am gay, handicapped, 45 and pissed off. You are an inspiration to me. The doctors don't really know what happened to me, but the symptoms are stroke like. I was in the hospital for two months , couldn't talk or eat, was in a wheel chair for a year. They said that I was going to die, or never walk again. That was 3 years ago. But now I walk, talk, drive, eat on my own, but can't write well at all, have ataxia, tremors, and I'm typing with 1 finger and many mistakes. Western Medicine kept me alive, but Eastern Medicine is getting me well. My Accupuncurist has talked to me about doing a My Space page to cover expenses Medicare doesn't cover. I want to do Hyperbaric Therapy. I've come a long way but I have far to go. We help ourselves by helping others. And a higher power led me to your site. I am truly clueless as to how I found you. It just happened. I'd love to talk to you sometime if it is okay. Respectfully yours, Robin David Hill 404-281-3476
Thursday, January 24th 2008 - 07:21:10 PM
Charlene Isaacs
I went to your website and read it along with tears in my eyes and understand exactly what you are going through. I went to docter after docter and they told me it was in my head. I pretty much was a drug abuser. Never was anyone understood what I was going through. My family thought I was a drug addict from having to go to docter to docter to try and find something for pain..or getting them elsewhere. My family I believe still doesnt understand my situation with my RSD either. I understand exactly what you are going through Joey. They have also told me that I could possible have MS with this....So this living with RSd crucuial as it is...MS I coudnt even bare do believe that I could have that. Its hard for me cause I fell like nobody understands my situation and I feel like I have nobody, my depression is getting worse and I cant sleep. So if you would please take the time, when your feeling ok...to give me some pointers on how to live and not worry about the small things in life please write me. Thanks for sharing your story atleast I know that some people out there are just like me and has lost alot of there family members to where they believe we are just trying to get attention or are druggies. Thank you Charlene
Thursday, January 10th 2008 - 02:14:15 PM
Shelia
I happened onto your website by mistake and was amazed by what I read. I had no idea about RSD.You sound like a good guy and I hope all goes well with you.
Sunday, December 30th 2007 - 02:39:00 AM
hink
yuor story is almost exactly like my experience except mine was in 95 its good to know we arent loosing our minds i was in a high speed car accident my feet even though there was nothing physically wrong with them i had a broken hip. ifeel your pain with your siblings, but luckily i have very supportive parents my biggest problem now is that i will soon loose my house because of my inability to work regular hours even though it keeps my mind off the pain, there is only so far i can push it,hang in there a cure has to be there hope to be around to see it
Monday, December 24th 2007 - 02:09:30 AM
Russell White
Joey, I too have RSDS. It has been with me for almost three years. It started in my left knee, moved down to my foot--then mirrored itself in my right knee and foot. It has spread to my elbows and now my hands. I also have lumbar spinal stenosis and Osteoarthritis in my back and joints, Somedays I cry myself asleep before my Ambien kicks in. My partner of 12 years has been taking goo care of me--He is a saint to have to put up with me. I am 57 and Stan is 67, We have three little dogs, a cockapoo, toy poodle and a miniature poodle. I am working full time again--I am the Sr, Technical Designer for knits at Coldwater Creek up here in Sandpoint, Idaho. We moved back here again a few weeks ago. I was with Coldwater Creek before, left and they asked me to come back--so, we said yes. I have been in the fashion industry all of my life, Please write when you get a chance, It would be nice to connect with someone with RSDS, All the best and have a wonderful holiday, Russell
Wednesday, October 10th 2007 - 08:11:53 PM
MELISSA WOLF
Looking for info for my mom. Not alot out there except generic info. I am trying to learn what helps and what does not help. Trying to find info about her bine marrow being "displaced in her hip and shoulder. This all started after a really bad accident on thanksgiving of 2006. She was severly injured. Her leg blew out from the inpact of the car hitting her side. thanks for the info links you provided.
Tuesday, October 2nd 2007 - 10:33:39 PM
Kandi Morgan
Hey, I too have been diagnosed with RSD. ABout 5 weeks ago, my doctor started weekly infusions of Ketamine. So far they seem to be working wonderfully. Just thought I would let you know. Thanks for sharing your story.
Tuesday, August 21st 2007 - 03:31:34 PM
jamie lena
i suffer from very painfull rsd that is in my left arm up into my head then down my spine it also affects my shins and feet which swell up most of the time i am tired of doctors and feel close to giving up totaly
Thursday, August 2nd 2007 - 04:29:46 AM
paulene
thank you for sharing your life... your thoughts, and hopes. I have RSD... and life has changed so much. It's difficult to "celebrate" me at this point... but it will come. Be strong, we well, and thank you again for sharing your life....... north
Tuesday, July 17th 2007 - 09:37:39 AM
Joey* (Site Owner)
G'Day All*, I know there are several of you that like to read this on occasion so I needed to just let something be "known". Recently, one of the most wonderful women of my "online support group", at Yahoo, had read the book, read the obsurd message posted my my "by blood only" - brother, and she felt compelled to write to him. For those of you that have read my story online of living with RSD, it's made clear that I am not "welcome" in my "by blood only" family. I have mentioned how it's been since my RSD (full body & organs) diagnosis, along with Avascular Necrosis (knees), that I was "dropped" by the "Lee family" of Hazleton. Well, by response to one of thewritings sent to and from "Nathan", on his last message, I actually got the "validity" I needed to finally put this (them) ALL behind me, once and for all. In the last message he sent me, after I did respond to a reply he sent to the group member, and a Dear Friend*, he stated that I was "pitiful and lazy", that I needed to find a JOB and also mentioned that by requesting "donations", which I used to have posted on the main page just to assist in paying for the maintenance of this site, that I was even more "pitiful". Just for the "record", three people have only ever even made a donation has never been in a "blatant" spot on any page, but more "hidden" towards the bottom and mainly on the main JoeyLee.com page. If, for any reason, that request, if seen, has ever offended anyone*, PLEASE accept my apology. This site is, and NEVER will be, in ANY way, for ANY type of profit. Thank You*! JoeyLee*® (From the Scranton Lee Family* - just myself, David* and our beautiful daughter (cat) Ashley*! :-)
Saturday, July 14th 2007 - 12:37:35 PM
linda barbee
Joey, your story really touched my heart. I had cervical surgery on march 8th, 2007 and woke up after 4 hrs of surgery with a paralyzed left hand. there was nothing wrong with my hand before being put to sleep. I am going to the best Dr. ever that's trying to help me as I now have swelling, stiffness and discoloration in my left hand. For those that say it's all in our head need to read and understand RDS a little better. I admire you for your will to live as you seem like an incredible person. Thx again for sharing your story and hopefully one day there will be a cure. Linda
Thursday, July 12th 2007 - 09:30:37 AM
JO-ANN
my prayers go with you. THANK YOU for sharing your story. You are beautiful person. I wish you peace and happiness, and love!
