California EB Support Groups

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Marylou Collamer
Friday, February 23rd 2007 - 12:33:38 PM
marylou@pp.affiliated-services.com

http://www.EBtreatment.com We wish to contact your group individually by each member in order to submit information to you about Dr. John Young who is head of Foundational Health Center in Largo, Florida. Dr. Young treats EB and has a very successful pilot study going at the present time. Please contact me at the above email address. I have called and left messages on your voice mail requesting a phone call. We want to find all of the support groups in the U.S. and who is leading those support groups. Phone #727-527-9008 or 800-281-9008 and ask for Marylou. Thank you for your help.

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katora washington
Wednesday, May 31st 2006 - 10:33:04 PM
washingtren5@aol.com

http://washingtren5@aol.com Hi my name is katora and i have EB to im 15 im going to be 16 on june 11th and if i can help with any thing let me no thank you.

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Melanie Evans
Thursday, May 12th 2005 - 07:32:06 PM
lil_blondie_gurl_mel@hotmail.com
I Love this website. I am doin a recerch project on it I would Love it if you guy's could give me some INSITE on what you guy's go through.

Thankyou Melanie.E

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