Kathy, MA:
I can't believe I didn't know about this movie! I have had Lyme for over 25 years, battling Chronic Fatigue off and on. It was only after having Cushing's Syndrome did they test me for Lyme. I was fortunate enough for the test to come back positive. I couldn't walk after my operation with Cushing's. It was a different type of pain. A pain that I never felt before. My muscles hurt so much, stiff and sore!!! I was told later, that Lyme disease could lie dormant for years and due to the trauma of having Cushings, my Lyme symptoms came out physically, where I couldn't walk. I was on Doxcycline for almost 4 months and it wasn't working. Needless to say, I was desperate! I was fortunate enough to have found DR. Bradford in Chula Vista, CA. He's been studying Lyme disease for over 25 years. What's unfortunate is that his protocol is not FDA approved, he's been discredited year after year and his hospital is in Mexico. If you google his name, you will come up with a list of reasons on why not to see him! He's been ridiculed for; his beliefs, his findings on Lyme, {which have turned up accurate after 20 some years}, how to detect lyme, his protocol, his hospital and he's been called a Quake for years and most recently he was indicted, but yet I am walking because of him. It's funny how all the things that are said in the movie is everything that this man had told to me 6 years ago and much, much more. But wait, it only gets better....most recently, he was indicted in 2008 for his microscope that detects Lyme and his protocol, claiming he's a fraud, they finally broke him down and he pleaded guilty. I remember him telling me that every year he's fighting to keep his doors open...sound familiar???? You know, this may not be the answer for you, but his protocol worked for me!!!!! Not only did my physical conditions go away, I felt the best I ever felt. i think when you don't have options, you lose hope. This protocol may not be for you, but when you don't have many choices and the US Medical community is turning their backs to this disease, or can't help you, there is an option. I think you can still reach Dr. Bradford in Chula Vista? I keep thinking there is a reason why I have this disease; perhaps it's to help others. If I can help just one person, maybe it will lessen the pain and agony me and my family have gone through.
26 Apr 2011

Albina , California:
I've had Lyme for a few years now. Went through a battery of tests until finally even though my lyme test came back negative I convinced a Doctor in our town that I had so many of the symptoms it had to be Lyme. Only been on Doxy for a month now and already feeling a little better. Please let me know if there is something I can do to get this film public. And thank you for the film.....Albina
24 Apr 2011

Helen Logaglio, Tennessee:
Onset of Lymes diease 2004, not diagnose until late 2005. Had good doctor back then and worked with me. My now doctor does not believe in any effects that could still be going one from Lymes. Yet the same things are happening to me as the did in the begining and more, Heels are painful when standing and when touching them, knees hurt, having lower back pain on left side all time, trace of blood found in urine, antibotics don't seem to help. Ringing in ears, rash on face, mood swings, depression, no energy.
16 Apr 2011

Aura Walker, CA:
I am successfully treating my 8 year old daughter holistically for Lyme. I am interested in being a resource in California. I have a protocol and will be visiting with Dr. Klinghardt in May, to get further input. Thank You. Aura Walker, MA, CHt www.aurawalkerhypnotherapy.com (310) 382-6313
12 Apr 2011

winter, az:
look up dr gerson and you will see why you NEED to call that num i have post IT WILL HELP !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
11 Apr 2011

WINTER, AZ:
GERSON INSTITUTE 619-685-5353 NOW THIS COULD HELP THEM GET BETTER
11 Apr 2011

Alana Hadid, CA/VA:
I want to say THANK YOU! I was bitten with a lymes tick at the age of 9. I have been in every hospital from Washington, DC to Scottsdale Arizona to Los Angeles and the first things doctors do is try and rediagnose me. I know I have lyme...I know I am sick and in pain. Now because of your film other people know
10 Apr 2011

Paula, New Mexico:
Interested in learning more
29 Mar 2011

J. Cummins, BC Canada:
been screwed by Sun Life insurance also for not really having "lymphoma"...just depressed. it is now my life purpose to change "for profit" back to medicine. am aware of the level of corruption and it was an eyeopener to see that biotech was involved with manipulating this bacteria. it is the new cancer.. or tuberculosis.. the new big money maker for a corrupt system. I want to buy the film & send it to every corrupt physician the insurance company made me see. how many cures, truths have been hidden in the last 50 years just to make a dollar. name it; you have it from if it is in my power
29 Mar 2011

Shari, Pennsylvania:
I was diagnosed with chronic neuro lyme disease in the summer of 2009. I was on deaths door when my family demanded a lyme test. Bingo! I tested positive. Here it is 2011 and I am still being referred from doctor to doctor.I decided to take matters into my own hands and do research. The best thing I've found to help combat my lyme disease is OLIVE LEAF EXTRACT. However, As good as olive leaf extracts are, they should not be taken along with antibiotics, additional amino acids or any other mold or fungus derivatives. It is not that they will do you harm, rather Olive leaf extract will see those things as invaders and kill them cancelling the positive effect of the extract, instead of working on what's important, healing you. This can be a frustrating experience. So, avoid taking them together.
19 Mar 2011

Michelle Lowe, Arizona:
I contracted Lymes either in Oklahoma or in Florida- Most-likely the latter because due to my symptomes of the erythra migrans rash which we (mom and me)thought it was a wasp sting that just didn't heal (While living in Florida). I was 7 years old. ended up with a terrible cellulitis infection on my leg for 2 months and immediately after that, I started having migraines weekly and developed chronic strep until I turned 19 and had a tonsillectomy. At that time, the biopsy on my tonsills showd that every portion of my tonsils were infected wth strep. Less than a year later, I developed "viral meningitis," while living in Arizona-which kept me out of work for a month. 10 years later, I had my 2nd case of "viral meningitis"-this time in delaware. 4 years later, I developed Meningitis again-in Arizona. Most recently, I developed "viral meningitis" with a CSF white count of 259." Nobody stopped to think-hey this may be Lymes. Once d/c'd a young hospitalist who trained back east-referred me to a rheumatologist who first said-"they should have done a western blot for lymes when you came in." She did- 4 months after my last infection. I was positive 3 bands positive. She started treatment and after 8 weeks, redrew my labs and I was still positive. Well the little buggers had hit my immune system and now I have common variable immunodeficiency-requiring monthly infusions of IVIG so I don't die of infection. I have been a critical care nurse for almost 13 years, and this last year- lymes has hit every organs system. I searched for almost 2 years and finally found a physician in San Diego, only 6 hours away. I am on long-term disability because I have developed muscle atrophy amongst other issues and can no longer care at the bedside. I hope and pray that the legislators realize someday soon, that this disease is real, and it has to be treated appropriately. I am going broke with labs alone. I have lost the support of some family members because they live back east and think Lymes is easy to cure, but don't realize the ramifications of dormant lymes, esp. after 30 years. I pray for success in getting the word out. Sincerely. M. Lowe, RN, BSN, CCRN
16 Mar 2011

kelly lehman, PA:
my mom and i have been sick for over the past 13 years with late stage lyme disease. we loved and connected so much to the documentary. we are, however, VERY curious to know now, in 2011, how all the characters are doing with their recovery. tried looking on your blog but only found info from years ago. if there are recent updates out there please let me know where i can find them and if there are not i would like to know why. we both need some hope!! thanks so much kelly
11 Mar 2011

Tricia, BC:
Not sure if everyone already knows this but Monday March 28, 10:00pm, BC's Knowledge Network will be broadcasting UOS. http://www.knowledge.ca/program/under-our-skin Take care! :)
10 Mar 2011

jill, az:
I just wanted you to know that I posted a comment on your website regarding your movie and how I believe I contracted lymes disease from a patient and I found that my comments are now published on the worldwide web. The problem is that my ex is a meth addict and is dangerous and obsesses on my kids and I and has no contact allowed but still monitors and tracks us. This information being made public is dangerous for my children and I both publicly and emotionally, and needs to be removed from your facebook and the world wide web. It uses my real name in whole...... Please contact me and let me know that this content is removed from the public domain. please... it is important..... my phone is 480-529-9259 If you make this public i am in trouble. I tried to email you separately but it is not not not not not not working. Please help me with this
4 Mar 2011

Henrik G, -:
Thanks for the film.. turns out my whole family is affected by this, though my sister is the one that has had it worst.. luckily we all get treatment now so we will be fine.. but the fact that so many in the world has this.. without knowing. Its scary!
2 Mar 2011

peggy mcgrath, MN:
What are thesymptoms of Lymm's disease
19 Feb 2011

Christine, Maine:
I would really like this to become available on Netflix, I don't have cable or sattelite - and I'm still waiting. Thank you.
19 Jan 2011

Andrea Frasé, MA:
I want to thank all the people who not only made this documentary, but also to those of you who made this film available to the public. I found this documentary to be incredibly valuable, not only for the people who have already contracted Lyme disease, but also for the people who haven’t. It's a powerful tool to raise the awareness of everyone, to not only help prevent more cases from occurring, but also a way to offer hope to those who currently have Lyme disease. I became aware of this disease because so many of the people I love have contracted Lyme disease. Some of them were fortunate enough to realize that they had been bitten right away, and were successfully treated. But there are my other friends that went undiagnosed for years, and have subsequently suffered greatly on many levels of their lives. I wanted to support and help them, but other than just listening to their stories, there didn't seem to be much else I could do, until my friend Lisa, who has Lyme disease, suggested I watch your documentary “Under Our Skin”. After seeing your documentary I ordered some for my Healing Practice, so I could use them to raise the awareness for my clients and anyone they may know. I have also become aware of an extremely effective protocol. The protocol is called “The Cowden Protocol.” I was so impressed with the protocol, I decided to become a distributor and make it part of my healing practice. Now I don't just listen, I can actually effectively help someone prevail over Lyme disease. Andrea Frasé, www.SacredBridging.com
15 Jan 2011

Ilene Morris, NJ:
I've had Lyme disease for over 10 years and was diagnosed 2 years ago. My LLMD has me on my 5th doxy regimen. I had shared my 3 year old dog died of a Lyme co-infection with my doctor, but yet I just found out I was never tested for co-infections. If antibiotic treatments depends on co-infection type, how could this happen? I have Chronic Lyme and I dare anyone to tell me other wise! How can this nation let people suffer like this??? Is Lyme disease being used for bio-terrorism and THAT is why we receive so little help??? I pray to God, not.
9 Jan 2011

