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Shaz's Ostomy Pages
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Name: Ms. Hadley Ravencroft
E-mail address: haddles57@gmail.com
Country?: USA
Type Of IBD: IBS, Neurogenic Bladder
Type Of Surgery : Urostomy
Comments:Hello,

Thank you, Shaz, for your website. I have many disabilities, including Cerebral Palsy and Fibromyalgia, and should be undergoing Ileal Conduit surgery this summer. Reading what everyone contributes is invaluable. Thank you!
Sunday, May 19th 2013 - 01:19:04 PM
Name: Stanley Johnson
E-mail address: sjohnson1@indy.rr.com
Country?: United States
Comments:This is the best thing I've found since they invented "toilet paper" (of course I don't have a use for toilet paper any more)! I've had a colostomy about three years due to a fistula in my colon. It was supposed to be temporary but after that surgery I began passing urine from my rectum whenever I urinated. After numerous exploratory surgeries, last October the doctors remover my bladder, closed my anus (making my colostomy permanent), and added my urostomy. I tolerated the colostomy thinking it was temporary but when I woke up from the last major operation last October minus my bladder and a new urostomy on the right side of my tummy it turned my world upside down. Just from reading your first page I've learned two things: my attitude sucks, and I'm naming my ostomies PooPoo and PeePee :)
Tuesday, May 14th 2013 - 10:15:59 AM
Name: charllene
E-mail address: cfrank107@yahoo.com
Country?: us
Type Of IBD: uc
Type Of Surgery : ileostomy
Friday, May 10th 2013 - 05:40:57 AM
Name: Marc
E-mail address: marc@prodigy.net
Homepage URL: http://squibb.canadianwebs.com/lipitor/side-effects.html
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Monday, May 6th 2013 - 08:24:12 PM
Name: Nancy Barney
E-mail address: nbarney53@yahoo.com
Country?: United States
Type Of IBD: Crohns
Type Of Surgery : Ileoostomy
Comments:Hi Shaz love your page ! After 45 years yep you read right ! with Crohns I'm giving up my colon an rectum end of next month
Had Crohns since age 14 am now 59

take care
peace Nancy Barney St Louis Missouri USA
Saturday, April 20th 2013 - 10:34:31 PM
Name: Gale
E-mail address: galerummer@yahoo.com
Country?: USA
Type Of IBD: ulcerative colitis
Type Of Surgery : iliostomy
Wednesday, April 17th 2013 - 09:49:03 AM
Name: Renee
E-mail address: ms_treny@msn.com
Country?: USA
Type Of Surgery : ileostomy
Comments:I had my ileostomate for 7 yrs.(it's permanent)It's nice to know I'm not alone. May God Bless You.
Tuesday, April 9th 2013 - 07:34:06 AM
Name: Heather Hopkins
E-mail address: heather_gem@hotmail.com
Country?: UK but live in Spain
Type Of IBD: Crohns
Type Of Surgery : ileostomy
Comments:Great site!!
Tuesday, April 2nd 2013 - 02:12:54 AM
Name: Judy English
E-mail address: judyenglish40@hotmail.com
Country?: Australia
Comments:I started with a temporary ileostomy but had to have a permanent colostomy and a urostomy as my cancer ate into my bladder. My first colostomy was in October 2011 but due to complications (abcess) and another op to make colostomy permanent I spent nearly 6 months in hospital. Have been out for just over a year and apart from having a very small stoma which has to be stretched every few months I have good health. I have had the usual troubles with bags but manage to get through them.
Monday, April 1st 2013 - 05:20:38 PM
Name: Ginny
E-mail address: Imapainter2@hotmail.com
Country?: US
Type Of Surgery : Ileostomy
Comments:My husband, Alan is the ostomate in our house and we have not named his stoma...yet. I think it's kinda cute, actually. I look forward to reading some helpful ideas and stories to be able to support him better. We welcomed his stomps into our lives back in Nov. 2012.
Sunday, March 3rd 2013 - 12:58:46 AM
Name: Julie
E-mail address: jewelsnkaden@yahoo.com
Country?: United States
Type Of IBD: Ulcerative Colitis
Type Of Surgery : Ileostomy
Comments:I am a lot like you, in fact it is weird how close are stories are. I am currently 35 years old but my attitude stinks I know this, but it seems I can't handle it any more. I wake up every morning praying that things were different. I have other health problems too which does not help the sitsuation. I am on disability can't work due to my ileostomy. I wake up every morning with my bag busted and sleeping in my own poop. My bag busts when out in public. I have tried every product on the market none seem to work. I am so lonely because no one gets it. I even have met other people who have one and they don't have half the problems as I do. If things do not improve soon I am scared what I might do. I don't date and its hard to find someone to spend my life with unless I can date. I wish you lived closer or even in the same country.
Tuesday, February 19th 2013 - 12:05:09 AM
Name: Dawn Merritt
E-mail address: dmerritt3@rochester.rr.com
Country?: USA
Type Of IBD: UC
Type Of Surgery : colectomy
Comments:I was wondering if you know how many ostomates there are globally? I've been searching for a while now and I just cannot find any data on the percentage of them. I'd love to know how many of us are permanent, and how many temporary's are done each year. Many thanks for any help you can extend!

Kind Regards,
Dawn Merritt
Ileostomate, April 2011
Sunday, February 17th 2013 - 01:31:00 AM
Name: Angela
E-mail address: gajekelley@gmail.com
Country?: USA
Type Of IBD: husband has crohns
Type Of Surgery : ileostomy/colectomy
Comments:dh just had his surgery january 9. looking around at various pages, wanting to help him find people to talk to. i enjoyed reading your page!
Sunday, January 20th 2013 - 08:08:38 AM
Name: Jason McIntosh
E-mail address: info@awestomy.com
Homepage URL: http://www.awestomy.com
Country?: USA
Type Of IBD: Crohn's Disease
Type Of Surgery : Colostomy
Comments:Hey Shaz,

I'm interested in getting my ostomy undergarment company on your products page. Would it be possible to work together to get this done?

Thanks so much,
Jason McIntosh
Awestomy
Friday, January 18th 2013 - 11:40:15 PM
Name: Jasmine
E-mail address: jaszej12@gmail.com
Country?: USA
Type Of IBD: Crohns Disease
Type Of Surgery : Permanent Ileostomy
Comments:Hi! My name is Jasmine better known as J. I am 23 years old and I have had a pouch since the age of 15. I was first diagnosed with UC but after developing a fistula it was later changed to Crohns. I have had over 30 surgeries (my last one was just a few days ago). I am so glad to have found your site and read other people˚s inspirational stories. Its so hard to deal with something when you feel you are alone but its so good to know there are other people understand my challenges and triumphs. Thanks so much for creating this site. God Bless!
Wednesday, January 16th 2013 - 03:28:31 AM
Name: linda
E-mail address: linda2nicholson@yahoo.co.uk
Country?: scotland
Type Of IBD: ulcerative colitis
Type Of Surgery : ileostomy formed in 2004 then proctectomy in 2010
Comments:Hi Shaz, You're so right about our attitude to life and others .. it is up to us.. We can get up and live or sit and feel sorry for ourselves.. its our choice and it will play the biggest part in the kind of life we have.. its not always easy to stay positive, especially after this type of surgery, however, if we look at life on a bigger scale we will always find people worse off than ourselves.. I've not been feeling that positive lately and have never really tapped into these types of internet sites before.. but really needed a reminder that I'm not alone.. Thanks. glad you were there.. Lx
Thursday, January 10th 2013 - 02:57:08 AM
Name: SUE HAILMAN
E-mail address: loganlee@bellsouth.net
Country?: United States
Type Of Surgery : remove bladder
Comments:Iam looking at having the surgery to remove my bladder an wear a bag. I've been looking on the internet to find some information to help me deside what to do. my doctors told me to stay off the internet, i see why, some of the post are horride. Yours was the first that made me feel alittle better about it. i know yours is for colon, but i don't think there is to much difference. Thanks for sharing your story
Friday, January 4th 2013 - 11:08:13 AM
Name: Trina
E-mail address: trina.rosecat@gmail.com
Country?: Canada
Type Of IBD: ileostomy
Type Of Surgery : bowel resection
Friday, December 28th 2012 - 11:28:54 PM
Name: Frank Siragusa
E-mail address: fsiragusa@cox.net
Country?: USA
Type Of IBD: Colostomy
Type Of Surgery : Colon resection due to diverticulitis
Comments:Been a Nurse for almost 20 years. I never had any insight into what people with Ostomies deal with. Now as an Ostomy wearer, I think that I will be much better with Ostomy patients if I ever get back to work.

