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[ Back to A Trisomy 18 Journey - Abigail Grace Wilsford ]
| Name: | Denise Frisbie |
| E-mail address: | denise.flgal@gmail.com |
| City, State, Country: | wildwood,florida usa |
| How did you find this site?: | Other |
| Comments: | I wrote to you back in 2007 after we had a positive triple screen test and we were awaiting our next ultrasound to find out more info.....our update is we had a very healthy little boy who is going to turn 2 this month! He's perfect and has no medical problems at all! He is now potty-training and seems to learn new words every day! I did have another pregnancy in October 2008 which ended in a miscarriage 2 days before Christmas, but we haven't given up yet. We're trying for one more until July 2009 then we're done whether it happens or not. I still am thankful for finding your site and learning what to expect "just in case". |
| Name: | leticia douglas |
| E-mail address: | leticiadgls@yahoo.com |
| City, State, Country: | St. johns.Az |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I wrote on Dec 2007 I tested positive on the blood test for T 18 ,That was strange for me at first,because I didn't know anything about the disease,then i read a lot about it until i found this website... Thanks!Well I have news now...My baby was born on May 13 2008 she is a beautiful girl her name Gabriella Elizabeth She was born 9' 11'' she is so cute and Thank God she is very healthy...I'm writing this for those moms to be that just got the diagnosis and they dont know is not a sentence ,we still have hope we just have to put our babies and ourselves in God's hands and have faith wathever is that we believe in you still can have specialized ultrasounds that may show that everything is o. k. and even if it doesn't you can always try and take it in a calm way and have a good pregnancy I know is not easy is stressful but you gotta try for your baby and yourself,we didn't have an amnio early in the pregnancy because no matter what we were gonna continue with the pregnancy anyway ,now I'm glad we didn't because that was risky for my baby.I know We are very lucky that Gaby is healthy and our hearts are with those parents that are not that lucky .God bless them and I wish for them the best.I will pray for all this babies that have T18 .I wrote this because when I read this Guestbook before I didn't see too many that could give me a little hope,so I want other moms to be to have it. |
| Name: | Tiffany |
| E-mail address: | taffyt01@comcast.net |
| City, State, Country: | Cape May, NJ, USA |
| How did you find this site?: | Search Engine |
| Comments: | My dear friend just recieved a diagnosis of either T13 or T18. She had an amneo and is awaiting the Fish. She is a mess! I was with her at the ultrasound this morning when she recieved the news and immediately had the test. She doesn't know if she can or would want to terminate. I am sending her your site so she can learn more..It truly is inspiring to hear your amazong story. I thank you so much for your info and story. I believe it will help Grace immensely!! |
| Name: | Lisa |
| E-mail address: | bambinibambinidaycare@yahoo.com |
| City, State, Country: | New York, USA |
| How did you find this site?: | Search Engine |
| Comments: | We just found out that our unborn baby girl has T18. We are still awaiting the full results but had it confirmed via FISH testing. We are still coming to terms, but are sure that as we are committed Christians termination is not an option, although it is very tempting. Doctors and genetic counselors are very bleak and leave us with no hope. Ten years ago I gave birth to a girl at 6 months and she lived for 5 days, T18 was not the cause. I feel I am not strong enough to endure that again but know that God's plan is perfect and should He feel that is our path, He will give me the strength to endure. So now we wait, pray and cry. Thanks for your story - it was a comfort to read and gave us the strength to face our path with courage. |
| Name: | Mark Grayson |
| E-mail address: | m.grayson@mac.com |
| City, State, Country: | England |
| How did you find this site?: | Message Board |
| Comments: | Your website has really helped me. Today my wife and I found out that our baby has Trisomy 18.
Thank you for putting this website together. This is going to really help us over the coming months. |
| Name: | PA Fairbanks |
| E-mail address: | aungela@aungela.com |
| City, State, Country: | Monterey, CA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | You words were healing! I am so very sorry for your loss of Abigail. My husband and I are grieving due to the loss of our little one also diagnosed with Trisomy 18. It's been 2 weeks to the day and I just feel lost. The pain fills my body, my spirit and mind and I am trying desparately to cope. I ache and am trying to care about the rest of the world as I know I must re-enter society. Honestly, its very difficult to care about much else right now. I pray for healing! |
| Name: | Katrina A Lint |
| E-mail address: | KatrinaLint_2005@yahoo.com |
| City, State, Country: | Yakima, WA, USA |
| How did you find this site?: | Search Engine |
| Comments: | I just wanted to say thanks for this site! Right now they tested my baby for genetic problems and told me my baby tested high for trisomy 18. I had genetics counseling Friday and actually on Monday afternoon I have a level II ultrasound to see if they can see anything! I am scared and worried and hope this doesnt happen but because of you I feel if it does I might be able to get through it! I have also decided to NOT terminate the pregnancy if it has it. I am 16 1/2 weeks now and am due Oct. 9th, 2008. Anyways just pray that this doesnt happen and they find a cure soon! Thanks again for this site!! |
| Name: | heather |
| E-mail address: | hpierce@1earthlink.net |
| How did you find this site?: | Message Board |
| Comments: | i just want to say that all of you are very strong parents to do what you done.Me and my husband went through the process of this horrible sitiation. only we werent strong enough to do what you what you done.we termitated our baby early and its a horrible thing to live with. i wish i had could have this website before maybe i would have held my baby in my arms as yall did your little angel.i hope that other people gain knowledge from all this. the doctors told us are baby had no heartvalves,sist on the brain and severe downs and would not live . i know wish every day i could go back and hold my little angel just for aliile while. it does give me comfort to know theres other angels up in heaven like her to take care of her. thank you for your storie it gives me some comfort in my experience 4 yrs later im finally found some comfort through your stories. thank you. |
| Name: | Linda Morris |
| E-mail address: | hisittybitty@aol.com |
| City, State, Country: | Frederick, MD USA |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for sharing your beautiful journey. Your daughter is truly an angel! My neice is 4 1/2 months pregnant, and has been told that her baby is positive for Trisomy 18. I had never heard of it before and I have three daughters. Your story has explained alot to me about it, and I feel better prepared to help my sister cope with the future of her first granddaughter.
Again, thank you so much for sharing your story. Linda Morris |
| Name: | Erlita Verdoukas |
| E-mail address: | erlita@telkomsa.net |
| City, State, Country: | South Africa |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Words cannot discribe how I feel right now. God bless |
| Name: | Rudee Gourley |
| E-mail address: | rgourley@kc.rr.com |
| City, State, Country: | Shawnee, KS, USA |
| How did you find this site?: | Search Engine |
| Comments: | I came upon your site about a month ago after a sono-tech told my niece that she feared her baby had Trisomy 18. Our entire family was left breathless and scared. I forwarded your page to my sister in Oklahoma so she could read and share with my niece as much information as she could. A trip to the perinatologist gave only a 10% chance of trisomy 18, but an amnio was performed. Well, today we got the results and little Mackenzie does indeed have Trisomy 18. I found myself frantically searching for your web again, and praise God I found it!
Mackenzie is actually due until the end of July. Being of a strong Christian faith, termination of pregnancy is not being explored. We may actually get to hold her, feel her, bond with her, smell her sweet baby skin,and capture photos before she is taken to Heaven. Give us a minute, or more, and we will shower her with enough love to sustain her while thriving in Heaven with Jesus. Thank you for such a warm and inviting spot to go to for support and/or information. |
| Name: | Linda Talbott |
| E-mail address: | ltalbott777@yahoo.com |
| City, State, Country: | Elkins WV USA |
| How did you find this site?: | Search Engine |
| Comments: | What a wonderful experience to be able to say goodbye as you all did to Abigail.
I had a friend at church who was falsely diagnosed with trisomay 18 so I decided to read about it. The first site I looked at was Abigail's and she was a beautiful precious baby. I also lost two sons but was blessed until they were each 25 and died 4 years apart. I did not get a chance to say goodbye. I know they are with Jesus and am blessed beyond with this knowledge. God bless..... Linda Talbott |
| Name: | Betsy Henderson |
| E-mail address: | youbet6773@yahoo.com |
| City, State, Country: | Hattiesburg, MS, USM |
| How did you find this site?: | Search Engine |
| Comments: | I can't tell you what this sight has meant to me tonight. My cousin just delivered Mary Claire yesterday. At birth she was diagnosed with Trisomy 18. Right now, she is enjoying the company of her loving Mommy and Daddy. We don't know how long that will last, but I want to share this sight with my cousin. Thank you so much for being such an encouragement by so openly sharing your story. |
| Name: | Margo |
| E-mail address: | mathmurphy@roadrunner.com |
| City, State, Country: | Ohio |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for your webpage on Abigail. It was very encouraging. My daughter, Camryn, was born March 18th with Trisomy 18. She spent 3 weeks in the hospital before we were able to bring her home. She is still with us and appears to be doing okay so far. My husband's and my faith is strong, as is yours. We are so focused on her life right now. Many people expect to see us feeling low and sorrowful, but to be able to hold her and look in her eyes is so joyous! I thank the Lord for every day that she remains with us. God bless you all! |
| Name: | Pamela |
| E-mail address: | notur@hotmail.com |
| City, State, Country: | Fayetteville, NC, USA |
| How did you find this site?: | Message Board |
| Comments: | i dont have any children that have trisomy18 but your stories inspired me to raise money and try to find a cure for it... im so proud that all of you have been able to post your sorrows... |
| Name: | Heather |
| E-mail address: | heather@heathertate.com |
| How did you find this site?: | Search Engine |
| Comments: | I loved reading your story. It was so sad but it touched my heart. I have a friend going through this right now which is what brought me to your page. Her baby was born yesterday... and they are living in faith. I don't even know what to say to them or how to help. I just feel that I should do something. So I pray every time I think about them. Thank you for sharing your story. She was a beautiful baby and it really has touched me. I was always a Christian, but recently stepped out of my belief through trials. I blamed God for everything that has happened to me. Now I realize that it is life and life is so short to be mad. Listening to your story and my friend's situation, I now know that God's blessing is mysterious. We accept it with what we know how and share our knowledge with other people. I can't express to you how much I appreciate your story without comming into tears. You've lived through so much, but God was still there on your minds and hearts. You accepted it for what it was and thanked God for the life lesson. I think that is an amazing experience that I wish I could have learned earlier. So thank you! I've made up my mind to have God in my life again... and I will remember to treasure how precious life is. Thank you and God bless.
Yours truly, Heather |
| Name: | gemma louise |
| E-mail address: | lil_sxc_chick@hotmail.co.uk |
| City, State, Country: | portsmouth, england |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | your site is lovely it put me into tears, i also lost my baby to edward syndrome on december 10th 2007 an had her funeral on the 7th of january i had ust turned 18. the difference is is you got told what your beautiful little girl had and you must of been so upset as my daughter precious was diagnosed with T18 when i was 38 weeks pregnant as my midwife did absolutley nothing neither did my doctors to at least give me a 20 wk scan. unfortunatley my gorgeous little princess did not make it as had to give birth to her naturally and she gave up on me so it got the better of her. but no matter what she will always be loved so so much. me and my boyfreind and our family are currently working on souing the hospital for neglegence. our little girls are better off up in that special place called heaven as they are no longer in any pain. please feel free to email me back.
your faithfuly gemma RIP Precious and Abigail xXx |
| Name: | gemma louise |
| E-mail address: | lil_sxc_chick@hotmail.co.uk |
| City, State, Country: | portsmouth, england |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | your site is lovely it put me into tears, i also lost my baby to edward syndrome on december 10th 2007 an had her funeral on the 7th of january i had ust turned 18. the difference is is you got told what your beautiful little girl had and you must of been so upset as my daughter precious was diagnosed with T18 when i was 38 weeks pregnant as my midwife did absolutley nothing neither did my doctors to at least give me a 20 wk scan. unfortunatley my gorgeous little princess did not make it as had to give birth to her naturally and she gave up on me so it got the better of her. but no matter what she will always be loved so so much. me and my boyfreind and our family are currently working on souing the hospital for neglegence. our little girls are better off up in that special place called heaven as they are no longer in any pain. please feel free to email me back.
