Welcome to our Prayer List, hosted by New Dream Network and the Webring!If you have a child or a friend who is going through hard times, waiting for surgery, in surgery or ill,
or if you want us to share your happiness for someone who has just recovered from illness,
if something happened that you are really thankful for;
Please add an entry to the Prayer List
| Name: | Kevin English |
| E-mail address: | madillm@belfastcity.gov.uk |
| Comments: | I would ask for your prayers for my nephew Kevin, who is 17 years old and suffers from Noonans Syndrome. He has just had a brain tumour removed and it is now two weeks later and he is not responding very well. The tumour is benign but he has had to have a shunt inserted permanently. He is not eating and sleeping. Please pray for him. |
| Name: | De'Airrius Grays |
| E-mail address: | deairriusgrays@yahoo.com |
| Comments: | This prayer request is for every child that is sick all over the world. Because i know how it feels to be hospitalized at a young age im just 14 and i had a liver transplant 3 months ago and it is really hard so, im sending a prayer request out for every child around the world that is sick. |
| Name: | Lisa Graves |
| E-mail address: | lisanjoel@cebridge.net |
| Comments: | My son Connor needs prayer.He is 5yrs. old & he has NS.He lives with his dad due to reasons that at this time, are out of my control.He will be starting kindergarden this year
And he showing signs of A.D.D. He is living in an abusive environment. His caregivers are not sensitive to his many needs. He is slowing showing signs of regression, I'm concerned for his development. |
| Name: | baylee lynn bennett |
| E-mail address: | sherrylbennett@msn.com |
| Comments: | please pray for my baby baylee we found out she has noonans 1month ago, tomorrow my husband and i go to see her genetics dr. we have so many questions still trying to learn about this syndrome. she is a beautiful 10 month old girl she has several of noonan traits but in our eyes she couldnt be more perfect. thanks jeff&sherry |
| Name: | Kimberly Young |
| E-mail address: | litesnaction@aol.com |
| Comments: | Please pray for Alexa Young, born on January 24, 2007. She has noonan syndrome and she suffers from pulmonary edema and we are awaiting results about tumors found in her heart. Please pray for her to live a long and happy life. |
| Name: | saj |
| E-mail address: | sajseed@hotmail.co.uk |
| Comments: | my 13yr old and 5yr old son both have noonans my older son is going through alot at the moment it is hard to cope sometimes...... |
| Name: | Eriksson |
| E-mail address: | blajeunesse@madison.k12.ms.us |
| Comments: | Everyday I thank God for the joy of one more day that we have our sweet Grandchild, Eriksson. He was in the hospital almost 60 days recently and with much prayer, has finally gone home to play with his brother,Jack, sisters, Aslan and Sydney and one great big lovable dog named Leon. His mom & dad have been pretty busy trying to shuffle the duties here and there for the 3 children at home while trying to devote as much time to Eriksson. God has truly blessed them with this little family and they have so much faith in Him. A special prayer for Grandpa and Grandma Bonnie for taking care of the 3 older children and for PaPa for trying to entertain them. We are all blessed by this family and Eriksson's sickness just goes to show how how God is always there for us. Please continue to pray for our sweet little guy and his family.
Love, Eriksson's Nana |
| Name: | Jan Surtin |
| E-mail address: | nirtus@centurytel.net |
| Comments: | Please say a prayer for our son Michael Jr. who is presently in the hospital. He is a 25 year old male sho has Noonan Syndrome and at this time is having complications with his health. The doctors are puzzled and do not have any answers for his sickness and do not know where to go look for answers. Our child is a very sweet young man and has been thorugh ALOT in his life, he knows how valuable each day is and he lives life to it's fullest each day. Our hearts go out for our son, we do not know what to do. We are at a loss. So please say a prayer for him and ask God to help our Michael
Thank You and God bless Jan Surtin |
| Name: | Dora |
| E-mail address: | burroughs@copper.net |
| Comments: | PLEASE PRAY FOR DORA WHO SUFFERS FROM CHRONIC NERVE PAIN ON HER FACE AND AROUND HER LEFT EYE. SHE HAS BEEN IN PAIN FOR NEARLY A YEAR. |
| Name: | Heidi |
| E-mail address: | mitchellgr8gifts@msn.com |
| Comments: | We just found out that my 12 year old son might have noonan disease. He went in for x rays this past weekend and will be going in for lab work this week. Please pray for him that his test results will be positive.