I call my bag, my colon, "catcher's mitt".
Tuesday, December 25th 2012 - 10:19:45 PM
Name: Mary Clavin
E-mail address: hawaii.anna@me.com
Country?: United States
Type Of IBD: Crohn's
Type Of Surgery : colostomy
Comments:Just found you - looking forward to getting valuable info here as I am having to make big decision whether to reverse or not. Thank you for this site!!
Tuesday, December 25th 2012 - 02:05:09 PM
Name: Michael Freedman
E-mail address: mbfree1@bigpond.com
Country?: Australia
Type Of Surgery : Colorectomy
Comments:I would like to talk to fellow Ostomates,my site appears to have been deleted MIKE
Wednesday, December 19th 2012 - 07:23:33 PM
Name: Jenny
E-mail address: jennyo1@iinet.net.au
Country?: Australia
Type Of Surgery : removal of large bowel
Comments:Looking for help with leakage problems at night. I have tried everything possible, but am getting nowhere.
Monday, December 3rd 2012 - 02:45:28 PM
Name: jan
E-mail address: janhatters@hotmail.com
Country?: australia
Type Of IBD: ileostomy
Type Of Surgery : j pouch
Comments:Hi my name is jan and you are the first person i have written to in australia. I have had the first of three operations waiting to have the second one done it all takes time but when you are waiting the time seems to go slowly.
How are you going and what kind of operation did you have? i am finding it hard to buy clothes that the bag doesn't show throw your clothes do you have any ideas that i can use to make it easy for me, i don't like going out as i am scare i will have a accident which has happen to me in the past so i stay at home alot of the time. I would like to hear from you and maybe you can help me thank you jan

Thursday, November 29th 2012 - 09:33:03 PM
Name: E Har
E-mail address: navehla@gmail.com
Country?: Enlgand
Type Of Surgery : Ileostomy
Monday, November 19th 2012 - 02:28:57 AM
Name: Louise Bette
E-mail address: harrybette@yahoo.ca
Country?: Canada
Type Of Surgery : Ileostomy
Comments:I have had the surgery in July 2012 have been back in with blockage twice now, any suggestions anyone,
Louise
Friday, November 9th 2012 - 03:13:25 AM
Name: Linda Marlene Russell
E-mail address: rlindanurse1998@aol.com
Country?: USA
Type Of IBD: crohn's
Type Of Surgery : ileostomy
Comments:The operation saved my life. At first I wouldn't grasp this because I was so filled with feeling so sorry for me, but now I know better and I thank God for a second chance at life
Friday, October 26th 2012 - 03:08:10 AM
Name: Joel Paige
E-mail address: kadendad07@yahoo.com
Country?: USA
Comments:I'm currently a nursing student and we are studying GIGU( basically anything that deals with the GI Tract- mouth to the rectum) and I enjoy learning thru actual stories rather than a boring book. Thanks for your story
Thursday, October 18th 2012 - 07:45:10 AM
Name: Clare Treleaven
E-mail address: ctreleaven08@aol.com
Country?: United Kingdom
Type Of Surgery : Colostomy
Comments:Hi Shaz - Have had an ACE for 3 years and it started playing up ( on my right hand side ) & now have a sigmoid end des colostomy on the left hand side - the 2 are linked and I irrigate thru my ACE & everything comes out via my Colostomy. I just visited your page for inspiration & tips - It is great - Best wishes Clare
Wednesday, October 10th 2012 - 03:54:46 PM
Name: Paul Welwood
E-mail address: t.word@verizon.net
Country?: usa
Type Of IBD: colorectal cancer
Type Of Surgery : ileostomy
Comments:very upset can't handle.
Tuesday, October 2nd 2012 - 07:00:08 AM
Name: Jan Murray
E-mail address: jaymal@bigpond.com
Country?: Australia
Type Of Surgery : colostomy
Comments:My husband has just recently had surgery. So I am trying to find out 'stuff' to help his and my 'attitudes'. Your site and positive attitude will certainly be of help.
Thanks Jan M
Sunday, September 30th 2012 - 12:24:48 PM
Name: Sally Reynolds
E-mail address: mattandsal4@hotmail.com
Country?: Australia
Type Of IBD: Crohn's
Type Of Surgery : ileostomy
Comments:Great site Shaz, thanks :)
Monday, September 24th 2012 - 03:12:47 PM
Name: Toni
E-mail address: toniandfrank@hargray.com
Country?: USA
Type Of IBD: Crohn's/Colitis
Type Of Surgery : Ileostomy
Monday, September 17th 2012 - 10:44:03 AM
Name: lauretta porter
E-mail address: laurettaporter@ymail.com
Country?: usa
Type Of IBD: crohn's disease
Type Of Surgery : colostomy
Thursday, September 13th 2012 - 11:16:31 PM
Name: ron hurley
E-mail address: ronhurley.hurley53@gmail.com
Country?: usa
Type Of IBD: ileostomy
Type Of Surgery : suprising
Comments:went to hospital 1 mar 2012 with obdominal pains. Woke-up
later on O.R. table, told my large bowel had perfurated, I
died, and they hooked me up with ileostomy, brought me back
and suprise, I aam now the proud owner of a "Bio-Hazard
Containment Unit, (ha, ha). I have the bag and a mucus
fistula as well. Bag on the right, fistula on the left. I've had nothing but problems since, 2 digestive blockages
from then to now. both times let to a 4 day stay in hospital. Need to watch my diet for sure now.
Thursday, August 23rd 2012 - 05:50:30 AM
Name: Miriam Anderson
E-mail address: miriam.anderson11@gmail.com
Country?: Australia
Type Of Surgery : Colstomy
Comments:Hi Shaz
Just read your article. Love your positivity.
Sunday, August 19th 2012 - 11:06:56 AM
Name: michael brookes
E-mail address: tireonemike@gmail.com
Country?: usa
Type Of IBD: uc
Type Of Surgery : ilectomy
Comments:having my surgery on aug 15th 2012 scared to death but your site has helped answer many of my questions , thank and God Bless u shaz :)
Wednesday, August 1st 2012 - 06:22:17 AM
Name: Anthony Hoeft
E-mail address: Achoeft@yahoo.com
Country?: USA
Type Of IBD: Urostomy
Comments:Hi Sharon. You have an amazing web page. So much info! I first had a diverted bladder but it didn't quite work and then I had a urostomy surgery in 1980. I started researching more about it last summer and I am quite shocked to find out how many ostomates there are. Thank you for having such a great web page and being such a great lady.
Sunday, July 29th 2012 - 12:45:44 AM
Name: Peter
Homepage URL: http://www.petersommer.com/
Country?: UK
Comments:Hi Shaz, Yes, my father also has a stoma - he had cancer several years back. He was lucky to survive and has been going strong for many years since - thank goodness!

Wishing you all the best.
Friday, July 20th 2012 - 03:42:18 PM
Name: Elin
Country?: Wales, UK
Comments:Excellent dreambook Shaz - and found your website very inspiring - a truly reassuring and informative resource. My father in law has a stoma so I'm aware of the issues.