your faithfuly gemma RIP Precious and Abigail xXx |
| Name: | Lucy |
| E-mail address: | katiasmum@aon.at |
| City, State, Country: | Austria |
| How did you find this site?: | Search Engine |
| Comments: | Thankyou for sharing your beautiful photographs and memories of Abigail Grace. 27 years ago, when I was 3, my baby brother James also died from Trisomy 18, and although I dont remember the run of events at the time, his memory is always very poignant to me. Your website touched my heart and I'm sure the hearts of many others. God bless xxx |
| Name: | Autumn |
| E-mail address: | awaltons@sbcglobal.net |
| City, State, Country: | Hutchinson,KS |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for your website. You don't know how much reading your stories has helped me. Our third child, due May 29 was just recently diagnosed as t18. I'm sure I will continue to turn to your site in the months ahead. |
| Name: | shelly |
| City, State, Country: | Ohio |
| How did you find this site?: | Message Board |
| Comments: | Your site has been very helpful to me. I have a friend greiving and don't know how to help. Thank you for your bluntness and how to help. Thanks |
| Name: | Melissa Johnston |
| E-mail address: | melissajohnsmail@yahoo.com |
| Homepage URL: | http://www.caringbridge.org/visit/audreyjohnston |
| City, State, Country: | Minnetonka, MN |
| How did you find this site?: | Search Engine |
| Comments: | Hi there,
I just found your site tonight when I was taking a study break. Our daughter, Audrey, went to heaven on August 29, 2007 after suffering complications of T18. We did not find out until three days after she was born what she had. She lived for 43 days and changed my life forever. I have been grieving off and on for the past six months are really try to be thankful for the blessing that she was and still is. Your stories have inspired me and it is oddly comforting to read other people's posts. Thanks and take care. |
| Name: | Jonathan Williams |
| How did you find this site?: | Search Engine |
| Comments: | Hi both. Our baby has been diagnosed with Edwards Syndrome. Baby to be born by cezarian on March 17th 2008, so its less than two weeks. Im only 25 im scared, as is Sarah ( babies mother) i do feel bitter but at the same time i believe God has a plan for everyone and everything happens for a reason. Your story was very touching. I just hope that whatever time we get with out little girl (Ella Rose) she is comfortable. I will miss her but ill be strong as i can for her while she is here. Thank you for helping me with your story- Jon (Jwdax@aol.com) |
| Name: | Caylin Hearn |
| E-mail address: | cayliebug@yahoo.com |
| City, State, Country: | Alabama |
| How did you find this site?: | Search Engine |
| Comments: | My 16-year-old sister found out in October that she was pregnant. She has been having a hard time with that. The baby is due in June. I was angry with her for the longest time because the father is my exboyfriend. I finally got over that fact and began to get excited for her and supported her. Last week the baby was diagnosed with Trisomy 18. We are all very afraid. I feel that my sister will not be able to handle this at her young age. If you have any advice it is welcome. |
| Name: | Ashley Ross |
| E-mail address: | ash_ross05@hotmail.com |
| City, State, Country: | Flandreau, SD, USA |
| How did you find this site?: | Search Engine |
| Name: | Joyce DeWinter |
| E-mail address: | tpdewinter@dslextreme.com |
| City, State, Country: | Sacramento, CA, USA |
| How did you find this site?: | Message Board |
| Comments: | Thanks to your website I have become educated. My daughter recently found out that my granddaughter Lauren Elizabeth Van Doren may have Edwards Syndrome the next ultra sound is Wednesday February 13, 2008 I pray that we will have the strength to deal with the outcome.
Thank you and God Bless |
| Name: | Consuela Williams |
| E-mail address: | glornobl@aol.com |
| City, State, Country: | Bedford, Ohio United states |
| How did you find this site?: | Other |
| Comments: | My brother and his wife are newly weds and is expecting their first baby. They were overjoyed that they were having their precious angel, a little girl to be named Hayle McKenzie, but the joy was short lived. My sister in law just told us three days ago that my niece has a rare chromosome condition Trisomy 18. I am so confused I thought maybe she would be okay, but she is not. My brother and his wife is so confused, because they wanted this for so long. Your courage has inspired me and my family. Thank you so very much. |
| Name: | Megan |
| E-mail address: | mcoltman@iafrica.com |
| City, State, Country: | Johannesburg, South Africa |
| How did you find this site?: | Message Board |
| Comments: | Dear Mindy
Thank you som much for sharing your grief journey. I am finding it very helpful. It is 4 and a half months since my baby Luke died and I am still really struggling and feel like I am losing it at times. When I read your entries I see that so many of my feelings are like yours were and I don't feel so alone and insane anymore. I think God is using you to help me because He feels very far away at the moment in terms of other comfort. I am very angry at times, something I have never struggled with before but I see you were as well. Thank you for being so honest. No one else here truly understands, not even my husband, you have no idea how much it helps to know that you understand. Thank you. Love Megan |
| Name: | Jennifer Tigges |
| E-mail address: | producer@videocreations.com |
| Homepage URL: | http://www.videocreations.com |
| City, State, Country: | Dubuque, Iowa |
| How did you find this site?: | Other |
| Comments: | I noticed on my website logs that you are referring to us. Thank you so much for being so strong and sharing with so many others. I feel very blessed that you choose me to help with your slideshow of Abigail.
Keep sharing your strength, faith and wisdom. You and your family are great! Jennifer Tigges |
| Name: | monica |
| E-mail address: | skyyoung@bellsouth.net |
| City, State, Country: | ft.pierce fl |
| How did you find this site?: | Message Board |
| Comments: | god bless you and you're family
i'm a newborn nurse ans if i have another trisomy 18 baby at work i'll have more info to help the parents,we had a special couple have a girl a couple years ago and she lived about 5 months.i'm glad you had some time with abigail grace. bless you all. |
| Name: | Ivonne Belonzi |
| E-mail address: | RIABEL@OPTONLINE.NET |
| City, State, Country: | NEW YORK |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | My husband & I received an e-mail from our good friends on Thursday that they went for a routine sonogram and received the news that their baby has an extra chromosome and has a very serious heart and brain problem. The doctors are telling them the baby may not survive past delivery and if it does it will only be a few days. They have decided to go to term and have the baby. I knew nothing about this so I searched the Internet and found your web site. I am so sorry for your loss but I thank you for letting others know about Trisomy 18 and for sharing your pictures. Here are 2 poems I would like to share. God Bless you and your family.
Ivonne Belonzi I'm just a little baby Who didn't quite make it there; I went straight to be with Jesus But I'm waiting for you here. Don't you fret about me mommy I'm of all God's most blessed I'd have loved to stay there with you But Heavenly Father knows what's best. Many who dwell here where I live Waited years to enter in, They struggled through a world of sorrow And their lives were marred with sin. So sweet mommy don't be sad, Wipe those tears and chase the gloom, I went straight to be with Jesus, From my lovely mothers womb. Thank you for the life you gave me, It was brief but don't complain; I have all of heaven's glory Suffering none of the world's pain. Thank you for the name you gave me, I'm thankful for all you've done. I'll be waiting here for you In heaven up above. I would have loved to stay with you, And lived life by your side, But the Lord has called me home, I know it's hard to understand why. Thank you mommy for making me, You made me out of love, I can't wait for the day I see you again So you can see what I've become. I'm an angel here in heaven, The Lord's here by my side, He wants me to let you know He's sorry he made you cry. He has a plan for me up here, And a plan for you here too, Someday we'll be together again, And this I know is true. ________________________________________________________ Daddy, please don't look so sad, Mama please don't cry~ "Cause I am in the arms of Jesus And He sings me lullabies." Please, try not to question God, Don't think he is unkind Don't think He sent me to you, And then He changed his mind. You see, I am a special child, And I'm needed up above I'm the special gift you gave Him, The product of your love. I'll always be there with you And watch the sky at night, Find the brightest star that's gleaming, That's my halo's brilliant light. You'll see me in the morning frost, That mists your window pane. That's me in the summer showers, I'll be dancing in the rain. When you feel a little breeze, From a gentle wind that blows That's me, I'll be there, Planting a kiss on your nose. When you see a child playing, And your heart feels a little tug, That's me, I'll be there, Giving your heart a hug. So Daddy, please don't look so sad, Mama don't your cry. I'm in the arms of Jesus And He sings me lullabies. |
| Name: | Jackie |
| E-mail address: | jyehia@forbeschochla.com |
| City, State, Country: | Canada |
| How did you find this site?: | Message Board |
| Comments: | God Bless your little Abigail. She is an angel. My baby has been diagnosed with Trisomy 18. I feel like my world is crashing around me. I wish that I had the strength that you did. |
| Name: | Jenn |
| E-mail address: | jhfj13@aol.com |
| City, State, Country: | cape cod, MA, United States |
| How did you find this site?: | Search Engine |
| Comments: | I am pregnant with my second baby and on christmas eve we had a early ultra-sound and found out by phone the day after christmas that our baby might have a spinal defect and a abdomen wall defect. We didn't know what that meant but it didn't sound good, So we cried alot and waited for docter to call. He sent us to Boston for another ultra -sound. The Docter in boston said our baby most likely had a chromsonal disorder because there were so many defects. she said our baby was going to die most likely in the womb or soon after birth. We had a cvs done to find out what chromsonal problem the baby had a week later we were told it was full trisomy 18. The first week was very tough we cried all the time and we didn't know what we should do the Docters at the hospital almost made us feel at first that terminating was our only option. After reading your story I felt more at peace in choosing to continue with the pregnancy, at first i was afraid that it would be to hard to have a baby and then loss the baby. I now feel that i want the chance to meet my baby what ever the outcome.
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| Name: | Ronni Cash |
| E-mail address: | ronnicash@clearwire.net |
| City, State, Country: | Tacoma, wa United States |
| How did you find this site?: | Search Engine |
| Comments: | I decided to write my story while i sign the book becuase your story was so precious and just yesterday i found out that my quad screen came back positive for Trisomy 18 1:42 probability.. just finding this out yesterday, my heart is aching and i have had nothing to really go on until i found this site.. All of the other information i was searching was all devestation.. i am so glad and a little bit releieved that there is some hope.. i have not seen all the specialists yet but i am on my way to all of that next week.. i am so scared.. i am 27 years old with one daughter already and three heathly boys.. None of my children have ever had any typr of heath problem.. I have been ripped through emotions through the past 3 months after finding out i was pregnant and am not supposed to be in the first place.. My tubes were supposed to be cauterized and come to find out they did not do the cauterization (which is a medical error they did the wrong sugery with out my consent) I have bilateral filshie clips in me and 15 months later i became pregnant.. i was already 2 1/2 months along when i found out i was pegnant, even when i was feeling like i was pregnant the doctor said no way hun, you cant get pregnant cause you had the surgery that doesnt make mistakes.. Although it was news to him that the hospital and the surgeon that did the surgery decided to put clips in and we never knew.. so my pregnancy was a miricale and i so enjoy being a mommy.. kids are great, the absoulute best gift ever. I decided not to have any more cause i am a single mom and i dont want my kids to lack my attention by having to many of them.. With all of that i also have chronic anxiety, and fibromyalgia, i already have to take pain meds and had to stop taking my anxiety meds right away.. my heart has not stopped racing and i am so scared, i hope for the best and all i keep reading about is that abortion is the best optoion cause these babies suffer so much.. i did not have an abortion when i found out, and then i research abortion at 6 months and that ripped my heart out.. do you let them suffer and try to hang on???? i dont even know for sure what is the outcome but i have to say thank-you to all of you who have wrote their experiences down hear, for i read all of them... My heart is here for all of you and i pray that things go the way they are supposed to, although i am trying to remember this is not for sure and i am still pregnant and i have to stay calm for the baby right now.. I will keep you all updated, thank you so much for making me feel a little peace it helps so much.. Love Ronni Lynn Cash |
| Name: | Helen Smith |
| E-mail address: | helen.hornbeat@sky.com |
| City, State, Country: | Oxfordshire England |
| How did you find this site?: | Search Engine |
| Comments: | We didn't find out that our Abigail had Edwards until after she was born although my triple blood test had shown she would be but thats by the by. I read your journey with interest and was amazed how much our Abi looked like yours. Our Abi lost her fight on January 1st 2008 and we are in the process of organising her farewll. Your site has helped through the last few weeks and I'm sure it will continue to.
Many thanks Helen and David |
| Name: | Laura |
| E-mail address: | admin@portmedicalcenter.com |
| City, State, Country: | Texas |
| How did you find this site?: | Message Board |
| Comments: | I found your website when my baby was diagnosed at 16 weeks by amnio as a full T18. I had nver heard of Trisomy 18 and was so happy to find your website. While I was in denial, I had so many questions and fears. My Dr's were pushing me to terminate my pregnancy and after I read your journey you describe every emotion I was feeling. I decided to carry to term. The good Lord had other plans as on December 17, 2007 my baby's heart stopped. He was delivered on December 19th. Now, I just finished reading your first month of the grieving process...and it's again a mirror image of my feelings and emotions.
