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| Name: | Meghan Rice |
| E-mail address: | meghan@nuview.us |
| Comments: | i hate to tell everybody this but bracing and surgery dont work im 11 and i was diagnosed about two weeks ago. bracing tries to force the spine into a place there's no room for. and then surgery not good within like 20 years the rod breaks or becomes infected.
so when i was diagnosed with scoliousis my mom researched and found the clear institute and they give you exercises and every person that's gone there has improved, but how much you improve is based on how much you put into it. They do exercises and it's hard work and you also have to do the exercises they give you to do at home because there's only so much a doctor can do. im scheduled to go for the two week intensive in october and it'll be hard work but this is serious and i'm willing to do watever it takes. This is something that can affect me for the rest of my life but i'm not gonna let it. you may be thinking she's crazy the doctor's know what they're talking about but no they dont research it and you'll see that i am right and scolious will not affect me. |
| Name: | Casey |
| E-mail address: | Luvyaosomuch10@Msn.com |
| Comments: | I am 15 years old and i was diaignosed with scoliosis 4 months ago. I was told that it was a 9 degree curve at the time. But;; Today i went for my second set of xrays and they found out that it got worse. Now its a 26 degree curve. Im really scared they are going to tell me i need surgery. I really dont want surgery =( I was wandering if anyone knew pf any small, non visable back braces. I dont want to have to wear a back brace that is visable =(
Email mee. =) I would love to talk to someone. I dont know anyone else who has scoliosis and i would love to meet someone new. Love -- Casey |
| Name: | Brentney Simon |
| E-mail address: | Bbrentney@aol.com |
| Comments: | Hey what's up everyone! This is Brentney again! I know it's been three years since you have heard from me. Well I had my surgery and two others on my back. I am doing just great and belive it or not, I will be getting my permit in just five months! I now have a little sister and twin brothers. My life is great. I am going to high school, I have tons of friends, and even a great boyfriend! There are no surgeries in my future and My back is mostly straight. Alot better than it used to be. It hasn't hurt since maybe three months ago (Despise of the weather). My advice to everone that is going through rough times is to keep God first and to always be optimistic no matter how hard your life seems and you will be amazed at what you can acomplish and how far you can go! |
| Name: | bailey |
| E-mail address: | spunkybubble_25@hotmail.com |
| Comments: | heya i got told i had it 2 days ago
but don't know the degree and didn't get told about surgery i got told to have great posture and drink lots of water i'm getting a new bed too. I was told it was due to breaking my leg when i was 8. I am now 16 the leg was my right one and therefore all my body weight went to my left, at a critical growing period on crutches. So that's why i have it. Don't be sad atleast you are healthy, alive, warm and fed :D |
| Name: | Michelle |
| E-mail address: | mtanton@cox.net |
| Homepage URL: | http://www.stormsdistortion.com |
| Comments: | So the school nurse told me when I was eight that I had accute scoliousis. It's been 10 years now and every time I go to the doctor they tell me that I don't need surgery. However, there is little room between my shoulder blades and my spine and my back always gets the worse knots in it. I work food service and it makes it hurt even more, everyday. I know that in the past year it has gotten severely worse but if I get surgery and can't work then I will have no where to live. So I deal with it and one day I hope I can get the surgery.Most people that know me probably think its a joke so I don't even complain about it anymore. I think that people that don't have scoli are really lucky and they have no idea the pain that it really causes. |
| Name: | leannee :) |
| E-mail address: | leannee.xx@hotmail.co.uk |
| Comments: | helooo .. im 13 and i livee in england i am having surgury in 3 weeks time my curve is a 32 degree at the bottom of my spine. i am really scared and if anybody around my age has had surgery please email me about iit . also i am a dancer will the surgery effect my danciingg...
pleasee emaill .. Leannee x |
| Name: | Marinus |
| E-mail address: | 207105081@cput.ac.za |
| Comments: | hi im 20years old and suffer from scoliosis, and i have to go see an doctor every 6mnths, my next appointment is in April...And at the last appointment the Docter said i must think about an operation...Do you think that i must go for it?