Wishing you all the best - Elin, busy making <a rel="nofollow" href="http://www.nothingnasty.com">natural skin care</a> in Wales.
Friday, July 20th 2012 - 03:20:16 AM
Name: Kevin Droke
E-mail address: ksdroke@gmail.com
Country?: USA
Type Of IBD: Crohn's
Type Of Surgery : Ileostomy reversal
Comments:Thank you for telling your story! I have had an ileostomy now for a year and I am going through the process of having it reversed. My family and friends can't imagine why I would want to go through this type of life again. I have been fighting Crohn's for 20 years. Thank you, I have finally found someone that undestands completely! My wife and kids are very supportive but don't really understand. I just want to feel normal again (while I still can). Thank you for your story! This will help me thorugh this next step!
Saturday, June 16th 2012 - 04:39:57 AM
Name: Dana Owens
E-mail address: djowens3@gmail.com
Country?: USA
Type Of IBD: Crohn's
Type Of Surgery : Ileostomy surgery
Comments:Saw your page on healingwell.com and checking it out. I just had surgery in April and not coping very well so far. Came across the Ostomy forum and it's been helping me see the brighter side of things.
Friday, June 15th 2012 - 05:50:59 AM
Name: Kalena m Davis
E-mail address: kalenadavis83@verizon.net
Country?: USA
Type Of IBD: Crohn's
Type Of Surgery : colostomy
Comments:Need help and support. Would love to see how other dress and take care of themselves while staying happy, healthy, and positive.
Thursday, June 14th 2012 - 09:47:48 AM
Name: Antonio Diniz
E-mail address: anthon31@gmail.com
Country?: India
Type Of IBD: Ulcerative Colitis
Type Of Surgery : Ileostomy
Comments:I had my Ileostomy done in December 10, 2006, cause being severe attack of ulcerative colitis wit excessive internal bleeding.Medicines could no longer control/stop the bleeding. I use two piece arrangement of Hollister make. I have mastered the technique of fixing the wafer and bag quite effectively and do the change once a week.I am 65 and lead quite an active life, however I try to avoid strong sunlight and humid conditions. As far as food is concerned I eat practically everything except certain food articles that cause bulk and gas. I hail from Goa, India. There are hardly known people with similar conditions and medical centres and hospitals here are not so well versed with ostomy patients. One should be able to look after oneself in order to lead a normal life.
Sunday, June 10th 2012 - 10:38:56 PM
Name: Marjune Iooss
E-mail address: miooss@mtnisp.com
Country?: USA
Type Of Surgery : ileostomy
Comments:I'm sending you an email.
Thursday, May 31st 2012 - 04:27:39 AM
Name: Rachelle
E-mail address: kidsgandb@hotmail.com
Country?: Auatralia
Type Of IBD: Chrons
Type Of Surgery : Iliostomy
Wednesday, May 30th 2012 - 09:44:00 PM
Name: Barbara Leiman
E-mail address: leimanb@gmail.com
Country?: USA
Type Of Surgery : Colectomy
Comments:Please read my e-mail asking for help. Thank you.
Thursday, May 24th 2012 - 06:18:25 AM
Name: Brad burton
E-mail address: roping1@hotmail.com
Country?: United States
Type Of IBD: Ulcerative colitis
Type Of Surgery : Ileostomy
Comments:I had the surgery in 1996. My biggest problem is weight gain. I am 40-50 lbs overweight. I dont eat a lot of healthy food due to fear of blockage risk. Need ideas.
Tuesday, May 22nd 2012 - 12:33:27 AM
Name: rosie corbett
E-mail address: 07876026945
Country?: england
Type Of IBD: illeostomy
Type Of Surgery : permenant
Comments:WOW what a great help i just want to say thank you shaz, i have had my ostomy 4yrs now and have never visited any sites or even talked about it that much as i find that i never know where to start and worry that people will be freaked out but you have helped me so much in the last hour, its pretty incredible! i no longer feel like a freak but instead feel like im part of a really cool club, I've just showed my mum your page and she's very greatful to you and thinks everybody on there is inspirational. your a truly incredable lady and i thank you for taking the time to help others be more positive about there situations. Many thanks Rosie
Sunday, May 20th 2012 - 11:01:41 PM
Name: mark powell
E-mail address: markpowell1223@att.net
Country?: usa
Type Of IBD: colostomy
Comments:thank you for everything! had my surgery 2 years ago but still learning new things all the time. even the doctors are amazed
at the stuff i say to them. its great to see their are people
out there like you!
Friday, April 27th 2012 - 05:06:57 AM
Name: Danielle
E-mail address: dgoodrich14@yahoo.com
Country?: Usa
Type Of IBD: Uc
Type Of Surgery : Ilestomy
Comments:I had a short go of uc, but a nasty one at that, came on quick and severe. Was on asacal and remicade without sucess. Spent 32 days in hospital when on nov 17, 2011 just a few days after my 23 birthday they decided I needed emergency surgery, I will go in may 15th for start of reversal. Your site is so inspiring thank you
Monday, April 23rd 2012 - 07:52:12 AM
Name: Warren Hill
E-mail address: carolyn_ray@bellsouth.net
Country?: USA
Type Of IBD: Ilestomy
Type Of Surgery : colon removal
Comments:Need answers for the test before reversal (barium enema-rectum only). How long to stay on liquids
Saturday, March 31st 2012 - 11:20:58 PM
Name: Mike
E-mail address: mbfree1@bigpond.com
Country?: Australia
Type Of IBD: Ileostomy
Type Of Surgery : Total Colo Rectomy
Comments:My Stomal area is breaking down and bleeding as thin as water Any Ideas?t started after 13 years.
Monday, March 26th 2012 - 09:20:11 PM
Name: Josefina Khan
E-mail address: josefina_khan@yahoo.com
Country?: USA
Type Of Surgery : Dual ostomy
Comments:Hi! I am the wife of a Dual ostomy survivor. My husband was diagnosed with Colonrectal cancer in 2003. He has been battling with the complications of having two ostomies. It's a struggle every single day, but like I said he is a survivor and continues to live life to the fullest.
Monday, March 26th 2012 - 07:48:28 AM
Name: Kathryn
E-mail address: bambinosfour@yahoo.com
Country?: USA
Type Of IBD: short bowel syndrome
Type Of Surgery : ileostomy
Comments:Great info about ostomies! Thank you for sharing on such a personal level. It helps me to better understand what I see with my son's ostomy and contents.
Saturday, March 24th 2012 - 10:54:39 PM
Name: Wendy Meldrum
E-mail address: aimesmom@yahoo.com
Country?: USA
Type Of Surgery : Urostomy
Comments:I was just diagnosed with bladder cancer and will be having surgery remove my bladder within the month. My husband for your site and I love the part about names for your stoma! I have a nephrostomy tube and I named my bag Clyde after my 16 year old niece suggested in the hospital I do so. What a great idea.
Thanks for all you do! You really do make a difference!
Tuesday, March 20th 2012 - 12:57:59 PM
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Sunday, March 18th 2012 - 11:45:31 PM
Name: Dianne
E-mail address: DeYoung
Country?: Canada
Type Of IBD: UC
Type Of Surgery : Ileostomy
Comments:Enjoy your site---lots of info.
Tuesday, March 13th 2012 - 03:54:51 AM
Name: Ron
E-mail address: r.godyn@gmail.com
Country?: Australia
Type Of Surgery : Iliostmy
Comments:I am very new to this,my op was 1 week ago but i have gained confidence and knoledge reading all the personal stories and tips in these pages and i look forward to a happy and healthier future
Sunday, March 11th 2012 - 09:54:54 AM
Name: Marlaine Schneider
E-mail address: marlaineschneider@yahoo.ca
Country?: canada
Type Of IBD: ulcerative colitis
Comments:I see the surgeon on Weds. Mar.6/12 to talk about which procedure i will be having. GI says probably an ileostomy. I am very nervous about the surgery, but am excited to get my life back.
thank you for the uplifting website.
Monday, March 5th 2012 - 01:55:26 AM
Name: Danna
E-mail address: annasmom16@yahoo.com
Country?: usa
Type Of IBD: ulcerative colitis
Type Of Surgery : END ILESOSTOMY
Comments:Shaz, Thanks so much for putting your story out here. I just had my surgery 1/26/12 and Im still adjusting to life after it. I, like you, had suffered most all my life with UC and was diagnosed with Colon Cancer at age 29. The decision to have my colon removed was hard for me, due mostly, ashamedly, to vanity. Now 4 weeks post op, i can honestly say, it was the best decision I have ever made. I can eat most of what I want and go as I please without worry about the constant fear of my UC flaring up. Thank you again for your story. It has certainly given me lots of hope for a normal life now.
Thursday, March 1st 2012 - 05:33:58 AM
Name: PennythePearl
E-mail address: clj1310@hotmail.com
Country?: US
Type Of Surgery : Colostomy
Comments:My 85 year old mother is the ostomate. She has a colostomy. I have gone through the whole ordeal with her for the past 2 years that I feel almost like it happened to me but I know its nothing in comparison to her actually living with it. I've just been looking for answers and wanting to connect to those in the same situation because I am astounded at how little the medical community really does prepare the patient beforehand for what their life will be life and also the void of information afterwards. I stumbled on the name "Shaz" last year when I was obtaining free samples for her, but I had no idea all this was available too. I feel a kinship already. Cant wait for my account to be activated.
Thursday, March 1st 2012 - 04:47:57 AM
Name: Juanita Pridemore
E-mail address: jrpridemore@comcast.net
Country?: USA
Type Of Surgery : Permanent Ileostomy
Friday, February 24th 2012 - 06:31:37 AM
Name: Ray Coutts
E-mail address: r.coutts@sky.com
Country?: UK
Type Of Surgery : Urostomy
Comments:some good information provided for dealing with night bags, had my urostomy now for over two years, and in the beginning i struggled trying to find the right night bag for myself, and like most had a few wet beds. but you learn with time and information like you have provided makes it easier for patients that have just had urostomy surgery.
Wednesday, February 15th 2012 - 06:05:34 AM
Name: Beth Russel
E-mail address: cvp2editing2@comcast.net
Country?: USA
Comments:I am going to behaving surgery in 15 days for this, and it is great to find a page that describes it, with humor and information. Thank you!
Monday, February 13th 2012 - 06:06:37 AM
Name: nadine archbold
E-mail address: ngarchbold@gmail.com
Country?: usa
Type Of IBD: ulcerative colitis
Type Of Surgery : ilestomy
Comments:just looking fo supportr
Monday, February 6th 2012 - 11:44:28 AM
Name: Julie Walker
E-mail address: bluejewels73@yahoo.com.au
Country?: Australia
Type Of Surgery : ileostomy
Comments:I had emergency surgery a week ago and am now seeking what available resourses are out there. Yours was one of the first I found :)
Saturday, January 28th 2012 - 05:25:05 PM
Name: Ms. Jesica Irving
E-mail address: jessie90802@yahoo.com
Country?: usa
Type Of Surgery : colostomy
Monday, January 23rd 2012 - 11:14:36 AM
Name: tina m alderman
E-mail address: tinalderman@gmail.com
Homepage URL: http://nocolonandstillrollin.blogspot.com
Country?: United States
Type Of IBD: UC
Type Of Surgery : j pouch
Comments:11 yo girl with jpouch surgery five days ago. Now with ileostomy and reversal to happen in a couple of months. Thanks for having this page!
Sunday, January 15th 2012 - 09:36:16 PM
Name: Angie
E-mail address: angiedial@ymail.com
Homepage URL: http://yahoo.com
Country?: united states
Type Of IBD: chronic adhesions, bowel resection removal of sigmoid in 2000, now 3 weeks ago complete colectomy with ileostomy, hopefully reverse in 1 year, in the learning period, also have hypogammaglobulinemia, MS, hydronepherosis, coma 2006 DOA, Im a hot mess , need to be on mystery diagnosis's, just thank God Im ALIVE, & LIVING.......;)
