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| Name: | Deborah Davies |
| E-mail address: | bluebell36@activ8.net.au |
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| Name: | Deborah Davies |
| E-mail address: | bluebell36@activ8.net.au |
| Homepage URL: | http:// |
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| Name: | rayma |
| E-mail address: | rayma50@yahoo.com |
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| Comments: | Hi teresa, I'm really glad you have this website. I'm so tired of suffering from this disease (fibromyalgia & reynauds). It really helps to read what other people have to say about it. I would like to find a doctor that really understands everything that goes along with this illness. Extreme fatigue, migraines, tmj, pain in my chest, back, legs and arms constantly. And lets not forget the depression!! What i would give for a good nights sleep. I'm 57 and have had all this mess for about 15 years. I try not to complain to my family... they just do n't get it. |
| Name: | Rayma |
| E-mail address: | rayma50@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Hi, I'm Rayma and I suffer from fibromyalga and reynauds. It really sucks to be in pain and so exhaused all the time. So sorry anyone else has to feel this way but glad to talk to someone who understands. |
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| Name: | Philena Horton |
| E-mail address: | robertwhorton@earthlink.net |
| Homepage URL: | http:// |
| Comments: | I signed your dreambook a few years back. Since then I have come a very long way. I take 300mg of lithium a day, along with 90mg of morphine (must be extended relief) by pill. Two advil PMs at night and three fibracom tablets daily. I also I slowly walk 30 minutes a day and do 50 slow crunches a day to build the muscles around my stomach and intestines. My life HAS started and is now filled with quality days (Don't ever give up). Going to the bathroom (2) is a very, very important nesesaty for everyone. It is a must to go at least every other day, and eat small heathly meals. I would also like to add that potassium is the core nutrient needed by our cells so they have the ability to reproduce healthy and keep the body's ammune system strong. This sounds like a lot of things to do. But, I have been working on my problem for 5 years with 2 near death experiences. Please think about the things I have implemented in my life. and ask your doctor, or do your own research, everyone deseves to have some quality of life, and hope for the future. It's not in your head.
Sincerely, Philena Horton |
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| Comments: | allo im a very younge 36yr old and for the last 18mths ive been in agony my back constantly aches but i have traits disease (costochrondritis) which is pure agony knife like pains in my heart it puts me on the floor loose my breath and cry out loud,i dont want to live like this,i take to many tablets please email me if you can help ta prescott393@btinternet.com xx |
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| Comments: | I was diagnoised with FMS earlier this year, but I believe I have had it for sometime. Some days I can't even get out of bed and it makes you feel like you just want to give up.
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| Name: | Linda |
| E-mail address: | Jlpsd4@aol.com |
| Homepage URL: | http:// |
| Comments: | Hi teresa. I have just been diagnosed with fibromyalgia. I need a lot of support as my family really doesn't understand my condition. Any education, and information regarding this horrid demon like disease would truly be appreciated as most of the time I feel very much alone. Thank you Linda in pain. |
| Name: | Linda |
| E-mail address: | Jlpsd4@aol.com |
| Homepage URL: | http:// |
| Comments: | Hi teresa. I have just been diagnosed with fibromyalgia. I need a lot of support as my family really doesn't understand my condition. Any education, and information regarding this horrid demon like disease would truly be appreciated as most of the time I feel very much alone. Thank you Linda in pain. |
| Name: | joyce wright |
| E-mail address: | mejwright@overland.net |
| Homepage URL: | http:// |
| Comments: | Teresa is my neice and I wish I could help. the least I can do is say "I hope you are feeling fairly well. |
| Name: | Shelly Grocott |
| E-mail address: | sgrocott2000@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Im also have FMS for 20 some years. Last 2 years have been bad, now on disability trying to find help. Good luck to you!
