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| Name: | Ms. Hadley Ravencroft |
| E-mail address: | haddles57@gmail.com |
| Country?: | USA |
| Type Of IBD: | IBS, Neurogenic Bladder |
| Type Of Surgery : | Urostomy |
| Comments: | Hello,
Thank you, Shaz, for your website. I have many disabilities, including Cerebral Palsy and Fibromyalgia, and should be undergoing Ileal Conduit surgery this summer. Reading what everyone contributes is invaluable. Thank you! |
| Name: | Stanley Johnson |
| E-mail address: | sjohnson1@indy.rr.com |
| Country?: | United States |
| Comments: | This is the best thing I've found since they invented "toilet paper" (of course I don't have a use for toilet paper any more)! I've had a colostomy about three years due to a fistula in my colon. It was supposed to be temporary but after that surgery I began passing urine from my rectum whenever I urinated. After numerous exploratory surgeries, last October the doctors remover my bladder, closed my anus (making my colostomy permanent), and added my urostomy. I tolerated the colostomy thinking it was temporary but when I woke up from the last major operation last October minus my bladder and a new urostomy on the right side of my tummy it turned my world upside down. Just from reading your first page I've learned two things: my attitude sucks, and I'm naming my ostomies PooPoo and PeePee :) |
| Name: | charllene |
| E-mail address: | cfrank107@yahoo.com |
| Country?: | us |
| Type Of IBD: | uc |
| Type Of Surgery : | ileostomy |
| Name: | Marc |
| E-mail address: | marc@prodigy.net |
| Homepage URL: | http://squibb.canadianwebs.com/lipitor/side-effects.html |
| Comments: | Our partners : <a rel="dofollow" href="http://merza.indiegroup.com/baclofen/cerebral-palsy.html">cerebral palsy</a> is about cerebral palsy... <a rel="dofollow" href="http://16aprill07.webs.com/imodium/how-to-take-imodium.html">how to take imodium</a> is about how to take imodium... Great site, I am surfing the web and well this helped me a lot on my query! Haven't had much luck finding such a good info! GREAT JOB! Visit our site and have fun! |
| Name: | Nancy Barney |
| E-mail address: | nbarney53@yahoo.com |
| Country?: | United States |
| Type Of IBD: | Crohns |
| Type Of Surgery : | Ileoostomy |
| Comments: | Hi Shaz love your page ! After 45 years yep you read right ! with Crohns I'm giving up my colon an rectum end of next month
Had Crohns since age 14 am now 59 take care peace Nancy Barney St Louis Missouri USA |
| Name: | Gale |
| E-mail address: | galerummer@yahoo.com |
| Country?: | USA |
| Type Of IBD: | ulcerative colitis |
| Type Of Surgery : | iliostomy |
| Name: | Renee |
| E-mail address: | ms_treny@msn.com |
| Country?: | USA |
| Type Of Surgery : | ileostomy |
| Comments: | I had my ileostomate for 7 yrs.(it's permanent)It's nice to know I'm not alone. May God Bless You. |
| Name: | Heather Hopkins |
| E-mail address: | heather_gem@hotmail.com |
| Country?: | UK but live in Spain |
| Type Of IBD: | Crohns |
| Type Of Surgery : | ileostomy |
| Comments: | Great site!! |
| Name: | Judy English |
| E-mail address: | judyenglish40@hotmail.com |
| Country?: | Australia |
| Comments: | I started with a temporary ileostomy but had to have a permanent colostomy and a urostomy as my cancer ate into my bladder. My first colostomy was in October 2011 but due to complications (abcess) and another op to make colostomy permanent I spent nearly 6 months in hospital. Have been out for just over a year and apart from having a very small stoma which has to be stretched every few months I have good health. I have had the usual troubles with bags but manage to get through them. |
| Name: | Ginny |
| E-mail address: | Imapainter2@hotmail.com |
| Country?: | US |
| Type Of Surgery : | Ileostomy |
| Comments: | My husband, Alan is the ostomate in our house and we have not named his stoma...yet. I think it's kinda cute, actually. I look forward to reading some helpful ideas and stories to be able to support him better. We welcomed his stomps into our lives back in Nov. 2012. |
| Name: | Julie |
| E-mail address: | jewelsnkaden@yahoo.com |
| Country?: | United States |
| Type Of IBD: | Ulcerative Colitis |
| Type Of Surgery : | Ileostomy |
| Comments: | I am a lot like you, in fact it is weird how close are stories are. I am currently 35 years old but my attitude stinks I know this, but it seems I can't handle it any more. I wake up every morning praying that things were different. I have other health problems too which does not help the sitsuation. I am on disability can't work due to my ileostomy. I wake up every morning with my bag busted and sleeping in my own poop. My bag busts when out in public. I have tried every product on the market none seem to work. I am so lonely because no one gets it. I even have met other people who have one and they don't have half the problems as I do. If things do not improve soon I am scared what I might do. I don't date and its hard to find someone to spend my life with unless I can date. I wish you lived closer or even in the same country. |
| Name: | Dawn Merritt |
| E-mail address: | dmerritt3@rochester.rr.com |
| Country?: | USA |
| Type Of IBD: | UC |
| Type Of Surgery : | colectomy |
| Comments: | I was wondering if you know how many ostomates there are globally? I've been searching for a while now and I just cannot find any data on the percentage of them. I'd love to know how many of us are permanent, and how many temporary's are done each year. Many thanks for any help you can extend!
Kind Regards, Dawn Merritt Ileostomate, April 2011 |
| Name: | Angela |
| E-mail address: | gajekelley@gmail.com |
| Country?: | USA |
| Type Of IBD: | husband has crohns |
| Type Of Surgery : | ileostomy/colectomy |
| Comments: | dh just had his surgery january 9. looking around at various pages, wanting to help him find people to talk to. i enjoyed reading your page! |
| Name: | Jason McIntosh |
| E-mail address: | info@awestomy.com |
| Homepage URL: | http://www.awestomy.com |
| Country?: | USA |
| Type Of IBD: | Crohn's Disease |
| Type Of Surgery : | Colostomy |
| Comments: | Hey Shaz,
I'm interested in getting my ostomy undergarment company on your products page. Would it be possible to work together to get this done? Thanks so much, Jason McIntosh Awestomy |
| Name: | Jasmine |
| E-mail address: | jaszej12@gmail.com |
| Country?: | USA |
| Type Of IBD: | Crohns Disease |
| Type Of Surgery : | Permanent Ileostomy |
| Comments: | Hi! My name is Jasmine better known as J. I am 23 years old and I have had a pouch since the age of 15. I was first diagnosed with UC but after developing a fistula it was later changed to Crohns. I have had over 30 surgeries (my last one was just a few days ago). I am so glad to have found your site and read other people˚s inspirational stories. Its so hard to deal with something when you feel you are alone but its so good to know there are other people understand my challenges and triumphs. Thanks so much for creating this site. God Bless! |
| Name: | linda |
| E-mail address: | linda2nicholson@yahoo.co.uk |
| Country?: | scotland |
| Type Of IBD: | ulcerative colitis |
| Type Of Surgery : | ileostomy formed in 2004 then proctectomy in 2010 |
| Comments: | Hi Shaz, You're so right about our attitude to life and others .. it is up to us.. We can get up and live or sit and feel sorry for ourselves.. its our choice and it will play the biggest part in the kind of life we have.. its not always easy to stay positive, especially after this type of surgery, however, if we look at life on a bigger scale we will always find people worse off than ourselves.. I've not been feeling that positive lately and have never really tapped into these types of internet sites before.. but really needed a reminder that I'm not alone.. Thanks. glad you were there.. Lx |
| Name: | SUE HAILMAN |
| E-mail address: | loganlee@bellsouth.net |
| Country?: | United States |
| Type Of Surgery : | remove bladder |
| Comments: | Iam looking at having the surgery to remove my bladder an wear a bag. I've been looking on the internet to find some information to help me deside what to do. my doctors told me to stay off the internet, i see why, some of the post are horride. Yours was the first that made me feel alittle better about it. i know yours is for colon, but i don't think there is to much difference. Thanks for sharing your story |
| Name: | Trina |
| E-mail address: | trina.rosecat@gmail.com |
| Country?: | Canada |
| Type Of IBD: | ileostomy |
| Type Of Surgery : | bowel resection |
| Name: | Frank Siragusa |
| E-mail address: | fsiragusa@cox.net |
| Country?: | USA |
| Type Of IBD: | Colostomy |
| Type Of Surgery : | Colon resection due to diverticulitis |
| Comments: | Been a Nurse for almost 20 years. I never had any insight into what people with Ostomies deal with. Now as an Ostomy wearer, I think that I will be much better with Ostomy patients if I ever get back to work.