Thank you Heidi |
| Name: | Wendy Mcgann |
| E-mail address: | wgmcgann@earthlink.net |
| Comments: | My daughter Gussy is in special ed. preschool. In the last week I have gotten letters saying that there is something wrong with her vision.Today I got a letter saying something is wrong with her hearing.
I really thought it was all over. I have had it so hard with Augusta. She displays extream behavior problems. Please pray that every thing is ok with her hearing and sight Thanks, Wendy |
| Name: | Hedy |
| E-mail address: | Hedy@matahari.co.id |
| Comments: | Please Pray for my 10 months old baby boy " Edbert " , the doctor says that he has a Noonan Syndrome , and My husband and I will fight for him.. And I believe that Lord will listen to every parents who Believe in HIM ,that God has answer our prayer before we ask for it. |
| Name: | Hedy |
| E-mail address: | Hedy@matahari.co.id |
| Comments: | Please Pray for my 10 months old baby boy " Edbert " , the doctor says that he has a Noonan Syndrome , and My husband and I will fight for him.. And I believe that Lord will listen to every parents who Believe in HIM ,that God has answer our prayer before we ask for it. |
| Name: | Dana Timmons |
| E-mail address: | dtimmons1@carolina.rr.com |
| Comments: | Please pray for my son Dezmond Wingate. He has Noonan Syndrome and is having a very difficult time at the moment. Please remember us in your prayers. |
| Name: | Debbie McFarlane |
| E-mail address: | dmcfarlane@verizon.net |
| Comments: | My grandson Mikie, praise the Lord, has had a challenging time lately with knee surgery and issues with his feedng tube which has lead to them taking it out. Please pray that he will start to eat enough food to nutritionally build his little body. If he keeps refusing to eat enough food, then we will be forced to put him back into the hospital and put in another tube. |
| Name: | Debbie McFarlane |
| E-mail address: | dmcfarlane@verizon.net |
| Comments: | My grandson Mikie, praise the Lord, has had q |
| Name: | Jennifer Mondillo |
| E-mail address: | mondilloj@comcast.net |
| Comments: | Please pray for our little girl who is only 8 weeks old. She has some cardiac issues, one of which is pulmonary stenosis. The testing is still not back for Noonan's Syndrome. Please pray for her. |
| Name: | Nicholas Daniel Francis |
| E-mail address: | ursula_francis@urscorp.com |
| Comments: | My name is Ursula and my son of 11 months had Noonans and passed away last year November. I do not have any other children. Please pray that I may trust in the lord with all my heart and may I have leave my life in his hands. |
| Name: | Karen |
| E-mail address: | theeckertfamily@verizon.net |
| Comments: | I have a 10 yr. old daughter who's name is Bryanna she was diagnosed in Dec. 2004 with Noonan Syndrome she has MR, Autistic Traits, ADHD, compulsive disorder ,anxiety, she had surgery in 2001 on her Kidneys and now she is going to be going through another procedure for pulmonic stenosis they said all of her illnesses is caused from the Noonan Sydrome. We are from Huntington WV and my daughter needs all the prayers she can get so please pray for my daughter Bryanna. God Bless you All. |
| Name: | Roberta |
| E-mail address: | leesue@ctitech.com |
| Comments: | My husband had a kidney transplant 8 years ago, now they found a mass in his intestine. they had to remove most of his large intestine. due to the surgery he now is having problems with the transplanted kidney. Please pray for my husband recovery.. thank you |
| Name: | TJ |
| Comments: | Please keep TJ in your prayers!
For "the man who has never lived a bad day", Thanks, Zachary "JC" Daniel Carabajal III |
| Name: | Dezmond Wingate |
| E-mail address: | dtimmons1@carolina.rr.ocm |
| Comments: | Very Depressed 10 year old with Noonan Syndrome. Thinks his life should be over. Having difficult times in school and with new family life. Please pray for myself his mother to make the right decisions for our life and please pray for Dezmond. All I want is for him to be happy and healthly. Thank you |
| Name: | Laura |
| E-mail address: | LaurettaS@juno.com |
| Comments: | I am 22 weeks pregnant and my little Joseph was diagnosed with having a cystic hygroma. Please pray the condition doesn't develop into hydrops.