Type Of Surgery : open colectomy, ileostomy same scar as yours, havent named my lil stoma yet,.....thinkin of "princess" or " noisey princess" lol
Comments:rann across your site lookin for a product to @ times when ileostomy gets pasty, to make it a lil easier to empty, im a newbie, 3 weeks post op, been up n down with things not sticking, leaking after losing lots of weight, got samples from about 9 companies, so far hollister new image 2 peice i like lots, have 1 peice's, im gonna try next, got some in that feel extremly comfy, i like the velcro, this has a pretty sturdy barette , not the cheapy looking ones,.....company is NU-HOPE,.........your page made me smile, & laugh, thanks i needed that........
Angie
from Houston, Texas
Saturday, January 7th 2012 - 11:18:26 AM
Name: Lee Dillon
E-mail address: elceedee@comcast.net
Country?: USA
Type Of IBD: Cancer
Type Of Surgery : Colostomy
Comments:Hi Shaz, I was a member of your page many years ago. I found your page this A.M. and thought I would get back in touch. Back then there was a man from Amsterdam by the name of, Micah, I think. His SO wrote that he had passed away. I was so saddened by that, I quit coming to your page. Well, I am back! I'll come here off and on and thank you for keeping your page going all this time!
Wednesday, January 4th 2012 - 09:02:59 PM
Name: Joseph
E-mail address: joseph@comcast.net
Homepage URL: http://verhel.pluto.ro/lansoprazole/sporanox.html
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Wednesday, January 4th 2012 - 02:45:30 AM
Name: Tatyana
E-mail address: tatyana.mail@list.ru
Homepage URL: http://www.blog.servitutis.ru
Country?: Russia
Comments:You are an inspiration and I wish you well.
Warmest regards.Sincerely Tatiana, Saint-Petersburg.
Monday, January 2nd 2012 - 10:14:35 PM
Name: jscousens@yahoo.com
E-mail address: jscousens@yahoo.com
Country?: Canada
Type Of IBD: Ileostomy
Comments:I had diverticulitis and had 20 cm removed .temporary ileostomy since feb 2 . Hoping for reversal.
Thursday, December 15th 2011 - 10:08:29 AM
Name: Fred Roberts
E-mail address: kokopelli@fastq.com
Country?: USA/Central Arizona
Type Of IBD: Ulcerative colitis
Type Of Surgery : Total colectomy
Comments:3/8/11 - Laparoscopic colectomy
3/18/11 - Surgical incision colectomy due to complications
28-day stay at Banner Good Samaritan Medical Center, Phoenix AZ
Physician - Dr. Eugene Kim
Monday, December 12th 2011 - 09:51:43 AM
Name: Pende
E-mail address: berta44@live.com.pt
Homepage URL: http://live.com
Country?: botswana
Comments:am 39yr old woman who never had a child before,am asking if it´s possible to get help.i have a fibromioma 8*7cm intramural posterio of the utrerus.and my both tubo are not functioning well because of the pressure from fibroids.please help i need to have a child:
Wednesday, December 7th 2011 - 01:56:09 PM
Name: Wendywoo74
E-mail address: wgwoodford@hotmail.com
Country?: Australia
Type Of IBD: Crohn's Disease
Type Of Surgery : Ileostomy
Comments:WOW!!! I am so glad I found this site. I am in NSW and from time to time have some questions i need answered but I also like to chat to other Ostomates. Thank You Shaz for the site
Tuesday, December 6th 2011 - 07:01:13 PM
Name: Patricia Marie Lewallen
E-mail address: ms_redd84@yahoo.com
Country?: United States
Type Of IBD: Familiar Polyposis
Type Of Surgery : J pouch, looped ileostomy followed by other surgeries which turned into a total rectal removal and anus which is non-reversable
Comments:Hi Shaz. My name is Marie i am srry if i didnt put the stuff in the rite areas. i have been through so many surgeries since May 01, 2008. i have three amazing kidz (2 daugthers and 1 son) ages 4, 5, and 9. I love your site. By me reading the comments that r posted by others i have gain some answers to questions that my family and friends try to answer. im lost for words cuz i have nerve posted anything about my ileostomy. Due to my ileostomy i have had to have it done twice within the same year, due to the fact of my stomy wasnt put out far enough, which caused me to have some of my orgins removed (which my husband had to say yes to). He stil tells me srry almost everyday. I always tell him that he had no choice cuz if he didnt i wouldnt died within months due to infection. I feel now that i have found your site i can try to get answers to my questions and find courage to talk about it more.
Saturday, December 3rd 2011 - 07:32:47 AM
Name: Lakshmy Subrahmanian
E-mail address: radottcr@gmail.com
Country?: India
Type Of Surgery : Ileostomy
Comments:Hi,
I am writing this for my mum who had an ileostomy in 1973.(She had ulcerative colitis). She is 91 yrs now and has been using bags till today.She worked as a teacher in English Literature in the University for 31 years. Now retired and enjoying her rest.May be she is the oldest person in India who had this surgery-I dont know.I would like to get help on her equipment/bags/flanges - the works. By the way I work in the merchant navy as a Chief Engineer and I love your attitude.
Luv
V.S.Ranganathan,Trichur. India
Monday, November 28th 2011 - 03:22:11 PM
Name: John Simmonds
E-mail address: jsmpsimmonds@gmail.com
Country?: Australia
Type Of IBD: Ulcerative Colitis
Type Of Surgery : Total Colectomy
Comments:Hi Shaz and readers, I visited this page years ago and now it is even better. I am a patient of many surgeries. I have had 3 Ileostomies and 2 J pouches and I am still in trouble, I just cannot help feeling dark from time to time but reading about all of you really helps to feel totaly not alone. I currently have a J pouch which could fail again, I have it dilated weekly as it has strictured and kinked over at an acute angle. I will probably end up back with the Ileostomy but at least I will have a life. I will view this page from time to time. Good luck to you all.
Friday, November 25th 2011 - 08:00:59 AM
Name: Tonya Gardner
E-mail address: kaiser0612@yahoo.com
Country?: USA
Type Of Surgery : Bowel Resection, Rectal Resection, Cecum Resection
Comments:Way to go, staying positive. I just had my ileostomy reversed 1 week ago because I couldn't live with, what I thought was the dirtiest, smelliest, most invasive thing that had ever happened to me. I was to the point that I was on the verge of needing therapy. I was living on anti-anxiety meds. One week later, I feel miserable. The diarrhea is constant, the gas is unbearably painful, and my butt is so sore that I cannot even wipe it. And I waited so long to wipe my a... Am I better off? I cannot honestly answer that question, but I do know that I am not positive, I am tired.
Thursday, November 24th 2011 - 09:00:20 AM
Name: Marie Taylor
E-mail address: marie_lana@hotmail.com
Country?: Australia
Comments:Hi Shaz, just a quick note to say I love your website - and thanks for sharing your story in such a refreshing and honest way. Cheers and take care, Marie xx
Wednesday, November 16th 2011 - 05:57:13 PM
Name: Chloe Moody
E-mail address: cmoody31685@yahoo.com
Country?: america
Type Of Surgery : colostomy
Comments:i love this site! even though i'm only twelve.
Thursday, November 10th 2011 - 09:43:39 AM
Name: Beth
E-mail address: fbs810@gmail.com
Country?: USA/Wisconsin
Type Of IBD: PSC/Liver Tr/Colon Cancer
Type Of Surgery : Ileostomy
Comments:Had a Shunt place on my first transplanted Liver because the Primary sclerosing cholangitis has distroyed the first liver I recieved 7 years ago. Now waiting for 2nd liver, however now I am 61, had the cancer 3 years ago and there are lots of first time people waiting that deserve a chance. So we will see. Thanks for having this forum. And you are absolutely right, Attitude is everything.
Wednesday, November 9th 2011 - 06:41:37 PM
Name: Marcia
E-mail address: Mome422@yahoo.com
Country?: Usa
Type Of IBD: Chrons, uc
Type Of Surgery : Ileostomy
Comments:Am interested in learning more about skincare around stoma also outer skin around wafer
Sunday, November 6th 2011 - 11:50:34 AM
Name: Brenda Rueckert
E-mail address: brenda.rueckert@milaca.k12.mn.us
Country?: USA
Type Of IBD: UC/Crohn's
Type Of Surgery : colectomy
Comments:Thanks for sharing. I do have a couple of questions. What type of bag do you use? How do you get rid of granulomas?
Thursday, November 3rd 2011 - 06:39:42 AM
Name: Doody
E-mail address: tonlyn65@yahoo.com.au
Country?: Australia
Type Of IBD: Crohn's
Type Of Surgery : Ileostomy
Comments:Enjoyed the visit Shaz nice website keep up the good work of enpowering us ostomates...
Wednesday, November 2nd 2011 - 08:26:28 AM
Name: shirley
E-mail address: waif@vodafone.co.nz
Country?: new zealand
Type Of IBD: ulcerative colitis
Type Of Surgery : ileostomy
Comments:had my surgery on August 11 this year,have had a positive attitude since the op...no more looking for the nearest toilet basically i have my life back, due to have J-pouch surgery early next year but not sure what to do....can anybody tell me if you still have the urgency of needing the toilet as in Colitis.
Thursday, October 27th 2011 - 05:09:27 PM
Name: Laura
E-mail address: Pjh22@comcast.net
Country?: America
Type Of IBD: Uc
Type Of Surgery : Ileostomy
Comments:I have a great surgeon in Boston.I had my colin taken. 1Wednesday october19 2011.I am8 years old and suffered for almoist 2 years. I am leaving the hospital today.I feel bad for people who suffer.
Wednesday, October 26th 2011 - 09:32:44 PM
Name: Laura
E-mail address: Pjh22@comcast.net
Country?: America
Type Of IBD: Uc
Type Of Surgery : Ileostomy
Comments:I have a great surgeon in Boston.I had my colin taken. 1Wednesday october19 2011.I am8 years old and suffered for almoist 2 years. I am leaving the hospital today.I feel bad for people who suffer.
Wednesday, October 26th 2011 - 09:31:42 PM
Name: santana
E-mail address: babybluebabyhazal88@gmail.com
Country?: USA
Comments:i have the same thing you have. i have had so many surgeries since i was like 16 years old. if you would like to get in contact with me, you can email me at babybluebabyhazal88@gmail.com i'm only 22 years old.
Thursday, October 20th 2011 - 07:29:04 AM
Name: Jodi Fenstermaker
E-mail address: jlfenstermaker2008@yahoo.com
Country?: United States
Type Of Surgery : illeostomy
Comments:I am 4 months out and still sometimes not really sure what I am doing. I do have a support group I attend but we only meet every couple of months. I knew nothing about any of this before the surgery. I was sick for about 6 months before the surgery and it really all happened very quickly. I am doing better now, but sometimes it is still hard.
Monday, October 17th 2011 - 04:10:38 AM
Name: julia galluzzo
E-mail address: gfrenzy2@prodigy.net
Country?: usa
Type Of Surgery : colon resection
Comments:so happy to find your page. I just received my colostomy 2 weeks ago and I feel so isolated. I have a very loving and supportive family, but nobody can understand if they have not gone through it themselves. This is supposed to be "temporary" but will see what happens... thanks
Wednesday, October 5th 2011 - 03:16:58 AM
Name: Mirlin Dobson
E-mail address: mirlindobson2@gmail.com
Country?: USA-Indiana
Type Of IBD: colitis
Type Of Surgery : Ileostomy
Comments:Shaz, thank you so much for this site! It showed me I am "normal" and the help you and everyone on here have given me is beyond words. Thank you
Monday, October 3rd 2011 - 05:11:37 AM
Name: elaine carwood
E-mail address: ecarwood@yahoo.com
Homepage URL: http://haz, http://
Country?: ireland
Type Of IBD: ulcerative colitus
Type Of Surgery : permanent ileostomy
Comments:Hi Shaz,