Eileen, NY:
What the hell happened to the brilliant Dr. Allen McDonald?? He was fine back in 2008 when the original film was made. Then, in a 2010 version, the end of the film has a very 'quick' blip about him having "some form of Altzheimers and doesnt remember any of his research"!!!! Are you kidding?? What happened to him. You guys put the remark in the film, you HAVE TO know...What happened??
7 Jan 2011

JANE BROADHEAD, BUCKS. UK:
HAVING READ ELAINA KARAYANNIS'S CASE HISTORY I WOULD LIKE TO TELL HER THAT MY DAUGHTER AND I ARE BOTH ILL WITH LYME DISEASE AND HAVE BEEN FIGHTING IT FOR OVER 10 YEARS HERE IN ENGLAND. I AM VERY INTERESTED IN DR. JONES AND WOULD LIKE HIS CONTACT DETAILS. PLEASE SUBMIT TO jb-59@hotmail.com THIS DISEASE HAS DESTROYED OUR LIVES BUT WE ARE STILL FIGHTING BACK AND NEED A LYME LITERATE DOCTOR TO CURE US!!!
5 Jan 2011

Gregory G., NY:
A friend that's been suffering for 2 years with lime disease told me about your movie, so I ordered it. Thanks for what you've done. peace
21 Dec 2010

Lisa Keller, Pa:
I have been undergoing treatment for Lyme for over a year and can no longer afford it. My insurance pays nothing and all funds have been out of pocket. Now what to do any suggestions!!!! Please help!!!!
15 Dec 2010

Elizabeth English/Moondance Film Festival, Colorado:
I saw this CFE for short-shorts in the Nov/Dec issue of the magazine Neurology Now: "Win $1000 & a free trip to the 2011 Neuro Film Festival in Hawaii: www.neurofilmfestival.com. I thought you might want to submit your 5-minute trailer, if interested. Cheers, Elizabeth Happy Holidays!
11 Dec 2010

Elaina Karayannis, Pennsylvania:
I am 19 years old and currently a freshmen at the University of Pittsburgh. I have had Lyme Disease for 8 years, and still do today... its just more under control. Recently in my English composition class we had to write a personal statement essay, reflecting something passionate to us. so here is my story, i would love to hear others. (sorry its so long) Rain cascading down A waterfall Beautiful at first… But as the rain hits the skin A sharp pain.. Twisting the mind Creating a headache Heart racing Body throbbing Noises too loud Total confusion Time whirls slower School grades.. Sliding lower Sadness Alone with the pain No one understands Darkness with no lights… This is Lyme Disease. I lived in this storm of pain and confusion for seven years. After suffering severe headaches and unexplainable joint swelling I was diagnosed with Lyme Disease in 2003. Most people are unaware of the severity of Lyme Disease and they blow if off like it’s the common cold. When I tell people I have Lyme Disease I tend to get the same reaction, “Oh yeah, I had that too. It’s no big deal; you get the bull’s-eye rash, and then take antibiotics for a month. And 'voila' you’re cured”. There are many patients who have it that simple, but for others, Lyme Disease is an uphill battle. An ugly, long, frustrating battle, which I never wish upon anyone. The lack of knowledge is the major cause to many Lyme complications. When I was twelve I didn’t have a care in the world. I was a healthy active child, involved in many sports with a lot of friends. My biggest issue was my mom reading my diary and finding out that Derrick Adger kissed me in the back of the bus. As fast as a speeding train derailing my perfect world came tumbling down. Waking up one morning with a very swollen knee, my parents and I soon came to the conclusion that I must have injured it in my soccer game, because logically there was no other explanation. Shortly after seeing my orthopedic surgeon, he declared otherwise. My doctor told me that I most likely have Lyme Disease, and it would be wise to have a blood test taken. The results came back and I was diagnosed with an extremely high Lyme titer. My parents and myself, not knowing anything about Lyme Disease, had no idea what we were about the long journey that we were about to embark upon. Shortly after beginning my treatment, consisting of oral antibiotics, my symptoms began to worsen. My swelling spread to my other knee, elbows, and ankles and I began suffering from what is called Lyme arthritis. I soon became very sick, not only did I have the arthritis, but encephalitis pain and neurological complications. It worsened to the point where I could barely walk and was frequently blacking out and losing my vision. I missed school often, and on top of already dealing with being a dyslexic student I then had to work harder to catch up with the work I had missed. My mom began to grow frantic as she saw me disintegrate into a sickly child. For years she took me to multiple doctors who were unwilling or unable to treat me. After three different failed intravenous treatments used with a PICC line (Percutaneous Intravenous Central Catheter, all traveling through a vein in my arm into my heart), my parents saw I was not recovering and took me to a renowned Pediatric Lyme specialist (Dr. Jones) at Yale in New Haven, Connecticut. Dr. Jones became my saving grace. Years of weekly doctor visits, tests and handfuls of failed treatments led me to feel more like a lab experiment than a regular kid. More than anything I wanted to be active and involved in activities like normal kids were. Instead of playing a school sport every day after school, I had to go to my doctor. Lyme Disease completely overtook my life. I began to grow hopeless and developed depression. I saw myself as some experimental freak, and convinced myself that no one would want to be friends with me. When I had to get my first PICC line in I developed such anxiety and grew even more depressed, thinking “Who would ever want to be friends with such a freak like me”. I became so weakened by my lack of recovery that I not only was losing hope but also was imagining the world without me, thinking that it would be easier to give up and leave everything behind. I felt like I had absolutely no one to talk to. No one my age understood what I was going through. I remember telling my best friend about Lyme, and her asking if I was in pain. The frustration and fury that I felt is unexplainable. This was my best friend, (at this point I was in 9th grade and had been sick for 5 years, all of which she knew me) she was supposed to be there for me, but was too ignorant to even be able to be involved in my life enough to know that every single day was filled with physical and mental agony. In many ways I was robbed of my adolescence. I was only eleven when I was diagnosed with Lyme Disease, I was just entering my adolescence. Everything progressed so quickly, my parents and I weren’t prepared for any of it; and I was swept up, like dry leaves in a whirlwind, and forced to grow up and mature much sooner than anyone would have expected. The first year at my new school, it was very hard for me to form friendships with my peers. I had anger towards everyone for not understanding my situation. Frequently during class I kept to myself, and rarely spoke all day. The throbbing agonizing headaches I experienced made it hard to concentrate and participate in conversation. My peers were all involved in after school sports and activities, my after school activity was doctor appointments. Play dates and sleepovers rarely existed for me, and when they did they were always at my house. My antibiotics were too much of an ordeal; it was impossible for me to run my medicine at someone else’s house. Not only that, but my mom would be ridden with anxiety, concerned if I ran it correctly, if I were in pain, if so, would another mother know what to do? It was too much of a hassle, so I frequently missed out on play dates and sleepovers. The first time a friend was at my house while I ran my IV, their reaction to actually seeing my IV line was, “Wasn’t that supposed to be removed in the hospital?” Then, as their eyes widened and mouths opened in disbelief when we flushed the line with a syringe and started the IV, they incredulously asked, “Shouldn’t this be done at the hospital?” One of my brother’s friends was convinced that he would catch what I had and was quick to leave the room. I don’t know which was worse: the realization that no one really understood what I had been talking about all this time or the isolation I felt upon their reactions. As my Lyme Disease worsened, I slipped deeper and deeper into depression. I finally found a healthy and proper outlet through poetry. Poetry allowed me to express my feelings fully. I was able to gather all of my thoughts and understand what they meant to me. I began to be able to cope with these feelings. With my ability to cope came my ability to better relate and understand my peers. I was able to see that it is not their fault they don’t have knowledge of Lyme Disease, though I remained my opinion stuck about it being imperative that everyone should be knowledgeable. I was able to write poems about feeling alone, depressed, my Lyme Disease, and pain. I developed an understanding of what everything meant to me, and grew comfortable enough in myself to allow the people close to me read my poetry, allowing them too, to have a better understanding of my pain and battle. To this day I spend at least once a week reflecting on my life and experiences and writing poetry about them. Whenever I have a lot on my mind, or feel myself having a “fit of depression” I grab my pen and notebook and let my feelings flow out into poems. Without poetry I wouldn’t be the person I am today, nor as sane. I was able to turn a demented chapter of my life into a normal life. The ignorance of the severity of Lyme Disease does not only affect laypeople, but stems from the medical community. As the prevalence of Lyme Disease has only recently grown, many doctors are not extensively trained in the treatment and knowledge of Lyme Disease. Complicating that matter, is the fact that insurance companies only cover 30 days of antibiotic intravenous infusion therapy for Lyme Disease, based on outdated data and testing. Many labs are not sensitive enough to detect Lyme Disease and people frequently have a false negative result, delaying diagnosis, treatment and further complicating the disease. Most doctors don’t bother themselves to learn about Lyme Disease or fear the consequences of opposing a controversial disease. One doctor that I will never forget was the internationally acclaimed Chief of Rheumatology at the Children's Hospital of Philadelphia (CHOP). He was able to look me straight in the eyes, after reading my extensive medical chart and being examined by six other resident and fellowship doctors and tell me that he did not believe in Lyme Disease. You could imagine the fury that I felt when this world-renowned doctor announced his diagnosis to a roomful of doctors as "female stress." My mother quickly informed him that we did not choose to believe in Lyme Disease, either, but Lyme Disease chose us. I have had to debate the controversial issues surrounding Lyme Disease with many doctors and insurance providers. Hearing, not only from the doctor at CHOP but, others tell me Lyme Disease is not a real disease and arguing the benefits of long term antibiotic therapy (and how it affects them "staying under the radar" of insurance standards.) Unlike all the other doctors who saw me, Dr. Jones challenges insurance companies and treats his patients on an individual basis until they are symptom free and cured. He refuses to listen to what they say, and because of this is he is under constant scrutiny of the insurance commission and is now facing a lawsuit. But because of his persistence he has led thousands of patients to recovery. One of his patients who were born with Lyme Disease slowly slipped into a coma for years, but she now is active and is training in ballet. He currently treats thousands of children from all over the country; at my last visit he even had a patient and her family who came from Brazil after me. Dr. Jones’s beliefs of medical care go against the grain of institutional medicine and the insurance driven treatment and mandates. Not only does he do everything he can to eliminate his patients physical pain and cure their disease, but instills in each patient the ability to be themselves who an abundance of opportunities. He has not only invested his life in curing his patients, but does everything in his power to create awareness in the community and country. He has spoken in multiple movies, written awareness pamphlets, and is currently involved in an awareness campaign that is supporting his lawsuit. If this awareness could be passed onto institutional medicine, I believe that a great deal more support would be created. Not only would patients have the support of doctors sharing knowledge of the disease, but also this knowledge would then be passed down from the doctors to the surrounding community. People pay attention to the buzz of what doctors are talking about. If they are learning of all the severity of Lyme Disease, then the people too will learn and be knowledgeable. This gained knowledge would help peers and patients relate to each other. Peers will be able to have an understanding of the struggles with which patients live every day during their battle with Lyme Disease, enabling them to support Lyme patients’ needs. This is imperative because in order to properly treat Lyme Disease we need to develop education and research of the disease, to provide early diagnosis, adequate treatment and, ultimately, an effective human vaccine (a dog vaccine is currently available). Not only does Dr. Jones press the buttons of insurance companies, but also he instills faith and hope in his patients. He is very involved in each of his patients’ lives; anyone who would sit in on a visit could easily tell he loves his job and each child he treats. He has dedicated his entire life to helping children overcome this beastly disease (he is now 81 and has been in practice since his 20’s). His “you can do anything” attitude gave me a reason to keep pressing on, and renewed my courage and faith. Dr. Jones immediately restarted intravenous antibiotics, so once again I went to radiology and had a PICC line inserted. Finally, after 2 years and my 5th and only successful PICC line, I was cured. The day I announced to my parents I had joined a sports team in high school I couldn’t have been happier. For the first time since 5th grade I felt like I had somewhere to belong; I wasn’t completely in the dark anymore, and the fact that I felt I was capable of playing a sport was exhilarating. My parents didn’t have quite the same reaction; their smiles quickly ran away from their face after hearing I had made the girl’s ice hockey team. After Dad recovered from shock, he told me he didn’t care if I had come home and told him I wanted to skydive; he was just so thrilled I was able to be active. My mom expressed extreme concern, being the worrier that she is, and then asked, “Why not ballet?” Eventually she was able to share my dad’s enthusiasm. Quite the contrast to my parents’ reaction was Dr. Jones’s response when my mother qualified that the hockey I was playing was ice hockey. “Of course,” he replied, “what other kind of hockey is there?” It turns out he was a Canadian ice hockey player himself. With his blessing we devised a special pad to protect my PICC line, and I was off on the ice. Mom’s expression after my first game said it all- tears of joy mixed with a smile full of pride. Just as I thought I was finally back on top of the world, I was re-diagnosed with Lyme Disease, along with multiple other tick borne diseases including Bartonella and Rocky Mountain Spotted fever during my senior year of high school. I was immediately placed back on to intravenous treatment through yet another PICC line. As my Senior year progressed, “normal” seniors were stressing about prom dates or college acceptances etc. I, on the other hand, was stressing about whether or not my new college roommate would think I’m a freak for having a PICC line in and having to run nightly antibiotic bags. This time around I was able to stay positive. I had the loving support of my family and friends who stood behind me every step of the way. I was able to talk to them and tell them exactly what I was feeling rather than grow frustrated and shut them out. If I felt myself growing overwhelmed I had my book of poetry to turn to. Thankfully because of our experience, we knew exactly what to do the second time around. Because of our immediate actions of placing me on I.V. antibiotics I never fully worsened to the state I was during my first infection. My intense headaches, ulcers from Lyme being in my stomach, and kidney stones (which less than 1% get from the I.V. antibiotics) forced me to have to enroll in half days of school. My kidney stones worsened so much that after graduation, in August, I was worried whether or not I would be able to leave my home in Philadelphia and come to school here at Pitt. Fortunately Dr. Jones, along with my brothers, convinced me that it would be foolish of me not to take this excellent opportunity which was given to me and for which I worked so hard to achieve. This year I received possibly the best birthday present, my PICC line was removed on my visit to CT, one day before my birthday. I am currently still infected and being treated by Dr. Jones through oral antibiotics, but will hopefully be cured soon. My battle with Lyme Disease has instilled in me the character and strength that has made me a more determined student and person in general. When life gives me an issue, I have learned to take it in receiving hands and show that I can overcome it. I am living proof of Dr. Jones’ protocol and philosophy: it is imperative never to give up. As long as you work at challenges and have faith, everything will work out in the end. There were many occurrences where I became very discouraged in my recovery and life in general but believing pushed me on, and for that, I am very grateful. I learned to use poetry as a healthy way to cope and understand my feelings and myself as I made my journey through Lyme Disease. My way of coping turned my life around and continues to positively affect my life. It is vital that individuals should maintain a healthy outlet to cope with their stress and pain. A healthy outlet leads to a better life and opportunities. For many years I have had to work twice as hard as my peers without complaining. I still work harder than most, but I do not mind. I enjoy the product of accomplishment and exceeding expectations to my full potential. For a long time I wished for life to get back to normal – real life. But there was always some obstacle in the way, something to get past, some unfinished business, and then life would begin. What I finally realized is that these obstacles are my life, and I have learned to embrace the challenges that I was dealt. Life is not waiting for the storm to pass, but learning to dance in the rain. thank you for listening
1 Dec 2010