Shelly Grocott |
| Name: | Susanne |
| E-mail address: | GEORGIAORIOLE@KNOLOGY.NET |
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| Comments: | I have been recently diagnosed w/fibromyalgia after approx. a yr. of feeling extremely fatigued and severe pain throughout my body. I see a rheumatologist and homeopathic dr. -- I have changed my diet which has helped -- gone on mainly a vegetarian diet. I am also taking multivitamins, Everflex, Green Zone (1 scoop in juice or a smoothy 1X a day), Fibralgia w/meals, liquid Calcium - 1 tbsp. every night -- these are through Nature's Sunshine. These have helped a lot so far compared to how I felt a mo. ago & am able to get around w/my kids. I am also on an antidepressant which is helping too. Am trying to incorporate more walking for exercise. The diet that is high in veggies and fruits and the supplements have helped the most -- just glad I got the help that I desperately needed. |
| Name: | Mary Bratton |
| E-mail address: | LilVeggiePanda@aol.com |
| Homepage URL: | http:// |
| Comments: | This was very informative...thank you for setting it up, as I have FM & it's difficult to describe to my friends..so, I'll refer them to here--this is me for sure. |
| Name: | kim |
| E-mail address: | mikeandkim@earthlink.net |
| Homepage URL: | http:// |
| Comments: | i was diagnosed w/ mysthenia gravis in 1996 had thymus removed plasma ivig and still i feel i am dead my mucsle do not function 38 now and i get so weak everytime i have respitory and have to inabated they always want to keep me and i want to be home
i hate being weak and they say take the mestinon and predisone it makes me sick so i live life w/ out it any one understand ???// |
| Name: | kim |
| E-mail address: | mikeandkim@earthlink.net |
| Homepage URL: | http:// |
| Comments: | i was diagnosed w/ mysthenia gravis in 1996 had thymus removed plasma ivig and still i feel i am dead my mucsle do not function 38 now and i get so weak everytime i have respitory and have to inabated they always want to keep me and i want to be home
i hate being weak and they say take the mestinon and predisone it makes me sick so i live life w/ out it any one understand ???// |
| Name: | Gina McKay |
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| Comments: | Wishing you good health! |
| Name: | betty reeves |
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| Comments: | i have a sister who is 63 years old and after many years of suffering has recently been diagnosed with polymyalgia rheumatica. what a strange disease! she is having a hard time coming to grips with it-agonizing pain that she cannot get relief from, depression so deep i fear for her..my dream for her would be a way to live a peaceful, less painful life, |
| Name: | carol webb |
| E-mail address: | swifty1@mchsi.com |
| Homepage URL: | http:// |
| Comments: | hi, i too suffer with chronic fibromayglia. i wish i could get some help. |
| Name: | carol webb |
| E-mail address: | swifty1@mchsi.com |
| Homepage URL: | http:// |
| Comments: | hi, i too suffer with chronic fibromayglia. i wish i could get some help. |
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| Name: | Philena Horton |
| E-mail address: | philena@adelphia.net |
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| Comments: | Your article was great. I have alot of the same problems, my neck turns red, but my hands and feet do not turn black. I've had a hard time too. Worked for 10 years in accounting with 2 kids. Now, I am not working, trying to find a way to not take pain medication. I have headaches, tumurs, and muscle spasms, all around body pain. Anyway, It's nice to know your not by yourself. |
| Name: | Philena Horton |
| E-mail address: | philena@adelphia.net |
| Homepage URL: | http:// |
| Comments: | Your article was great. I have alot of the same problems, my neck turns red, but my hands and feet do not turn black. I've had a hard time too. Worked for 10 years in accounting with 2 kids. Now, I am not working, trying to find a way to not take pain medication. I have headaches, tumurs, and muscle spasms, all around body pain. Anyway, It's nice to know your not by yourself. |
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| Homepage URL: | http://www.jennyshome.com |
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| Name: | Laura |
| E-mail address: | sassycat700@yahoo.com |
| Homepage URL: | http:// |
| Comments: | I was diagnosed with FMS a year ago. I am very much overwieght, work in a factory and am in constant pain. I have been looking for answers and solutions but can't find any. I was sent information on a nutrition program but the type is faded and I can't read it. Do any of you know where I can look for the nutrition aspect of FMS? I am so tired of all the pills and their affect. I want my life back but I also am afraid of what may become of it. Thanks for listening and I look forward to hearing from someone. Laura |
