[ Sign my Dreambook | Next Page ]
[ Back to A Trisomy 18 Journey - Abigail Grace Wilsford ]
| Name: | Irene Valdes |
| E-mail address: | im_valdes@yahoo.com |
| City, State, Country: | San Antonio, TX, USA |
| How did you find this site?: | Message Board |
| Comments: | Dear Ms. Wilsford,
Thank you for sharing your journey & faith. You have been an incredible example to me on how you have dealt with Abigails' diagnosis, your pain and loss. On March 29, 2013, at 20 weeks, my son was diagosed with Trisomy 18. As you can relate, it has been a very difficult journey: hurt, sadness, anger, depression, pain inflicted upon you, etc. I don't know what lies ahead for us but I do know I must hang on to God's promises & truth. Again, thank you for sharing your journey with us. God has been able to use you, your family, & Abigail for such a time as this to us all. With Love that is Through Him, Irene Valdes |
| Name: | april |
| E-mail address: | aprilnoble@hotmail.com |
| City, State, Country: | Joshua Tree CA USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Hello my name is Alissa leeann Johnson they call me Baby LeeLee. I was born with trisomy 18 on July 31,2012. They sent me home on hospice and gave me 2-3 weeks to live. Every week my hospice nurse would come and check my vitials and my weight. As my parents sat on pins and needles I alwalys had a good report. After a month or so my parents wanted a second oppion. After seeing two more specialist that seem to say the same thing "Her disease is leathal there was nothing they could do, Enjoy her while you can." We found a doctor from Loma Linda Dr. Weinberger who said as long as there was nothing else life threating she would help us find a doctor willing to do the surgery even if it took a thousand phone calls, And she did Dr. John Lamberti out of San Deigo Childrens Hospital "Radys". On Feb. 1,2013 I had open heart surgery to repair my tetralogy of fallot, Large inlet VSD and secundum. On Feb 14 i had to get a pace maker put in to help my heart keep the rythem, And now I am back home and doing better than ever. You see God has a very special plan for me he has answered so many prayers and opened so my doors making this possible. I am 7 months old now and I wish that doctors could learn that God is in charge and no one should ever limit the capabilities of a baby that is born with Trisomy 18. TRISOMY 18 IS NOT LEATHAL........I am living proof, and I am compatable with life just ask my Family.
Thank you for Reading my Story Baby Leelee All things are possible with GOD... |
| Name: | sandy |
| E-mail address: | sandy@gmail.com |
| City, State, Country: | usa |
| How did you find this site?: | Message Board |
| Comments: | Thank you Doctor Deva for your help because since i have been married to my husband i have not be able to get my own kid and my mother in law wants me out of the house because she think i can't give bath to a baby but since you cast a spell for me and it been five months now since you cast a spell for me and i started seeing changes in me i and my husband are now happy now and we are expecting our baby by June i am very grateful for your help doctor Deva Email: lakshmantemple@gmail.com you are more than just a father to me. |
| Name: | Patt Lynch |
| E-mail address: | movalleylynchs@msn.com |
| City, State, Country: | mo. valley,Ia,U.S.A. |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | God bless you &your family,it's so hard some days &somehours are easier.Be good to yourself you are worth it.Try to do 1 thing everyday day in your childs name/the more you do the your child feels that all the way up in heaven. |
| Name: | jenni |
| E-mail address: | dizzybaby4b@gmail.com |
| City, State, Country: | sydney australia |
| How did you find this site?: | Search Engine |
| Comments: | God bless you.We recently lost our beautiful son Bradley after 4 days to edwards disease.How strong you seem to me and i would like to thank you for the small amount of comfort knowing im not alone with my million whys and what ifs...
