| Name: | Julia H. |
| E-mail address: | rjlholt@sbcglobal.net |
| Homepage URL: | http:// |
| Comments: | Hello Luke,
I just googled lyomiosarcoma and found your page. I was diagnosed with this form of cancer today. The process started about 2 months ago, so this is all new to me. I looked for your bio on this page, but could only find comments. I will keep you in my prayers. Keep on fighting! Julia H. |
| Name: | Luiggi Mori-Torres |
| Homepage URL: | http:// |
| Comments: | hay luke :) wutsup little guy
the Lord Jesus Christ will always be there for you dont ever forget that even if it feels like your alone in the darkest corner Jesus will never abandon you because he loves you :) |
| Name: | cathy murphy |
| E-mail address: | cmurphy67@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Hi From Newfoundland Canada
Glad to see another survivor of wilms Tumour. My son was diagnosed in 1993 at 9 months old. He'll be 14 in July and doing wonderful. |
| Name: | Slim |
| Homepage URL: | http:// |
| Comments: | Come on in! |
| Name: | Slim |
| Homepage URL: | http:// |
| Comments: | We are still checking out this incredible page! |
| Name: | Slim |
| Homepage URL: | http:// |
| Comments: | Just checking in again. Luke you R cool |
| Name: | Slim |
| Homepage URL: | We Still Love You Luke! |
| Comments: | Does anyone still check this site? It is special. |
| Name: | Lance |
| E-mail address: | cheegawee@mobiletel.com |
| Homepage URL: | http:// |
| Comments: | Hi,
When I was 20 yrs old I was diagnost with a gleeoblastoma (a rare brian tumor)This tumor was on my brian stem. I was given 3 mounths to live, that was 15 yrs ago. I realize how lucky I am. I thank God and my fmly for being there for me. I think health a nutrient has also helped me in my battle. I was a bodybuilder before I became Ill, and now I am really into healthy eating and exersice, but I'm not a health nut lol. I'm just glad to be alive, because I know I shouldn't be, Thank God! |
| Name: | donotelo |
| E-mail address: | no@no.com |
| Homepage URL: | http://books.dreambook.com/xriumer/xriumer.html |
| Comments: | your site looks greate!
check my dream book too! |
| Name: | Ken |
| E-mail address: | Kenelise@aol.com |
| Homepage URL: | http:// |
| Comments: | Just wanted to see if this site accepts posts still. I had posted several times previously about my daughter Lauren, a Stage IV patient. She is now 8 and doing well almost 6 years later. We thank the Lord Jesus Christ for his mercy and grace. |
| Name: | Adrian Williamson |
| E-mail address: | adrian@williamson.co.za |
| Homepage URL: | http://williamson.co.za |
| Comments: | Hi Luke,
Glad you are doing fine now. I just heard yesterday that my 2 year old nephew has cancer, propbably WT, stage iv. We all feel totally shattered but are encouraged by your own story of courage and perseverance. We shall pray for all children struck down with this horrible disease. Love Adrian |
| Name: | daniel21494 |
| Homepage URL: | http:// |
| Comments: | Heloo lucas no escribo ingles pero lo entiendo tengo dos hijos uno que se llama lucas como tu tiene 7 anos y mi daniel de 8 que al igual que tu se le descubrio el wilms tumor en sep. 2001 hasta el mes de abril fue su ultima quimoteraoia estamos con mucha fe en dios siento mucho por lo que tu madre paso por que lo mismo lo pase igual deseo mucho que eses bien quiero saber mas de ti la mama de daniel ojala y estes bien jackeline |
| Name: | David Pride |
| E-mail address: | dpride@ebay.com |
| Homepage URL: | http:// |
| Comments: | I am glad that Luke is doing well. My 17 month old son was diagnosed with bilateral Wilms in early December. He has had 1 kidney removed. He recently had a third operation in which his last kidney was removed from his body, surgically resected and radiated while outside his body, and then tranplanted back in. He seems to be doing fine, and is going in for his last chemo treatment today, according to the protocol. He is being treated by great doctors and surgeons at Lucille Packard in Stanford. Please pray for him, as we pray for Luke and other Wilms patients. |
| Name: | tasha |
| E-mail address: | tasha_dolphins@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Hey i am a 15 year old girl and my cousin has a brain tumor i am so very glad that your boy is better! i am still praying for you and your family and i am praying for he preety boy! |
| Name: | Amanda |
| E-mail address: | MAGIEREK3@msn.com |
| Comments: | HELLO. IM AMANDA. IM GLAD THAT UR DOING FINE AND DANDY. JUST KEEP ON GOING AND STAY STRONG. I KNOW ITS HARD BUT I KNOW YOU CAN DO IT WITH SUPPORT AND LOVE. KEEP FIGHTING. LOVE YOU. BYE BYE. |
| Name: | Glenda |
| E-mail address: | dvickery@bulloch.com |
| Homepage URL: | http:// |
| Comments: | God bless you Luke & your family!!! Thank you for sharing
your story with all of us who need to hear one with a good ending!!!! |
| Name: | Emily |
| E-mail address: | alstargirl15@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Hi Luke, My name is Emily I'm now 12 but when I was 5 I had
Wilm's Tumor it was very scary for me! Well i'm sorry but i have to go!!!! Bye! |
| Name: | Ken Wiegman |
| E-mail address: | sirie_dog@hotmail.com |
| Homepage URL: | http://www.alphaomeganews.org |
| Comments: | Hi everyone!
My name is Ken and I put together this little web site for Lucas. I just wanted to let people know that the family does read the entries here, unfortuanately there not up with the eletronic world so they can't respond via e-mail. It's been three years since I've updated anything here and I want you to know more is coming SOON! Luke is doing great and looking good! Thanks to everyone who has taken the time to read about him. God Bless! |
| Name: | Jeff |
| E-mail address: | jeff@nichesoft.com |
| Homepage URL: | http://www.nichesoft.com/jeff |
| Comments: | I'm a fellow Wilm's tumor survivor! Mine was about the same age as you but back in 1976. I was treated in Japan, then Hawaii (Tripler Army Base), and finally Riley Children's Hospital in Indianapolis, Indiana.