Bev Allen, Ct:
Hello, I have had treatment with the Cowden protocol following years of anti-biotic tx with a Naturopath Lyme Literate MD. I now am very well, and want to suggest that you updat UOS with some data providing hope. People have refused to see the film due to the dire prediction and sadness involved. One MD noted in the film has mixed reports unfortunately. A neighbors nephew died due to overuse of meds in a nonLyme tx. Just incase the data can be broadened. Thanks I loved the video myself.
1 Dec 2010

Jt, pa:
love to hear from others .....I have been suffering for 12 yrs
30 Nov 2010

ryan szasz, az:
i live in a state where there is no treatment. im 28 yrs old and have suffered from lymes for 15 yrs, its getting worse every week. its getting harder and harder to hide my symptoms from my wife, i dont want to scare her, im afraid i will die from my lymes
29 Oct 2010

Diane Van Horn, Wisconsin:
My daughter, Shannon was bitten in Hayward, WI in 1995. Her first Lyme test was negative. She became very ill and was sent to a Rheumatologist and diagnosed with Juvenile Rheumatoid Arthritis. He treated her with steroids, sulpha drugs and cortisone. She was not getting better and I begged him for another Lyme test. I was turned down numerous times. I even wanted to pay out of pocket for it. I finally was so frustrated that I went to the University Of WI-Madison and got some Dr.s there to look at her. Her Lyme count was off the charts. It was now 2 1/2 years later and she was given 28 days on Doxy. Since then she has had numerous unexplained medical issues. Every time I tell the Dr.s about her Lyme disease they poo-poo it and suggest anti-depressents. 15 years later she has had chronic fatique, unusual fluidy weight gain, hypo-glycemia, TMJ and numerous joint and muscle pains and severe headaches. This movie put a fire under me again and I found a Lyme Literate Dr. in her area of SC. She was lucky and got a referral from her regular Dr. only to find out the Lyme Lit Dr has retired! Story of our Lyme Life! We have found another and hopefully he can help us. She is not herself and she is not crazy. Thanks for this documentary.
28 Oct 2010

BillK, PA:
When will this movie ever be released on NetFlix? It would get a much larger audience than relying on the Lyme community to provide "screenings". This movie could change the "Lyme World", but I fear it's dying on the vine like all of us Lyme patients. We really need this movie to be better promoted if things are ever going to change. Please don't drop the ball on this movie. You've probably moved onto other things by now, but this movie could help us so much.
26 Oct 2010

Eileen Cook, NY:
I purchased the movie myself after seeing it and speaking at different showings approx 4 times. In MY version of the CD, the end has the characters etc, etc. Then in a shocking 30 second clip...the CD shows and states (you state) Dr. Alan McDonald has "a form of Altzheimers and does NOT remember his research"?? are you kidding??? PLEEAASSSSSEEEE....can I please get an update. I have been telling everyone I know about this and no one knows anything, but YOU. Is this terrible news true? Please advise, Eileen Cook
19 Oct 2010

Lisa Thurston, minnesota:
This is my story, only i feel worse. Thank you for making me feel like I'm not crazy. I have done everything everyone has done in this movie. I have a blog to share if anyone wants to follow my journey. mylifewithlymes.blogspot.com
19 Oct 2010

L.yndsey Lamb, Texas:
I have had Lyme's Disease for nine years, with no success with treatment of antibiotics. A new treatment I am trying is Fluconazole. It is an antifungal medication. This treatment has been successful in Germany by Dr. Fritz Schardt. You can learn more about him by reading the European Journal of Medical Research online. This is another option for treatment if you are allergic to antibiotics.
15 Oct 2010

Emma Kall, CT:
This is my second attack of Lyme Disease this year. I had one last year,which became Bell's Palsy. After last years attack, I never totally re- covered. This year I recognised the symptoms and went for antibiotics. But I am noticing that the illness is not responding as previously to the antibiotics. I suspect that a fungus is transmitted from the tick bite and needs an antifungal therapy also. Please research this posibility. Thank you.
15 Oct 2010

McKinna Rae Benson, Iowa:
I have Lyme disease myself and i am 17 years old. This movie has moved me so much! It is a battle everyday! This is going to be the next big epidemic. No one knows what i'm going through. It's a struggle with my body and my mind. I want to thank my family and my boyfriend because they are trying to understand how i feel. Thanks to everyone that is trying! I love you! <3
8 Oct 2010

Therese, New York:
There has been many times when I have felt I wanted to end all of the suffering I have been through regarding Lyme disease, but this film has given me so much strength to keep going by showing me there is so much more to do and most importantly so many more people to fight for. Thanks to all of you.
30 Sep 2010

Carey Mencarini, California:
After a 14+ years I've finally been diagnosed with Lyme disease, however, I am allergic to all antibiotics that would be used to treat me. I'm curious if anyone has ever heard of any other methods of treatment for Lyme other than antibiotics? I just ordered this film and look forward to watching it, it's been a long 14+ years of thinking I was crazy, I'm grateful to have found this page and video!! Thank You!!
22 Sep 2010

Mary Ann Mack, PA:
Am interested in viewing the screening of the film in Scranton this week but do not know where to go or what time. Was finally diagnosed with Lyme after battling multiple "unknown" illnesses for 14 years. Please give me info I need. Thanks.
12 Sep 2010