Monday, February 13th 2006 - 08:39:06 PM
Yana Links
Respect to admin! Your site is nice.
Wednesday, February 8th 2006 - 08:24:13 AM
Christine
Hi Joe My daughter just sent me your web site. She herself has RSD and will be contacting you,she is a wonderfull girl but RSD has greatly changed her life too,I think she will get a lot from your web site. Keep up the good work and you sound a like a great man with a lot to offer people. Yours christine
Tuesday, January 31st 2006 - 07:09:36 PM
CONNIE MIRACLE
HANG IN THERE JOEY AND GOD BLESS YOU!
Monday, January 23rd 2006 - 12:52:18 PM
Cathy Denney
It's always great to hear someone's story, to validate what is happening with myself. I have been diagnosed with RSD and proud to say it only took a few months and the luck of finding a great rheumatologist who immediately recognized my symptoms and sent me to the best pain management doctor around. I am still in pain from day to day. Some days better than most. Still not working after 4 months, and not sure when I will. But glad to know I am not alone out here. Thanks for taking the time to tell your story.
Wednesday, January 4th 2006 - 02:57:52 PM
richie
Well, my oh my Joey -i had no idea that i was signing up for a Much more interesting site than originally planned. And boy am i pleased that i've found you! i have had chronic pain for more than 8 years now following an op' that - though succesful *for my left arm* has left me with a pretty bad condition in my right arm. i had bone taken from my hip and placed between discs in the neck to try and alleviate internal shocks in my l' arm caused by abnormal compression/collapsing of my neck discs. my l' arm now operates fine but i came round after the op' to find there was something distinctly wrong with my right arm. i had mad fuzziness whilst i was on the morphine, but when i came off that......!!!! Cut to the chase - i now have Hyper Parasthaesia in my right arm and it constantly burns like F***. i can't remember the last time i had a decent nights sleep and my medication regime is crazy. yet, like you i'm finding a different way of looking at life - and yes, the computer and the 'net are real door openers. Never thought i'd learn how to navigate it all. - still don't know how to get a photo on screen. ha, but I'll get there. I'm signed up to a web site here in the UK 'pain support' and that's been of enormous help - but to have you as one of the boys where i can discuss issues that really aren't open for all would be great. i'm right handed if you understand... hope to hear from you sometime. Bless. Richie Rich (my nickname)
Monday, January 2nd 2006 - 12:58:57 PM
linda
I too have rsd almost a year now. they caught it early and i have had several shots. but no one ever told me not to put ice on my hand or stay out of the cold weather. i am a union ironworker and i work outside. i though it was in remission until this winter. now it rears it ugly head once more. i am to under go another serios of shot, but i know that life as i have known it is over.
Friday, December 30th 2005 - 10:32:03 PM
Wendy
I know your pain... RSD is an invisible condition, a condition of exclusion. I have been stricken for a little over a year. I consider myself lucky to have a supportive family. Your brother and other family members should be ashamed
Friday, December 16th 2005 - 02:52:10 PM
Verna
Hi Joey, I ran across your page while looking for articles on chronic pain. I've been searching for answers and finding very little information. I doubt that I have RSD, but I found it comforting that I am not alone in my pain. Thank you.
Saturday, December 10th 2005 - 07:36:56 AM
Francesca Lipson
Like you, I hurt myself at work in 2002- to make a long story short I felt something pull. The pain got worse, I was litterly bed ridden for over 6 months and had family and friends taking care of me. Doctors, like you went to many, and found nothing wrong, but where is this exchruting pain coming from that I needed to DIE!!! They do look and treat you like your nuts!! This CRPS affects my upper body right up into my head, 24 hours a day it never ends. I went from an active social person to mostly being home, and yes, friends drop like flies. I'm soon to be 37, on social security disability, who would of ever thought that my life would of been like this? My husband, neil has been great, but this has been very hard for him to see his wife go from one person to another, not to mention the finincial burden this has caused us. Oh, and dont let me forget about WORKERS COMP. they closed my case not beliveing what had happened, that dragged on for 3 or so years. I do take meds, 4 different kinds daily but the pain never really goes away, it subsides it a little bit, then I'm able to do little things. I finally found my doctor, Dr. Marks from Westchester Medical Center, who Is a proffessor of Neurology there and gave me my diagnosis. There are millions of us out there with this dibilitating disease and unless you find the right doctor you will go untreated. I now try to make the best of my life and enjoy the little things, they make me very happy, I also try to live my life with no stress, that only makes things worse for me. There is much more to my story but I think that this is good enough. Thanks for your web site I know that I'm not the only one. Sincerely, Francesca Lipson Trying to live pain free in New York!!!
Monday, December 5th 2005 - 02:40:14 AM
ANESSA
joey, i think you are a wounderful person,keep up the good work.i was injured at work, was bit by a cat over a dozen times on my left hand, i spent 9 days in the hospital and 4 surgry's later i to have rsd, i am fixing to have the pain stimulator implant, my left hand has no feeling or use and i am in jobst glove 24hrs a day, i know the pain is never ending.i have had severe depression,and unable to work,my life will never be the same. i have had to learn to do things differently. it is a disease that takes controll and you have to fight every day to keep going. it really changes your life. and you see i deal with workmans comp have been for over 3and a half years. and that to is not easy the emotion and pain your body gose through is very imbearable. but now that i have seen this web site, i know i am not alone and just knowing someone else out there has this horrible disease makes me feel not alone and it is great to read the stories.and mentally it helps a lot. god bless you and continue to do great.you are helping people with rsd in many many ways.thank you so much.