Again Thank YOU! You have been an inspiration and a wealth of knowledge. Laura |
| Name: | Leticia Douglas |
| E-mail address: | leticiadgls@yahoo.com |
| City, State, Country: | St. Johns.Az U.S. |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Dear Marie:I was told about the positive results on my blood test for trisomy 18 2 weeks ago,I have never heard about this illness before,I'm 36 years old and just found out this exists.When I started to look for information about this on the internet mostly found web sites with medical facts,big words a little bit complicated to understand,I felt so alone with my husband on this dificult moment.I really thank God for finding your site wich is rally a more human aproach that touches what the whole family goes trough,I didn't tell my 10 year old about it because I still have hope that my baby girl will be fine,the ultrasound I had didn't find any markers of it and I'm having a second more detailed one on Jan 7.My baby boy is 2 and half years old but I know that if this is truth it will affect him too.We didn't want to have an amnio done either,because that will not change anything,we will not terminate the pregnancy.so there is not much sense to it.We thank you from the bottom of our hearts for sharing that important part of your life with all the parents that really nedeed some information and support.Thank you ,your husband,your kids and specially THANK YOU ABIGAIL GRACE!!!! |
| Name: | denise frisbie |
| E-mail address: | denise.flgal@gmail.com |
| City, State, Country: | leesburg, fl |
| How did you find this site?: | Message Board |
| Comments: | I wrote to you when i was about 23 weeks pregnant after having test results show positive for trisomy 18 and/or down's syndrome. Update...we now have a beautiful 7 month old boy with no medical problems at all! He is perfect and the most adorable boy ever (besides my other children). Just wanted to thank you again for your informative site which proved helpful to us in the waiting period prior to his birth. |
| Name: | Mary |
| City, State, Country: | Lancaster PA |
| How did you find this site?: | Search Engine |
| Comments: | I have a myspace friend who is pregnant (whose baby has been diagnosed w/trisomy 18) . I read much of this w/such a heavy heart. It is amazing the perspective you have, the love you have, the compassion , and the whole way you handled everything. I hope I can be half as strong if/when I am faced w/any kind of adversity. Your feelings seeing other babies was compelling .
I wish you much health and happiness. |
| Name: | Wendy |
| E-mail address: | loveya1927@hotmail.com |
| City, State, Country: | weymouth massachusetts |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for your pages and information about Trisomy 18. 24 years ago I was 19 and my baby girl, Shannon Lee, was born with T18. She lived 3 days. At that time there was very limited infortmation availible for me. It made losing her more difficult not having any understanding as to what happened and why. Your page is a great gift to all families going through this loss. Thank you for sharing Abigail with all of us... |
| Name: | Anne |
| E-mail address: | adimeler@allaroundphilly.com |
| City, State, Country: | Middletown, PA, US |
| How did you find this site?: | Other |
| Comments: | My best to you and your family. Abigail is so beautiful.
We just found out that my niece my be carrying a baby with T18. Someone gave us this link. I haven't got to read it all yet, but I will. I am crying as I do this. You are so strong. Thank you so much for sharing your story, I believe it passes along some strenght to those who need it. God works in many ways. I will give this link to my sisters as well. I'll be back too. Thank you so much and May God Bless you always. Love, Anne |
| Name: | carolina |
| E-mail address: | babygurl_27_10@hotmail.com |
| How did you find this site?: | Message Board |
| Comments: | Hey i have a sister with the same problem as Abigail. She is 5 months old already. I told my mom about your beautiful Abigail. She told me that she wanted to create a website for my sister too . i felt really bad when my mom told me that my sister had Trisomy 18. I had this really bad depression. And not even to talk about my mom . I had to be strong for my mom, because everybody was telling me that my mom said that i was the one that made her strong. So i could never really tell her how i felt about the problem because she would brake down crying. And i still dont talk about it that much. I dont cry infront of my mom either , i always go cry in the restroom or my room so she wont see me. Well i got to go bye
GOD BLESSED YOU AND YOUR FAMILY WITH A BEAUTIFUL BABY. SHE IS SO PRETTY. |
| Name: | teresa dunnigan |
| E-mail address: | teresald@fidmail.comrolla mo usa |
| City, State, Country: | rolla mo usa |
| How did you find this site?: | Search Engine |
| Comments: | my son and his wife are expecting in april 08
my daughter in law is 38 she has had many miscarriages during her first marriage due to this fact she does not really want amniocentises but is now thinking of doing this procedure.she was told she has a 1 in 61 chance of edwards syndrome -i am not sure how the dr came to this conclusion we need more info |
| Name: | lisa rosier |
| E-mail address: | baby.1407@hotmail.com |
| Homepage URL: | http://MSN |
| City, State, Country: | starke fla. USA |
| How did you find this site?: | Search Engine |
| Comments: | I myself have a 10 month old with trisomy 21. though he is very healthy I can some what understand your thoughts throughout this journey. We also had to face the to terminate or not to terminate desicion. And also the amneo test. we didnot have the amneo either because we decided to deal with what ever god gave us. My prayers and blessings for you and your family. Our little boy is great and parents who decide to keep their baby are in for a very emotional yet very rewarding experiance and will for ever be changed reardless of the outcome. We will include a prayer to abigail and her family in our daily prayers |
| Name: | cassie green |
| E-mail address: | cassie_soccer13@hotmail.com |
| City, State, Country: | Nebraska |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I am doing a paper for !0th grade honors biology on trisomy 18. When looking on this site it makes me sad to think that so many have lost lives. If there is anything i can do please email me |
| Name: | Misty Long |
| E-mail address: | cbjgirl2003@yahoo.com |
| City, State, Country: | Paragould AR |
| How did you find this site?: | Search Engine |
| Comments: | I found your website while researching Edwards Syndrome. My son's football coach and his wife have a child with it. I was curious what exactly it is. I have a child born with a birth defect so I am naturally curious about hese things. I would like to say for anyone reading this who may be expecting a child with Edwards, that the child I know is now 6 years old. From what I understand it has not been easy on him but it seem she lives a farely normal life. He actually attends school with the help of an aid. I was very touched by your story, I cried while reading it. I now have a 4 week old with collic and while feeling at my witts end today I am reminded what a blessing it is that I have him here with me. I wish your family the best. |
| Name: | Marquita Brooks |
| E-mail address: | marquita_brooks@hotmail.com |
| City, State, Country: | Orange,Tx. |
| How did you find this site?: | Other |
| Comments: | Thank you for sharing your story with me. On October 18,2006 I gave birth to a precious little girl and she was diagnosed with trisomy 21, she also had an AV canal which is a hoe within the heart that would not close without open heart surgery. she was scheduled for surgery once she made a year but the lord had a different plan in mind, Adrianna went back home to god on March 31,2007 she was with me for 5 months and this is a time that will never be forgotten. It gives me strength to talk about this to others and if at any time you need someone to talk to I am always available and my email address is www.marquita_brooks@hotmail.com feel free to email me at any time it will give me strength to talk to you and hopefully it'll do the same for you. Lil Abigail is alright and she will never be forgotten so keep your head up and remember I am praying for you and your family. |
| Name: | Kortnee Clark |
| E-mail address: | kortnee_rasberry@hotmail.com |
| City, State, Country: | Pine Bluff, AR, USA |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing your story with me. I am a 22 y/o mother and wife. On Jan. 25, 2005, my husband and I lost our first child to trisomy 18, Destanee Clark. I found your page while searching for material on the genetic disorder for a speech that my husband is preparing for. Since trisomy 18 is rarely heard of, he is sharing and informative speech on it to his oral communications class. I applaude your courage for telling your story. Thank You. It is people like you that help me endure my situation.
K Clark |
| Name: | Terry |
| E-mail address: | phatyg@windstream.net |
| City, State, Country: | Georgia, USA |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for including "Professionals" on your site. I'm an OB/GYN nurse and the information you've included has given me great insight to how families in my care may be feeling and what I can do to truely help.
God Bless, Thank you! |
| Name: | Lisa |
| E-mail address: | skyshoreprints@yahoo.com |
| Homepage URL: | http://www.skyshoreprints.com |
| City, State, Country: | Westlake Ohio USA |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing your little angel with us. I was so very touched by this site. Infant loss well there are no words. May God's blessings cover you and yours |
| Name: | Lynne Curtis |
| E-mail address: | Lynneclark@spa.net |
| City, State, Country: | Saratoga Springs,NY |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | Thanks you for this wonderful site. I am sue it has been a comfort for may
I am a minister who is forming a Christian nondenominational grief support group for those who are grieving the loss of a baby through miscarriage still birth or infant detn. I would love to be able to hand out copies of the very beautiful and moving poems and music lyrics which you have on your web page but do not want to infringe on any copyrights. This matierial will not be published in a book and no fees are charged to participate in our group - we just try to offer the love and support of Jesus and His Church to those who are so in need of His healing touch. God bless you in your continuing ministry |
| Name: | Danielle |
| E-mail address: | oliviaflower4@gmail.com |
| How did you find this site?: | Search Engine |
| Comments: | I just want to thank you for the page you have for friends of those who have lost a baby. My heart is breaking for 2 of my best friends who just went through a still birth. I'm so sad for them - for the pain they're going through that I can't even begin to fathom. Your site reminded me that I'm doing all I can - while I wish there was some way for me to take away their pain or DO something - there's nothing I can do but listen and love them and be there for whatever they need. The one other thing I realized is that all of their friends will need to rely on each other for support, too...I'm greiving myself, but I don't want to burden them with that. I'm just so heartbroken. |
| Name: | Michelle H |
| City, State, Country: | Phoenix, AZ, United States |
| How did you find this site?: | Other |
| Comments: | Thank you for sharing your heart touching story of faith and trust in the Lord; and his grace to your family for the few days you were able to cherish with your beautiful Abigail. |
| Name: | Cristine |
| E-mail address: | CristyB12@aol.com |
| Homepage URL: | http://aol.com |
| City, State, Country: | USA |
| How did you find this site?: | Search Engine |
| Comments: | As a somphmore in highschool i was told to do a project on this trisomy 13 i had no idea what it was. I thought prehaps it had some sort of treatment and the children with it could live very suscessfull lifes. I was devistated to find out what trisomy 13-18 was a death sentance but then i rembered about god. When my couson of 2 days died from a heart defect i remeber my sister saying the most wonderfull thing..she said that she dint die we were just sending her in a box back to god. You have a beauitfull family and little abigail grace was the cutest and for you mostly the biggest joy god has every granted you.Thank you so much for sharing th is wonderfull heartfelt story God bless your family in all that you do. |
| Name: | Michelle L. |
| City, State, Country: | PA, USA |
| How did you find this site?: | Search Engine |
| Comments: | I was very moved by your story. I, too, had a daughter born with a birth defect that was incompatible with life. My husband and I chose to let nature take its course, and not interrupt her life. She expired 1 1/2 hours after birth. My eldest son never knew his sister because he was only three. However, he and his brother ( born 1 year after his sister) know of her and have seen her pictures. While the pregnancy, birth, and funeral took its toll,we have never regretted our decision. Our daughter would have been 17 years old this past May. We never forget, but her birth reminds us that we never have total control over life. God bless you all.
|
| Name: | Erin Lafuente |
| E-mail address: | thelafuentes@mac.com |
| City, State, Country: | Edmonton, AB, Canada |
| How did you find this site?: | Message Board |
| Comments: | Thank you so much for sharing. I lost my baby girl to stillbirth two months ago for an unknown reason. Your story of the circus is so touching and captures how I'm feeling now as my sister and sister-in-law have just had baby girls too.
Also, I wanted to share that my sister was born in 1983 with Triomy 18. We were lucky enough to share 6 1/2 months with her. She had an amazing and joyous impact on our family in her short time with us. I can imagine how blessed Abigail made you feel. God Bless. |
| Name: | Tammy Miller-Lee |
| E-mail address: | tammymiller01@yahoo.com |
| City, State, Country: | Kingwood, Texas USA |
| How did you find this site?: | Search Engine |
| Comments: | I am 33 weeks pregnant and was confirmed by Amnio on Monday, Oct. 29, 2007 that our son, William Frank Lee III due to be born Dec. 20, 2007 has Full Trisomy 18.
With many emotions I have searched the internet for as much information as I can. This has been a wonderful website - thank you. |
| Name: | Linda Contreras |
| E-mail address: | contra@sti.net |
| Homepage URL: | http://johnnievincentsoares.remembered-forever.org/ |
| City, State, Country: | Coarsegold Ca, USA |
| How did you find this site?: | Search Engine |
| Comments: | Beautiful site and story. Thank-you for sharing it.