So glad you survived too!! Way to go! All the best, Jeff |
| Name: | Annie Wilson |
| E-mail address: | anneric@telepak.net |
| Homepage URL: | http:// |
| Comments: | Hey Lucas My name is Annie Wilson. I am 20 years old. When I was a year old I had Wilms Tumor. They removed my right kidney also. I went to St. Jude in Tenn. for my treatment. I have been in remission for 18 years now and i am doing great and i am glad u r also. |
| Name: | L. Brewer |
| E-mail address: | lbrewer@cw-csm.com |
| Homepage URL: | http:// |
| Comments: | I was reading updates on Wilm's Tumor and I came across
Luke's Web Site. My son was also diagnosed with Wilm's in 1987. He is now 15-1/2 a sophmore in high school and starting drivers training. He is doing very well and continues to visit University of Michigan Mott's Childrens Hospital for yearly checkups, for which he also had many, many visits early on. My family will say a prayer for Luke and his family. God Bless you!!! |
| Name: | Gabriell |
| E-mail address: | onwheee@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Luke,
We loved your home page. We especially liked the great pictures. Do you feel famous? I am glad you shared so much information, it really helps other kids who are going through a tough time too. My daughter Stevie has a different kind of tumor. Hers is in her brainstem. She just had her first operation and that was kind of scary. She really didn't like the hospital and really hated the food! She couldn't wait to get all the tubes and catheters out. Stevie is home now and doing really great. She is suppose to start radiation next week and she is a little bit afraid. We came upon your website by accident, and it turned out to be the greatest thing! Your story was very inspirational. We hope you will continue to get better and better and always be well. You and your family are in our prayers. Love, Stevie and Gina |
| Name: | Emily Dellwo |
| E-mail address: | emmied_86@hotmail.com |
| Homepage URL: | http:// |
| Comments: | Hey Luke! How's it going? I am a 13 year old girl that has
a 2 year old cousin that has Wilms Tumor too. She is also cancer free. Hopefully you dont get this again! You are a strong boy and i hope to hear from you sometime on how u are doing. Your Friend, Emily :-) |
| Name: | Courtney Whitmore |
| E-mail address: | whitmore_courtney_26@hotmail.com |
| Homepage URL: | http:// |
| Comments: | Hello! Your kid is such a cutie. When i saw his picture i
just wanted to give him a hug. I have a cousin that has cancer too. She is doing just fine. She has one of her kidneys removed. She was 3 years old when she got this. Love, Courtney Maire Whitmore :) :) |
| Name: | lacey |
| E-mail address: | babygiggles3603@aol.com |
| Homepage URL: | http:// |
| Comments: | Hey Luke-
Whats up? How are you doin? Im glad ur doin good according to ur page.When I was 10 i had cancer and have been in remission since 1999. I just wanted to say you are a very strong boy to go through what u went through. |
| Name: | Lauren Beam |
| E-mail address: | laurenbeam@hotmail.com |
| Homepage URL: | http:// |
| Comments: | I would like to do a school speech on your son and I wanted
to ask your permission |
| Name: | Lauren Beam |
| E-mail address: | laurenbeam@hotmail.com |
| Homepage URL: | http:// |
| Comments: | I would like to do a school speech on your son |
| Name: | Haylee Foster |
| E-mail address: | fosterspub@earthlink.net |
| Homepage URL: | http:// |
| Comments: | Dera Luke,
You are such a lucky little boy and I'm so thankful you have survived such an evil disease. My best friend's baby has just been diagnosed with Rhabdoid cancer which is related to Wilms' and we don't know much about it. THey live in Wisconsin, too and are at Children's Hospital in Milw. If you have any suggestions (or your parents) please let us know. Thank you and bless you little one. Haylee Foster |
| Name: | Elizabeth Barcenas |
| E-mail address: | Soccerliz86@aol.com |
| Homepage URL: | http:// |
| Comments: | Hey!!! Just going to say your a lucky boy! |
| Name: | Bobbie Leigh Simonds |
| E-mail address: | Twinkee23@peoplepc.com |
| Homepage URL: | http:// |
| Comments: | Hi Luke,
I just wanted to say how proud I am of you and I wish you the best! My niece has Wilms Tumor, so I understand how much you hate those treatments and needles! But hey, you are a strong kid, and it looks like you are home free! Good job and I will pray for you!!!!! :-) |
| Name: | Missy DiBetta |
| E-mail address: | missethme@cs.com |
| Homepage URL: | http:// |
| Comments: | My heart goes out to such a brave little boy for
getting through such a terrible time. I was overjoyed to hear that you are better and have been for awhile. I have a daughter, Olivia, who was diagnosed with a Stage III Wilms tumor in July of 2000. We went through some of the many struggles that you did. Olivia, who is 5, endured surgery, radiation and chemotherapy. She, like you, was very brave through her treatments and the side effects of the chemotherapy. I am happy to say that she finished her treatments in January and so far is cancer free. We praise God each day for the healing of Olivia and the many cancer survivers like you. You are a very special miracle!! We hope that you are feeling great and your family is well. God bless. |
| Name: | stacey jones |
| E-mail address: | sljones433@yahoo.com |
| Homepage URL: | http:// |
| Comments: | I am very sorry to hear about this tragic story, I like you
have had wilms tumor. I was 2 1/2 years old and had my left kidney removed. I am now 24 years old and have had no other problems. My mother has explained how very hard it was on me and my family physically and emotionally, and I just want you to know that god is watching over you and he will take care of you. stacey |
| Name: | tony mclean |
| E-mail address: | tam@citlink.com |
| Homepage URL: | http:// |
| Comments: | ijust wanted to let you know that your in my prayers...
