Hi there, come on in and SIGN our Guest Book
| Your name: | Christine |
| E-mail address - Optional: | cac53@earthlink.net |
| City, State or Province: | Ohio |
| Country: | USA |
| Your comment or story: | Hi everyone! I would like to thank Larry for his great newsletter. I've been receiving it for a few years....very informative.
I've had my ileostomy due to ulcerative colitis since 1990. I'm 56 and doing absolutely fine! I've got to say that I've never had to see my doctor about my ileo since my surgery 19 yrs. ago. I consider myself extremely fortunate. I have a full time job that keeps me hopping. I also love working in the yard and walking my dog. In other words I do all the normal things required of every day living. If anyone would like to contact me with questions or concerns about their ileo's please feel free. I will do my best to put your mind at ease.... or just give you moral support. ~~Chris |
| Your name: | MIKE |
| E-mail address - Optional: | mbfree1@bigpond.com |
| City, State or Province: | Sydney |
| Country: | Australia |
| Your comment or story: | I have had a irritation around part of my Stomal area WARM WATER does the trick, it's clearing up well.
Another VERY simple system, is to use the HYDRO COLLOID WAFER ON TOP OF THE IRRITAION. This may be seem difficult if the irritation is OUTSIDE the wafer area, NO problem! Cut the hole for your STOMA in the WAFER in such a position that your Irritated skin is covered by the wafer, Instead of dead center u may have to cut the hole 1 inch or 1&1/2 inch from center. or maybe cut it Lower or Higher! IT WORKS believe me, Just like the WARM WATER I used to spout about Many years ago. The KISS system is always the best. Don't Forget to SLOP that WARM WATER around the STOMAL AREA, and of course the wafer to remove it! DO NOT USE THE WIPES, Sorry all you manufacturers. My irritation this time was simply because I left my Wafer on TOO long. Wishing everyone a GOOD New year and Future. Sincerly MIKE here in OZ |
| Your name: | Rosy Probst` |
| E-mail address - Optional: | probst1566@comcast.net |
| City, State or Province: | Denver Colorado |
| Country: | usa |
| Your comment or story: | Hi! I love your newsletter and website. I am the president of the Denver Chapter and we are looking for a new website and want to begin to email our newsletter and post it on our website.
Can you give me some direction on what you have done? May I use any of your articles, will give credit of course. Thanks so much Rosy Probst |
| Your name: | Grant Wills, Jr |
| E-mail address - Optional: | GWillsJr@roadrunner.com |
| City, State or Province: | Beverly Hills, Ca. |
| Country: | U.S.A. |
| Your comment or story: | Aloha, my name is Grant and I have a permanent ileostomy due to Crohns. Since my complete protocolectomy procedure in 1988, I've been trouble-free since. I'm single and employed with the Federal Gov't. I like the Beach,Swimming, plus traveling to Hawaii(I'm part Hawaiian)and Las Vegas. I'm 5ft8in tall,150lbs,Athletic,Blk hair,Brn eyes,Handsome and I'm 58yrs young. I'm available and would like to hear from Female Ostomates age 30 thru 46yrs young. Happy Holidays and Happy New Year........
Grant Wills, Jr. |
| Your name: | Robert Borich |
| E-mail address - Optional: | raborich@bellsouth.net |
| City, State or Province: | Panama City, FL |
| Country: | USA |
| Your name: | christine |
| E-mail address - Optional: | christine1130@comcast.net |
| City, State or Province: | indiana |
| Country: | usa |
| Your comment or story: | have had a illeostomy for 16 yrs im 38 and im blessed i do have some pain more body pain that anything i have crohns disease |
| Your name: | Carrie Moore |
| E-mail address - Optional: | azsunwmn@aol.com |
| City, State or Province: | Aurora, CO |
| Country: | USA |
| Your comment or story: | I love getting this informative e-mail every month. Thank you for all your hard work putting this together for us! Have a great Holiday Season and keep the good advice rolling in.
P.S. I was born in Hammond, Indiana. |
| Your name: | Sonda |
| City, State or Province: | Texas |
| Country: | USA |
| Your comment or story: | Appreciate the hints and tips. My sister has rectal cancer and lots of trouble keeping her bag from leaking. She is 14 hours away from me and I have read these tips to her. We are both grateful for the internet and your website. God Bless |
| Your name: | pam winger |
| E-mail address - Optional: | rwinger1@cogeco.ca |
| City, State or Province: | ontario |
| Country: | canada |
| Your comment or story: | Hi all would love to hear from anyone on dialyis,I learned so much here about ostomies but now I really need some on this other life changing factor.Please write if you can share some positive info Thanks |
| Your name: | caron |
| E-mail address - Optional: | fulloflifemom@aol.com |
| City, State or Province: | PA |
| Country: | USA |
| Your comment or story: | Hi,
I am 46 and have Chron's disease since I'm 23. I had to have an emergence ileostomy around 10 years ago. Single mom to a 14 year old son who suffers from Tourettes syndrome among other challenges. I need your help!!!!!! PLEASE I was recently in the hospital with kidney failure. I was recently hospitalized for two weeks for EXTREMELY LOW MAGNESIUM AND POTASSIUM. Life or death low. My body is not holding my magnesium and potassium levels. The Doctors don't know why. They say it's due to my ostomy output but don't seem to know how to correct the problem. HELP, I know someone out there has had to either had this same problem or know someone who has had this problem. My blood is being tested twice a week and once again my magnesium level is only 1.5. I take the magnesium pills 2 three times a day and keep having to go to the hospital for magnesium infusions. Is this gonna be my life?? I live in Pennsylvania (Poconos) not the greatest Doctors here. I take Klor-Con powder for the Potassium and it seems to be working ok. Still fluctuates but not nearly as bad as the Magnesium. I never realized how serious electrolyte imbalance was until almost dying from it. If you can help me, I would be forever grateful. I know the answer is out there somewhere. Will someone bless me with the answer I am looking for. Please e-mail me at fulloflifemom@aol.com Thank you and God Bless, Caron |
| Your name: | GINA CASTILLO |
| E-mail address - Optional: | regy0654@hotmail.com |
| City, State or Province: | REPUBLIC OF PANAMA |
| Country: | PANAMA CITY |
| Your comment or story: | I LIKE VERY MUCH YOUR WEB PAGE,IT SO MUCHO INTERESTING,I WILL LIKE TO HAVE BY THIS WAY,AND KNOW FRIENDS,PEOPLE WHO HAVE JUST LIKE ME AN OSTOMY,ONLY ONE PERSON THAT HAVE AN OSTOMY CAN UNDERSTAND ANOTHER ONE, I AM A MATURE ,PROFESIONAL AND NICE WOMEN WHO ARE SINGLE, AND IS VERY HARD TO HAVE MENS FRIENDS HAVING AN OSTOMY.
IF SOMEBODY HAVE THE SAME FEELING LIKE ME PLEASE WRITE TO MY EMAIL regy0654@hotmail.com or nagy0654@yahoo.com. thank you all GINA |
| Your name: | Jan Brunton |
| E-mail address - Optional: | janbrunton1951@yahoo.com |
| City, State or Province: | Columbus, Ohio |
| Country: | USA |
| Your comment or story: | I see many folks concerned about their ileostomies and their concerns. Please...don't be overly concerned. At first, my biggest concern was always a leaking appliance, but once you get that hurdle cleared, you're good to go. And finding out what you can and can't eat - its all trial and error - what gave me problems before UC and the surgery, gave me problems afterwards - so I just avoided those foods. You just learn as you go. For example, I eat cashews...but not a lot. Maybe that would bother someone else's system - we're all different.