anyone that went for it... Please rply... |
| Name: | tammy rollins |
| E-mail address: | tammyleerollins@hotmail.com |
| Comments: | hi im a mom with a son who has scoliosis he is 19 and has alot of back pain he was diagnosed with it when he was 13 doc said he didnt need surgery but his back is really starting to hurt alot now and his right side is lower than his left side does the surgery really help with the back pain |
| Name: | louise |
| E-mail address: | louiseb09@hotmail.co.uk |
| Homepage URL: | http://books.dreambook.com/medusa250/12345.sign.html |
| Comments: | hi
i was told i had scoliosis n my curve was at 46 i have 2 have a operation this october n i am scared i am 15 can any1 tell me how long u r in hospital n some things lik if u got 2 b in a wheel chair so on plz thanks xx |
| Name: | Maddy |
| E-mail address: | mad_madge2@hotmail.com |
| Comments: | hey im maddy i was diagnosed with scoli two years ago my curve at the top was 75 and my bottom curve im not sure they operated on my top curve and put to metal rods in for my bone to graft arounf but the didnt touch the lower spinal area in my back. recently my back as been hurting alot and my docters say its likely the rods have bent, which is why it hurts alot. scoli was a HUGE change in my life and it sort of helped me to understand things better.
Before my operation I was rushed to hospital a few time becaue my ribs were closing in on my heart and i started getting short of breath alot. so I had to stop doing all my sports. Scoli sucks and its really changed me and i admire anyone who has it because its really tough to deal with. |
| Name: | Zoua |
| E-mail address: | SiimpleKUV@hotmail.com |
| Comments: | Hey there!
I also have SCOLIOUSIS... and it's really hard for me to live with this. Not to be religious, but I guess this was how God planned my life to be. My scoliousis is 36 degree, and I've been going to Chiropratics to help me. I don't know what to do right now, I've been sent to the Emergancy once, out of an Anxiety Attack, and right to my heart. It's been really hard for me, and coming onto this site I hope that I'll be making new friends, that also has what I have. |
| Name: | Danielle |
| E-mail address: | divy92@optonline.net |
| Comments: | Hi. Im danielle and i just got a scoliosis brace at the beginning of August 2006. im in 9th grade and Ive had the brace for about 5 1/2 months and its not fun, but im getting through it. I hate not being able to wear what i want and only wearing baggy t-shirts and sweatshirts. e-mail me if u want to talk
-danielle :) |
| Name: | Grace |
| E-mail address: | gracie6682@aol.com |
| Comments: | Hi. I am a 24 year old teacher and my partner has scoliosis. We are thinking of starting a camp for kids and teens with scoliosis. It would be like a summer retreat for anyone affected by the condition that just wants to be around other people like them and just be themselves and have fun. If you know of any groups out there like this, or have any suggestions on what you would want in such a camp, please let me know! This is a new idea, but we would really like to see it come to life in the future. Thanks! |
| Name: | JEN |
| E-mail address: | socertwete@aol.com |
| Comments: | heyy...i have been wearing hte scoliosis brace for the past three years of my life...i entered 9th grade and got the Boston-T brace and wore it 20 hrs a day for the next 3 years...my friends didnt care i had it on n all so i didnt worry bout it too much...it didnt stop me from being me n all so i wore it to help me...then i got my hrs reduced slow n steady...the past 3 months i havent worn it n i finally got cleared n dont need it anymore...i wore the brace so i could play sports n not get the surgery to make me unable to play sports for almost a year...so i got discharged from the doctor today for my back...im so happy...if anyone wants to talk or ask me bout anything email me at socertwete@aol.com
JEN |
| Name: | stephanie |
| E-mail address: | blue_eyednative@hotmail.com |
| Comments: | hey everyone! Scoliosis sucks i know because i have it too!