God Bless You All! Laura |
| Name: | Christian |
| E-mail address: | mrsportillo@aol.com |
| Comments: | My son is being tested for Noonan-Syndrome. He needs everyones prayers.
Thank you, Christian's Mom |
| Name: | Alma |
| E-mail address: | almamrobledo@hotmail.com |
| Comments: | Hello and God bless you!
Is this prayer list still up and running? I am writing from central China, where I am spending a few months as a volunteer nurse in an orphanage. Most of the kids are special needs, each one beautiful and precious to us and their loving Creator. We have one little girl in particular who I would like to request prayer for. Her English name is Shalee. She is almost 24 months old but is not yet 4 kg. All of her anomolies point to Noonan's Syndrome, but we do not have a doctor here, so we are not sure. She has extreme failure to thrive, has been a difficult feeder for the almost one year that she has been at the orphanage, and gets repeated infections, in which she gets easily dehydrated. I would ask that you would pray for her health, that she would gain weight, be able to fight infection, and would progress in her mental and physical development. The Noonan's support website was such a joy to discover, as there were pictures of Noonan's kids grown and happy. Shalee is a delightful little bundle, with a strong personality and lots of spunk. Please pray for her little life. All of the orphanage staff do their best and love her very much. At the moment we have 60 kids, so it is difficult to give her the individual attention that she needs. God bless you! Thank you for your prayers. Love, Alma |
| Name: | Pauline |
| E-mail address: | geoghegan@ntlworld.com |
| Comments: | My 22 month was diagnosed with RSV at the end of October 2003 and 2 days later was transferred to I.T.U as her breathing was drastically getting worse - 2 days after this - we were told our little girl had only 2 hours to live. Our last hope was ECMO - a machine which takes over the work of the heart and lungs of a critically ill child. We were devasted, that such a healthy little girl got so sick so quickly. A priest was called in to pray with my husband and I and my family. One of the difficult things for us is that we live in Scotland, I am from Scotland, my husband is an American. As much as we had plenty of support from my family, my husband really needed his own around him. Unfortunately, no-one could come at such short notice. They hand ventilated my daughter for 3 hours whilst they set up the ECMO and eventually we got the nod that she was on the machine and was doing well - they managed to ventilate her without any hitches. Within such a short space of time our whole world changed. We had emails from Prayer Groups in the US, Australia, Trininad, he UK, - people who knew us, people who didn't - we received angels, healing crystals, cards, letters, prayers from all walks of life. My little girl made it after spending 3 weeks in I.T.U. - when the doctors woke her up and she clasped her hands - just like she was praying - we believe the power of prayer truly does work - my daugher is liviing proof - the doctors and nurses did a fabulous job, but so did the hundreds of people who prayed for her. I pray for all families who have a sick child - please know that we think and pray always for full and quick recoveries. |
| Name: | dawn |
| E-mail address: | dawnmtho |
| Comments: | Hi Mom
I am writing to ask for specific prayer. Could you please pass this prayer request along. (it's 3:00 a.m. .I can't sleep) thanks, love Dawn Our 21 month old son Dylan has always been a special baby, extra sweet, lovable and needy. I always suspected things weren't right with him and often asked my husband if he thought Dylan was o.k. His response was," Of course he's o.k., Look at him" He looked as beautiful and healthy as any parent could appreciate and so I doubted my concerns, in fact I thought maybe my fears were because he was sooo.. perfect. Part of me felt so undeserving of such a wonderful child I thought I was just feeling guilty for not waiting on God's plan but designing my own. When the doctors told me we were having a boy,I could'nt believe it. I was so happy I cried inside and was afraid. We wanted a son very much, (We have three daughters) and both felt this was too good to be true. We believed and planned for a son but didn't really believe it till we saw him with our own eyes. He was so special, I'll never forget on March 22, 2002 at 12.:06 p.m. When I first layed eyes on him they took him away to clean him up. I wanted to