I'm 58 years old and have had my ileostomy right after I turned 19. I honestly don't think about mine and have never felt any different than someone that does NOT have one. I see emails from folks that are concerned about running, exercising, flying, having children - you can do these things. Just like anything else we do in our lives, use common sense. Do I eat popcorn? - Yes..a few handfuls and I'm happy. Do I enjoy a good glass of wine and a beer? Yes, in moderation. Do I exercise and workout (this includes weight training, aerobics, walking, etc.)? Yes, when I'm not do darned lazy. Do I have children? Yes, natural childbirth to a son 27 years ago. Do I travel - take road trips - walk - bike - (backpacked for a month through Europe at age 27) - yes, and was I concerned about my ileostomy when I did these things? No. Do I worry about restroom facilities where I work due to my ileostomy and always carry a change of clothes whereever I go? No, but I always keep a spare appliance with me at all times. It leaks, ya fix it. The first mistake people make is assuming they're different than everyone else. Don't do that. My biggest cheerleaders were my parents and they were absolutely wonderful with support. If you're having difficulty with leaky appliances, one that doesn't fit properly - get ahold of your ET and try something new. Trial and error when you eat - what may bother one ostomate may not bother another. Don't be afraid of life - its because of our surgeries we have life. Single folks....you will find the right person and if they're not accepting of your ostomy, then obviously, they're not the right person for you, you deserve better. Do I sound like I'm on a soapbox? Probably....but in 39 years, I've dealt with many of the situations you're going through at one time or another. I see other folks that have posted that have had their ostomies longer than I have - pretty amazing, don't you think? For those of you that are new to this adjustment to your life - stay strong, stay positive. You can do this. Kick back and enjoy life....and always carry that spare appliance. |
| Your name: | JoAnne Melker (LoGuercio) |
| E-mail address - Optional: | saturndrvr@charter.net |
| City, State or Province: | Madison |
| Country: | USA |
| Your comment or story: | The Ostomy newsletter is an exceptional source of information for ostomates. It has proven very useful to me ! Keep up the good work ! |
| Your name: | robert darrington |
| E-mail address - Optional: | texaspete874@yahoo.com |
| City, State or Province: | waldorf md 20601 |
| Country: | usa |
| Your comment or story: | HELLO I HAVE HAD A COLOXTOMY FOR OVER TWENTY YEARS MORE THAN THAT WAN TO HEAR MY STORY |
| Your name: | Frank Oxley |
| City, State or Province: | New Castle, Indiana |
| Country: | U.S.A. |
| Your comment or story: | Had to have an ileostomy surgery on July 1st. I'm in a nursing home for therapy. My pouch leaks nearly every day. The new one is often put on by less than a nurse. Recently I'm having irritation on the skin under the pouch which is painful. Due to difficulty in swallowing, my food is pureed and some of it, I cannot eat. I am hoping things will improve. My age is 81, with good mentality.
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| Your name: | Joanne |
| E-mail address - Optional: | jlinihan@neo.rr.com |
| City, State or Province: | Ohio/New York |
| Country: | USA |
| Your comment or story: | Had ileostomy 30+ years ago caused by Chrohns. Now have Kidney disease caused by dehydration. I would love to talk with others with similar background about day to day living with an ostomy, pain, odd situations, tips and just life in general. Ostomy or not life goes on. Thank God! |
| Your name: | Kathy |
| E-mail address - Optional: | sparkie250@yahoo.com |
| City, State or Province: | Dewittville |
| Country: | USA |
| Your comment or story: | Just looking for a friend to share with... I am a Grandma that at 52 had a life changing experience of having to have an ileostomy to survive... I choose to thank the Lord that I am alive no matter what.... A little plumbing job, what ever, I am thankful to be alive and spend more time with my family, friends, and horses....
Want anyone listening to understand this, if you have undergone surgery to survive then please know God has blessed you... We have many trials through life and little bumps in the road just make us stronger... Take care... Kathy |
| Your name: | Sherry Smith |
| E-mail address - Optional: | mmdljmawmaw@bellsouth.net |
| City, State or Province: | Braxton, Ms |
| Country: | USA |
| Your comment or story: | Hello, I am so glad to find this site. It is nice to have others that are going through the same things to talk with. I have had an isleostomy for 4 months. Lot of leaks at first. thing are getting better. |
| Your name: | J. E |
| E-mail address - Optional: | jmjjed@sbcglobal.net |
| City, State or Province: | Lake Charles LA |
| Country: | United States |
| Your comment or story: | Looking for a Dr. In louisian that takes medicaid, that can handled a touch case following an Ostomy. I can be re-attached, but the hernia's are messing me up bad, And my original surgeron admitts he can't handle the job. Who's Who's in the General Surgeron in Louisiana that could take a challenging patient.??????Anyone please help find me a surgeron |
| Your name: | John R. Saad Sr. |
| E-mail address - Optional: | saadjnb@cox.net |
| City, State or Province: | Escondido ,CA |
| Country: | USA |
| Your comment or story: | I am already on your distribution list and have learned a lot about my Ileostomy. I try to participate in most of lifes activities and find your recommendations about potential problems areas a must reading. The comment about "Popcorn" in the diet has been suspect since day 1 and I don't even consider eating it. I"ve been forwarned many times and don't want to chance it. |
| Your name: | Mary Prince |
| E-mail address - Optional: | princeforest@msn.com |
| City, State or Province: | Huntsville Al |
| Country: | USA |
| Your comment or story: | Just stumbled on your site and found it informative. I've had an ostomy for 2.5 years and so hate it! |
| Your name: | JUN |
| E-mail address - Optional: | JUNOTR@YAHOO.COM |
| City, State or Province: | EVANSVILLE, IN |
| Country: | USA |
| Your name: | Yoshihiro Sugihara |
| E-mail address - Optional: | sugihara@muh.biglobe.ne.jp |
| City, State or Province: | 1-12-5 Tukamoto OSAKA 532-0026 |
| Country: | JAPAN |
| Your comment or story: | Nice to meet you.
My name is Yoshihiro Sugihara. I took the bladder six years ago and made urostomy. |
| Your name: | Jan |
| E-mail address - Optional: | janetvano@hotmail.com |
| City, State or Province: | Gilbertsville, Kentucky |
| Country: | United States |
| Your comment or story: | My 10 year old granddaughter has been diagnosed with ulcerative colitis since last August. Steroids and other medications not working and they are scheduling a surgery soon to remove the large intestine. I'm looking for suggestions on how to help her and my daughter/son-in-law/grandson(her brother). Everything I learn about ulcerative colitis is new to me, it has become quite an education for all of us. |
| Your name: | Casper |
| E-mail address - Optional: | casper0930@livemail.tw |
| City, State or Province: | Tawain in Asia |
| Country: | Tawain |
| Your comment or story: | I just want some friends talk with me , pleace! ('////') |
| Your name: | Susan |
| E-mail address - Optional: | grandmajay@Gmail.com |
| City, State or Province: | Kalamazoo, Michigan |
| Country: | USA |
| Your comment or story: | I am looking for people who have done a lot of flying with an ostomy. I am particularly looking for people who have been on very long flights to find out if they encounteered any problems that I should be aware of before doing some international traveling ina few weeks.
Thanks so much |
| Your name: | Charlie Madison |
| E-mail address - Optional: | charlieomadison@gmail.com |
| City, State or Province: | New York |
| Country: | United States |
| Your comment or story: | The website is good and it gave me much information.
-------------------------------------------------------------- Charlie Madison http://www.drug-intervention.com/new-jersey-drug-intervention.html |
| Your name: | Dan Parker |
| E-mail address - Optional: | depark@mindspring.com |
| City, State or Province: | Wellsburg, WV |
| Country: | USA |
| Your comment or story: | I have been reading your newsletter every since I had my colostomy operation. The information I have gained from the newsletters has been invaluable to me as a newbie and as a long-term ostomate. I also appreciate the advice given to me by your members through UOA and UOAA. I just wanted to say thanks to your chapter for the work you are doing. |
| Your name: | judy ramsey |
| E-mail address - Optional: | sabanchick@yahoo.com |
| City, State or Province: | lincoln,al 35096 |
| Country: | usa |
| Your comment or story: | i am a43 year woman who has been an ostamate 2 times in my lifetime.first as 11 and then at 41 .as a happily married woman the surgery changed my marriage .and my husband we are talking divorce.he finds my side gross.i'm interested in talking to anyone with simalar problems. |
| Your name: | Loraine Whyte |
| E-mail address - Optional: | lwhyte@kwic.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | Illesostomate for 50 years. Very well behaved until recently when I had a blockage due to medication I was taking for back pain. Originally had ulcerative colitis. Two pregnancies, one c-section. All in all I would recommend this to anyone suffering with bowel disease. My lumbar spine is very bad so anyone that can recommend Pain medication that would not cause cause a blockage would be appreciated |
| Your name: | Loraine Whyte |
| E-mail address - Optional: | lwhyte@kwic.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | Illesostomate for 50 years. Very well behaved until recently when I had a blockage due to medication I was taking for back pain. Originally had ulcerative colitis. Two pregnancies, one c-section. All in all I would recommend this to anyone suffering with bowel disease. My lumbar spine is very bad so anyone that can recommend Pain medication that would not cause cause a blockage would be appreciated |
| Your name: | REGINA CASTILLO |
| E-mail address - Optional: | regy0654@hotmail.com |
| City, State or Province: | PANAMA CITY |
| Country: | REPUBLIC OF PANAMA |
| Your comment or story: | HI I AM GINA FROM PANAMA CITY,I HAVE A COLOSTOMY SINCE 2005, I LIKE YOUR WEB PAGE BECAUSE I LEARN SO MUCH ABOUT THIS AND HOW TO CARE IT,THANK YOU.
