Hi there, come on in and SIGN our Guest Book
| Your name: | Jan Volkmer |
| E-mail address - Optional: | jvolkmer@intrrnode.on.net |
| City, State or Province: | Adelaide |
| Country: | Australia |
| Your name: | Karen Franco |
| E-mail address - Optional: | kfranco10@cfl.rr.com |
| City, State or Province: | ocala, fl |
| Country: | USA |
| Your name: | Betty Elwyn |
| E-mail address - Optional: | bttlwn9@gmail.com |
| City, State or Province: | New York State |
| Country: | USA |
| Your comment or story: | I have had a colostomy since 2004. I would like to find some email pals to write to. |
| Your name: | Sharon Henderson |
| E-mail address - Optional: | sharonahenderson@yahoo.com |
| City, State or Province: | Boaz, Alabama 35956 |
| Country: | USA |
| Your comment or story: | I have had an ostomy for 21 years and it gave me my life back from interstitial cystitis. I would like a penpal from this year. |
| Your name: | Patricia |
| E-mail address - Optional: | pdunny@yahoo.com |
| City, State or Province: | Massachusetts |
| Country: | USA |
| Your comment or story: | Hello! I wish I had found this site a year ago. I had part of my colon removed and ended up with..you got it...THE BAG. Eight months later I had reversal surgery that was "hellish" to say the least..I didn't have a lot of other problems that some of you have written about. I just had problems with infections. The only real problem was that I couln't find shoes to match my bag...! |
| Your name: | abdalla saleh |
| E-mail address - Optional: | ostomy@hotmail.com |
| City, State or Province: | cairo |
| Country: | Eygpt |
| Your comment or story: | Thank you for your interest ostomy |
| Your name: | Howarth |
| E-mail address - Optional: | thowarthri@aol.com |
| City, State or Province: | Warwick, RI |
| Country: | USA |
| Your comment or story: | I just want to show my appreciation for Larry's insights. I miss the newsletters and send my best thoughts. |
| Your name: | Brandon Gibson |
| E-mail address - Optional: | brjgibso@gmail.com |
| City, State or Province: | Fishers, IN |
| Country: | USA |
| Your comment or story: | Steve a few comments below, I understand that there is complaining but there are a lot of people that are not like you. That is great that you have been able to adjust but you know nothing different. I received mine at the age of 19, was in the Army, and serving my country proudly. I understand that people are complaining but this is the type of site for that, and for support. I understand you have to move on with your life but there is a huge difference between growing up with one, and living one way and completely altering your life. I have had 16 surgeries in the past in 8 years, but yet I have gotten my Bachelors and my Masters, gotten married and started my own successful business while going through all of that. I am still in the hospital atleast one time every year due to different complications of obstructions, and other issues. However I don't tell people to get over it and actually just try to give advice. Everyone is different so don't jump on someone for complaining, about a life altering experience, maybe it is their way to vent to someone that actually understands what they are going through. Tough words work on some people but not everyone here responds to a drill SGT, I suggest you join up with http://www.ostomyguide.com/no-guts-know-glory-seven-summits-campaign-to-climb-mount-everest/ and see if you can do that with them. That is awesome you are in wonderful shape and feeling great, but give support, to the complainers and see how you can help make them feel better since you "know the ways" instead of just calling them "whiners." |
| Your name: | arnold toas |
| E-mail address - Optional: | arnoldtoas@btinternet.com |
| City, State or Province: | southampton |
| Country: | england |
| Your comment or story: | I am still amazed with my computer |
| Your name: | glenda bailey |
| E-mail address - Optional: | mrabbit10@yahoo.com |
| City, State or Province: | Iowa Falls Iowa |
| Country: | USA |
| Your name: | barbara |
| City, State or Province: | russellville |
| Country: | usa |
| Your comment or story: | excoriated skin near stoma |
| Your name: | Pat Ledger |
| E-mail address - Optional: | pledger@wi.rr.com |
| City, State or Province: | WI |
| Country: | USA |
| Your comment or story: | RE: Pam Winger- Pam's Son Chris Facebooked Me to tell Me that my wonderful Friend & fellow Ostomate Pam Gellerson Winger-from Canada passed away 1-30-2011. I was aware that Pam posted on this site. I thought you might like to know that Pam is now an Angel watching over us all. Bonded by Ostomy Friends we'll always be. RIP Sis-Pam - I will never forget you :)
I met Pam when she emailed Me following the passing of our mutual Friend Elizabeth Lynn who passed away 4-14-2007. I posted a notice of Liz' passing when Liz' Daughter called me from Scotland to inform Me. My wonderful Friend Pam thought I needed another Friend since we both lost our wonderful Friend Liz. Bonded by Ostomy Friends we'll always be. RIP Liz - I will never forget you :) I am so grateful to have this site- for Ostomy info & more importantly Friendships formed with Ostomates- people that have gone through life altering experiences like Me that share their experiences and become wonderful Friends sharing life experiences. My Ostomy Friends are Angels on earth. My wonderful Friend & fellow Ostomate Alistair Robinson-Scotland is a gift to Me. Long live Ali & Me so we have eachother to share Ostomy info & more importantly- Friendship on earth. Thank you UOA for hosting this site which has enriched my life in so many ways through the wonderful Friendships I have made when just stopping by to read ostomy info as a new ostomate & carried Me through to today posting this very heartbreaking news that we have lost another wonderful Ostomate & gained a very strong Angel-Pam. AWOY Sincerely, Pat Ledger |
| Your name: | Linda Given |
| E-mail address - Optional: | iamaqtnwv@yahoo.com |
| City, State or Province: | Strange Creek WV |
| Country: | United States |
| Your comment or story: | Hello Everyone,
I had surgery on April 13, 2010, to repair an Abdominal Aortic Aneursym. My wonderful vascular surgeon was very up-front about the risks and long recovery period without complications. There were complications during this surgery which caused it to take much longer than normal. I could not wake up and the doctors did not know why I wasn't responding. By the way, all of this information I learned from family members, doctors and nurses. I remember nothing. Four days later, on April 17, 2010, a wizard of a doctor figured it out. I had lost blood supply to my colon during the repair surgery and it was basically rotting away and poisioning by blood stream. He did an emergency surgery and used the same incision that was made for the AAA repair and made me an ileostomy. Actually, the doctors had told my family that I might not survive, but here I am. So I went into the hospital with an aneursym which is now gone but came out with the ileostomy about which I was totally ignorant and for which I was totally unprepared. My family asked the doctor to tell me about it and explain it to me. Long story, short; I was devastated. After 64 days in the hospital, I was released to come home still hooked to a wound vac and requiring a home health nurse and home physical therapist because I was barely able to speak because of being on the ventilator so long, barely able to walk, and as depressed as I think a human could possibly become. However, I have always been a fighter and made up my mind that with the amazing doctors who saved my life, the many people who had prayed for me, and last but not least, my devoted husband, sisters, and son who had took care of me when I couldn't do it myself, would not be let down. It has taken months now with many ups and downs, but I am adjusting to living with my ostomy and all that comes with it as well as recovering from the two surgeries. The doctors told me it would take at least one year for me to recoup. I am slowly regaining muscle strenth and still go to physical therapy 3 times a week and even though I get frustrated daily because of the ostomy and the change that comes with it, I simply have a little cry, if necessary, and pray for strength mentally and physically. After all, as it has been said many times, "it's better than the alternative." Without my ostomy, I would be history, therefore, I am so very grateful to be alive that as the highs and lows come and go, I deal with them. |
| Your name: | Kathleen |
| E-mail address - Optional: | 1chon@fuse.net |
| City, State or Province: | Cincinnati, OH |
| Country: | USA |
| Your comment or story: | I have had an ileostomy for ten years and have enjoyed many trips here in the US and in Europe. No problems flying for I make sure I have the necessary supplies with me. But. . . now that TSA security has increased, I am hesitant to book my flight to England in January. After reading the news story about Thomas Sawyer, I am worried about what this "adventure" will be like for me. Any advice? |
| Your name: | Cathy Gray |
| City, State or Province: | Hollister, CA |
| Country: | USA |
| Your name: | BEKI CAMPBELL |
| City, State or Province: | SAPULPA, OKLA. 74066 |
| Country: | UNITED STATES |
| Your comment or story: | I HAVE HAD A TIME WITH AN ILLESTOMY AND FOOD. EVERYONE SAYS EAT GREEN VEGS BUT THEY DONT GO THROUGH ME VERY WELL. SO I FEEL LIKE I DON'T EAT WELL |
| Your name: | steve |
| City, State or Province: | grand rapids MI |
| Country: | USA |
| Your comment or story: | Seriously, I see too much complaining here. I came down with UC at age 5, had an ileostomy at age 11, and I am now 54 years old. I have college degrees, work full time, married with kids, and have never used the word disability in my life. I have skydived, backpacked europe and wilderness areas, ski, camp, bike ride, etc. I eat anything and everything - usually too much(!) - but have stayed in good health and physical shape. I did go through an internal scar tissue surgery at age 13, but no issues otherwise. Over time you learn what you need to know. So, stop worrying, stop complaining, and get on with life. You are still alive, right? |
| Your name: | arnold toas |
| E-mail address - Optional: | arnoldtoas@btinternet.com |
| City, State or Province: | southampton |
| Country: | england |
| Your comment or story: | help to run a support group for ostamates would like to talk about our group |
| Your name: | Edie |
| E-mail address - Optional: | edysweetie@yahoo.com |
| City, State or Province: | New York |
| Country: | U S A |
| Your comment or story: | Hi I had my ileostomy surgery June 4th,2009. Its been problems ever since. I have leakage problems tape alergies and I also have a hernia. I go to the surgent this friday Oct 9th, 2010. If anyone has had this surgery I would appreciate some information on it and just how it turned out. Successfully I hope. Will someone please e-mail me at the above address I need some feedback. Thank You so very much I'm trying to hang in there Edie |
| Your name: | Carol |
| E-mail address - Optional: | caltom@mweb.co.za |
| City, State or Province: | East London |
| Country: | South Africa |
| Your comment or story: | After suffering from UC for a good 20 years, and having been on high doses of cortisone for 10 of those years, I had to make the decision to have an ileostomy and total colectomy, as the cortisone was no longer working, was affecting my bone density and my face looked like the full moon.I was virtually house bound as I could not be away from a toilet for long as I needed to go at least 30 times a day and life was extremely hard to bear. I had the op in June 2006 and with much trepidation, came home to face the world with my perceived disability.What a difference this op.has made to my life--can go anywhere at any time and most often I forget that I even wear a bag and now that the cortisone has worked it's way out of my system, I no longer have Cushingoid features.I am thankful every day that I made the decision to go ahead with the op.