when i was 5 years old i had wilms tumor also!!!! my kidney exploded from the tumor being so large.. the doctors gave me about 5 days to live, but after 2yeaars of kimo and radiation here i am today alive and well almost 28 years!!! so just remember to hang in there... Tony McLean |
| Name: | Leslie |
| E-mail address: | leslieandian@aol.com |
| Homepage URL: | http:// |
| Comments: | Way to go LUKE!! I am happy to hear you are doing so
well. My son Chris, was just diagnosed with a form of cancer in the Non Hodgkins Family. T Cell Lymphoblastic Lymphoma. We are new at this business of Chemo and and that yucky stuff. Chris is 15 yrs old. Maybe you could send him some tips..........:) Talk to you again Leslie (mom) and Chris |
| Name: | Jennifer |
| E-mail address: | Bossyone2003@aol.com |
| Homepage URL: | http:// |
| Comments: | That was very touching. Glad luke is doing better. I hope
he continues to do good. GOD is on his side. God bless, Jennifer |
| Name: | Shelly Fankhauser |
| E-mail address: | TAZ8650@YAHOO.COM |
| Homepage URL: | http:// |
| Comments: | DEAR LUKE,
Hi, my name is Shelly and I am 31 years of age. I just wanted to write to tell you that you can survive cancer. I was diagnosed with a Wilm's tumor when I was one month old and had to have my left kidney removed shortly after. I also went thru chemo and radiation thru the age of 2. Keep your spirits up and your dreams alive. I wish you a lifetime of happiness and good health. Your Friend, Shelly |
| Name: | Kim |
| E-mail address: | Swizlstx@aol.com |
| Homepage URL: | http:// |
| Comments: | Reading Luke's story gives our family hope. Our six month
old son, Tate, was diagnosed with a stage IV Wilms' tumor in October of 2000. He had his left kidney and adrenal gland removed, underwent radiation, and is currently finishing up his last 14 weeks of chemo at Children's Hospital in Milwaukee, WI. I'm hoping to connect with other families who can share their experiences with Wilms' cancer, so feel free to Email me at Swizlstx@aol.com. All our best to Luke! |
| Name: | Brian Smithem |
| E-mail address: | bsmithem@hotmail.com |
| Homepage URL: | http://smithem.homestead.com/OurAngel.html |
| Comments: | Just hoping that everyting is going great with you. Keep
your head up and enjoy being a kid. My prayers are with you. |
| Name: | Valerie Price |
| E-mail address: | rhprice2@aol.com |
| Homepage URL: | http:// |
| Comments: | Luke, I am hoping this note finds you strong and happy.
We have been fighting Wilms with my two year old soon since October. He is doing well although last week needed a transfusion and this week couldn't have chemo because of low white blood count. He seems well so every week there is a new surprise. He gets frustrated but has keot his spirits up and seems to be adjusting well. He had his left kidney removed first of October. Unfortunately he has lung involvement. We will say a prayer for your good health tonight. If your mom has any words of wisdom for a scared mom let me know. Valerie |
| Name: | Melissa Ives |
| E-mail address: | missyCKFO@compusereve.com |
| Homepage URL: | http:// |
| Comments: | Dear. Luke
I am 16 I was diagnosed with cancer about 2 years ago ,and they said i only had 10 years to live. I was scared, but i had faith, i didn't see any doctors or anything, i just prayed and six months later I went to the doctors and they said all the cancer had disapeared. I was so thankfull and glad i had the faith i did, i was blessed. I know with your faith god will bless you, and your family. and from what i see he has allready blessed you ; and your family with your presence, i will pray for you. You are truely a strong wonderfull person that i will remeber and someone i will look up to for the rest of my life. THANKYOU Love your friend, Melissa Conley |
| Name: | Carlos Rincón |
| E-mail address: | charly@icanet.com.mx |
| Homepage URL: | http:// |
| Comments: | Hi Lucas !!!
I'm writing to you from Tijuana, Mexico, i'm a medical student. Doing some research about wilm's tumor i found your page, i'm glad you're doing fine and i hope you do for a long time, i want to congratulate you for being so strong, and i just want to tell you to keep your faith, and keep fighting, because i know you'll have a very happy and long life !!!! Carlos |
| Name: | Tammy Cyr-Talbott |
| E-mail address: | tcyrt@hotmail.com |
| Homepage URL: | http:// |
| Comments: | Dear Luke,
God bless you! You're an inspiration and sounds like a real fighter! In 1971 at the age of 9, I was diagnosed with Wilms tumor, however, I didn't have bilateral Wilms tumor. I went through surgery (my right kidney was removed), radiation and chemotherapy. It's been 29 years and I am now a 38 year-old mother of two healthy beautiful little girls and am very healthy myself. I wish you and your parents the best and hope that my story helps you and others in your fight against this disease. Thank you for sharing your story. Tammy Cyr-Talbott |
| Name: | Audra Haynes |
| E-mail address: | audrahaynes@hotmail.com |
| Homepage URL: | http:// |
| Comments: | My name is Audra Haynes. I am very sorry to hear about
son. So how did you and your family go about all of this. Dealing with such a troublesome time? How is your son today, I hope is is well, and will be able to tell of his adventure through a tough time. My little brother also has Wilms tumor. He has been fighting the cancer for about a year now. They found his cancer on his birthday last year. When they found the tumor he was already at stage three. Since then he has also gone through sureries, radiation, chemotherapy, transfusions, so much on a young one, anyone. A couple of days ago the the doctors gave him five weeks to three months too live. Tommarow we have a trip to Disney Land for his make a wish from "WISH UPON A STAR" I love my brother so much, I could never believe the worst would ever come. I am sorry, I get cought up in the moment. Well, I wish the best for you and your family. I give you all my hopes and prayers. I hope you get better. With Love ALways Audra |
| Name: | ROSIE & MIRIAH MENDOZA & FAMILY |
| E-mail address: | CANCERYGEMINI@YAHOO.COM |
| Homepage URL: | http:// |
| Comments: | DEAR LUKE & FAMILY
MY FAMILY AND I WOULD LIKE TO SEND YOU MANY HUGS AND KISSES AND THEIR WILL BE MANY PRAYERS FROM US, MY FIRST BORN, MIRIAH MENDOZA WAS DIAGNOSED WITH WILMS TUMOR OCT 4,1995, WITH MANY UPS AND DOWNS SHE OVERCAME THE DISEASE AND IS IN GREAT CONDITION TO THIS DATE. HAVE CONFIDENCE AND FAITH AND THE LORD WILL WALK YOU THROUGH THIS TOUGH BATTLE, AS MANY OF US HAVE..AND EVEN THOUGHT OUR BATTLE IS OVER I LIEK TO SUPPORT EVERYONE THAT IS GOING THRU IT AND OR JUST GOT THROUGHT, GOOD LUCK LUKE AND YOU WILL BE IN OUR DAILY PRAYERS LOVE: ROSIE & MIRIAH MENDOZA & FAMILY |