I call my bag, my colon, "catcher's mitt". |
| Name: | Mary Clavin |
| E-mail address: | hawaii.anna@me.com |
| Country?: | United States |
| Type Of IBD: | Crohn's |
| Type Of Surgery : | colostomy |
| Comments: | Just found you - looking forward to getting valuable info here as I am having to make big decision whether to reverse or not. Thank you for this site!! |
| Name: | Michael Freedman |
| E-mail address: | mbfree1@bigpond.com |
| Country?: | Australia |
| Type Of Surgery : | Colorectomy |
| Comments: | I would like to talk to fellow Ostomates,my site appears to have been deleted MIKE |
| Name: | Jenny |
| E-mail address: | jennyo1@iinet.net.au |
| Country?: | Australia |
| Type Of Surgery : | removal of large bowel |
| Comments: | Looking for help with leakage problems at night. I have tried everything possible, but am getting nowhere. |
| Name: | jan |
| E-mail address: | janhatters@hotmail.com |
| Country?: | australia |
| Type Of IBD: | ileostomy |
| Type Of Surgery : | j pouch |
| Comments: | Hi my name is jan and you are the first person i have written to in australia. I have had the first of three operations waiting to have the second one done it all takes time but when you are waiting the time seems to go slowly.
How are you going and what kind of operation did you have? i am finding it hard to buy clothes that the bag doesn't show throw your clothes do you have any ideas that i can use to make it easy for me, i don't like going out as i am scare i will have a accident which has happen to me in the past so i stay at home alot of the time. I would like to hear from you and maybe you can help me thank you jan |
| Name: | E Har |
| E-mail address: | navehla@gmail.com |
| Country?: | Enlgand |
| Type Of Surgery : | Ileostomy |
| Name: | Louise Bette |
| E-mail address: | harrybette@yahoo.ca |
| Country?: | Canada |
| Type Of Surgery : | Ileostomy |
| Comments: | I have had the surgery in July 2012 have been back in with blockage twice now, any suggestions anyone,
Louise |
| Name: | Linda Marlene Russell |
| E-mail address: | rlindanurse1998@aol.com |
| Country?: | USA |
| Type Of IBD: | crohn's |
| Type Of Surgery : | ileostomy |
| Comments: | The operation saved my life. At first I wouldn't grasp this because I was so filled with feeling so sorry for me, but now I know better and I thank God for a second chance at life |
| Name: | Joel Paige |
| E-mail address: | kadendad07@yahoo.com |
| Country?: | USA |
| Comments: | I'm currently a nursing student and we are studying GIGU( basically anything that deals with the GI Tract- mouth to the rectum) and I enjoy learning thru actual stories rather than a boring book. Thanks for your story |
| Name: | Clare Treleaven |
| E-mail address: | ctreleaven08@aol.com |
| Country?: | United Kingdom |
| Type Of Surgery : | Colostomy |
| Comments: | Hi Shaz - Have had an ACE for 3 years and it started playing up ( on my right hand side ) & now have a sigmoid end des colostomy on the left hand side - the 2 are linked and I irrigate thru my ACE & everything comes out via my Colostomy. I just visited your page for inspiration & tips - It is great - Best wishes Clare |
| Name: | Paul Welwood |
| E-mail address: | t.word@verizon.net |
| Country?: | usa |
| Type Of IBD: | colorectal cancer |
| Type Of Surgery : | ileostomy |
| Comments: | very upset can't handle. |
| Name: | Jan Murray |
| E-mail address: | jaymal@bigpond.com |
| Country?: | Australia |
| Type Of Surgery : | colostomy |
| Comments: | My husband has just recently had surgery. So I am trying to find out 'stuff' to help his and my 'attitudes'. Your site and positive attitude will certainly be of help.
Thanks Jan M |
| Name: | Sally Reynolds |
| E-mail address: | mattandsal4@hotmail.com |
| Country?: | Australia |
| Type Of IBD: | Crohn's |
| Type Of Surgery : | ileostomy |
| Comments: | Great site Shaz, thanks :) |
| Name: | Toni |
| E-mail address: | toniandfrank@hargray.com |
| Country?: | USA |
| Type Of IBD: | Crohn's/Colitis |
| Type Of Surgery : | Ileostomy |
| Name: | lauretta porter |
| E-mail address: | laurettaporter@ymail.com |
| Country?: | usa |
| Type Of IBD: | crohn's disease |
| Type Of Surgery : | colostomy |
| Name: | ron hurley |
| E-mail address: | ronhurley.hurley53@gmail.com |
| Country?: | usa |
| Type Of IBD: | ileostomy |
| Type Of Surgery : | suprising |
| Comments: | went to hospital 1 mar 2012 with obdominal pains. Woke-up
later on O.R. table, told my large bowel had perfurated, I died, and they hooked me up with ileostomy, brought me back and suprise, I aam now the proud owner of a "Bio-Hazard Containment Unit, (ha, ha). I have the bag and a mucus fistula as well. Bag on the right, fistula on the left. I've had nothing but problems since, 2 digestive blockages from then to now. both times let to a 4 day stay in hospital. Need to watch my diet for sure now. |
| Name: | Miriam Anderson |
| E-mail address: | miriam.anderson11@gmail.com |
| Country?: | Australia |
| Type Of Surgery : | Colstomy |
| Comments: | Hi Shaz
Just read your article. Love your positivity. |
| Name: | michael brookes |
| E-mail address: | tireonemike@gmail.com |
| Country?: | usa |
| Type Of IBD: | uc |
| Type Of Surgery : | ilectomy |
| Comments: | having my surgery on aug 15th 2012 scared to death but your site has helped answer many of my questions , thank and God Bless u shaz :) |
| Name: | Anthony Hoeft |
| E-mail address: | Achoeft@yahoo.com |
| Country?: | USA |
| Type Of IBD: | Urostomy |
| Comments: | Hi Sharon. You have an amazing web page. So much info! I first had a diverted bladder but it didn't quite work and then I had a urostomy surgery in 1980. I started researching more about it last summer and I am quite shocked to find out how many ostomates there are. Thank you for having such a great web page and being such a great lady. |
| Name: | Peter |
| Homepage URL: | http://www.petersommer.com/ |
| Country?: | UK |
| Comments: | Hi Shaz, Yes, my father also has a stoma - he had cancer several years back. He was lucky to survive and has been going strong for many years since - thank goodness!
Wishing you all the best. |
| Name: | Elin |
| Country?: | Wales, UK |
| Comments: | Excellent dreambook Shaz - and found your website very inspiring - a truly reassuring and informative resource. My father in law has a stoma so I'm aware of the issues.