| Name: | Laura |
| E-mail address: | sassycat700@yahoo.com |
| Homepage URL: | http:// |
| Comments: | I was diagnosed with FMS a year ago. I am very much overwieght, work in a factory and am in constant pain. I have been looking for answers and solutions but can't find any. I was sent information on a nutrition program but the type is faded and I can't read it. Do any of you know where I can look for the nutrition aspect of FMS? I am so tired of all the pills and their affect. I want my life back but I also am afraid of what may become of it. Thanks for listening and I look forward to hearing from someone. Laura |
| Name: | Wendi |
| E-mail address: | wenjim@rogers.com |
| Homepage URL: | http:// |
| Comments: | Nice story. Glad it worked out for you. I am newly diagnosed and not at all happy about it. Feel like I am in a living hell right now. |
| Name: | Wendi |
| E-mail address: | wenjim@rogers.com |
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| Name: | Johanna Dewey |
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| Comments: | Nobody believes the chest pain can be FMS! I was taken to ER just three times this past week: for chest pain (twice), for leg pain (clot?) once. Heart was good, BP good, blood good,leg circulation good .Played piano solos in church today! |
| Name: | Gina |
| E-mail address: | silver9255@cox.net |
| Homepage URL: | http://www.ginamckay.com |
| Comments: | Hi, Teresa,
I have FMS/CFIDS and mild Raynauds. Every day can be a challenge. I am currently enjoying good health. There are still difficult days, but not as severe as they have been in the past. Being on a low-carb diet has helped a great deal. Wishing you good health, Gina |
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| E-mail address: | tmax51@hotmail.com |
| Homepage URL: | http:// |
| Comments: | I started looking for a good doctor in Massachusetts who can help me with my pain and fatigue but I got side tracked and started looking at other sites.Take care. Tom |
| Name: | angelia |
| E-mail address: | eangiea@bellsouth.net |
| Homepage URL: | http:// |
| Comments: | Trying to find a e mail pal.
I am in a lot of pain I also have lupus Angie |
| Name: | Judy E. Holden |
| E-mail address: | jimjudy.holden@3web.net |
| Homepage URL: | http:// |
| Comments: | Muchas Gracias, THANKS for the information!
It sure helps to know that I am not alone! xoxo Judy |
| Name: | DanielleWinkler |
| E-mail address: | LexiesMommy1231@cs.com |
| Homepage URL: | http:// |
| Comments: | I am 21 years old, and have recently been told that I have Fibromyalgia. I have had horrible back and neck pain for 3 years. During my pregnancy my legs would go weak or feel like Jello, as time went on my pain and my leg problems became worse. Along with sleepless nights, or half slept nights, waking up in the middle of the night and one whole side of my body would be numb or hurt so bad that I was not able to go back to sleep. I am in so much pain at times that I am not able to pick up or get on the floor to play with my daughter.
I have been given sleeping pills and as of now they are not helping, pain pills that only work with 1/10 of the pain. My husband since I have a name for all of the pain really does not say or help much. I think the less he talks about it, the longer he does not have to deal with me being sick. or maybe he thinks its all in my head, since the xrays came back ok. He has not yet came to realize that I will be in pain for the rest of my life. Any comments or support please feel free to email me @ LexiesMommy1231@cs.com Thank you |
| Name: | donna walentovic |
| E-mail address: | cyntia_01_00@yahoo.com |
| Homepage URL: | http:// |
| Comments: | i too suffer from fibromayglia just dx 3 months ago i am
a LVN for a great pain specialist and very understanding which makes things much better for me, everday i get out of bed knowing that i have someone there for me at work// i feel my shoulders and my cervical are worst an d o feel like i do not want to be a sastestic.with medications medications medication. i tink evey time i go i wonder when will this stop. lortab valuim soma nuerotin,zanaflex when will it stop the pain tiggers pointsthat do work 48 hrs ooccipitical nerve blk helps any suggestions |
| Name: | donna walentovic |
| E-mail address: | cyntia_01_00@yahoo.com |
| Homepage URL: | http:// |
| Name: | Vanessa |
| E-mail address: | lattievan@earthlink.net |
| Homepage URL: | http:// |
| Comments: | I have FMS/CFS, sleep apnea, hasimoto's thyroiditis, one kidney, empty sella syndrome. I was just dxs in May 2002 with FMS/CFS, and sleep apnea. Since 1999 I have not been able to hold down a job. I have so many days I can not get out of bed either from the fibro, or chronic fatigue. I applied for my SSD have been turned twice. The last letter told me I could go back to work since I had recovered from my STROKE.....I have never had a stroke !