Friday, December 2nd 2005 - 07:29:17 PM
Stephen
I have been diaged with RSDS this year but I believe that I have had it for at least 3-4 years. The things that I am learning - it wasn't in my head after all, my feet really are different colors, the reason I can't remember things, there is a reason I can't sleep at night - all has to do with RSD. I will say that I am one of the lucky ones in that my Drs keep trying to find out what the problem is. With out this, I still would not know. Find a DR that you can trust!!
Tuesday, November 22nd 2005 - 11:17:00 PM
Sherri Coats
Thanks so much for your story. I am 31 and after my third back surgery I am looking into the pump to deal with chronic back pain. After being passed off and blown off by Dr.'s you start to wonder if you're nuts!!! I understand that your family is out in left field, it sounds like mine. My grandmother thinks that when I say that she's 80 and gets around better than me it's a joke!! ( I wish ) I am going to check out some of your information because it is even hard to talk about the pain that has turned your life upside down. But I have to laugh instead of cry... so thanks for your article!!! Sincerely, Sherri
Thursday, November 17th 2005 - 04:32:24 AM
Angel
My favorite site!
Thursday, October 27th 2005 - 05:26:38 PM
wendy barton-o'neill
Heyho Joey. Thanks for having the courage to start this website. I also have chronic regional pain syndrome, i have gone on to develop Fibromyalgia, i dont know if they are connected, but my gut feeling says the CRPS was like a red flag waving to the beast that is Fibromyalgia, which took up the challenge and started wrecking havoc in my body. I was truly saddened to read how your family have reacted to your pain. I wish it was possible for people to walk in our shoes for a day, they would be horrified. My CRPS started with a fracture to my ankle, another fracture to the same ankle and 'corrective' surgery, (which was really butchery) and a very persistent infection caught in the operating theatre-hey presto! ever increasing pain and disability. I think it is hard for people to understand other peoples pain, especially the cruel pain we suffer, how do you explain it? im not sure, but we know its not in our heads, i think when we suffer this much you end up taking a long hard look at yourself, i know i have, i have decided im not nuts, just bloody unlucky, and actually pretty strong mentally, if i wasnt i would have ended it long ago, or had a total breakdown. I havent, im coping, (ok, by the skin of my teeth some days)but hey, no-one ever told me it would be easy, on the other hand they never said it would be this flaming hard! with love and respect, Wendy xx
Wednesday, October 19th 2005 - 06:49:54 AM
janet
Thank you for giving us hope. I have had rsd for nearly ten years and am still fighting every day. If people could live a day like ours they would understand the torture and then they would believe. Your story is inspirational and your family is missing out. I lost my mother 3 years ago she never gave up on me and I'm not giving up. I have some family support and I have also lost some family and friends. Keep up the wonderful work you do and God bless you.
Wednesday, September 28th 2005 - 01:48:10 PM
De
I get it, They cant,- because they just cant. You have family of choice. Be greatful. I do as well. I hope there is more to your story than just what is here. There have been huge strides in RSD.
Tuesday, September 13th 2005 - 11:49:31 AM
Dee Joseph
I know what u mean! Not even doctors understand this disease, how can our family, friends, and co-workers. I was initially diagnosed with RSD in 1992 when I broke my knee. It calmed down, but last year I was in a car accident that woke up this "sleeping giant". Hang in there! & keep up the good work of getting the message out.
Friday, September 9th 2005 - 01:04:30 AM
dan servello
i read some of the letters. what is R S D thanks dan
Tuesday, August 9th 2005 - 11:52:33 PM
Shawn Barker
I didn't read your entire first page but enough to understand what you are going through. You see I too have CRPS and I fully understand. I am in search of support groups. I will read your entire site in a few days. I went to the doctors office yesterday and I had my pain pump refilled. The nurse who refilled it gave me a bolus (I'm sure you know what that is). After the bolus she forgot to set my pain pump up for my regular doses of morphine. In essence she completely shut down my pain pump. I went to bed last night about midnight. I awoke about 3 AM and I was experiencing withdrawl symptoms. At the time I didn't know that the pain pump had been turned off and I had to wake up a friend to take me to the emergency room where I was diagnosed with the stomach flu. I was vometing and had the runs at the same time. I felt so bad that I wished I would have just died. The pain in my feet was so bad that I couldn't hardly walk. This morning about 10 AM my doctors office called me and told me what had happened and asked me how I felt. I told them that I had gone to the hospital etc. They told me to get to their office asap. I had to wake my friend back up to drive me 45 miles to the doctors office. The doctor gave me four boluses in a row and set my pain pump up for normal operation to recieve normal doses of morphine.I didn't feel better until 5:30 PM. I'm now considering hiring a lawyer to sue the doctor and nurse. What would you do? I am just trying to get a opinion from someone who understands my situation. Feel free to email me anytime. It may be a day or to before I respond but I will get back to you. Thank you, Shawn Barker
Sunday, July 10th 2005 - 09:38:43 AM
JenniferSellen
I have been living with RSD/CRPS for about 5 years and have been quite welle suported by my family and friends. I hope that your life is all that you want it to be. I just realized the other night that I missed dancing, I had not thought about that nor had I any desire to do so, but it really started to bother me. How strange is it that I really could care less about that before but now that I can't do it Iwant to so badly. I think that tha only person who is not being suportive is my 14 year old Daughter, she has decided that I am just going to die so she doesn't want to love me, and boy is she good at not loving me. I can understand your delima, but you have David, and one person can make such a differance. Good luck with your life and live it to the fullest. Jenn
Friday, May 27th 2005 - 01:59:47 AM
Evan Baldwin
Hello, about 2 years ago my wife was diagnosed with R.S.D and let me tell you man it was hard to deal with. but knowing what i know now ,you have my support 100% .my wife is preparing to get the spinal chord stimulater and is not to happy abouy it . the changes ive seen her go through is unreal not to mention the amount of pain she deals with constantly. my thoughts and prayers are always with you and dont ever give up the fight we must pioneer the way through this nasty thing and together we will beat it thanx for the site and keep the faith!!!!!!!!
