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CJ [e] Thank you for your website. Diagnosed with Beta Thal in '97 and my son was diagnosed last August. My father has it and his father had it and my brother has it. Does this gene ever give up? My grandparents on Mom's side were from Norway and my Dad's mother from Norway. My Grandfather on Dad's side was obviously the carrier? He had olive complexion/green eyes. My son and I are so pale!(and tired)...I can relate to many physical/emotional symptoms researched. I'm praying for Thal majors out there too; makes my problems seem so trivial... Monday, January 14th 2008 - 01:45:32 PM

mini [e] this site is very nice, give me more information thanks, Monday, December 3rd 2007 - 02:57:42 AM

sabera sangani [e] I've recently discovered my third child who is only 1 yr old has got thalassemia major. really concerned how get about managing it, even if possible go for bone marrow tansplant. Saturday, September 8th 2007 - 01:14:32 AM

EDITH PARTEE [e] Hi everyone!!! I am glad I found this site. I am 36 years old. Just diagnosed with this disorder in May of last year. I am actually worried about this. After many unexplained episodes of extreme weight loss, the worse stomach pains ever, vomiting & jaundice, joint & muscle pains I had no idea of this never heard of it for that matter. Would like to get to know other people find about their experiences and what can I do. Please email me @ sixfoot_lunatic@yahoo.com. Thanks and hope to hear from ya soon. Tuesday, August 14th 2007 - 03:02:05 PM

aurora hi everyone!!i'm french from corsica and i have beta thalassemia since i was born we discovered it when i was 4 because i was so tired i wouldn't wanna walk... now i'm almost 17 and tired of being tired too!!(laugh) it's good because you guys in america talk about it because in france it's not really the case.. anyway i wish you a good day and i hope they'll find a better treatment as soon as possible!!and that it'll be exported to europe... xoxoxowith comprehension and hope aurora Tuesday, May 22nd 2007 - 08:49:11 AM

Claire Ramlogan-Salanga [e] [h] I just wanted to say that your site is great. I have thalassemia minor and have decided to complete a project in school to inform (biology) students of this genetic disorder. Your site has helped me understand what people with Thal Major "really" go through. Thank you. Wednesday, May 16th 2007 - 06:27:25 PM

Dano [e] [h] I found this website extremely helpful and I'm glad that it is up. Thank you for all the information and I sincerely hope for a cure to be found for this terrible disease. Wednesday, May 9th 2007 - 11:23:55 PM

paige bowden [e] im sorry to hear about everyone that has had this and i pray each night that someone will find a cure but ill keep yall all in my prayers! Tuesday, May 1st 2007 - 11:46:28 AM

mohamed bassam [e] HI my name is Mohamed Bassam. I am from maldives. I am having beta thalasemia since i was born.In our little country we have more than 500 people who are thalasemia majors.And more than 70%people are carriers. my mail add is mohamedbassam@hotmail.com may god bless u Friday, April 20th 2007 - 11:06:14 AM

Wendy [h] Thank you for having such an informative site! I wanted to learn a little more about thalassemia as I had come across it in my research. I am trying to raise awareness of the potentially fatal but easily preventable haemochromatosis or hemochromatosis as some spell it as some very close family members suffer from this condition. Saturday, April 14th 2007 - 09:40:52 PM

NITAL [e] Your site was very interesting. I am doing seminar on thalassemia & i got lot many infomation from your site. Thank you. Sunday, February 11th 2007 - 04:44:46 AM

naznin [e] i was very impressed by this website. i hav beta-thal-major and am now at risk of heart disease cuz of iron overload. i was doing some research and would lik to learn about any possible diet's related to my case to improve my helath. if u know anythin and want to share please write to me at patel_naznin@yahoo.com Friday, February 9th 2007 - 05:20:30 PM

Rahul Mehta [e] I was totally in the dark about this word Thelasemiac until last night , when i got a call from one of my long time girlfriend informing me about her sufferings, till then i am just collecting the informations and this web page is the best i have surfed till now. I want to know more and also how to prevent it along with saving my friend from entering into depression. i love her and shocked to understand her problem. Wednesday, January 17th 2007 - 02:28:45 AM

Marilyn Fantauzzo [e] Hi Shirley, We met at the Saints & Sinners clambake a few weeks ago & just now had a chance to visit your website. I have to tell you I think your Lisa was a very brave young woman who lived her short life to the fullest. I also think it's wonderful that you're continuing to do what you do in her memory. God Bless. Marilyn Tuesday, September 5th 2006 - 08:43:42 PM