I hate it i always feel insecure about it, It's like people are always looking but usually they dont notice it if its not bad! good luck to all you girls with what your doing to fix it! |
| Name: | Hillary Kelley |
| E-mail address: | free_2_ride11@yahoo.com |
| Comments: | i was diagnosed with scoliosis in 5th grade by my pt.
i had to wear a brace for at least 9months. then they scheduled me to have back surgery december 16, 2005 i went through alot for the first week but my family and friends helped me alot. at school i had to be in a wheelchair and was very embarrassed. but i got through it now im in 8th grade and every thing is fine . i have no complications and it doesnt hurt much. So if you have scoliosis and need to have surgery it will be alright!!!!!!! |
| Name: | elizabeth caldwell |
| Comments: | hey,
i am 14 and when i was 13 i went to get a physical for basketball and my docter said i had scoliosis so he sent me to a docter in the city they told me to come back in 3 months they wanted to see if it would prgress any and it did so they told me i would have to have surgery to fix it they said it would only get worse it was really hard for me to deal with if you have surgery you know how hard it was i was so scared the day i went in for my surgery but i knew i had to be strong i dont remember much of the first day i was in the hospital for a week i went through alot of pain but my family was there for me it was really a life changing experiance i was walking by the3 day[barley]i did not have any problems at all if you are reading this and you are about to have surgery be strong and trust the lord he can get you through any thing. P.S.remember to be srong and do the best you can |
| Name: | Jen |
| E-mail address: | socertwete@aol.com |
| Comments: | Hello, I am 16 years old and I was first diagonised with scoliosis at the age of 9. I have been wearing a Boston T-Brace for the past three years. I went to the doctors and he has me in it for 12 hours, so I only sleep in it now, but before I had to wear it 20 hours. I have been able to live my life the way I want to, but I can't wait to get rid of it. The first year was hard for me becuase I was entering my first year of high school and I had to wear this plastic thing that sticks out whenever I leaned forward. I am kno okay with it, but I still can't wait to not have to wear it. If anyone wants to talk about wearing the brace or anything, just email me socertwete@aol.com |
| Name: | krystal |
| E-mail address: | sun_dance19@hotmail.com |
| Comments: | hey, i just had back surgery to correct my scoliosis, like a month ago, and i am going thru my rocovery, its so hard, i am in alot of pain, well some days im okay, but its like really hard not having somoene to talk to who has been thru it before, i dunno i guess, the people , liek family and friends who help dont understand what i am going thru, it was hard to go thru the first week of surgery, im just happy i had it done now ,,,, but i dream all the itme i am going to get better |
| Name: | beth |
| Comments: | forgot to say im thirteen. Also - spinekids is gr8 I agree!! |
| Name: | beth |
| E-mail address: | helenroden@msn.com |
| Comments: | Hi
I'm beth.Discovered scoliosis nov 05. Diagnosed at 30 degrees in Jan 06. Now 43 (as from last week) and on waiting list for surgery. Anyone else in the UK going through this please e-mail. Also want to hear from people who are grown up. Has surgery made things better or worse and how has it affected your life? it doesnt really stop me doing anything right now! I'm mad on dancing, all kinds, love horses and my kitten roxy. |
| Name: | chloe |
| E-mail address: | im_not_telling_@myownemail.com |
| Homepage URL: | http://www.spinekids.com |