GINA |
| Your name: | Jennie Nichols |
| E-mail address - Optional: | sew4gwen@yahoo.com |
| City, State or Province: | Edwardsville, KS |
| Country: | USA |
| Your comment or story: | Hello. I've had Crohn's disease for over 35 yrs, an ostomy for over 15 yrs, and severe yeast or some candida related complex for over 5 yrs. I have a full life even though there's been a lot of pain, 6 major abdominal surgeries and one minor, a rectectomy, etc. I was homeless for a year due to the loss of my career over my disability. I now live on disability but still work full time. I'm working on a book with the diet I've come up with plus my experiences and tips for how to survive. If you need help or just someone to talk to, please contact me.
Jennie |
| Your name: | Gail Thatcher |
| E-mail address - Optional: | thethatchers@telus.net |
| City, State or Province: | Alberta |
| Country: | Canada |
| Your comment or story: | I have had a colostomy for 4 years now and I have found Convatec products are the best for me. |
| Your name: | kev |
| City, State or Province: | Franklin, TN |
| Country: | USA |
| Your name: | Ed Bazlik |
| E-mail address - Optional: | edhan@mts.net |
| City, State or Province: | manitoba |
| Country: | Canada |
| Your comment or story: | Its 4 years now ..ileostomy...doing ok had a couple of blockages ..very painful,you have to be careful what you eat.It all started with a perforated colin,they say it was pretty messy,anyway,im glad to be alive..... |
| Your name: | Sue Powell |
| E-mail address - Optional: | suzmaryp@yahoo.com |
| City, State or Province: | Salem,NH |
| Country: | USA |
| Your comment or story: | Do to the severity of radiation,I have a colostomy and urostomy since 2002,its been over 6yrs with my buddies,lol,I wish I knew about this site before,I just happened to bump into it,Thank you so much for the newsletters,as they are so much help,the people I meet are terrific! Long extened family's !Please feel free to contac me for anything,I'm always around! |
| Your name: | Jenny Ann |
| E-mail address - Optional: | j3nny_ann@yahoo.com |
| City, State or Province: | Manila |
| Country: | Philippines |
| Your comment or story: | Gud day, my mother had a rectal surgery with a permanent colostomy. It has been 5 months after she had the surgery and she started feeling an urge to pass stool. There were also times that she felt there was a mass in the surgery site(in the rectal closure). Her rectum was already removed and was closed.What do you think is the cause for this?.Thanks! |
| Your name: | Anne McCormick |
| E-mail address - Optional: | dmccfivev@aol.com |
| City, State or Province: | Stoughton, MA |
| Country: | USA |
| Your comment or story: | I am a newly minted ostomate. My surgery was 10/6/08. I have had Crohn's Disease for 17 years and was diagnosed with colo/rectal cancer in August 08. The surgery was a complete success and all the cancer is gone. There was not much of it. I am undergoing chemotherapy now until the beginning of June (FolFox)as a precaution. I will gladly rip out my pic line and porta cath and fly down to Disney World in August. Life is Good! |
| Your name: | Ned Brooks |
| City, State or Province: | Surprise, AZ |
| Country: | USA |
| Your comment or story: | You porvide a great service.Your suggestion of using a zipper baggy to dispose of used ostomy, several years ago, was great! |
| Your name: | Ada Stone |
| E-mail address - Optional: | keetermrie@hotmail.com |
| City, State or Province: | Kentucky |
| Country: | USA |
| Your name: | brian |
| E-mail address - Optional: | bhorsch6969@gmail.com |
| City, State or Province: | welllington, ks |
| Country: | USA |
| Your comment or story: | had ileostomy 11-26-08. healing well, trying to adjust. many good tips and comments on this site, thank you to the providers. would like a woman's perspective on how they would like this situation presented to them if they did not know. obviously, i'm single, and wondering if i always will be. thanks in advance for any input. |
| Your name: | debrabranscomb |
| E-mail address - Optional: | debrabranscomb@sbcglobal.net |
| City, State or Province: | Huntington Indiana |
| Country: | usa |
| Your name: | Jean Krumboltz |
| E-mail address - Optional: | jeankrumboltz@yahoo.com |
| City, State or Province: | CA |
| Country: | USA |
| Your comment or story: | Your newsletter is most helpful to me, a new urostomy person. My surgery was Nov. 21 and I am still a bit weepy and sad about it but your articles help me to turn to gratitude for the wonderful medical care I have available to me. Thank you to all who share...I hope to be one of you in the future. |
| Your name: | Randi |
| City, State or Province: | Topanga |
| Country: | CA |
| Your comment or story: | This web site is fantastic! Downloaded the handbook for ostomates...very well written and comforting. Several products advertised on this site I have purchased. Had I not heard of these, I would have a more limited knowledge base of what is available to ostomates to enhance our quality of living (DryPro for water activities, Disposable liners for pouches, support groups, news letters). Keep up the good work!!! THANK YOU :) |
| Your name: | jan volkmer |
| E-mail address - Optional: | jan.volkmer@gmail.com |
| City, State or Province: | Adelaide |
| Country: | Australia |
| Your comment or story: | just would like to pass on greetings to all and hope everyone has a lovely christmas. i look forward to receiving the ewsletter from the us and would love to hear from anyone in the us as a pen pal
Regards jan |
| Your name: | Joseph Calderon |
| E-mail address - Optional: | jcalderon7189@gmail.com |
| City, State or Province: | Crowville, LA. |
| Country: | U.S.A. |
| Your comment or story: | I am 37 yrs old. I have an ileostomy. I've had it for a year and I keep praying it's temporary. I have it because it's just 1 of the numerous wonderful situations that I've been privileged enough to experience as a result of stage 3 level 4 colorectal cancer. I was diagnosed at 34 yrs of age. I think we should encourage people to be examined a lot younger than 45-50.I can't get thru a day without thinking "if only...".I have endured a colectomy,a liver resection,an illeostomy, 4-5 minor surgeries, chemotherapy (5 different rounds, all for varying #s of months) radiation, numerous hospital vacations, sickness, fatigue, weight loss( cancer is a really good diet) neuropathy, slight addiction to dilaudid, withdrawals (that sucked), and a complete upheaval of my life in general. I'm still here, I'm still fighting (although I would feel better if I could actually punch cancer) and I definitely plan on proving quite a few doctors wrong. I am Blessed and I mean that. |
| Your name: | Lavall Harris |
| E-mail address - Optional: | lavall965@hotmail.com |
| City, State or Province: | Lancaster SC 29720 |
| Country: | USA |
| Your comment or story: | The information that is issued each month in the ostomy news letter is very important to me. Its privasy gives comfort to people who are new ostomy patients. I would like to conect with other ostomy mates in my area. |
| Your name: | John Griffith |
| E-mail address - Optional: | jrgriff4@comcast.net |
| City, State or Province: | Waldorf, Maryland |
| Country: | USA |
| Your comment or story: | I've been an ostomate (ileosomy) for 7 years. Ulcerative colitis and cancer took my colon. Doing well now. Had problems initially with security of pouch primarily due to large crevice (scar) from a ruptured appendix 30 years ago. Very active physically: lift weights, climb mountains, ride bikes, etc. Enjoy reading all the articles from Larry in Evansville - learned a lot. As an ostomate, I don't think you ever stop learning of ways to make your life better as an ostomate. Thank you for all that you do to educate and inform the ostomate community. |
| Your name: | Jean McAdams |
| E-mail address - Optional: | jmcadams2003@yahoo.com |
| City, State or Province: | Reedsburg, Wi |
| Country: | USA |
| Your comment or story: | It will be 8 years on the 15th that I have become an illeostomate. What once seemed like the end of the world, now just seems like it is normal.