I had the same operation as you but I was 35 when I underwent what i now call loosing a bad friend and gaining Sarah Stoma. Like you i go swimming, cycling, wear mostly what i like, and am the healthiest i have been in years. It started for me when i was 17 and left school and i spent most of my early years avoiding going to places unless i knew there was a toilet there or on the way. Now i am very grateful to my doctors and family and mostly to Sarah Stoma and can wear a big smile on my face again.
Sunday, October 2nd 2011 - 01:06:59 AM
Name: Philip Defriend
E-mail address: phillip.defriend@sky.com
Country?: England
Type Of IBD: U.C
Type Of Surgery : Ileostomy
Comments:Hey there,what a positive outlook. I will try that myself. I have only just had my surgery (6weeks ago) and im back to work and getting on with life. I have a wife,step-son and 7 dogs. I call my stoma Stewie,just like from Family Guy.Do you think i should stay with Stewie or go through they "risky" J-Pouch? Look forward to hearing from you if you have the time. Philip
Thursday, September 29th 2011 - 05:41:23 AM
Name: jon esler
E-mail address: mjesler@hotmail.com
Country?: oz
Type Of IBD: ileostomy
Type Of Surgery : not sure
Comments:hi Shaz,came down with chronic ulcerated cholitas on 16/04/11 didn,t know what was happening,neither did my doctor,no history,after two weeks of getting sicker went to hospital and diagnosed by the specialist,he tried everything to no avail so flew me to st vincents melb.the team there tried keyhole removal,no good bowel perforated,huge problem but i,m ok now28/09/11.and just been told i can have a j pouch so its all good ,i think,time will tell.so catch you later.
Thursday, September 29th 2011 - 02:44:32 AM
Name: belinda
E-mail address: ballisticbelinda@yahoo.co.uk
Country?: uk
Type Of IBD: colostomy
Type Of Surgery : emergency Hartmans Proceedure
Comments:Having had an emergency Hartmans Proceedure in June, I am hoping to be reversed in November but would like to thank you all, for being there!
Wednesday, September 28th 2011 - 04:57:32 PM
Name: Sue Rafuse
E-mail address: wsbam@eastlink.ca
Country?: Canada
Type Of Surgery : Urostomy
Comments:Enjoyed reading your web page..Some amazing stories... I however didn't see too many with 50+ females who have had radical cystectomy... I have in place an ileal conduit.. Last March I was diagnosed with a large tumour in the bladder... had chemo and then the surgery in July 2010.. So far reports have been ok... On the big picture I am so glad to be alive but on the smaller picture it is scary and by times a lonely road even though I am surrounded by family and friends.. I work for Doctor in a small town called Liverpool in Nova Scotia Canada and the population is quite small so finding someone else with this condition has been hard but there is plenty of other cancers unfortunately here in this town and everywhere... Thanks for the great site.
Tuesday, September 27th 2011 - 11:17:21 PM
Name: susan
E-mail address: susan_salomon@hotmail.com
Country?: USA
Type Of Surgery : Ileostomy reversal
Comments:Hi Shaz, My name is Susan I'm 47 years old and a mother of 3 girls 25,15,& 13. I had a colonoscopy in March 2011 and my gastro Doc found a tubularvillonosa in my rectum & she sent me to a surgeon & the surgeon confirmed I had a tumor 7cm around in my rectum which was removed in June 2011,(left with j-pouch/ileostomy) It was a success & they found no cancer!! Sept 9th I went in for a leak check of my bowls,everything went well & I can go and have my reversal surgery which is scheduled for Oct 10th 2011.