Bonnie Byrnes, Wisconsin:
Thank you for your film - I was diagnosed with lymes disease in April, and would not have believed it if someone told me how hard it was to be effectively treated. Your documentary shed much light on why that was, and I thank you. I've forwarded the following letter to members of the IDSA, and thought I would forward it to you as well: I would title this To Whom It May Concern, but I believe that concern has very little to do with it. I am a 35-year old mother of two and a business owner in Northern Wisconsin. I’ve always been very healthy, but this April I suddenly began to experience a loss of vision. My symptoms moved into my feet and legs, and after only a few short weeks I could not walk unassisted. I saw an eye doctor, rheumatologist, neurologist, and infectious disease doctor. Eventually I was tested for lymes, twice with positive results although the insurance companies claimed the results were ‘inconclusive’, thanks to your efforts. I was given a month of doxycycline, but (sound familiar?) it was too little, too late. Smugly, my doctor told me this proved I never had lymes to begin with, and suggested I try ‘gardening’ or something else to ‘soothe my mind’. I was one of the relatively lucky ones with lymes – one with the energy, confidence and personal resources to push and push until finally I was given an extended treatment of intravenous Rocephin. Five days into the treatment the use of my legs began to return, and my vision improved as well. After 21 days of treatment I am thrilled and grateful with the results. While I am not 100% and may never be, at least I am back to the land of the living, and can run my business and mother my children. My heart breaks for the people who never receive proper treatment…I really do wonder how you sleep at night. Lymes is increasing at an alarming rate, which really must make you uncomfortable, knowing the truth about this disease will come out. B. Byrnes, Wisconsin
7 Sep 2010

edivia, españa:
gracias
6 Sep 2010

MJ, Va.:
Watched the DVD with a friend - we are both inour 60's- a few tears, and a lot of gratefuls that we are both being treated for Lyme. After 6 months of heavy antibiotis I now take homeopathics as my body would not tolerate any more antibiotics. Thank you for doing thois documentary!
4 Sep 2010

David, PA:
Great movie, made huge impact in my life. But I don't understand for the life of me why this movie isn't being promoted properly. Still not available on Netflix, nor Blockbuster. You're letting this movie die a slow death, like all of us Lyme patients. Most patients I know can't afford $30 for a movie. But they could afford to rent it from NetFlix, or Blockbuster. If you really want to make a difference promote this movie properly and generate some meanful retail rental channels. Then people will stop making copies and you can stop policing Lyme communities and ragging them. We're not the enemy. Again, great movie. Lousy promotion and distribution.
31 Aug 2010

Brenda Gunsch, TN:
First off I would like to thank everyone involved in Under Our Skin. It has been a wonderful tool for my family to use to receive some understanding.. Thanks!!! I seen UOS is available at Net Flix now and the cover has changed...There are several of us commenting on how this now looks like a horror film and I am not sure if people would be as inclined to watch it. The picture of Mandy on the cover was beautiful and I think you should reconsider going back to the original. Thanks again. Brenda
26 Aug 2010

Josie, Pennsylvania:
"Under Our Skin" was one of the best tools to help me understand the battle that I was about to go through with the disease. And one of the best tools to assist my family and my loved ones to really "get it". Like many other people, I feel like I am on this road looks like it doesn't end - and quite often it looks like it just goes in a complete circle, but the film gives me hope that I am not alone on this road. There are several others right there with me.
24 Aug 2010

Robin, Pennsylvania:
Many thanks to all of those who participated in the making of Under Our Skin!! I purchased the film and have had the privilege to show this remarkable deliverance of truth. Indeed, it is truth that will set us Lyme suffers free ... to some degree. Thank you, I am ripping up and down Route 6, in notheastern PA, showing UOS along with other valuable information in regard to Lyme and co-infections. Our area is shocked to what Lyme and the political ramifications entail. Together we CAN make a difference. God Bless!
9 Aug 2010

Margaret Berger, Connecticut:
Thank you for imforming the world about Lyme Disease. I was diagnosed, finally with Lyme 2008. I had been having horrible headaches for 18 months prior to the diagnosis. Also, my daughter, born in 1997 was finally diagnosed with a Nonverbal Learning Disability not yet catagorized under the Autism Spectrum, but should be. Did I give her Lyme while pregnant with her???? I would love to know if this is possible and if there is anything that can help her. Public schools just want to label and push her through until she is not their problem anymore. Thank for the time!!!
7 Aug 2010

Michael Green, California:
Whetheor or not the proceeds go for a good cause, your video is twice the price it should be. By the time you add on tax and S&H, the $45 or so it prohibitive. I know the basic story, indeed I know scores of similar stories from the same template, am willing to support the cause and spread the word, but not willing to pay double for a DVD. If you want to reach a wider audience, consider getting this out the door with S&H for close to $20.00.
26 Jul 2010

Debra McGregor, Texas:
I live in Houston, Texas and am an RN. It still took me 1 year to get a proper diagnosis and treatment for my teenage son! The doctors at Texas Children's Hospital in the Texas medical center are not interested in entertaining/diagnosing/treating a case of Lyme Disease. We have recently found a "Lyme Literate" doctor in Alexandria, Virginia who has started treatment on my son. What a difference it has made after only 3 weeks! No one would believe that a scenario where a child was well, then bitten by a tick while camping in Arkansas and then had multi-system problems could be due to the "tick bite"!!! My son had a terrible year both physically and psychologically. I am so disappointed in my profession for not being "open" to the obvious due to politically correct idealogy. We need to do something here in Texas!!
22 Jul 2010

Bonni, Maine:
I TESTED POSITIVE A YR AN A HALF AGO...WAS TREATED FOR 6 WEEKS ON ANTIBIOTICS..CONTINUED TO B SICK & NOW MY DR HAS REFERRED ME TO A RHEMOTOLOGIST SAYS I HAVE FIBROMYLAGIA. SAys its not lyme. im on arthritis meds for the swellin & pain... SO FRUSTRATING!
16 Jul 2010

Denise S. Smith, Mass:
Just to give you a heads-up,"UnderOurSkin" can be reserved on Netflix. For those of you who are having trouble with the cost of the video this could be a saving grace. Set up a Netflix Free Trial if you don't already have an account, and you can see it for free. At the end of the 30 days you can cancel your free trial or keep it for a minimal cost each month. Netflix has several ways to view movies. Good Luck
12 Jul 2010

Denise S. Smith, Mass-of-Lyme:
I live in Mass. and spent most of my young life in Conn.at Rocky Neck state Park in Niantic near Lyme ha ha. Back in the late 60s and early 70s when I was spending summers there we thought of nothing but fun in the sun. Now some people still don't want to think of Lyme, but I have to. I have had Lyme for maybe 30 years. Thank you for this great film. I wish I had been able to be a part of something so big as " Under Our Skin". I have ordered it and some bracelets and I continue to spread the word. I wish all who have had a part in this empowering film the best of everything and please from those of us who have lost everything, keep up the great work that needs to be done to stop this tiny yet giant problem for the future of our children and beyond. Thank you so very much.
10 Jul 2010

Susan Fredericks, NJ:
I wanted to let you know that I wrote an article about Lyme Disease that was in the May issue of RDH magazine. www.rdhmag.com As a dental hygienist, even I had much to learn and share.
26 Jun 2010

Lisa Randleman, NY:
Why in the world is this film not more easily accessed. I would think that the filmmakers would want to get the word out a little better, and not have these less-than-frequent screenings that people have to go crazy searching out. Is there some reason it has not been released to Netflix? I have to say, it leaves me with a bad taste in my mouth. [Webhost: We've had over 500 community screenings and theatrical screenings. Feel free to host a screening in your area, buy a DVD, or ask your local theater to run the film. Join our Facebook page or contact us for more info and to stay connected.]
12 Jun 2010

Sue Averett, Washington:
Thank you so much for this film!! It is powerful, timely, and will impact the lyme situation in positive ways,as it is already doing. I have had lyme for several years; diagnosed just over a year ago. Severe joint and muscle pains and many more symptoms: I can really relate to those featured in the film. I hope in the future you will consider doing a companion documentary on alternative treatments available for lyme disease. I realize a big focus of your film is to break through the medical and insurance monetary conspiracy, and I totally agree with that. The film didn't talk about those of us who are paying out of pocket for alternative treatments that are, in many cases, working very well. The protocol I am using is relatively inexpensive, yet powerfully effective. I am currently in the third month of the Salt/Vitamin C protocol, and it is amazing how much better I feel in that short period of time. I have weeks at a time where I feel almost back to vibrant health, and then the occasional period of days where I feel horrible and dealing with a lot of herx reactions. But I am regaining my health and I feel confident that I will be healthier than ever within a couple of years. This also involved a major lifestyle change with my eating and addressing food allergies and sensitivities that compounded the whole situation. For more info and the science behind the Salt/C protocol, visit www.lymephotos.com. I have a blog if you are interested, or if you know of anyone interested in exploring the Salt/Vitamin C protocol. The blog is at: www.savedbysalt.blogspot.com. The title "Saved by Salt?" actually has a question mark after it, as we see how things evolve over time. Once again, thank you for your courage in exposing the medical conspiracy for what it is. Sincerely, Sue Averett
8 Jun 2010

Bob, FL:
Lousy (pun intended) Dr. refferal system. Three per MONTH? Ridiculous. Love, Bob
1 Jun 2010

Lisa Ludt, Ohio:
My husband and I watched the DVD, and it was amazing. I have Lyme and directly related to Mandy and Dana. I get severe neurological issues as well as intense pain. I was bit Nov. 2005 and not diagnosed properly until Sept. 2009! I was told I was crazy many times. I am very fortunate to have found my doctor by doing research on the internet. I really hope this makes a difference!! This really helped my husband to understand my situation better. This is a life journey for me...I pray for all those out there fighting this fight.
24 May 2010

Mark, New York:
Thank you for your film. I purchased a copy of it due to personal interest (I was diagnosed with Lyme late). After recently suffering a relapse (I previously had a standard 30 day treatment after a very late stage diagnosis), I went into a diffcult maze between my primary care doctor and a neurologist. Having seen your film, I had the stamina to very quickly short circuit what I began to detect might be an uphill battle. I went to a LLMD and am feeling much better. Had I not seen the film, I think I would have been on a much more difficult journey. Thank you so much!
21 May 2010