| Name: | Maureen McWilliams and Family |
| E-mail address: | mo1113@yahoo.com |
| Homepage URL: | http://www.expage.com/mkm04 |
| Comments: | Dear Luke Parents,
My name is Maureen and I am 14 years old. My sister had a little girl just over a year ago and we found out this weekend that she has Wilms Tumor. Her name is Hollie and she was born on Sept.14,1999. She lives in Kansas with her mom, of course. But the main reason I am writing to you is that I found your site today and right now I am really scared that my niece might die. I am also trying to figure out about the tumor as much as I can. I was hoping that maybe you could help me. I am trying to have a positive attitude but I am so scared that something is going to go worng. I am hoping that everything will be ok but I am so scared. If you would like to send me information then you can e-mail me at the -mail address listed above. My family and I would really appreciate it. We would also like to learn more about the disease and it's causes and effects. Thanks, Maureen Mcwilliams and Family |
| Name: | Michelle |
| E-mail address: | dmlansing@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Hi Luke! Thank you for sharing your encouraging story. I
couldn't have read it at a better time. Our 20 month old son, Ben, is right in the middle of his treatment for Bilateral Wilms'. It's always nice to hear about a positive outcome. He was diagnosed on May 15, 2000 and has been treated at Marshfield Clinic since. He's a strong little boy and has had very few side effects to the chemotherapy treatments to date. His next surgery will be in late October. It's likely he will have the entire right kidney removed and part of the left as well. Thankfully, the cancer has not spread to any other organs. The oncologist and surgeon are very pleased with his progress and response to the chemotherapy treatments. The tumors have shrunk by half! I never thought I'd hear myself saying this, but I love his chest tube. It's saved him a lot of unnecessary pain and fear of all of the procedures needing to be done. I can't imagine how difficult his visits would be if that element of fear existed. I'm glad that you are now doing well and wish you a happy and healthy life. Thanks again for sharing your uplifting story. You're an inspiration to many! Michelle |
| Name: | Lino Morales |
| E-mail address: | lmorales@harbourgroup.com.mx |
| Homepage URL: | http:// |
| Comments: | Hi, Luke,thank your home page I found a lot of info about
this horrible disease, My daugther Diana lost the right kidney a week ago, She is 9 months old, We pray for her and children like you everyday, All the best to you and your family, Good Luck and God bless you. |
| Name: | Ken |
| E-mail address: | Kenelise@aol.com |
| Homepage URL: | http:// |
| Comments: | My daughter Lauren, who I first told you about several
years ago, has passed three years with no recurrence of the cancer! Her oncologist thinks that chances for it coming back are very slim now and she will only have to be monitored every 6 months instead of every 3 from now on. We are thankful to Jesus for His grace to us. |
| Name: | Beth |
| E-mail address: | XxangeivV@aol.com |
| Homepage URL: | http:// |
| Comments: | I am 19 and I was diagnosed with lyomiosarcoma cancer when
I was 13...I have also gone through the chemotherapy, and the surgery's (stomach, and liver) and even had the cathader. I am not in remission but I am doing " stable" and the one thing that keeps me going is reading stories of survivors. Congradulations and I hope Luke lives the rest of his life as healthy as possible =) |
| Name: | Lakeshia Davis |
| E-mail address: | dont have one |
| Homepage URL: | http:// |
| Comments: | I think your story was very touching and that you are a
strong child to pull through and that you inspired alot of people that you can survive cancer. Lakeshia Davis |
| Name: | Lakeshia Davis |
| E-mail address: | dont have one |
| Homepage URL: | http:// |
| Comments: | I think your story was very touching and that you are a
strong child to pull through and that you inspired alot of people that you can survive cancer. Lakeshia Davis |
| Name: | Lakeshia Davis |
| E-mail address: | dont have one |
| Homepage URL: | http:// |
| Comments: | I think your story was very touching and that you are a
strong child to pull through and that you inspired alot of people that you can survive cancer. Lakeshia Davis |
| Name: | Lakeshia Davis |
| E-mail address: | dont have one |
| Homepage URL: | http:// |
| Comments: | I think your story was very touching and that you are a
strong child to pull through and that you inspired alot of people that you can survive cancer. Lakeshia Davis |
| Name: | Lisa |
| E-mail address: | peruny68@yahoo.com |
| Homepage URL: | http://www.angelfire.com/id/loopz/mycha.html |
| Comments: | Way to go Luke!!! I know that fighting cancer is a long
hard battle. That chemo is some nasty stuff. Glad to hear you have beaten it. May God be with you in all you do. |
| Name: | Denise |
| E-mail address: | zaporo@ameritech.net |
| Homepage URL: | http:// |
| Comments: | I am a long term survivor of wilms tumor. My family
discovered the tumor in december of 1983. I had my left kidney removed, and endured chemo. I will pray for Luke, although I know a strong person will survive, and Luke is strong. |
| Name: | Jeff & Marybeth DeLaMar |
| E-mail address: | jdelamar@us.ibm.com |
| Homepage URL: | http:// |
| Comments: | Luke, your home page is just what we needed to find. Our
daughter Mary Caitlin was diagnosed with bilateral Wilms in January of 2000.(she is 4 yrs. old). She underwent 18 weeks of chemo, has lost her right kidney and 40% of her left kidney. She also has some spots on her intestine. We are always so very frightened, and really have had a hard time finding other children with bilateral wilms. Mary Caitlin is a fighter; she has to be as she is facing more aggressive chemo and will also start radiation. We don't know what the future holds, but we pray for her and children like you everyday. Please let me know if you will be needing a kidney transplant some day. May God shine down on you and give you His strength. |
| Name: | David |
