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Dear Jeff, Kris and Brandon,
My name is Kary Hulsebus and I know Brandon's uncle Kevin through our work. Kevin briefly shared a little about Brandon with me and gave me the link to his site.
How special this is to see. I know how much you love your son and I know how all you want in this world is to make Brandon well. I know because I recently lost my little girl, Anna Grace, due to a heart attack related to an unknown genetic disorder. I read about the NG tubes, Mic-Key feeding tube and of course the G-Tube. Anna had all of these as well.
I sincerely feel for you all, especially Brandon. I know what God has in store for your beautiful child must be great. I will pray with everything I have in me that he is completely healed. I know it can happen and I know that prayer is the best way to get there. He will forever be in my thoughts and included in the prayer chain at our church.
Please know that anytime you need anything, I am close enough to help in any way. I know you don't know me at all but I know Kevin and I know he loves Brandon with his whole heart and soul.
Brandon - my prayer for you is that you maintain the incredible strength you've shown thus far and that sometime, if not now, you understand how many lives you've changed for the better. You are truly a miracle.
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