I lost my 18 year old in an accident. Your mountain story reflects my feelings also. |
| Name: | Agatha |
| Homepage URL: | http://cremede.blogspot.com |
| City, State, Country: | UK |
| How did you find this site?: | Message Board |
| Comments: | Mindy, this is an outstanding site that you should be very, very proud of. Thank you for sharing Abigal's life & death in such an articulate manner. |
| Name: | Lisa |
| E-mail address: | smfry75@yahoo.com |
| City, State, Country: | Princeton,In USA |
| How did you find this site?: | Search Engine |
| Comments: | I have a twin sister whose baby didn't make it past 6 wks, she did not have trisomy 18 but a differnt genetic disease. My friend Kyla just found out that her baby she is carrying has trisomy 18, & they are going to run more tests on her. I was looking up to find out some facts about the genetic disability & seen little Abigail's story. She is a very beautiful little girl, I know you guys are very proud. I am so sorry for your loss.
Lisa |
| Name: | Lequanna |
| E-mail address: | LequannaHiggins@aol.com |
| City, State, Country: | wilmington,nc |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I have a daughter with trisomy 18 she is 19 months old |
| Name: | Eleanor |
| E-mail address: | eleanorengland@btinternet.com |
| City, State, Country: | England |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I wsa really moved by your story.
My baby, Darcy, was born on 7th September 2007 and lived for 4 precious days -for which we are very grateful. We had some soft markers in pregnancy but opted out of diagnostic testing. She was beautiful and didn't have the obvious features we were expecting -except one overlapping finger. Sadly we never got to bring her home to live with her 3 sisters but we held her in our arms as she died. She will always be a very special part of our family. |
| Name: | AH |
| How did you find this site?: | Search Engine |
| Comments: | I am a pastor's wife, and a family in our ministry has a new baby boy born just this morning with Trisomy 18. In my research this evening to understand what they face, I found your site. Thank you so much for sharing your heart here. I need a resource such as this. God, in His perfect sovereignty, has brought three families into our ministry in the last two months who have recently faced or are now facing the loss of a child.
We have no children ourselves, having experienced nine years of infertility. I found myself identifying with some aspects of your grief, and it was a comfort to me to read of someone's experience with which I could identify. So thank you so much--for helping me as I seek to minister to these hurting ones and for helping me feel not quite so alone. |
| Name: | Laney |
| City, State, Country: | Bronx, N.Y |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | You and your family are an inspiration.
Bless you |
| Name: | Shadyrok |
| E-mail address: | shadyrok@msn.com |
| City, State, Country: | Rahway, NJ, USA |
| How did you find this site?: | Search Engine |
| Comments: | I am friends with a family of a Trisomy child. She has managed to fight her way to about 15 months of age. She is now very close to the end of her struggle. She is in hospital since Sunday (today is Tuesday) She has coded 3 times, she has double pneumonia from aspirating, her heart is failing, her kidney's are just about shut down and there is little hope remaining. She has already beaten the odds by more than a year. She is already a true miracle. Now it seems to be time for her to go to be with the Lord. I'm not all that worried about her really I'm not. It is the family I worry about because they're just not ready and they don't have a saving knowledge of Jesus nor do they have that peace that passes all our understanding. So If you're reading this (10/2/2007) Please pray for them... |
| Name: | Averil Walker-Hislop |
| E-mail address: | averil.walker@yahoo.com |
| City, State, Country: | Edinburgh, Scotland |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | My daughter lost 3 little boys in the space of a year.Abigails' site has been an amazing comfort to all of our family.Thankfully,and by Gods grace, my daughter delivered a wonderful 8lbs baby boy in February of this year.We share the pain of he loss of your beautiful baby Abigail,and like our grandsons,we will keep her in our prayers.May God bless you all, Averil,Iain,Hayley,Steve and baby Leon x |
| Name: | KECIA HOLBROOK |
| E-mail address: | kholbrook@habersham.k12.ga.us |
| City, State, Country: | GEORGIA |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | I to had a son who passed away in December of 2001. I was at 38 weeks and had just went to the doctors the week before and he was alive. The next week when I went in he was gone:( There was no explanation of his death. I began asking the nurses you know how much does he way how long is he? When the nurse looked at me and said he weighs 3lbs. and 12oz. I said there was something wrong somewhere.....my son Chade made baby boy #4 to pass on from my husbands side of the family. There were some blood type problem wrong with one and the other had like Reyes Syndrome and then one died from SIDS at the age of 6 months and then there were no explanations as to why my son Chade passed away:( I know in my heart that god choose him as his special angel and that whatever the problem was that god took care of him and he will never have to suffer or be sick:) I've just got all these things that run through my head and I feel like alot of it is still just wanting an answer from someone not just a well sometimes things like this just happen. I will pray for your family each and every night and remember your precious angel also. She was definetly a sweet baby who will never be forgotten. |
| Name: | Lynda Campos |
| E-mail address: | mike.lynda@sbcglobal.net |
| City, State, Country: | Salinas, CA , USA |
| How did you find this site?: | Search Engine |
| Comments: | My daughter delivered identical twin girls at 37 1/2 weeks on August 30th. Abigail Marie and Emily Elizabeth were 5.3 lbs and 5.5 lbs, respectively and 17 inches long. Abigail had a severe diaphragmatic hernia, which we knew would be problamatic. She was not able to take a breath, and passed swftly after delivery. Little Emily was stronger and seemed as though she would spend some time with us, however, God gave her angel wings eleven days later after a valient fight on her part. They were both the most beautiful babies I'd ever seen.
God bless all of you and your little ones... |
| Name: | Jasmine |
| E-mail address: | jasmine_willetts@hotmail.com |
| City, State, Country: | New Zealand |
| How did you find this site?: | Search Engine |
| Comments: | Hi, thank you so much for this site and for sharing Abigail, her story and beautiful photos with us. I had a miscarriage recently in the 2nd trimester. We had our baby tested and it seems she had a chromosomal disorder, most likely trisomy 18. Seeing this was so special for me as it gave me more of an understanding of her condition, an idea of what my little girl may have had and what she would have looked like.
Thank you so much and God bless you! |
| Name: | donna daws |
| E-mail address: | m.daws229@btinternet.com |
| City, State, Country: | england |
| How did you find this site?: | Search Engine |
| Comments: | my heart goes out to u my nephew partner is carrying our new baby but our baby has the same he is due in 4 weeks life will be hard as the past months have been but what ever happens our baby stephen will be loved hope he meets abigail in the after life , cos doesnt happen to many little boys but he will be special to us all no matter how long we have him he will be blessed with a the time we have him
my heart goes out to u & u family but u have a special bond |
| Name: | Elizabeth Mclean |
| E-mail address: | bettt.mclean@btinternet.com |
| City, State, Country: | northern Ireland |
| How did you find this site?: | Search Engine |
| Comments: | hi ,
23 years ago I gave birth to a baby girl I named her Joy Elzabeth Gloria, big name for such a tiny baby, 4lbs 3ozs. She also had Trisomy 18. I had three sons and now we had our little girl.I got abig shock when we were told that she did not have a very good prognosis. For the next 19 days we had our daughter, I would like to say that my daughter was a blessing for us and we wll never forget her just like you will not forget Abigail God bless |
| Name: | Teresa |
| E-mail address: | campingmemaw1@hotmail.comq |
| City, State, Country: | Ar. |
| How did you find this site?: | Message Board |
| Comments: | I accidently stumbled onto this site and I am greatful I did. I am writting because my daughter is expecting her second child she is about 4months along and just found out that her lab works shows something is wrong and well they went back today for more testing and they told her that the baby could have Trisomy 18 and are sending her her in a couple weeks to get some more intesive ultrasound done and I am not really sure of what all else is going on but something tells me they are holding back something, and I am afarid that is because she doesn't want to tell me too much with me having seizures. My main question is if the lab work shows something is wrong and they wanted her back in for more testing and then right off the bat they tell her all this what are the chances that the baby really does have this and is it because it because my epilepsy was passed on down to my darling grandbaby to be? I am just so mixed with so many different feeling going on I don't know what to think. I can only imagine what she is going through because when I was pregnant with both of my daughters they tried to convince me neither one of them would survive and if so they would have severe proublems due because of all the meds I take but both of them turned out just perfect. And I keep telling that Dr. I would not abort because God was gonna take care of them, and he did. But the feeling of not knowing is something hard to describe if you have never been through that situation. |
| Name: | A Dad |
| Homepage URL: | http://dah_veed.livejournal.com |
| City, State, Country: | Minneapolis, MN |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Our daughter Nora lived 42 hours with multiple complications from Trisomy 18. We are not religious, but we will always feel grateful for the brief time we spent with her. She inspired us so much in such a short time.
Though your site has a great deal of religious content that is not appealing to me personally, I was comforted to hear your story. Thanks! |
| Name: | Carol Chapman |
| City, State, Country: | Kirksey, KY USA |
| How did you find this site?: | Search Engine |
| Comments: | We just found out today that our nephew's unborn baby has Edward's disease. I had never heard of it and was looking for information and found your site. I have wept while reading your journey but was most impressed with the way you worded everything about the church and your faith and being christians. Being a member of the church the lord died for makes obstacles easier to bear. We have someone to lean on in our time of need. Hope others reading your site will see how your faith has helped you and will become christians if they are not already. Without God we have no hope of eternal life so we can meet those who have gone on before us. May God continue to bless you through his word and prayer. |
| Name: | Hilary |
| E-mail address: | milligan790@btinternet.com |
| City, State, Country: | Northern Ireland |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | My baby son Mark would now be 15 years old ,, i had an emergency c section on the morning he was born in June 1992.Up until that point i was so very happy to be carrying my first child, all my love and hopes and dreams had ,or the previous nine months,been chaneled into my baby bump.At no point had a doctor or scan saw anything untoward about my baby's health.So when i came around from my c section and was told that my baby boy was very poorly and was being taken to a neo natal unit 30 miles from me i was distraught.I only saw his little body briefly through the incubator for a few seconds before he was whisked away from me.I was told i would be taken to the new hospital the next day as i was deemed to poorly to travel on that first day.My promised next day with my precious son never came as he passed away 4hours and 35 minutes after his birth.I never got to hold my lovely son or kiss or hug him or tell him how very much i loved him..and still do love him .The pain and heartache was so severe that at times i thought i would never get over his death..in fact i now think you dont "get over it " you just learn to adapt and live with your grief.For any one who is faced with this terrible pain and loss i would say insist that you see your baby and get to hold your lovely child for i felt empty arms syndrome for years after Mark passed away.I thank God that i went on to have a second son who is now 8years old and that i have been given the chance to know happiness with a child of mine on this earth.I know my baby Mark is safe in God's care and this now helps me greatly as i know his life on this earth, as a result of Edwards Syndrome would have been hard for him and our family .I have never shared my loss like this before and i thank you for having this site and enabling parents like me to do so in this way...
"" A mother holds her child's hand for a short while - their heart forever" Mark you will be forever in my heart .God Bless you and keep you safe my little darling. |
| Name: | Christine |
| City, State, Country: | Newman, CA USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Abigail's story really touched my heart. What a devastating loss.
http://www.findagrave.com/cgi-bin/fg.cgi?page=gr&GSsr=41&GSmid=46771543&GRid=21133548& |
| Name: | Nicole |
| E-mail address: | nkothlow@sasktel.net |
| City, State, Country: | Prince Albert SK, Canada |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I have just found out that my nephew has Trisomy 18. The difference in my story is that my brother's wife is pregnant with twins (both boys) and as far as we know only the one has Trisomy 18. Furthur testing soon will determine the other twin who is believed to be healthy. Therefore in this situation they will have one that survives and one that doesn't. I found your story very helpful as I have lost a child of my own at 16 weeks. I had to deliver him knowing that he was already gone to be with Jesus. And although this has happened to me I cannot compare my own story with theirs. So Thank You for your story and suggestions. I will try to use them wisely as I make this journey with my brother and his wife.
