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| Name: | Marianna Danchisko |
| E-mail address: | mcdanchisko@hotmail.com |
| Name: | Pam Brandstoettner |
| E-mail address: | tjbrand1@msn.com |
| Comments: | Wow! This site just keeps getting better. It has been a few years since I last visited and I really appreciate the updates and the parenting class. |
| Name: | Jen Sanchez |
| E-mail address: | janeensanchez@comcast.net |
| Comments: | I was happy to locate this page today-I have a 7 year old who is xxy, that I thought was just fine, until this year. He is struggling in first grade, & now I think I understand why. Much of the xxy info I saw today was not available to me seven years ago-and I will definately be checking back on this site often for new info & moral support! Thanks! |
| Name: | Rick |
| E-mail address: | PvtPilot1974@cox.net |
| Comments: | Any info. would be great. No children, just myself, also with Klinefelter Syndrome. Was told from my doctor approx 3-4yrs ago. |
| Name: | Debra Magee |
| E-mail address: | nevinm@rogers.com |
| Comments: | Thank you for a current and educated site. When we were diagnosed 47xxy at 16 weeks gestation two questions came to mind "life expectancy?" Normal replied our specialist. "Mental retardation?" Nope she replied. "So what's the issue?" Infertility. We expected Downs, or worse. Now the "worst" was infertility? I've considered this diagnosis a relief considering the alternatives. And thanks to an excellent team of care providers, from my MD, OB/GYN, Geneticist and Antenatal Team, we have nothing to fear. Oh - and thanks to sites like yours that really prove that this early diagnosis is a blessing that we should be thankful for, not a curse against our baby. We are due next Friday - and are honestly looking forward to meeting this little guy and to seeing just what the future holds for us. ds - 1988-Aug-22 dd - 2001-Jun-24 |
| Name: | matt long |
| E-mail address: | truehooppa88 |
| Comments: | I really think this something that is bad. But if we can study and find something to help out then its worth it. I also think that most people dont know about the syndrome and should know about it. To learn it and to protect themselves from not knowing whats going on. And this website is very helpful to anyone that needs advice. So thank you for helping me out. |
| Name: | gavan coleman |
| Homepage URL: | http://www.gavancoleman.com |
| Comments: | absolutely amazingly fabulous info excellent way with words shame that there isn´t enough feedback that is recent i have no idea what i need to say right now but when i was 1st at your site,or can i say "our site"-because i think it gives the clearest picture of xxy that i have seen so far,i just thought wow and i would give you an award if only i could find a suitable prize........hey how about a special extra x you know there are plenty of fun things that go with xxy....you can sing ymca,but like-why xxy? everytime i see a sex center with xxx-i think wouldn´t it be great to have an xxy center in every major city,seeing as we are a large percentage of the population,maybe not as xxyérs but as intersex i am sick of describing myself as "m" its time to say i am xxy and from the world,lose our habit of classifying somebody from their race,sex and age we xxyérs could bridge that needed gap between the sexes www.gavancoleman.com |
| Name: | gavan |
| E-mail address: | gavancolemansounds@hotmail.com |
| Homepage URL: | http://www.gavancoleman.com |
| Comments: | truly....you have spoken better than any doctor i know if there were awards for truly great effort and work....one is on the way!!!! my mother is and was equally wise to the hidden truths and had so many "fucked up" conversations and arguements with our family doctor and most doctors in our country sick of doctors....when they could try and do better my doctor didnt want to do a blood test....a blood test!? when my mother came to this doctor and told HIM that she thought i had turrets or ks well my mother was always into complimentary medicine,which in essence is both using natural and not so natural medicine for the good of ones body so my mother was branded crazy! all doctors believe is simply not true and a mother has a maternal instinct from somewhere unexplained and i truly trust that more than them i have to say as xxy or possibly something else-who knows i have very few problems with women,many with men i dont want to be sexist but i drift naturally more towards women,in the case of doctors-i trust hardly any of them,presently i am injured with bone bruising and nobody in a hospital takes me as being xxy with considerably more