Rosanna Vitale-Upton [e] [h] Hello My name is Rosanna and I have had beta Thal Major since 1962 when I was only 8 months old. I had my spleen out at age 14yrs deep Muscle injections of 4mils dailey til I was about 21yrs then I went sub, now I'm 44yrs old and find it very hard to do them anymore, and now my iron is creeping up. So I'm hoping to try some new tablets on the market called ferriprox. A few years ago I went on the L1 for a year but I found it made me very tired, so I came off them, and going back to Desferal was very hard. I have had lots of bad times in the old old days when needles were very painful, days before these combfy little hollow plastic needles. There's been massive changes made though all these years, now all I wish is to be on time in life for Gene therapy... I am a singer/songwriter and it's that which makes me want to go on. Check out our web page www.nocomment-2006.co.uk web page has a link for you to listen to us contact me also Love and strength all you thals god bless you's Sunday, August 20th 2006 - 09:10:46 PM

Toni [e] Hi! My name is Toni and I have to say great info. I've been doing some research about Thalassemia because my mother and Father had it. I never realized there were many types of Thalassemia, and I find it interesting research. Thanks for sharing info. with me to figure out my strategy of how to try to maintain a healthy life style. Hope all is well with all of you. Best, Toni Wednesday, August 9th 2006 - 04:07:34 PM

lanierose t. vilan-zosa [e] [h] my son is 3 years old and just recently a doctors finding that my son is a thalassemia, he alredy undergo bonemarrow before it was diagnose that he is a thalassemia, I want to gather more info to enlighten me and to some medications and remedy for my son, he is my one and only child since im already 40 yrs. old and am afraid to have another child Tuesday, August 8th 2006 - 04:34:31 AM

lanierose t. vilan-zosa [e] [h] my son is 3 years old and just recently a doctors finding that my son is a thalassemia, he alredy undergo bonemarrow before it was diagnose that he is a thalassemia, I want to gather more info to enlighten me and to some medications and remedy for my son, he is my one and only child since im already 40 yrs. old and am afraid to have another child Tuesday, August 8th 2006 - 04:28:42 AM

bildrix [e] HI! I've been a HEP-C patient for @ 20 mopnths total. I'm extremely fortunate to have recently been informed by my Doctor that due to my "super response" to the treatment, I no longer am to take it!!! !!! The bummer I have is that I just got delivered my MONTHLY treatment package that contains: RIBAVIRIN 200MG. CAPSULE 180 ea. 3 caps 2Xs A DAY PEGASYS sterile pfs monthly kit 180MCG/.5ML (4 dosed syringes in sealed box). PROCRIT 40000U/1ML VIAL in a sealed box of 4 vials. While I try to figure out what to do with this while it sits in my refrigerator, does anyone have an idea...PLEASE??? Thanx&Happiness! bildrix@yahoo.com Sunday, July 16th 2006 - 04:40:20 PM

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Nora [e] hi am 26 years old, am a teacher i had my first blood transfustion when i was two months old,, i am really happy to be able to help anyone,,, i wanted to know if anyone here is from Iran, cus i've heard that there is a cure just with using injections for three months and tablets for a year and half, my friend already took an appointment for her daughter on 22 of july,, and i know a patient in the same medical center i am going to for blood transfusion and he has not had a blood transfusion since he had that treatment for nine months.. i really wish if anyone knows about that treatment to be in touch with me,,, and from my behalf i will inform you all about it when i know anything new,,, be safe,, Nora Saturday, June 24th 2006 - 05:43:19 AM

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Jessica Gustason [e] My 4 year old daughter was recently diagnosed with Thalassemia. She had been chronically ill since January 2005 with recurrent kidney infections. Recently the Dr.s discovered that she had gallstones and needed to have her gallbladder removed and that is when they discovered that she had thalasemmia. I had never heard of it until recently and no one I know has ever been sick with this. It's been rough going and we were beginning to fell crazy trying to find someone else with the disease. My daughter is currently being treated at Strong Memorial as well. I read your story and it gives me great hope for my little girl. Thank you so much. Monday, June 5th 2006 - 03:26:30 PM