hold him right away then thought, that's o.k. I'll have him for the rest of my life besides, my husband was with him totally enjoying the nurses doting over his new little son, his son, a little guy that would someday be a likeness of him. He was so proud you could see it in his happy teary eyes. They brought him to me I thought this would be the most exciting moment but instead I was scared again, afraid and concerned, He didn't look right to me but everyone around me was happy and reassured me that all was well. I noticed these light brown "baby stains" (I didn't know what else to call them, they didn't look like birthmarks) on him and asked my husband what they were. He dismissed the question shrugging his shoulders and resumed studying Dylan's little face. A healthy 6lbs 4 oz a what a set of lungs!!! the first night he screamed for hours on end. Then the second night, third night and so on.... We have had our issues with Dylan, taken him to the Dr's. occasionally, a few emergency room visits and some weird unexplained experiences but over all he has been a happy lovable child. Last year the Dr. noticed Dylan's growth slowed drastically. Then two months later stopped completely. We went for tests, a dietitian, more tests they said, well feed him more and so we did, a lot more and to our confusion 9 months later he had lost weight. How could this be. Well you'd think I would have prayed more but I didn't .I was afraid to talk to God for some reason. I feel like I lost my voice, I have prayed my whole life (even when I was on the outs so to speak) I have come to God embarrassed, ashamed, guilty, concerned, happy, confused, sad, angry, thankful, humble, angry, wanting, needing, but never have I been afraid to pray, afraid of God. I took Dylan to Boston on December 12th to to the Pediatric Gastrointerology unit at New England Medical center. They took tests then the Nurse practitioner called the on call Doctor to see Dylan. They told me the test for cystic fibrosis came out negative and while I was saying thank God, He slowly took my hand and asked, "does any one in your family have Neurofibromatosis?" No, I said, never heard of it then I looked over to see Dr.s measuring my son and recording the size of his what they were calling, "Cafe'e Aulait marks" They were pretty concerned and I was thinking why don't you take care of his stomach instead of ...His baby stains, I was so confused. Were they bad? I knew it. I ask his Dr. twice and she said it was nothing to worry about. The Dr.told me to take Dylan home for the weekend and come back on Monday and bring a lunch. Over the weekend I was quiet, my heart was still. My mind was steady and I avoided thinking about what was ahead. Sunday night there was a really bad snowstorm. I looked out the window at all our Christmas lights. My husband wasn't back yet he had been gone 6 hrs. and so, I knelt down in front of the window next to Dylan'd crib and gazed at the colorful Christmas lights. Amazing how they bring back the same feeling, year after year that peaceful feeling that God is close, ready to celebrate his son's birth and we too prepare to celebrate with him. The wonder of Christmas. Then I started to think about the gifts. I didn't get any yet. Then I thought, who cares, none of that means anything when your child is not well. I looked at Dylan sleeping so peacefully, I looked out again at the lights and I cried, I cried to God. I said God you know How I feel, you loved your son. I told God I was sorry his son had to suffer for my sins and how I wanted everything to be o.k. at the Dr.s visit. How everything had to be o.k.Then I stopped praying, then I started over, I guess I was trying to reason with God. I fell asleep starting new prayers. The next day We went to Boston Floating Hospital for children were they admitted Dylan for extensive and invasive testing. We were there five days. On Dec 20 They confirmed the diagnosis and told us our son has Neurofibromatosis with complications. An incurable disorder where tumors grow on the nerves because Dylan's gene that prevents tumors from growing is deformed. He could get a few to a hundred to thousands. He has 26 measurable ones with a small cyst and a few small lesions of the brain. He has scoliosis and scapular winging. He has minor seizures and pancreatic deficiencies that have stopped him from growing. He has a hole in his heart and that is not related they just say he is a very special child. My special child. We are seeing the best specialist at Boston Children's, Children't floating and Mass General just accepted him to their Neurofibromatosis clinic and research center. Since there is no cure for this I am trying to be faithful but I am afraid. I am afraid to pray. I am not afraid that God won't hear me, I know he will. I am afraid that if I pray for Dylan's healing, that God might say no. So please pray for me specifically, that I may be able to pray again. Not just that I start to pray but that i my continue to pray. That I may pray in faith not just for what my heart desires but for thy will be done and l that I have the strength to say amen. Thanks, Dylan's mom |
