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Name: Dolores
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Comments:My son is 7 months old his name is Malaki Xzavier and he was born with OI. We were not aware that he was gonna be born with OI and it was a shock to my family and I. His father left us before he was born and my parents were the first people to visit him in the hospital because I was at home recovering from the c-section. It's been a rough beginning for Malaki but hopefully everything turns out good.
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Saturday, September 13th 2008 - 02:32:47 AM
Name: meghan
Comments:hey, i have OI too i'm 19 and i've lost track of how many bones i've broaken (mostly from the ones that have gone undiagnosed by doctors. i dont have to deal with people staring at me because i am normal height and not deformed (as far as I can tell) but i do have the blue eye thing going on and i get the funny looks when i'm on crutches or something ... that really sucks so my heart goes out to those who get it every day of their lives.

any way the reason i was googling OI is that i have an assignment to do for school. i am supposed to write about "my pain" -- i figured that OI is about as close as anything else to being specifically that. only one problem is that i shut it out so much that i sometimes dont believe that i have it. .... so hear i am in purely accademic circumstances, in seek of my pain.
ps does any one else have bones that hate cold and/or rain? i feel like i'm an old man croaking away that there's "gona be a change in the wind today"
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