Benjamin Woffindale [e] I am now starting 3 months of Exjade, & have had no side effects. I am well overall, compliancy has not had any problems what so ever! All is well with my Mom and her Husband. My sister is well, I am an uncle, my brother is in the Army. Two of my closest cousins are succesful in there skills of trade. MY father is well and surviving in Orlando, so after not knowing him for a long time we are rebuilding our father/son relationship. WEll friends and family who see this feel free to email me. Out of respect if I don't know no emails please? Hope to hear from the Cammileri family soon, share this with the sisters and cousins and nieces that I know in the family. From, your good friend Benjamin Woffindale Friday, June 2nd 2006 - 06:04:47 AM

mahesh [e] hi !! the best web site i ever came across !! i am thalassemia intermedia, and recently i was transfused ( given 2 units of blood )its the second time i was transfused ( first transfusion took place 26 years back ). i am 35 yrs old happily married with 2 sons ( thank god they are not suffering from thalassemia!! )doctors have given me this mantra to live " EAT , ENJOY AND BE MERRY " so readers all of you also do the same .( its all in the mind ) Friday, May 12th 2006 - 11:42:13 PM

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ALISHA ALBURY [e] HELLO I NEVER KNEW I HAD ALPHA THALASSEMIA UNTIL 3WKS AGO SO I HAVE BEEN LOOKING FOR A LOT OF INFO ON THIS BUT I ALSO HAVE IRON DEF. ALONG WITH IT AND WAS TOLD THAT WAS RARE MY MOM OR DAD HAVE ANY THING SUCH AS THIS I WAS ALWAYS WONDERING WHY ME? BUT NOW I JUST THANK GOD FOR WHATEVER HE HAS FOR ME AND DEAL WITH IT. I HAVE BEEN GETTING TRANSFUSSION SINCE BIRTH BUT NOW IT'S LIKE EVEY 5-6WKS I NEED ONE BUT I CAN'T CONT. LIKE THIS IS THERE ANY OTHER THINGS I CAN TRY? PLEASE TELL ME SOMETHING BE INFEED AND TRANSFUSSIONS? I AM LOOKING FOR OTHER THINGS TO TRY THESE TO ARE NO LONGER WORKING. Monday, March 20th 2006 - 12:47:18 PM

Siva [e] hi there. was searching some info on Thalassemia and i bump into your website.How are you today? oh, btw, im a final year medical student and im doing a project on Thalassemia. i have a 8 yr old boy with Beta Thal major who was under my care for the past 2 yrs.he is doing fine. you take care ya. Friday, March 17th 2006 - 11:49:15 PM

Ellen [e] Hi, my granddaughter has been diagnosed with Beta, not sure yet if it is major or minor. My husband has minor. We are praying that Julianna's will also be minor. She is 8 months old & very tiny for her age. They were looking for answers when this was discovered. We are praying for the best. Thanks for your website, there are not enough like yours. Ellen Langston, Texas Monday, February 27th 2006 - 03:14:36 PM

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Krystyle Hayes [e] I think this is a great website. I needed information fro a school project. It gave me all the information I needed. Thanks for making such a great website. Thursday, January 5th 2006 - 12:18:56 PM

April [e] I know how its like to have a disease all ur life. Ive just learned about this one. I think we should live each day like it was our last, and never to forget to show the people that we care about that we love them Saturday, December 3rd 2005 - 05:13:22 PM

Brandi [e] I was diagnois with alpha thalassemia trait about a year ago. I feel great must of the time. Although, I have minor aches and pains from the anemia. Friday, November 11th 2005 - 04:42:55 PM

Amir Mustaqim [e] [h] Pls tell me about ICL 670 the new iron chelating drug. Thursday, October 27th 2005 - 06:49:37 AM

elly [e] hi, i'm elly from malaysia. my husband husband is suspected to suffer from thalessemia. Though it is not confirmed, i need to read up and prepare for the actual result which is going to be in 2 weeks from now. hope i can get good advice from friends who are having thalassemia. Monday, October 10th 2005 - 10:19:15 PM

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Andy [e] [h] Please join us at the group Lisa created, at http://groups.msn.com/ThalassemiaPatientsandFriends You will find many people to talk to about thalassemia. Tuesday, September 27th 2005 - 08:34:41 PM

Annapoorna [e] Hey everyone, This is Anna. I am student from United World college. I am conducting a high school level research on Thalassemia. I need four case studies. I have already got two case studies from a doctor in India. But it has been very hard for me to get case studies from a developed country. I am comparing the level of stress and ways of coping stress and how economy of a country p[lays a role in getting treatments. So if there is anyone who is willing to provide me withthe case studies, that would be wonderful. To find out more about the confidentiality issues, and what exactly my research is and to send me ur case studies, feel free to email me at annapoorna_atluri@hotmail.com Friday, September 9th 2005 - 10:04:47 PM