Wishing you all the best - Elin, busy making <a rel="nofollow" href="http://www.nothingnasty.com">natural skin care</a> in Wales. |
| Name: | Kevin Droke |
| E-mail address: | ksdroke@gmail.com |
| Country?: | USA |
| Type Of IBD: | Crohn's |
| Type Of Surgery : | Ileostomy reversal |
| Comments: | Thank you for telling your story! I have had an ileostomy now for a year and I am going through the process of having it reversed. My family and friends can't imagine why I would want to go through this type of life again. I have been fighting Crohn's for 20 years. Thank you, I have finally found someone that undestands completely! My wife and kids are very supportive but don't really understand. I just want to feel normal again (while I still can). Thank you for your story! This will help me thorugh this next step! |
| Name: | Dana Owens |
| E-mail address: | djowens3@gmail.com |
| Country?: | USA |
| Type Of IBD: | Crohn's |
| Type Of Surgery : | Ileostomy surgery |
| Comments: | Saw your page on healingwell.com and checking it out. I just had surgery in April and not coping very well so far. Came across the Ostomy forum and it's been helping me see the brighter side of things. |
| Name: | Kalena m Davis |
| E-mail address: | kalenadavis83@verizon.net |
| Country?: | USA |
| Type Of IBD: | Crohn's |
| Type Of Surgery : | colostomy |
| Comments: | Need help and support. Would love to see how other dress and take care of themselves while staying happy, healthy, and positive. |
| Name: | Antonio Diniz |
| E-mail address: | anthon31@gmail.com |
| Country?: | India |
| Type Of IBD: | Ulcerative Colitis |
| Type Of Surgery : | Ileostomy |
| Comments: | I had my Ileostomy done in December 10, 2006, cause being severe attack of ulcerative colitis wit excessive internal bleeding.Medicines could no longer control/stop the bleeding. I use two piece arrangement of Hollister make. I have mastered the technique of fixing the wafer and bag quite effectively and do the change once a week.I am 65 and lead quite an active life, however I try to avoid strong sunlight and humid conditions. As far as food is concerned I eat practically everything except certain food articles that cause bulk and gas. I hail from Goa, India. There are hardly known people with similar conditions and medical centres and hospitals here are not so well versed with ostomy patients. One should be able to look after oneself in order to lead a normal life. |
| Name: | Marjune Iooss |
| E-mail address: | miooss@mtnisp.com |
| Country?: | USA |
| Type Of Surgery : | ileostomy |
| Comments: | I'm sending you an email. |
| Name: | Rachelle |
| E-mail address: | kidsgandb@hotmail.com |
| Country?: | Auatralia |
| Type Of IBD: | Chrons |
| Type Of Surgery : | Iliostomy |
| Name: | Barbara Leiman |
| E-mail address: | leimanb@gmail.com |
| Country?: | USA |
| Type Of Surgery : | Colectomy |
| Comments: | Please read my e-mail asking for help. Thank you. |
| Name: | Brad burton |
| E-mail address: | roping1@hotmail.com |
| Country?: | United States |
| Type Of IBD: | Ulcerative colitis |
| Type Of Surgery : | Ileostomy |
| Comments: | I had the surgery in 1996. My biggest problem is weight gain. I am 40-50 lbs overweight. I dont eat a lot of healthy food due to fear of blockage risk. Need ideas. |
| Name: | rosie corbett |
| E-mail address: | 07876026945 |
| Country?: | england |
| Type Of IBD: | illeostomy |
| Type Of Surgery : | permenant |
| Comments: | WOW what a great help i just want to say thank you shaz, i have had my ostomy 4yrs now and have never visited any sites or even talked about it that much as i find that i never know where to start and worry that people will be freaked out but you have helped me so much in the last hour, its pretty incredible! i no longer feel like a freak but instead feel like im part of a really cool club, I've just showed my mum your page and she's very greatful to you and thinks everybody on there is inspirational. your a truly incredable lady and i thank you for taking the time to help others be more positive about there situations. Many thanks Rosie |
| Name: | mark powell |
| E-mail address: | markpowell1223@att.net |
| Country?: | usa |
| Type Of IBD: | colostomy |
| Comments: | thank you for everything! had my surgery 2 years ago but still learning new things all the time. even the doctors are amazed
at the stuff i say to them. its great to see their are people out there like you! |
| Name: | Danielle |
| E-mail address: | dgoodrich14@yahoo.com |
| Country?: | Usa |
| Type Of IBD: | Uc |
| Type Of Surgery : | Ilestomy |
| Comments: | I had a short go of uc, but a nasty one at that, came on quick and severe. Was on asacal and remicade without sucess. Spent 32 days in hospital when on nov 17, 2011 just a few days after my 23 birthday they decided I needed emergency surgery, I will go in may 15th for start of reversal. Your site is so inspiring thank you |
| Name: | Warren Hill |
| E-mail address: | carolyn_ray@bellsouth.net |
| Country?: | USA |
| Type Of IBD: | Ilestomy |
| Type Of Surgery : | colon removal |
| Comments: | Need answers for the test before reversal (barium enema-rectum only). How long to stay on liquids |
| Name: | Mike |
| E-mail address: | mbfree1@bigpond.com |
| Country?: | Australia |
| Type Of IBD: | Ileostomy |
| Type Of Surgery : | Total Colo Rectomy |
| Comments: | My Stomal area is breaking down and bleeding as thin as water Any Ideas?t started after 13 years. |
| Name: | Josefina Khan |
| E-mail address: | josefina_khan@yahoo.com |
| Country?: | USA |
| Type Of Surgery : | Dual ostomy |
| Comments: | Hi! I am the wife of a Dual ostomy survivor. My husband was diagnosed with Colonrectal cancer in 2003. He has been battling with the complications of having two ostomies. It's a struggle every single day, but like I said he is a survivor and continues to live life to the fullest. |
| Name: | Kathryn |
| E-mail address: | bambinosfour@yahoo.com |
| Country?: | USA |
| Type Of IBD: | short bowel syndrome |
| Type Of Surgery : | ileostomy |
| Comments: | Great info about ostomies! Thank you for sharing on such a personal level. It helps me to better understand what I see with my son's ostomy and contents. |
| Name: | Wendy Meldrum |
| E-mail address: | aimesmom@yahoo.com |
| Country?: | USA |
| Type Of Surgery : | Urostomy |
| Comments: | I was just diagnosed with bladder cancer and will be having surgery remove my bladder within the month. My husband for your site and I love the part about names for your stoma! I have a nephrostomy tube and I named my bag Clyde after my 16 year old niece suggested in the hospital I do so. What a great idea.
Thanks for all you do! You really do make a difference! |
| Name: | PROPHET OF GODDESS |
| E-mail address: | prophetofgoddess@gmail.com |
| Homepage URL: | http://www.prophetofgoddess.com |
| Comments: | The oldest crowned spell caster by the goddess who cast spells designed to
surround you with positive energies,rid you of negative energies and draw towards you prosperity,love,peace....giving you the life you deserve or choose to live. Prophet of goddess as he prefers to be called is an expert at complex and urgent situations be it love,happiness,money and so much more. With every spell, I first cast a purifying cleansing spell,more commonly known as a curse removal spell,which will help remove any negativity swiftly that might prevent your spell from working. E mail me today at prophetofgoddess@gmail.com or view my website at www.prophetofgoddess.com for a better life. Best Regards, Prophet of Goddess |
| Name: | Dianne |
| E-mail address: | DeYoung |
| Country?: | Canada |
| Type Of IBD: | UC |
| Type Of Surgery : | Ileostomy |
| Comments: | Enjoy your site---lots of info. |
| Name: | Ron |
| E-mail address: | r.godyn@gmail.com |
| Country?: | Australia |
| Type Of Surgery : | Iliostmy |
| Comments: | I am very new to this,my op was 1 week ago but i have gained confidence and knoledge reading all the personal stories and tips in these pages and i look forward to a happy and healthier future |
| Name: | Marlaine Schneider |
| E-mail address: | marlaineschneider@yahoo.ca |
| Country?: | canada |
| Type Of IBD: | ulcerative colitis |
| Comments: | I see the surgeon on Weds. Mar.6/12 to talk about which procedure i will be having. GI says probably an ileostomy. I am very nervous about the surgery, but am excited to get my life back.