| Name: | MICHELLE BORQUEZ |
| E-mail address: | MBORQUEZ74@AOL.COM |
| Comments: | MICHAEL WILL BE HAVING SURGERY SOON PLEASE PRAY FOR HIM HE WILL BE IN SURGERY FOR THREE HOUR'S.anyone who can help me get threw this please email me at my address. |
| Name: | MICHELLE BORQUEZ |
| E-mail address: | MBORQUEZ74@AOL.COM |
| Comments: | MICHAEL WILL BE HAVING SURGERY SOON PLEASE PRAY FOR HIM HE WILL BE IN SURGERY FOR THREE HOUR'S.anyone who can help me get threw this please email me at my address. |
| Name: | michelle borquez |
| E-mail address: | mborquez74@aol.com |
| Comments: | I had a baby boy four months ago and he has noonans syndrome.pray for my little michael as i will for yours |
| Name: | Teresa Kempton |
| E-mail address: | www.mkempt7@aol.com |
| Comments: | I have a five year old girl named Chelsey who has been Diagnosed with Von Willebrands Disease. She also has sever Asthma. She is having a really hard time dealing with all the medicine and Doctors App. she has to go to. Please pray for her and our family. We also have a Eight year old who had her foot amputated from Minigites, and a two year old with a degeneritive hip disorder. Please pray for our family as we are praying for yours. Thank you
Mark and Teresa Kempton |
| Name: | Aaron Paul |
| E-mail address: | anpaul49@iprimus.com.au |
| Comments: | We have just found out that my partner and my 2 sons have NS could we coraspond to other in he same boat and god bless all children with NS |
| Name: | Sonja (Daniel's Mom) |
| E-mail address: | Randallfoot2@aol.com |
| Comments: | Please pray for me as a parent. I am very concerned about my child named Daniel. He is not speaking, he is 19 mo. old and significantly delayed. Genetic testing begins next week. All his numerous symptoms point to noonans. I never even heard of Noonans a couple of weeks ago. My son is small and I catch myself making excuses for him like he was a premie ect... He was a premie but it goes beyond that he is very small and delayed. He is cheeerfull and sweet. He is all joy to me and my husband. Call me someone who's child has gone through the same thing. My internet might be turned off. Here's my phone number (503)364-6904. Thankyou. I need prayer and I need a Christian doctor to pray with me too. Thankyou. |
| Name: | Sonja (Daniel's Mom) |
| E-mail address: | Randallfoot2@aol.com |
| Comments: | My, Daniel, was born early because I had too much amniotic fluid and I was on bed rest 3 mo. He had a hard time. He would forget to breath and was on a heart monitor for 4 months. He has been a happy baby but he's 19 mo.'s and just started walking. He is not talking yet. He is seriously delayed. We are starting genetic testing next week. I am very concerned. He has countless symptoms of noonan's syndrom like pulminary stenosis and bones that are sticking out funny in his chest. He has warts, curly hair, huge blue eyes, and a ridge on his forhead, plus a light red birthmark on his forehead. I have been really stressed. It's a little too intense for me so I need prayer as his mother. |
| Name: | riley kellum |
| E-mail address: | icetroll@caddoelectric.net |
| Comments: | Riley is 22 months old and had a massive stroke. He has recovered remarkedly since this happened to him. We beleive in the power of prayer and would appreciate all your prayers for such a beautiful child. He is our great-grandson. We live in Oklahoma and can't be there with him all the time. We are trusting God to take our place and watch over him.
TJ and Gwenn Kester Anadarko, ok |
| Name: | riley kellum |
| E-mail address: | icetroll@caddoelectric.net |
| Comments: | Riley is 22 months old and had a massive stroke. He has recovered remarkedly since this happened to him. We beleive in the power of prayer and would appreciate all your prayers for such a beautiful child. He is our great-grandson. We live in Oklahoma and can't be there with him all the time. We are trusting God to take our place and watch over him.