Rosalina [e] Hi! I`m 17 years old and I suffered prom thalassemia major .I feel well , but I need some friends who have the same problem as me .. to give me some moral support because it's really difficult to me .. I've already written here but nobody replied me ... may be this time I'll receive some e-mails!Thanks! Success to all of us! Sunday, September 4th 2005 - 10:43:00 AM

Benjamin Woffindale [e] Hi Shirley & Angela; It has been too long since I have written. I now have internet access at home. I was in Rochester this past July, I had to go back for my Grandfather's funeral, he was 81 yrs. old. Joseph Cotropia was a stong & great man, and I miss him. David I have not spoken to yet, his Mom says he is well. Now I am on my 6th In-Fus-A-Port. I also have fractured my heel also. But, that is it for injuries. I miss everyone in Rochester, both families and friends. I'll write again soon. Saturday, September 3rd 2005 - 06:05:35 PM

Akriti Kharel [e] I am 12 year old Thalassemia Major girl from Nepal. I have been receiving blood from the age of 6 months - my parents tell me. I need help. Akriti Tuesday, July 12th 2005 - 02:24:11 AM

chris foo [e] i have been recently diagnosed with thalassemia with a history of my mother having it. All this while i didn't know my mother had it. I only knew at the age of 18 yrs that i had low blood count (anemia). I am happy and honored to sign in your guest book. Monday, July 11th 2005 - 10:55:28 AM

Carolyn Allen [e] I was diagnosed with thalassemia in 1989, but was not told what kind.So I assume it's not life threating. I do have spells of weakness, and I just start back on my Iron. Monday, June 27th 2005 - 03:56:48 PM

Nicole Snyder [e] My prayers go out to everyone-those whom are affected by the disease and their families. I am a single mother and will find out in two days if my newborn son has this disease. You never think about these things until it hits you in the face. I have been through alot in my life and I belive what hurts you makes you stronger, but this will be tough to deal with if he is positive. I hope everyone that reads this is well and my prayers are with you. God bless you all. Saturday, June 25th 2005 - 04:18:22 PM

Narendra [e] Hello, Such sites are very useful for people like me who just hear of family members having Thalasseamia Major. My sister's daughter has it. She is only 6 months old and was treated with Blood Transfusion once. I would like to hear what are the cure of this disease. I have read Gene Therapy as one and the Bone Marrow as another. What are your views? -Narendra Saturday, June 25th 2005 - 06:33:14 AM

Tom Elliot [e] I have found your site very informing as i have the minor strain and till now didn't know much about it at all thank you....... Saturday, June 25th 2005 - 01:23:45 AM

juanito [e] Hi Guys/Gals, Im from Australia great site, I dont have thal but my partner does. Ive noticed that it seems like in the us u guys get transfusions every 4 weeks as oposed to us here which is every 3 weeks. I find that with my partner since she has been transfused every 3 weeks she seems to be more active and doesnt get as tiered leading up to transfusion. Also her hemogloben tends to remain steadier and closer to normal renge. She is on 3grams of des 5 nights a week and i was wondering if any of u r on the new tablet form and what ur experience with the tab has been. also her iorn leavels are within normal range not :-) (finaly) so we hope to be able to maintain that. Anny further info on the tablets would be great thankyou Keep Well Thursday, June 23rd 2005 - 11:00:00 PM

josefina rojas [e] i'm a patient with this desorder, i've just got in this wounderful information thanks. josie Thursday, June 23rd 2005 - 02:29:28 PM

siti yats [e] hi everyone, great site very useful. need to let off what i feel. i am terribly worried after reading everything there is abt thalassemia. I brought my son to the doctor who suspected that he may have it. he will be fourteen soon. the final blood test result ( 3rd one .this time for tha. stage 2) will be out next friday. i have 4 other children and i am really really worried. none in on my side of the family or my husband's has this disorder. could it be possible that we have been silent carrier? My son has been experiencing dizziness since end of may. it is just mild and he can still go abt his daily activities. is that dizziness one of the symptoms? Thursday, June 9th 2005 - 09:33:15 PM

leah mcdaniel [e] I am so glad that I ran across you. My daughter also has thalassemia. It is not major but she still suffers alot from it. When she gets sick she gets REALLY sick. I have almost lost her several times. My pregnancy was difficult because my body knew she had this disorder. I do not carry this trait but my ex-husband does. His mother died from it at the age of 55. The doctors really have no idea what it is and I have to educate them. I am just glad that there is someone else out there that has problems also. The one doctor that I have found that knows about thalassemia says although there are 2 main types alpha and beta that there are over a 100 different strains of it that have mutated over the years and my daughter got the "lucky" strain that makes her get real sick but does not require the blood transfusions all the time. Well, I have bored you now. God bless you and have a good day!!! Leah, mother of a 6 year old daughter suffereing from thalassemia Thursday, June 9th 2005 - 07:39:32 AM