Jean |
| Your name: | Wendy |
| E-mail address - Optional: | barriews@hotmail.com |
| City, State or Province: | New South Wales State |
| Country: | Australia ~ Oz |
| Your comment or story: | Have a good Holiday Everyone, enjoy yourselves. Reach out and phone someone, email or invite them over. They could be lonely or feeling a bit blue, show them you care. |
| Your name: | Andrew Knopps |
| E-mail address - Optional: | ajknopps@hotmail.com |
| City, State or Province: | Grand Ledge, MI |
| Country: | USA |
| Your comment or story: | Have had my urostomy eight years. Only once did I have skin problems--allergic to tape on flange. Appreciate very much this news letter, Look forward to getting it every month. |
| Your name: | sandy |
| E-mail address - Optional: | loveablepooh72@yahoo.com |
| City, State or Province: | Davie, Florida |
| Country: | USA |
| Your comment or story: | I have an ilestomy for just about 7 years now. Still dealing with it. I have good days as well as bad days as others may have too. I have one question though. Maybe someone can answer it.
Ladies who have an ilestomy can u get pregnant? I was told by my surgeon that I could. |
| Your name: | Laura |
| City, State or Province: | Santa Rosa,CA |
| Country: | USA |
| Your comment or story: | Thank you for your fantastic newsletter.
Happy Holidays! |
| Your name: | Jean |
| E-mail address - Optional: | ejm3625@aol.com |
| City, State or Province: | Scottsdale AZ |
| Country: | USA |
| Your comment or story: | I had a colostomy in Aug 2008 and really had no idea how to cope with it. Finding your newsletter was the best thing that happened to me. Thank you for providing all the wonderful and helpful information.
I wish you all a very Merry Christmas and Happy and above all Healthy New Year. |
| Your name: | Ron Benedict |
| E-mail address - Optional: | ronben103@aol.com |
| City, State or Province: | Lynn MA. |
| Country: | USA |
| Your name: | SHARON |
| City, State or Province: | ENFIELD, CT |
| Country: | UNITED STATES |
| Your name: | Dale |
| E-mail address - Optional: | rvrlnd@yahoo.com |
| City, State or Province: | River Falls, WI 54022 |
| Country: | USA |
| Your comment or story: | I've had a urostomy for 3 1/2 years. I havent' had any real problems and am grateful to be alive. I love the newsletter and no matter how busy I am I usually stop what I'm doing and read through it. Lots of good advice, but more importantly lots of stories from people just like me! |
| Your name: | ROSALINE M HUBER |
| E-mail address - Optional: | dustyhub@yahoo.com |
| City, State or Province: | TOWER HILL,IL |
| Country: | USA |
| Your name: | Joyce Pendleton |
| E-mail address - Optional: | rethinkiii@aol.com |
| City, State or Province: | Holts Summit, Mo |
| Country: | USA |
| Your comment or story: | I really enjoy reading this newsletter and look forward to the next one. Lots and Lots of Helpful hints and ideas.
Thank You for making this available. |
| Your name: | Ila witt |
| E-mail address - Optional: | cherokeechick48@yahoo.com |
| City, State or Province: | Bartlesville, Ok |
| Country: | U.S.A. |
| Your comment or story: | I enjoy reading this newsletter. I have been a Ostomate since 2005. As a new one you all have a lot of good tips that I have put to use! Keep up the good work!:) |
| Your name: | Katherine Morgan |
| E-mail address - Optional: | katandcharlie@hotmail.com |
| City, State or Province: | Albuquerque, New Mexico |
| Country: | USA |
| Your comment or story: | Thank you for the wonderful newsletter! Happy Holidays and the best of health! |
| Your name: | Pam MacIntyre |
| E-mail address - Optional: | pammacintyre@aol.com |
| City, State or Province: | Parkland, Florida |
| Country: | USA |
| Your comment or story: | Ileostomy 1975
I am presently writing a book. |
| Your name: | Sue Parker |
| E-mail address - Optional: | parkersp@comcast.net |
| City, State or Province: | Anderson, IN |
| Country: | USA |
| Your comment or story: | A big thank you to Larry Trapp for putting me in contact with a fellow ostomate Charlie Grotevant. I was a runner for 30 years prior to an auto accident that caused a pelvic injury which lead to the loss of my ileostomy. I was devastated to say the least and read everything I could. I subscribed to the Phoenix Magazine and read Charlie's story. I had received the Evansville Ostomy News letter and I sent the editor Larry Trapp and email and asked if he knew anyone who was a runner with an ileostomy. Guess what he emailed me right back and sent me Charlie's email address the exact person I wanted to talk to and meet. Charlie has helped me more than words can ever convey. Thank you Larry Trapp and to all involved with this valuable news letter. My life has changed so dramatically because of Larry's immediate help and putting me in contact with Charlie Grotevant my Savior. God Bless all of you and Happy Holidays. Sue Parker |
| Your name: | Carol A McGuigan |
| E-mail address - Optional: | carol.mcguigan@gmail.com |
| City, State or Province: | Orlando, FL |
| Country: | USA |
| Your name: | Gail Luke |
| E-mail address - Optional: | gailukeonduke@hotmail.com |
| City, State or Province: | Bowmanville, Ontario |
| Country: | Canada |
| Your comment or story: | I have had my colostomy since August 2004 and I have found that I can learn something new every day in this regard. Your monthly e-mails are interesting and do help me very much. I thank-you very much for that. |
| Your name: | Ed Agnew |
| E-mail address - Optional: | puzzeled1@hotmail.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | Thank you for sending me these e-mails. They are very helpful. I for one have a hard time couping with my ostomy but as I read these srticles they help me in a way. |
| Your name: | Bruce Penta |
| E-mail address - Optional: | bkpenta@yahoo.com.au |
| City, State or Province: | South Australia |
| Country: | Australia |
| Your comment or story: | Hi to all and a happy holiday season.
|
| Your name: | Paul Sutherland |
| E-mail address - Optional: | psuther@aol.com |
| City, State or Province: | Jackson, Tn |
| Country: | USA |
| Your comment or story: | I have had a colostomy since 2001. I now irrigate and it works well for me. If you have any questions about this process please do not hesitate to write me.
|
| Your name: | Rob Reiter |
| E-mail address - Optional: | rdhntr1@yahoo.com |
| City, State or Province: | Shelton, Wa. |
| Country: | USA |
| Your comment or story: | I look forward to the newsletter every month. It is always full of useful info for all ostomates. Thanks for being there for me. I am an ileostomate and have been for 3 years. |
| Your name: | Anita Thorpe |
| E-mail address - Optional: | anitathorpe@eol.co.nz |
| City, State or Province: | Tauranga |
| Country: | New Zealand |
| Your name: | Lorraine Wait |
| E-mail address - Optional: | dlwait@yahoo.com |
| City, State or Province: | Topock, Arizona |
| Country: | U.S.A. |
| Your comment or story: | As yesterday was the 28th anniversary of John Lennon's death, I would like to tell anyone who knows about an epiphany to know that I had one then(1980)! I was 23, a year and a half worn out from ulcerative colitis, tired of tests and prognoses - as well as friendly, caring relatives who said they had better medicine in their part of the country (I was in Oregon; they were in New York City)- I just wanted to live again. I had had my ileostomy five days previously - December 3, 1980. On the 8th, I went through the usual routines, but that evening, I was sad for the first time. I was finally off all tubes, assistance, even shots. I was told to get up and move around, shake up the adhesions, take pills for pain... I had been sick for long enough and grateful for a cure; then, when this 'cure' hit, I finally didn't like it. I cried for the first - and last - time. It was some time in the evening - 8 or 9 P.M. West Coast time. I stopped moping, crawled out of bed, grabbed my trees - you know what I mean - and decided to walk around the floor. After a few minutes, I heard a nurse, racing down the hallway, calling, crying, that John Lennon had just been killed in New York. I froze. It hit me like a ton of bricks. I thought that one of my beloved Beatles had just been killed, and I was crying over being given a chance to be alive and enjoying life again. I never cried again.