TJ and Gwenn Kester Anadarko, ok |
| Name: | Daniel Duprey |
| E-mail address: | danduprey@yahoo.com |
| Comments: | We just found out our 3-week old daughter may have Noonan's Syndrome |
| Name: | Diana |
| E-mail address: | dlchism@telocity.com |
| Comments: | Please pray for Katey and Chad that they may overcome the obstacles set upon them in their life and let justice be known. |
| Name: | Ruby Garcia |
| E-mail address: | obette1209@yahoo.com |
| Comments: | Please pray for my niece Ge-Ann Garcia. she was diagnosed w/ Noonan's. she underwent heart operation last july 2002 and continuing her check up with her doctor. |
| Name: | Laura and Derek Mummy and Daddy |
| E-mail address: | Laurajchamberlain@hotmail.com |
| Comments: | We want to send a prayer to our second born son Lewis Elliott Glover whom died last year on 6th September 2001.
Lewis had Noonans syndrome and was born at 37 weeks by c section at 3.10 am and died at 7 am. He had hydropps, fluid around his lungs and under developed lungs. Lewis was fair in complexion an image of his daddy with strawberry blonde hair. In his short life he has brought our family so much love. There is not one day that does not go by when we dont think of him and wish he was here with us and his brother George. I am now expecting another baby in January 2nd and i am petrefied! but we know that Lewis will be looking over us and the baby and will be with us every step of the way. There will always be that gap in our lives and a part of our hearts have gone with Lewis but we will meet him again some day. So please pray for our family at this hard time in our lives. |
| Name: | Eleanor Wilson |
| E-mail address: | eleanor2carnation@shaw.ca |
| Homepage URL: | http://www.bringchildhome.com |
| Comments: | Please pray for my little niece, CHELSEY CADDER, who has Cerebral Palsy, she is having complications and deperateley needs your prayers. Also pray for her parents, grandparents and all her family who are dedicated to the love and care of this little angel, who has fought so hard since her birth. A prayer for all the medical staff all over the world for their tender love and care of the sick. I will pray and light a candle for you Chelsey, all our love from aunt Eleanor uncle Ron and Ronnie in Canada. |
| Name: | Lisa DiBernardo |
| E-mail address: | lisamariefrance@hotmail.com |
| Comments: | My sisters baby, Rowan, may have Noonan's Syndrome. Please pray for her and her baby. She's not very open to prayer at this time and I just hope for her to have God enter her life. |
| Name: | Susan Ward |
| Comments: | Love your site. Thanks! FFree StuffE |
| Name: | Darci Ewing |
| E-mail address: | ewingk@wwdb.org |
| Comments: | My 6 year old daughter was born with bilateral lymphedema of the lower extremities. Please pray that I will find the correct healthcare giver to help her and that she will be healed 100%. Thank you for your prayers. |
| Name: | Jessica Moore |
| E-mail address: | jam21@pdq.net |
| Comments: | Sister Carla has been diagnosed with a rare form of cancer. The extent of which is under diagnosis as I write this. All hope for good news seems to depend on the outcome of the bone marrow tests. Please pray that the results are favorable, that she not be impacted by this and that she lead a healthy life.
Thank you. |
| Name: | A. Martinez |
| E-mail address: | mzzsmartinez@yahoo.com |
| Comments: | My goddaughter is 10 months old, she has been diagnosed with Neurofibromatosis 1 and Noonans Syndrome. Please pray for her. |
| Name: | luke O'Farrell |
| E-mail address: | jimofarrell@freeuk.com |
| Comments: | hello
please pray for our 6 year old son Luke born 24/01/95. He was diagnosed in 2001 with noonan syndrome after five long hard and worrying years for all our family. Luke has pulnery artery stenosis as well as failure to thrive and is very small for his age. This tues 13 nov 2001 Luke goes into Yorkhill Sick Childrens Hospital in Glasgow Scotland for a cath op to try and open one of the many blocked arteries into his heart. He is our middle child and we love him like the rest of our children with all our hearts. Luke is very special to us and we hope that as many of you will remember Luke in the coming week and aslo all the other noonan children in this world. Anne Jim Sean Luke and Monica Ofarrell SCOTLAND UK |
| Name: | luke ofarrell |
| Name: | jason grant |
| E-mail address: | cathead_537@msn.com |
| Comments: | please say a prayer for my son jason grant as we going through some trying times. jason has been diagnoste with ependymoma jason is a six year old little boy who is loved by many thank you todd grant |
| Name: | jason grant |
| Name: | brandy surratt |
| E-mail address: | maness2000@yahoo.com |
| Comments: | please pray for my nephew bryce, he is 16 months old and has noonan syndrome. He is scheduled to have a heart cath in August or september. He is the light of my life! Also pray for all the children with NS.