Charles Lang, CA:
I'd love to see this movie. I heard about it because a friend of mine from High School - Khristian Barnhart - has chronic Lyme disease. Like many people, though, realistically I won't get to a screening, and I'm not interested enough to spend the money on the DVD. My feedback is just that I wish it were possible to watch this film online on your web site or through some service like iTunes. I'd be happy to pay $3-5 to watch this. Outdoorsmen have been aware of risks of Lyme disease for decades, and I learned about some of them already when I was very young. I'm sure there are others who have this basic knowledge, and so are especially curious about your project. I hope to see it some time. clang@ucdavis.edu
21 May 2010

Sarah Morris - keeper785@yahoo.com, IL:
I was wondering if this film will ever be shown on tv, PBS, like "Food Inc" was? I realize that funding is critical for what you are doing but it would be a bigger audience to educate for people who don't even know about it. We are working hard to educate and show this movie in IL but tv would make a huge impact just as "Food Inc" will. Appreciate you listening to my thoughts.
9 Jan 2002

David, Texas:
Why isnt this free to download on your website? [Webhost: It will be eventually. We are currently working hard to get the film aired on television. We aren't able to post the entire film online until after this. Thanks for your interest in having it seen!]
28 Apr 2010

Eileen, MD:
Thanks for bringing the impact of Lyme Disease to the big screen. Your "Screenings Calendar" link doesn't work.
21 Apr 2010

MW, oregon:
The film was a good eye opener. Iget the idea of awareness. But what I find troubling is while you collect money to help pay for the film what about money for the lyme sufferers who cannot work and therefore cannnot pay for any treatment at all. Are there any doctors who will treat someone for free? And then what about the drugs? MW
13 Apr 2010

michael harrington, ca:
Hi, I enjoyed your movie. It was quite well done. I did want to mention that your 'seeming conclusion' (my quote) that massive doses of antibiotics was the best alternative for all these chronic, late stage 'sufferers' was a bewildering. There are many natural methods that can works wonders for lyme. One is the removal of all mercury amalgam fillings, root canals, all metal crowns and the restoration of improperly infected teeth. I would bet a large percentage of the chronic lyme population is actually suffering from oral focal infections (systemic infections originating from the oral cavity). About 80 percent (or more) chronic, debilitating dis-eases come from this area. All the research is available for those who investigate out of the box. I agree with your conclusion, if you accept that you must stay in the Western Medical model (box) but if you step out of that box, a new life awaits you. You see, in reality, alot of these massive dose antibiotics users have only a slightly better health profile and function--and for how long? In my case, I said no to the box. Good luck to all. -Michael
12 Apr 2010

Jennifer , CA:
Not one minority with lyme was in the movie, why is that?
11 Apr 2010

Donna Rorstrom, Florida:
Quick overview I have a daughter with lyme and we do not remember the tick bite and knew nothing about lyme disease until the diagnosis 3 years after she became ill. (Same old story) My mom says back many years ago in school they showed films to children about TB. Could you produce a short version (kid friendly) or maybe a cartoon version which would be of interest to children to play in the schools. We need to get the next generation of children aware of the dangers and undestanding of this disease. The medical world will have to start responding when more and more people are aware and impacted.
9 Apr 2010

roya karbakhsh.MD, new York:
thank you very wonderfuly done . very useful , none biased and awakening news for patients and doctors to see. I have been using Lyme test for all my psychiatric patients and actullay earlier than thier pcp ha sfound them and refered them to infectious disease specialist. wish us all the best to coem in early diagnosis and most appropriate treatment and alievating the suffering of many. warest wishes .
4 Apr 2010

Ralph Kermit Winterrowd 2nd, Alaska:
I watched your film and this shocks the conscience that doctors knowingly are withholding solutions, attacking the doctors that do fight and not to mention all of the connections to diseases that are not diagnosed correctly. I am forwarding this to about 3,000 e-mail list members. This needs to be spread far and wide. Thanks for your efforts! Ralph
2 Apr 2010

avc, ny:
I have not yet seen the film. I am a chronic lyme disease sufferer. Luckily my doctor diagnosed me early (we estimate about 3 months after my intial "bite"); however, he continued to put me on cycles of anti-biotics for 2 years because I wasn't getting better (hence the chronicness of the "disease" for me). Eventually, I could feel these drugs destroying my already weak immune system, so for the the last 3 years I have been treating myself (without drugs)by fasting on green juices, eating a raw food diet, and eat fatty fishes high in omega 3s. I am also strong enough now to work out for 30minutes per day (which is a big deal considering that getting out of bed used to be a daily challenge for me). I also just recently joined a bowling team (before I could bearly hold a glass or tell my fingers to type) I am very blessed!
29 Mar 2010

Tina Caskey, AZ:
Great film. Saw it for the 2nd time yesterday. I did send a copy to my doctor. Hopefully my doctor and his two assistants will view it. They are working hard to figure out what people like me are ill with. Some can't get well with Lyme or co-infection treatment. It is possible that HHV-6, enteroviruses or other non-tick borne pathogens are part of the mix, as I mentioned in the Q and A session after the film. Here's more info: www.hhv-6foundation.org and www.enterovirusfoundation.org. Antiviral treatment has helped a friend of mine and myself...and we were both diagnosed with Lyme initially. Good job on the film. Keep up the good work. It is a shame that the medical community has largely ignored this type of illness. Best, Tina
29 Mar 2010

Dr Kenneth Levine, AZ:
We are in need of a screening in Phoenix. Already done in Tucson and now Flagstaff but so badly needed here. I am an LLMD need to know how to host the screening
27 Mar 2010

DONNA SHREVE, PA:
I have seen your film numerous times at public viewings to show support and own 2 copies as well. What I wish most of all to see done would be photos of the inside of the body illustrating the real damage done by Lyme. After all, is under our skin, and that is why we look so good and yet are so sick.
19 Mar 2010

Robin Oxenreider, Pennsylvania:
I hope people focus on supporting this documentary and continue to donate to those organizations, such as Turn the Corner and this documentary. These documentaries are extremely expensive to make and without this selfless director, Andy, well we must congratulation him on taking such a huge step for humanity. I was even at times concerned that Andy's life was in jeopardy. When you pull back the layers of corruption, this infection by far will go down in the history books as the most corrupt kept secret of our time. Our top medical experts who study infectious diseases have failed millions of Americans, on purpose? What else are we supposed to believe. Pray that our stories can be told so noone else has to go through what so many of us have and for those being wrongfully misdiagnosed now. I worry about those people so much too. They are so sick and can't get answers. I love this documentary for the truth is told
14 Mar 2010

Jo Davidson, New York:
Hey Thanks for bringing awareness to how severe this disease can be. I am suffering from neurological lyme. I just read a book by Stephan Buhner called Healing Lyme, and I think it is a must have for every doctor and patient. I am also doing some oxygen therapies. This has been an incredibly rough illness to go through as you know. I wanted to share a relaxing video I made recently featuring my music and photos. It is great for people who are facing challenges, and need some distractions that focus on beauty and hope. Peace, Jo http://www.youtube.com/watch?v=AsTMM0I7Me0&feature=email
12 Mar 2010

Jill Slikker, Arizona:
What happened to Alan Macdonald MD? He contracted Alzheimers? Did he contract from his lab work? Did he get tested for lyme and is there a lyme literated Dr treating him? The film Under Our Skin says that he got alzheimers and cant remember anything about his research? When did this happen and is he improving with help? Can you e-mail me? I couldn't get any of the e-mails to work jillslikker@cox.net
12 Mar 2010

Paul Fassa, Texas:
How come there is no mention of experiments on nearby Plum Island about biochemical experiments involving infected ticks at the time of the initial breakout?
9 Mar 2010

Lyn Black, Proctor Mn:
This is not playing anywere in Minnesota, Why?
9 Mar 2010

Linda, MO:
Lyme disease is caused by mycoplasma, a cell-wall deficinet bacteria that our body does not recognize as an infadeer until it begins attacking the cells. There IS an alternative treatment...many. One is mild silver protein administered thru an IV> Check out www.lindaemmanuel.com
7 Mar 2010

sue, Canada:
I really want to watch this documentary. Why are you not putting it on the internet for free so that so many more people will be informed? A response to this would be nice.
6 Mar 2010

Erik, Ok:
I became ill in 2002,the first 2 doctors I saw horribly misdiagnosed what was wrong with me. Only after collapsing,and all of my joints swelling and distorting,and developing massively swollen lymph glands did my friends take me to where I was actually helped,a hospital I had worked at some years prior. The attending recognized me from my prior employment there,and treated me with massive doses of antibiotics,on the report he listed cause as "lymes-like-illness" I asked why,and was told that lymes doesnt officially exist. I am truly a lucky man,while I have much left-over damage,I can function again.good luck to you all!
6 Mar 2010

MaryLynn H. Shepherd, fl/ct/oh/:
DR. CHARLES RAY JONES DIAGNOISED MY SISTER AND HER CHILDRE,IN TURN,I WENT AND GOT DIAGNOSED IN CLEVELAND...WE HAD ALL BEEN TO MANY DOCTORS WHO TOLD US,YR.AFTER YR. THAT IT WAS''ALL IN OUR HEADS'',GOD BLESS DR. JONES...WE ALL MIGHT NOT BE ALIVE NOW IF IT WAS NOT FOR THIS COURAGEOUS MAN... LEAVE HIM ALONE TO HELP US...NO ONE ELSE WILL,THEY ARE TOO SCARED OF LOSING THER LICENCES FOR TRYING TO HELP...IS IT NOT WHAT DOCTORS TAKE THE OATH TO DO??? MARY LYNN H. SHEPHERD
4 Mar 2010

Jill Slikker, Arizona:
You guys are awesome. Thanks you Thank you I believe I contracted lymes disease from one of my patients. (I am RN) Her husband was in the Gulf War. I contracted a skin disorder from her with non healing lesions. I got sicker and sicker through the years. Diansosed myself and was confirmed by anaturopath with Igenix lab confirmation. My long time Dr had ignored my health problems for years. She told me there was no such thing as lyme disease.
3 Mar 2010

Tricia, BC, Canada:
I've only seen excerpts so far but I want to thank you. After being brushed aside with weak "diagnoses" and being treated as paranoid by at least three doctors and a specialist, I found a wonderful Naturopathic Physician who believed me and diagnosed my 6 year old son with Lyme. I knew Lyme could be bad but didn't take it too seriously until I saw some excerpts. It breaks my heart. The suffering, ignorance and other nonsense is ridiculous. I hope there's a screening near me someday. A heart-felt thank you to everyone involved in this project.
3 Mar 2010