SunShine [e] hi everybody, I hope you are all fine and shall Allah rest Lisa soul in heaven, she was really great I wish I can do for thalassemia half of what she did and I know I won¡¦t, cus she did a lot, I had wrote on this forum before but that was two years ago, Well I am in regular blood transfusion since I was two months old and I am now 24 years old. I am in my final year at college, doing Bachelor of Education; hopefully I will start working on sept, as I said I went actually for bone morrow transplant but couldn¡¦t do cus of donors mismatch, but I don¡¦t want to stop here and I want to take thalassemia off my life and I am sure ¡§inchallah¡¨ that I will be able to. for that my bro and sis are going to redo the blood test hoping that there were a mistake last time but if that didn¡¦t work then I am going to do an international research, ƒº Well, two years ago I had hepitis C, but I gone into Interferon medication and now the test is always negative, The other good thing I like to share with others is that I am now on oral desferal medication, I take 8 and half tablets a day and desferal injection decreased to four times a week, ¡K To end by I want to tell Lisa and my three passed cousins that I am proud of them , and they are my role module in my life, I am writing here again to tell anyone not to hesitate to write to me if wanted to know anything about thalassemia or bone morrow transplant. though I don¡¦t mean I know everything about it, I just have the experience. So ppl having thalassemia is not the end of the world, so keep smiling Yours Sunshine Monday, May 16th 2005 - 04:45:39 AM

SunShine [e] hi everybody, I hope you are all fine and shall Allah rest Lisa soul in heaven, she was really great I wish I can do for thalassemia half of what she did and I know I won¡¦t, cus she did a lot, I had wrote on this forum before but that was two years ago, Well I am in regular blood transfusion since I was two months old and I am now 24 years old. I am in my final year at college, doing Bachelor of Education; hopefully I will start working on sept, as I said I went actually for bone morrow transplant but couldn¡¦t do cus of donors mismatch, but I don¡¦t want to stop here and I want to take thalassemia off my life and I am sure ¡§inchallah¡¨ that I will be able to. for that my bro and sis are going to redo the blood test hoping that there were a mistake last time but if that didn¡¦t work then I am going to do an international research, ƒº Well, two years ago I had hepitis C, but I gone into Interferon medication and now the test is always negative, The other good thing I like to share with others is that I am now on oral desferal medication, I take 8 and half tablets a day and desferal injection decreased to four times a week, ¡K To end by I want to tell Lisa and my three passed cousins that I am proud of them , and they are my role module in my life, I am writing here again to tell anyone not to hesitate to write to me if wanted to know anything about thalassemia or bone morrow transplant. though I don¡¦t mean I know everything about it, I just have the experience. So ppl having thalassemia is not the end of the world, so keep smiling Yours Sunshine Sunday, May 15th 2005 - 11:57:57 PM

SunShine [e] hi everybody, I hope you are all fine and shall Allah rest Lisa soul in heaven, she was really great I wish I can do for thalassemia half of what she did and I know I won¡¦t, cus she did a lot, I had wrote on this forum before but that was two years ago, Well I am in regular blood transfusion since I was two months old and I am now 24 years old. I am in my final year at college, doing Bachelor of Education; hopefully I will start working on sept, as I said I went actually for bone morrow transplant but couldn¡¦t do cus of donors mismatch, but I don¡¦t want to stop here and I want to take thalassemia off my life and I am sure ¡§inchallah¡¨ that I will be able to. for that my bro and sis are going to redo the blood test hoping that there were a mistake last time but if that didn¡¦t work then I am going to do an international research, ƒº Well, two years ago I had hepitis C, but I gone into Interferon medication and now the test is always negative, The other good thing I like to share with others is that I am now on oral desferal medication, I take 8 and half tablets a day and desferal injection decreased to four times a week, ¡K To end by I want to tell Lisa and my three passed cousins that I am proud of them , and they are my role module in my life, I am writing here again to tell anyone not to hesitate to write to me if wanted to know anything about thalassemia or bone morrow transplant. though I don¡¦t mean I know everything about it, I just have the experience. So ppl having thalassemia is not the end of the world, so keep smiling Yours Sunshine Sunday, May 15th 2005 - 11:51:04 PM