Whilst I was recuperating, I searched the web for a site on dealing with ileostomies and so luckily came across your wonderful webpage. I cannot begin to tell you how much your advice has helped me and others whom I know have been through the same surgery and each month I look forward to your newsletter.The amazing thing is that I had no idea where Evansville was and only discovered recently, as we plan our emigration from South Africa to Canada, that Evansville is right there in Canada. What a bonus, being closer to your domain and as soon as I have a new e-mail address in BC. I look forward to the continuation of your very helpful, practical newsletters. We are hoing to settle in Victoria area and I will need to find an ET nurse so would be grateful for any names and e-mail addresses so that I can make contact and also find out where to get supplies of bags etc. Sincere thanks for a wonderful, inspiring web site and I do hope that you keep on with it. Kind Regards, Carol. |
| Your name: | Nancy Wadleigh |
| E-mail address - Optional: | nabw@comcast.net |
| City, State or Province: | Kensington, NH |
| Country: | USA |
| Your comment or story: | Living with an Illeostomy for 7 yrs now. Yeah, it's gotten better but I still long to be normal. I know my health is better but physically it's still hard. |
| Your name: | Mich |
| E-mail address - Optional: | mpsimmonds60@gmail.com |
| City, State or Province: | Vic |
| Country: | Australia |
| Your comment or story: | I just thought I would like to add my name to the long
list of wonderful people who are surviving after a difficult adjustment to their lives. My Ileostomy is only 5 months old and still with lots of diarreah.life sucks at the moment but it's better than the alternative. Take care!! |
| Your name: | Carolyn Gotshall |
| E-mail address - Optional: | rwgotshall@netzero.com |
| City, State or Province: | St. Petersburg |
| Country: | U.S.A. |
| Your comment or story: | Have been living with a urostomy for three years.
Now due to developing a hernia behing the stoma area area the colen ruptured..In having same operated on was found to be unable to repair the lower bowl.Making it nessarry to do Illeustomy outlet..After two months in hospital am now in rehab..The bowl is producing large amount in loose form still..Only two hour holding now.Understand should thicken later as to diet..Need input on how to handle overnight storage with out a folly unit??These bags blow often..I have a wonderful husband who is a master plumber and belive me,,he's working on it,Says he's been handing that stuff all his life..Carolyn.. |
| Your name: | Jean |
| E-mail address - Optional: | bluejean48706@yahoo.com |
| City, State or Province: | Mich |
| Country: | USA |
| Your comment or story: | Hi Everyone,
I'm a newcomer to to this website which is great for individuals to get informations and express their views. I'm 67 years of age had my illeostomy for 11 years. I,m still in the work force part time. If I would not have had the surgery done, I would not be writing this information. I golf, line dance and very active doing many other things, I would like information or anyone's experience when they fly in a plane if they have any problems with the airlines security. You may email me at bluejean48706@yahoo.com. Thanks, Jean |
| Your name: | demetrius wellington |
| E-mail address - Optional: | djw@gmx.com |
| City, State or Province: | brownsville,tn |
| Country: | united states |
| Your comment or story: | suffered from UC for 3yrs got an ostomy life still sucks. |
| Your name: | SUSAN LOVATO |
| E-mail address - Optional: | rolypolylovato@yahoo.com |
| City, State or Province: | Bakersfield, Ca 93309 |
| Country: | USA |
| Your comment or story: | I have had my ostomy since 2006. It has taken me up until about a year ago to finally settle down and except that this is my new way of life. No more tears, no more frustration. In fact sometimes i find myself talking to my stoma when it gives me problems. God Bless! |
| Your name: | SHERRY |
| E-mail address - Optional: | maudkitty40@aol.com |
| City, State or Province: | colton |
| Country: | USA |
| Your comment or story: | HI EVERYONE
I HAVE HAD MY OSTOMY SINCE 20005 MY OSTOMY BECAME INFECTED IN NOV-20008 AND THEY HAD TO MOVE IT. I AM NOT HAPPY AND HAS NOT GOTTEN USE TO IT YET I TRY TO GO ON WITH MY LIFE ATTENDING FAMILY GATHERING'S PICNICS AND DINNERS AND PARTIES TO KEEP MY MIND SANE.BUT I AM STILL UNHAPPY WITH THIS SURGEY I CAN'T GET USE TO THE IDEA OF WEARING A BAG MY FAMILY TREATS ME VERY WELL AND TREAT ME VERY NORMAL. |
| Your name: | George |
| E-mail address - Optional: | myska@ih.cas.cz |
| City, State or Province: | Prague |
| Country: | Czech Republic |
| Your comment or story: | I had my first ostomy operation in 1998, later came two reconstructions. In 2008 I got two heart bypasses. I have lived good life with the ostomy and renewed heart, worked and travelled and did all my hobbies. Thanks to my doctors. At present a tumor on my lungs is radiated and I still live. I wonder what will me meet in 2018.
I am glad to receive the Evansville News. |
| Your name: | shirley |
| E-mail address - Optional: | maudkitty40@aol.com |
| City, State or Province: | los angeles |
| Country: | usa |
| Your comment or story: | OSTMYHI
I HAVE HAD AN OSTOMY FOR 5 YEARS NOW AND I STILL FEEL DEPRESSED AT TIMES AND WONDER WHEN IT WILL GO AWAY FOR GOOD. |
| Your name: | Cindy |
| E-mail address - Optional: | cra04@aol.com |
| City, State or Province: | California |
| Country: | USA |
| Your comment or story: | I am a recent urostomy patient. I continue to have reoccurring infections. I have been on some kind of sntibiotic now for 2 years. I had an injury to my bladder that caused 7 surgeries before receiving the urostomy. My doctor has be now cathing every nite and then thru the catheter inserting 30cc of an antibiotic. Has anyone out there had this issue? I would love to talk with you and hopefully have good news that these infections will end.