It has taken me all my strength to sign this book and here you are with an entire website..Thankyou... |
| Name: | mlmvc |
| E-mail address: | mlmvc43@yahoo.com |
| City, State, Country: | usa |
| How did you find this site?: | Search Engine |
| Comments: | Hello,everyone my name is mlmvc from USA i never ever believed in spell until i meet a man called Dr upesa, who help me cast a spell that bring back my ex-lover who left me for one years before our marriage,His spells works beyond my imaginations and today i am happily married two kids and me and my [ex-lover] now husband are very happy more than ever before,what more can i say rather than to say thank you Dr upesa for been there for me,contact him today and your life will never ever remain the same his email is upesaspelltemple@gmail.com |
| Name: | Becky Martin |
| How did you find this site?: | Message Board |
| Comments: | God bless you and your family. Thank you for sharing! |
| Name: | Tamara Pandolph Peary |
| E-mail address: | Tamara.Pandolphpeary@yahoo.com |
| City, State, Country: | Chatham,IL USA |
| How did you find this site?: | Another guestbook |
| Comments: | You are an angel for sharing your story with others and educating them from your painful and yet beautiful blessing of Abigail. God bless you. Abigial was lucky to have you as a mom who cared so much to even share your experience with others. Some day you will be reunited. God makes no mistakes. We just do not understand nor do I guess we want to know his plan. I love how you keep your faith thru it all. |
| Name: | William and Brandie Brumley |
| E-mail address: | brandies30@yahoo.com |
| City, State, Country: | Amarill, Tx |
| How did you find this site?: | Other |
| Comments: | Hi my name is Brandie, i didnt have a baby born with T18 but she was born preemature at 24 weeks and 3 days weighing i at 1 lb 14 ozs and was 12 in long. She spent a little over 4 months in the NICU and then 2 months in the PICU. She has lung problems due to prematurity and is on 10 meds and on oxygen which we hope to have her off by spring. Now shesa happy and healthy as she can be with lung issues. She weighs in at 17lbs 2 ozs last we checked and 2 and a half feet tall at 18 months old also shell be 2 in July this yr. Thank you for your story and taking the time to listen to mine.
Brandie and William Brumley |
| Name: | Trish |
| E-mail address: | kklean37@yahoo.com |
| City, State, Country: | va |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | It is helpful to know there are others like me, we found out we were having baby, after 6miscarriages we had given up,we were happy to no fianlly.at the doctors office we found out the baby had a cytic hygroma, then its has a heart problem then trisomy 18 but it was a boy which meant even worse outcome, we wouldnt terminate! I was missarble huge I had so much water! I measured 42weeks twin at my 33week 3day check up, I was in labor an the dr.s just didnt care, I was sent home, 3hours later being rushed to hospital my water broke an lots of blood was rushed to the or where I almost died due to placenta aburption, our son was born 2 lbs 10 oz.14.5 inches long, alive! we had 34minutes with him, I'm so gratefull but now an having a really hard time. I really am at a loss. Thank you for sharing your story with me. |
| Name: | Maureen |
| E-mail address: | maureen_denihan@yahoo.com |
| City, State, Country: | Laurel, MD |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for haring Abigail's story and your family's story. I am preparing for my trisomy 18 daughter's birth in February 2013 and Abigail's pages and the memorialization of your journey, and her journey has been quite helpful. Thank you so much. |
| Name: | Joann |
| E-mail address: | preglerj22@gmail.com |
| City, State, Country: | Dubuque,Iowa |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for sharing your journey.I am also a christian with great faith,however I can not handle anymore trials.(Loss of home to a flood,loss of 25 year job and many other issues).The news of terminating my grandchild due to trisomy 18 has left me bitter and angry with God; then I found Abigail's web site. I plan to share your site with my son and daughter in law who are currently in the process of genetic fetal testing and counseling |
| Name: | April |
| E-mail address: | aprilnoble@hotmail.com |
| City, State, Country: | Joshua Tree, Ca. USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you so much for sharing your story. I cryed as your situations seemed so simular to my own that i am experiencing now. But i to have a strong belife in God and put my my Daughter Alissa in his hands, She is awaiting a heart surgery. She is on hospice and was only expected to live 2-3 weeks. We are praying that this surgery will help to prolong her life for without it she will die according to the doctors.....to read about your story was both encourageing and educational and i thank you for that thank you.