| E-mail address: | dnail@nc.rr.com |
| Homepage URL: | http:// |
| Comments: | Hey Luke, guess what? You have now officially used up all
your bad luck for a long time to come. You can now jump in there and really enjoy life.... and whatever you do, you should not, can not, will not feel sorry for yourself. That is simply not allowed for tough guys like ourselves. You see I had the big lump removed myself. Just on my right side but the bad stuff spread to my lungs and that was in 1960 before they really knew much about chemotherapy. Back then they mostly nuked you till you were well done and then sent you home. My family doctor had just read about the funeral of the last Wilm’s kid from my area who had not lived by x-rays alone when I showed up. So he did some more reading and decided to send me up to Boston's Children's Hospital to see how much trouble I could cause up there. It's now the Dana Farber Cancer Institute I think. Turns out they were experimenting with chemotherapy. Lucky me. Between the chemo, the x-rays, the needles, my sore side, my lack of hair do and more snow than I had ever seen back in North Carolina I had decided someone was out to get me. But after I quit throwing up and after I finally stopped thinking I lived in a waiting room I started to feel pretty good and I still feel pretty good. I took the worse they could dish out and I hung in there. I played baseball, learned to drive, went to college, kissed a girl, got married and I now have two very healthy boys of my own. So my advice to you and all of those like us is to keep your chin up and keep plugging. One last thing, you probably already know this, but it also helps to talk to someone when you do feel a little down. Like your Mom or Dad or the big guy upstairs (you know - God). They know how wonderful you are. Good luck and God Bless! |
| Name: | Rich Bosko |
| E-mail address: | Fernweh@Dellnet.com |
| Homepage URL: | http:// |
| Comments: | Luke,
I was amazed at your story and very proud of you. Unlike most who read this, I too had a Wilm's Tumor. It was discovered when I was only 7 months old! I lost my right kidney and later, part of my stomach - a result of the radiation treatments. But the good news is that this happened to me back in 1958 (back in the time of the dinosaurs)!!! I am a cancer survivor for 42 years! I just wanted you- and your parents- to know that I lead a VERY normal life, I'm married to a wonderful person and have a really cool job too! I know you will do wonderful things with your life - you've already accomplished so much. I also know your Mom and Dad are great parents - mine were too. Good luck to you and hang in there!!! I'll be thinking of you. Rich |
| Name: | birgitte kaye |
| E-mail address: | kayeb@erols.com |
| Homepage URL: | http:// |
| Comments: | Dear Luke -
Thank you for sharing your story on-line. You are very courageous! I am a grown up and a Mommy, and also a long- term survivor of Wilm's tumor (I had it when I was a baby and only 10 months old, so I can't remember anything, but my parents and family still talk about it often). I am glad you are doing so well, and will share your story with my child when he is a little older and can understand. All the best to you and your family, |
| Name: | Tiffany W. |
| E-mail address: | tnichelle7@yahoo.com |
| Homepage URL: | http:// |
| Comments: | Hi,
My name is Tiffany. I have bi-lateral wilms tumors too. I am in remission. I have been in remission for 2 years now. I got sick when I was 4 years old. I also had a bowel obstruction. I am doing good now. I have half of both my kidney's left (double partical nephrectomy"s) I have a nephrostomy tube in one kidney because it can't drain into my bladder. I have to wear a bag for that to drain in. This kidney only has 18% function left. I will need a kidney transplant someday. Do you need one too? I am so happy to find you, I have been doing this for four years, and you are the first person I found with Bi-lateral Wilms! I heard about a little boy in New York that has Bi- lateral wilms, but I don't know his name. He has two half kidney's just like me too. We have a doctor that follows us both is how I heard about him. I hope he and you are doing well. I hope everyone is! I don't like having cancer, but I have met a lot of nice people and made a lot of special freinds. I was thinking we could write each other sometimes, I know you might have a lot of people to write already, but if you get time to write me, I will be very happy to hear from you! Did you hear about The Miracle Kids? You can put your story there on a page. It is neat. I am having a page made now. It will be there in a week. It helps raise money for kids. I hope my story will help other kids. Your story helps me, I don't feel so alone. I know two kids with wilms in one kidney from my hospital ( Motts childrens hospital in Ann Arbor Michigan) but you are the first I can talk to with Bi- lateral Wilms. I am happy to find you. I am sorry you had to have wilms though. I wish no one ever had to be sick. I hope you are doing very good. I think it's very special people want to help kids like us, it makes me feel very good and loved. I wish I could send all of them a thank you hug! I hope they know they are special too! I will say a prayer for you. Love Tiffany |
| Name: | DeAnn Goodwin |
| E-mail address: | deegoodwin@mindspring.com |
| Homepage URL: | http:// |
| Comments: | Dearest Luke:
You are such a brave little boy and hope you are doing very well now. My name is DeAnn, I am from Cullman Alabama. My son Kaleb was diagnosed with Wilms in October of 1997, he had just turned two years old. He too went through chemo and many many trips to Childrens Hospital in Birmingham AL He is 4 now and doing wonderful. I know you have been through so much and so has Mommy and Daddy too I'm sure, but you are a fighter much like my little boy Kaleb. Me and my family will always remember you and your family in our prayers and wish you well. With much love, The Goodwin Family |
| Name: | Stephanie |
| E-mail address: | Stephgym1 |
| Comments: | I just wanted to write and ask if your child, Luke, is still
doing ok. When i say this page i thought it was the sadest thing. Why does such a little kid have to have cancer when they didnt do anything wrong. Well i got to go. take care of yourself and eachother. Stephanie |
| Name: | Kimberly Pfleegor |
| E-mail address: | dalmation_103@hotmail.com |
| Homepage URL: | http:// |
| Comments: | I am from Danville Pa.