Thanks, Cindy |
| Your name: | genny |
| E-mail address - Optional: | inflationfighter@libcom.com |
| City, State or Province: | pittsburgh,pa |
| Country: | usa |
| Your comment or story: | Hi everybody. I lost my colon to ulcerated colitis. Doing ok..but, got a parastomal hernia..had it removed & the doctor created another one. They want me to live with it! Summer is coming..does anyone know of a surgeon who is really good at hernia removal under the stoma?! I use a tube top to cover over the area for the squeamish. Enjoy..be upbeat. Inflationfighter@libcom.com Thanks for all the tips, genny 2110 |
| Your name: | Harold |
| E-mail address - Optional: | haroldf@charter.net |
| City, State or Province: | WI |
| Country: | United States |
| Your comment or story: | Hi,
Just wanted to add to the many other positive letters from individuals with and Illeostomy. I had my surgery in 1984. I have been working full time ever since even now at the age of 70. I do great deal of volunteer work including chain saw work etc. I love to ski and skied cross country 600 miles this year. I have done the American Birkebeiner Ski race 23 times. I have always felt that this surgery gave me a new life and appreciate all that the surgery has allowed me to do. The only reason for writing this is to let people in doubt know that in many cases, one can lead a very normal healthy life. I am one of the fortunate ones but I do work at staying in shape and eating healthy foods. Please feel free to write if you have any questions of me. |
| Your name: | cheryl glendenning |
| E-mail address - Optional: | fascas@nb.sympatico.ca |
| City, State or Province: | new brunswick |
| Country: | canada |
| Your comment or story: | Had an ilestomy since 1983...receive this email regularly, enjoy it very much. I've been in perfect health but the last while have been fighting an infection which I can't seem to get rid of... it is in my stomach and I have been plaqued with constant sinus infection I am currently taking way to much antibiotics for my liking. Has anyone else had anything similiar..please let me know. |
| Your name: | jay humphrey |
| E-mail address - Optional: | jayphumphrey@sbcglobal.net |
| City, State or Province: | texas |
| Country: | u.s.a. |
| Your comment or story: | I had total colectomy at age 38 and now have a bag
I am now 47 but I look 37 and I never married! and of course it's made it more difficult to find some one now but I am stil looking. for a Christian 28-34,I would like children you know but I dont have to. |
| Your name: | John LS |
| E-mail address - Optional: | mailjohnls@aol.com |
| City, State or Province: | Portland, OR |
| Country: | USA |
| Your comment or story: | WOW! I have a similar story - me Diverticulitis! OUCH! Yep - Two months of dotors visits - "No Problem found" - Yeah - when I made the idiot take the x-rays and my "colon was the size of a ham" he sent me down - x-rays in hand - as the emergency room doc was looking at me in amazement that I had driven myself in he said "you sould not even be walking" - "How did you do that?" - yeah... Life is just like that sometimes - anyway - had the takedown like 4 years ago and well - just started feeling like bad - do they break open? Just wondering as I have been sick as - yeah - for like a couple weeks - again - takedown was supposed to be ok... Hey - feel for you and - yeah - the good news is you are not going to die - the bad news... you are no going to die... yet... LOL - bit of humor - hope you understand! - Blessed be - je |
| Your name: | Cindy |
| City, State or Province: | Sacramento, California |
| Country: | USA |
| Your comment or story: | Suffered an injury to my bladder during a routine surgery. Since then 7 surgeries in 20 months. Now I have a Urostomy. I am 5 weeks post op and doing ok. Have already had my first infection. I really thought after the last surgery the infections would be gone. |
| Your name: | John Simmonds |
| E-mail address - Optional: | samsimmonds@bigpond.com |
| City, State or Province: | Adelaide |
| Country: | South Australia |
| Your comment or story: | Hi everyone, I have had an Ilestomy since June 2008 after a failed 9 year old "J" pouch, due to ulcerative colitis. I have developed some issues with the ileostomy lately, namely, 2 prolapses, and a bulging hernia of the small bowel. My surgeon is going to attempt to reconstruct another "J"pouch within a few weeks. I was wondering if there was anyone out there whom has had more than one "J"pouch constructed during their life whom would care to contact me about how they faired with this rather complicated procedure.
regards from John |
| Your name: | Darlene Levitt |
| E-mail address - Optional: | bdlevitt@telus.net |
| City, State or Province: | Alberta |
| Country: | Canada |
| Your comment or story: | Hi! I am 47 years old and living with a ileostomy since 1989, because of Crohns disease. It is nice to see so many people reaching and a supporting each other. Great website! |
| Your name: | JAY HUMPHREY |
| E-mail address - Optional: | jayphumphrey@sbcglobal.net |
| City, State or Province: | Texas |
| Country: | usa |
| Your comment or story: | at 38 I had my whole colon removed i have a ostomy bag
best decision I ever made concerning my disease! after being in the hospital for 2 months, this time they could not get back in control of it ....Thank God! now i am free from all pain and medications....Yea! and I have never regreted it since. Jay |
| Your name: | Dr. Angus Pringle(Veterinarian) |
| E-mail address - Optional: | angus@cnet.co.za |
| City, State or Province: | Durban, KwaZuluNatal |
| Country: | South Africa |
| Your comment or story: | The protocol my surgeon and Oncologist followed was that I underwent radiation- & chemo-therapy before surgery. I was operated on on the 8th June 2009. Recovery from surgery, mainly the rectal ablation wound took two months. Post-op chemotherapy had no side-effects. I am leading the same active, fulfiiling lifestyle that I have for 65 years.
The medical care I had was nothing short of outstanding. The surgeon, Dr. John Steachan, the Oncologist, Dr. Adam McCleave,Entebeni Hospital staff and the Durban Oncology Center staff are not only highly competent professionals, also approachable, concerned nice peple to interact with. The prayers of my family, my church and friends and my Christian faith played an important role in my recovery. If I can help anyone either by gioving advice, relating my experience which has been so very positive or through prayer, do please contact me. |
| Your name: | Christine |
| E-mail address - Optional: | cac53@earthlink.net |
| City, State or Province: | Ohio |
| Country: | USA |
| Your comment or story: | Hi everyone! I would like to thank Larry for his great newsletter. I've been receiving it for a few years....very informative.
I've had my ileostomy due to ulcerative colitis since 1990. I'm 56 and doing absolutely fine! I've got to say that I've never had to see my doctor about my ileo since my surgery 19 yrs. ago. I consider myself extremely fortunate. I have a full time job that keeps me hopping. I also love working in the yard and walking my dog. In other words I do all the normal things required of every day living. If anyone would like to contact me with questions or concerns about their ileo's please feel free. I will do my best to put your mind at ease.... or just give you moral support. ~~Chris |
| Your name: | MIKE |
| E-mail address - Optional: | mbfree1@bigpond.com |
| City, State or Province: | Sydney |
| Country: | Australia |
| Your comment or story: | I have had a irritation around part of my Stomal area WARM WATER does the trick, it's clearing up well.
Another VERY simple system, is to use the HYDRO COLLOID WAFER ON TOP OF THE IRRITAION. This may be seem difficult if the irritation is OUTSIDE the wafer area, NO problem! Cut the hole for your STOMA in the WAFER in such a position that your Irritated skin is covered by the wafer, Instead of dead center u may have to cut the hole 1 inch or 1&1/2 inch from center. or maybe cut it Lower or Higher! IT WORKS believe me, Just like the WARM WATER I used to spout about Many years ago. The KISS system is always the best. Don't Forget to SLOP that WARM WATER around the STOMAL AREA, and of course the wafer to remove it! DO NOT USE THE WIPES, Sorry all you manufacturers. My irritation this time was simply because I left my Wafer on TOO long. Wishing everyone a GOOD New year and Future. Sincerly MIKE here in OZ |
| Your name: | Rosy Probst` |
| E-mail address - Optional: | probst1566@comcast.net |
| City, State or Province: | Denver Colorado |
| Country: | usa |
| Your comment or story: | Hi! I love your newsletter and website. I am the president of the Denver Chapter and we are looking for a new website and want to begin to email our newsletter and post it on our website.
Can you give me some direction on what you have done? May I use any of your articles, will give credit of course. Thanks so much Rosy Probst |
| Your name: | Grant Wills, Jr |
| E-mail address - Optional: | GWillsJr@roadrunner.com |
| City, State or Province: | Beverly Hills, Ca. |
| Country: | U.S.A. |
| Your comment or story: | Aloha, my name is Grant and I have a permanent ileostomy due to Crohns. Since my complete protocolectomy procedure in 1988, I've been trouble-free since. I'm single and employed with the Federal Gov't. I like the Beach,Swimming, plus traveling to Hawaii(I'm part Hawaiian)and Las Vegas. I'm 5ft8in tall,150lbs,Athletic,Blk hair,Brn eyes,Handsome and I'm 58yrs young. I'm available and would like to hear from Female Ostomates age 30 thru 46yrs young. Happy Holidays and Happy New Year........
Grant Wills, Jr. |
| Your name: | Robert Borich |
| E-mail address - Optional: | raborich@bellsouth.net |
| City, State or Province: | Panama City, FL |
| Country: | USA |
| Your name: | christine |
| E-mail address - Optional: | christine1130@comcast.net |
| City, State or Province: | indiana |
| Country: | usa |
| Your comment or story: | have had a illeostomy for 16 yrs im 38 and im blessed i do have some pain more body pain that anything i have crohns disease |
| Your name: | Carrie Moore |
| E-mail address - Optional: | azsunwmn@aol.com |
| City, State or Province: | Aurora, CO |
| Country: | USA |
| Your comment or story: | I love getting this informative e-mail every month. Thank you for all your hard work putting this together for us! Have a great Holiday Season and keep the good advice rolling in.