| Comments: | hey all u kids/tweens/teens/young adults/parents of children w/ scoliosis. go to www.spinekids.com this site is made for kids with scoliosis and they have GREAT ideas for clothing,coping w/ brace, surgry, social life wit scoliosis..its pretty much the greatest site ever..so go check it out!! |
| Name: | Stephanie Dixon |
| E-mail address: | dixonteresa@hotmail.com |
| Comments: | I am 13 years old. I have scoliosis and have been wearing a boston back brace for the last 2 years, since I was first diagnosed with scoliosis. My current curves are thoratic:14, and lumbar:34. When I first had scoliosis my curves were thoratic:23, lumbar:41. I haven't had surgery and I hope I won't need it. |
| Name: | Brentey Simon |
| E-mail address: | Bbrentney@aol.com |
| Comments: | I forgot to say that my back was at a 105 degree curve before the surgery with 3 curves and now it's only 30 something degrees and only 1 little curve! |
| Name: | Brentney C. Simon |
| E-mail address: | Bbrentney@aol.com |
| Comments: | Hey,It's me again.I've sined the dreambook twice before.Well I've told you that I have osteoporosis and am on Fosamax.Well,I went to the doctor and he said that the Fosamax wasn't working so,I have to go to the hospital once a month to get another medicine called Pamidranate.It seems to be working and I am growing.Well I am now 12 years old and I have had the spinal surgery that I told you about in one of the stories before.So I'll tell you what happend.We got there at about six a 'clock'.We met my grandmothers and one of my grandfathers at the hospital, checked in,and waited.Then the nurse called me in and I changed clothes and the doctor talked to me and my family.Then,they gave me this medicine that relaxes you so you're not so worried or scared about anything.Thirty minutes later,I was in the O.R (Operating Room).I don't remember going in though.It was probably the medincine. Anyway,it's called a spinal fuisin were they put stainless steel rod throughout the whole length of my spine (from the top of my neck to the bottom of my spine)and use extra bone from a bone bank to fuise some together.I stayed in the hospital from Nov.28-Dec.7(10 days).I wasn't that bored actually either.Alot of people came to see me,I went to the Atrium (the playroom) and played games.Also, one day,my mom and I went to the atrium and she painted me a welcome picture to put on my door,and a professional wrestler named Shelton Benjamin came to the hospital so I went to the Atrium to see him there,I met a therapy dog named Rafter and his owner Jane,and on the last day, I was invited to a teen lunch where all the teen patients get together ,have pizza ,and talk.After that we packed up ,sined the discharge papers,and went home.They also gave me a free Gingerbreadhouse.By the time we got home,the people who put up my hospital bed was already there and almost finish so I layed in my mom's bed untill they finished.So when I got in my bed,it wasn't comfortable so she bought a foam covering to put over the matress and I will soon be getting rid of the hospital bed and getting mine back. When I first came home I couldn't even stand up and now I am getting dresed by myself so I'm improving amd I am now doing better evey day and if you are having or already had a surgery like this,please feel free to e-mail me. |
| Name: | emily |
| E-mail address: | ladybug2010_3272@hotmail.com |
| Comments: | Hey!
Well, I found some really cute clothes that are "presentable" to wear to school. I f you need anything or having any questions just e-mail me. P.S. I wear a Boston Brace:( hate it |
| Name: | Chelsea Partridge |
| E-mail address: | crp0302@yahoo.com |