Sincerely Nicole |
| Name: | Anna Lisa G. |
| E-mail address: | pennylex@sbcglobal.net |
| City, State, Country: | Zapata, Texas USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | After preparing her whole life for her first child, my sister did not find out until some weeks after his passing, exactly what it was that her son was born with. This turned out to be Trisomy 18. My sister had been told up until her 5th month of pregnancy that everything was "spot on". Although my nephew's sex had been almost impossible for ultrasounds to distinguish, nothing had prepared any of us for the news we received when she had been asked to take in a video to record the baby during a 3-D ultrasound when she was about 6 1/2 months pregnant. What the doctor told her was that my nephew Carlos Jesus was not developing properly, escpecially his lungs. Within a month, my sister had been to genetic counseling where they only told her that he had limited mobility and would not be able to lead a normal life, especially since one of his legs was completely rotated at the wrong angle. She was in the process of making all arrangements, since she was to deliver 3 1/2 hours away from where we live. At 34 weeks, my sister's water broke at 1:00 AM. My brother-in-law rushed her to the closest hospital 1 hour away. The hospital, although unprepared did a marvelous job, as did the physician who was on call while my sister's OB was on vacation. Carlos Jesus was born via C-section at 6:46 AM on July 07, 2007. I was not allowed to see him during his short life in the NICU. He passed away a while later at 3:11 PM. I know that I can never know what my sister has gone through. I have three healthy children of my own. Still, my heart breaks over the pain my sister and my brother-in-law have had to go through. I have shown her this site, and although the tears came for both us, I know that she was glad to be here. Carlos Jesus is such a part of me, that even though I only saw and held him after he had passed, his beautiful little angel face is one that I see very often in my dreams. I know he's my sweet little one waiting and watching for the rest of his family. God Bless all families dealing with this, but don't despair. Onwards!
We love you so much little boy! Your aunie Anna and the rest of your family. -Anna Lisa G. |
| Name: | Julie |
| E-mail address: | julieknowles74@yahoo.com |
| City, State, Country: | Longview, TX USA |
| How did you find this site?: | Search Engine |
| Comments: | This time last year my belly was growing along with the joy and anticipation of our second child. We went in for a sonogram on Sept. 11 debating if we wanted to find our it we were having another boy or a girl. My world forever changed we were were told something was wrong. The dr. wouldn't elaborate, but sent us to a specialist the next day. It was the longest 28 hours of my life. The diagnosis was terminal. Our baby had trisomy 18 and was not expected to make it full term. I felt his last kick 2 months later on Nov. 15, 2006. I felt like God told me he was my Isaac, and that someday I would get him back. I am so thankful for those months i carried him inside me. I'm thankful that he never experienced sin or pain. He's perfect now and someday i'll hold him again - and next time he'll be alive and well. The hardest part as been accepting what my older son has lost. A brother, a best friend. I just hold on to the truth that God has a bigger plan and He works it all out for our good and His glory. May be be praised through the life of our baby Isaac "laughter for always." Julie |
| Name: | Christine Bennett |
| E-mail address: | poleprin@aol.com |
| City, State, Country: | Tampa FL USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | On July 25, 2007 I had a little boy(un-named) who weighed less than a pound. He was only 16 weeks and had trisomy 18. I was only able to see him on an ultrasound 2 days before I had a D and E performed. My baby had ALL of the trisomy 18 markers that ranged from body and face development deformalities to profound internal organ deformities. The only normal organs he had were kidneys. I have 3 healthy children from a previous marriage, and then with a new marriage,a tubal reversal, two tubal pregnancies, a lap, IVF, and then a D and E from complications of a male Trisomy 18 pregnancy!!!!!! I am 39 and my new husband of two years, who has no children, age 38 are just crushed beyond belief! Our level 2 ultrasound and amnio both confirmed Trisomy 18! We both had chromosome testing done and it says that we are not carriers or the cause of this. I have a 1% chance of this happening again at my age. We would love to have a child together. Another round of invitro will cost soooo much! We had our little boy creamated and then had our priest bless his ashes yesterday. We are contimplating burial of the ashes. We are both a wreck! I am sick, can't eat or sleep.I have been overwhelmed with devistation. I wish that I could have delivered him, held him, and told him how much I loved him. But, I never had the chance! God bless you and your family and other families that are carrying babies with Trisomy 18 or those who have lost a baby with Trisomy 18! Christine xoxoxo |
| Name: | Carol Hampton |
| E-mail address: | timandcarol79@yahoo.com |
| City, State, Country: | clarksville, mo |
| How did you find this site?: | Search Engine |
| Comments: | Hi. My oldest daughter just delivered a baby girl on july31st, 2007. she was told that she had a healthy baby, several ultrasounds etc. she, herself had complications of blood clots and was on blood thinners but the baby was supposedly healthy. she has an emergency of her water breaking a few weeks early so they induced, and had an emergency c-section..delivered a baby girl and both almost bleed to death from the blood thinners...but, all in all, the baby was 4 lbs 4 oz. and showed problems from the start...she was sent somewhere else for intensive care but low and behold, nothing in her bloodworks showed up until she was born and now she is almost asuredly has edwards syndrome...my daughter hasn't gotten to hold or see her baby as she is several miles away...we know that she will probably die soon and it is a total shock to us all.
her first son's bloodwork showed up he probably had this and thank God he is 2 and healthy but this was the other way around she was suppose to be healthy and she is not... God only knows why but i found your story when i was researching this again and your story greatly helps my faith..I just pray my daughter get to see and hold her before the end...thank you..God bless us all for God is merciful and will get us through... |
| Name: | Shawna Kehlenbach |
| E-mail address: | chevytruckfan@msn.com |
| City, State, Country: | Chandler, AZ |
| How did you find this site?: | Message Board |
| Comments: | I am 20 weeks pregnant. My husband, my 4 year old daughter and I went in for what we thought would be a routine ultrasound and find out if it we were having a boy or girl yesterday. We saw that it would be a girl and then the tech said I am seeing several problems. She continued on woth the U/S. She took many pictures and some in 3-D. She then went to get the pernatologist so he could take a look. He only took a minute and then said we need to go to my office. He listed out 5 physical abnormalities that he saw on the ultrasound (heart, stomach in the wrong location, open spinal cord, brain, and only one artery in the unbilical cord). He said it was most likely Trisomy 18. He said the baby would most likely die in the uterus. They performed an amnio to confirm and will have final results in 10 days. The FISH test will be back in 4 days.
We are so devastated. When we had an ultrasound at 12 weeks, we thought everything was normal. I feel like I am on a eggshell and my life has stopped. My daughter wonders why I am crying so much. We tell her baby is sick and she cries too. I don't wish this on any one. Thank you to Abigail Grace's story. I know I will be returning to read and find comfort in the days and weeks ahead. Shawna Kehlenbach Chandler, AZ |
| Name: | Shawna Kehlenbach |
| E-mail address: | chevytruckfan@msn.com |
| City, State, Country: | Chandler, AZ |
| How did you find this site?: | Message Board |
| Comments: | I am 20 weeks pregnant. My husband, my 4 year old daughter and I went in for what we thought would be a routine ultrasound and find out if it we were having a boy or girl yesterday. We saw that it would be a girl and then the tech said I am seeing several problems. She continued on woth the U/S. She took many pictures and some in 3-D. She then went to get the pernatologist so he could take a look. He only took a minute and then said we need to go to my office. He listed out 5 physical abnormalities that he saw on the ultrasound (heart, stomach in the wrong location, open spinal cord, brain, and only one artery in the unbilical cord). He said it was most likely Trisomy 18. He said the baby would most likely die in the uterus. They performed an amnio to confirm and will have final results in 10 days. The FISH test will be back in 4 days.
We are so devastated. When we had an ultrasound at 12 weeks, we thought everything was normal. I feel like I am on a eggshell and my life has stopped. My daughter wonders why I am crying so much. We tell her baby is sick and she cries too. I don't wish this on any one. Thank you to Abigail Grace's story. I know I will be returning to read and find comfort in the days and weeks ahead. Shawna Kehlenbach Chandler, AZ |
| Name: | sharon hoke |
| E-mail address: | midnight26205@yahoo.com |
| City, State, Country: | Craigsville, WV, USA |
| How did you find this site?: | Search Engine |
| Comments: | I am a student nurse and was researching Trisomy 18 for an assignment in Pediatrics. I found Abigail's page. I just wanted to say that I read the article for professionals and I want to thank you. Often in times of grief, people, even nurses, don't know how to react so they avoid in fear of doing or saying the wrong thing. By reading the section of your website for professionals, I feel I have a better understanding of the needs of these patients and I will remember your suggestions and be a better nurse for it. May God be with you and your family is my prayer. |
| Name: | Jennifer Wallin |
| E-mail address: | ejwallin@usfamily.net |
| City, State, Country: | North Branch, MN |
| How did you find this site?: | Message Board |
| Comments: | Tomorrow my daughter, Lindsi, would have been 6 months old. She was my third child. I received the diagnosis of Trisomy 18 at 20 weeks along. My story is very similar to yours. I don't know how I would have made it this far without the Lord. Shortly after we found out about Lindsi's condition, my mother found your web site and made copies of your entire journey for me. I have found it to be a great source of comfort when no one else understands. I read along in agreement often. My daughter's lungs and heart were mainly affected. Her heart was beating for a few minutes after she was born, but she never took a breath on her own. It was soooo peaceful and God was sooooo present. She has been and continues to be an incredible gift to our family. God has used her in so many ways. I hold on to His promise that "He will use all things for our good". It's not about our comfort, but about our character and our journey to Christlikeness. He will go with us!!!
Thank you for all that you are doing to encourage those who are facing and have faced this path. Blessings to you and yours- Jennifer |
| Name: | Katherine Marshall, RN and Grandmother |
| E-mail address: | katzeye2@hotmail.com |
| City, State, Country: | Gordonville, Texas |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | My daughter just recieved a diagnosis of Trisomy 18 for her unborn child. She had gone to the Dr. visit expecting to find out whether she was going to have a daughter or son and instead got the Trisomy 18 diagnosis. I just got off the phone with her and immediately went online to find out more info. Although I am an inactive RN, my previous job was working with special needs pediatric clients. I had one assignment with a Trisomy 18 client, I never got to meet this child because she passed away before I could ever care for her. I found your site through a link. Thank you for being here. I thought I would look up medical info so I could help explain some of the diagnosis to my daughter. Instead, I found that I needed some help emotionally. I'm going to my daughter's to help her however I can but, first I needed to cry for my grandchild and for my daughter and all that they will have to go through. Once again, thank you for being here and giving help, wherever it is needed. K. Marshall, mother, grandmother and then RN. |
| Name: | Gary Martin |
| E-mail address: | gary.martin@nhw.hume.org.au |
| City, State, Country: | Victoria, Australia |
| How did you find this site?: | Search Engine |
| Comments: | Great site, great resoource. A friend has not long had a T18 diagnosis given for her unborn... I feel very sad for her and her family, but believe I am more informed and prepared to help them after visiting this site and some of the links. Thank you, Gary |
| Name: | Lorraine Reed |
| E-mail address: | lorraine-l@sbcglobal.net |
| City, State, Country: | Union City, California, USA |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing Abigail's life with us. This is a beautiful web site. I learned of this condition from a friend whose granddaughter was diagnosed with Trisomy 18. She lived for 15 days. I didn't want to ask a lot of questions, but I wanted to know what the condition was. Abigail's story supplied me with the information I needed to understand this condition. Thank you for the information you shared and the beautiful pictures of Abigail. May God continue to bless your wonderful family.
Lorraine Reed Thursday, July 12, 2007 |
| Name: | Karen Kelly |
| E-mail address: | karen_kelly_52877@yahoo.com |
| City, State, Country: | Ware, Mass. |
| How did you find this site?: | Search Engine |
| Comments: | I am 18 weeks pregnant and my baby was just diagnosed with Trisomy 18. I am scared, I'm angry, I don't know how to deal with all these feelings. Thank you for this site. You explained everything so much better than the doctors have. I want to carry to term, but I am scared... I don't know how to deal with people asking about the baby and the pregnancy. Thank you so much for all the advice, stories and links here. I am sorry for your loss, but so happy for you that you got to spend several days with your baby girl. If I do carry to term I hope I will have some time with my daughter as well. |
| Name: | Michelle Terry |
| E-mail address: | Terryinroy@comcast.net |
| City, State, Country: | Roy, Utah USA |
| How did you find this site?: | Search Engine |
| Comments: | My sister in law has her amnio next week. I am very nervous for her since she is 43 and has already lost a child in her 10th week of pregnancy from Downs. She asked me what I would do if I found out I was carrying a child that would not live very long. I told her I would terminate the pregnancy immediately.
I have to tell you after reading your web site and crying so hard I have gone through a box of Kleenex, I think I have changed my mind. I would never have thought anyone was capable of turning something so tragic into something so beautiful. Please keep this web site going. You are an incredible family who has had to make some horrible choices. Reading what you have done has helped me see things not so black and white. Thank you for sharing your story. Michelle Terry |
| Name: | Judy Baron |
| E-mail address: | judith_baron@Yahoo.ca |
| City, State, Country: | Toronto, Canada |
| How did you find this site?: | Search Engine |
| Comments: | Abigail's story made me weep...I saw a similar story at church yesterday and it led me to searh for other stories just like it. I am currently 4 1/2 months pregnant and was just told that all is well, but I could not help but think of babies like Abigail...