I want to thank you Shaz for sharing your story and having such a wonderful web page, it's helped me feel better about my upcoming reversal surgery & keeping up all the good vibes & thoughts along with the power of prayer. God Bless!!

Very Truly yours,
Susan
Tuesday, September 27th 2011 - 11:16:39 PM
Name: Colin Warhurst
E-mail address: info@colinwarhurst.co.uk
Homepage URL: http://www.colinwarhurst.co.uk
Comments:I am a knobhead and I think I'm Liam Gallagher, what should I do?
Monday, September 26th 2011 - 08:51:21 PM
Name: Guy
E-mail address: teetsmel@gmail.com
Country?: U.S.A.
Type Of IBD: Chrohn's/ulcerative colitis
Type Of Surgery : total colectomy
Comments: Hello Shaz.I'm Guy and I have the monster.This is my first effort to communicate with fellow ostomates at a website of this nature.We'll see how it flies.There is much more to me but for now,I just wanted to say greetings.Thank you.
Monday, September 26th 2011 - 10:21:26 AM
Name: Samantha
E-mail address: samanthaleadbetter@yahoo.com
Country?: USA
Type Of IBD: Crohns and U.C.
Type Of Surgery : Proctocolectomy/Ileosomy
Comments:Hello Shaz, I had my surgery on September 2, 2011. I'm 41yrs of age and I am still trying to adjust to this new life. I live in Livermore, Maine I have a wonderful husband of 12 yrs. We have 2 adult children, 3 dogs and a cat. I guess that's about it for now. Thank you for sharing your story.
Wednesday, September 21st 2011 - 03:54:08 AM
Name: Virginia Larsen
E-mail address: Virginialarsen@me.com
Country?: US
Type Of Surgery : Urostomy
Comments:Shaz,
Glad to know you have done so well for so long. I am a new urostomate (April 5, 2011) and absolutely loved Australia when we visited in 1998. We couldn't get to the west coast, but did travel to Tasmania.
I am gaining weight and wanted to know how your weight gain and loss (good for you!) affected your stoma. Did it retract, and did you have leakage problems?
Your ostomy page is very nice and got me to thinking of setting one up.
Take care,
Virginia Larsen
Saturday, September 17th 2011 - 05:22:18 PM
Name: Heather Donaldson
E-mail address: dononswan@bigpond.com
Country?: aus
Type Of IBD: crohn's
Type Of Surgery : nothing major yet!!
Comments:Hi Shaz.... I can't remember if I've been here before and left a note... but here's another one anyway...

Great to see this page getting lots of response... and you are looking good girl.... keep up that dieting... I'm very jealous you are losing all that excess and I seem to be finding it... do you want to come and take some back from me??? he he... anyway see ya on facebook or the forum... or in person one day... soon??
Wednesday, September 7th 2011 - 11:11:36 AM
Name: Susan Bailey
E-mail address: svbmedrec@gmail.com
Country?: USA
Comments:My aunt, who is 91 11/12 has had an ileostomy for fifty (50!) years. She has required only one hospitalization and one ER visit for dehydration issues in all that time. Now she is in renal failure and been given a very fluid restricted diet, and is starting outpatient dialysis. My thoughts are that all those years of fluids leaving thru her stoma kept the strain off her kidneys, and delayed her kidney failure for decades. Does this make sense to you? I'm thinking maybe she needs to keep up with her fluids and do intend to talk with the nephrologist. She is alert and making her own decisions. Thank you
Tuesday, September 6th 2011 - 03:06:38 AM
Name: dr.t.g.balachandar
E-mail address: tg_bala@yahoo.com
Homepage URL: http://www.gastroclinic.net
Country?: INDIA
Comments:Hi,
i am a gastrointestinal surgeon from india.i am impressed with your courage and attitude.i wish to show my ostomates about your perseverance, determination and about your better part of life.
thanks, regards, dr.t.g.balachandar.
Monday, August 29th 2011 - 05:00:45 PM
Name: Sharon Ellison
E-mail address: ellsn4957@yahoo.com
Country?: USA
Type Of Surgery : colostomy
Monday, August 29th 2011 - 11:20:57 AM
Name: evelyn
E-mail address: evelyn_mills2001@sbcglobal.net
Country?: USA
Type Of IBD: ilostomy
Type Of Surgery : ilostomy
Comments:I have had a ostomy for 51 years. I am having trouble getting drugs to work on me.
Need your help.
Wednesday, August 24th 2011 - 05:56:58 AM
Name: Rotha Cook
E-mail address: rothacook@att.net
Country?: U.S.A.
Type Of IBD: Cancer of Rectum
Type Of Surgery : Permanet Colostomy
Comments:I had this surgery on Dec.2ed 2009. I am now cancer free, w/ a pouch hanging from my abdomen. I am still adjusting as I live alone w/ y pet cats. I still go and have blood work and follow-ups w/ my Dr's. They tell me that my blood is perfect and NO MORE CANCER !!! I praise GOD for my healing and for HIS servants, the Dr's who helped me, hospital, nurses, cancer center, etc. I had MEGA doeses of chemo and radiation . I am 72 yrs old, and have two grown children....Thanks for your site. I bought THE OSTOMY BOOK from online, one of the BEST that I have read so far, and I subcribe to THE PHONIX, for all ostomates... Wonderful info in all of them....my best to all out there ! I dont know anyone, personally who has this and had never heard of it before I got it.I learn from reading and trial and error ! For me, the ODER is the worst part....
Friday, August 19th 2011 - 11:06:18 PM
Name: Alison kelley
E-mail address: alisonkelley32@gmail.com
Country?: USA
Type Of IBD: none
Type Of Surgery : none
Comments:I am looking into taking the plunge. I just need some support. I am concerned about life afterwards since I am a single woman and lonely now as it is. I just don't want to be alone for the rest of my life.
Thursday, August 18th 2011 - 12:21:05 AM
Name: Mary-Anne Yost
E-mail address: hobartwolf@hotmail.com
Country?: Australia
Type Of Surgery : Ileostomy and urostomy
Saturday, August 13th 2011 - 02:29:05 PM
Name: Mike
E-mail address: mbfree1@bigpond.com
Type Of IBD: Totalcolorectomy
Type Of Surgery : Ileostomy
Comments:I Posted an inquiry using an INCORRECT EMAIL ADDRESS I put mbfee1 instead of mbfree1@bigpond.com Sorry MIKE
Thursday, August 11th 2011 - 02:05:03 PM
Name: Tina Gargano
E-mail address: tina.gargano@gmail.com
Country?: USA
Type Of IBD: Ulcerative Colitis
Type Of Surgery : Complete Colectomy
Comments:I love your attitude Shaz! You are a great inspiration!!
Wednesday, August 10th 2011 - 06:50:07 AM
Name: MIKE LAWRENCE
E-mail address: mikelawrence1@hotmail.co.uk
Country?: FRANCE
Type Of IBD: U/C PLUS C/D
Type Of Surgery : PERM STOMA
Comments:HAD STOMA 5/8/2001 LOTS PROBLEMS SINCE WILL SEND SOME PICS.
Tuesday, August 9th 2011 - 03:49:30 AM
Name: Nina Nikolaou
E-mail address: nikolaou_nina@hotmail.com
Country?: Australia
Type Of IBD: Ulcerative Colitis
Type Of Surgery : Permanent ileostomy
Comments:Got it again as reversal didn't work. Have had it for a month so still adjusting. At least able to sleep at night!
Monday, August 8th 2011 - 03:22:32 PM
Name: Meghan
E-mail address: mjswander@gmail.com
Country?: USA/Ohio
Type Of IBD: Ulcerative Colitis
Type Of Surgery : Subtotal Colectomy w/ Ileostomy
Comments:Glad I found your website as I am a new ostomate. Will be sure to return for updates. Thanks for sharing your story.
Sunday, August 7th 2011 - 02:50:05 PM
Name: Manly Mike
E-mail address: mbfee1@bigpond.com
Country?: Australia
Type Of IBD: Ileostomy
Type Of Surgery : Total Colo Rectomy
Comments:Hi Shaz I would like to ask anyone out there if they have any PERFORM Sachets they no longer need, I have extra PERFORM ordered each month, due to a DATE ERROR I missed out on a Months supply and Cannot manage.
I will pay postage for here in Australia.
Hoping to hear from anyone who has an Alternative to PERFORM also, Since ILEO GEL was discontinued PERFORM is NOT as good, I admit I had to GRIND ILEO GEL in the COFFEE GRINDER to Powder form for it to work successfully.
In the USA they have it in Powder form, guess the bureaucrat who decided PERFORM was suitable was not an OSTOMATE
Looking forward to anyones help MIKE
Sunday, August 7th 2011 - 12:14:21 PM
Name: MJ
Country?: USA
Type Of IBD: UC
Type Of Surgery : ileostomy
Comments:Caregiver of my husband who is a 2 year stroke survivor. Had UC for 15 years and finally had an ileostomy in May 2011. He is paralyzed on the left so I will be taking care of his stoma, bags, the whole 9 yards...YIKES!! It's gotta be better than running to the bathroom every 10 minutes! lol