thank you for the uplifting website. |
| Name: | Danna |
| E-mail address: | annasmom16@yahoo.com |
| Country?: | usa |
| Type Of IBD: | ulcerative colitis |
| Type Of Surgery : | END ILESOSTOMY |
| Comments: | Shaz, Thanks so much for putting your story out here. I just had my surgery 1/26/12 and Im still adjusting to life after it. I, like you, had suffered most all my life with UC and was diagnosed with Colon Cancer at age 29. The decision to have my colon removed was hard for me, due mostly, ashamedly, to vanity. Now 4 weeks post op, i can honestly say, it was the best decision I have ever made. I can eat most of what I want and go as I please without worry about the constant fear of my UC flaring up. Thank you again for your story. It has certainly given me lots of hope for a normal life now. |
| Name: | PennythePearl |
| E-mail address: | clj1310@hotmail.com |
| Country?: | US |
| Type Of Surgery : | Colostomy |
| Comments: | My 85 year old mother is the ostomate. She has a colostomy. I have gone through the whole ordeal with her for the past 2 years that I feel almost like it happened to me but I know its nothing in comparison to her actually living with it. I've just been looking for answers and wanting to connect to those in the same situation because I am astounded at how little the medical community really does prepare the patient beforehand for what their life will be life and also the void of information afterwards. I stumbled on the name "Shaz" last year when I was obtaining free samples for her, but I had no idea all this was available too. I feel a kinship already. Cant wait for my account to be activated. |
| Name: | Juanita Pridemore |
| E-mail address: | jrpridemore@comcast.net |
| Country?: | USA |
| Type Of Surgery : | Permanent Ileostomy |
| Name: | Ray Coutts |
| E-mail address: | r.coutts@sky.com |
| Country?: | UK |
| Type Of Surgery : | Urostomy |
| Comments: | some good information provided for dealing with night bags, had my urostomy now for over two years, and in the beginning i struggled trying to find the right night bag for myself, and like most had a few wet beds. but you learn with time and information like you have provided makes it easier for patients that have just had urostomy surgery. |
| Name: | Beth Russel |
| E-mail address: | cvp2editing2@comcast.net |
| Country?: | USA |
| Comments: | I am going to behaving surgery in 15 days for this, and it is great to find a page that describes it, with humor and information. Thank you! |
| Name: | nadine archbold |
| E-mail address: | ngarchbold@gmail.com |
| Country?: | usa |
| Type Of IBD: | ulcerative colitis |
| Type Of Surgery : | ilestomy |
| Comments: | just looking fo supportr |
| Name: | Julie Walker |
| E-mail address: | bluejewels73@yahoo.com.au |
| Country?: | Australia |
| Type Of Surgery : | ileostomy |
| Comments: | I had emergency surgery a week ago and am now seeking what available resourses are out there. Yours was one of the first I found :) |
| Name: | Ms. Jesica Irving |
| E-mail address: | jessie90802@yahoo.com |
| Country?: | usa |
| Type Of Surgery : | colostomy |
| Name: | tina m alderman |
| E-mail address: | tinalderman@gmail.com |
| Homepage URL: | http://nocolonandstillrollin.blogspot.com |
| Country?: | United States |
| Type Of IBD: | UC |
| Type Of Surgery : | j pouch |
| Comments: | 11 yo girl with jpouch surgery five days ago. Now with ileostomy and reversal to happen in a couple of months. Thanks for having this page! |
| Name: | Angie |
| E-mail address: | angiedial@ymail.com |
| Homepage URL: | http://yahoo.com |
| Country?: | united states |
| Type Of IBD: | chronic adhesions, bowel resection removal of sigmoid in 2000, now 3 weeks ago complete colectomy with ileostomy, hopefully reverse in 1 year, in the learning period, also have hypogammaglobulinemia, MS, hydronepherosis, coma 2006 DOA, Im a hot mess , need to be on mystery diagnosis's, just thank God Im ALIVE, & LIVING.......;) |
| Type Of Surgery : | open colectomy, ileostomy same scar as yours, havent named my lil stoma yet,.....thinkin of "princess" or " noisey princess" lol |
| Comments: | rann across your site lookin for a product to @ times when ileostomy gets pasty, to make it a lil easier to empty, im a newbie, 3 weeks post op, been up n down with things not sticking, leaking after losing lots of weight, got samples from about 9 companies, so far hollister new image 2 peice i like lots, have 1 peice's, im gonna try next, got some in that feel extremly comfy, i like the velcro, this has a pretty sturdy barette , not the cheapy looking ones,.....company is NU-HOPE,.........your page made me smile, & laugh, thanks i needed that........
Angie from Houston, Texas |
| Name: | Lee Dillon |
| E-mail address: | elceedee@comcast.net |
| Country?: | USA |
| Type Of IBD: | Cancer |
| Type Of Surgery : | Colostomy |
| Comments: | Hi Shaz, I was a member of your page many years ago. I found your page this A.M. and thought I would get back in touch. Back then there was a man from Amsterdam by the name of, Micah, I think. His SO wrote that he had passed away. I was so saddened by that, I quit coming to your page. Well, I am back! I'll come here off and on and thank you for keeping your page going all this time! |
| Name: | Joseph |
| E-mail address: | joseph@comcast.net |
| Homepage URL: | http://verhel.pluto.ro/lansoprazole/sporanox.html |
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| Name: | Tatyana |
| E-mail address: | tatyana.mail@list.ru |
| Homepage URL: | http://www.blog.servitutis.ru |
| Country?: | Russia |
| Comments: | You are an inspiration and I wish you well.
Warmest regards.Sincerely Tatiana, Saint-Petersburg. |
| Name: | jscousens@yahoo.com |
| E-mail address: | jscousens@yahoo.com |
| Country?: | Canada |
| Type Of IBD: | Ileostomy |
| Comments: | I had diverticulitis and had 20 cm removed .temporary ileostomy since feb 2 . Hoping for reversal. |
| Name: | Fred Roberts |
| E-mail address: | kokopelli@fastq.com |
| Country?: | USA/Central Arizona |
| Type Of IBD: | Ulcerative colitis |
| Type Of Surgery : | Total colectomy |
| Comments: | 3/8/11 - Laparoscopic colectomy
3/18/11 - Surgical incision colectomy due to complications 28-day stay at Banner Good Samaritan Medical Center, Phoenix AZ Physician - Dr. Eugene Kim |
| Name: | Pende |
| E-mail address: | berta44@live.com.pt |
| Homepage URL: | http://live.com |
| Country?: | botswana |
| Comments: | am 39yr old woman who never had a child before,am asking if it´s possible to get help.i have a fibromioma 8*7cm intramural posterio of the utrerus.and my both tubo are not functioning well because of the pressure from fibroids.please help i need to have a child: |
| Name: | Wendywoo74 |
| E-mail address: | wgwoodford@hotmail.com |
| Country?: | Australia |
| Type Of IBD: | Crohn's Disease |
| Type Of Surgery : | Ileostomy |
| Comments: | WOW!!! I am so glad I found this site. I am in NSW and from time to time have some questions i need answered but I also like to chat to other Ostomates. Thank You Shaz for the site |
| Name: | Patricia Marie Lewallen |
| E-mail address: | ms_redd84@yahoo.com |
| Country?: | United States |
| Type Of IBD: | Familiar Polyposis |
| Type Of Surgery : | J pouch, looped ileostomy followed by other surgeries which turned into a total rectal removal and anus which is non-reversable |
| Comments: | Hi Shaz. My name is Marie i am srry if i didnt put the stuff in the rite areas. i have been through so many surgeries since May 01, 2008. i have three amazing kidz (2 daugthers and 1 son) ages 4, 5, and 9. I love your site. By me reading the comments that r posted by others i have gain some answers to questions that my family and friends try to answer. im lost for words cuz i have nerve posted anything about my ileostomy. Due to my ileostomy i have had to have it done twice within the same year, due to the fact of my stomy wasnt put out far enough, which caused me to have some of my orgins removed (which my husband had to say yes to). He stil tells me srry almost everyday. I always tell him that he had no choice cuz if he didnt i wouldnt died within months due to infection. I feel now that i have found your site i can try to get answers to my questions and find courage to talk about it more. |
| Name: | Lakshmy Subrahmanian |
| E-mail address: | radottcr@gmail.com |
| Country?: | India |
| Type Of Surgery : | Ileostomy |
| Comments: | Hi,
I am writing this for my mum who had an ileostomy in 1973.(She had ulcerative colitis). She is 91 yrs now and has been using bags till today.She worked as a teacher in English Literature in the University for 31 years. Now retired and enjoying her rest.May be she is the oldest person in India who had this surgery-I dont know.I would like to get help on her equipment/bags/flanges - the works. By the way I work in the merchant navy as a Chief Engineer and I love your attitude. Luv V.S.Ranganathan,Trichur. India |
| Name: | John Simmonds |
| E-mail address: | jsmpsimmonds@gmail.com |
| Country?: | Australia |
| Type Of IBD: | Ulcerative Colitis |
| Type Of Surgery : | Total Colectomy |
| Comments: | Hi Shaz and readers, I visited this page years ago and now it is even better. I am a patient of many surgeries. I have had 3 Ileostomies and 2 J pouches and I am still in trouble, I just cannot help feeling dark from time to time but reading about all of you really helps to feel totaly not alone. I currently have a J pouch which could fail again, I have it dilated weekly as it has strictured and kinked over at an acute angle. I will probably end up back with the Ileostomy but at least I will have a life. I will view this page from time to time. Good luck to you all. |
| Name: | Tonya Gardner |
| E-mail address: | kaiser0612@yahoo.com |
| Country?: | USA |
| Type Of Surgery : | Bowel Resection, Rectal Resection, Cecum Resection |
| Comments: | Way to go, staying positive. I just had my ileostomy reversed 1 week ago because I couldn't live with, what I thought was the dirtiest, smelliest, most invasive thing that had ever happened to me. I was to the point that I was on the verge of needing therapy. I was living on anti-anxiety meds. One week later, I feel miserable. The diarrhea is constant, the gas is unbearably painful, and my butt is so sore that I cannot even wipe it. And I waited so long to wipe my a... Am I better off? I cannot honestly answer that question, but I do know that I am not positive, I am tired.