Brandy Surratt |
| Name: | brandy surratt |
| E-mail address: | maness2000@yahoo.com |
| Comments: | please pray for my nephew bryce, he is 16 months old and has noonan syndrome. He is scheduled to have a heart cath in August or september. He is the light of my life! Also pray for all the children with NS. |
| Name: | brandy surratt |
| Name: | trinity maiden |
| E-mail address: | jamiebear2001@yahoo.com |
| Comments: | I have a wonderful three month old daughter named Trinity.
she was born with congenital lymphedema, and our family really needs your prayers. Please pray that God will heal her body and find a cure. |
| Name: | sara surratt |
| Comments: | please pray foe ny son Bryce.He is 16 months old and
diagnosed with Noonans'syndrome at 3 days old. He has had 2 heart cath at lebonhuer's children hospital in memphis,tn and a heart surgery at the University of michigan when he was 3 weeks old, he has also had a saigtal craniectomy when he was 3 months old because he did not have a soft spot. We are to have another heart cath this August or September and decide whether other heart surgery is needed.Again please pray for Bryce and all the other children. sara surratt 214 ora nell drive apt #2 Corinth,MS 38834 |
| Name: | Kevin |
| Comments: | My 3 year old daughter Quinn was diagnosed a year ago with
Cystic Fibrosis. She is doing well, but her whole life is going to be a challenge. She is a wonderful little person who brightens any room. Please include her in your prayers and pray for a cure (or better treatments) for this disease. Thank you. Kevin |
| Name: | Kelly Sullins |
| E-mail address: | SULJKL@AOL.COM |
| Comments: | 6-21-01-I just, for the first time this evening, came
accross this web site.I have a ,almost 2 year old daughter named Lindsey Grace. We found out about her Noonan condition at 16 months of age, just by chance. Within the last 6 months our lives have been turned up side down. In December 2000 she had heart surgery, and in January 2001 had splints made for her shoes to help her feet. She has always had eating problems, and is very sensitive to everything. I just needed to let you and God know this evening that I am so thankful! She is the light in my life, she makes each day worthwhile, she reminds me what I am here on this earth to do, she is my everything! I am so glad God is allowing me to care for her until he needs her again. Her birthday is on June 30th. If you could please remember her in your prayers this day, I bet she may just do something wonderful like say her first word or take her first step. We have been waiting and waiting for so long, I know that she will do it! I pray for you and your children tonight. It takes a special parent to raise a child with Noonans. Many Prayers to you. Remember Lindsey! |
| Name: | Roberto Barajas |
| E-mail address: | dbarajas@motherswork.com |
| Comments: | Please keep our son in your prayer he has a seizure disorder
He began having seizures at the age of 5 he is now 22 and has grand mall seizures . He is testing now for brain surgery we are in phase 4 . Medications are not helping and his seizures are more frequent. Thank you and God Bless. Roberto Sr,& Donna |
| Name: | Don Meckfessel |
| E-mail address: | Donaldjames365@cs.com |
| Comments: | Please pray for my best friend James L Thomas who has been
told that his cancer has returned and his doctor did not give him a good report but did say that Miracles do happen. He is taking Chemo and has one more treatment left. He has a body scan on 5-l8-0l and sees doctor on 5-23-0l. Please pray for healing and cure for James and that he recieves good news from his doctor on 5-23-0l. It has been a while since he has received any good news. Thanking you in advance fir your prayers for James. Sincerely, Don |
| Name: | Rusty Canton |
| E-mail address: | jecanton@juno.com |
| Comments: | My 21 month old was recently diagnosed with noonan-
syndrome. He has just been released from the hospital for the 4th time since his birth. Please say a prayer for him and all the other children who have this condition. Thank you and God bless you. |
| Name: | jonathan beutler |
| E-mail address: | yeahbabyeah.juno |
| Comments: | jonathan has been recently diagnosed with Noonan Syndrome.
He will be having angioplasty on Monday, February 5, 2001. Please say a prayer for Jonathan and his parents, Dawn and David. |
| Name: | jonathan beutler |
| E-mail address: | yeahbabyeah |
| Comments: | jonathan has been recently diagnosed with Noonan Syndrome.