Tuesday, May 24th 2005 - 12:09:47 PM
dusty
hi im 23 and my mom has RSD.She had fell at work and broke her wrist.She was getting comp for a lil while cause of the brake but then we find out she has this thing called RSD.No one knew what it was.We talk to the doc about it and they explain to us.Comp stop her med's,money everything cause they are tring to say that it wasnt cause from that.The doc's say yes but they have to go into court now cause there fighting for her.But the thing is they wont perscribe her with ne med's in the time being.The doc says its a slow process untill this past friday we find out that its moving to fast and that shes not going to ba able to walk soon, it already reached her hand,leg,foot.Now the docs are trying their best to get this surgury if comp lets them if not the RSD is moving to fast going to her heart and lungs.Everyone is praying shes only 50.Its getting worse she bumps her self on exadent and she bleeds.
Tuesday, May 17th 2005 - 05:10:54 PM
Shawna Jacobs
Although I truly wish this diseases did not exist it is nice to know I'm not the only one challenged with RSD. The scary part is not knowing what the future holds. I'm hoping that we will all see a cure in the near future. Shawna
Friday, May 6th 2005 - 12:16:46 AM
Rev. Marilyn Lashley
Thank you for your story...knowing that others walk the same path gives one hope...Blessings.
Wednesday, April 27th 2005 - 12:02:28 AM
Nita
Hi, I was dx with this awful life changing RSD over 2 years ago. I am presently waiting on approval from my insurance company for implantation of a neurostimulator. The trial was great! My husband has been my life saver along with my children and grandchild. It is so sad that we live in a world without compassion, even from our own families. My prayers are with you.
Friday, March 4th 2005 - 02:45:02 AM
Kimberly Sebold
Dear Joey Lee, I enjoy the way you have your web site designed,I was just scanning around one night and accidentally came across it.I don't realy believe in accidents in life,only coincidences.I have RSD also and have had it for 8 years now,it is a "coincidence" that I got my RSD on the same day as you did, only a different year Feb.18,1997. I too had a bad childhood which involved a great deal of mental and physical abuse,I know where you are coming from Joey and I am sure visa-versa.You seem like a very caring person who really wants to help others as well as yourself,keep up the great work! I'll try to stop through your site again sometime,right now I am going through many tests and trying new meds. God Bless You, Take care, Kimberly
Tuesday, February 15th 2005 - 04:55:42 PM
Debbie
hoping one day their will be a cure
Thursday, February 3rd 2005 - 08:32:23 AM
Sandra
Thank You. In the short time I have belonged to your support group I have gotten the feeling of belonging. The concern and caring you show everyone is truley a blessing. No other support group has made me feel like I am part of a special family, like yours has. Gentle Hugs Take Care and God Bless
Monday, January 24th 2005 - 10:50:37 PM
sandy Higgins
I sent you an email! I really enjoyed reading your story. I too have RSD. Just went to an IME. How upsetting! I just got a copy of the report from my lawyer. He claims I do not have RSD. I have 4 doctors that confirmed that I do. I am so up set with how much he lied in this report! I go to WC hearing in Feb. I was recently approved for SSDI.I had no problem with their IME? Any in put let me know. These IME doctors need to take some courses on RSD!!!!!
Monday, January 24th 2005 - 09:19:53 PM
Nicole
Your story and mine cross paths in many ways let me begin with the fact that I have RSD. I also had reconstruction of the abkle and ligament surgeroy those were succesful but the pain was still there I was told "it was in my head and the Pain was Ludicris" I had those surgeries last year in March. Since Then I was referred to a Pain mngt Dr. and he has done 3 lumbar blocks a Temporary Morphine Catheter Pump. And he also is trying to persuade me to get another pump, then go for the Permant Implant of the Morphine pump. I am very hesitant about the Pump BC I can not handle Morphine alone. But I know what you mean also about people coming and going in your life with this disease, My life partner Jonelle is the only one who has Faithfully stuck by my side. She and I have been together for four years and she has been there for all the tears,ups,downs,goods,and bad days. She understands, Supports, and most of all loves me UNCONDITIONALLY. Like she said once before "when you broke your ankle I broke mine too." I feel soo bad that her life stopped for me. We you use to have such an active Life style. Not no more. Bowling, Jogging/Walking a few miles, Riding bicycles, Hiking, Dancing/Clubbing, How a Bout just walking without a cane or how about just standing longer than 5/10mts without PAIN THAT RAIDITES UP AND DOWN YOUR LEG...Or having to take medicine that sometimes makes me sooo MOODY Jonelle deserves an automatic spot next to St. Peter up in heaven....Bc I can Be NICE one minute and the DEVIL the next...and its not me its the Medications as you know, I only wish they had one set medication for RSD or one set treatment. well I hope I dont bore you to death with my story but we too are from phila, pa. So if your interested in talking some more please email me. Me and Jonelle read your story and it was great to know there are other people out there like me, and younger. Most of the percentages of the people are older. I have a grandfather who has RSD. He to had a slip and fall and fractured some bones and then got RSD like me but he has had it for 10 yrs now. But Im looking forward to hearing from you...Also your story brought tears to my eyes. --Nicole--
Thursday, January 13th 2005 - 09:26:40 PM
PAULA
I'LL PRAY FOR YOU. WHAT A HORRIBLE THING, FOR YOUR FAMILY TO ABANDON YOU. I'LL PRAY THAT YOU FIND PEACE- PHYSICALLY AND MENTALLY.
Monday, December 27th 2004 - 09:15:28 PM
Carlton
Greetings. I read your story and relate to it in parts. I have RSD ... diagnosed one year ago after an nerve injury. The suffering is unspeakable and pushes me to the brink of destruction or insanity. The my medication adds to the problem. For one, it has little effect and yet it is so powerful that it robs me of "life" and energy. Everyday is a battle. As for my experience with family and friends, unlike like you, I have found everyone to be very helpful and supportive. I give God thanks. Not having the same family relationship (or lack there of) as you do, I cannot imagine what its like to feel abandoned. I hope that somehow they will come around to seeing the errors of their ways and make atonement in some form. Just on a hunch; Could it be that with you being gay is the reason behind their rejection of you? Unfortunately, we live in that kind of society and that should not be overlooked. Best Wishes, Carlton.