By the way, I woke in my ward the second day of my surgery to a football game on television (perfect time of year!) to hear the words that the place kicker Ralph Bernische (sp.?) of the San Diego Chargers AND HIS ILEOSTOMY BAG just kicked - I don't know - an extra point? a field goal? a punt? If I could have fallen out of my bed at those words, I would have!!! Well, 28 year later, I have a wonderful life. I teach at a great high school - 9th and 11th grade English - have the greatest husband, live in a wonderful part of the world (all my very happy opinion!), and have an absolutely magical dog, Barney, who is 20! Human years! Beagle/Basset. We've had other dogs who have since passed, but Barney's with us now, and we are a happy family! And I wish all who may read this the magic of knowing that we ostomates - and our friends and families - are ALL OK! |
| Your name: | lucy degidon |
| E-mail address - Optional: | lucycat1203@yahoo.com |
| City, State or Province: | nys |
| Country: | usa |
| Your comment or story: | Wishing all fellow ostomates a very happy, healthy holiday season. Keep your spirits up! There are many problems facing the world today, and the first line of defence is coping with our own bodies. Second is what I am doing now, reaching out with love and concern for others who are dealing with our changed and often challenged, bodies.
Like Tiny Tim said, " God Bless Us One and All". |
| Your name: | Joy |
| E-mail address - Optional: | joyfulweaver@sbcglobal.net |
| City, State or Province: | cromwell, CT |
| Country: | USA |
| Your comment or story: | I have enjoyed receiving your newsletter, I am a fairly new ostomate, or ostomist..more like optomist..I have an ileostomy total proctocolectomy 9/07 for cancer and long term (40 yrs. ) uc..thanks for your letter. |
| Your name: | Joy |
| E-mail address - Optional: | joyfulweaver@sbcglobal.net |
| City, State or Province: | cromwell, CT |
| Country: | USA |
| Your comment or story: | I have enjoyed receiving your newsletter, I am a fairly new ostomate, or ostomist..more like optomist..I have an ileostomy total proctocolectomy 9/07 for cancer and long term (40 yrs. ) uc..thanks for your letter. |
| Your name: | Jackie Allsop |
| City, State or Province: | London |
| Country: | England |
| Your comment or story: | I would just like to say how much I look forward to this newsletter. No matter where you live in the world, there is an abundance of information in it. Thank you. |
| Your name: | John R. Saad Sr. |
| E-mail address - Optional: | saadjnb@cox.net |
| City, State or Province: | Escondido ,CA |
| Country: | USA |
| Your comment or story: | I'm not sure what I'm doing wrong but I've tried three(3) times to honor your request to sign the guest book and failed...oh well here goes. |
| Your name: | Roxanne |
| E-mail address - Optional: | Roxanne.humphrey@nationwidechildrens.org |
| City, State or Province: | columbus, ohio |
| Country: | usa |
| Your comment or story: | I enjoy receiving this enewsletter. There are tips for even our youngest of ostomates. I too am and ostomate and find helpful hints for myself and to pass on to others. thank you. |
| Your name: | Marilyn |
| E-mail address - Optional: | marilyn.ipsen@chw.edu |
| City, State or Province: | Redwood City, CA |
| Country: | USA |
| Your comment or story: | Love the newsletter - lots of good stuff and really has helped me! I look forward to receiving every month.
Thank you so much! mare |
| Your name: | wiley Waters |
| E-mail address - Optional: | wiley_waters@yahoo.com |
| City, State or Province: | Athens,Texas 75751 |
| Country: | Henderson |
| Your comment or story: | Keep up the good work
Wiley |
| Your name: | genny |
| E-mail address - Optional: | clipperqueen007@yahoo.com |
| City, State or Province: | pgh. |
| Country: | usa |
| Your comment or story: | Thank you so much! I don't know what I would do without you. So msny times I have looked to you for problem solving. Many times I cannot get any answers from the nurse. I don't have a car. But there you are with sound advice. Thanks again. Merry Christmas & Happy New Year..may God bless you! You help so many : the education is wonderful. |
| Your name: | John Visser |
| E-mail address - Optional: | visserj@cogeco.ca |
| City, State or Province: | Sarnia, ON |
| Country: | Canada |
| Your comment or story: | Always read your newsletter with interest.
Have a blessed Christmas and a Happy New Year john |
| Your name: | Joanne |
| City, State or Province: | Victoria, BC |
| Country: | Canada |
| Your comment or story: | Thank you so much, Evansville Ostomy News - all the advice and tips make life much easier to deal with. I've had an ileostomy since April 2006 and every day keeps getting better and better!
Happy Holidays! Joanne |
| Your name: | Anita Sibley |
| E-mail address - Optional: | AAuntNitaTX@aol.com |
| City, State or Province: | TX |
| Country: | USA |
| Your comment or story: | Always enjoy the Newsletter. I have Crohn's, and have had an ileostomy for 34 years. But I've found out that there are always new things to learn. |
| Your name: | DAVID |
| E-mail address - Optional: | dachalk3@tesco.net |
| City, State or Province: | SOMERSET |
| Country: | UK. |
| Your comment or story: | I LOVE THE CARTOONS AT CARTOONSVILLE. |
| Your name: | Pam |
| E-mail address - Optional: | rwinger1@cogeco.ca |
| City, State or Province: | ontario |
| Country: | canada |
| Your comment or story: | Hi all just want to extend a Merry Christmas and a healthy New year to all!! I have met so many wonderful people here that I am proud to call "friend",this link is a blessing in disguise for both old and new ostomates.Learning and sharing is what it is all about and even though we have all endured the worst and got to this point we have so much to be grateful for-------Life!!! |
| Your name: | Jim Hackett |
| E-mail address - Optional: | jhackle@verizon.net |
| City, State or Province: | Horseheads, New York |
| Country: | USA |
| Your comment or story: | I enjoy receiving these news letters they are informative |
| Your name: | Casper |
| E-mail address - Optional: | a12111106a@yahoo.com |
| City, State or Province: | Tainan |
| Country: | Tawian |
| Your comment or story: | Hellow everyone , I am live in Tawian , there it a little place , I am 12 years old ,I wish I can be your pen-pals , plesce writle for me , you can writle Chinese or English to me .