|
| Name: | Marie Taylor |
| E-mail address: | marie_lana@hotmail.com |
| Country?: | Australia |
| Comments: | Hi Shaz, just a quick note to say I love your website - and thanks for sharing your story in such a refreshing and honest way. Cheers and take care, Marie xx |
| Name: | Chloe Moody |
| E-mail address: | cmoody31685@yahoo.com |
| Country?: | america |
| Type Of Surgery : | colostomy |
| Comments: | i love this site! even though i'm only twelve. |
| Name: | Beth |
| E-mail address: | fbs810@gmail.com |
| Country?: | USA/Wisconsin |
| Type Of IBD: | PSC/Liver Tr/Colon Cancer |
| Type Of Surgery : | Ileostomy |
| Comments: | Had a Shunt place on my first transplanted Liver because the Primary sclerosing cholangitis has distroyed the first liver I recieved 7 years ago. Now waiting for 2nd liver, however now I am 61, had the cancer 3 years ago and there are lots of first time people waiting that deserve a chance. So we will see. Thanks for having this forum. And you are absolutely right, Attitude is everything. |
| Name: | Marcia |
| E-mail address: | Mome422@yahoo.com |
| Country?: | Usa |
| Type Of IBD: | Chrons, uc |
| Type Of Surgery : | Ileostomy |
| Comments: | Am interested in learning more about skincare around stoma also outer skin around wafer |
| Name: | Brenda Rueckert |
| E-mail address: | brenda.rueckert@milaca.k12.mn.us |
| Country?: | USA |
| Type Of IBD: | UC/Crohn's |
| Type Of Surgery : | colectomy |
| Comments: | Thanks for sharing. I do have a couple of questions. What type of bag do you use? How do you get rid of granulomas? |
| Name: | Doody |
| E-mail address: | tonlyn65@yahoo.com.au |
| Country?: | Australia |
| Type Of IBD: | Crohn's |
| Type Of Surgery : | Ileostomy |
| Comments: | Enjoyed the visit Shaz nice website keep up the good work of enpowering us ostomates... |
| Name: | shirley |
| E-mail address: | waif@vodafone.co.nz |
| Country?: | new zealand |
| Type Of IBD: | ulcerative colitis |
| Type Of Surgery : | ileostomy |
| Comments: | had my surgery on August 11 this year,have had a positive attitude since the op...no more looking for the nearest toilet basically i have my life back, due to have J-pouch surgery early next year but not sure what to do....can anybody tell me if you still have the urgency of needing the toilet as in Colitis. |
| Name: | Laura |
| E-mail address: | Pjh22@comcast.net |
| Country?: | America |
| Type Of IBD: | Uc |
| Type Of Surgery : | Ileostomy |
| Comments: | I have a great surgeon in Boston.I had my colin taken. 1Wednesday october19 2011.I am8 years old and suffered for almoist 2 years. I am leaving the hospital today.I feel bad for people who suffer. |
| Name: | Laura |
| E-mail address: | Pjh22@comcast.net |
| Country?: | America |
| Type Of IBD: | Uc |
| Type Of Surgery : | Ileostomy |
| Comments: | I have a great surgeon in Boston.I had my colin taken. 1Wednesday october19 2011.I am8 years old and suffered for almoist 2 years. I am leaving the hospital today.I feel bad for people who suffer. |
| Name: | santana |
| E-mail address: | babybluebabyhazal88@gmail.com |
| Country?: | USA |
| Comments: | i have the same thing you have. i have had so many surgeries since i was like 16 years old. if you would like to get in contact with me, you can email me at babybluebabyhazal88@gmail.com i'm only 22 years old. |
| Name: | Jodi Fenstermaker |
| E-mail address: | jlfenstermaker2008@yahoo.com |
| Country?: | United States |
| Type Of Surgery : | illeostomy |
| Comments: | I am 4 months out and still sometimes not really sure what I am doing. I do have a support group I attend but we only meet every couple of months. I knew nothing about any of this before the surgery. I was sick for about 6 months before the surgery and it really all happened very quickly. I am doing better now, but sometimes it is still hard. |
| Name: | julia galluzzo |
| E-mail address: | gfrenzy2@prodigy.net |
| Country?: | usa |
| Type Of Surgery : | colon resection |
| Comments: | so happy to find your page. I just received my colostomy 2 weeks ago and I feel so isolated. I have a very loving and supportive family, but nobody can understand if they have not gone through it themselves. This is supposed to be "temporary" but will see what happens... thanks |
| Name: | Mirlin Dobson |
| E-mail address: | mirlindobson2@gmail.com |
| Country?: | USA-Indiana |
| Type Of IBD: | colitis |
| Type Of Surgery : | Ileostomy |
| Comments: | Shaz, thank you so much for this site! It showed me I am "normal" and the help you and everyone on here have given me is beyond words. Thank you |
| Name: | elaine carwood |
| E-mail address: | ecarwood@yahoo.com |
| Homepage URL: | http://haz, http:// |
| Country?: | ireland |
| Type Of IBD: | ulcerative colitus |
| Type Of Surgery : | permanent ileostomy |
| Comments: | Hi Shaz,
I had the same operation as you but I was 35 when I underwent what i now call loosing a bad friend and gaining Sarah Stoma. Like you i go swimming, cycling, wear mostly what i like, and am the healthiest i have been in years. It started for me when i was 17 and left school and i spent most of my early years avoiding going to places unless i knew there was a toilet there or on the way. Now i am very grateful to my doctors and family and mostly to Sarah Stoma and can wear a big smile on my face again. |
| Name: | Philip Defriend |
| E-mail address: | phillip.defriend@sky.com |
| Country?: | England |
| Type Of IBD: | U.C |
| Type Of Surgery : | Ileostomy |
| Comments: | Hey there,what a positive outlook. I will try that myself. I have only just had my surgery (6weeks ago) and im back to work and getting on with life. I have a wife,step-son and 7 dogs. I call my stoma Stewie,just like from Family Guy.Do you think i should stay with Stewie or go through they "risky" J-Pouch? Look forward to hearing from you if you have the time. Philip |
| Name: | jon esler |
| E-mail address: | mjesler@hotmail.com |
| Country?: | oz |
| Type Of IBD: | ileostomy |
| Type Of Surgery : | not sure |