Thursday, December 2nd 2004 - 11:49:49 PM
Debbie
Wound up in Hell with RSD last year after a horribly botched back surgery.Now I am perm. disabled, in excruciating pain and looked at like a drug addict when i go from pharmacy to pharmacy to try and find my meds. My RSD is slowly spreading from right side to left. I was told oh it will go away in a yr to 18 mo's.
Wednesday, November 10th 2004 - 05:59:14 PM
matt
matthewstanfield1112@yahoo.com
Joey, I happened upon your profile on OutinAmerica.com and was caught by your intense and lovely eyes. I posted a comment to your profile. Just read thru your website. Broke my heart. I went thru a 6 month depression a little over a year ago and had to be hospitalized in a psychiactric hospital --- I thought that was the worst I've gone thru in my life. ...then my life partner of 10 years decided we need to end our relationship. ...this is much worse than that depression. Anyway, as I read your courageous battle with this horrific disease I realized ---- I got it lucky. My heart, positive thoughts and love go out to you and David. Hang on to hope. Hang on to David. And, please, hang on to life. I had never even heard of RSD until I read your website. Sending loads of positive thoughts/energy to you and David a pal in Boston, matt matthewstanfield1112@yahoo.com http://matty03.blogspot.com/
Sunday, November 7th 2004 - 06:32:28 PM
Vickie
Hi Joey, I just wanted to tell you i hope you keep your head up and continue to go forward with your life. Do not allow anyone to put any sort of unhappiness in your life or mind. Just as you and David have decided to go forward for your health and happiness, u must go forward in your thinking as well. Who cares what others say, i say "walk in my shoes". Only then can one understand. We all have choices and i try to make choices daily to not allow anyone to stress me or allow them to "get to me". Im a heart patient and i have chosen to live my life without hatered and anger or resentment in it. We cant controll others but we can ourselves. Take care Friend and my best to u and David and your life together. :) Vickie age 50..
Tuesday, October 5th 2004 - 11:46:43 PM
Charles E. Brady
I have had RSD for a year now. I experienced the doctors telling me, "It's all in your head" and I didn't think I'd ever find a doctor who would take me serious and test me until they found out what was wrong with me. It started in my left leg and then spread to my right leg. After intense physical therapy, I am able to walk with a cane, however I have recently been told I am most likely at my best I will ever be. They (my doctors) are considering me for a pain pump implant. I'm worried about this step, but I'd do anything for pain relief. Thank you for your website. I have no support group in my area, my wife and three children are supportive, the best they can be, however they do not understand what I go through on a daily basis. Chuck
Tuesday, August 31st 2004 - 08:40:07 AM
cindy roy
i know how you feel in april of 2004 i was diagnois with rsd.in feb 2004 i dislocated my right elbow at work.it got worst rather than better.the pain the swelling,throbbing,arm turning colors,but the cronic pain is the worst.i'm still learning about rsd.recently its moved to my left arm so now i have it in both arms.it has changed my life completely.its changed my life with my boyfriend that i have been living with the pass 2 years,my friends,my family,just wanted you to know your not alone...take care.....cindy
Saturday, August 21st 2004 - 10:24:42 AM
Pam
Hi Joey I am a 23yr old girl that deals with the same thing you do every day RSD. It took them 2years to diagnose it so I understand the pain and frusteration you are going through. It breaks my heart everyday knowing I and so many other people have to deal with it. Thanks for your story
Thursday, August 5th 2004 - 11:11:46 PM
Cheryl Hawley
Thanks for your inspiration, Joey. I too, have lost my family and most of my friends. Most of my friends are nurses as well. I do have a wonderful pain management physician, but have only had 3 pain free days in 4 years. I live in Clearwater, Florida, and there are no support groups here. I have never felt so alone in my life. Most people just think that I'm a drug addict. Any info that you can suggest would be most helpful. Sincerely, Cheryl Hawley
Monday, July 19th 2004 - 12:30:42 AM
Denise
Hi I am 36 years old and have been dealing with RSD for 7 years now. My heart goes out to those who have to live with this horrible pain. I have a drug infusion pump and I also had a spinal cord stimulator and both worked well. The last 2 years I have been trying to get a staph infection cleared up and finally did and then got another one so they have taken out the stimulator just last week and I am back on so much pain. It had taken away 80% of the pain away out of my face and arms and now I have it back and have no idea what I am going to do. I have tried drugs, nerve blocks and with there was something they can do. I cry everyday. If you have any ideas or know of great doc please couldyou let me know. Thank you so much and my heart goes out to you.
Thursday, June 24th 2004 - 02:26:33 AM
Michael
Nice Job, RSD medications limit my thought process at this time but I needed you to know that we all feel your pain through your writing. My family has provided mixed support but at least my wife is still at my side. She is the only reason that I go on each day. Good health to you.
Thursday, June 3rd 2004 - 06:47:55 AM
Joey Lee
Well well... As I do not usually comment in my own address book, I thought it necessary just to tell you ALL that the below "comment" is, IN FACT, from one of my, "oh so wonderful", although former - Brothers, my Big Brother Nate. As I have mentioned on my site, the support, or lack thereof, from my family is nonexistent, in fact, this is the first time I've heard from anyone in my family in over three years now, anything... What can I say except, well, at least they are "checking up" on me. That's a bit more than I can say for myself, as I have found it best to keep my far distance from that "Family" of failures... And Nate? Probably the biggest, maybe second, next to one of the others... I could have simply deleted this as soon as I received it via Email; all comments come to my Email as they are signed. But, as true testament to what I claim on my website about "them", I'd say Nate has certainly just let myself, and everyone else know, it's simply the truth. Back to My Life... Joey*
Wednesday, June 2nd 2004 - 09:22:05 AM
Your (former!) brother Nate
What a crock of shit.. Get a life dude.
Sunday, May 23rd 2004 - 05:06:57 PM
Carol
Hi Joey, Sorry we had to meet under these circumstances. I, too, have RSD and have had it for 10 years now. It is a most horrible disease and I hope one day doctors will be willinng to listen to their patients. It is good to see all the new web sites poping up trying to help and inform others. Ten years ago I sure could have used all this help and info. I, also have a web site,but it is not completed yet. If you would like to visit just go to www.livingwithpain.net. I don't have agreat deal of stamna now so I do a little at a time. Wish you well and keep up the good work. Carol
Thursday, April 22nd 2004 - 11:16:45 PM
Melody
Thank you Joey for sharing your story with me. I was diagnosed with RSD 8 months ago in my right foot due to a injury that took place at work. I am very stronged will person and very independent but there is days that I sit an cry like a child because of the pain, and I too have a TERRIFIC family and friends and fiance that help me through my low days.I am learning how to calm my nerves by meditating and releasing my feelings.Thank you again for all the information on RSD.Take care, and God Bless those who are in pain.