Glad I found this site, there's a lot of useful information!

MJ
Sunday, August 7th 2011 - 05:25:34 AM
Name: Irene Rogers
E-mail address: irene_8@optusnet.com.au
Thursday, August 4th 2011 - 02:55:48 PM
Name: John Chamberlayne
E-mail address: jchamberlayne@cox.net
Country?: USA - Virginia
Type Of Surgery : Colostomy
Comments:Thanks for the information. I'm going to be living with this for a long time. Irrigation looks like the way to go.
Monday, August 1st 2011 - 07:57:18 AM
Name: Maurie
E-mail address: mdregan@bigpond.com
Country?: Australia
Type Of IBD: Diverticular disease
Type Of Surgery : Loop Colostomy
Comments:G'day,

Fantastic site ! I had suffered from Diverticulitis since 1999 having bouts in hospital on and off over the years before Surgeon finally decided to remove part of my large bowel. I had the op in June 06, it took a long time to get used to having my Stoma. Hated it at first ! "Don't we all ?"
Nothing like a bag blow out at 2 am in the morning while asleep Lol ! I had my stoma for 5 yrs until May 10 of this year. I was finally able to say goodbye to my little red buddy on my stomach and had the reversal op. So far things are going good, couldn't have hoped for a better outcome. Cheers, keep up the good work !
Thursday, July 21st 2011 - 12:47:44 AM
Name: Carol Jones
E-mail address: flmamabear@aol.com
Country?: USA
Type Of Surgery : Ileostomy
Comments:Emergency surgery December, 2010, as a result of a ruptured colon during a colonscopy. May 2011 went for reversal but was unable to complete due to further complications. I had to have a portion of my colon removed due to blockage and sever diverticulitis. I am scheduled for "take down" surgery to close my ileostomy August 16, 2011. I certainly hope all goes well and the completion can be done. This has been very rough for me and my family. And, I lost my belly button during all the surgeries!
Saturday, July 9th 2011 - 10:56:27 AM
Name: Kathryn Redgrave
E-mail address: kat_lahnie@live.com
Country?: Australia
Type Of IBD: Crohns Disease
Type Of Surgery : Illeostomy
Comments:Thank you so very much for sharing your story. I had the surgery only 3 months ago after suffering from Crohns for 10 years. Takes alot of adjusting but im getting there. Thanks again its pages like yours that make me realise i am not alone through all this..

Kathryn :)
Friday, July 8th 2011 - 07:38:05 AM
Name: Guillaume
E-mail address: guipur@hotmail.com
Country?: Québec
Type Of IBD: ulcerative colitis
Comments:Thanks for the site! I visit because i'm gonna have the second operation (j pouch) in 3 weeks. I had an ileostomy a year ago and I was out of the hospital after 2 days :P The use of laparoscopy probably helped a lot and, the fact, that I hate hospitals.
Thursday, July 7th 2011 - 11:42:48 AM
Name: SCOTT GREEN
E-mail address: qenzore11@live.com
Country?: Australia
Type Of Surgery : colostomy
Comments:Pisces, 1972, because of my back I have had a bag for 39 years, met heaps butt.. mostly elderly. I am still going fine and hope you and all your/our new friends are doing the same.
Pisces"dreamer,artist,etc... all so true"
Qenzore
Sunday, July 3rd 2011 - 07:42:56 AM
Name: Bob Hewson
E-mail address: bob.hewson@yahoo.com
Country?: Philippines
Type Of IBD: Urostomy
Type Of Surgery : Cancerous bladder removal
Comments:Hi,

Good to see you have a positive attitude and have put up this site to help others. I am receiving and supplying donated appliances from Australia to those here who can not afford to purchase them, this is just about every Filipino here.

Bob
Friday, July 1st 2011 - 08:57:52 AM
Name: Mark Parry
E-mail address: ostomy@mparry.co.cc
Country?: Australia
Type Of IBD: ulsurative Colitus
Type Of Surgery : Iliostomy
Comments:Thank you for a very informative site

Mark Parry
Wednesday, June 29th 2011 - 10:29:13 AM
Name: Valerie Sanders
E-mail address: sanders214@cfl.rr.com
Country?: USA
Type Of IBD: Crohns
Type Of Surgery : illeostomy/proctectomy
Comments:Very very helpful site from what i have seen so far. Thank you for starting it. I have had my ostomy since 1983 but still need to look things up at times
Wednesday, June 22nd 2011 - 11:33:35 AM
Name: camille
E-mail address: napili407@gmail.com
Country?: USA NYC
Type Of Surgery : dad had colostomy at 83
Comments:he us in hospital now with an obstruction given ng tube to suction his stomach of fluid/build up. have u ever heard of this? he was constipated few days ago
Wednesday, June 22nd 2011 - 09:01:28 AM
Name: Gee
E-mail address: g.elle1950@hotmail.co.uk
Country?: uk
Type Of IBD: UC
Type Of Surgery : Ileostomy
Comments:I had my ileo., a day after my 21st birthday due to U.C. I have lived with it for 40 yrs this July. It has been up and down for most of those yrs, various problems, ie., stoma refashion twice, then a hernia five yrs ago where I am left with a tiny, tiny stoma and a retractable one. So I had to change to a convex for this reason. Does cause me to leak from time to time. I am married and have a grown married child with two grand children.
Saturday, June 18th 2011 - 07:34:50 AM
Name: ricko
E-mail address: ricko@gmx.net
Homepage URL: http://09005-telefonsex.com
Country?: -
Type Of IBD: -
Type Of Surgery : -
Comments:Hi

really nice site. I like the style of it.