Lots of Love Kimberly Pfleegor |
| Name: | Kimberly Pfleegor |
| E-mail address: | dalmation_103@hotmail.com |
| Homepage URL: | http:// |
| Comments: | I know how you feel
I am the same way With lots of Love Kimberly Pfleegor |
| Name: | Martyn Stone |
| E-mail address: | MS@Cowpasture64.freeserve.co.uk |
| Homepage URL: | http://www.zyworld.com/martynstone/index1.htm |
| Comments: | Hi Lucas! My name is Martyn from Nottinghamshire in
England. I’ve just read your site and found it very encouraging. My daughter Samantha was diagnosed with a stage 3 Wilms tumour in January 1997. After a year of Chemo and radiotherapy she was given the all clear. All was well until October 1999 when a tumour was found in her liver. Sam is currently receiving chemotherapy and is about three quarters through the course, after the Chemo she will have surgery to remove the remainder of her tumour and half her liver. Good luck to you and your family and thank you for sharing your story with the rest of the world. Stories like yours give everyone hope. God Bless! Martyn Stone |
| Name: | Charlie McGee |
| E-mail address: | afn49444@afn.org |
| Homepage URL: | http:// |
| Comments: | Dear Luke,
You are a very brave little boy. I'm an operating room nurse. We are removing a Wilms tumor from a little girl in Florida. If I get a chance I will tell her about you. I think your story may help her feel better. Sincerely, Charlie McGee |
| Name: | Rebecca |
| E-mail address: | socceriiii@aol.com |
| Homepage URL: | http:// |
| Comments: | Luke- I just wanted to tell you to hang in there. I knew
two children with wilms tumor. I am from Sioux Falls, South Dakota. Both of the children I knew died from the cancer. It was very sad. My mom is a RN and I got very close with one of those children. Her name was Collete Foster. She died May 2, 1998 and I still think of her so much. I wish that she would have made it, I know that you will! You are a fighter, keep it up!!! Love, Rebecca |
| Name: | stephani taylor |
| E-mail address: | stephi3124@aol.com |
| Homepage URL: | http:// |
| Comments: | Luke, you are very brave for handling this disease. Unlike
the others i dont have a family member or friend who has been hurt by your form of cancer. But I have had some who have had forms of cancer. I want to wish you the best in life and a full recovery. I am in awe how god can make the little children in life suffer threw this, but fortently you made it. I look up to you for what you did. You took something that was awful, and survived it. You are one of Gods creations. I wish you the best, and the best in the future. I also give you the biggest hug. God bless you. Love Stephani Taylor |
| Name: | dale morris |
| E-mail address: | gdmorris@telus.net |
| Homepage URL: | http:// |
| Comments: |
HI LUKE MY NAME IS DALE MORRIS AND I LIVE IN PORT ALBERNI, BRITISH COLUMBIA,CANADA.OUR SON RAYMOND WHO IS NOW SEVEN WAS DIAGNOSED WITH A WILMS TUMOR IN FEB/1996.I WILL ALWAYS REMEBER THE DATE AS IT WAS SUPERBOWL WEEKEND.HE WAS DIAGNOSED WITH A STAGE "TWO" TUMOR OF THE RIGHT KIDNEY AND UNDERWENT REMOVAL OF THE KIDNEY AND OF COURSE THE TUMOR. HE RECIEVED TREATMENT AND CHEMO AT CHILDRENS HOSPITAL IN VANCOUVER B.C. AFTER ENDURING SIX MONTHS OF CHEMOTHERAPY AND COUNTLESS TRIPS TO VANCOUVER HE HAS DONE VERY WELL AND WE ARE SURE THE PROGNOSIS IS VERY GOOD.AT THE END OF TREATMENTS WE HELD A "POKEY" PARTY IN OUR BACKYARD AND CELEBRATED."POKEY" WAS HIS SAYING FOR THE NEVERENDING NEEDLES AND INTRAVENOUS LINES HE ENDURED. AS I READ YOUR STORY ALL THE EMOTIONS OF THOSE TIMES CAME BACK AND I FELT I HAD TO TELL YOU THAT YOURE NOT ALONE BUDDY AND KEEP FIGHTING.YOU WENT THROUGH QUITE A LOT MORE THAN MY SON RAYMOND,BUT NO MATTER WHAT WE HAVE TO REMAIN STRONG AND HOPE FOR THE BEST!!.MY FAMILY WISH THE VERY BEST TO YOU AND YOUR FAMILY AND WE THANK-YOU FOR SHARING YOUR STORY WITH US.(MY TYPING SKILLS LEAVE ALOT TO BE DESIRED) ALL THE BEST DALE,MICHELE,AND RAYMOND MORRIS |
| Name: | Emma Porter |
| E-mail address: | fly102@hotmail.com |
| Homepage URL: | http:// |
| Comments: | this is a every touching story couse i was happy to see
that not all children die from wilms, see in augest of 1998 my 5 year old cousin died of wilms adn i really was upset couse i had never heard of wilms and it was evry hard to under stand why this happened, but now i realize that god have to dream for everyone and that my cousin is watching me from a better place. EMMA PORTER. |
| Name: | Patrick |
| E-mail address: | tdfa@bizland.com |
| Homepage URL: | http://www.tdfa.bizland.com |
| Comments: | Good luck to you Lucas...
I hope your still going strong. |
| Name: | Ellen Stiles |
| E-mail address: | PsalmsEl@aol.com |
| Homepage URL: | http:// |
| Comments: | Dearest Luke, You are very precious and an inspiration. This
website is such an encouragement to others, as you are. I am praying for you |
| Name: | Ellen Stiles |
| E-mail address: | PsalmsEl@aol.com |
| Homepage URL: | http:// |
| Comments: | Dearest Luke, You are very precious and an inspiration. This
website is such an encouragement to others, as you are. I am praying for you |
| Name: | maureen |
| E-mail address: | mlk@gtemail.net |
| Homepage URL: | http:// |
| Comments: | Dear Luke,
I was just looking for information on bone cancer because my 15 year old son's good friend has just been diagnosed with it. We would like to do anything we can to help his family, who are wonderful people. Your site is very inspirational and you are obviously a very courageous young man. I wish you continued good health. Thank you for the hope that you give people fighting this disease. Sincerely, Maureen K. |
| Name: | James & Shannon Kile |
| E-mail address: | JMoses6422@aol.com |
| Homepage URL: | http:// |
| Comments: | Hello Luke,
I hope and pray that you had a wonderful christmas, I read your letter, I can not being to put words together at this time, All I can say, is stay strong, and keep believe in GOD, he will make everything possible. Cancer runs in my family as well, It sometime can be painful, but overall. It can be a healing experince also. You are able to tell the world what's it like, and how far you have come. Luke My prayers are with you and your family. I pray that you have a great New Years 2000. May GOD Be With you All. Sincerly, Kile Family Ann Arbor, Michigan |
| Name: | Melissa Gayle |
| E-mail address: | JrMajaRin@aol.com |
| Homepage URL: | http:// |
| Comments: | Such a wonderful sight to see a young boy who never gave up
hope. It brings tears to my eyes to think of the pain you went through. Cancer grows strong in my family and it makes me very afraid. The courage you had makes me believe that we too can beat the disease. May all your dreams come true Luke. melissa - 20 yrs old xoxox |
| Name: | Ellie |
| E-mail address: | erchurch@students.wisc.edu |
| Homepage URL: | http:// |
| Comments: | Hi Luke! My name is Ellie and I am a Wilms survivors also. I
was diagnosed at 5 and am now 22 years old and doing great. I'm glad to see you are also. And I'm glad to see you're a Badger fan! I volunteer at the UW Children's hospital and see kids like you all the time who are brave and special. My heart goes out to you and I wish you luck in life! |