People who do not have this weird disease has no idea what we have to live with. I had to give up my job, my volunteer work for the American Veterans organizations, bowling two and three nights a week, dart tournaments. I no longer can drive a car, have not been able to do this for a year now. I think my fms started in 1999, when I became very ill and they could not find out what was wrong with me. I had a dry cough, back pain, I turned a gray color, my stomach swoll as tho I were pregnant. My feet swoll, I lost total control of my bladder. I was in bed 9 1/2 weeks, I could not feed myself, or bathe myself. The docs kept telling me I had acute bronchitis......NO I did not-I have had that before, and this was totally different. My doc tested me for Lupus, Mysthenia Gravis, MS, and allergies.....I have been suffering ever since this incident. I was dxs in May from a Rheumatologists. I have since been through a tremdous amount of testing for MS, Lyme Disease and etc. I go tomorrow for a "mental exam" ordered by law judge for my SSD....I am not wacko, but I do have depression, and anexity due to this disease. I wish you all pain free days, and hope that someday soon we will have some answers to this disease, and hope that more docs will start listening to the patients when they have so much pain and no answers. Vanessa |
| Name: | Debbie Whitaker |
| E-mail address: | dwhitaker@mchsi.com |
| Homepage URL: | http:// |
| Comments: | Hi Teresa,
I really enjoyed going through your web page. I am 47 years old and was diagnosed with Fibro a little over a year ago. I had to have surgery for Arnold Chiari Malformation last January and have had FMS & CFS since then. I am in the process of making my own Homepage about Fibro and I like the way you have your Homepage arranged. Very easy to get around. Great information, also. |
| Name: | cal herring |
| E-mail address: | calvicky@att.net |
| Homepage URL: | http:// |
| Comments: | RECENTLY DIAGNOSED WITH FIBROMYALGIA AFTER A YEAR OR TWO OF UNEXPLAINED SORENESS,PAIN,STIFFNESS AND A HISTORY OF LUPUS IN FAMILY. MOTHER DIED AGE 56 OF LUPUS, DERMATOMYOSITIS , AND OLDER SISTER NOW FOR AYEAR OR TWO WITH POLYMYALGIARHEUMATICA... |
| Name: | Marielle Scott |
| E-mail address: | ascott0415@rogers.com |
| Homepage URL: | http:// |
| Comments: | Hi Theresa,
I'm a 48 year old female, in the process of being diagnosed with Fibromyalsis. I am in need of a psychiatrist in the Barrie, Ontario, Canada. My doctor is in TO and asked me to seek a psychiatrist in my area who dealt with this desease. I am not having much luck. He said he would refer me to this person once I found one. I need help dealing with everything going on in my life. Regards, Marielle |
| Name: | Marielle Scott |
| E-mail address: | ascott0415@rogers.com |
| Homepage URL: | http:// |
| Comments: | Hi Theresa,
I'm a 48 year old female, in the process of being diagnosed with Fibromyalsis. I am in need of a psychiatrist in the Barrie, Ontario, Canada. My doctor is in TO and asked me to seek a psychiatrist in my area who dealt with this desease. I am not having much luck. He said he would refer me to this person once I found one. I need help dealing with everything going on in my life. Regards, Marielle |
| Name: | Marielle Scott |
| Homepage URL: | http:// |
| Name: | Serena |
| E-mail address: | Serena496@yahoo.com |
| Homepage URL: | http://www.domains-links.com |
| Comments: | This is really a fun website |
| Name: | sherry |
| E-mail address: | scarysherryslg@yahoo |
| Homepage URL: | http://www.searchalot.com |
| Comments: | I was diagnosed 5 yars ago. But I have never heard the prognosis of this, strage desease. I'd like to here from you. |
| Name: | sherry |
| E-mail address: | scarysherryslg@yahoo |
| Homepage URL: | http://www.searchalot.com |
| Comments: | I was diagnosed 5 yars ago. But I have never heard the prognosis of this, strage desease. I'd like to here from you. |
| Name: | Jolinda Brown |
| E-mail address: | jolinda@insightbb.com |
| Homepage URL: | http:// |
| Comments: | I have fibromyalgia and I am having a great deal of problems with depression and coping with work. I am a nurse and know that there are a lot of things that I can not do. It is very hard to get an employer to understand the situations and problems that arise. |
| Name: | Ben |
| E-mail address: | Ben684@yahoo.com |
| Homepage URL: | http://www.domains-links.com |
| Comments: | Webmaster, keep up the good work! |
| Name: | Linda Hooser |
| E-mail address: | lindah@hot.rr.com |
| Homepage URL: | http:// |
| Comments: | Sometimes I feel like the dr's think I am crazy.They do not have to live in this body.I am a Pastors wife in TX and I lean on the Lord alot to get me thru.Thanks for listening. |