bruce and april proud parents of Alissa Leeann |
| Name: | Patricia |
| E-mail address: | pwwhit@hotmail.com |
| City, State, Country: | Youngtown, AZ USA |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | Thank you for sharing your journey and beautiful family pictures. Your story is an inspiration to families going through this process of life and death. My niece, Michelle, was a special needs child and we were told from the time she was born that she probably wouldn't live more than three or four years. She had multiple health problems in addition to cerebral palsy and mental retardation. Although she was chronically ill, she lived to age 32, much to everyone's surprise. It was such a painful experience for all of us. We know she is with God in Heaven and that she has been restored to health of body and mind. I appreciate your strong testament to your family's faith in God. Thank you once again. Patricia |
| Name: | Amy |
| E-mail address: | Amy.sullivan@yahoo.com |
| City, State, Country: | VA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you so much for sharing your story. I'm 41and have had 2 miscarriages in the past year. I'm now on my 3rd pregnancy but found out 2days ago via our cvs fish results that our 15week baby has T18. I've cried almost every moment since. I devastedly just today scheduled termination for next Wednesday. I pray to god that for some reason our fish results will be proven wrong in a few days and that they will call to tell me our final results are clear and that this was all a dream. God bless all of our little one's souls. Xoxo amy |
| Name: | Robin |
| E-mail address: | robin.thompson00@yahoo.com |
| City, State, Country: | WV, US |
| How did you find this site?: | Search Engine |
| Comments: | Hello. I want to thank you for sharing your beautiful little girl's life with everyone. I found out 2 weeks ago that my baby girl, Gabriella, tested positive for Trisomy 18. I have been scared since the first day I found out I was pregnant. I am 40. I knew there was a possibility for Downs syndrome. I hadn't really heard of Edwards.
When I found out my first reaction was to pray other than crying. Then i feel her moving and that makes me smile. The past week she has started to kick and it is a wonderful feeling just knowing shes still with me. This morning she was kicking hard enough to feel with your hand. My 16 year old daughter got to feel it and she smiled and said "is that really her." This has to be the most heart breaking experience I've ever had to deal with. I pray everyday to heal her and give us a miracle. I guess in a way he already has. I know I love her so much I can't describe it and I thank God everyday for her and letting me feel her little wiggles and kicks. Nothing will ever replace those feelings. Thank you again for sharing your life and Abigail's life together. It was painful to read, but also comforting. God bless you and Steve and the rest of your family. Robin |
| Name: | Roma Dewey |
| E-mail address: | Aromatherapy4u2@aol.com |
| City, State, Country: | Oklahoma |
| How did you find this site?: | Search Engine |
| Comments: | My nephew Scott had a full term baby girl that had Trisomy 18 , years ago.They named her Amie Rose and she only lived for 3 hours. I never got to see her other than pictures.I am the mother of 4 grown girls who are now all mothers. Iam so thankful that my children were all born problem free but my heart goes out to all mothers with children that are born with such terrible defects.These children are so special and precious and Loved members of their families.I read Abigail's story and am thankful that you were able to have her as long as you did.She was a Little Sweetheart.It is my belief that Mothers who lose their children and did not get to raise them here on earth will have that chance to do so in the Celestial Kingdom.God Bless your Wonderful family
|
| Name: | sheilla |
| E-mail address: | sheilla_anne02@yahoo.com |
| City, State, Country: | philippines |
| How did you find this site?: | Search Engine |
| Comments: | Hi, I also had a son diagnosed of trisomy 18. It happened year 2006, it was my first pregnancy at the age of 22. I am really excited about having a child and really took care of my pregnancy. and in my 3rd trimester, my OB ordered me to have a ultrasound , and it shows that my baby had a defect that they called omphalocele and warned me that it can have another defect like cleft lip and also it shows that the oxygen circulation is not good, so the baby might die inside me, so my OB scheduled me for emergency CS the next day. I dont really had an idea that my child has this abnormalities. Next day the doctor told me that they dont have anything to do with my son condition because it is genetic problem, that me and my husband is not compatible genetically. It really hurts me a lot seeing my child in a neonatal intensive care unit with all the tubes attached to him. I just wish that all his sufferings will just be given to me. My son live for 4 days, I was'nt able to kiss him, hug him or even cuddle him. or even breastfeed him. But i just put in my mind that he is happy with Jesus, that i have an angel and everything happens for a reason. After he died, i had this phobia of being pregnant again because of what happened, and now after 6 years i want to have a baby again but had a fear that it can happened again. Is there a possibility that i can have a child with trisomy 18... is there a chance that still i can have a healthy child,,,thanks so much.. |
| Name: | allie |
| City, State, Country: | east sussex |
| How did you find this site?: | Search Engine |
| Comments: | Alisha, my first born would be 18 next month. she was stillborn with Trisomy 18 at 26 wks 6 days. I think about her everyday but i know for her she is in a better place.