| Comments: | hi Shaz,came down with chronic ulcerated cholitas on 16/04/11 didn,t know what was happening,neither did my doctor,no history,after two weeks of getting sicker went to hospital and diagnosed by the specialist,he tried everything to no avail so flew me to st vincents melb.the team there tried keyhole removal,no good bowel perforated,huge problem but i,m ok now28/09/11.and just been told i can have a j pouch so its all good ,i think,time will tell.so catch you later. |
| Name: | belinda |
| E-mail address: | ballisticbelinda@yahoo.co.uk |
| Country?: | uk |
| Type Of IBD: | colostomy |
| Type Of Surgery : | emergency Hartmans Proceedure |
| Comments: | Having had an emergency Hartmans Proceedure in June, I am hoping to be reversed in November but would like to thank you all, for being there! |
| Name: | Sue Rafuse |
| E-mail address: | wsbam@eastlink.ca |
| Country?: | Canada |
| Type Of Surgery : | Urostomy |
| Comments: | Enjoyed reading your web page..Some amazing stories... I however didn't see too many with 50+ females who have had radical cystectomy... I have in place an ileal conduit.. Last March I was diagnosed with a large tumour in the bladder... had chemo and then the surgery in July 2010.. So far reports have been ok... On the big picture I am so glad to be alive but on the smaller picture it is scary and by times a lonely road even though I am surrounded by family and friends.. I work for Doctor in a small town called Liverpool in Nova Scotia Canada and the population is quite small so finding someone else with this condition has been hard but there is plenty of other cancers unfortunately here in this town and everywhere... Thanks for the great site. |
| Name: | susan |
| E-mail address: | susan_salomon@hotmail.com |
| Country?: | USA |
| Type Of Surgery : | Ileostomy reversal |
| Comments: | Hi Shaz, My name is Susan I'm 47 years old and a mother of 3 girls 25,15,& 13. I had a colonoscopy in March 2011 and my gastro Doc found a tubularvillonosa in my rectum & she sent me to a surgeon & the surgeon confirmed I had a tumor 7cm around in my rectum which was removed in June 2011,(left with j-pouch/ileostomy) It was a success & they found no cancer!! Sept 9th I went in for a leak check of my bowls,everything went well & I can go and have my reversal surgery which is scheduled for Oct 10th 2011.
I want to thank you Shaz for sharing your story and having such a wonderful web page, it's helped me feel better about my upcoming reversal surgery & keeping up all the good vibes & thoughts along with the power of prayer. God Bless!! Very Truly yours, Susan |
| Name: | Colin Warhurst |
| E-mail address: | info@colinwarhurst.co.uk |
| Homepage URL: | http://www.colinwarhurst.co.uk |
| Comments: | I am a knobhead and I think I'm Liam Gallagher, what should I do? |
| Name: | Guy |
| E-mail address: | teetsmel@gmail.com |
| Country?: | U.S.A. |
| Type Of IBD: | Chrohn's/ulcerative colitis |
| Type Of Surgery : | total colectomy |
| Comments: | Hello Shaz.I'm Guy and I have the monster.This is my first effort to communicate with fellow ostomates at a website of this nature.We'll see how it flies.There is much more to me but for now,I just wanted to say greetings.Thank you. |
| Name: | Samantha |
| E-mail address: | samanthaleadbetter@yahoo.com |
| Country?: | USA |
| Type Of IBD: | Crohns and U.C. |
| Type Of Surgery : | Proctocolectomy/Ileosomy |
| Comments: | Hello Shaz, I had my surgery on September 2, 2011. I'm 41yrs of age and I am still trying to adjust to this new life. I live in Livermore, Maine I have a wonderful husband of 12 yrs. We have 2 adult children, 3 dogs and a cat. I guess that's about it for now. Thank you for sharing your story. |
| Name: | Virginia Larsen |
| E-mail address: | Virginialarsen@me.com |
| Country?: | US |
| Type Of Surgery : | Urostomy |
| Comments: | Shaz,
Glad to know you have done so well for so long. I am a new urostomate (April 5, 2011) and absolutely loved Australia when we visited in 1998. We couldn't get to the west coast, but did travel to Tasmania. I am gaining weight and wanted to know how your weight gain and loss (good for you!) affected your stoma. Did it retract, and did you have leakage problems? Your ostomy page is very nice and got me to thinking of setting one up. Take care, Virginia Larsen |
| Name: | Heather Donaldson |
| E-mail address: | dononswan@bigpond.com |
| Country?: | aus |
| Type Of IBD: | crohn's |
| Type Of Surgery : | nothing major yet!! |
| Comments: | Hi Shaz.... I can't remember if I've been here before and left a note... but here's another one anyway...
Great to see this page getting lots of response... and you are looking good girl.... keep up that dieting... I'm very jealous you are losing all that excess and I seem to be finding it... do you want to come and take some back from me??? he he... anyway see ya on facebook or the forum... or in person one day... soon?? |
| Name: | Susan Bailey |
| E-mail address: | svbmedrec@gmail.com |
| Country?: | USA |
| Comments: | My aunt, who is 91 11/12 has had an ileostomy for fifty (50!) years. She has required only one hospitalization and one ER visit for dehydration issues in all that time. Now she is in renal failure and been given a very fluid restricted diet, and is starting outpatient dialysis. My thoughts are that all those years of fluids leaving thru her stoma kept the strain off her kidneys, and delayed her kidney failure for decades. Does this make sense to you? I'm thinking maybe she needs to keep up with her fluids and do intend to talk with the nephrologist. She is alert and making her own decisions. Thank you |
| Name: | dr.t.g.balachandar |
| E-mail address: | tg_bala@yahoo.com |
| Homepage URL: | http://www.gastroclinic.net |
| Country?: | INDIA |
| Comments: | Hi,
i am a gastrointestinal surgeon from india.i am impressed with your courage and attitude.i wish to show my ostomates about your perseverance, determination and about your better part of life. thanks, regards, dr.t.g.balachandar. |
| Name: | Sharon Ellison |
| E-mail address: | ellsn4957@yahoo.com |
| Country?: | USA |
| Type Of Surgery : | colostomy |
| Name: | evelyn |
| E-mail address: | evelyn_mills2001@sbcglobal.net |
| Country?: | USA |
| Type Of IBD: | ilostomy |
| Type Of Surgery : | ilostomy |
| Comments: | I have had a ostomy for 51 years. I am having trouble getting drugs to work on me.
