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| Name: | Talat Lone |
| E-mail address: | abs@jambomail.com |
| Comments: | I was touched to read about you.
You are not alone--I know what it is like having lost my brother recently, he died of lung cancer--the pain , the misery and the reality of having to pay the high bills has left me, his younger sister shell shocked. I know he is out of his pain and in a better place--but losing him was the most tragic event in my life. I don't think you ever recover from something like that, you only learn to live with it--the best way you know. Be brave, do write , if you can, I would love to hear from you. |
| Name: | Yvonne Mester |
| E-mail address: | Jamesdooder@sbcglobal.net |
| Comments: | I can relate to your fight with SSD. I'm going through the same thing. My disease is called Reflex Sympathic Dystrophy. It's painful and eventually I'll need a morphine pump to endure. I'm 49 and have a 9 year old.
My background is in PR and I intend to use it. I'm going to do press releases and I have contacted ever news media possible about the SSD System. I fully intend to make it my mission to expose this system and how it affect lives. If I get do get media attention, i.e. 20/20 or 60 minutes, etc. I intend to dedicate it to you because after reading your notes I now am convinced that I am not alone! Thank You. |
| Name: | Zachary Robert |
| E-mail address: | zachary_robert_@yahoo.com.br |
| Comments: | Great site, I am surfing the web and well this helped me a lot on my query! Haven't had much luck finding such a good info! GREAT JOB! |
| Name: | Cynthia Klingensmith |
| E-mail address: | sissys_sassy69@yahoo.com |
| Comments: | Dear Mom,
Even after everything our family and all of our friends have been through with us in the last 5 years, I was right on ONLY 1 thought that I had from the moment I became part of your lives. Do you know what that thought was and still is?? Bet your wishing that I would tell you. Well I figure I owe you that much after everything you've helped me through. I knew the moment I met you and papa back in Febuary of 2001 that the love, trust and loyality you give to everyone whom you care for is undieing. I have made it through alot with that thought in the last 5 years. Our Family is the way it is because of the values you two have taught us in our everyday lives. In the way YOU have been coping since your illness. You refuse to let it hold you down. Your strength is what holds this family's ties together. That will never change you or the way you live life to its fullest. I thank god everyday for meeting your son, Bud. Because of the son he gave me and the family I got from the marriage too. My family didn't cast me aside after the divorce, you guys pulled me in closer. For the 1st time in my life outside my own mother I had a home plus some of the best days of my life have been with you guys. I'm truely blessed because of that too. I know you, we will make it through everything with your help and wisdom. I'm here telling you this because atleast one of your kids needs to tell you this once in a while. You make our lives complete and WE ALL love you and apprecate you for this reason. Well mom I hope this has Brightened you day and hopefully some one elses day too see the differances you have made in some one elses life. Someday I hope I can do the same for you. With All My Heart. I love you guys. Love Cindy and Cory Lee |
| Name: | Laura |
| E-mail address: | denlore@vermontel.net |
| Homepage URL: | http://www.denlorephoto.com |
| Comments: | I was feeling sorry for myself because that is what pain helps you do very well. I have been reading about you and realized I need to smell the roses more then I have.