over the last 18 years i have gone on and had 5 more (healthy) children and i felt the need to share with people (especially recently grieved parents) that although you never forget your angel in the sky it is ok to live on and have healthy children. Alisha will always be my first born, the head of my gang, her brother and sisters know all there is to know about her. even my youngest Cheyenne at just 6 is telling me there is only 3 weeks until Alishas birthday. i hope this shares hope for people who think their world has just ended, it hasn't as time moves on you realize the memory is there but the pain has gone xxxx |
| Name: | Dawn Frizzell |
| E-mail address: | rdf1967@yahoo.com |
| City, State, Country: | enka, nc, usa |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Reading yoour story has made me cry, but not in a bad way. The devastation we have felt hearing that my granddaughter Madison Elizabeth will be born with a trisomy abnormality was eased reading this. I appreciate more than you could know your sharing. |
| Name: | May Low |
| E-mail address: | chooimeel@hotmail.com |
| City, State, Country: | Foothill Ranch, CA |
| How did you find this site?: | Search Engine |
| Comments: | I just lost my son, Emmanuel, on May 23, 2012 for Trisomy 18. He came at 32 weeks and live for 1 hour and 40 minutes. He is a beautiful boy. Thanks for sharing your journey. It's comforting to know I'm not alone. |
| Name: | Belinda Poolay |
| E-mail address: | belindapoolay@hotmail.com |
| City, State, Country: | brampton,ontario,CANADA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for sharing your beautiful baby girls journey. I too lost my sweet baby girl Seychelle on March 31,2012 to Trisomy 18. She was STILL BORN @ 28 weeks and 5 days. I am a 39 year old woman who was so excited to be pregnant. I have had 2 previous miscarriages before 8 weeks. I love children so much and cannot even begin to express the devastation of having to deliver a child that was stillborn. It has been a very difficult 2 1/2 months since her death. No one can imagine what this is like unless they have been there them selves. But the staff at Mount Sinai hospital in toronto were incredible with the care and compassion they had for the parents and family members. Because of their care at this hospital, I got to leave with such special memories and pictures of my precious angel. I never knew anything about Trisomy 18 until it happened to me. I thank you for informing people of your story.
"Gone but never forgotten" I luv u Seychelle xoxo |
| Name: | Belinda Poolay |
| E-mail address: | belindapoolay@hotmail.com |
| City, State, Country: | brampton,ontario,CANADA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for sharing your beautiful baby girls journey. I too lost my sweet baby girl Seychelle on March 31,2012 to Trisomy 18. She was STILL BORN @ 28 weeks and 5 days. I am a 39 year old woman who was so excited to be pregnant. I have had 2 previous miscarriages before 8 weeks. I love children so much and cannot even begin to express the devastation of having to deliver a child that was stillborn. It has been a very difficult 2 1/2 months since her death. No one can imagine what this is like unless they have been there them selves. But the staff at Mount Sinai hospital in toronto were incredible with the care and compassion they had for the parents and family members. Because of their care at this hospital, I got to leave with such special memories and pictures of my precious angel. I never knew anything about Trisomy 18 until it happened to me. I thank you for informing people of your story.
"Gone but never forgotten" I luv u Seychelle xoxo |
| Name: | Elizabeth |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | Thank you for sharing your daughter, your heart and your faith. I have recently lost a child to trisomy 13. I struggle to read your site at the moment, and know that I'll be back here when I can bear it again. Thank you, sharing your journey will help me on mine I know. |
| Name: | Dianne da Mata |
| E-mail address: | dianne.damata@gmail.com |
| City, State, Country: | South Africa |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | I have not lost a child. I just feel so profoundly sound when I hear of tragic loss. I read your site because I wanted to know the journey a mother goes through in grief. I needed to know that they are okay.