Bob Barlow, NY:
I just saw your documentary and talk in Millerton,NY. Several people asked you where they could find a list of Lyme-aware Doctors, and you directed them to this site. I have not been able to find this list or link, and hope that you can make the information clearer. Thank you for the great movie!
21 Feb 2010

Bill Truitt, Maryland:
After years of lyme problems, I just left the Dr. office with a positive result for lyme, mt. fever and other tick illnes. With outthe love of my wife and 2 great children, I would have ended my life long ago. I have friends suffering from this and one fellow near deaths door. If I can show this video at my business, the Library, or on the local public access channel, I will do so. I built international shooting programs and ran some of the largest shooting matches in history. I have a lot to share with the people of my area. Writing articles about how to protecdt your self hunting and the things I engineer are in major magazines. I need to share this information with people in my area. Before ithits some with nothing to live for. Now what do I need to do this?
18 Feb 2010

Laurie, Md:
This wonderful documentary will be shown this Saturday Feb 20th at 8pm at Beth Tfiloh's Mintzes Theater in Baltimore, Maryland. Please reserve your tickets by going to www.bethtfiloh.com/reserve. Several persons from the movie will be in attendance.
16 Feb 2010

Susan Ossola, Utah:
Hello, Thank you for bringing attention to Lyme Disease. We are only in it a few months. Our son, Mark, was bite and had rash July 2009. He was diagnosed with Lyme on September 21st and started Doxycycline. The movie was informative, however, we thought it lacked information on specific treatments. Were there legal reasons you didn't go into it? Also, books and the movie talk about ticks being poppy size, everytime I see one they seem, like on the leaf in your movie, larger. Was that a magnification? I'm sorry to say that our new copy and first time to watch it today seemed to skip 3 times. I'm not sure how much we missed. What can you do about that? Thank you.
15 Feb 2010

Bjørn Øverbye MD, Norway:
I am a Norwegian MD working in Arendal, the most tick infected area in Norway where up to 30 % of population has positive antibodies to Borrelia.It is also the area in the country with most chronic diseases, especially psychiatric sufferings.A link has never been proven, but seems plausible.For the last two years I have been working with Lyme cases and diagnosis relying upon latest German medicine methods,and Lyme literary seems to pop out of the woodwork!You film is a wonderful eyeopener.Make more like these and come to Norway and see our problems.They seem worse than in USA because so few doctors know!!
15 Feb 2010

nancy Ellen, new york:
Have not yet been able to see the movie. But I am wondering if it contains the information I read in Yankee managzine some years ago that Lynme disease was a biological weapon that got loose from Block Island (scientists did not apparently think of birds and other animals (themselves) who leave the Island. This does not surprise me at all. I'll see if I can find your email so I can get a response from you. Thanks. Nancy Ellen
13 Feb 2010

Jennifer Moore, Pa:
It took a lot for me to even watch the trailer...I lost my 20's to Lyme Disease. I am now 40, married with 3 sons and a dog, living in WestChester, Pa. I want to see the movie but don't know if I can handle bring back the memories...but need to see it to help with the continued "recovery"!! Bit at some point in 1988, untreated, misdiagnosed and suffered until 1996 when Dr. Andrea Gaito in Bedminster N.J. finally help me with I.V. med's and insurance wouldn't pay (I guess I am the typical Lyme patient of the 80's-90's) Anyway, I will see the film and already know I would love to host a viewing at our school??...we need to educate, educate, educate our communities. Thank you for having the compassion to do this film and educate the general population re: this epidemic!
12 Feb 2010

Lynn Disney, VA:
APHA is accepting films for film festival reviews on public health. Don't know if you know about it already, but you might want to submit. http://apha.confex.com/apha/138am/ff.htm Information is at this web site.
12 Feb 2010

Linda Bedell-Kwiatkowski, New York:
Since my husband contracted Lyme in 07 we have been involved with a Lyme support group in our town of Saratoga Springs, NY. We have shown the film , Under our Skin,numerous times to many people and our group is growing. Our goal is to educate and help people who don't know where to go and what to do. The film is very powerful and we will contiue showing it.
11 Feb 2010

James Butler, Canada:
Your trailer is not working ... the music volume is too high. Look forward to seeing it. Great work! I hope to one day do the same for electromagnetic fields (EMF)- a massive unindicted immune system suppressor( ultimately part of the Lyme story ) In the Lyme saga EMF will be seen as co-promoter. EMF will be diagnostic tool. EMF will be treatment modality. To you, good luck. Jim liveplanet@gmail.com
10 Feb 2010

M. Smith, WA:
Understand that the film will be at LYNWOOD THEATRE on Bainbridge Island, WA FEB 29, at 4:30...but noticed that it hasn't made your website yet. Thought you would like to know. Meilynn Smith
8 Feb 2010

Pam Watson, Florida:
Praise God, someone has taken this horrible disease and tried to bring it to the attention of the world. My son ( athlete) and I were struggling summer of 2008 for a diagnosis, he was out of tennis tournaments,( Nationally ranked) I was sick, same story, Dr. after Dr.,finally they said he had Chronic fatigue and I went crazy and took action. We have been on antibiotics for a year and seem to have recovered. I am thanking you for helping others, and hopefully helping us. I am afraid it will return, we are always on watch. I can add so much to our story, but it is all more of the same, the difference is the athlete, from the best in the country to bedridden in weeks.
6 Feb 2010

Gretchen Klein, north carolina:
I am so very proud of you all. You have worked so hard, and given such a large part of your lives to bring changes, and make a positive impact in the lives of Lyme patients. Your work HAS made an impact in the world, and left it in a better place. Even without all the wonderful awards, The most important thing is that you have left a legacy,a mark in the world, that will always be remembered, and appreciated. You have given hope, and recognition. Your film has been a life line to so many, and a bridge that has connected those that suffer alone, to those who dont understand. Thank you for all of your devotion to this cause. Thank you for being heroes to so many.
3 Feb 2010

Oliver Bodine, New York:
How about a screening at the Cinema Arts Theater in Huntington, NY- they would probably be receptive- ask for Vic at the theater.
2 Feb 2010

Lydia Niederwerfer, Colorado:
I think the actors/actresses should wear Lyme green ribbons for Lyme Awareness. The documtary was well done--nominated for an Oscar. A lot of them jumped on the bandwagon for AIDS and wore red ribbons. Is there anyway that can be done, that is, have them wear Lyme Awareness ribbons.
2 Feb 2010

terri keck, alabama:
Thank you for this wonderful film...I was treated for lymes from 1996-2000 and "cured" when co-infections were treated..SURPRISE! A bout of steroids brought the lymes back...and coincidentally, a lyme's dx. for my daughter.Your film has given me the courage and the knowledge i need to fight this fight again for myself, for my daughter & for others. God Bless You!!
2 Feb 2010

Laurie, Maryland:
This wonderful documentary is going to be shown in Balto on Feb 20th at 8pm. WBAL tv's Donna Hamilton (who has Lyme disease) and a surprise speaker (one of the main people profiled in the film) will be in attendance. You must reserve seats at www.bethtfiloh.com/register. Thanks!
1 Feb 2010

Stephanie Deeb, Fl:
I have not seen your film yet, though I hope too. I was diagnosed with Lyme Disease in 1989 in Huntingdon Valley,PA. I had gone undiagnosed for two years. I suffered with crumbling shoulder joints and teeth, terrible joint pain, parasthesias in my legs, bells palsy like neuralgia, inability to concentrate etc..I was treated with IV Rocephin twice and a year of Doxicycline. I have been symptom free since 1991 when I moved to FL. I have always wondered if my exhaustion is from chronic Lyme. I saw 20 doctors and finally my pediatrician researched and treated me himself ( I was 18). Thanks for making to film. Can't wait to see it!
30 Jan 2010

Diane Jerome, Michigan:
Just yesterday,I picked a copy of " People Magazine" and noticed the article mentioning Under Our Skin. Boy, I could have added a little of my journey to the makeing of the film. It took quite a long time to diagnose my illnes. It seems that I was checked for everything else, but Lyme Disease. One doctor even told me that I had all the symptoms of Lyme, but since there were no cases documented he wasn't going to test me for it. That would have saved me many months of pain and horror. I'll look forward to viewing the film.
30 Jan 2010

Melissa Henricks, Georgia:
I have not seen the entire documentary yet, you are not showing in my state (PLEASE DO) but watched all the excerpts. GOD BLESS YOU!!!!!!!!!!!!! I have had Lyme for more than 30 years, was JUST diagnosed in June of 09. Am being treated successfully by a naturopath. That was what caught my attention in People Magazine. I thought those looked like bottles of homeopathics and she looked like she was getting FSM. Which is what I get. Thank you, thank you, thank you, from all of us who have been made to feel we are useless, stupid, worthless, ignorant, lying and lazy. The very first doctor I finally saw for my symptoms in 1987 said (because I had just had a child) that my pain was because, "I was a frustrated confined new mother and my husband just needed to take me out to dinner and a movie and I'd feel all better", he was a neurologist.
29 Jan 2010

Kate Roe, California:
I was finally diagnosed with Lyme disease after extensive testing from a doctor I found after online research. My primary care doctor at the time told me I had ring worm and needed anti-depressants. A dermatologist told me 'we don't have that (Lyme) here in California. Another doctor told me the same thing. I said "haven't you ever heard of airplane travel" I remembered a very small bite/blemish on my skin after a trip to upstate NY--It was not until I sought out a 'Lyme disease doctor" that I was finally correctly tested, came up positive and treated.
29 Jan 2010

Randi, Colorado:
I watched the video and after did some research into articles by Dr. David Jernigan who explained that herxheimer reactions are results of toxicity that builds as spirochetes die. This can result in patient death from taking antibiotics or other bacteria killing treatment. Detox must be done at the same time,...mustard foot baths, neuro-antitox tincture, epsom salt baths, and other things that can prevent near death from and horrible reactions during treatment. His info can also be found googling Hansa Center. Its life saving information for lyme sufferers. Thank you for your video. I've had lyme since infancy though I wasn't aware until now where it reached a terrible crescendo. i'm on Dr Jernigans treatments and feel a bit better. Thank you. Randi
21 Jan 2010