probability of having worse conditions due to brittle bones i think any genetically different child ie:not being a"normal"boy or girl or transvestite should be able to get free treatment especially when we teach their crowd what we are they should pay me for information on my life not me paying for their opinions on what my case is i could talk for hours but not write it thanks for your stories thanks for your warmth and sensitivity and for your coverage in nearly amany aspects of xxy and any other condition that could relate to here may the gods be with you but be sure to realise there are many gods and one of them is your son......or child.....because i think we need a new name to incorporate all children under the same category....i hate being just called a son or a brother sister sits right with me but let me proudly say i am me i am i i am intersex and sex of what i am sex of what i like sex in general doesnt need to come in at all keep the faith all will be better faith in diversity of life ciao |
| Name: | David Nash |
| E-mail address: | dave_will_nash@hotmail.com |
| Name: | tina |
| E-mail address: | tinaukhull1@yahoo,com |
| Comments: | Hi just thought id say what a great site this is to know i have a 15 year old boy with 47xxy he was diaganosed at 6 weeks old he has alsorts of problems with this but we get through all this together hes a great lad and does his best would love to hear from anyone Tina |
| Name: | Donna |
| E-mail address: | ODonna253@yahoo.com |
| Comments: | Thanks for sharing. Our son was diagnosed at 15. At 19 he is doing great at a Technical College. He is handsome, kind and everything you would want in a son. Blessings, Donna |
| Name: | keanne |
| E-mail address: | heavygal1234@yahoo.com |
| Comments: | its very nice to see what has happened and all the trouble you went through have a nice future |
| Name: | Amy Kalmus |
| E-mail address: | amykalmus@yahoo.com |
| Comments: | Hi!! I have a son with 48XXYY. I knew from early on he had problems(Delays). After all kinds of other problems we were finally diagnosed at Texas Children's Hospital in Houston, TX. Corey is mild to moderate MR(55-65 IQ), language delayed (expressive score is 55). He received early intervention, PCD through school, and is now mainstreamed in 2 nd grade. Corey also has some bouts with depression. He actually is very social. kids of all ages think he is so cool. He does not have the inhibitions most of us do. He loves everyone. It has been a rocky road. We are having a hard time at school . I am seriously thinking about homeschooling him. He doesn't quite fit in mainstream or lifeskills. My family is very active. I have two other boys soon to be 13 and 11. We are extremely active in sports(baseball and football). Does any one out there homeschool their children with special needs???? I'm happy to find your web page. 3 years ago when we first found out I did not find much support. Today I started surfing and found your site. Thank you. |
| Name: | Brenda |
| Comments: | I am not sure if you remember me but I am the mother of Jonathan who owes you his life. My doctor had suggested an abortion after my amnio showed XXY in my then unborn son. I, too was told not to bother going to the library but like you I did and it only confirmed my worst fears. My boss found your site and sent me here and I read for hours. I checked out all of the links and then I contact you. If you remember me you remember that you took time out of your life to call me and we talked for a couple hours. You gave me information for KS&A and the names of some men who were equally as helpful. I just wanted you and those men to know that had it not been for your time and information I would have blindly taken my doctors advice and would have lost the most precious thing in my life. My son is starting pre-school now and while he has had some mild delays he is doing great. I can not thank you enough for what you have done for my son and I am sure that there are others like me. When my son is old enough to understand these things I will tell him all about you and how you cared enough about him to help me find a light of hope when the doctors made life seem to hopeless. Thank you Terrin, I owe you more than I can say. Brenda Thompson Austin, Texas |
| Name: | Heidi Thomas |
| E-mail address: | gehcthomas@aol.com |