I'm so glad I came across your site because your journal really gave me insight that it is possible to live on. You daughter is truly beautiful - thank you for sharing your story. I will always remember and think of you. With love Dianne |
| Name: | Paula Burroughs |
| E-mail address: | pburroughs50@yahoo.ca |
| City, State, Country: | Edmonton, Alberta, Canada |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I am an registered nurse in NICU. We recently admitted a baby with Trisomy 18. This is my first exposure to Trisomy 18 & I wanted to see stories from other parents. Abigail is a beautiful little angel. Thank you for sharing her dreambook. |
| Name: | Patty Hartline |
| E-mail address: | pahartline@swtc.edu |
| City, State, Country: | Fennimore, WI USA |
| How did you find this site?: | Other |
| Comments: | I decided to research this topic because of the Santorum family's experience with their Trisomy 18 daughter. I think Mr. Santorum did the right thing by suspending his campaign. Putting family before politics (or for that matter, before anything) is the right thing to do. Oh the memories he will have by spending precious time with his daughter and rest of his family. A good parent is able to put his/her job hopes to the side for an ill child. God Bless the Santorum Family. |
| Name: | Joann & James Smith |
| E-mail address: | joannysmith212@yahoo.com |
| City, State, Country: | Oakland, Ca. USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I was very touched by your story about your daughter Abigail. WE lost our son, Julius Ramond Smith on Dec.21, 1976.It is encourging to talk to someone who can relate to your loss. WE believe in the ressurection and hope to see him again. He only lived 10 hours. But soon he will live forever and enjoy his sister Bianca & brother Ivan in a paradise earth. Thanks for sharing your story |
| Name: | Foster |
| City, State, Country: | Atlanta, GA, US |
| How did you find this site?: | Other |
| Comments: | I'm doing a genetics disease paper in science and needed a personal story to complete it. I'm glad I chose to do Abigail as the person. I'm sorry about your daughter and know that she'll see you in heaven. |
| Name: | Eva Conner |
| City, State, Country: | Pt ST Lucie, FL 34953 |
| How did you find this site?: | Message Board |
| Comments: | Thank you for the pictures of Abigail.
I had Melissa in 1977, she lived 3 days. No one took her pictures, as my family thought to protect me.But this June 22 as every june for 36 years I will remember her 36th birthday alone w/ my grief.. It did not kill me, just made me strong, but still She has never left my heart. Seeing pictures of adorable Abigail, I can seemy Melissa face once again. She was my first child, her Daddy now gone, and her birth was a shock of grief. Trisomy 18, esophagus fisula. We had no clue. We had no idea in those days our precious daughter was going to be born to die. I survived. My faith sustained me.But her passing impacted me all the days of my life. Today at age 60 I only regret no one took her picture and I never got to hold her in my arms. I just held her hand, in the intensive care crib, during the only lucid moment, I was able to sneak from bed,to see her in the neo natal ICU after my C section. Thirty six weeks she grew beneath my heart, and in three sorrowful days she was gone and broke our heart. I never got to kiss her or hold her in my arms. Genetic testing said it would not happen again. God blessed me one year later w/ the birth of Melissa healthy sister Dena. Dena is a only child, we never dared try again. Still Melissa hold a special place in my spiit. I have never forgotten her. And never will. Thank you for the pictures. Sincerely Eva Conner. |
| Name: | Stephanie |
| E-mail address: | stefsg@yahoo.com |
| City, State, Country: | Newark, DE USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Hi. My husband and I just had a little angel go to be with Jesus, February 2, 2012. Her name was Laylaa. She had trisomy 18. Your story almost mimics ours. Laylaa lived for only 9 days but she gave us so much love and joy. She was our 8th child. I miss her so much but I find comfort in knowing that she is with the Lord in heaven. These babies are so special and pure that they need to be with God.
I was just thinking of her and typed in trisomy 18 and I found your site. I never saw it before despite all of the different sites I have been on. I thank you for sharing your story. I needed to hear that God is definitely in charge and His plan is best and greater than any plan we could put together from someone who can relate to what I have been through. May God continue to bless you and your family. |
| Name: | Mary |
| City, State, Country: | Covington, LA USA |
| How did you find this site?: | Search Engine |
| Comments: | I too found your beautiful tribute to Abigail after hearing of Presidential candidate Rick Santorum's recent ordeal with his little girl. I am the parent of a special needs child and know many children with Down's Syndrome, but oddly , have never heard of Trisomy 18. Your site provided me with the information to understand it.Thank you for sharing Abigail with us through your story and photographs. |
| Name: | Valerie Sinclair |
| E-mail address: | valerie.sinclair9@gmail.com |
| City, State, Country: | Sydney Australia |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | 1 year ago my son and partner had a daughter with Trisomy 18 she was born on 20th january 2011 and I still grieve for her as I never had the chance to hold her or see her.