Need your help. |
| Name: | Rotha Cook |
| E-mail address: | rothacook@att.net |
| Country?: | U.S.A. |
| Type Of IBD: | Cancer of Rectum |
| Type Of Surgery : | Permanet Colostomy |
| Comments: | I had this surgery on Dec.2ed 2009. I am now cancer free, w/ a pouch hanging from my abdomen. I am still adjusting as I live alone w/ y pet cats. I still go and have blood work and follow-ups w/ my Dr's. They tell me that my blood is perfect and NO MORE CANCER !!! I praise GOD for my healing and for HIS servants, the Dr's who helped me, hospital, nurses, cancer center, etc. I had MEGA doeses of chemo and radiation . I am 72 yrs old, and have two grown children....Thanks for your site. I bought THE OSTOMY BOOK from online, one of the BEST that I have read so far, and I subcribe to THE PHONIX, for all ostomates... Wonderful info in all of them....my best to all out there ! I dont know anyone, personally who has this and had never heard of it before I got it.I learn from reading and trial and error ! For me, the ODER is the worst part.... |
| Name: | Alison kelley |
| E-mail address: | alisonkelley32@gmail.com |
| Country?: | USA |
| Type Of IBD: | none |
| Type Of Surgery : | none |
| Comments: | I am looking into taking the plunge. I just need some support. I am concerned about life afterwards since I am a single woman and lonely now as it is. I just don't want to be alone for the rest of my life. |
| Name: | Mary-Anne Yost |
| E-mail address: | hobartwolf@hotmail.com |
| Country?: | Australia |
| Type Of Surgery : | Ileostomy and urostomy |
| Name: | Mike |
| E-mail address: | mbfree1@bigpond.com |
| Type Of IBD: | Totalcolorectomy |
| Type Of Surgery : | Ileostomy |
| Comments: | I Posted an inquiry using an INCORRECT EMAIL ADDRESS I put mbfee1 instead of mbfree1@bigpond.com Sorry MIKE |
| Name: | Tina Gargano |
| E-mail address: | tina.gargano@gmail.com |
| Country?: | USA |
| Type Of IBD: | Ulcerative Colitis |
| Type Of Surgery : | Complete Colectomy |
| Comments: | I love your attitude Shaz! You are a great inspiration!! |
| Name: | MIKE LAWRENCE |
| E-mail address: | mikelawrence1@hotmail.co.uk |
| Country?: | FRANCE |
| Type Of IBD: | U/C PLUS C/D |
| Type Of Surgery : | PERM STOMA |
| Comments: | HAD STOMA 5/8/2001 LOTS PROBLEMS SINCE WILL SEND SOME PICS. |
| Name: | Nina Nikolaou |
| E-mail address: | nikolaou_nina@hotmail.com |
| Country?: | Australia |
| Type Of IBD: | Ulcerative Colitis |
| Type Of Surgery : | Permanent ileostomy |
| Comments: | Got it again as reversal didn't work. Have had it for a month so still adjusting. At least able to sleep at night! |
| Name: | Meghan |
| E-mail address: | mjswander@gmail.com |
| Country?: | USA/Ohio |
| Type Of IBD: | Ulcerative Colitis |
| Type Of Surgery : | Subtotal Colectomy w/ Ileostomy |
| Comments: | Glad I found your website as I am a new ostomate. Will be sure to return for updates. Thanks for sharing your story. |
| Name: | Manly Mike |
| E-mail address: | mbfee1@bigpond.com |
| Country?: | Australia |
| Type Of IBD: | Ileostomy |
| Type Of Surgery : | Total Colo Rectomy |
| Comments: | Hi Shaz I would like to ask anyone out there if they have any PERFORM Sachets they no longer need, I have extra PERFORM ordered each month, due to a DATE ERROR I missed out on a Months supply and Cannot manage.
I will pay postage for here in Australia. Hoping to hear from anyone who has an Alternative to PERFORM also, Since ILEO GEL was discontinued PERFORM is NOT as good, I admit I had to GRIND ILEO GEL in the COFFEE GRINDER to Powder form for it to work successfully. In the USA they have it in Powder form, guess the bureaucrat who decided PERFORM was suitable was not an OSTOMATE Looking forward to anyones help MIKE |
| Name: | MJ |
| Country?: | USA |
| Type Of IBD: | UC |
| Type Of Surgery : | ileostomy |
| Comments: | Caregiver of my husband who is a 2 year stroke survivor. Had UC for 15 years and finally had an ileostomy in May 2011. He is paralyzed on the left so I will be taking care of his stoma, bags, the whole 9 yards...YIKES!! It's gotta be better than running to the bathroom every 10 minutes! lol
Glad I found this site, there's a lot of useful information! MJ |
| Name: | Irene Rogers |
| E-mail address: | irene_8@optusnet.com.au |
| Name: | John Chamberlayne |
| E-mail address: | jchamberlayne@cox.net |
| Country?: | USA - Virginia |
| Type Of Surgery : | Colostomy |
| Comments: | Thanks for the information. I'm going to be living with this for a long time. Irrigation looks like the way to go. |
| Name: | Maurie |
| E-mail address: | mdregan@bigpond.com |
| Country?: | Australia |
| Type Of IBD: | Diverticular disease |
| Type Of Surgery : | Loop Colostomy |
| Comments: | G'day,
Fantastic site ! I had suffered from Diverticulitis since 1999 having bouts in hospital on and off over the years before Surgeon finally decided to remove part of my large bowel. I had the op in June 06, it took a long time to get used to having my Stoma. Hated it at first ! "Don't we all ?" Nothing like a bag blow out at 2 am in the morning while asleep Lol ! I had my stoma for 5 yrs until May 10 of this year. I was finally able to say goodbye to my little red buddy on my stomach and had the reversal op. So far things are going good, couldn't have hoped for a better outcome. Cheers, keep up the good work ! |
| Name: | Carol Jones |
| E-mail address: | flmamabear@aol.com |
| Country?: | USA |
| Type Of Surgery : | Ileostomy |
| Comments: | Emergency surgery December, 2010, as a result of a ruptured colon during a colonscopy. May 2011 went for reversal but was unable to complete due to further complications. I had to have a portion of my colon removed due to blockage and sever diverticulitis. I am scheduled for "take down" surgery to close my ileostomy August 16, 2011. I certainly hope all goes well and the completion can be done. This has been very rough for me and my family. And, I lost my belly button during all the surgeries! |
| Name: | Kathryn Redgrave |
| E-mail address: | kat_lahnie@live.com |
| Country?: | Australia |
| Type Of IBD: | Crohns Disease |
| Type Of Surgery : | Illeostomy |
| Comments: | Thank you so very much for sharing your story. I had the surgery only 3 months ago after suffering from Crohns for 10 years. Takes alot of adjusting but im getting there. Thanks again its pages like yours that make me realise i am not alone through all this..
Kathryn :) |
| Name: | Guillaume |
| E-mail address: | guipur@hotmail.com |
| Country?: | Québec |
| Type Of IBD: | ulcerative colitis |
| Comments: | Thanks for the site! I visit because i'm gonna have the second operation (j pouch) in 3 weeks. I had an ileostomy a year ago and I was out of the hospital after 2 days :P The use of laparoscopy probably helped a lot and, the fact, that I hate hospitals. |
| Name: | SCOTT GREEN |
| E-mail address: | qenzore11@live.com |
| Country?: | Australia |
| Type Of Surgery : | colostomy |
| Comments: | Pisces, 1972, because of my back I have had a bag for 39 years, met heaps butt.. mostly elderly. I am still going fine and hope you and all your/our new friends are doing the same.