| Comments: | Hey guys, I'm 12 and back when I was 10, the week before Christmas, I was diagnosed with scoliosis. I went to the Shriner's Hospital today, and found out that my curve was 26 degrees, and I had to get a boston brace. make your brace something cool, with dry erase markers, you can decorate the brace for the holidays and show it off!! Or if someone doesn't know you wear one , have them knock on the brace, and tell them you have rock hard abs!!!! =D email me if you like the ideas!!!! |
| Name: | Brentney Simon |
| E-mail address: | Bbrentney@aol.com |
| Comments: | Hey,
It's me again!I signed the dreambook before and I have bad news.I was just told that I have Osteoporosis which makes your bones weak,brittle,& easy to break. Now, they have to pospond my surgery date untill October or November.My Doctor put me on Fosamax,& Vitamin D (which I was getting all of the sideaffects to). Anyway,i'll keep ya'll posted as I go. Also,as you can see,I now have an e-mail adress anyone can feel free to e-mail me as they wish if you have any questions or comments. I usualy check my mail everyday so I hope to hear from you! |
| Name: | Emily Honey |
| Comments: | HEY!! i was diagnosed with scoliosis when i was 12 yrs. old. i am now 13 and wearing the Boston Brace I have to wear it for a year but I've had it for 4 months,but it seems like 4 yrs.!! Anyway, I lovef to ride horses and i show them too!!! But if you have any questions just go ahead and ask them when you sign my dreambook! |
| Name: | Brentney Simon |
| Comments: | I am 11 going on 12 in October.I was dignosed with scoliosis when I was only 2 years old.Before it wasn't as bad .Now it is over 86 degrees and I will have surgery in September.It has also turned into severe scoliosis.I have never had surgery on my back before but, I have in many other places so I am not too nervous.I know i'll be just fine.Some times I think why but I knew god gave scoliosis to me for a reason.The docters wanted to wait until my growth spirt comes but my back is so bad that if I step the wrong way, my leg could pop out of joint.I'm glad they're doing the surgery now so i'll be out of so much pain.I have to take pain medication every night.Anyway,if you're going through something similar to what I'm going through don't be afraid and pray and you'll be alright.Also if you go to Camp Burnt Gin,you've probably seen me.CBG is a great camp for children with disabilities.If you are with Children's Rehabilitative Services(CRS),the Camp is free so check into it!Remember to pray,and be brave and surgery will be peice of cake.Thank you for reading my letter! |
| Name: | Emily Honey |
| E-mail address: | lhoney@weiner.crsc.k12.ar.us |
| Comments: | Well I have scoliosis, and I hate it! I have to wear the Boston Backbrace for a year!! I am only 13 yrs. old and I find it hard to find clothes to wear especially when all of my friends are wearing "cute" clothes and I have to wear old basketball t-shirts and gym shorts. If anyone has found anything to wear besides old camp shirts give me ideas!!!! PLEASE!!! |
| Name: | Emily Honey |
| E-mail address: | lhoney@weiner.crsc.k12.ar.us |
| Comments: | Well I have scoliosis, and I hate it! I have to wear the Boston Backbrace for a year!! I am only 13 yrs. old and I find it hard to find clothes to wear especially when all of my friends are wearing "cute" clothes and I have to wear old basketball t-shirts and gym shorts. If anyone has found anything to wear besides old camp shirts give me ideas!!!! PLEASE!!! |
| Name: | Lorell Miller |
| E-mail address: | lorellken@hotmail.com |
| Comments: | Hi My Preteen daughter of age 11 has just been diagnosed with Scoliosis. I am trying to find all the informtaion I can to make this not such a scarry thing for her
thanks Lorell |
| Name: | patsy |
| E-mail address: | patshe_mon@yahoo.com |
| Comments: | Well, again as I always tell you, Scoliosis it's not the end of the world. I have it, you have, and we all here have it. We're not alone. Outside there, many friends like us.