| Name: | SingSong |
| E-mail address: | thehurtchild@zianet.com |
| Homepage URL: | http:// |
| Comments: | I Loved your web site thank you for having all this
information!!!!Heres a little gift for you because I found your site to be worthy of an act of kindness! In Love and healing SingSong |
| Name: | brenda |
| E-mail address: | carnie1257@aol.com |
| Homepage URL: | http://randomactsofkindness |
| Comments: | hi my name is brenda. i am a member of random acts of
kindness. we search the web for people like you who may be in need of support, cheer ot some brightness to your day. i am a hugger so that is my gift to u.((((((HUGS))))))) may god bless and keep u in your journey. Brenda |
| Name: | Laura Judkins |
| E-mail address: | jjudkins@neocomm.net |
| Homepage URL: | http:// |
| Comments: | Hi Lucas! You are such a brave person-it's hard to go
through what you have gone through and keep a smile on your face! I was diagnosed with Wilm's Tumor when I was 8. I'm now 26 and doing wonderful. I had a 5 pound tumor and my left kidney was removed. I had radiation and 18 months of chemotherapy, so I know what that feels like. Stay strong and try to keep a positive outlook on life. You've gone through the worst of it and made it through with flying colors! I wish you the best and I'll keep you in my prayers. |
| Name: | Laura Judkins |
| E-mail address: | jjudkins@neocomm.net |
| Homepage URL: | http:// |
| Comments: | Hi Lucas! You are such a brave person-it's hard to go
through what you have gone through and keep a smile on your face! I was diagnosed with Wilm's Tumor when I was 8. I'm now 26 and doing wonderful. I had a 5 pound tumor and my left kidney was removed. I had radiation and 18 months of chemotherapy, so I know what that feels like. Stay strong and try to keep a positive outlook on life. You've gone through the worst of it and made it through with flying colors! I wish you the best and I'll keep you in my prayers. |
| Name: | Laura Judkins |
| E-mail address: | jjudkins@neocomm.net |
| Homepage URL: | http:// |
| Comments: | Hi Lucas! You are such a brave person-it's hard to go
through what you have gone through and keep a smile on your face! I was diagnosed with Wilm's Tumor when I was 8. I'm now 26 and doing wonderful. I had a 5 pound tumor and my left kidney was removed. I had radiation and 18 months of chemotherapy, so I know what that feels like. Stay strong and try to keep a positive outlook on life. You've gone through the worst of it and made it through with flying colors! I wish you the best and I'll keep you in my prayers. |
| Name: | Krista Wallace |
| E-mail address: | krash@tds.net |
| Homepage URL: | http:// |
| Comments: | Hello there, i too have a son that was diagnosed with
bilateral wilm's tumor (stage 5). My son Harden was diagnosed in March of 1992, he was 4 months away from turning 3 years old. He has gone through several surgeries and has a good portion of his left kidney remaining. Harden is a big 10 year old kid now and doing fine. I had never met anyone that had been through what my son and I had been through, now i know i am not alone, and neither are you. My prayers are with you, good luck and god bless. |
| Name: | Krista Wallace |
| E-mail address: | krash@tds.net |
| Homepage URL: | http:// |
| Comments: | Hello there, i too have a son that was diagnosed with
bilateral wilm's tumor (stage 5). My son Harden was diagnosed in March of 1992, he was 4 months away from turning 3 years old. He has gone through several surgeries and has a good portion of his left kidney remaining. Harden is a big 10 year old kid now and doing fine. I had never met anyone that had been through what my son and I had been through, now i know i am not alone, and neither are you. My prayers are with you, good luck and god bless. |
| Name: | Krista Wallace |
| E-mail address: | krash@tds.net |
| Homepage URL: | http:// |
| Comments: | Hello there, i too have a son that has survived bilateral
wilm's tumor (stage 5). My son Harden was 4 months away from turning 3 when he was diagnosed in March of 1992. The fear in my heart was unbelieveable, wondering if i was going to lose my baby. Harden also went through multiple surgeries and only has a portion of his left kidney remaining. He had his cathered removed in July of 1993 and has been cancer free now for over 6 years. I consider it a miracle and am amazed to look at this big 10 year old kid. I just wanted to let you know that there are others out here. I have never met anyone else that has been where my son and i have been, but I know i am not alone now. Good luck and god bless you. Please feel free and to write back. |
| Name: | Krista Wallace |
| E-mail address: | krash@tds.net |
| Homepage URL: | http:// |
| Comments: | Hello there, i too have a son that has survived bilateral
wilm's tumor (stage 5). My son Harden was 4 months away from turning 3 when he was diagnosed in March of 1992. The fear in my heart was unbelieveable, wondering if i was going to lose my baby. Harden also went through multiple surgeries and only has a portion of his left kidney remaining. He had his cathered removed in July of 1993 and has been cancer free now for over 6 years. I consider it a miracle and am amazed to look at this big 10 year old kid. I just wanted to let you know that there are others out here. I have never met anyone else that has been where my son and i have been, but I know i am not alone now. Good luck and god bless you. Please feel free and to write back. |
| Name: | Krista Wallace |
| E-mail address: | krash@tds.net |
| Homepage URL: | http:// |
| Comments: | Hello there, i too have a son that has survived bilateral
wilm's tumor (stage 5). My son Harden was 4 months away from turning 3 when he was diagnosed in March of 1992. The fear in my heart was unbelieveable, wondering if i was going to lose my baby. Harden also went through multiple surgeries and only has a portion of his left kidney remaining. He had his cathered removed in July of 1993 and has been cancer free now for over 6 years. I consider it a miracle and am amazed to look at this big 10 year old kid. I just wanted to let you know that there are others out here. I have never met anyone else that has been where my son and i have been, but I know i am not alone now. Good luck and god bless you. Please feel free and to write back. |
| Name: | MELANIE SMITH |
| E-mail address: | NEILLR3@AOL.COM |
| Homepage URL: | http:// |
| Comments: | I had Wilm's Tumor when I was five years old I am now 22 years old and haven't had anything wrong with me since. I had my left kidney removed and it traveled to my heart and lungs so I had radiaition and chemo. Now i'm writing a book about survivors of this horrible disease. Kind of a Cancer handbook for children and young adults who are fighting this disease. I want to fill it with hope and insperation. If you would like to have you story in it send me a little something and if you know anyone else that would at you clinic tell them to write me also. Thank You. I wish you the best of luck although you won't need it your a fighter and a survivor. Don't let anything get you down. |