Sunday,November,30th,2008,pm11:28:08 |
| Your name: | Don Claxton |
| E-mail address - Optional: | dcmc40@cox.net |
| City, State or Province: | Chandler, AZ |
| Country: | USA |
| Your comment or story: | I am having problems with the pouch becoming loose from my skin and leaking. I think it is partially due to the location of my stoma being right on my belt line but am not sure. Sometimes I can get 4 -5 days without changing it but other times I have changed it almost daily. Does anyone else have this problem? |
| Your name: | Susan S |
| E-mail address - Optional: | SueSueUSA@yahoo.com |
| City, State or Province: | mid-California |
| Country: | USA |
| Your comment or story: | I have had my colostomy since 2003, and wish I had found these boards sooner. What a great group of people here and on the UOAA Discussion Board as well! I have been irrigating about 6 months now as well as wearing a pouch, when more convenient for my activities. |
| Your name: | Shirley Simmons |
| E-mail address - Optional: | shirleysimmons@comcast.net |
| City, State or Province: | Little Rock, AR |
| Country: | USA |
| Your comment or story: | I have an permanent illeostomy as the result of Crohn's disease. Five years ago in Nov. I was hospitalized for 9 days with a total blockage in my colon. Three months later I was almost completely blocked again, and my doctors advised that my best chance was to have an illeostomy, which I did in Feb. 2004. Nine months later I had a perineal fistulectomy. I did not have Crohn's in my small intestine, and today I am healthy and well. I work full time, do my own yard work, and stay busy. I am grateful to be alive and feeling good again. Thank you for producing the newsletter to help us learn and connect with others. |
| Your name: | Shirley Simmons |
| E-mail address - Optional: | shirleysimmons@comcast.net |
| City, State or Province: | Little Rock, AR |
| Country: | USA |
| Your comment or story: | I have an permanent illeostomy as the result of Crohn's disease. Five years ago in Nov. I was hospitalized for 9 days with a total blockage in my colon. Three months later I was almost completely blocked again, and my doctors advised that my best chance was to have an illeostomy, which I did in Feb. 2004. Nine months later I had a perineal fistulectomy. I did not have Crohn's in my small intestine, and today I am healthy and well. I work full time, do my own yard work, and stay busy. I am grateful to be alive and feeling good again. Thank you for producing the newsletter to help us learn and connect with others. |
| Your name: | gerry |
| City, State or Province: | laval quebec |
| Country: | canada |
| Your comment or story: | looking for ways to handle cleaning |
| Your name: | sudeep |
| E-mail address - Optional: | sudeep.s.bilkhu@btinternet.com |
| City, State or Province: | coventry,west midlands |
| Country: | uk |
| Your comment or story: | it is so wonderful to read ostomy news...it is like meeting a good friend every now and again...reading it puts my mind at ease to know that other people are in the same boat.I look forward to making and meeting friends local to the midlands.Good luck and good day to all readers. |
| Your name: | William Roche |
| E-mail address - Optional: | wroche@tampabay.rr.com |
| City, State or Province: | Crystal River, Florida |
| Country: | U.S.A. |
| Your comment or story: | I had an Ileostomy done approx. 18 months ago due to a severe case of U. C. I ended up spending over 90 days in two different hospitals. I'm still unable to change my appliance by myself, and have all kinds of skin problems. I absolutely HATE bag day which we now have up to 4 days. If it were not for my wife I simply could not be here today.
The E.O.N. is one of the BEST things that has happened to me since the surgery. Thank You, and please don't go away |
| Your name: | rachel |
| E-mail address - Optional: | paws_1985@yahoo.com |
| City, State or Province: | mi. |
| Country: | usa |
| Your comment or story: | I have had an Illeostomy for 15 years with one revision due to a peri-stomal hernia. I now have another hernia, which I'm controlling by diet and wearing a belt. So I won't have to have another surgery for now. If there's anyone else out there with the same problem or have any tips for an illeostomate, please e-mail. I'm 49 and have a very supportive husband. it's nice to have this website. thank you, rachel |
| Your name: | Alice Anne Allen |
| E-mail address - Optional: | AliceAnneAllen@dc.rr.com |
| City, State or Province: | California |
| Country: | USA |
| Your comment or story: | Your tips and newsletters are so fun and I really enjoy knowing there are OTHERS are there like me..
Thanks so much |
| Your name: | kathy patterson |
| City, State or Province: | Missouri |
| Country: | usa |
| Your comment or story: | Love this site -it is so helpful don't know what I would have done with out this website 5 years ago. Thank you. |
| Your name: | Carol McGuigan |
| E-mail address - Optional: | carol.mcguigan@gmail.com |
| City, State or Province: | Florida |
| Country: | USA |
| Your comment or story: | Hi there, I had my complete coloectomy in 2004. Life has been very different since then and I've had many problems. But I try to keep strong and have a good support system- so I've been very fortunate. |
| Your name: | Kim Hayes |
| E-mail address - Optional: | carrjammin@yahoo.com |
| City, State or Province: | Tennessee |
| Country: | USA |
| Your comment or story: | I am 32 years old and I have had my ileostomy for 3 years because of FAP. I am trying to lose weight so I may have the j-pouch like my sis and dad. My 10-year old niece has our disease too. She will start her tests pretty soon, just to see when surgery will be necessary. Because with our disease, the colon MUST come out. I have adapted well to my ileo, but I can't wait to be hooked up again!!! My life is still great, and I can do just about everything with this ileo! |
| Your name: | Paula Harris |
| E-mail address - Optional: | harrispk@yahoo.com |
| City, State or Province: | Conway,.Ar |
| Country: | USA |
| Your comment or story: | Thanks for keeping us ostomates up to date with extra info and reminders. You are to be commended for taking on the task and helping the ostomates out there...
Paula |
| Your name: | Judy Jones |
| E-mail address - Optional: | jjflowgoer@aol.com |
| City, State or Province: | Birmingham AL |
| Country: | USA |
| Your comment or story: | I am a caregiver for my 85 yr old housemate's new ostomy. I am very grateful to find this wonderful site/newsletter. Every situation is different and it's been challenging to find resources and answers for my specific questions - but I've located some helpful tips here this evening already! Thanks so much for helping us 'newbies' by sharing what you do! |
| Your name: | Rob Reiter |
| E-mail address - Optional: | rdhntr1@yahoo.com |
| City, State or Province: | Shelton, Wa. |
| Country: | USA |
| Your comment or story: | I look forward to the Newsletter every month. There is always a lot of great information to read. Thanks for your hard work. |
| Your name: | Lynn |
| E-mail address - Optional: | Lynnls104@aol.com |
| City, State or Province: | New York |
| Country: | USA |
| Your comment or story: | Have an illestomy for almost4 years due to chrons. Want to say I still continue to learn a lot with this newsletter and the OAAA discussion board. Love Phoenix magazine. My son in law recently diagnosed with u.c., close cousin to my disease and I feel bad. But I am still alive and trying to keep as normal a life as possible, which is possible through the people on the board and knowing you are not alone. |
| Your name: | John R Saad Sr |
| E-mail address - Optional: | jnbsaad@cox.net |
| City, State or Province: | Escondido, CA |
| Country: | USA |
| Your comment or story: | I will respond more completely at a later time. |
| Your name: | Vlapp |
| E-mail address - Optional: | lvivianm@yahoo.com |
| City, State or Province: | NT, NY |
| Country: | USA |
| Your comment or story: | I have had an ileostomy for 5 years. Is anyone out there having a problem with either a Pyoderma gangrenosum, or a Pressure Ulcer near their stoma? I have been to the surgeron's office and the WOCN for the last few weeks. Am currently under the care of the Nurse. I am getting worse and it hurts a lot and bleeds. What to do besides see the Et Nurse. I do not want another surgery to re-locate the stoma. HELP ! |
| Your name: | genny |
| E-mail address - Optional: | clipperqueen007@yahoo.com |
| City, State or Province: | pittsburgh |
| Country: | usa |
| Your comment or story: | Hi..all you fellow ostomates..I have an ileostomy, we are getting along fine. I wish everyone a happy & blessed holiday! |
| Your name: | Kym Calway |
| E-mail address - Optional: | kymcal@hotmail.com |
| City, State or Province: | Toronto, Ontario |
| Country: | Canada |
| Your comment or story: | Hello, My name is Kym and on September 27th 2007 I had my bladder removed due to Bladder Cancer.I am doing well, just had checkup #4 and I'm doing great..Cancer free.I have done quite well with my illeostomy as well. It's not very pretty, however, I suffered so much pain and almost died during my 10 hour surgery, that I bless my "Stomy" everyday. I have a wonderful husband, who's support is amazing and two wonderful children(teens) who are very happy to have me here.I am a very grateful woman, who has always been very positive(that's the only way I survived)I am so grateful that they could even do this..Live Life, Kym |
| Your name: | Rose |
| City, State or Province: | Everett, WA |
| Country: | USA |
| Your comment or story: | I am very happy to be receiving this news letter. A lot of what is said, I had to learn on my own the hard way so it is wonderful that such helpful information is out there for neew ostomates.