Don't be sad if you have a scolio. It's true if you can't wear any funky cool whatever suit, but we al have to remember, we have this gifts, because there's something better for us. Everything happen for a reason. We had it, because we're special. We could survive with this and learn to be stronger than our friends do. We're special. Rememebr that! No one could let you down. Don't ever feel shy and uncomfident if you have this scolio. Show to the world that you're tough and received this as a beautifull gift from God. A gift to let you learn to be stronger and more mature than the others. =) I Love you All!! Feel free to talk with me. I'm waiting for you. IM : patshe_mon@yahoo.com, patshe_mon@hotmail.com or join with us in Hi5 (scoliosis) group. Chill Out, special!! |
| Name: | Kellie |
| E-mail address: | cowgirl052590@hotmail.com |
| Comments: | Hey I dunno if I have scoliosis but im suppose to find out on May 19th THATS 6 DAYS B4 I TURN 15!! Talk about a bad birthday present. Anyways I also have back spasms every once in a while and it hurts when I try to bend down. Which totally sucks cause I've been trying all year to get track, crosscountry, and dance team in my school AND WE FINALLY GET IT NEXT YEAR!! I also love horseback riding But If I have scoliosis I may not get to be part of sll of that. It really scares me to think about surgery especially thinking that i might even be in a wheel chair!! Well any ways even though I dunno if I have it this site at least gives me some idea of whats going to happen so THANX!! |
| Name: | Annie |
| E-mail address: | guezzwhozhere@aol.com |
| Comments: | i had my surgery in 1997 i was 14yrs old in 8th grade i first found out when i was in about 5th grade it wasn't easy for me at all. i wore a back brace for about almost 2yrs tried going to a chiropractor then in 97 i had to have the surgery. after that my life turned for the better. i felt and looked like i was free no more stress. now here i am 22yrs old in pain i just had a muscle spasm I've been in the bed for about 4 days. this is the first time since my surgery that i have been in pain. you have to see things better know that their is a better tomorrow you have to stay focused on what you want for your self. make a set of goal's and go for it one by one you can do what ever you want to...........look forward to hearing from you guy's |
| Name: | christine |
| E-mail address: | vballbarnes1016@yahoo.com |
| Comments: | i have scoliosis to so i know what everyone goes through. i have to wear the boston brace every night. i used to wear it every day for 21 hours then my doctor moved it back to just 14 hours and now i wear it at night for only 3 more months. and i will be finished at age 14. |
| Name: | Ash |
| E-mail address: | cyber_ash_182@hotmail.com |
| Comments: | Its been a long time since i was last on here but i kept it in my favs so i could always come back and check it again at some point in my life...and well here i am, now 19 going on 20 this year and well i guess with this being a teens with scoliosis dream book this will probably be my last entry. The reason i'm here is i'd like to thank some of the people who have supported me on here and i'm glad of all the advice i got from some of these people. If your wondering yes i do still have a scoliosis as far as i know which is still 50 degrees, i currently have no pain with it but its not the idea that that may happen anymore its more to do with the look of it. For years i've never been bothered about the look of my body but recently when it came to explain to someone why my body looked slightly twisted it got me to thinking that i shouldn't be having to explain this...I just feel now it is the time whilst i'm still youngish to concider the op, i don't want to have to be explaining myself to other people about this and i don't have to be putting up with a sight in the mirror that i'm starting to feel ashamed of. Oh well guess thats just the burdens of something like this but any way i'd like to thank you all for you advice and well any you may possibly give me in the future.
Thanks alot Ash |
| Name: | Jessika |
| E-mail address: | jessikap_2008@yahoo.com |
| Comments: | Hi everyone, I just turned 15 and I was diagnosed with scoliosis when I was in the 8th grade (14yrs old). The doctor said it wasnt far enough that I would have to worry about surgery yet but that we still need to watch it. He gave me a page of exercises to do twice a day. It hurts sometimes and you can also tell in my shoulders and hips. They are uneven. But I dont let it bother me. I just go on with everything I would usually do. But my mom was diagnosed with Degenerating Bone Disease about 2 years ago. and the doctor told her that by the she is 40 she will have to be in a wheelchair. Her left hip is 2 inches higher than her right. She has always told me just to keep on going. That I shouldnt let something like this stop me from doing everything I want in life. Life is way to short. And I have always lived by that. |