| Name: | chris |
| E-mail address: | chriscanson@hotmail.com |
| Homepage URL: | http:// |
| Comments: | congratulations on your great recovery i hope you get a
whole lot better. don't worry if you think you won't be better when you get older you will. i am almost 16 and went through the same thing when i was little. god was always my inspiration and he created a miracle. if you want to know more about the long term affects of it you can email me. i will tell you a lot because i have been in remission for i think 12 years or somewhere around there. By the way i play baseball and basketball for our school. Follow your dreams and always strive to be number one i know what you have been through because i have been through the same thing god bless and congratulation chris |
| Name: | chris |
| E-mail address: | chriscanson@hotmail.com |
| Homepage URL: | http:// |
| Comments: | congratulations on your great recovery i hope you get a
whole lot better. don't worry if you think you won't be better when you get older you will. i am almost 16 and went through the same thing when i was little. god was always my inspiration and he created a miracle. if you want to know more about the long term affects of it you can email me. i will tell you a lot because i have been in remission for i think 12 years or somewhere around there. By the way i play baseball and basketball for our school. Follow your dreams and always strive to be number one i know what you have been through because i have been through the same thing god bless and congratualation |
| Name: | Tammy Foulke |
| E-mail address: | tamscoob@yahoo.com |
| Homepage URL: | http:// |
| Comments: | to the parents of Luke,
i came upon your son't homepage as somewhat of an accident. i'm going into my senior year in high school and i'm doing a graduation report on Wilm's tumors. your page greatly touched my heart. you see i know the pain and heartache your family went through with Luke's cancer. My baby niece was born on October 13, 1997. in April of 97 Alexis (my niece) was diagnosed with wilms tumors. as like in your case it affected both of her kidneys. she was put through immediate surgery in which they removed her left kidney and 1/4 of her right. afterwards she underwent chemotherepy and radiation. she was said to be "cured". but not more than a month after this miracle cure it was discovered that Alexis's cancer had returned and spread throughout her entire body. the doctors sent us home from Children's hospital of Philadelphia that night with a prognosis that she wouldn't survive till morning. well Alexis fought for 6 weeks until the cancer was to much to handle. My beautiful baby niece died on the night of August 24, 1998. She was 1 year and 10 months old. not a day goes by that i don't think of her of wish to kiss her little forhead again. i am so happy to hear that your story had a happy ending and i wish for Luke to live a long and prosperous life. please, keep in contact, Tammy Foulke |
| Name: | christi anderson |
| Homepage URL: | http:// |
| Comments: | hey lucas, nice to hear you are doing so well! just wanted
to give a few words of encouragement to your parents as i am a 23 year survivor of wilm's! i know how devestating and scary this time can be as my mom has often told me. but, i have faith that lucas can make it through as i have. i am now 24 years old and a nurse working in pediatrics at loma linda university children's hospital, life is great! i am praying for lucas that he too can lead the life that god has made for him. |
| Name: | maureen perez |
| E-mail address: | danksi@msn.com |
| Homepage URL: | http:// |
| Comments: | You are a very brave child and I wish you the very best.
My 3 year old niece was diagnosed with wilms tumor in october. Her case was quite different, it spread up her inferior vena cava and traveled to her heart. After 24 chemotherapy treatments, 14 radiation treatments and surgery for removal of her right kidney and central line she is now cancer free. Children are so resilent. She was also artifically fed for the past 9 months through a nose tube but now that has been removed. Keep up the good work and enjoy your life!!!!! |
| Name: | ken & Rochelle Boyce |
| E-mail address: | kboyce@gte.net |
| Homepage URL: | http:// |
| Comments: | Hi Luke,
Its been a year since Rochelle's last chemo treatment, and she continues to do well. She has had no medical problems, but has fallen behind in her school work. we're looking for others who have had similiar issues and maybe how they got through this period. If you or anyone else has experienced this, please contact us. God bless. Ken & Rochelle |
| Name: | Connie Boyd |
| E-mail address: | lreach@rcvideo.com |
| Homepage URL: | http:// |
| Comments: | Luke,
You are a brave boy. My grandson, Justin, was had a wilm's tumor at age 15 months old. The tumor and left kidney was removed. He had 18 weeks on chemo. That was 2 years ago this month. He has done very well. All check ups had been fine so far. This past week he has the chicken "pops" as he calls them.. I hope and pray that you have a very good life. Love & prayers |
| Name: | Larry Holder |
| E-mail address: | hola31556@aol.com |
| Homepage URL: | http:// |
| Comments: | Hang in there Luke. My daughter Lauren celebrated 10 years
since her surgery to remove a three pound Wilms tumor in 1989. She is doing wonderful and has grown into a beautiful teenager. As a matter of fact, the most important thing in her life right now is learning to drive our family VW. We will keep you in our prayers. Larry Holder |
| Name: | reina |
| E-mail address: | sandle58 |
| Homepage URL: | http:// |
| Comments: | I have not read your story yet will after I sign you book
my daugter reina has wilms she was2yrs and seven mos old when we found out Dec91999 and so far so good. I pray you have good new and will continued. GOD BLESS |
| Name: | reina |
| E-mail address: | sandle58 |
| Homepage URL: | http:// |
| Comments: | I have not read your story yet will after I sign you book
my daugter reina has wilms she was2yrs and seven mos old when we found out Dec91999 and so far so good. I pray you have good new and will continued. GOD BLESS |
| Name: | reina |
| E-mail address: | sandle58 |
| Homepage URL: | http:// |
| Comments: | I have not read your story yet will after I sign you book
my daugter reina has wilms she was2yrs and seven mos old when we found out Dec91999 and so far so good. I pray you have good new and will continued. GOD BLESS |
| Name: | Joy Guy |
| E-mail address: | guys31@excite.com |
| Homepage URL: | http:// |
| Comments: | Hi Luke,
Just wanted to say hello to a brave little boy. Hope you are doing well. I work on an oncology unit and I know you have had a hard road to travel. Keep the faith. All things are possible through prayer. Admiring your strength, Joy Guy |
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