SunShine [e] hi everybody, I hope you are all fine and shall Allah rest Lisa soul in heaven, she was really great I wish I can do for thalassemia half of what she did and I know I won¡¦t, cus she did a lot, I had wrote on this forum before but that was two years ago, Well I am in regular blood transfusion since I was two months old and I am now 24 years old girl. I am in my final year at college, doing Bachelor of Education; hopefully I will start working on sept, as I said I went actually for bone morrow transplant but couldn¡¦t do cus of donors mismatch, but I don¡¦t want to stop here and I want to take thalassemia off my life and I am sure ¡§inchallah¡¨ that I will be able to. for that my bro and sis are going to redo the blood test hoping that there were a mistake last time but if that didn¡¦t work then I am going to do an international research, ƒº Well, two years ago I had hepitis C, but I gone into Interferon medication and now the test is always negative, The other good thing I like to share with others is that I am now on oral desferal medication, I take 8 and half tablets a day and desferal injection decreased to four times a week, ¡K To end by I want to tell Lisa and my three passed cousins that I am proud of them , and they are my role module in my life, I am writing here again to tell anyone not to hesitate to write to me if wanted to know anything about thalassemia or bone morrow transplant. though I don¡¦t mean I know everything about it, I just have the experience. So ppl having thalassemia is not the end of the world, so keep smiling Yours Sunshine Sunday, May 15th 2005 - 04:35:45 AM

Priscilla Taylor [e] I think this website is wounderful! I have minor thalassemia and my heart goes out to everyone suffering from Major thalessemia. Most people and doctores don't even know this disorder exists. I know what it feels like to be tired and anemic and I just want to incourage everyone who has has run into complications with this disorder to stay strong! God Bless! Wednesday, April 27th 2005 - 02:10:04 PM

Sherley Charles [e] Hello & God Bless,Right now I'm in the process of doing a health research proj. I was in a rush but I took my time & went through your whole website. I think that your website is a great way of informing peole about this disease. I just wanted to encourage you to keep up the good work. "His eye is on the sparrow & I know that he watches you" God Bless again! Monday, April 25th 2005 - 01:52:31 PM

Sherley Charles [e] Hello & God Bless,Right now I'm in the process of doing a health research proj. I was in a rush but I took my time & went through your whole website. I think that your website is a great way of informing peole about this disease. I just wanted to encourage you to keep up the good work. "His eye is on the sparrow & I know that he watches you" God Bless again! Monday, April 25th 2005 - 01:52:20 PM

C SONETIROT [e] Thank for the information. Now I know what it is. Friday, April 22nd 2005 - 08:19:29 PM

brian griffin [e] Lisa, You will always be in my heart. I haven't seen you in a very long time, but you will always be in my prayers forever. Monday, April 18th 2005 - 10:01:56 AM

brian griffin [e] Lisa, You will always be in my heart. I haven't seen you in a very long time, but you will always be in my prayers forever. Monday, April 18th 2005 - 10:01:37 AM

Dominick M Morano [e] My best freind growing up, his father appears to have died from this disease and I just found out recently. Please let me know who and where to send a donation. Thank You Dominick M Morano 150 South Indian Canyon Drive Palm Springs, CA 92262 Friday, April 15th 2005 - 05:13:04 PM

Megan McAlister [e] I am doing a report on thalassemia major and this site really helped me!! Thursday, April 14th 2005 - 01:21:56 PM

Andy [e] [h] Hi. You definitely need some advice. Please join the support group Lisa created at http://groups.msn.com/ThalassemiaPatientsandFriends We will try to get you whatever information you need. Thursday, March 24th 2005 - 07:41:51 PM

ebrahim saib nusruth [e] i am 22 years, i'm sufferinf from thalassemia major since i'm born. sorry i don't now english well as i am a mauritian girl. i'm doing alot of research on this illness but it seem in vain. here in mauritius we were about 10 suffering from this but now it remains only 3. i'm very scared as i don't want to dye now especially in hospitals. here the hospitals are very bad. they don't encourage us, they are lazy. i've learn that there are desferal pills in uk i told this to my doctor he told me to get the literacy of this medcine which i badly need. pls help me to get this. thanks Wednesday, March 23rd 2005 - 12:20:14 AM

henry [e] [h] RIP REST IN PEACE!!! Friday, March 18th 2005 - 09:01:07 AM

henry [e] [h] RIP REST IN