Pisces"dreamer,artist,etc... all so true" Qenzore |
| Name: | Bob Hewson |
| E-mail address: | bob.hewson@yahoo.com |
| Country?: | Philippines |
| Type Of IBD: | Urostomy |
| Type Of Surgery : | Cancerous bladder removal |
| Comments: | Hi,
Good to see you have a positive attitude and have put up this site to help others. I am receiving and supplying donated appliances from Australia to those here who can not afford to purchase them, this is just about every Filipino here. Bob |
| Name: | Mark Parry |
| E-mail address: | ostomy@mparry.co.cc |
| Country?: | Australia |
| Type Of IBD: | ulsurative Colitus |
| Type Of Surgery : | Iliostomy |
| Comments: | Thank you for a very informative site
Mark Parry |
| Name: | Valerie Sanders |
| E-mail address: | sanders214@cfl.rr.com |
| Country?: | USA |
| Type Of IBD: | Crohns |
| Type Of Surgery : | illeostomy/proctectomy |
| Comments: | Very very helpful site from what i have seen so far. Thank you for starting it. I have had my ostomy since 1983 but still need to look things up at times |
| Name: | camille |
| E-mail address: | napili407@gmail.com |
| Country?: | USA NYC |
| Type Of Surgery : | dad had colostomy at 83 |
| Comments: | he us in hospital now with an obstruction given ng tube to suction his stomach of fluid/build up. have u ever heard of this? he was constipated few days ago |
| Name: | Gee |
| E-mail address: | g.elle1950@hotmail.co.uk |
| Country?: | uk |
| Type Of IBD: | UC |
| Type Of Surgery : | Ileostomy |
| Comments: | I had my ileo., a day after my 21st birthday due to U.C. I have lived with it for 40 yrs this July. It has been up and down for most of those yrs, various problems, ie., stoma refashion twice, then a hernia five yrs ago where I am left with a tiny, tiny stoma and a retractable one. So I had to change to a convex for this reason. Does cause me to leak from time to time. I am married and have a grown married child with two grand children. |
| Name: | ricko |
| E-mail address: | ricko@gmx.net |
| Homepage URL: | http://09005-telefonsex.com |
| Country?: | - |
| Type Of IBD: | - |
| Type Of Surgery : | - |
| Comments: | Hi
really nice site. I like the style of it. CU |
| Name: | Jonathan |
| E-mail address: | ak977@ncf.ca |
| Country?: | Canada |
| Comments: | Hi Shaz:
It is now 9 days after my colon (cancer) surgury and temporary ileostomy. I can across your site in one of the magazines my ET nurse gave me on the way out of the hospital. This is an icky situation, but then so is wiping one's ass. Just a different icky. I am doing well and will browse your site further. Regards, Jonathan |
| Name: | Michael |
| E-mail address: | michael@sms.de |
| Homepage URL: | http://telefon-ficken.com |
| Country?: | Hamburg |
| Comments: | Hi
really nice page here, cool layout. Greets |
| Name: | Lauren |
| E-mail address: | lmcd868@Google.vcom |
| Country?: | usa |
| Type Of IBD: | u.colits |
| Type Of Surgery : | perf.and hernias |
| Comments: | Had. Colostomy. 8yrs ago
.more hernia surgeries. Now should I have. Ileostomy? |
| Name: | Patrick Doyle |
| E-mail address: | chilers1@gmail.com |
| Country?: | Ireland |
| Type Of IBD: | crohns colitis |
| Type Of Surgery : | emergency ileostomy31/12/07.Total proctectomy 04/04/11 |
| Comments: | received top treatment under prof.O'Connel and team in St.vincents university hospital in Dublin.Suport of family and friends realy helped in recovery. Feeling good now. |
| Name: | trevor burson |
| E-mail address: | trevburson@gmail.com |
| Country?: | ireland |
| Type Of IBD: | uc |
| Type Of Surgery : | pan colectomy |
| Comments: | Hi Shaz, Ive just moved to melbourne from ireland 6 weeks ago and im still waiting for the sun to shine!!. had my op 9 years ago in ireland and had no support or people to talk to. long story short things are great, got a great job, starting a new life in aus and looking forward to some sunshine.well done on the blog, and keep up the good work..trevor |
| Name: | Pamela |
| E-mail address: | pammy@netins.net |
| Country?: | USA |
| Comments: | I have trouble with mine blowing out and it gets all over me That is hard to deal with sometimes. |
| Name: | Kathy |
| E-mail address: | klutt7358@yahoo.com |
| Country?: | United States |
| Type Of Surgery : | iliostomy |
| Name: | Ron A M Tune |
| E-mail address: | ronamtune@live.co.uk |
| Country?: | South Wales UK |
| Type Of Surgery : | Ileostomy, total colectomy, removal of rectum and anus |
| Comments: | 1991 i had symptons, initially treated for IBS, various meds were prescribed, eventually diagnosed with UC, operation 10th June 1996, Colin my stoma made his debut, 1999 rectum & anus removed, tbh without the op things could've bn so much worse, Colin needs Me and i need Colin, my Wife/Soulmate is my rock, and to my Daughter and Son, thanx Guys ur both kool. Online support like this site is priceless, Thankyou. |
| Name: | Donna Lantaigne |
| E-mail address: | donnalantaigne@aol.com |
| Country?: | USA |
| Type Of IBD: | ? |
| Type Of Surgery : | Ileostomy / Suprapubiccatheter |
| Comments: | Hi Shaz's, I'm new to all of this I had my surgery March 23,2011. I agree with you on it's all about attidude and adjustments, My problem is I love swimming and relaxing baths but I am not sure if I can stay in water for awhile without the pouch falling off.I am a seven time cancer survivor.....I named my ostomy "Illy" and my catheter "Pubie" gotta have some fun ! Just to let you know I'm from Northwood N.H. |
| Name: | Cynthia |
| E-mail address: | gully52@yahoo.com |
| Country?: | Canada |
| Type Of IBD: | Ulcerative Colitis |
| Type Of Surgery : | ileostomy |
| Comments: | I visited your site once a long time ago, then forgot until someone reminded me, so I'm going to try to visit here more often.
Cynthia |
| Name: | Kathy |
| E-mail address: | klutt7358@yahoo.com |
| Homepage URL: | http://www.yahoo.com |
| Country?: | United States |
| Type Of Surgery : | iliostomy |
| Comments: | Lost over 100 pounds due to diverticulitis. Since my sugery I have gained all that back and more and cannot seem to take any weight off....getting very frustrated. I walk and the only think that accomplishes is I nreak the seal on my bag........ |
| Name: | Anthea |
| E-mail address: | antheagrace@yahoo.com.au |
| Country?: | Australia |
| Type Of IBD: | Stoma, Ostomy |
| Type Of Surgery : | Removal SCC, anal tumour. bowel resection and gynae reconstruction |
| Comments: | Hi Everyone,I have just found this site.It is four years since my surgery and am going strong! Shaz, thankyou for this site....a great idea! Good luck all..All the best.... |
| Name: | Hunter |
| E-mail address: | hunter@rogers.com |
| Homepage URL: | http://audio.ya.com/javibcnya/tadalafil/tadalafil-sellers.html |
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| Name: | JERRYTALBERT |
| E-mail address: | JERRYTALBERT29@AOL.COM |
| Homepage URL: | http://AOL |
| Country?: | USA |
| Type Of Surgery : | UROTOMY |
| Name: | Timmy Gwinn |
| E-mail address: | tim10768@att.net |
| Country?: | United States |
| Type Of IBD: | Crohns |
| Type Of Surgery : | Illeostomy |
| Name: | LINDA DARNER |
| E-mail address: | lindadarner69@cox.net |
| Country?: | USA |
| Type Of IBD: | Crohn's Disease |
| Type Of Surgery : | ileostomy with short bowel |
| Comments: | Hi Shaz, this is great! what a wonderful outlet for those who are needing an ostomy. Last week this old body had its 71 birthday (although I'm only 40 LOL). It's battled Crohn's since it was 12 years old. I know how fearful having to have an ostomy is. Believe me, I always said I'd die first. But, after several bowel resections, a colostomy,and finally an ileostomy with only a little bit of small intestine left, this body is still here and still going strong. Shaz, you look great! |
| Name: | Shane Eden |
| E-mail address: | shanesmusic@msn.com |
| Homepage URL: | http://www.myspace.com/worldtruthtournow |
| Country?: | united States of America |
| Type Of Surgery : | colon cancer surgery |
| Comments: | Hi again, Sharon: I'm such a klutz! I wrote the wrong URL in my first post. The correct one is www.myspace.com/worldtruthtournow. I'm a musician who is trying to save our planet/world by sharing Truth. That's why I love you/your page so much, because you're a sharegiver, too. God Bless & keep you, and happy "burps" 2 U! Shane XO |
| Name: | Shane Eden |
| E-mail address: | shanesmusic@msn.com |
| Homepage URL: | http://worldtruthtournow.com |
| Country?: | united States of America |
| Type Of Surgery : | colon cancer surgery |
| Comments: | Hi Sharon: Love your page & Love You. I'm brand new to my bag and looking fwd to talking w/you. God Bless you and Happy Life!!! Shane XO |
| Name: | Emma |
| E-mail address: | emma@prodigy.net |
| Homepage URL: | http://yhsfnhs.001webs.com/concerta/concerta-review.html |
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