| Name: | Riley Wood |
| E-mail address: | slobber_robber04@yahoo.com |
| Comments: | I have been made fun of for years for looking differently. i had surgery in october of 2001. but i still look alot different.people who know me dont look at those things but other people notice. it hurts my feelings. i cry myself to sleep all the time.if u read this email me and we will exchange stories. i have one good friend who has never even looked at me with a weird look he just hugs me and we talk i really enjoy to spend time with him. he makes me still keep on living and working past the hardships. find a friend. i will be ur friend! love always RILEY K. WOOD!! |
| Name: | mugu |
| E-mail address: | mumuman@yahoo.com |
| Comments: | guy ,u understand |
| Name: | mugu |
| E-mail address: | mumuman@yahoo.com |
| Comments: | i don enter hereoooooooooooooo |
| Name: | Abby |
| E-mail address: | beansncheese@prodigy.net |
| Comments: | I found out I had scoliosis in 7th grade and got a back brace that November (2001). I wore it for 2.5 years, but it failed. In June 2005 I am getting surgery. My curve is only 40 degrees but is progressing rapidly without support from my brace. Strangely, I am not scared for the surgery, I am kind of excited! |
| Name: | lucy hardaker |
| E-mail address: | lucy_supergirl@hotmail.com |
| Comments: | Hi everyone,my best friend has just been diagnosed with scoliosis, and she is very worried. she desperatly wants kids when shes older and always has, im not sure about the degree of hur curve, she just found out yesterday and her mum had it too, she has scars, and my friend his just so worried about whats going to happen and is terrified of the op. I came onto this website to see how everyone else has coped, please could some one get in toutch with me and tel me about how you coped and what sort of support she needs from me as a best friend. Thankyou
xxxxx |
| Name: | Tiff |
| Comments: | Hey guy's whats up don't let this disease get you down I am 26. I was diagnoised with it when I was 12, and didin't get the surgery tell I was 16. I am doin great, and I am studying to be a massage therapist. I really like Survivor Vanauta Chad is my favorite! Chad had cancer of the leg, and a prosthetic leg on top of that. which is a fake leg but he kept on going. Wow! Best of luck. |
| Name: | shaila |
| E-mail address: | shes_got_d_look@yahoo.com |
| Name: | Kristin |
| Comments: | I am 12 and i was deognozed with scolosis. The doctor said that most people have a right curve but of course i have to a left curve. It's not to bAD YET. iT'S ONLY 17%. bUT IT STARTS on the 8th T. My eighth vertabrae very high. I am growing fast and the doc said that i might have to wear a brace.It all started with a terrible pain in my chest after tons of doctors i was degonozed with scolilsis. |
| Name: | jessica |
| E-mail address: | jesse_girl69@hotmail.com |
| Comments: | By the time I was 10 you could look at me and tell something was wrong. My left sholder blade was way lower then my right. My right sholder blade stuck out and still does. I had surgery when I was 13 on March 27. I dont know the degree of my curve But I know that childrens hospital in stlouis told me I had one of the worst cased they ever seen. We tried the backbrace which did not work then surgery was decided on. My surgery lasted 8 hours and I was in the hospital for a week. I had physical therapy 2 times a day and I cried eveytime my physical therapist came cuz it hurt so bad to get up all i wanted to do was lay there and sleep. They couldnt fix my spine 100% I think it was more like 48%. I still have one sholder higher then the other one hip still sticks out further then the other and my right sholderblade overlaps my spine by like a half of an inch. Scoliosis is a hard thing to overcome. It makes me very proud to know so many come out on top. I put up with a lot of name calling such as hump back whale and stuff. But now the people who were mean are dropped out of school and doing whatever while the rest of my class is graduating this. Congrats to all who overcame scoliosis. |
| Name: | Nina Merry |
| E-mail address: | ninajuliemerry@yahoo.co.uk |
| Comments: | i'm 13 and will be 14 in 5 months .and i have a mega big exams then, and i dont know how i'm going to cope
. i have scoliosis , i dont no what degrees my curve is , but i know its big. i will have my operation in 5 months time in the mean time i shall have a brace and do physio, i was scared at first cause i thought i could be paylized , but hey i think i'm lucky |
| Name: | devon |
| E-mail address: | dobie882002@yahoo.com |
| Comments: | i have scoliousis at 45degrees and iam getting sugree soon and iam realy scared because i head that you cant even itch your nose becuse u are in so much pain for a month after the surgree iam 16 year old girl if ne one can email me about there surgree and how it went and if ur back got straight that would be great my email is dobie882002@yahoo.com |