CU
Friday, June 17th 2011 - 04:45:04 PM
Name: Jonathan
E-mail address: ak977@ncf.ca
Country?: Canada
Comments:Hi Shaz:

It is now 9 days after my colon (cancer) surgury and temporary ileostomy. I can across your site in one of the magazines my ET nurse gave me on the way out of the hospital. This is an icky situation, but then so is wiping one's ass. Just a different icky.

I am doing well and will browse your site further.

Regards,

Jonathan
Thursday, June 16th 2011 - 01:44:58 AM
Name: Michael
E-mail address: michael@sms.de
Homepage URL: http://telefon-ficken.com
Country?: Hamburg
Comments:Hi

really nice page here, cool layout.

Greets
Tuesday, June 14th 2011 - 09:50:51 PM
Name: Lauren
E-mail address: lmcd868@Google.vcom
Country?: usa
Type Of IBD: u.colits
Type Of Surgery : perf.and hernias
Comments:Had. Colostomy. 8yrs ago
.more hernia surgeries. Now should I have. Ileostomy?
Tuesday, June 14th 2011 - 05:11:40 AM
Name: Patrick Doyle
E-mail address: chilers1@gmail.com
Country?: Ireland
Type Of IBD: crohns colitis
Type Of Surgery : emergency ileostomy31/12/07.Total proctectomy 04/04/11
Comments:received top treatment under prof.O'Connel and team in St.vincents university hospital in Dublin.Suport of family and friends realy helped in recovery. Feeling good now.
Thursday, June 9th 2011 - 06:44:06 PM
Name: trevor burson
E-mail address: trevburson@gmail.com
Country?: ireland
Type Of IBD: uc
Type Of Surgery : pan colectomy
Comments:Hi Shaz, Ive just moved to melbourne from ireland 6 weeks ago and im still waiting for the sun to shine!!. had my op 9 years ago in ireland and had no support or people to talk to. long story short things are great, got a great job, starting a new life in aus and looking forward to some sunshine.well done on the blog, and keep up the good work..trevor
Thursday, June 2nd 2011 - 07:41:22 PM
Name: Pamela
E-mail address: pammy@netins.net
Country?: USA
Comments:I have trouble with mine blowing out and it gets all over me That is hard to deal with sometimes.
Wednesday, June 1st 2011 - 11:49:25 PM
Name: Kathy
E-mail address: klutt7358@yahoo.com
Country?: United States
Type Of Surgery : iliostomy
Wednesday, June 1st 2011 - 01:43:27 PM
Name: Ron A M Tune
E-mail address: ronamtune@live.co.uk
Country?: South Wales UK
Type Of Surgery : Ileostomy, total colectomy, removal of rectum and anus
Comments:1991 i had symptons, initially treated for IBS, various meds were prescribed, eventually diagnosed with UC, operation 10th June 1996, Colin my stoma made his debut, 1999 rectum & anus removed, tbh without the op things could've bn so much worse, Colin needs Me and i need Colin, my Wife/Soulmate is my rock, and to my Daughter and Son, thanx Guys ur both kool. Online support like this site is priceless, Thankyou.
Sunday, May 29th 2011 - 10:06:44 PM
Name: Donna Lantaigne
E-mail address: donnalantaigne@aol.com
Country?: USA
Type Of IBD: ?
Type Of Surgery : Ileostomy / Suprapubiccatheter
Comments:Hi Shaz's, I'm new to all of this I had my surgery March 23,2011. I agree with you on it's all about attidude and adjustments, My problem is I love swimming and relaxing baths but I am not sure if I can stay in water for awhile without the pouch falling off.I am a seven time cancer survivor.....I named my ostomy "Illy" and my catheter "Pubie" gotta have some fun ! Just to let you know I'm from Northwood N.H.
Saturday, May 28th 2011 - 08:46:06 PM
Name: Cynthia
E-mail address: gully52@yahoo.com
Country?: Canada
Type Of IBD: Ulcerative Colitis
Type Of Surgery : ileostomy
Comments:I visited your site once a long time ago, then forgot until someone reminded me, so I'm going to try to visit here more often.
Cynthia
Thursday, May 26th 2011 - 03:56:24 AM
Name: Kathy
E-mail address: klutt7358@yahoo.com
Homepage URL: http://www.yahoo.com
Country?: United States
Type Of Surgery : iliostomy
Comments:Lost over 100 pounds due to diverticulitis. Since my sugery I have gained all that back and more and cannot seem to take any weight off....getting very frustrated. I walk and the only think that accomplishes is I nreak the seal on my bag........
Sunday, May 22nd 2011 - 12:31:49 PM
Name: Anthea
E-mail address: antheagrace@yahoo.com.au
Country?: Australia
Type Of IBD: Stoma, Ostomy
Type Of Surgery : Removal SCC, anal tumour. bowel resection and gynae reconstruction
Comments:Hi Everyone,I have just found this site.It is four years since my surgery and am going strong! Shaz, thankyou for this site....a great idea! Good luck all..All the best....
Monday, May 16th 2011 - 09:46:57 AM
Name: Hunter
E-mail address: hunter@rogers.com
Homepage URL: http://audio.ya.com/javibcnya/tadalafil/tadalafil-sellers.html
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Wednesday, May 11th 2011 - 02:25:49 PM
Name: JERRYTALBERT
E-mail address: JERRYTALBERT29@AOL.COM
Homepage URL: http://AOL
Country?: USA
Type Of Surgery : UROTOMY
Friday, April 29th 2011 - 01:51:05 AM
Name: Timmy Gwinn
E-mail address: tim10768@att.net
Country?: United States
Type Of IBD: Crohns
Type Of Surgery : Illeostomy
Sunday, April 24th 2011 - 07:29:41 AM
Name: LINDA DARNER
E-mail address: lindadarner69@cox.net
Country?: USA
Type Of IBD: Crohn's Disease
Type Of Surgery : ileostomy with short bowel
Comments:Hi Shaz, this is great! what a wonderful outlet for those who are needing an ostomy. Last week this old body had its 71 birthday (although I'm only 40 LOL). It's battled Crohn's since it was 12 years old. I know how fearful having to have an ostomy is. Believe me, I always said I'd die first. But, after several bowel resections, a colostomy,and finally an ileostomy with only a little bit of small intestine left, this body is still here and still going strong. Shaz, you look great!
Saturday, April 23rd 2011 - 03:04:01 AM
Name: Shane Eden
E-mail address: shanesmusic@msn.com
Homepage URL: http://www.myspace.com/worldtruthtournow
Country?: united States of America
Type Of Surgery : colon cancer surgery
Comments:Hi again, Sharon: I'm such a klutz! I wrote the wrong URL in my first post. The correct one is www.myspace.com/worldtruthtournow. I'm a musician who is trying to save our planet/world by sharing Truth. That's why I love you/your page so much, because you're a sharegiver, too. God Bless & keep you, and happy "burps" 2 U! Shane XO
Thursday, April 21st 2011 - 10:15:30 AM
Name: Shane Eden
E-mail address: shanesmusic@msn.com
Homepage URL: http://worldtruthtournow.com
Country?: united States of America
Type Of Surgery : colon cancer surgery
Comments:Hi Sharon: Love your page & Love You. I'm brand new to my bag and looking fwd to talking w/you. God Bless you and Happy Life!!! Shane XO
Thursday, April 21st 2011 - 09:51:02 AM
Name: Emma
E-mail address: emma@prodigy.net
Homepage URL: http://yhsfnhs.001webs.com/concerta/concerta-review.html
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Wednesday, April 6th 2011 - 11:24:19 AM
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