| Comments: | I am a 41 year old who is 20weeks pregnant and just found out yesterday my baby has 47XXY. I immediately have started to do research. My OB in the States couldn't give me alot of information at this point because she simply wanted to let me know what my amnio results were. She is going to send me more articles, too.I have been reading several articles and I am feeling okay about the diagnosis. I feel very lucky to know about this now. I often thought about what I would do with the info. from the amnio should it come back with an abnormality. Needless to say, I am shocked and sometimes I can't believe this is happening. This baby boy will be our 4th and last child. God has thrown something at us for a reason, I know, but I feel in my heart that it is something my husband and I can handle. I don't feel that I need to terminate this little life. The reading/research I have done sounds very promising. I am more worried about the mental/behavioral problems more than the physical that show up later. I know we are very lucky to be living in this day and age with so much to be offered to these children. I have no doubts this baby will have a great life regardless. I am an American, living in Shanghai China as my husband works here for a year. I thank you ahead of time for your support and help. Heidi Thomas |
| Name: | Rod O'Brien |
| E-mail address: | obiee@cybanet.net.au |
| Comments: | Hi to all, i have klynfelters syndrome and was happy to find this site as i can learn from others and also give to you allmy experiances i see so manny ppl on here have small babys that theyb found to be an xxy like my self and its a wonderful thing you got to find this out when they were young as with the injecion testosterone given when they start puberty will give them the edge i never had finding out i got it when i was 21 to late becouse the testosterone injecions ralativly make a man with the xxy chromeazon grow up normaly un like my self that dident get it till i was 21 and as i said to late to helpmy body grow properly as you would know the child with klinfelters body dosent make testosterone it makes estrigen the female hormon i have next to no amune system every thing thats going i get my lungs and respritry trackt is weak and i get a lot of infecions ive akeing joins head akes dissyness anxietys bad nurves the list goes on and on and on but im alive and thats the main thing with out testosrerone injecions the xxy male dosent have a very long life span around 40 years of age im 39 now but i have the injecions so it will give me a bit longer ive found thru out my life that every xxy male differ with there degree of problimes accross the board if anyone wasnt to contact me please do ive studdyed this subject for many years and am conferdent that i can help others 7understand it thanks Rodxxy |
| Name: | Laurie Milton |
| E-mail address: | MLBKRMILTON@email.msn.com |
| Comments: | Hi Terrin, I was checking out some old bookmarked sites and was thrilled to see that your's is still up and running. Hope all is well with you and your family. Kent will be a freshman in high school in the fall. He is doing very well in his life and I know that his early diagnosis has played a critical role. Blessings, Laurie Kent's mom, 48xxyy |
| Name: | debbie troxell |
| E-mail address: | debratroxell@verizon.net |
| Comments: | in may 2003 at the age of 11yrs old my son ,now 12 was found to have klinefelter syndrome. we are going to start testosterone treatment soon. my best edvice is to study up all the info you can to late tell your son of what he might face later in life. debbie |
| Name: | Paul Lucas |
| E-mail address: | paul_lucas2001@hotmail.com |
| Comments: | Hello, may I say what a fantastic website this is. I was diagnosed with KS in August 2001 at the age of 27. I wish that I had known sooner but hey that's life. Would be good to hear from anyone about my age who has just found out. Paul Lucas (47XXY) |
| Name: | Caroline |
| E-mail address: | carolinesnoch@hotmail.com |
| Homepage URL: | http://My Son Jonathan has 47xxy. He will be 5 in June 2003. He has lots of problems, but mainly speach and behavior. |
| Name: | Alicia Stone |
| E-mail address: | alicia@aliciastone.com |
| Homepage URL: | http://www.aliciastone.com |
| Comments: | Just checking in from madison county georgia, thought your page was swell , Alicia xXx |
| Name: | Lavonne |
| E-mail address: | lavonne@cuteandsingle.com |
| Homepage URL: | http://cuteandsingle.com |
| Comments: | Fabulous web site. You do superb work. |
| Name: | lucy |
| E-mail address: | lucy@lucyspage.com |
| Homepage URL: | http://www.lucyspage.com |
| Comments: | Hi, just a quick buzz to say how much i liked your site, keep up the good work, lucy :-) |
| Name: | Amanda Watkins |
| E-mail address: | POOH228103@aol.com |
| Comments: | I am doing a research in class and you thoughts and explainitons help me. You seem to have a wonderful kid. And thank you for your website. Love a Sophmore at Owen High, NC Amanda |