The are expecting another baby this year in August and I pray to God that all will be well with this little angel I have a special name for her and talk to her every day and hope she is safe in Gods hands. Thank you for sharing your story and God Bless you all |
| Name: | Anna |
| City, State, Country: | Midwest |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Like someone else mentioned, I came across this sight while looking up information on Trisomy 18 because there was a news article today about Rick Santorum's daughter (with Trisomy 18) recently suffering through pneumomia. I could not stop the tears from coming while reading your story. What a beautiful baby girl. And such a strong example of faith you displayed. Thank you for standing firm that Abigail was a child that was not do be "disposed of" because her existence presented some challenges. It breaks my heart that in some places it is accepted to take the life of a baby simply because that child may have some extra chromosomes. We are all children of God, despite how many chromosomes we may have. How bittersweet to have the treasured time with your little blessing before she skipped right to the good part, her eternal home. Thank you for sharing your story, your faith, and precious little Abigail with us. |
| Name: | Mary |
| E-mail address: | mclittrells@embarqmail.com |
| City, State, Country: | ocala, fl |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I just wanted to say God Bless you and your precious angel. My firstborn son Travis was born on November 7th, 1989 and passed away November 28th, 1989. He was diagnosed with Trisomy 18 at birth. I had never heard of this before and my husband and I were both in the military at the time. The staff at the hospital was very supportive and even though I didn't know anything about Trisomy 18, they were able to have my son baptized while in the hospital. I was able to take him home after a week in the hospital and spent his last weeks at home with him. Each day was a blessing just to hold him in my arms. The day he passed away will live in my mind forever. He looked at me as if to say everything will be okay and his heart stopped beating. Although I cried and held him until my husband was able to come home from work, the pain is always there. Not a day goes by that I don't think of him and what he were be like. I miss him so much and have always told my other 4 children about their older brother Travis who is now in heaven and watching over all of us. I am looking forward to the day I can see him again and hold him in my arms. Thank you for a beautiful baby and story. |
| Name: | kelly goethel |
| E-mail address: | kellykgoethel@yahoo.com |
| City, State, Country: | Vincent |
| How did you find this site?: | Search Engine |
| Comments: |
What a beautiful love story! God has blessed us all with the beauty of this little angel! What a great example of unconditional love! |
| Name: | kelly goethel |
| E-mail address: | kellykgoethel@yahoo.com |
| City, State, Country: | Vincent |
| How did you find this site?: | Search Engine |
| Comments: |
What a beautiful love story! God has blessed us all with the beauty of this little angel! What a great example of unconditional love! |
| Name: | Trish |
| E-mail address: | pocalp@aol.com |
| City, State, Country: | Concord, NH |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing your sad story and the photos of your gorgeous little Angel Abigail. I am so sorry for your loss, thank you for educating people about this deasease. I have learned so much from your post about your experience. May God Bless your family.
|
| Name: | Kim murdock |
| E-mail address: | kim10024@aol.com |
| City, State, Country: | new York city, ny, usa |
| How did you find this site?: | Search Engine |
| Comments: | what a beautiful and moving story. I do not share your faith in God, but this is truly a story about the power of love. I wish you and your family all the best. |
| Name: | Barbara Hayes |
| E-mail address: | bghayes@comcast.net |
| City, State, Country: | New York, USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | What a touching and lovely memorial you have created for your beautiful daughter!
I found your site while searching for information on Trisomy 18 after listening to an interview of the Santorum family, who has a child with this as well. God bless your family. |
| Name: | Amber Jones |
| E-mail address: | amberncaseyj@comcast.net |
| City, State, Country: | Clearfield, Utah |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so very much for this amazing dedication to your daughter Abigail. Through this you have and will continue to help so many individuals both parents and health professionals. I am currently a nursing student. I returned to school to work in labor and delivery as this has been a dream of mine for close to ten years. Today I was given the gift to be part of a perinatology office and to witness some of the heart breaking circumstances such as your family's. I personally wanted to thank you for your suggestions to professionals. We need to hear feedback from our clients to know how to better help parents like yourself in the future. I cannot tell you what a value your website is to me. Thank you for taking the time to talk about your touching experience. This will be a website I will refer to for years to come. Bless you and your Abigail Grace.