P.S. I was born in Hammond, Indiana. |
| Your name: | Sonda |
| City, State or Province: | Texas |
| Country: | USA |
| Your comment or story: | Appreciate the hints and tips. My sister has rectal cancer and lots of trouble keeping her bag from leaking. She is 14 hours away from me and I have read these tips to her. We are both grateful for the internet and your website. God Bless |
| Your name: | pam winger |
| E-mail address - Optional: | rwinger1@cogeco.ca |
| City, State or Province: | ontario |
| Country: | canada |
| Your comment or story: | Hi all would love to hear from anyone on dialyis,I learned so much here about ostomies but now I really need some on this other life changing factor.Please write if you can share some positive info Thanks |
| Your name: | caron |
| E-mail address - Optional: | fulloflifemom@aol.com |
| City, State or Province: | PA |
| Country: | USA |
| Your comment or story: | Hi,
I am 46 and have Chron's disease since I'm 23. I had to have an emergence ileostomy around 10 years ago. Single mom to a 14 year old son who suffers from Tourettes syndrome among other challenges. I need your help!!!!!! PLEASE I was recently in the hospital with kidney failure. I was recently hospitalized for two weeks for EXTREMELY LOW MAGNESIUM AND POTASSIUM. Life or death low. My body is not holding my magnesium and potassium levels. The Doctors don't know why. They say it's due to my ostomy output but don't seem to know how to correct the problem. HELP, I know someone out there has had to either had this same problem or know someone who has had this problem. My blood is being tested twice a week and once again my magnesium level is only 1.5. I take the magnesium pills 2 three times a day and keep having to go to the hospital for magnesium infusions. Is this gonna be my life?? I live in Pennsylvania (Poconos) not the greatest Doctors here. I take Klor-Con powder for the Potassium and it seems to be working ok. Still fluctuates but not nearly as bad as the Magnesium. I never realized how serious electrolyte imbalance was until almost dying from it. If you can help me, I would be forever grateful. I know the answer is out there somewhere. Will someone bless me with the answer I am looking for. Please e-mail me at fulloflifemom@aol.com Thank you and God Bless, Caron |
| Your name: | GINA CASTILLO |
| E-mail address - Optional: | regy0654@hotmail.com |
| City, State or Province: | REPUBLIC OF PANAMA |
| Country: | PANAMA CITY |
| Your comment or story: | I LIKE VERY MUCH YOUR WEB PAGE,IT SO MUCHO INTERESTING,I WILL LIKE TO HAVE BY THIS WAY,AND KNOW FRIENDS,PEOPLE WHO HAVE JUST LIKE ME AN OSTOMY,ONLY ONE PERSON THAT HAVE AN OSTOMY CAN UNDERSTAND ANOTHER ONE, I AM A MATURE ,PROFESIONAL AND NICE WOMEN WHO ARE SINGLE, AND IS VERY HARD TO HAVE MENS FRIENDS HAVING AN OSTOMY.
IF SOMEBODY HAVE THE SAME FEELING LIKE ME PLEASE WRITE TO MY EMAIL regy0654@hotmail.com or nagy0654@yahoo.com. thank you all GINA |
| Your name: | Jan Brunton |
| E-mail address - Optional: | janbrunton1951@yahoo.com |
| City, State or Province: | Columbus, Ohio |
| Country: | USA |
| Your comment or story: | I see many folks concerned about their ileostomies and their concerns. Please...don't be overly concerned. At first, my biggest concern was always a leaking appliance, but once you get that hurdle cleared, you're good to go. And finding out what you can and can't eat - its all trial and error - what gave me problems before UC and the surgery, gave me problems afterwards - so I just avoided those foods. You just learn as you go. For example, I eat cashews...but not a lot. Maybe that would bother someone else's system - we're all different.
I'm 58 years old and have had my ileostomy right after I turned 19. I honestly don't think about mine and have never felt any different than someone that does NOT have one. I see emails from folks that are concerned about running, exercising, flying, having children - you can do these things. Just like anything else we do in our lives, use common sense. Do I eat popcorn? - Yes..a few handfuls and I'm happy. Do I enjoy a good glass of wine and a beer? Yes, in moderation. Do I exercise and workout (this includes weight training, aerobics, walking, etc.)? Yes, when I'm not do darned lazy. Do I have children? Yes, natural childbirth to a son 27 years ago. Do I travel - take road trips - walk - bike - (backpacked for a month through Europe at age 27) - yes, and was I concerned about my ileostomy when I did these things? No. Do I worry about restroom facilities where I work due to my ileostomy and always carry a change of clothes whereever I go? No, but I always keep a spare appliance with me at all times. It leaks, ya fix it. The first mistake people make is assuming they're different than everyone else. Don't do that. My biggest cheerleaders were my parents and they were absolutely wonderful with support. If you're having difficulty with leaky appliances, one that doesn't fit properly - get ahold of your ET and try something new. Trial and error when you eat - what may bother one ostomate may not bother another. Don't be afraid of life - its because of our surgeries we have life. Single folks....you will find the right person and if they're not accepting of your ostomy, then obviously, they're not the right person for you, you deserve better. Do I sound like I'm on a soapbox? Probably....but in 39 years, I've dealt with many of the situations you're going through at one time or another. I see other folks that have posted that have had their ostomies longer than I have - pretty amazing, don't you think? For those of you that are new to this adjustment to your life - stay strong, stay positive. You can do this. Kick back and enjoy life....and always carry that spare appliance. |
| Your name: | JoAnne Melker (LoGuercio) |
| E-mail address - Optional: | saturndrvr@charter.net |
| City, State or Province: | Madison |
| Country: | USA |
| Your comment or story: | The Ostomy newsletter is an exceptional source of information for ostomates. It has proven very useful to me ! Keep up the good work ! |
| Your name: | robert darrington |
| E-mail address - Optional: | texaspete874@yahoo.com |
| City, State or Province: | waldorf md 20601 |
| Country: | usa |
| Your comment or story: | HELLO I HAVE HAD A COLOXTOMY FOR OVER TWENTY YEARS MORE THAN THAT WAN TO HEAR MY STORY |
| Your name: | Frank Oxley |
| City, State or Province: | New Castle, Indiana |
| Country: | U.S.A. |
| Your comment or story: | Had to have an ileostomy surgery on July 1st. I'm in a nursing home for therapy. My pouch leaks nearly every day. The new one is often put on by less than a nurse. Recently I'm having irritation on the skin under the pouch which is painful. Due to difficulty in swallowing, my food is pureed and some of it, I cannot eat. I am hoping things will improve. My age is 81, with good mentality.
|
| Your name: | Joanne |
| E-mail address - Optional: | jlinihan@neo.rr.com |
| City, State or Province: | Ohio/New York |
| Country: | USA |
| Your comment or story: | Had ileostomy 30+ years ago caused by Chrohns. Now have Kidney disease caused by dehydration. I would love to talk with others with similar background about day to day living with an ostomy, pain, odd situations, tips and just life in general. Ostomy or not life goes on. Thank God! |
| Your name: | Kathy |
| E-mail address - Optional: | sparkie250@yahoo.com |
| City, State or Province: | Dewittville |
| Country: | USA |
| Your comment or story: | Just looking for a friend to share with... I am a Grandma that at 52 had a life changing experience of having to have an ileostomy to survive... I choose to thank the Lord that I am alive no matter what.... A little plumbing job, what ever, I am thankful to be alive and spend more time with my family, friends, and horses....
Want anyone listening to understand this, if you have undergone surgery to survive then please know God has blessed you... We have many trials through life and little bumps in the road just make us stronger... Take care... Kathy |
| Your name: | Sherry Smith |
| E-mail address - Optional: | mmdljmawmaw@bellsouth.net |
| City, State or Province: | Braxton, Ms |
| Country: | USA |
| Your comment or story: | Hello, I am so glad to find this site. It is nice to have others that are going through the same things to talk with. I have had an isleostomy for 4 months. Lot of leaks at first. thing are getting better. |
| Your name: | J. E |
| E-mail address - Optional: | jmjjed@sbcglobal.net |
| City, State or Province: | Lake Charles LA |
| Country: | United States |
| Your comment or story: | Looking for a Dr. In louisian that takes medicaid, that can handled a touch case following an Ostomy. I can be re-attached, but the hernia's are messing me up bad, And my original surgeron admitts he can't handle the job. Who's Who's in the General Surgeron in Louisiana that could take a challenging patient.??????Anyone please help find me a surgeron |
| Your name: | John R. Saad Sr. |
| E-mail address - Optional: | saadjnb@cox.net |
| City, State or Province: | Escondido ,CA |
| Country: | USA |
| Your comment or story: | I am already on your distribution list and have learned a lot about my Ileostomy. I try to participate in most of lifes activities and find your recommendations about potential problems areas a must reading. The comment about "Popcorn" in the diet has been suspect since day 1 and I don't even consider eating it. I"ve been forwarned many times and don't want to chance it. |
| Your name: | Mary Prince |
| E-mail address - Optional: | princeforest@msn.com |
| City, State or Province: | Huntsville Al |
| Country: | USA |
| Your comment or story: | Just stumbled on your site and found it informative. I've had an ostomy for 2.5 years and so hate it! |
| Your name: | JUN |
| E-mail address - Optional: | JUNOTR@YAHOO.COM |
| City, State or Province: | EVANSVILLE, IN |
| Country: | USA |
| Your name: | Yoshihiro Sugihara |
| E-mail address - Optional: | sugihara@muh.biglobe.ne.jp |
| City, State or Province: | 1-12-5 Tukamoto OSAKA 532-0026 |
| Country: | JAPAN |
| Your comment or story: | Nice to meet you.