I am very glad that Abigail is with Jesus now, our Lord and Savior has personally prepared Heaven for us, Praise Him and may He continue to comfort you and your family! Love & Hugs, Judy |
| Name: | Kathi Wilsford |
| E-mail address: | kawilsford@hotmail.com |
| City, State, Country: | Fort Worth, Texas, USA |
| How did you find this site?: | Other |
| Comments: | Steve and Mindy, I was thinking about Abigail, as I always do at this time, because she has Brian's birthday. I wanted to read over your story again and let you know that I will always remember your courage and faith during the most difficult time of your lives. It's a reminder to love each and everyone in your family every day and not take anything for granted. Your strength in God fortifies me today and I wanted to tell you I love you, Kathi |
| Name: | Lynda Campos |
| E-mail address: | mike.lynda@sbcglobal.net |
| City, State, Country: | Salinas, CA USA |
| How did you find this site?: | Message Board |
| Comments: | How wonderful of you to share your personal experiences so in-depth. And what a wonderful resource for support and infomation. I happened upon your website while looking for information on surgeries and T-18 infants. My 25 year old daughter, Stephanie, is 29.5 weeks pregnant with identical twin girls (Abigail Marie and Emily Grace). At 25 weeks, after confirmation that Abigail has a diaphragmatic hernia, it was also confirmed that both twins have T-18. While not the classic third chomosome, there is duplicative genetic material on the chromosome contributed by Stephanie, and the doctors at Stanford are associating it with T-18. Because of the T-18, surgeons have so far been reluctant to perform the corrective surgery Abigail will need if she is stable enough, due to the already hightened mortality rate of T-18 babies...Both twins have optimal heart development and function, per the fetal echo-cardigram (last done at 25 weeks) and as of last Friday (29 weeks)the choroid plexus cysts each twin had (Emily had two) were completly resolved. We've seen thumb suckin, extended finger movement, and perfect-looking little feet on both, as well, so we are still holding hope that some of the developmental pluses will playout positively for all. Wishing you and your family well and asking for your prayers for our Abi & Emi. ~ Lynda |
| Name: | Carrie |
| E-mail address: | scarrie69@yahoo.com |
| City, State, Country: | Trumann, Arkansas USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I am 18 weeks pregnant and my screening bloodwork came back that I was at high risk for Trisomy 18. My ultrasound at 17 weeks showed no abnormalities. I go for my level 2 Ultrasound on July 24th.
I was deeply touched by your stories and pictures of Abigail Grace. She is truly a beautiful little angel. My heart goes out to you and your family as well as the others with a T18 child. I pray that my child does not have this disorder, but I know if he does, then God will take care of us and him. Thank you so much for your courage!!! My prayers are with you! Carrie |
| Name: | Barb (Lloyd) Adams |
| E-mail address: | bjladams@yahoo.com |
| City, State, Country: | LaRue, Ohio |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I just had a second miscarriage that when genetic testing was done, was found to be a trisomy 18. I loved your website. It shows your love and courage. I saw that you were from Carrollton. I am originally from Carrollton, also, Carrollton High School, class of 1981. |
| Name: | Barb (Lloyd) Adams |
| E-mail address: | bjladams@yahoo.com |
| City, State, Country: | LaRue, Ohio |
| How did you find this site?: | Search Engine |
| Comments: | I just had a miscarriage, my second, and after testing the fetus, discovered it had trisomy 18. I was researching this and came across your website. It was beautiful. What courage you had to go through what you did. I couldn't believe when I saw you were from Carrollton. I grew up in Carrollton, graduated from Carrollton High School, class of 1981. My mom and dad still live in Carrollton. It is definitly a small world. You are in my prayers that God will continue to help you with your loss.
Barb (Lloyd) Adams |
| Name: | Tynetta Henderson |
| E-mail address: | tynettahenderson@yahoo.com |
| City, State, Country: | grand rapids michigan |
| How did you find this site?: | Search Engine |
| Comments: | Hi my name is Ty. I am 33yrs old 25 weeks pregnant with my first child. At 16weeks i had an regular ultrasound which showed, debris in my sons heart. The quad test came back with a high risk of Trisomy 13 and i am schedule for another ultrasound July 3 2007. I am a wreck. This is the most frightening experience of my life. Reading your story gave me some answers, and I appreciate you taking the time to tell your story and I wish you and your family my love and support. |
| Name: | LYNNE |
| E-mail address: | lynnehumrich@hotmail.com |
| City, State, Country: | England |
| How did you find this site?: | Search Engine |
| Comments: | Wonderful to read about Abigail. Our first beautiful baby, Katie was born with T18, 25 years this July. She lived for 3 months and we treasured every moment with her.So little was known about it then, so even after all these years, it's good to be able to share thoughts and feelings with fellow parents. We went on to have two more children, a son and a daughter,who mean the world to us, but I never cease to wonder what might have been, had Katie been 'normal' and lived. I always knew her soul and spirit were strong. God bless you all. xx |
| Name: | CD |
| City, State, Country: | UK |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for this website that I just found and for the encouragement and hope that it will not always be this dark.
I was merrily skipping along life's path when I heard the words "trisomy 18" echoed in a hospital room. My little girl went to sleep in the early hours of the 21st of June 2007. I love you Grace Olivia - God watch over always. x |
| Name: | Michelle |
| City, State, Country: | NC |
| How did you find this site?: | Search Engine |
| Comments: | what an awesome testimony to Gods plan for each of us.
Thank you for sharing your angel and her story. |
| Name: | Amie |
| E-mail address: | whitestuff83@hotmail.co.uk |
| City, State, Country: | UK |
| How did you find this site?: | Search Engine |
| Comments: | You are truely amazing, beautiful people, your website is so touching, thankyou for sharing
Amie x |
| Name: | Liz |
| E-mail address: | lschallack@alumni.marquette.edu |
| City, State, Country: | Oak Park, IL |
| How did you find this site?: | Search Engine |
| Comments: | Well, our little niece Gabrielle lost her fight with Trisomy 18 this morning, at 9 days old. What a treasure we've lost. If you're pray-ers, please pray for her parents and her 3 brothers (10, 7, 2). Thanks. |
| Name: | Liz |
| E-mail address: | lschallack@alumni.marquette.edu |
| City, State, Country: | Oak Park, IL |
| How did you find this site?: | Search Engine |
| Comments: | Hi to Abigail's family. I am the proud aunt of beautiful T18 baby, Gabrielle Maria. She is 8 days old today and definitely a fighter. She has her "blue spells", and we don't know how long we get to keep her, but we're treasuring every moment. T18 babies are truly miracles! |
| Name: | Sheema |
| E-mail address: | sheemsters@yahoo.com |
| City, State, Country: | Illinois |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for sharing your story and all the information you had. Your site was the best I have seen and the information was easy to understand. I am pregnant and our doctor has told us that our baby is at an increased risk for Trisomy 18, so I have been reading non stop about the disease and all the info you have provided really helped me understand much much more. |
| Name: | Audrey |
| E-mail address: | rpsmedic469@aol.com |
| Homepage URL: | http:// |
| City, State, Country: | Calera, Alabama, USA |
| How did you find this site?: | Search Engine |
| Comments: | I work for a private ambulance service in my area and we recently had a special delivery of a baby girl who was diagnosed after birth with Trisomy 18. Until given information regarding her, I had never heard of this disorder. Thank you for having such an informative site and for sharing your story. God Bless you and you family.
Audrey Kimbrough NREMT-P/Alabama |
| Name: | sheresha |
| E-mail address: | shishiekat@yahoo.com |
| Homepage URL: | http:// |
| City, State, Country: | morgantown, WV |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | First of all I want to say how how beautiful she was! I have recently started working in an OB/GYN office and I'm trying to understand some of the disorders better. I admire your courage and strength to make this beautiful page in honor of your daughter. I know she is smiling in Heaven knowing how much she is loved! |
| Name: | Robin Freeman |
| E-mail address: | jmmusiclover@yahoo.com |
| City, State, Country: | Morrison, Co 80465 |
| How did you find this site?: | Search Engine |
| Comments: | My best friend was told that her baby could possibly have this disease. I googled it, and came across your site. I was touched reading your story, and felt the Holy Spirit throughout. God Bless you and you family.
Robin |
| Name: | Beth Montano |
| E-mail address: | montano3@mindspring.com |
| City, State, Country: | Calhan, CO 81212 |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for your touching story and the williness to share with others. I am a respiratory therapist at Memorial Hospital Central in Colorado Srings, CO and am taking care of a baby tonight with trisomy 18 and got on the internet to learn more and found your site. I am also a member of the Church of Christ in Calhan, CO, and can relate to and appreciate the faith you have to see you through this and the hope we have for the future life with Christ and for wanting to make your salvation sure in order to be with her agin. Thankyou and may God Bless You. Beth |
| Name: | Vivette |
| E-mail address: | vivette@silentthunder.co.za |
| City, State, Country: | South Africa |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing your story and your journey and for allowing God to work though you. My sister in law is expecting her 2nd baby and has been diagnosed with T18. We will love and support them and the precious life she is carrying |
| Name: | Michele |
| E-mail address: | outnumbered@cox.net |
| City, State, Country: | Virginia, USA |
| How did you find this site?: | Search Engine |
| Comments: | I found your site while researching a project on aneuploidy for my ob/gyn rotation in medical school. I was looking for technical info and cold, hard facts. What I found instead was a beautiful little girl named Abigail who changed the way I will approach this project completely. What a gift she has been to this world. She was beautiful. Thank you. |
| Name: | susan combs |
| E-mail address: | ssusieq46@yahoo.com |
| City, State, Country: | south point ohio |
| How did you find this site?: | Message Board |
| Comments: | I just lost a grandson to either edwards or potters sequece. Abigail's website is so very beautiful, just as she. May God Bless and Keep You. |
| Name: | susan combs |
| E-mail address: | ssusieq46@yahoo.com |
| City, State, Country: | south point ohio |
| How did you find this site?: | Message Board |
| Comments: | I just lost a grandson to either edwards or potters sequece. |
| Name: | Rachel |
| E-mail address: | rsmith1023@yahoo.com |
| City, State, Country: | Virginia |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing your journey with all of us. I am currently 28 weeks pregnant, and a triple-screen has shown me at risk for Trisomy 18. After my initial ultrasound, which showed no indicators of the disease, I was only offered an amnio, which I refused because I didn't want to cause any further risk to my unborn child. Because we weren't able to determine the sex of my baby during the first ultrasound, I requested a second ultrasound. This time I am going for a level II ultrasound, so they can look again for any indicators of the Trisomy 18. Tomorrow is the day I go to not only find out if it's a girl or a boy, but to also see if any indicators exist for the Trisomy 18. I know it is God's will, whatever may happen, but it's nice to share with someone who has experienced this before. Thank you, again, for sharing your journey with us. |
| Name: | Rachel |
| E-mail address: | rsmith1023 |
| City, State, Country: | Virginia |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing your journey with all of us. I am currently 28 weeks pregnant, and a triple-screen has shown me at risk for Trisomy 18. After my initial ultrasound, which showed no indicators of the disease, I was only offered an amnio, which I refused because I didn't want to cause any further risk to my unborn child. Because we weren't able to determine the sex of my baby during the first ultrasound, I requested a second ultrasound. This time I am going for a level II ultrasound, so they can look again for any indicators of the Trisomy 18. Tomorrow is the day I go to not only find out if it's a girl or a boy, but to also see if any indicators exist for the Trisomy 18. I know it is God's will, whatever may happen, but it's nice to share with someone who has experienced this before. Thank you, again, for sharing your journey with us. |
| Name: | BETTY |
| E-mail address: | SNYB9201@ALLSTATE.COM |
| City, State, Country: | WESTCHESTER, NEW YORK |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | TODAY MY DAUGHTER IN LAW FIND OUT THAT HER BABY HAS TRISOMY 18, THIS WOULD HAVE BEEN THERE FIRST CHILD AND MY FIRST GRANDCHILD, THEY HAVE DECIDED TO TERM THE PREGANCY, IT HURTS ME SO MUCH AND I DONT KNOW WHAT TO SAY TO MY SON AND DAGHTER IN LAW, I HAD 3 HEALTY BABYS, I KNOW CANT EVEN THINK ABOUT THE PAIN THESE TWO ARE GOING THROUGH , I CRY FOR THEM WE HAVE 2 MORE DAYS BEFORE MY FIRST ANGEL LEAVES US, GOD BLESS ALL OF YOU |
| Name: | Rachel Parrish |
| E-mail address: | Raychell_47@hotmail.com |
| City, State, Country: | galesburg,il united states |
| How did you find this site?: | Other |
| Comments: | My best friend baby was born on 2/26/07 with trisomy 18. She had testing at when she was 14 weeks for chromosomes testing and her test came back postive but they said that can happen and it could be falsepostive. well her daughter was delivered at 33weeks because she not getting enough nutrients. She wt 2lbs 14.8 0z and 14.5 in. no birth defect so they thought every was ok. They still tested her and a few days later we found out she did had trisomy 18. She does have club feet and small features but she still is here with us hanging in there. She got to go home a few weeks ago with a feeding tube and oxygen if needed. Me and her family are her support but i can image when the days comes and we have to say goodbye. Ava Jaelea Grace Johnson is are little angel name and I know it tkes alot from Billie but she is very special person to have a very special baby to take of. Im trying to get in contact with other families they have dealt with this or dealing with it also! She dont have computer access but any info or any support she can get she needs! We worry about her daily they are 45 minutes from me and her sister and 30 min from the rest of her family. And usually is a happy go person. today is Mother Day and i know it is even harder but all we can do is take it one at a time!! |
| Name: | Tania |
| E-mail address: | tchaplain@optusnet.com.au |
| City, State, Country: | Australia |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for sharing your journey with us. I have a friend who is 34 weeks pregnant and has just found out her baby has Edwards Syndrome. Obviously everyone is devastated. After years of having no conception and one daughter who is 12 years old, this baby was an absolute miracle. I pray that through all of this that God's mercy and grace will be leading them to Himself. I appreciate your honesty so much. Thank you.