Thank you for sharing your daily life with us. Laura |
| Name: | dawn wolf |
| E-mail address: | dsk1003@aol.com |
| Comments: | my husband has been diagnosed with polycythemia. i need some answers. the oncologist don't really give us any. please email me if you can help or know of any one that can help. dsk1003@aol.com |
| Name: | The Dream Master |
| E-mail address: | dreammaestro@mail.com |
| Comments: | It must have been cold there in my shadow,
to never have sunlight on your face. You were content to let me shine, that's your way, you always walked a step behind. So I was the one with all the glory, while you were the one with all the strength. A beautiful face without a name -- for so long, a beautiful smile to hide the pain. Did you ever know that you're my hero, and ev'rything I would like to be? I can fly higher than an eagle, 'cause you are the wind beneath my wings. It might have appeared to go unnoticed, but I've got it all here in my heart. I want you to know I know the truth, of course I know it, I would be nothing with out you. Did you ever know that you're my hero, and ev'rything I would like to be? I can fly higher than an eagle, 'cause you are the wind beneath my wings. Fly, fly, fly away, you let me fly so high. Oh, fly, fly, so high against the sky, so high I almost touch the sky. Thank you, thank you, thank God for you, the wind beneath my wings. |
| Name: | Amber Alford |
| E-mail address: | amber_21_77@yahoo.com |
| Comments: | Hi, I just ran across your page doing a search on "Polycythemia". My name is Amber and im from Kansas, Im 27yrs old. My ex husband (29yrs old) whom im still with since even we divorced just found out that he had "Polycythemia" we found that out when we also found out today that what they thought was a growth by his ear drum was a Tumor..but he was having tests run today to find out for sure if it is a tumor and they also said....his ear drum is gone.. he is freakin out...Im scared of what will happen. My grandma died as a result of Polycythemia, gave her a anurisim in her head and the vien exploded killin her. I've been reading up on this and its a very serious disease that i don't wish anyone to ever have.
Also.....im sorry you are going through it, I can only imagine what your going through. Thanks and god bless! Amber |
| Name: | dave |
| Comments: | I go to this small church where thousands have been healed for
30 years. I wish I know about this place before my cancer operation - I cannot take pain medicine. All I can say is keep the phone number (410-655-3777) and pray about it. A woman in Mexico with Cancer called for prayer was healed. A woman up north with AIDS - healed and is back teaching. Steven of Maryland came down with a rare incurable blood disease "Polycythemia Vera" He suffered pain in his bones, weakness. After prayer at the church all pain left his bones. He went back to the doctor and he said Steven's blood is now normal and he is healed. People healed of Cancer,Rare Disorders at: Baltimore Christian Faith Center 10308 Liberty Road Randallstown, Md 21133 (410) 655-3777 http://www.bcfc.org Call Pastor John for prayer... This is NOT about money or joining a building (church).. |
| Name: | Deborah Blanchard |
| E-mail address: | debiblanchard1@hotmail.com |
| Comments: | I've been trying to get a hold of Alan so that I can start working as a MT. I came across your web site. Lately I've been thinking about starting one of my own. Just to see that I'm not alone in some of the trials I have been through. Sometimes I find myself telling God "don't trust me with so much" but only He knows what's good for us.
You seem to be a very spirit filled woman and the Lord has a MAJOR plan for your life, despite of the illness. Deborah Blanchard |
| Name: | Sandi |
| E-mail address: | sdy65@hotmail.com |
| Comments: | Hang in there. I also have PV. Iwas diagnosed last May/03.
I'm 57. I was surfing for more info on this freaky disorder and I came across your site. Reading your diary has been helpful. Most people haven't got a clue about this disorder. I'm still at the angry stage with this diagnosis so forgive me if I sound upset. I choose not to use the terminal illness terminology. It's too depressing and fatalistic for me. I really feel that medical research will help US in the next 5-10 years. Don't loose heart. |
| Name: | Gilda |
| E-mail address: | gab_e1@hotmail.com |
| Comments: | Enjoyed reading your pages. Sorry you are ill but thrilled you have the chance to "live" fully and love your husband and let him know every day you have. My husband and son were killed suddenly one day while they were gone on a weekend trip. Have always regretted not being able to say goodbye. I am glad you get to and hope it is a long goodbye. wishing you the best.
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| Name: | Linda Loehr |
| E-mail address: | lindaloehr@ama-transam.com |
| Homepage URL: | http://www.ama-transam.com |
| Comments: | I have read your web site.
What is the subject matter of your third book? Love and God bless, Linda PS: I'll complete my e-mail back to you tonight. |
| Name: | Joanne Clark |
| E-mail address: | mawma@midwest.net |
| Comments: | I have read most of your pages and I wish I could do something for you. However, I am a widow with a meager pension & Soc. Sec. Disability, so all I can do is pray for you. I will do that and ask that God will heal you. I know some of what you are going through as I lost my mother, mother-in-law and husband within 7 & 1/2 months of each other. Hang in there and try to remember to live each day as though it were your last. We never know when that will be. God bless you & yours. Joanne |