Wednesday, February 11th 2004 - 03:40:31 AM
Janelle Dalstra
Dear Joey, I to have RSD but many other diseases to. I was a Financial consultant of twenty years. But on the evening of Sept.1997 I came down with unbelievable pain in my right shoulder. After two nights of this and two trips to the ER my shoulder was completely paralysed and layed open like I had a stroke. After many tests with a Neuro- surgeon they found two blowen disc's in my neck spinal cord damage and Arthritis. None of these issues caused the paralysis in my shoulder but it began the begining of nine surgeries in my neck and back in a three year basis. The pain spread just like yours, down my legs, in my feet and in my back. I was put on narcotics for pain and then they began a battery of Rheumatology type tests and found I had very high levels of Anticardio Lipin Antibodies, a Autoimmune disease that cause Lupus like symptoms and usually does not stand alone without accompaning a other major Auto immune disease. It just so happened to have taken five years to finally show up in the blood stream. In 1999 after a six segement lumbar operation my tongue went paralysed and every one thought I had a stroke on the table, but I did not. Another attack to the central nervous system from at that time they did not know. And yes I was accused of being mentally ill. One doctor who I would like to take his liecense from told me he would not treat me physically until I admitted I was mentally ill. But refused to pursue any more tests or specialists even if I did,. He refussed to talk with my family. I thought if I was as mentally ill as he wanted me to think my family members would have noticed these kind of behavors. He refussed to even let them in the room. He also told me all the other specialists I had met with agreed with him. so I contacted them, and not one of them had even talked to the guy, and would wright a letter stating so. Then to make matters really insane my HMO company told me if I changed doctors one more time they would take my insurance away. They made me sign a singular contract special for me seperate from the group policy that no where in the contract did they refuse us a limited choice of doctors over a specified period of time. The state wanted to get envolved, but I knew if I would let them, for the time I would have no coverage and I could not afford to go down that road. I was delighted the following year my company changed to a PPO. I am now on Social security completely disabled in chronic pain all day. I recently had a EMG done because the pain had gotten so severe in my feet I couldn't walk. The test reveled Chronic inflammatory idiopathic demyelinating polyneuropathy. The immune system is eating away at all of my nervous right down to the axon. I'm in big trouble. In 2001 I had cancerous cells show up on my cervics so I ended up with a Hysterectomy Rectocle and a cyctocele all at the same time. Two months ago the Cyctocele was repeated because the previous doctor didn't do the right job in the first place. After my Hystectomey I went into menapause and could not walk all the same time because of the pain in my legs and feet and ended up gaining 100lbs I'll never get off in this condition. Your absolutely right there are days I don't even want to exist. Now that I'm fat my husband does not find me sexually attactive so we haven't had any intimacy in three years. You can bet were far apart. My two wonderful boys that are in their twenties don't come around much Mom's a drag, and not fun anymore. We bought a house on the lake six years ago thinking they would be pleased. Were only thirty minutes away and I rarely see them. My husband is a truck driver and he's gone most of the month. so I'm alone most of the time. And the people who really loved me unconditionally died early in their lives. My Mother fell down my bacement stairs doing my laundry while helping me with my Mother inlaws furneral. so we ended up in having two that week. My father who I also adored had a stroke a year later from the trauma I took care of him in our home untill he died two years later. It was like taking care of a stranger. It was very hard to do. There's so much more I could write a book of triumpants and tradgedies and it could be a best seller. But I know exactly how you felt. Got to go now catch later. Janelle Dalstra
Thursday, February 5th 2004 - 01:02:46 PM
Pam Fraijo
I too have RSD. Upper right extremity. Suffer from migraines, unable to use right hand to write(I'm right hand dominate)and the swelling still gets so great that I I have drainage from my right breast(explained to me as a route of least resistance. While going through voc rehab I developed a blood clot in my right leg from sitting in class all day. Now I'm in a real pickle. Can't write - Can't walk - Can't sit - the pain is overwhelming. I haven't seen my begining yet.
Thursday, December 4th 2003 - 12:59:30 PM
Kelly Zientek
Great to be back in touch with you again!
Thursday, November 13th 2003 - 04:02:50 AM
Mr. Graham.H. ROBERTS
I have had to live with Chronic Pain now for 27 years and after being trialed on evey know Medication for pain Worldwide I am stuck with Morphine Injections numerous operations have all failed. The excruciating pain that never goes away is only eased by Morphine injections oral medications don't work same as patches. This leaves me 2 choices fight for increases of Morphine when necessary or seek out Euthinasia a real great choice No quality of life and a continual battle for increases of Morphine as Doctors are against using it what does one do when they are stuck with having only one medication that works
Friday, October 24th 2003 - 11:03:51 AM
JD Walsh III
I was one of the lucky ones. I was diagnosed with RSD in my left arm in 1992, after a lifting accident. My neurologist prescribed stellate ganglia nerve blocks, and they actually worked. I regained the use of my arm and today am functionally normal. Thank you for sharing your story, both with the lucky, like me, and those who still struggle. Your hope brings hope to those who need it most. Right now I am struggling to come out with my bisexuality, but knowing what you've struggled with helps me realize how much strength I have. Thank you.