Tania |
| Name: | blyons |
| E-mail address: | mlyons0826@yahoo.com |
| City, State, Country: | ky |
| How did you find this site?: | Message Board |
| Name: | Hannah |
| City, State, Country: | Fond Du Lac, Wi |
| How did you find this site?: | Search Engine |
| Comments: | I found this website when I was looking for a school genetics project. I'm finding that even reading this is making me start to tear up. I am amazed by the strength and courage that parents who find that their children have Trisomy 18 show. Thank you for the help and insight on the life that parents face, and on how to find the good and grace of God in all this.
God bless! |
| Name: | Celena Carter |
| E-mail address: | lumbee@charter.net |
| City, State, Country: | Hickory, NC, United States |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | A year ago on March 23, 2006 my son's first child and my first grandchild was born with Trisomy 18. We had only found out the day before that she had it. Her name was Morgan Tailyre Campbell-Moose. Morgan lived for 2 hours after she was born. It was very hard on my son and especially hard on me, as I too have lost a child. I lost a little girl when my son was 2 years old. She died of Sids at 6 wks old. I told my son that after his sister died so many people kept telling me that God had a plan and there was a good reason for him to take my Rita away from me. She died 15 years before Morgan. Her death helped me to help my son. God had known all along what was going to happen. I miss both my girls, my daughter Rita and my granddaughter Morgan. I hope that they are together in heaven waiting on me and my son.
Thank you for your encouraging words. Celena Carter |
| Name: | Jessica |
| E-mail address: | jessicapuerta@yahoo.com |
| City, State, Country: | New Brunswick, NJ, USA |
| How did you find this site?: | Search Engine |
| Comments: | My husband and I said goodbye to our daughter Emi, as 22 wks gestation, when we decided to induce. She was our first pregnancy (and only thus far)and our first true love. We found out at 18 weeks that she was 'incompatible with life'.
I miss her everyday and although my love for her is the greatest emotion I have ever known, I am at peace for with our decision to induce. The way we saw it: she would have to fight for every day in my womb, she would have struggled to be born and demand a miracle every day to survive only to be hooked up on machines. If hearts had to be broken and suffering an every day occurence, then I am glad that only mommy and daddy had to suffer for my little Emi. The decision to carry to term or terminate, are intensely painful and profound; each with it's own emotions that follow. Although our decisions may be different our genuine unconditional love for our children is what holds us all in a common place. I want you and all the other mommies and daddies to know that in our grief I love you all and I love all your babies. May God Bless my little Emi, little Abigail Grace and all the other little babies. I know God is with them. |
| Name: | sian |
| E-mail address: | sianwilson20@talktalk.net |
| City, State, Country: | uk |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | what a beautiful story, i had a little girl five years ago following an amino, as a result of a cpc, i never went and got the results of the amnio after my little girl died, she,lived for 20 minutes, i prefer to think that she did have edwards and that she chose to go herself so that her little brother could come to our family, as i already have 3 girls. those 20 minutes meant the world to me an my husband but your story, is beautiful, the only other people to see my Amelia in the flesh were my parents, i didnt let my children see her only her pictures as she was only 21 wks into the pregnancy, but i really think that you have abigail a great beautiful short life. Sian |
| Name: | Janice |
| E-mail address: | janice.dent@sympatico.ca |
| City, State, Country: | Mount Albert, Ontario, Canada |
| How did you find this site?: | Search Engine |
| Comments: | It has taken me 2 1/2 years to write this, but I reminded myself today that I really must do it. We found out in August 2004 that our baby most likely had trisomy 18 based on some abnormalities detected in the ultrasound. What we would learn after her birth was that she actually had trisomy 13, not 18 but the characteristics are quite similar. That evening after receiving the news we went on the internet and stumbled upon your site. As I read your story of how you got through your experience, how you planned the memorial service, had your children talk to Abigail when you were still pregnant and maintain a pretty normal life, I cried and told my husband "I can't do that." But only by God's grace I did. After 5 days of struggling with the knowledge that our baby was going to die, we finally surrendered to the Lord and accepted the truth that He was sovereign in this situation, He had a purpose and He would get us through it. The peace that filled our hearts and remained with us over the next 4 months was indescribable. Our daughter was born December 11, 2004 and passed away on December 18. We were able to bring her home for one day and she died in our arms. It was the most precious week of our lives and I would not trade it for anything. The Lord brought us so much joy through Mikayla's brief life and blessed us in so many ways. We had a memorial service just as you did and I think I was imspired to that because of your story. We used that service to bring glory to the Lord and express our complete faith in His sovereign will. I'm so thankful that the Lord lead me to your website that night. At the time it wasn't what I wanted to read, but it brought great blessings in time! But our story doesn't end there...the following year on December 22, 2005 we welcomed not one but two new daughters into the world. We found out in May 2005 we were expecting twins. We could not believe the Lord's goodness. We had not been planning to have more children right away because I was struggling with fear about getting pregnant again, but the Lord's timing is not always ours. We will never forget Mikayla and we feel so thankful to have spent 7 days with a little angel and so privileged that the Lord worked in our lives through her. I think she touched more lives in her 7 days than most people will in a lifetime. Thank you for sharing your daughter with us...the Lord has obviously used it to help many people. |
| Name: | Connie Ellingson |
| E-mail address: | praynwithfire#hotmail.com |
| City, State, Country: | St. Paul, MN |
| How did you find this site?: | Search Engine |
| Comments: | Thank-you for opening up your lives to us and sharing the experience you've all lived. A dear friend's daughter has been diagnosed with this and I am searching out web sites inorder to find out more information and to ask the Lord how to cover this family in prayer and intercession. Be assured Your precious daughter will greet you when you arrive in heaven. Keep faith strong and blessings on you. |
| Name: | Jane Henry |
| E-mail address: | janeh@inet.co.za |
| City, State, Country: | South Africa |
| How did you find this site?: | Search Engine |
| Comments: | I was looking for information about Trisomy 18 as a colleague and friend of mine has just given birth to a son who has been diagnosed with Trisomy 18.
Your Grief journey was so "enthralling" for me to read. Once I picked it up I couldn't put it down! My 19 year old son was killed in a motorbike accident 2 and a half years ago and I just realised that no matter how long we have been given the privilege of having our children with us, our grief is still so much the same. It was as though I was reading my own journal. In fact I compared mine with yours and found that as time went on we were so much at the same stage of our grief in the different months. I was able to cry with you, knowing exactly what you had been through just 2 years before me. I came to realise that God had allowed me to go through the loss of my son so I could walk in the same shoes others have to walk in. I thank God for bringing me across their paths so that "I may comfort others with the comfort I have been given". May God bless you as you continue your journey. |
| Name: | Ricki Nielsen |
| E-mail address: | rickin22@telus.net |
| City, State, Country: | Lloydminster AB Canada |
| How did you find this site?: | Message Board |
| Comments: | It was wonderful to visit the site and read the stories of other families who have shared our same experiences. We lost our little angel Arianna Lynn 13 years ago. We will always treasure that time in our lives; it was heartbreaking but I wouldn't change a thing.
We had no idea before she waas born of the birth defects and even when they shared with us what was wrong we were not quite sure what it really meant. We thought that she would be like a child with Down Syndrome and we could handle that but what the Dr's were really telling us made our hearts break. I learned through the journey that Dr's are not God. Everyone has a purpose for being here on earth and a time frame in which they will stay regardless of what the Dr may tell you. You learn to treasure each day and live it to the fullest regardless of what may or may not happen and when. Arianna lived a short life like we were told but it lasted about 2 years longer than the Dr's ever gave us hope for. My advise to anyone who has just given birth to a child with this syndrome would be to enjoy every minute with your gift and live each day with great revernce for the special spirit your Father in Heaven has trusted you with. Feel honor not disappointment and make memories everyday to carry you through the time when you will be separated for a while. |
| Name: | Jasmine Ng |
| E-mail address: | jsbaggio@netvigator.com |
| City, State, Country: | Hong Kong |
| How did you find this site?: | Search Engine |
| Comments: | Thanks so much for your sharing. I am now waiting for the final report. He may get trisomy 18 or by God's grace be a healthy boy. Anyway, you strengthen me to make a decision.
God bless your family. |
| Name: | Megan Brown |
| E-mail address: | megandbrown@yahoo.com |
| City, State, Country: | Martinsburg, WV (USA) |
| How did you find this site?: | Search Engine |
| Comments: | We lost our daughter, Paige Elizabeth Brown, Monday to Trisomy 18 and I was searching today for other stories when I came across yours.
We did not know before birth that Paige was sick. I had polyhydramnios (too much amniotic fluid) and was hospitalized 2 1/2 hrs away from my husband and three children for care. They drained off alomst 4 liters of amniotic fluid to reduce my risks of premature delivery. The doctors had no reason to test the fluid for chromosomal abnormalities--we had no risk factors--with me at 27 years old and my husband at 32 years old, and three healthy kids at home. They suspected she had a hole in her throat that was causing the buildup of amniotic fluid, and that could be fixed with an easy surgical procedure. Paige was born by emergency C-Section on Friday, April 6th, 2007 after she did not tolerate labor. She weighed 5 lbs, 3 oz and was 19 inches long. Once born, the doctors quickly began to pick up on subtle physical features that led them to believe that she had Trisomy 18. They also found more abnormalities with her stomach and lungs, as well as her heart and nose. She was on the ventilator in the NICU after being resuscitated at birth. When we visited her in the NICU she would open her eyes sometimes and look at us. Our other children got to meet her. We waited for the diagnosis to come back. The geneticist had given us all the information we needed to make a decision ahead of time as to what we wanted to do. On Monday, April 9, 2007 we got the diagnosis. We requested that everything be removed and she be brought in to my room so we could hold her. She lived for a half an hour. We got to say goodbye. Driving home and telling our oldest daughter was very hard. Since then, only 5 days ago, we have laid her to rest and begun the healing process. Your website was a source of comfort for me and my husband. Thank you for sharing your story, and for creating a place on your site for me to share mine. We also have a strong faith in the Lord and know that one day we will see her again when Christ returns and raises her up to be in our arms, and we can spend eternity with her in heaven. |
| Name: | Lindsay Everett |
| E-mail address: | lindsay_everett@hotmail.com |
| City, State, Country: | Oklahoma |
| How did you find this site?: | Search Engine |
| Comments: | Dear Family,
I found your site searching for information for a genetics paper. My heart goes out to you and so do my prayers. God Bless You! |
| Name: | Linda Cox |
| E-mail address: | lcox@dextermo.net |
| City, State, Country: | Chaffee,MO USA |
| How did you find this site?: | Search Engine |
| Comments: | What a beautiful life you gave Abigail for her brief time here! I can hardly type for the tears! I don't know what my level II ultrasound next week will hold for me - hopefully a beautiful healthy baby - but I gain strength in knowing that I will not be alone if I find out that our baby isn't perfect.