My name is Yoshihiro Sugihara. I took the bladder six years ago and made urostomy. |
| Your name: | Jan |
| E-mail address - Optional: | janetvano@hotmail.com |
| City, State or Province: | Gilbertsville, Kentucky |
| Country: | United States |
| Your comment or story: | My 10 year old granddaughter has been diagnosed with ulcerative colitis since last August. Steroids and other medications not working and they are scheduling a surgery soon to remove the large intestine. I'm looking for suggestions on how to help her and my daughter/son-in-law/grandson(her brother). Everything I learn about ulcerative colitis is new to me, it has become quite an education for all of us. |
| Your name: | Casper |
| E-mail address - Optional: | casper0930@livemail.tw |
| City, State or Province: | Tawain in Asia |
| Country: | Tawain |
| Your comment or story: | I just want some friends talk with me , pleace! ('////') |
| Your name: | Susan |
| E-mail address - Optional: | grandmajay@Gmail.com |
| City, State or Province: | Kalamazoo, Michigan |
| Country: | USA |
| Your comment or story: | I am looking for people who have done a lot of flying with an ostomy. I am particularly looking for people who have been on very long flights to find out if they encounteered any problems that I should be aware of before doing some international traveling ina few weeks.
Thanks so much |
| Your name: | Charlie Madison |
| E-mail address - Optional: | charlieomadison@gmail.com |
| City, State or Province: | New York |
| Country: | United States |
| Your comment or story: | The website is good and it gave me much information.
-------------------------------------------------------------- Charlie Madison http://www.drug-intervention.com/new-jersey-drug-intervention.html |
| Your name: | Dan Parker |
| E-mail address - Optional: | depark@mindspring.com |
| City, State or Province: | Wellsburg, WV |
| Country: | USA |
| Your comment or story: | I have been reading your newsletter every since I had my colostomy operation. The information I have gained from the newsletters has been invaluable to me as a newbie and as a long-term ostomate. I also appreciate the advice given to me by your members through UOA and UOAA. I just wanted to say thanks to your chapter for the work you are doing. |
| Your name: | judy ramsey |
| E-mail address - Optional: | sabanchick@yahoo.com |
| City, State or Province: | lincoln,al 35096 |
| Country: | usa |
| Your comment or story: | i am a43 year woman who has been an ostamate 2 times in my lifetime.first as 11 and then at 41 .as a happily married woman the surgery changed my marriage .and my husband we are talking divorce.he finds my side gross.i'm interested in talking to anyone with simalar problems. |
| Your name: | Loraine Whyte |
| E-mail address - Optional: | lwhyte@kwic.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | Illesostomate for 50 years. Very well behaved until recently when I had a blockage due to medication I was taking for back pain. Originally had ulcerative colitis. Two pregnancies, one c-section. All in all I would recommend this to anyone suffering with bowel disease. My lumbar spine is very bad so anyone that can recommend Pain medication that would not cause cause a blockage would be appreciated |
| Your name: | Loraine Whyte |
| E-mail address - Optional: | lwhyte@kwic.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | Illesostomate for 50 years. Very well behaved until recently when I had a blockage due to medication I was taking for back pain. Originally had ulcerative colitis. Two pregnancies, one c-section. All in all I would recommend this to anyone suffering with bowel disease. My lumbar spine is very bad so anyone that can recommend Pain medication that would not cause cause a blockage would be appreciated |
| Your name: | REGINA CASTILLO |
| E-mail address - Optional: | regy0654@hotmail.com |
| City, State or Province: | PANAMA CITY |
| Country: | REPUBLIC OF PANAMA |
| Your comment or story: | HI I AM GINA FROM PANAMA CITY,I HAVE A COLOSTOMY SINCE 2005, I LIKE YOUR WEB PAGE BECAUSE I LEARN SO MUCH ABOUT THIS AND HOW TO CARE IT,THANK YOU.
GINA |
| Your name: | Jennie Nichols |
| E-mail address - Optional: | sew4gwen@yahoo.com |
| City, State or Province: | Edwardsville, KS |
| Country: | USA |
| Your comment or story: | Hello. I've had Crohn's disease for over 35 yrs, an ostomy for over 15 yrs, and severe yeast or some candida related complex for over 5 yrs. I have a full life even though there's been a lot of pain, 6 major abdominal surgeries and one minor, a rectectomy, etc. I was homeless for a year due to the loss of my career over my disability. I now live on disability but still work full time. I'm working on a book with the diet I've come up with plus my experiences and tips for how to survive. If you need help or just someone to talk to, please contact me.
Jennie |
| Your name: | Gail Thatcher |
| E-mail address - Optional: | thethatchers@telus.net |
| City, State or Province: | Alberta |
| Country: | Canada |
| Your comment or story: | I have had a colostomy for 4 years now and I have found Convatec products are the best for me. |
| Your name: | kev |
| City, State or Province: | Franklin, TN |
| Country: | USA |
| Your name: | Ed Bazlik |
| E-mail address - Optional: | edhan@mts.net |
| City, State or Province: | manitoba |
| Country: | Canada |
| Your comment or story: | Its 4 years now ..ileostomy...doing ok had a couple of blockages ..very painful,you have to be careful what you eat.It all started with a perforated colin,they say it was pretty messy,anyway,im glad to be alive..... |
| Your name: | Sue Powell |
| E-mail address - Optional: | suzmaryp@yahoo.com |
| City, State or Province: | Salem,NH |
| Country: | USA |
| Your comment or story: | Do to the severity of radiation,I have a colostomy and urostomy since 2002,its been over 6yrs with my buddies,lol,I wish I knew about this site before,I just happened to bump into it,Thank you so much for the newsletters,as they are so much help,the people I meet are terrific! Long extened family's !Please feel free to contac me for anything,I'm always around! |
| Your name: | Jenny Ann |
| E-mail address - Optional: | j3nny_ann@yahoo.com |
| City, State or Province: | Manila |
| Country: | Philippines |
| Your comment or story: | Gud day, my mother had a rectal surgery with a permanent colostomy. It has been 5 months after she had the surgery and she started feeling an urge to pass stool. There were also times that she felt there was a mass in the surgery site(in the rectal closure). Her rectum was already removed and was closed.What do you think is the cause for this?.Thanks! |
| Your name: | Anne McCormick |
| E-mail address - Optional: | dmccfivev@aol.com |
| City, State or Province: | Stoughton, MA |
| Country: | USA |
| Your comment or story: | I am a newly minted ostomate. My surgery was 10/6/08. I have had Crohn's Disease for 17 years and was diagnosed with colo/rectal cancer in August 08. The surgery was a complete success and all the cancer is gone. There was not much of it. I am undergoing chemotherapy now until the beginning of June (FolFox)as a precaution. I will gladly rip out my pic line and porta cath and fly down to Disney World in August. Life is Good! |
| Your name: | Ned Brooks |
| City, State or Province: | Surprise, AZ |
| Country: | USA |
| Your comment or story: | You porvide a great service.Your suggestion of using a zipper baggy to dispose of used ostomy, several years ago, was great! |
| Your name: | Ada Stone |
| E-mail address - Optional: | keetermrie@hotmail.com |
| City, State or Province: | Kentucky |
| Country: | USA |
| Your name: | brian |
| E-mail address - Optional: | bhorsch6969@gmail.com |
| City, State or Province: | welllington, ks |
| Country: | USA |
| Your comment or story: | had ileostomy 11-26-08. healing well, trying to adjust. many good tips and comments on this site, thank you to the providers. would like a woman's perspective on how they would like this situation presented to them if they did not know. obviously, i'm single, and wondering if i always will be. thanks in advance for any input. |
| Your name: | debrabranscomb |
| E-mail address - Optional: | debrabranscomb@sbcglobal.net |
| City, State or Province: | Huntington Indiana |
| Country: | usa |
| Your name: | Jean Krumboltz |
| E-mail address - Optional: | jeankrumboltz@yahoo.com |
| City, State or Province: | CA |
| Country: | USA |
| Your comment or story: | Your newsletter is most helpful to me, a new urostomy person. My surgery was Nov. 21 and I am still a bit weepy and sad about it but your articles help me to turn to gratitude for the wonderful medical care I have available to me. Thank you to all who share...I hope to be one of you in the future. |
| Your name: | Randi |
| City, State or Province: | Topanga |
| Country: | CA |
| Your comment or story: | This web site is fantastic! Downloaded the handbook for ostomates...very well written and comforting. Several products advertised on this site I have purchased. Had I not heard of these, I would have a more limited knowledge base of what is available to ostomates to enhance our quality of living (DryPro for water activities, Disposable liners for pouches, support groups, news letters). Keep up the good work!!! THANK YOU :) |