| Name: | Theresa |
| E-mail address: | angle0001star |
| Comments: | you have a wonderful web page!!!!!!! |
| Name: | Kit |
| E-mail address: | the_speed_queen@hotmail |
| Comments: | As the carer of 6 boys with various severe special needs, sites like these provide the infomation people like me need to love and understand our boys wholeheartedly. Thankyou. |
| Name: | Peter Foster |
| E-mail address: | heavyrecoil@earthlink.net |
| Comments: | I was diagnosed with Klinefelter Syndrome in 1968 as part of testing to determine why my wife had not become pregnant. I was given no further information on the condition and did not become curious enough to investigate until just before New Years. I am now 63 and found Klinfelter characteristics and symptoms interesting and informative. They told me a lot about myself. Is there a comprehensive list of these characteristics? I find that on person mentions naivity and others don't. I feel that I have some traits and experiences that may be related and I'd like to check them out. Pete Foster |
| Name: | tammy crawford |
| E-mail address: | tammycrawford@netzero.net |
| Comments: | Thank God for this site. My son is 3 1/2 now, he was diagnosed at 2 weeks old. So far so good. Thank You so much for the important, accurate information on this site. I loved reading the letters from other 47xxy males. What wonderful and sensitive men they are! |
| Name: | katie |
| E-mail address: | trixr4evry1@aol.com |
| Comments: | I am doing a research paper on this sydrome and i wanted to say that i really enjoyed your site and it infomed in on alot and thanks veyr much |
| Name: | AMY MENSING |
| Comments: | HELLO! IT WAS SO WONDERFUL TO COME ACROSS THIS WEBSITE.THIS IS THE FIRST I HAVE FOUND THAT HAVE OTHER MOTHERS THAT WERE DIAGNOSED PRENATALLY. I HAVE 3 WONDERFUL CHILDREN. A GIRL 5 AND A 3 YR OLD SON, AND OF COURSE MY KOLTON, AGE 14 MONTHS.HE IS DEFINITELY JUST AS MY OTHERS WERE. SO FAR THE ONLY THING HE HAS DONE SLOWER IS WALKING.WHICH HE STARTED DOING AT AGE 12 MONTHS. NOW HE IS A WALKING,RUNNING,LAUGHING AND EVEN A TAD BIT BULLYING, BALL PLAYER.BOTH OF MY BOYS HAVE A BETTER THROW AND AIM THAN I DO!I AM CURRENTLY GOING THROUGH A SEPERATION WITH THEIR FATHER. FOR THE PAST 18 MONTHS I HAVE DEALT WITH MY FEELINGS ALONE. I AM JUST NOW RESEARCHING TO LEARN MORE. I AM DETERMINED TO KNOW AND DO ALL THAT IS POSSIBLE ABOUT XXY. IT IS NICE TO HEAR PEOPLE GOING THROUGH THE SIMILAR.IT WAS NICE TO HEAR MARY'S STORY AND THE OTHERS THAT WROTE TO HER.I FEEL GOD HAS A REASON FOR EVERYTHING.HE HAS GIVEN ME THE ABILITY TO LEARN AND LOVE ALL OF MY CHILDREN.I DO NOT LOOK AT KOLTON AND SEE WHAT HE WON'T BE,I LOOK AT HIM AND SEE ALL THAT HE IS CAPABLE OF BEING. THANK YOU ALL AND BEST OF WISHES ALWAYS! |
| Name: | AMY MENSING |
| Comments: | HELLO! IT WAS SO WONDERFUL TO COME ACROSS THIS WEBSITE.THIS IS THE FIRST I HAVE FOUND THAT HAVE OTHER MOTHERS THAT WERE DIAGNOSED PRENATALLY. I HAVE 3 WONDERFUL CHILDREN. A GIRL 5 AND A 3 YR OLD SON, AND OF COURSE MY KOLTON, AGE 14 MONTHS.HE IS DEFINITELY JUST AS MY OTHERS WERE. SO FAR THE ONLY THING HE HAS DONE SLOWER IS WALKING.WHICH HE STARTED DOING AT AGE 12 MONTHS. NOW HE IS A WALKING,RUNNING,LAUGHING AND EVEN A TAD BIT BULLYING, BALL PLAYER.BOTH OF MY BOYS HAVE A BETTER THROW AND AIM THAN I DO!I AM CURRENTLY GOING THROUGH A SEPERATION WITH THEIR FATHER. FOR THE PAST 18 MONTHS I HAVE DEALT WITH MY FEELINGS ALONE. I AM JUST NOW RESEARCHING TO LEARN MORE. I AM DETERMINED TO KNOW AND DO ALL THAT IS POSSIBLE ABOUT XXY. IT IS NICE TO HEAR PEOPLE GOING THROUGH THE SIMILAR.IT WAS NICE TO HEAR MARY'S STORY AND THE OTHERS THAT WROTE TO HER.I FEEL GOD HAS A REASON FOR EVERYTHING.HE HAS GIVEN ME THE ABILITY TO LEARN AND LOVE ALL OF MY CHILDREN.I DO NOT LOOK AT KOLTON AND SEE WHAT HE WON'T BE,I LOOK AT HIM AND SEE ALL THAT HE IS CAPABLE OF BEING. THANK YOU ALL AND BEST OF WISHES ALWAYS! |
| Name: | thyssen |
| E-mail address: | bn322618@belgacom.net |
| Comments: | we are the parents of an 8 year old boy wich has the xxxxy syndrome. he is doing verywell and we're very glad to find some info and contacts on your site. greatings from Belgium. |
| Name: | MARIA CABRAL |
| E-mail address: | LOVEMETENDER71@MSN.COM |
| Comments: | CAROL I APPRECIATTE YOUR WEBSIT AND THE DEDICATION YOU HAVE TAKING CARE OF YOUR LITTLE ANGEL. MY NAME IS MARIA, IM A MEDICAL STUDENT AT COLLEGE AMERICA, IM DOING A RESEARCH PAPER ON KLINEFELTER SYNDROME AND I WOULD APPRECIATE YOUR FEEDBACK. I MAY BE A LITTLE CONFUSED I NEED SOMEONE TO EDUCATE ME ON THE ISSUE, THAT SOMEONE LIKE YOU HAVE TO SAY!!! THANK YOU GOD BLESS YOUR BABIES!! |