It did take me longer to get used to being "differnt" and I think I "missed" my colon since it had been with me for over 60 years...but the alternative was not an option. I am so glad to be without the bowel disease (UC) which could not be managed with medication and I sure am so happy to be without pain. Thanks for the newsletter. It is appreciated. |
| Your name: | Milton Cooper |
| E-mail address - Optional: | medi_cooper@yahoo.com |
| City, State or Province: | Auburndale Florida |
| Country: | USA |
| Your comment or story: | Very good articles. Keep up the good work |
| Your name: | Joyce DeGrasse |
| E-mail address - Optional: | ReJoyce4Christ@aol.com |
| City, State or Province: | Bronx, N.Y. |
| Country: | USA |
| Your comment or story: | I appreciate getting the newsletters evey month. Even though I have had my ileostomy for 35 years, there is always something new to learn. |
| Your name: | Pam MacIntyre |
| E-mail address - Optional: | pammacintyre@aol.com |
| City, State or Province: | Florida |
| Country: | USA |
| Your comment or story: | I am presently writitng my story to submit to Phoenix magazine. Ileostomy since 1975. |
| Your name: | VML |
| E-mail address - Optional: | maggieviv@hotmail.com |
| City, State or Province: | New York |
| Country: | USA |
| Your comment or story: | This is a very helpful website. Thanks for being there. |
| Your name: | Bobbie |
| E-mail address - Optional: | ponurse2@aol.com |
| City, State or Province: | Loves Park IL |
| Country: | USA |
| Your comment or story: | I have to tell you, as a nurse of 35 years, you have absolutely no idea what it is to have an ostomy.
This is my second ostomy. Even though some things have changed, the bags mainly, a lot of the issues remain the same. I was thrilled to get this newsletter. To be in touch, even by email, with others that have ostomies. I know putting out a newsletter is time consuming, but may I say, thank you for that time. I look forward to getting more news and hearing from those with issues to deal with and also good news, diets, and good living tips. |
| Your name: | Mare |
| E-mail address - Optional: | Marilyn.Ipsen@chw.edu |
| City, State or Province: | San Carlos, CA |
| Country: | USA |
| Your comment or story: | I just love reading all the interesting articles, information, helpful hints - it is so good to know that I am not alone in my new experiences. And it is truly amazing how many of us are out there! You just never know! I play a game at the mall and airports and try to guess which people have little buddies! The remaining challenge that I have are airplane bathrooms - not meant for ostomy folk. Really a challenge! Hugs - |
| Your name: | Sharon |
| E-mail address - Optional: | hypnosis4all@att.net |
| City, State or Province: | California |
| Country: | United State |
| Your comment or story: | I have a permanent colostomy due to rectal cancer. I am totally fine with it and happy to be alive. I am so thankful for this website, because it answers questions I hadn't even thought of. It is nice to know the answers ahead of time. Thank you for being so caring. |
| Your name: | Bonita Hicks |
| City, State or Province: | Lisbon Ohio |
| Country: | USA |
| Your comment or story: | I really enjoy your newsletter.It has some good information. |
| Your name: | Bertille Reynolds |
| E-mail address - Optional: | breyno1050@aol.com |
| City, State or Province: | Holden, MA |
| Country: | USA |
| Your comment or story: | Just wanted to say I enjoy these newsletters and the information that they provide. I'm a new Ostomate, had an ilieostomy in June after two years of suffering with ulcerative colitis. |
| Your name: | Clay Ames |
| E-mail address - Optional: | clayvonj@msn.com |
| City, State or Province: | warren, ohio |
| Country: | USA |
| Your comment or story: | if you have a problem with the lap seatbelt, use a clothspin to keep belt from tightening over your stoma. Works great. |
| Your name: | Ed Agnew |
| E-mail address - Optional: | puzzeled1@hotmail.com |
| City, State or Province: | Hamilton Ontario |
| Country: | Canada |
| Your comment or story: | I really like these news letters they do help me in my every day to day life. Thanks ! |
| Your name: | susana d castro |
| E-mail address - Optional: | susanadcastro@hotmail.com |
| City, State or Province: | California |
| Country: | USA |
| Your comment or story: | You are doing a great job!!! I have had an ileostomy for decades and I always learned something new reading your valuable newsletter. Today I pressed a link and found out about the job they are doing in Bolivia!!! Excellent news! There is a lot of work to be done in South America...I am a native of Ecuador living abroad. Keep up the good work and if I can be of any help, please, let me know. Congratulations! |
| Your name: | Ed Brown |
| E-mail address - Optional: | brown727@gmail.com |
| City, State or Province: | Richmond, Va. |
| Country: | USA |
| Your comment or story: | I enjoy the newsletter, and have gained a lot of knowledge from it. Thanks to all who prepare the newsletter. |
| Your name: | Lani Oden |
| E-mail address - Optional: | lanioden56@hotmail.com |
| City, State or Province: | Fremont,CA |
| Country: | United States |
| Your comment or story: | I have had my ileostomy for 3 years. I still consider myself to be a "newbie". I have been receiving your newsletter for almost a year. It has been helpful in so many ways. It has answered quite a few questions for me. Thank you. |
| Your name: | willis bennett |
| E-mail address - Optional: | willbenet@aol.com |
| City, State or Province: | MD |
| Country: | usa |
| Your name: | Gail Erickson |
| E-mail address - Optional: | erickson_gail@yahoo.com |
| City, State or Province: | TX |
| Country: | USA |
| Your comment or story: | i always love reading this newsletter. it gives me insight into so much so that i may care for my ostomy patients with more understanding and knowledge. Gail, CWOCN |
| Your name: | victoria seese |
| E-mail address - Optional: | lucky2bkgn@aol.com |
| City, State or Province: | lenoir city,TN |
| Country: | USA |
| Your comment or story: | For 27 yrs. I have had an eilostomy. Due to Chrons Disease. I am very happy. Never have any problems. A proud mother of three. First was born 4 months before my surgery. Then 6 & 7 yrs. later had 2 more babies. I can eat most anything. Certainly I have had to learn what not to eat. I was 25 and weighed in at 82 pounds when I had my surgery. I was involved for years with the UOA in Parkersburg,WV.,after my surgery in Huntington,WV. Now I live in TN. HAven't been to involved here because of raising my children but now that they are grown. I just may start up again. I am a stay at home mom. Still have one in high school ,her senior year is apon us. That is exciting. Thank you for letting me sign your guestbook. |
| Your name: | Jim Hackett |
| E-mail address - Optional: | jhackle@verizon.net |
| City, State or Province: | Horseheads, NY |
| Country: | USA |
| Your comment or story: | I enjoy receiving your very informative news letter, I've never seen a link to your database on Shaz's board not sure about Jasons but there should be a link on both. |
| Your name: | marian |
| E-mail address - Optional: | fmorringer@fuse.net |
| City, State or Province: | cincinnati, ohio |
| Country: | usa |
| Your comment or story: | I await the Ostomy newsletter. Thank you for yor efforts and time involved
Marian |
| Your name: | brian horsch |
| E-mail address - Optional: | bhorsch6969@gmail.com |
| City, State or Province: | wichita, ks |
| Country: | USA |
| Your comment or story: | have been fighting ulcerative colitis for 27 yrs. They tell me i need an ileostomy to continue. Very reluctant to do this. On this site researching info. thanks |
| Your name: | brian horsch |
| E-mail address - Optional: | bhorsch6969@gmail.com |
| City, State or Province: | wichita, ks |
| Country: | USA |
| Your comment or story: | have been fighting ulcerative colitis for 27 yrs. They tell me i need an ileostomy to continue. Very reluctant to do this. On this site researching info. thanks |
| Your name: | Rebecca |
| City, State or Province: | LA |
| Country: | USA |
| Your comment or story: | I was diagnosied when I was 15. I am now 31. I have had several operations and now my chrons is in remission for the last 4 years. I am married and have a son. |
| Your name: | John M. Johnson |
| E-mail address - Optional: | cnjjmj@aol.com |
| City, State or Province: | Campbell ca |
| Country: | USA |
| Your comment or story: | The best form for Ostomy users..Thankyou |
| Your name: | Joanne |
| E-mail address - Optional: | jlinihan@neo.rr.com |
| City, State or Province: | Ohio |
| Country: | USA |
| Your comment or story: | Hi all, I'm a 65 year old female with an ileostomy due to Crohns disease. Have had it for 30+ years. Pain is every day and I'm sick and tired of it. I am active as I can be. A Grandma, wife, etc..Church goer, animal lover and have a wondrful marriage of over 40 years. How do others deal with daily pain. That's my question and please feel free to answer. Thanks to all and God Bless |
| Your name: | Joanne |
| E-mail address - Optional: | jlinihan@neo.rr.com |
| City, State or Province: | Ohio |
| Country: | USA |
| Your comment or story: | Hi all, I'm a 65 year old female with an ileostomy due to Crohns disease. Have had it for 30+ years. Pain is every day and I'm sick and tired of it. I am active as I can be. A Grandma, wife, etc..Church goer, animal lover and have a wondrful marriage of over 40 years. How do others deal with daily pain. That's my question and please feel free to answer. Thanks to all and God Bless |
| Your name: | marcie thibodeaux |
| E-mail address - Optional: | marciethib@yahoo.com |
| City, State or Province: | crowley, louisiana |
| Country: | us |
| Your comment or story: | I WORK AT THE LARGEST MEDICal supply company in louisiana. your website really helps me with questions and suggestion for all of our ostomy patients.