| Your name: | jan volkmer |
| E-mail address - Optional: | jan.volkmer@gmail.com |
| City, State or Province: | Adelaide |
| Country: | Australia |
| Your comment or story: | just would like to pass on greetings to all and hope everyone has a lovely christmas. i look forward to receiving the ewsletter from the us and would love to hear from anyone in the us as a pen pal
Regards jan |
| Your name: | Joseph Calderon |
| E-mail address - Optional: | jcalderon7189@gmail.com |
| City, State or Province: | Crowville, LA. |
| Country: | U.S.A. |
| Your comment or story: | I am 37 yrs old. I have an ileostomy. I've had it for a year and I keep praying it's temporary. I have it because it's just 1 of the numerous wonderful situations that I've been privileged enough to experience as a result of stage 3 level 4 colorectal cancer. I was diagnosed at 34 yrs of age. I think we should encourage people to be examined a lot younger than 45-50.I can't get thru a day without thinking "if only...".I have endured a colectomy,a liver resection,an illeostomy, 4-5 minor surgeries, chemotherapy (5 different rounds, all for varying #s of months) radiation, numerous hospital vacations, sickness, fatigue, weight loss( cancer is a really good diet) neuropathy, slight addiction to dilaudid, withdrawals (that sucked), and a complete upheaval of my life in general. I'm still here, I'm still fighting (although I would feel better if I could actually punch cancer) and I definitely plan on proving quite a few doctors wrong. I am Blessed and I mean that. |
| Your name: | Lavall Harris |
| E-mail address - Optional: | lavall965@hotmail.com |
| City, State or Province: | Lancaster SC 29720 |
| Country: | USA |
| Your comment or story: | The information that is issued each month in the ostomy news letter is very important to me. Its privasy gives comfort to people who are new ostomy patients. I would like to conect with other ostomy mates in my area. |
| Your name: | John Griffith |
| E-mail address - Optional: | jrgriff4@comcast.net |
| City, State or Province: | Waldorf, Maryland |
| Country: | USA |
| Your comment or story: | I've been an ostomate (ileosomy) for 7 years. Ulcerative colitis and cancer took my colon. Doing well now. Had problems initially with security of pouch primarily due to large crevice (scar) from a ruptured appendix 30 years ago. Very active physically: lift weights, climb mountains, ride bikes, etc. Enjoy reading all the articles from Larry in Evansville - learned a lot. As an ostomate, I don't think you ever stop learning of ways to make your life better as an ostomate. Thank you for all that you do to educate and inform the ostomate community. |
| Your name: | Jean McAdams |
| E-mail address - Optional: | jmcadams2003@yahoo.com |
| City, State or Province: | Reedsburg, Wi |
| Country: | USA |
| Your comment or story: | It will be 8 years on the 15th that I have become an illeostomate. What once seemed like the end of the world, now just seems like it is normal.
Jean |
| Your name: | Wendy |
| E-mail address - Optional: | barriews@hotmail.com |
| City, State or Province: | New South Wales State |
| Country: | Australia ~ Oz |
| Your comment or story: | Have a good Holiday Everyone, enjoy yourselves. Reach out and phone someone, email or invite them over. They could be lonely or feeling a bit blue, show them you care. |
| Your name: | Andrew Knopps |
| E-mail address - Optional: | ajknopps@hotmail.com |
| City, State or Province: | Grand Ledge, MI |
| Country: | USA |
| Your comment or story: | Have had my urostomy eight years. Only once did I have skin problems--allergic to tape on flange. Appreciate very much this news letter, Look forward to getting it every month. |
| Your name: | sandy |
| E-mail address - Optional: | loveablepooh72@yahoo.com |
| City, State or Province: | Davie, Florida |
| Country: | USA |
| Your comment or story: | I have an ilestomy for just about 7 years now. Still dealing with it. I have good days as well as bad days as others may have too. I have one question though. Maybe someone can answer it.
Ladies who have an ilestomy can u get pregnant? I was told by my surgeon that I could. |
| Your name: | Laura |
| City, State or Province: | Santa Rosa,CA |
| Country: | USA |
| Your comment or story: | Thank you for your fantastic newsletter.
Happy Holidays! |
| Your name: | Jean |
| E-mail address - Optional: | ejm3625@aol.com |
| City, State or Province: | Scottsdale AZ |
| Country: | USA |
| Your comment or story: | I had a colostomy in Aug 2008 and really had no idea how to cope with it. Finding your newsletter was the best thing that happened to me. Thank you for providing all the wonderful and helpful information.
I wish you all a very Merry Christmas and Happy and above all Healthy New Year. |
| Your name: | Ron Benedict |
| E-mail address - Optional: | ronben103@aol.com |
| City, State or Province: | Lynn MA. |
| Country: | USA |
| Your name: | SHARON |
| City, State or Province: | ENFIELD, CT |
| Country: | UNITED STATES |
| Your name: | Dale |
| E-mail address - Optional: | rvrlnd@yahoo.com |
| City, State or Province: | River Falls, WI 54022 |
| Country: | USA |
| Your comment or story: | I've had a urostomy for 3 1/2 years. I havent' had any real problems and am grateful to be alive. I love the newsletter and no matter how busy I am I usually stop what I'm doing and read through it. Lots of good advice, but more importantly lots of stories from people just like me! |
| Your name: | ROSALINE M HUBER |
| E-mail address - Optional: | dustyhub@yahoo.com |
| City, State or Province: | TOWER HILL,IL |
| Country: | USA |
| Your name: | Joyce Pendleton |
| E-mail address - Optional: | rethinkiii@aol.com |
| City, State or Province: | Holts Summit, Mo |
| Country: | USA |
| Your comment or story: | I really enjoy reading this newsletter and look forward to the next one. Lots and Lots of Helpful hints and ideas.
Thank You for making this available. |
| Your name: | Ila witt |
| E-mail address - Optional: | cherokeechick48@yahoo.com |
| City, State or Province: | Bartlesville, Ok |
| Country: | U.S.A. |
| Your comment or story: | I enjoy reading this newsletter. I have been a Ostomate since 2005. As a new one you all have a lot of good tips that I have put to use! Keep up the good work!:) |
| Your name: | Katherine Morgan |
| E-mail address - Optional: | katandcharlie@hotmail.com |
| City, State or Province: | Albuquerque, New Mexico |
| Country: | USA |
| Your comment or story: | Thank you for the wonderful newsletter! Happy Holidays and the best of health! |
| Your name: | Pam MacIntyre |
| E-mail address - Optional: | pammacintyre@aol.com |
| City, State or Province: | Parkland, Florida |
| Country: | USA |
| Your comment or story: | Ileostomy 1975
I am presently writing a book. |
| Your name: | Sue Parker |
| E-mail address - Optional: | parkersp@comcast.net |
| City, State or Province: | Anderson, IN |
| Country: | USA |
| Your comment or story: | A big thank you to Larry Trapp for putting me in contact with a fellow ostomate Charlie Grotevant. I was a runner for 30 years prior to an auto accident that caused a pelvic injury which lead to the loss of my ileostomy. I was devastated to say the least and read everything I could. I subscribed to the Phoenix Magazine and read Charlie's story. I had received the Evansville Ostomy News letter and I sent the editor Larry Trapp and email and asked if he knew anyone who was a runner with an ileostomy. Guess what he emailed me right back and sent me Charlie's email address the exact person I wanted to talk to and meet. Charlie has helped me more than words can ever convey. Thank you Larry Trapp and to all involved with this valuable news letter. My life has changed so dramatically because of Larry's immediate help and putting me in contact with Charlie Grotevant my Savior. God Bless all of you and Happy Holidays. Sue Parker |
| Your name: | Carol A McGuigan |
| E-mail address - Optional: | carol.mcguigan@gmail.com |
| City, State or Province: | Orlando, FL |
| Country: | USA |
| Your name: | Gail Luke |
| E-mail address - Optional: | gailukeonduke@hotmail.com |
| City, State or Province: | Bowmanville, Ontario |
| Country: | Canada |
| Your comment or story: | I have had my colostomy since August 2004 and I have found that I can learn something new every day in this regard. Your monthly e-mails are interesting and do help me very much. I thank-you very much for that. |
| Your name: | Ed Agnew |
| E-mail address - Optional: | puzzeled1@hotmail.com |
| City, State or Province: | Ontario |
| Country: | Canada |
| Your comment or story: | Thank you for sending me these e-mails. They are very helpful. I for one have a hard time couping with my ostomy but as I read these srticles they help me in a way. |
| Your name: | Bruce Penta |
| E-mail address - Optional: | bkpenta@yahoo.com.au |
| City, State or Province: | South Australia |
| Country: | Australia |
| Your comment or story: | Hi to all and a happy holiday season.