Sheila Stokley, Tx:
Hello from Dallas TX. Yes we have Lyme disease in Texas. No we have not traveled to the New England states. I hear that alot. I have been watching for the past 7 months for a schowing in the Dallas area. Any chance we will see that? There are several wonderful places, ie: The Magnolia in Mockingbird Station. I would love to hear from you. I am willing to work to get this done in Dallas and willingto work to do that. Please contact me at sstokley@verizon.net cell 469-235-2298. Regards, Sheila Stokley
21 Jan 2010

Tessa McCall, Texas:
Thought this link might provide information that is quite interesting especially in light of the fact their is alot of untruths out there according to this publication by the CDC in 1985. The truth must prevail that is what the American Dream is based on. http://www.cdc.gov/mmwr/preview/mmwrhtml/00000569.htm Deception can be detrimental and instrumental in hurting others lives. Thanks Andy from the bottom of my heart. Tessa McCall
17 Jan 2010

Kathryn Dewey, MS:
I have had lyme's four times over an eight year period of time. a very misunderstood disease. thank you for making people aware of the dangers and confusion this disease brings with it. I was very lucky that my Dr. had recently seen a case when I had my initial diagnosis and each time I relapsed the rash came back on the same spot on my face. I have recovered and except for the weight gain from a year of massive antibotics am doing great. it can be beat.
9 Jan 2010

Laraine Caro, NJ:
Thank you for the film; it made me cry. Myself, my ex-husband and my 4 children have Chronic Lyme Disease. How can I help?
6 Jan 2010

Amy Foura, PA:
I was loaned the film by a friend after i had a positive western blot. I had gone to specialist after specialist for years. Finally, i had an explaination. When the first man started talking, I started crying. Oh my god, other people go through this...I am not crazy. What a comfort this movie was. I am on IV therapy now. This movie insired me to insist that I be taken seriously. Before i thought maybe i was crazy. Thank you.
3 Jan 2010

Lymewise@yahoo.com, Oregon:
If I had trusted the "so called" medical professionals I'd be a basket case by now. Ticks, lawyers, and todays doctors (AMA) are all bloodsuckers in my opinion. I self medicated with all forms of antibiotics for 2 years staight before I learned about Royal Rife. After 2 years of 1-2 hour nightly treatments while I slept (RIFE ONLY) I am close to normal health once again. It works without side effects. I only wish I had known about it when I was first infected. Lesson learned. Good flix, long overdue. Cheers
29 Dec 2009

astrid, france:
hello, thank you so much for this film. It is the first time that I saw people with a live story like me, this is so touching. I struggle since 25 years and all I heard was that I have depression. I'm German but I live in France in the countryside, wich means to be completely alone with this illness. I fortunately found a lyme specialist in Germany 2 years ago. Really thank you for your courage and the energy to make this film. love Astrid
24 Dec 2009

ROSA RODRIGUEZ, NEW JERSEY:
I want to place an order of "Under our Skin", ISBN # 0984140708. This item will be paid with a Purchase Order so that I need your address, contact name, price of this item including shipping and handling. You can email me to RRodriguez@ucc.edu. This order will be billed and shipped to Union County College, Library-Acquisitions at 1033 Springfield Ave., Cranford, NJ 07016....Waiting for your reply, I remain. Thank you....Rosa Rodriguez
16 Dec 2009

Jim Clifford, California:
The film was incredible. I was really touched by the stories. Any reason why Rife machines were not included since they are such an important part of people getting well from this devastating disease? That's the only part that I really missed from the film. I have just recently finished reading "Lyme Disease and Rife Machines" by Brian Rosner. Surely you much have come across the electronic treatment in your research.
2 Dec 2009

Melisa Gosnell, Bridgehampton, NY:
I have been so ill this year with Lyme and am still looking at months more of treatment, but I'm one of the lucky one's--with Dr.'s who know and insurance that so far has been accepting the unfounded expense of this insidious disease. This film made me cry and made me so appreciate the bright and caring people out there who shared and fought and dare to bring this scourge to light. I will follow their lead in supporting the cause for awareness with passion for a long time to come, community awareness--family awareness--it helps so much for those of us who suffer in quiet misery. Thank you thank you thank you.
2 Dec 2009

Erica Bolliger, OR:
Please consider putting the film on Pay-per-View, NetFlix, etc. (I assume you can't put it on YouTube for financial reasons.) I know people all over the country who really need to see it and have no way to otherwise. PS Firefox can't open your "email us" link.
29 Nov 2009

Alison Perch, PA:
This movie impacted my family and I a lot. Thank you SO MUCH for putting this movie out there!!I was misdiagnosed for over 15 yrs, sick at age 11 and I'm 32 now. I missed out on school, proms, college..things I shouldn't have. Every choice I have made in my life is based around this disease. I do believe it is the next Sunami. I think all of us who have Lyme and have seen this movie can relate to at least one of these people featured in this movie. I know I did, Mandy impacted me the most. I saw myself in her (so did many of my friends)so sick, but having a wonderful husband to support me and accept me for who I am. The key is for all of us to get the word out and educate the public to the seriousness of this disease. Again thank you:) www.lymeaway.wordpress.com
28 Nov 2009

Frank Eickhoff, Sweden:
Hello, I am an German who lives in sweden about 3 years. My best friend annika was infected whith borrelia. She had get a lot of different diagnoses. Just now she`s in a medication in a german clinic. Here`s my question. Do you allow, that i translate your fantastic movie to swedish and german in subtitles? I don`t wanna make any business whit it, but my friend annika talks not an simple word english. I was very pleased, if you allow this. my e-mail adress is: frank@eickhoff.org greetings from sweden Frank Eickhoff
26 Nov 2009

Nick Postovoit, CT:
Hi, I am recovering from an acute case of undiagnosed Lyme disease. There were very few signs before it hit me like a Mack Truck. It took approximately 20 days of excruciating pain before I was put in the hospital and a test was peformed. Currently I am taking intravenous medincine. Thank God that I met a disease specialist in the hospital that began me on the intravenous treatment - Roseffin? Now I am without pain, and very excited to tell people that we need a better test to determine any stage of Lyme Disease. This was by far the most painful experience of my life. Note, this was worse that the 2 ruptured disc I had repaired, or even the knee replacement I received. Nick Postovoit npostusa@snet.net
23 Nov 2009

Beverly Baker, Georgia:
Thank you for giving us this great film, and helping to get the word out......congratulations on making the short list....may you go all the way to the Oscars. A chronic lymie
21 Nov 2009

Tessa McCall, Texas:
Thank you so much for bringing this very powerful presentation on such a misunderstood and mostly silently known disease.
19 Nov 2009

Tracey Silver, California:
Dear Andy, After seeing the screening last night, I can honestly say I am still shaking from head to toe. I feel like a thousand darts were thrown at me and I am slowly able to remove them one by one! I saw the past 12 years of my life right before my eyes. This film MUST be seen!I sit here today with my picc line in my arm and know how much this treatment is helping me. No Human Being should ever be denied the right for proper medical treatment. I thank you from the bottom of my heart for your work, for the time, expense and commitment you made to help all of us who are suffering!.
12 Nov 2009

Richard Pulcinella, CT:
I've been suffering from chronic neurological lyme dis. for 9 yrs. and has progressively gotten worse and worse as the years went by. now I have to take x-tra narc. pain killers, get a lot of rest and still have to reach down deep to find the will to do the littlest of activities. I can't work or drive. I'm very fortunate my father is well off enough to pay all my bills (household&medical) I"m 36 and have a 14 & 9 yrs. It breaks my heart I can't do the things w/my kids because I'm so ill. I see one of the best Lyme literate Dr.'s(Dr.Katz) and have had all the long term intensive I.V. antibiotics, I.V.I.G. infusions for 3 yrs., H.G.H., and nothing has helped, I had to start preparing the worse, for my own sanity, that there is a good chance I won't get better.
12 Nov 2009

hilary McDonald, colorado:
My father died of Lyme disease and his name was on the list in this documentary. I too suffered from lyme and went through it all and was in Washington fighting the cause. When I saw this documentary today- I lost it especially when I say my dad's name on the list - he went to Joe Barriscano and I know all the details of this disease from the early 90's. I have tried to move on, but this movie has brought it all back and I want to fight for justice. I have contacts with one of the best anti trust attorneys in the world if you want to contact me. All our money for my dad';s death went to the lyme disease foundation. We lived in Chappaqua New York where we contracted this disease. It seems as though very little progress has been made since I tried to leave it behind. This is the best thing I have ever seen on this disease and i want to help promote.
8 Nov 2009

Julia Rice, MD:
I did a small thing. I asked my local library to get a copy of your film for their collection. And I asked all the members of my local support group to back me up (make similar requests at their local libraries or mine). I was able to do this online. Why not ask all the people on your list to do the same?
4 Nov 2009

Ken Talaga, Illinois:
Thank you for releasing this DVD. I went through a 3 week anti-biotic treatment for lyme disease back in 2005. I always wondered,"is 3 weeks enough?" Well, your movie has brought to light all of my gut instincts. 3 weeks may not be enough for a treatment. Again, thank you for all of your work/research that went to making this film.
26 Oct 2009

Leah, NJ:
I haven't had a chance yet to see the actual movie, but I've watched the trailer--literally a million times. It really gets to me, because I feel this guilt inside that I'm being treated before it's too late. I've had lyme disease since I was 3, so I know how bad it can get. I'm now 14.. and this is still something I haven't learned, yet, to accept that of myself. I love that this movie came out, because I want people to know about this.. because it IS the "next tsunami". It's coming faster than ever. This is all so hard..it's between life or death. But I still stand tall, ashamed to be a victim, but I'll scream it if I honestly have to...strength finds a place in me.
25 Oct 2009

Muffy Scott, VA:
My 17 yr old daughter has chronic Lyme. She was bitten as a child and exhibited many typical symptoms of Lyme including living in an endemic area, and a huge rash. The doctors insisted this was not Lyme and did not treat her because her ELISA test came out negative. Under Our Skin is full of so much valuable information, and I am grateful for the time, energy and money that was put into this film. Looking great and feeling like you are literally dying is the norm for many Lyme patients. The personal documented stories and different symptoms of Lyme shown were excellent and made it clear there is nothing typical about Lyme. Each case is so different and there is no exact treatment that works for everyone. One of the people in your film was a former classmate of my daughter when we lived in MA. This person was so sick and could not walk, and we had no clue what was wrong with her. How ignorant we were! That is, until we had no choice but to enter the Lyme community ourselves. Unfortunately that involved having chronic Lyme in the family (my daughter, mentioned above, who was misdiagnosed as a child). We now live in VA and the Lyme fight continues. We know 3 people who live in our area who also have chronic Lyme. Last week UOS came to Richmond. Unfortunately, not big audiences, but I can tell you it was SO encouraging to have that film here in Richmond! People and the medical community are so ignorant of this disease, and UOS is a great way to educate. Please don't stop - we need you!! Again, thank you!
13 Oct 2009