thank you so much you really are helping people who need it |
| Your name: | Cheryl |
| E-mail address - Optional: | jeffersc23@yahoo.com |
| City, State or Province: | Ohio |
| Country: | USA |
| Your comment or story: | Hi,
I have written before but my story seems to not get posted. I would like to know if there is anyone else with urostomy that has become antibiotic resistant.I have had to have IV antibiotic treatments twice within the last 6 mo. Have had a urostomy for 15 yrs and never had this problem before.Have always been on low dose antibiotic as a preventative measure. |
| Your name: | wendy |
| E-mail address - Optional: | wendywilliams338@btinternet.com |
| City, State or Province: | Conwy N Wales |
| Country: | UK |
| Your comment or story: | I was diagnosed with M.S. in 1993, the main problem arising from the disease was urinary incontinence which became disabling as regards daily living. In 1999 I had an urinary diversion and said goodbye to inco pads and wet beds. All went well for four years then I started to get the urge to pass water, odd as my urine was exiting through a stoma and the little pouch left of my bladder was supposedly defunct. The urge to urinate became intense family and friends soon learned not to have any water ruinning without warning me, I have been having botulinum injected into whats left of my bladder which gives me relief for a few months. Two years ago I also developed a peristomal hernia which was duly repaired, recurred, repaired again this time I also had a post operative haematoma which became infected causing systemic toxicity, and the hernia to reappear. A third repair was carried out last november a few weeks ago I had a bowel obstruction with accompanying vomiting and yes it popped out again. What a sorry saga, I'm still here with a big lump sticking out of my abdomen with a urostomy bag perched on top. Has anybody else experienced the same, the urge to pee is met by disbelief by most people even medical and nursing staff, I surely can't be the only one. |
| Your name: | betty |
| E-mail address - Optional: | bettylou0526@att.net |
| City, State or Province: | Indiana |
| Country: | USA |
| Your comment or story: | I have had my iliostomy for 5 years now due to ulcerative colitis for 30 years. I had a few set backs with adhesions and blood clots, but am doing more than I ever thought I could. I'm ALIVE and experiencing being a grandmother even though my career takes me from state to state. I would like to make e-mail friends who can relate to our disease, set backs and successes. Feel free to contact me for moral support or questions. Single? Me too! And doing fine! Let's talk..... bettylou0526@att.net |
| Your name: | Cheryl |
| E-mail address - Optional: | cherww@surry.net |
| City, State or Province: | North Carolina |
| Country: | USA |
| Your comment or story: | I've had my ileostomy 23 years due to FAP. I've been through about anything and everything with it. I still thank God every day for it because it saved my life. I love talking with other ostomates and helping if I can. If you'd like, feel free to email me. |
| Your name: | Dianna |
| E-mail address - Optional: | dimoegobeil@hotmail.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | 5 year colon cancer survivor with permanent colostomy.. |
| Your name: | LUCY DEGIDON |
| E-mail address - Optional: | lucycat1203@yahoo.com |
| City, State or Province: | bronx, ny |
| Country: | USA |
| Your comment or story: | I have had an ostomy since 2002. It took a year for me to feel normal again! Today I actual find it very convienent, unless I have to get a colostomy. In which case, have to change very often, and lack of control, becomes a very monterous problem!
I do wish that the public was not so touchy about the subject of ostomies, etc. I believe it comes from childhood and the no, no's involving elimination! Better education on this matter might be helpful in the early detection of colorectal cancer. |
| Your name: | Dianna |
| E-mail address - Optional: | dimoegobeil@hotmail.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | Hi..5 year colon cancer survivor...first had ileostomy with a reversal that was unsuccessful..now have permanent colostomy..love it.. |
| Your name: | Frances H |
| E-mail address - Optional: | 1629costales@comcast.net |
| City, State or Province: | Las Cruces, New Mexico |
| Country: | USA |
| Your comment or story: | Hi everyone just found this site and am very glad to know i am not alone. I have an ileostomy for the past 22 years. I have had 2 surgeries cause of a sunken stoma. My husband had colon cancer 2 years ago an had to have a temp colostomy. When it was reversed i was very happy for him but also very jealous. I had to do all of his changes of bags and everything. An then do my own. But right now things are good for both of us Thank God.
Thank You again |
| Your name: | jennell horton |
| E-mail address - Optional: | jennell_horton@yahoo.com |
| City, State or Province: | lyons new york |
| Country: | us |
| Your comment or story: | I HAVE AN OSTOMY AND NO WAY TO PAY FOR THE WAFERS OR THE BAGS I NEED HELP |
| Your name: | michael sherlock |
| E-mail address - Optional: | mike@wimanx.net |
| City, State or Province: | ramsey |
| Country: | isle of man. uk. |
| Your comment or story: | hi , have been on this site before but my name is not here, so signing in again. l am 55yrs old with urostomy most of my life, life is good ,don't know anything else, happy to talk to any one if they like .
l use two different brands and it does not bother me , if you want to know more write and say hello . mike |
| Your name: | christy |
| E-mail address - Optional: | mackenzie_renea02@yahoo.com |
| City, State or Province: | canton, pa |
| Country: | 17724 |
| Your comment or story: | i have had an illeostomy for 2 yrs now..
trying to find others who are dealing with the same.. |
| Your name: | diane |
| E-mail address - Optional: | nediane611@verizon.net |
| City, State or Province: | massachusetts |
| Country: | U S A |
| Your comment or story: | Hi Larry:
Thought to email you sooner as to your surgery: Didn't forget get busy and then time flies by. Hope you are doing well. I am not too adapt as to navigating the forum, but could there be one for meedicines folks take for their crohn's, ulcerative colitis, etc.?? Take care Diane |
| Your name: | Robert C Holcomb |
| E-mail address - Optional: | robcholcomb@cox.net |
| City, State or Province: | Providence, R.I. 02906 |
| Country: | USA |
| Your comment or story: | I like this web-site very much, When I read some of the stories, it makes me realize no matter how bad things are for me, there are so many people out there that have it so much more difficult.I hav written a couple of times and asked for suggestions on any others, haveing a large output, I had this surgery because I had chronic diaheria and the Dr, thouht it would help. Instead I produce on average 3-4 liters a day, sometimes up to 6. I was told to expect about 1-2 litersin a toothpaste type consistency, that is not what I have, my Drs. answer was some people have larger outputs. I have never recieved any comments to my requests, I can't be the only one, please respond. I thank you all for your valuable infomation, and hope this site helps you too. Thanks Robert |
| Your name: | kendra royall |
| E-mail address - Optional: | nykkole6@yahoo.com |
| City, State or Province: | nc |
| Country: | usa |
| Your comment or story: | i have wore cymed bags for 10 years and now out of the blue they are on back order. makes me so mad. i called company and they said they where out of the material to make bags. is anybody else mad? kendra |
| Your name: | john hallenbeck |
| E-mail address - Optional: | johnxavierhallenbeck@yahoo.com |
| City, State or Province: | covington, Louisiana |
| Country: | united states of america |
| Your comment or story: | have had colostomy and urostomy since birth 37 years having hard time with getting supplies. i now lost my job and cant afford supplies. i was turned down for medicaide and am currently appealing the decision of the state. i need help please write and or call me at 244 robinhood road covington, louisiana 70433 (985) 867-1884 |