|
| Your name: | Paul Sutherland |
| E-mail address - Optional: | psuther@aol.com |
| City, State or Province: | Jackson, Tn |
| Country: | USA |
| Your comment or story: | I have had a colostomy since 2001. I now irrigate and it works well for me. If you have any questions about this process please do not hesitate to write me.
|
| Your name: | Rob Reiter |
| E-mail address - Optional: | rdhntr1@yahoo.com |
| City, State or Province: | Shelton, Wa. |
| Country: | USA |
| Your comment or story: | I look forward to the newsletter every month. It is always full of useful info for all ostomates. Thanks for being there for me. I am an ileostomate and have been for 3 years. |
| Your name: | Anita Thorpe |
| E-mail address - Optional: | anitathorpe@eol.co.nz |
| City, State or Province: | Tauranga |
| Country: | New Zealand |
| Your name: | Lorraine Wait |
| E-mail address - Optional: | dlwait@yahoo.com |
| City, State or Province: | Topock, Arizona |
| Country: | U.S.A. |
| Your comment or story: | As yesterday was the 28th anniversary of John Lennon's death, I would like to tell anyone who knows about an epiphany to know that I had one then(1980)! I was 23, a year and a half worn out from ulcerative colitis, tired of tests and prognoses - as well as friendly, caring relatives who said they had better medicine in their part of the country (I was in Oregon; they were in New York City)- I just wanted to live again. I had had my ileostomy five days previously - December 3, 1980. On the 8th, I went through the usual routines, but that evening, I was sad for the first time. I was finally off all tubes, assistance, even shots. I was told to get up and move around, shake up the adhesions, take pills for pain... I had been sick for long enough and grateful for a cure; then, when this 'cure' hit, I finally didn't like it. I cried for the first - and last - time. It was some time in the evening - 8 or 9 P.M. West Coast time. I stopped moping, crawled out of bed, grabbed my trees - you know what I mean - and decided to walk around the floor. After a few minutes, I heard a nurse, racing down the hallway, calling, crying, that John Lennon had just been killed in New York. I froze. It hit me like a ton of bricks. I thought that one of my beloved Beatles had just been killed, and I was crying over being given a chance to be alive and enjoying life again. I never cried again.
By the way, I woke in my ward the second day of my surgery to a football game on television (perfect time of year!) to hear the words that the place kicker Ralph Bernische (sp.?) of the San Diego Chargers AND HIS ILEOSTOMY BAG just kicked - I don't know - an extra point? a field goal? a punt? If I could have fallen out of my bed at those words, I would have!!! Well, 28 year later, I have a wonderful life. I teach at a great high school - 9th and 11th grade English - have the greatest husband, live in a wonderful part of the world (all my very happy opinion!), and have an absolutely magical dog, Barney, who is 20! Human years! Beagle/Basset. We've had other dogs who have since passed, but Barney's with us now, and we are a happy family! And I wish all who may read this the magic of knowing that we ostomates - and our friends and families - are ALL OK! |
| Your name: | lucy degidon |
| E-mail address - Optional: | lucycat1203@yahoo.com |
| City, State or Province: | nys |
| Country: | usa |
| Your comment or story: | Wishing all fellow ostomates a very happy, healthy holiday season. Keep your spirits up! There are many problems facing the world today, and the first line of defence is coping with our own bodies. Second is what I am doing now, reaching out with love and concern for others who are dealing with our changed and often challenged, bodies.
Like Tiny Tim said, " God Bless Us One and All". |
| Your name: | Joy |
| E-mail address - Optional: | joyfulweaver@sbcglobal.net |
| City, State or Province: | cromwell, CT |
| Country: | USA |
| Your comment or story: | I have enjoyed receiving your newsletter, I am a fairly new ostomate, or ostomist..more like optomist..I have an ileostomy total proctocolectomy 9/07 for cancer and long term (40 yrs. ) uc..thanks for your letter. |
| Your name: | Joy |
| E-mail address - Optional: | joyfulweaver@sbcglobal.net |
| City, State or Province: | cromwell, CT |
| Country: | USA |
| Your comment or story: | I have enjoyed receiving your newsletter, I am a fairly new ostomate, or ostomist..more like optomist..I have an ileostomy total proctocolectomy 9/07 for cancer and long term (40 yrs. ) uc..thanks for your letter. |
| Your name: | Jackie Allsop |
| City, State or Province: | London |
| Country: | England |
| Your comment or story: | I would just like to say how much I look forward to this newsletter. No matter where you live in the world, there is an abundance of information in it. Thank you. |
| Your name: | John R. Saad Sr. |
| E-mail address - Optional: | saadjnb@cox.net |
| City, State or Province: | Escondido ,CA |
| Country: | USA |
| Your comment or story: | I'm not sure what I'm doing wrong but I've tried three(3) times to honor your request to sign the guest book and failed...oh well here goes. |
| Your name: | Roxanne |
| E-mail address - Optional: | Roxanne.humphrey@nationwidechildrens.org |
| City, State or Province: | columbus, ohio |
| Country: | usa |
| Your comment or story: | I enjoy receiving this enewsletter. There are tips for even our youngest of ostomates. I too am and ostomate and find helpful hints for myself and to pass on to others. thank you. |
| Your name: | Marilyn |
| E-mail address - Optional: | marilyn.ipsen@chw.edu |
| City, State or Province: | Redwood City, CA |
| Country: | USA |
| Your comment or story: | Love the newsletter - lots of good stuff and really has helped me! I look forward to receiving every month.
Thank you so much! mare |
| Your name: | wiley Waters |
| E-mail address - Optional: | wiley_waters@yahoo.com |
| City, State or Province: | Athens,Texas 75751 |
| Country: | Henderson |
| Your comment or story: | Keep up the good work
Wiley |
| Your name: | genny |
| E-mail address - Optional: | clipperqueen007@yahoo.com |
| City, State or Province: | pgh. |
| Country: | usa |
| Your comment or story: | Thank you so much! I don't know what I would do without you. So msny times I have looked to you for problem solving. Many times I cannot get any answers from the nurse. I don't have a car. But there you are with sound advice. Thanks again. Merry Christmas & Happy New Year..may God bless you! You help so many : the education is wonderful. |
| Your name: | John Visser |
| E-mail address - Optional: | visserj@cogeco.ca |
| City, State or Province: | Sarnia, ON |
| Country: | Canada |
| Your comment or story: | Always read your newsletter with interest.
Have a blessed Christmas and a Happy New Year john |
| Your name: | Joanne |
| City, State or Province: | Victoria, BC |
| Country: | Canada |
| Your comment or story: | Thank you so much, Evansville Ostomy News - all the advice and tips make life much easier to deal with. I've had an ileostomy since April 2006 and every day keeps getting better and better!
Happy Holidays! Joanne |
| Your name: | Anita Sibley |
| E-mail address - Optional: | AAuntNitaTX@aol.com |
| City, State or Province: | TX |
| Country: | USA |
| Your comment or story: | Always enjoy the Newsletter. I have Crohn's, and have had an ileostomy for 34 years. But I've found out that there are always new things to learn. |
| Your name: | DAVID |
| E-mail address - Optional: | dachalk3@tesco.net |
| City, State or Province: | SOMERSET |
| Country: | UK. |
| Your comment or story: | I LOVE THE CARTOONS AT CARTOONSVILLE. |
| Your name: | Pam |
| E-mail address - Optional: | rwinger1@cogeco.ca |
| City, State or Province: | ontario |
| Country: | canada |
| Your comment or story: | Hi all just want to extend a Merry Christmas and a healthy New year to all!! I have met so many wonderful people here that I am proud to call "friend",this link is a blessing in disguise for both old and new ostomates.Learning and sharing is what it is all about and even though we have all endured the worst and got to this point we have so much to be grateful for-------Life!!! |
| Your name: | Jim Hackett |
| E-mail address - Optional: | jhackle@verizon.net |
| City, State or Province: | Horseheads, New York |
| Country: | USA |
| Your comment or story: | I enjoy receiving these news letters they are informative |
| Your name: | Casper |
| E-mail address - Optional: | a12111106a@yahoo.com |
| City, State or Province: | Tainan |
| Country: | Tawian |
| Your comment or story: | Hellow everyone , I am live in Tawian , there it a little place , I am 12 years old ,I wish I can be your pen-pals , plesce writle for me , you can writle Chinese or English to me .