Thursday, October 16th 2003 - 03:58:50 AM
debbie
hi everyone,i to am still looking for a doctor that knows about crps2,i've only had it for 2 years but went through all the stages very fast.i have it in my right upper extreamity from the neck down and left side involvement to. unfortunatly i'm irreversable on the right side but holding out hope for the leftside.my tissue and bone is gone and am fused in all joints on right side which i could probably handle if not for the pain,migrains etc.thanks for having this site it's nice to read about others in the same boat,it gives me something to do to break up my day.if anyone would like to e-mail me to talk by all means feel free.[we dont sleep much us rsd'ers]
Thursday, October 16th 2003 - 03:57:44 AM
debbie
hi everyone,i to am still looking for a doctor that knows about crps2,i've only had it for 2 years but went through all the stages very fast.i have it in my right upper extreamity from the neck down and left side involvement to. unfortunatly i'm irreversable on the right side but holding out hope for the leftside.my tissue and bone is gone and am fused in all joints on right side which i could probably handle if not for the pain,migrains etc.thanks for having this site it's nice to read about others in the same boat,it gives me something to do to break up my day.if anyone would like to e-mail me to talk by all means feel free.[we dont sleep much us rsd'ers]
Wednesday, August 6th 2003 - 12:04:40 AM
Shari Utter
Hi Joey, I am so sorry to know you also have RSD, Thank you for your strength You have helped me continue on with a stronger attitude & thank you for encouraging all to fight for our rights. I have written my story to everyone I could think ok, including my state people. I have RSD now 2 years Whole body and has now taken my legs bad. Anyways I wanted to say thank you & if you ever want to talk or share info or chat you can always holler for me. I just recently started a support group for RSD, your more then welcome to join in with us Hoping in the coming year to be an organization. Here is the URL and yes anyone is welome http://shariutter_Gangel.tripod.com/awarersd/ with everyones help we can get the word out there about awareness. Gentle Hugs & Angel Kisses, Shari Utter from NY
Monday, August 4th 2003 - 02:04:11 PM
Carol
I am a 44 year old female and have suffered with RSD for the last 2 1/2 years. It is all I can do some days to get out of bed, the disease has now spread from my lower body to my upper body. I am trying so hard to have faith that I will find a doctor to help me fight this. My family (God Bless them) have been right there for me. I want my life back. Thank you for your heart felt story. I know the pain you suffer with each and everyday. I pray that this disease is more recognized, and research is done to find a cure. God bless you.
Sunday, August 3rd 2003 - 10:41:37 PM
Rebecca
Was just searching about implanted morphine pumps. I'm a Clinical Social Worker and I run an on-line Lupus support group and a member is considering it as an option. Thanks for putting your story out.
Tuesday, June 17th 2003 - 02:11:37 AM
Mark W
Hi How are you come talk to us on Paltalk we can speak or text in realtime www.Paltalk.com ,I have had RSD since I was 15 in 1970 its more than 33 years later and I'm still here ,I have been told Im crazy and Doctors have tried about everything ,II thank God Im in an Intractable Pain State California if you come on too Paltalk make me a Pal my name there is Comenyaro Many Blessings Upon You Mark
Wednesday, June 4th 2003 - 07:57:35 AM
Jenni Ford
I have RSD, I'm on oral morphine every 4hr. I want to get a pump like you but so far no luck. I to had doctors say it was all in my head,and that there was nothing wrong. Even I was drug seeking. I guess what kept me going was my husband and 3 small girls. Dying is not an option as much as for 3 mns. I thought very much was. Life real hard I don't get to be with my girls much, and I have another illness on top of the rsd that will kill me in my 50's and I'm 34 now. But 1 thing I've learned fighting rsd and spinocerebellar degeeration give up they win. Keep up the fight. jen
Sunday, May 4th 2003 - 02:10:18 PM
Elizabeth
Thank you for letting me read your story Joey, I came by you via Bruce's web site. I have RSD that is Systemic and has alrady cost me the left leg via amputation. 2 years ago, I became one of the lucky ones who "acquired" Dysautonomia. I pray daily that the Doctors help us and that the system is "fixed" before others follow my path. You are not alone Joey, I'm here for you. RSD cost me not only my family and friends, it cost me a marriage as well. How well I know those feelings of loss, betrayal and regret all the while rationalizing their defection with reasons and excuses. Elizabeth, Texas
Friday, May 2nd 2003 - 12:27:18 AM
Dan
Nice site
Friday, April 18th 2003 - 05:39:27 PM
Michael Stephens
Hi, Joey. I happened upon your site by accident (changingLINKS) and read your bio. Hard story to read. But I wish you and David the best in everything from now on. My site is at http://michael.stephens.tripod.com if you're ever bored and feel like reading poetry. Take care, Joey. Michael
Wednesday, April 16th 2003 - 10:04:40 PM
Asio Silvio From Italy
HEllo!
Saturday, April 12th 2003 - 12:24:51 PM
Meredith Love
I understand your frustration Joey. I have RSD as a result of a fracture to my foot. I was pretty lucky in that I had a podiatrist who pretty much knew what was going on when I presented to him with extreme pain after everything had healed. I was also very lucky because I have been able to find a pain dr who has very successfully treated my RSD with sympathetic nerve blocks. They don't last forever, but at least I get some relief. I've been researching RSD websites for a chat room or message board so I can talk to other RSDers. We've all got to stick together in this as the disease doesn't have much funding for research or treatments.
Tuesday, April 8th 2003 - 03:38:27 PM
Sandy
I visited your site and I like it very much!
Tuesday, April 1st 2003 - 10:39:07 AM
A. Klein
Hi, i like your site.