He will be having angioplasty on Monday, February 5, 2001. Please say a prayer for Jonathan and his parents, Dawn and David. |
| Name: | jonathan beutler |
| E-mail address: | yeahbabyeah |
| Comments: | jonathan has been recently diagnosed with Noonan Syndrome.
He will be having angioplasty on Monday, February 5, 2001. Please say a prayer for Jonathan and his parents, Dawn and David. |
| Name: | paula croker |
| E-mail address: | neiltownsent@supanet.com |
| Comments: | my two year old son has just been diagnosed with von-
willbranbs,plese could you keep him in your prayers |
| Name: | tom kieda |
| Name: | Audrey Bourque |
| E-mail address: | BLAKE0@peoplepc.com |
| Comments: | My Mom had a triple bypass on November 9,2000 she got out
of icu on November 13,2000 now they are trying to get all thr fluid from around her lungs. she seems to be doing pretty good through all this. |
| Name: | jennifer chuckerel |
| E-mail address: | jchuckerel@aol.com |
| Comments: | Please pray for my 2 1/2 year old son Justin who has NS and
was just dxed with Von willbrands. Now he will have his fourth surgery in his short life. This one is to remove a large hairy nevis. It is a very invasive, bloody procedure. Let the good Lord watch over him. |
| Name: | BIEN |
| E-mail address: | MUYBIEN572@AOL.COM |
| Comments: | I JUST WANT TO SAY A PRAYER FOR MY 1 YR OLD NIECE WHO HAS
RECENTLY BEEN DIAGNOSED WITH NOONAN'S SYNDROME. I PRAY THAT GOD WILL HEAL HER AND GIVE STRENGTH TO HER PARENTS. |
| Name: | howell family |
| Comments: | during our ordeal of having our infant son sick from rsv
and f.t.t. he was taken from us by oklahoma state child protective services.we have him back though because they had no medical proof to continue to keep him.it really has been a strain on us as we are just now learning more of n.s. and realizing what might lay ahead for us.we just contnue to put our faith and trust in god.please help us pray for strength and patience. |
| Name: | Claude Brown |
| E-mail address: | simmon6584@aol.com |
| Homepage URL: | http://www.noonansyrome.com |
| Comments: | prayer request for Claude Brown health |
| Name: | Sandra Gardner |
| E-mail address: | jobette.hope@sympatico.ca |
| Comments: | I would ask those whocome across this page to pray for our 3
year son Jacob who has Ns and is scheduled soon for dental surgery. |
| Name: | Judy Hill |
| E-mail address: | jaylynnhill@worldnet.att.net |
| Comments: | My grandson was born March 14, 3 weeks premature, with what
is believed to be Noonan Syndrome. He was also septic. His outcome is still not known, as there appear to be liver, cardiac, and other difficulties, as well as failure to thrive. |
| Name: | Cindy |
| E-mail address: | abhan@aol.com |
| Comments: | Please say a prayer for my unborn child. I am a 32 year
old who recently found out that all these childhood symptoms I had is call Noonan Syndrome. My husband and I are expecting our first baby in Sept and just found out that I could pass this syndrome to my baby. |
| Name: | Cindy |
| E-mail address: | abhan@aol.com |
| Comments: | Please say a prayer for my unborn child. I am a 32 year
old who recently found out that all these childhood symptoms I had is call Noonan Syndrome. My husband and I are expecting our first baby in Sept and just found out that I could pass this syndrome to my baby. |
| Name: | Katie Patterson |
| E-mail address: | katiep@excel.com |
| Comments: | The month of February has not been a good month for our
family. My uncle died on February 28, 2000 in his sleep wiith noo warning, as you can imagine this was a very difficult time. To make matters worse only one week later my Grandmother whoo has been my whole like was diagnoised with terminal liver cancer. The doctor says things dont look very promising. Need less to say my faith in God has kind of been shot down, how could he do this to me right now we havent even got things setteled from the last death. Thats why I am asking for your prayers. Not only to help my Grandmother fight this horriable disease, but to help me restore my faith in God, and to help me be strong for the rest of my family. Thank you for your prayers. Katie |