Sunday,November,30th,2008,pm11:28:08 |
| Your name: | Don Claxton |
| E-mail address - Optional: | dcmc40@cox.net |
| City, State or Province: | Chandler, AZ |
| Country: | USA |
| Your comment or story: | I am having problems with the pouch becoming loose from my skin and leaking. I think it is partially due to the location of my stoma being right on my belt line but am not sure. Sometimes I can get 4 -5 days without changing it but other times I have changed it almost daily. Does anyone else have this problem? |
| Your name: | Susan S |
| E-mail address - Optional: | SueSueUSA@yahoo.com |
| City, State or Province: | mid-California |
| Country: | USA |
| Your comment or story: | I have had my colostomy since 2003, and wish I had found these boards sooner. What a great group of people here and on the UOAA Discussion Board as well! I have been irrigating about 6 months now as well as wearing a pouch, when more convenient for my activities. |
| Your name: | Shirley Simmons |
| E-mail address - Optional: | shirleysimmons@comcast.net |
| City, State or Province: | Little Rock, AR |
| Country: | USA |
| Your comment or story: | I have an permanent illeostomy as the result of Crohn's disease. Five years ago in Nov. I was hospitalized for 9 days with a total blockage in my colon. Three months later I was almost completely blocked again, and my doctors advised that my best chance was to have an illeostomy, which I did in Feb. 2004. Nine months later I had a perineal fistulectomy. I did not have Crohn's in my small intestine, and today I am healthy and well. I work full time, do my own yard work, and stay busy. I am grateful to be alive and feeling good again. Thank you for producing the newsletter to help us learn and connect with others. |
| Your name: | Shirley Simmons |
| E-mail address - Optional: | shirleysimmons@comcast.net |
| City, State or Province: | Little Rock, AR |
| Country: | USA |
| Your comment or story: | I have an permanent illeostomy as the result of Crohn's disease. Five years ago in Nov. I was hospitalized for 9 days with a total blockage in my colon. Three months later I was almost completely blocked again, and my doctors advised that my best chance was to have an illeostomy, which I did in Feb. 2004. Nine months later I had a perineal fistulectomy. I did not have Crohn's in my small intestine, and today I am healthy and well. I work full time, do my own yard work, and stay busy. I am grateful to be alive and feeling good again. Thank you for producing the newsletter to help us learn and connect with others. |
| Your name: | gerry |
| City, State or Province: | laval quebec |
| Country: | canada |
| Your comment or story: | looking for ways to handle cleaning |
| Your name: | sudeep |
| E-mail address - Optional: | sudeep.s.bilkhu@btinternet.com |
| City, State or Province: | coventry,west midlands |
| Country: | uk |
| Your comment or story: | it is so wonderful to read ostomy news...it is like meeting a good friend every now and again...reading it puts my mind at ease to know that other people are in the same boat.I look forward to making and meeting friends local to the midlands.Good luck and good day to all readers. |
| Your name: | William Roche |
| E-mail address - Optional: | wroche@tampabay.rr.com |
| City, State or Province: | Crystal River, Florida |
| Country: | U.S.A. |
| Your comment or story: | I had an Ileostomy done approx. 18 months ago due to a severe case of U. C. I ended up spending over 90 days in two different hospitals. I'm still unable to change my appliance by myself, and have all kinds of skin problems. I absolutely HATE bag day which we now have up to 4 days. If it were not for my wife I simply could not be here today.
The E.O.N. is one of the BEST things that has happened to me since the surgery. Thank You, and please don't go away |
| Your name: | rachel |
| E-mail address - Optional: | paws_1985@yahoo.com |
| City, State or Province: | mi. |
| Country: | usa |
| Your comment or story: | I have had an Illeostomy for 15 years with one revision due to a peri-stomal hernia. I now have another hernia, which I'm controlling by diet and wearing a belt. So I won't have to have another surgery for now. If there's anyone else out there with the same problem or have any tips for an illeostomate, please e-mail. I'm 49 and have a very supportive husband. it's nice to have this website. thank you, rachel |
| Your name: | Alice Anne Allen |
| E-mail address - Optional: | AliceAnneAllen@dc.rr.com |
| City, State or Province: | California |
| Country: | USA |
| Your comment or story: | Your tips and newsletters are so fun and I really enjoy knowing there are OTHERS are there like me..
Thanks so much |
| Your name: | kathy patterson |
| City, State or Province: | Missouri |
| Country: | usa |
| Your comment or story: | Love this site -it is so helpful don't know what I would have done with out this website 5 years ago. Thank you. |
| Your name: | Carol McGuigan |
| E-mail address - Optional: | carol.mcguigan@gmail.com |
| City, State or Province: | Florida |
| Country: | USA |
| Your comment or story: | Hi there, I had my complete coloectomy in 2004. Life has been very different since then and I've had many problems. But I try to keep strong and have a good support system- so I've been very fortunate. |
| Your name: | Kim Hayes |
| E-mail address - Optional: | carrjammin@yahoo.com |
| City, State or Province: | Tennessee |
| Country: | USA |
| Your comment or story: | I am 32 years old and I have had my ileostomy for 3 years because of FAP. I am trying to lose weight so I may have the j-pouch like my sis and dad. My 10-year old niece has our disease too. She will start her tests pretty soon, just to see when surgery will be necessary. Because with our disease, the colon MUST come out. I have adapted well to my ileo, but I can't wait to be hooked up again!!! My life is still great, and I can do just about everything with this ileo! |
| Your name: | Paula Harris |
| E-mail address - Optional: | harrispk@yahoo.com |
| City, State or Province: | Conway,.Ar |
| Country: | USA |
| Your comment or story: | Thanks for keeping us ostomates up to date with extra info and reminders. You are to be commended for taking on the task and helping the ostomates out there...
Paula |
| Your name: | Judy Jones |
| E-mail address - Optional: | jjflowgoer@aol.com |
| City, State or Province: | Birmingham AL |
| Country: | USA |
| Your comment or story: | I am a caregiver for my 85 yr old housemate's new ostomy. I am very grateful to find this wonderful site/newsletter. Every situation is different and it's been challenging to find resources and answers for my specific questions - but I've located some helpful tips here this evening already! Thanks so much for helping us 'newbies' by sharing what you do! |
| Your name: | Rob Reiter |
| E-mail address - Optional: | rdhntr1@yahoo.com |
| City, State or Province: | Shelton, Wa. |
| Country: | USA |
| Your comment or story: | I look forward to the Newsletter every month. There is always a lot of great information to read. Thanks for your hard work. |
| Your name: | Lynn |
| E-mail address - Optional: | Lynnls104@aol.com |
| City, State or Province: | New York |
| Country: | USA |
| Your comment or story: | Have an illestomy for almost4 years due to chrons. Want to say I still continue to learn a lot with this newsletter and the OAAA discussion board. Love Phoenix magazine. My son in law recently diagnosed with u.c., close cousin to my disease and I feel bad. But I am still alive and trying to keep as normal a life as possible, which is possible through the people on the board and knowing you are not alone. |
| Your name: | John R Saad Sr |
| E-mail address - Optional: | jnbsaad@cox.net |
| City, State or Province: | Escondido, CA |
| Country: | USA |
| Your comment or story: | I will respond more completely at a later time. |
| Your name: | Vlapp |
| E-mail address - Optional: | lvivianm@yahoo.com |
| City, State or Province: | NT, NY |
| Country: | USA |
| Your comment or story: | I have had an ileostomy for 5 years. Is anyone out there having a problem with either a Pyoderma gangrenosum, or a Pressure Ulcer near their stoma? I have been to the surgeron's office and the WOCN for the last few weeks. Am currently under the care of the Nurse. I am getting worse and it hurts a lot and bleeds. What to do besides see the Et Nurse. I do not want another surgery to re-locate the stoma. HELP ! |
| Your name: | genny |
| E-mail address - Optional: | clipperqueen007@yahoo.com |
| City, State or Province: | pittsburgh |
| Country: | usa |
| Your comment or story: | Hi..all you fellow ostomates..I have an ileostomy, we are getting along fine. I wish everyone a happy & blessed holiday! |
| Your name: | Kym Calway |
| E-mail address - Optional: | kymcal@hotmail.com |
| City, State or Province: | Toronto, Ontario |
| Country: | Canada |
| Your comment or story: | Hello, My name is Kym and on September 27th 2007 I had my bladder removed due to Bladder Cancer.I am doing well, just had checkup #4 and I'm doing great..Cancer free.I have done quite well with my illeostomy as well. It's not very pretty, however, I suffered so much pain and almost died during my 10 hour surgery, that I bless my "Stomy" everyday. I have a wonderful husband, who's support is amazing and two wonderful children(teens) who are very happy to have me here.I am a very grateful woman, who has always been very positive(that's the only way I survived)I am so grateful that they could even do this..Live Life, Kym |
| Your name: | Rose |
| City, State or Province: | Everett, WA |
| Country: | USA |
| Your comment or story: | I am very happy to be receiving this news letter. A lot of what is said, I had to learn on my own the hard way so it is wonderful that such helpful information is out there for neew ostomates.
It did take me longer to get used to being "differnt" and I think I "missed" my colon since it had been with me for over 60 years...but the alternative was not an option. I am so glad to be without the bowel disease (UC) which could not be managed with medication and I sure am so happy to be without pain. Thanks for the newsletter. It is appreciated. |
| Your name: | Milton Cooper |
| E-mail address - Optional: | medi_cooper@yahoo.com |
| City, State or Province: | Auburndale Florida |
| Country: | USA |
| Your comment or story: | Very good articles. Keep up the good work |