Friday, March 21st 2003 - 08:18:08 PM
LyndaMiles
Hey Joey! I'm glad that you've taken control of your life! We all need a place to help others in the same boat. It's nice to have a place to go and vent too. Take care of yourself too. As I found out if I don't do it I can't help anyone else. God bless.Lynda
Saturday, March 8th 2003 - 11:03:35 PM
Sue
Joey, Thank you for sharing your pain story with us. I also suffer chronic pain, it will be my life long partner also. We need to all come together to show the "human suffering" side to this thing they call "chronic pain." Through the group Chronicpainstories hopefully we can. I am so sorry it took you so long to find a good doctor to treat your pain. No one should have to suffer like that. No one should have to be told their pain is in their heads. Like so many others, you were labeled a drug abuser because it takes opiates to control your pain. This should never happen to the chronic pain sufferer. Good Luck to you Joey. I know your pain, nor mine, will ever be completely gone, but we can still "demand" proper management of our pain. All who suffer chronic pain deserve to have that pain treated with dignity. Thank you for sharing, Sue Chronic Pain Sufferer
Friday, March 7th 2003 - 03:20:26 AM
Valerie Kastl
Your story is truly an inspiration to many pain sufferers. Although I'm not a chronic painer myself, there are many feelings that I have for people who are, and one of them is that they have to put up with (succumb to) pain on usually a daily basis. And the other is the frustration when their doctors tell them it's all psychological, or "all in their heads." I'm too well aware of the ailments that chronic pain patients have by reading almost every story posted at the Yahoo! group ChronicPainStories. In the future, my hopes are that doctors have to take courses in pain management, that all states have the "Patients Bill of Rights", and that doctors get rid of the question, "What is your pain level from one to ten?" I'm sorry to say this, but if my doctor ever asks me this, I'll switch doctors or ignore him, and tell him, "It feels like someone stuck me with pins, or stabbed me with a knife, or cut off my leg." Sorry to say it so graphicly, but it's more descriptive than saying, "Oh, eight or nine." I hope I haven't offended you here. It's just that that question really urks me. Bless you for sharing this site. CPS Supporter Valerie K., CA
Sunday, March 2nd 2003 - 03:49:03 PM
Bruce Meyer Williams
We are all on a journey here. That journey is exemplified by Joey and so many of us. We also need to stick together. We need to continue and organize. We need to fight for our rights as simple human beings. None of us asked to be placed in the position of having daily, never-ending chronic pain. We have however been forced to deal with the effects of it. Our legislators, our doctors can make our dealing with chronic pain a lot easier though. Through thoughtful and caring legislation we can ensure that ALL doctors are trained to deal with us, the chronic pain patient better. We can legislate that ALL doctors be trained for treating us, as as it stands right now the statistics show that only 11% of our doctors have ever stepped into a classroom or attended a seminar on pain. We should make sure this changes through mandatory re-education. Too many of us have been treated as if our pain was in our imagination, and/or how many times has someone heard a doctor say, "Oh, just take a Tylenol and get back with me." The patient wasn't even listened to! I mean when do we draw a line and say enough! As most that have visited here know, and those who have came out of compassion and interest, we need to see through to a complete overhaul of how we are treated. We deserve the utmost compassion, respect and above all - to be simply be listened to. For some this is a life-or-death on a daily basis. It's chronic pain! Every day. No let up... it's a serious sometimes permanent and negative life-altering issue. We must gather together. We must start to speak out in unison. I applaud Joey and so many others that try to educate and try to explain. We put our stories right out there. We lay our emotions on the line. All in hope for change. Join us at ChronicPainStories - a Yahoo! Group. We are starting to gather all in one spot. We are starting off by telling our stories, and as Joey suggested will write letters as we gain in numbers and strengths. I join Joey in this fight. I am another chronic pain patient of eight plus years now. I am perhaps just like most of you that have came here looking for answers or information. This isn't about egos, about who's who... this is about US! Simple. We deserve respect. We deserve to be listened to. We deserve to be treated quickly and effectively for pain. Their are some of us who don't get fair treatment. Treatment can range from be looked upon as "drug-seekers" to hypochondriacs. Believe me. NO ONE, not one person I have met wants to be where they are. Our stories serve as poignant examples of what chronic pain does to us. Even with our attempts to explain, our sometimes long stories about all that is wrong their still remains us. Human beings just trying to say, "treat me seriously", treat me with same way you would anyone with a chronic condition. Treat me swiftly, effectively and with an open ear and heart. We could be you! We could be your loved one. Wouldn't you want that person to live in the most comfort that was possible? Wouldn't you want that person to be treated appropriately - swiftly and with compassion? Wouldn't you care enough to again - just listen!! We are here, and we are listening. We are also going to continue to fight and do something for ourselves as time passes. Write and continue to ask for help. Join us at ChronicPainStories and wait until we gain in numbers and we'll write together. As one! - and then hope we get heard as one. We are one thing I have learned, and perhaps it is because of who we were before getting struck down. We are fighters and we are going to continue to fight. We must. For each of us, and for others that follow. I am you. You are me. Let's fight on this. Gather together and fight as one. Effectively. Statistics are staggering as 45 million people are affected with chronic pain of one form or another. Imagine our power gathered together and demanding that we all be treated fairly. I'm fairly fortunate. Although my life consists of living sedately 95% of the time stuck to laying on a couch. I do have a doctor who listens. I do have only one condition. Non-healing L-4,L-5 fractured spine, I am now receiving proper pain medication and a good doctor who listens. It's not enough though, of course. I wished I were out and productive. A story constantly repeated by others. But if their is one thing I can do - that would be - to ensure that others at least get fair - quick and aggressive treatment for their pain too. I have that responsibility. I also have to let us all know that if we don't "watch-dog" for others that we can just as easily fall back to where some of us were. Begging for treatment, and laws being broken again. We right now in most states have a "Patient's Bill of Rights" that is not being followed by many of doctors and emergency rooms. This craziness must stop. Become a part of this. We can help to find solutions. We can stick together and we can fight with a powerful weapon. Our words.... words can change laws and attitudes... Sincerely, Bruce Meyer Williams, Minnesota director of: "A Group That Belongs To All Of Us" http://groups.yahoo.com/group/chronicpainstories
Thursday, February 6th 2003 - 07:19:23 PM
Steve Young
Thank you for your testamony that I just read. I had an acl surgery last year, that went bad as well. When I complained to the Dr. about my pain he thought I was making it up. During my first visit at his office (prior to the surgery) I saw another Doctor, as there was a mix-up with the insurance (imagine that) company. That M.D. told me I had RSD as the result of my not getting proper treatment immediately. (My supv. didn't turn in my accident report for 3 months) The M.D. who did the surgery dropped me off of my narcotic Rx, told me to get my pain meds over the counter, and then 2 weeks later refused to see me on a 2 month follow-up appointment, because he found out I was working on getting a second opinion. My new doctor, the second opinion one, gave me my earth shattering diagnosis of severe RSD, and a 5% chance of saving my leg. Again thanks for your website and testamony.
Wednesday, January 1st 2003 - 03:28:10 PM
simon
You are a HERO. You have conquered life with what you have been through. You are an inspiration to all of us.
Saturday, November 9th 2002 - 03:45:32 PM
Joey
Welcome to my "short" story of living with RSD! I hope you take a moment to sign the guestbook. Love, Joey*