Ann Dannelly, California:
I haven't seen the movie yet, but just watched the trailer and was blown away. Thank you for making this film. It so reflects my experience. I had Lyme for over 25 years before being diagnosed (after spending a ridiculous amount of money attempting to get diagnosed and trying various treatments.) This is such an important message to get out. Thank you, thank you, thank you. I will see the movie as soon as I can.
1 Oct 2009

Jim , VA:
Thank you for your film. I cried a lot. I've been dealing with chronic lyme for over 10 years and could easily relate with the people featured. Unfortunately there are too many people like us. I liked seeing the menace of Lyme disease from Dr. Burrascano's point of view. What a waste indeed! I espcially liked when you interviewed researchers who where just totally contradicted by what is actually happening. (I followed up this movie by reading about Dr. Edward McSweegan. Wow, there is a whole other move! Unbelievable.) Thank you for the well researched look at Lyme disease.
22 Sep 2009

June, NH:
I just watched the film at the Red River Theater in Concord, NH. I was blown away by how well this film expressed what I have been trying to explain to friends and family. I especially appreciated Dana's story as a person who "looks great", but is very ill with a systemic, debilitating illness. I am right there with you, Dana and your story gives me hope! Thanks so much to everyone involved in making this film.
2 Sep 2009

Vicki, RI:
I think it would be a good idea to include a hyper-link to your website on your FB releases so friends of friends etc who are curious when they see my or others wall can actually hit a link to the website being many don't know there is one.- just a suggestion but I have noticed people aren't aware there is a website and my wall moves down even though I try to hide/delete almost everything so it stays near the top. It's hard to keep trying to explain to old friends why I fell off a plsnet earth for 15 years and many don't get the devestations, or can comprehend even though their all sick, ironically suffering from diffeent ailments and find it so hard t beleive it could very well be lyme- jersey hot spot where we all grew up and moved on-away from each other and have been re-aquainting. Just a suggestion -Vicki
2 Sep 2009

Anne, NH:
I saw the movie. I also saw 27 dresses. I think it is the same gal that played the women from FL. Is this a hoX to raise money? I am very concerned about Lyme. But after seeing 27 dresses, I think this is a scam.
1 Sep 2009

terri Kutchko, CA:
Hi~ Thank you for all of your hard work. I have the movie, and it is great, done incredibly well! I have Lyme disease and was misdiagnose for over 20 years, i became debiltated from it in 2005 and I wasn't diagnosed until "I" told my doctor to test me in 2007. I wanted to know if the movie will be any whre in LA any time? I have been treating holistcally for a year after being put on a boat load of other drugs in 07 by docs that claimed they knew what they were doing... I got worse! My prayer is as yours more people will become aware, especially doctors. I hope the movie will be in LA soon. Blessings, Terri Kutchko 818-679-0703
1 Sep 2009

Jon Hansen, N/A:
Thanks for making this movie. In my opinion it's the largest contribution to the awareness fight there has been. But it's sad that it hasn't reachced Norway. Many things are happening in Norway at the time. We are rewriting the guidelines as to how lyme is treated and diagnosed. And we have hoards of ME/CFS patients slowly realizing that there could be an infection behind their syndrome... We would need this movie to come here too. Please make Norwegian subtitles, and get in on Norwegian TV. I am sure that TV2 (www.tv2.no) or NRK (www.nrk.no) would want to buy it. I guess it's best to negotiate with them now, and perhaps it'll air in the spring .
28 Aug 2009

Cynthia, California:
I, as well as several members of my family, are recovering from Lymes/co-infectors. I just viewed the movie...I applaud you all for your diligent effort! I shed quite a few tears and am feeling totally validated and powerful, now. Thank you for giving me a voice...for years nobody would listen. No longer can 'they' 'hush' me and pretend I'm crazy. I am forever grateful to you.
27 Aug 2009

laura Cassin, mass.:
I want to thank you for making this movie. My husband and I just saw it in N. Falmouth, Ma. My husband has lyme and has finally gotten an appointment with Dr. Donta after going thru some of the things people in the movie did. We both cried thru the whole thing for ourselves and the patients and doctors you showed. He doesn't have the neurological problems like some of the people you showed. But it let him see what could happen if he gives up seeking treatment like he has wanted to many times in the past. Thank you for giving us the hope and courage to go on. I hope more people see it and I am going to look into having it shown in more places on cape cod. God Bless you. If you would like to e-mail me it's lwrosie@gmail.com
12 Aug 2009

Rebecca Ward, Illinois:
Thank you, thank you for the film. It validated all I've suffered for 7 years. I understood the disease so much more and the discussion period with Dr. Jamsek-sp? was invaluable (understanding what we are up against and what is really taking place politically). I finally feel support from my family, which has brought much peace.
11 Aug 2009

Krista Rompolski, PA:
Thank you for making this film and doing everything you can to eliminate the tragedy that is lyme disease misinformation and inadequate care in this country. My battle continues.
11 Aug 2009

Kimberly Grzybala, Connecticut:
I was incredibly moved by this film and wrote about it in relation to my own experiences with Lyme in my blog. I invite you to visit it if you'd like. http://kimmg.wordpress.com/2009/07/13/under-my-skin/
10 Aug 2009

Pam Carlson, MA:
excellent...donation on the way what would like is info on what sprays would prevent tick bites that isn't also detrimental to health of myself and the planet...i live in tick/lyme dense area... thanks
8 Aug 2009

Nancy Scates, Washington:
When will you be coming to Seattle? I have many people I want to see it. May I suggest the Harvard Exit OR The Paramount? These places are good for bshowing off the mainstream movies! Nancy Scates/ nancy.scates@gmail.com. Let me know if I can help facilitate this. A FAN, Nancy Scates,RN
7 Aug 2009

Diane Marie, NM:
Thank you, Andy, for coming to Albuquerque for our showing of Under Our Skin. People who hadn't seen it, walked out of the theater appalled, glad to have been educated and motivated about what's happening in our country. In preparing for this we "plastered" flyers with Mandy's beautiful right eye all over Albuquerque. If she ever travels here, some may wonder where they've seen that eye before! Under Our Skin does two things: It's an excellent tool to alert others about what's happening to children and adults with Lyme. It's also fully revelent to every citizen right now: it shows a lot of what's wrong with our broken health care system and twisted medical industry in the US. When we know how it's broke, then we'll know how to fix it. Under Our skin shows us how a lot of it is broken. It could help educate President Obama and Congress--and especially now! Thank you, Andy! I know I keep saying it ... gotta say it again: Thank you for coming to Albuquerque for the showing of Under Our Skin. We're still yapping about it!
2 Aug 2009

Jane Silcocks Chiropractor, NH:
You have done an absolutely EXCELLENT job in your research and information. Thank you from all of us who are trying to get the word out about this epidemic (pandemic?).
31 Jul 2009

bryn keaveny, NH:
I have yet to see the documentary, but am anxious and intrigued. I have been battleing Lyme disease since I was 16 and I am now 31. Over 15 years. I went undiagnossed when I lived in Hunterdon County NJ for about 2 yrs, when finally Dr. Eskow diagnosed me and several of my relapses. Dr. Eskow put me on a central line/ pic line/ IV back in '98 and during that time I moved to Cape Cod MA and was treated by another wonderful doctor, Dr. Peter MacKay of Harwich. I now live in NH and am being treated by Dr. Sam Danta out af boston, affiliated with Boston University. I am finding it harder and harder to get help, so I have accepted this as my lyfestyle...but I have not stopped fight for my health. If anyone know a good family practioner who takes on Lyme patients and WANTS to take on lyme patients, and treat them aggressively...please comment back. I wish health, strenght and courage to all of you out there who are fighting this disease. NOt only is the disease a fight, but the medical field as well. I hope you make it through tomorrow with a bit of hope.
30 Jul 2009

Stephen W. Tibbetts, PE, ME:
This important film is not shown enough!. It has only been in two places in Maine, where we are suffering from massive deer tick outbreaks and Lyme disesase. I only found out about it by reading the NYTimes. I never knew that it existed or was being shown in Maine. A real public service would be to have this shown on public tv and in all local theatres for more than one night. Thank you for producing the film, but it needs a much larger audience to get government, the medical profession, and our useless health insurance industry on the right page.
28 Jul 2009

Irene, California:
The film was so well done and so moving! Thank you to all the people involved in the story and the filming. I have one thing to offer: I attended the Optimum Health Institute in San Diego, and learned that two people who had been diagnosed with M.S. went into complete remission after staying there for six months. It might be worth checking out.
26 Jul 2009

Sudie Heartwell, Virginia:
I loved this movie-am so happy that there is something "out there" for those who know nothing to see, and learn a little about Lyme...i am well now ( i think!) thanks to Dr. Zhang (in New York)who treats with herbs-the antibiotics were making me as sick as Lyme...which is saying alot...i feel so fortunate to be "living my life" and not in a wheelchair, or who know what...Lyme is such a frightening disease-i thought i was dying, and did not know what was the cause. We live in the country, which i love, but i really check myself and all our critters for ticks now..wish there was a Frontline for people and horses! This summer i have given out more information on Lyme than ever before...it is approaching epidemic proportions in my opinion...and many of the people that i speak with will not go against our local doctors who are not addressing this problem at all. They say that it is not in this part of the world...that is BULL! And the patients get sicker and sicker...very sad...But, this is a great movie and a wonderful way to bring awareness to this awful disease-we must all keep up the "good fight"!
26 Jul 2009

Donna Shreve, PA:
As a Lyme patient, I cannot say Thank You enough for creating this film! My only criticism would be that one patient who is too poor to afford any treatment should have been included as one of the key characters. For those without a house to sell and a bank account to empty, Lyme disease is a slow, painful death sentence.
25 Jul 2009

Kelly McGahen, Pennsylvania:
2 year sufferer with neuro lymes. I have passed this video to other suffers and to the medical profession in our area. I so desperately want to help others who are suffering alone and don't have a clue what's wrong. I don't want to have anyone else to suffer. THANKS FOR EDUCATING OTHERS. God bless you for all you have done!
24 Jul 2009