May God bless you and your family for reaching out to us and letting us share in your grief and joy. Linda |
| Name: | Kathy Silvia |
| E-mail address: | Sweetnote2005@aol.com |
| City, State, Country: | Plymouth ma USA |
| How did you find this site?: | Search Engine |
| Comments: | I just wanted to let you know that you have helped me a lot. We are facing a t18 diagnosis as well. I am 32 weeks and 7 weeks away from my section. We are having an amnio done next week to confirm diagnosis, which at first i was against.
I have cry many times for your family but through those tears I have found strength. Your birth plan is the only one i have found on line that is exactly what we are looking for, and i thank you. It is so hard to be facing a funeral before you get to see your child. We know that God is watching over us and that gives us courage and peace. Please keep our family in your prayers and maybe a mircle will happen for us. Our due date is June 1st but are scheduled for the section on May 25th. Thank you for your support and faith. We send our love and prayers to you and your family. |
| Name: | Emma Floyd |
| City, State, Country: | England |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Hi
Just wanted to say that it was lovely to see you and your children giving as much love as possible to baby Abigail! The photos are beautiful! I was 25 when i found out i was pregnant. I recently had a termination (which i origianlly was so against) after finding out that my baby had a condition called anencephaly. (A Severe neural Tube Defect). Chromosone tests were carried out on my baby, and results come back showing that my baby also had Edwards Syndrome (Trisomy 18). Tests also confirmed that my baby was a Boy, Sometimes I feel really guilty for going ahead with the termination,, however I believe I did the best thing for my baby. Im sure my baby boy(along with abigail) are both at peace and surrounded by lots and lots of love. It was lovely reading your story, you seem like a fantastic family! Take Care Emma x x x |
| Name: | Deb |
| City, State, Country: | Australia |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Hello. My name is Deb. I'm 44 - and a few weeks ago discovered I was pregnant which child number 5! Oh - surprise, joy, fear, and ultimately a test just to check all was ok, oh, it is not. ... and so I am here with a diagnosis today of Trisonomy 18. I will not be birthing this child. This little one's journey here shall be this brief 10.5 weeks in utero. We are blessed already with 4 happy, healthy, children aged 8, 7, 4, & 4 (yes, twins). I have checked my heart, my self, my soul and my beliefs and for me this is the right decision. Blessed are each of you in your strength who continue with your pregnancy to hold your child for however short a time. Deb xxx |
| Name: | Diana mommy to angel Christopher Josef |
| Homepage URL: | http://christopher-josef-locke.memory-of.com/ |
| City, State, Country: | Jacksonville, Florida |
| How did you find this site?: | Other |
| Comments: | Hi, I found your site through the CDO memorial pages. What a beautiful story. Beautiful angel bigail is. My son Christopher Josef became an angel on Dec 17th 2006 and we thought during pregnancy that he had Trisomy 18. We did an amnio just to be sure so we could prepare for when he was born and provide him with all the love we could. The amnio ended up being normal. But he was born Nov 7th 2006 with multiple birth defect, only the heart defect did we know about. He spent 39 days on ECMO (heart lung bypass) before he got too tired to continue. It was the hardest thing to have the hope and still watch him suffer. We have now found out that he had a deletion on Chromsome 16. So still doing research to see if that is what caused the birth defects. We also belive he had Alveolar Capillary Dysplasia which is a fatal defect in the lungs.
Abigail's story is beautiful. The love and faith is so very evident. I admire your family for the strength and love you all have. Thank you so much for sharing Abigail. Diana Locke mommy to angel Christopher Josef gone too soon, always loved, forever missed. |
| Name: | Kate Koch |
| E-mail address: | kateakoch@sbcglobal.net |
| City, State, Country: | Kent, Ohio USA |
| How did you find this site?: | Search Engine |
| Comments: | Dear Wilsford Family,
I want to thank you for sharing Abigail's story in such a special way. I have a dear friends who learned yesterday that their baby has Trisomy 18. As a friend, I want to offer support in any way that I can and reading your page on how to do so really helps me. I am a new mom myself and I cannot imagine how to put the pieces together upon learning a diagnosis like T18. I know my friends, like you all, have a tremendous faith and a wonderful support system. The information on your site is invaluable. Thank you and God Bless, Kate Koch |
| Name: | Anir Gonzalez |
| E-mail address: | www.unregalodivino@gmail.com |
| Homepage URL: | http://unregalodivino.googlepages.com |
| City, State, Country: | Kissimmee, FL |
| How did you find this site?: | Search Engine |
| Comments: | I am about 25 weeks pregnant, expecting conjoined twins girls- Maria Isabel and Miamari. I just want to thank you for sharing your story. Even though it is a different "diagnosis," we are going through very similar stages and feelings. I found your site while researching on how to write a birth plan with "an unexpected outcome." We pray for strength and your story has given me some, too. Again thank you for sharing your story! God bless your family and your little angel! |
| Name: | Sarah Solano |
| E-mail address: | solano@rtcol.com |
| City, State, Country: | Akron, IN |
| How did you find this site?: | Search Engine |
| Comments: | Thank you. I have a friend who lost her only son, Patrick, two weeks after his 18th birthday. She relies a lot on his friends but acknowledges they will not always be there. I've been "with her" for the four months since his death and I'm not giving up as some have. This confirms some things I have been doing/saying, makes me realize some mistakes I've made, and gives me new direction. |
| Name: | Brandace Gibson |
| E-mail address: | bngibson86@yahoo.com |
| City, State, Country: | White Plains Ky, Uninted States |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I found out that I was pegnant in September of 2005. This was my very first pregnancy. My husband and I found out that our baby boy had trisomy 18 at 19 weeks. Although he and I both were against abortion we decided to terminate. I saw that you thought termination doesnt make it any easier but for us it did. It was still devastating but I cant imagine spending time with our baby while he suffered through the last days of his life. I do wish we could have spent time with him but after learning all of the complications that a child with trisomy has we knew that he would not have had any quality of life. We made our decision because we did not want our baby to go through the pain and suffering he would have struggled through to survive for such a short time. I still went through greif but I cant honestly say that if I had continued the pregnancy it would have been the same. If we had continued I know that it would have been harder for us. I would not change the decision I made. My baby went from my womb to Heaven and I cherished the time that I carried him. I never had to see him suffer. We will always remember our first little miracle that tought us so much. |
| Name: | Jeannene |
| E-mail address: | jeannenevencill@hotmail.com |
| City, State, Country: | Ashtabula, OH, USA |
| How did you find this site?: | Search Engine |
| Comments: | Your courage and strength are astounding. My prayers are with your family and I hope that you are doing well.
I learned yesterday that a cyst was found on my baby's brain and have a level II u/s scheduled next week. I too have been told that there is only a small risk of T-18, but I also felt it very important to learn as much as I can about this disorder so if the diagnosis is made, I will understand what my family is facing. Your willingness to share your experience is incredible during such a difficult time in your life. It has shown me that no matter what is ahead, I will face it with strength, courage, and the faith that God will take care of us. Thank you for sharing. |
| Name: | Aimee Boampong |
| E-mail address: | cierra925@hotmail.com |
| City, State, Country: | Columbus, Ohio |
| How did you find this site?: | Search Engine |
| Comments: | I had a little girl that died with Edwards syndrom as well. her name was Cierra Nicole Douglas 9-25-97 to 12-7-97. it was the hardest thing I ever had to do, was to burry her. I am sorry to those who have ever lost a child, I feel the pain you go through!!!! |
| Name: | Ruth |
| E-mail address: | semiramis2323@hotmail.com |
| City, State, Country: | Madrid, Spain |
| How did you find this site?: | Other |
| Comments: | You were certainly blessed with that little precious jewel named Abigail. The beauty of your soul (both of yours) has impressed me greatly. People like you make the world much, much better. How mature, intelligent and touching your attitude towards the terrible proof God put in your lives. I will never forget your story and the beautiful face of your little doll.
I had read about trisomy 18 before, but had not followed a case until today, when "The New York Times Online" had a video showing two families that had to confront with the terrible news that their future babies would not survive, in the remote case they were born alive. To listen to their stories was very sad; though it made me decide to look for other personal stories related to trisomy 18 babies. This is how I found your web site. You have done a great favor to the world by exposing your beautiful story with Abigail. You dressed her so beautifully and she was so gorgeous that one feels like wanting to have her as one's baby. God bless you both and your family! |
| Name: | Joanne Bacon |
| E-mail address: | joannebacon@msn.com |
| City, State, Country: | Frankford, Delaware USA |
| How did you find this site?: | Message Board |
| Comments: | We have just recently learned that our fourth grandchild a boy has been diagnosed with Trisomy 18. Our daughter-in-law is scheduled for labor inducement on April 30, 2007. Our little grandson's due date is May 9, 2007. They have decided for no extreme measures to be taken to prolong his life. Your website has been so helpful and educational. You and your family have so much courage and faith. I only hope we can be as strong when the time comes. It is so hard to go through your daily routine knowing what is going to happen. Fortunately, we have been able to talk about this with our son and daughter-in-law and support them with the decisions they will have to make. I will discuss with them the birth plan, because this is so important. Thank you again for your web site and God Bless your family. Mom-Mom and Pop-Pop Bacon |
| Name: | peggy |
| E-mail address: | krails@msn.com |
| City, State, Country: | riddle oregon usa |
| How did you find this site?: | Search Engine |
| Comments: | thank you for being here!i learned alot. |
| Name: | Renee Wade |
| E-mail address: | reneeivan06@yahoo.com |
| City, State, Country: | phz,az,united states |
| How did you find this site?: | Search Engine |
| Comments: | i googled trisomy 18 and i found you daughters site.i to an pregnant and i just found out that my child might have trisomy 18.she has a less then 2% chance of having it,so im praying that those odds are good.but reading your story and seeing the pictures of abigail helped me feel alot better about what might change my life forever.so i just wanted to thank you for wanting to share abigails story with everyone!!thank you agian |
| Name: | Md. Hasan Zahir |
| E-mail address: | hasan.zahir@gmail.com |
| City, State, Country: | Japan |
| How did you find this site?: | Search Engine |
| Comments: | My Ist son Jabir Hasan was born with trisomy 18 just three days back i.e., March 6, 2007. Due to heart and some other problem, we got very painful result from our doctor. Still Jabir taking breath...I will draw strength from you.
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| Name: | April Boyd |
| E-mail address: | mom2bentayandkiya@hotmail.com |
| Homepage URL: | http://www.myspace.com/mom2bentayandkiya |
| City, State, Country: | Richlands, VA |
| How did you find this site?: | Search Engine |
| Comments: | You are a blessing to others going through the same things that you have. There was a concern that our baby had Trisomy also. Thankfully, he was born healthy. I'll always have families like yours in my heart, though. I'll keep praying for you. |
| Name: | Liliana Poulin |
| E-mail address: | liliforshort@yahoo.com |
| City, State, Country: | Bristol, CT |
| How did you find this site?: | Other |
| Comments: | Beautiful story, brought tears to my eyes. God Bless you and your family. Thank you for making me appreciate life and thankyou for sharing Abigail's journey. Sending you lots of love. |
| Name: | ANGIE HERRIN |
| E-mail address: | amherrinlpn@yahoo.com |
| City, State, Country: | BAXLEY, GA 31539 |
| How did you find this site?: | Search Engine |
| Comments: | We have just learned that my sister's baby may have trisomy 18. We are trying to educate ourselves about this. My sister is devestated because she lost her 2 year old daughter in a car accident in Sept. 2005. My sister was told she would never be able to have any more chldren because of the injuries she recieved in the wreck. Anyone who reads this, please begin to pray for our family that we will have wisdom and strenght no matter what God's will may be. |
| Name: | Jeffrey |
| E-mail address: | garvinil@verizon.net |
| City, State, Country: | DeKalb, IL USA |
| How did you find this site?: | Search Engine |
| Comments: | I was reading the obits in the local paper, from where I used to live, when I saw that a child passed away after less than a month. The cause was Trisomy 18. I didn't know what that was so I Googled it. That is where I found your incredibly sad, yet, extremely inspirational personal experiance. I was/am moved in a way I can't fully explain, except to say that I only hope that if I ever have to face something so painful, so tragic, I just hope that I can put together the strength and grace that you have demonstrated. I am not a religeous man, but easily see how yours was a blessing. You are an inspiration, well beyond Trisomy 18, to all people and parents. I will draw strength from you and your family in the best of possible ways. May your God bless you. |