Sincerely, Amber Jones student RN |
| Name: | Lena Walsh |
| E-mail address: | provenzano_1@msn.com |
| City, State, Country: | Windsor, Ontario, Canada |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for sharing your story. My daughter Madison Ava was born on September 30, 2011. Today she is 100 days old. I tested positive in my prenatal screening for trisomy 13 and 18, but we decided not to have an amnio for confirmation. It would not have changed our outcome. We were blessed with this pregnancy and were willing to take all the time God was willing to give us. I cherish everyday with my little angel. We do not know how long we have with her, but she has given us so much joy. Reading so many stories...the main theme is a constant. These children are a TRUE BLESSING. God Bless all of you. |
| Name: | Becky Taylor |
| E-mail address: | badvibe@woh.rr.com |
| City, State, Country: | Dayton, OH, USA |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for sharing your story and experiences. It helps to know I am not alone on this journey of grief. My son, Benjamin, was born still on Dec 20, 2011. We made it to 38 weeks which was much longer than the doctors expected. He was such a fighter and we are so proud of him. I cherished every single day of my pregnancy with him. Our dearest Benji, Mommy and Daddy miss you so much! |
| Name: | Jill Kotara |
| E-mail address: | jillian1217@yahoo.com |
| City, State, Country: | Amarillo, TX USA |
| How did you find this site?: | Search Engine |
| Comments: | What a wonderful job you have done with such a bittersweet experience. I have also endured the pain of losing my son to T18. It has been just over a month since i lost my Travis and it seems to be getting harder instead of better. |
| Name: | Allison Nemeth |
| E-mail address: | fluffnut11@gmail.com |
| City, State, Country: | North Brunswick, NJ, USA |
| How did you find this site?: | Search Engine |
| Comments: | Well, even though I'm still in highschool and I'm doing a research/bio project on the syndrome, this just touched me. I'm sorry about your loss and hope that one day there will be a cure for trisomy 18. With much love, Allison. |
| Name: | Brita Tornquist |
| E-mail address: | brita.tornquist@gmail.com |
| Homepage URL: | http://tommysblessing.blogspot.com |
| City, State, Country: | Minneapolis, MN USA |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | Dearest Mindy,
We recently lost our precious little boy Tommy. He was 2mos old and 6days old. On November 10 2011 my life as I knew it was over and a new life was chosen for me. Tommy had erratic breathing that evening around 5pm, we called 911~ thinking it was just precaution. We ended up with no answers and our son alone in a ER room with tons of medical staff. They got his stabilized enough for transport to Children's Hospital nearly 3hrs later.. My husband riding in front and I in back of the ambulance, it was the closest I was able to get to Tommy in nearly 3hrs (which felt like a lifetime)...as we got on the highway he held my finger so very tight, he squeezed 3times and answered his call. Yes, His call to Heaven..I know with every fiber of my being that is when Tommy left us here on earth and went into the arms of Jesus. I saw the life slip away from my sweet son, he coded... I was screaming at him not to go, not to leave me.. the pediatric nurse and ambulance guy pumped drugs into his tiny body, while the nurse rhythmically pressed on his sweet chest. My husband in the front in panic, not knowing what I was witnessing, but knowing his sons heart had stopped beating. We arrived a few minutes later at Children's where they continued to work on him for another 3hrs... Our sweet little boy coded a total of 5 times. We had to make the decision to cease attempts to revive him. We walked out of the hospital without our baby boy. Without answers. I walked out a different person. Oddly, when we were driving home, I felt God softly whispering "You have been placed here for such a time as this..." ~ just as Mordecai said to Esther. I have had God imprint things on my heart (if that makes sense) usually with regards to ministry (not pulpit more towards women) for nearly 5yrs I have felt that way.. I guess what you won't do God does. We found out why Tommy had passed, he had a number of issues with his teeny heart~ at his 2mos check up he was great. See I had no idea he was sick, I love Tommy so very much, losing him has been horrific. Every step of this has been planned, I don't know the WHY's but I trust God and his promises to me. He is the same God I thanked when Tommy was born, He is the same God when He called Tommy home. He has completely held us up, in every way imaginable showing us He is here. The reason I felt compelled to write you is because I was reading your journal~ it is literally like I am reading mine!! So much so that when you wrote "I would learn about love, but I thought it would be about love for her, not for me. It really seems He is softening me through this since I refused to be softened on my own."~ literally what I have been thinking about nonstop! I am no excited about how hard this journey is going to be, how stained with tears, it is emotionally and physically exhausting... but the relationship I have with God has been overhauled, it is deep, full surrendered and fruitful~ I grabbed His hand and am NOT letting go. Thank you for allowing people like me to read your story, sadly we are not alone in the season of life.. my heart aches for every Mommy who had to say goodbye to their baby, it rocks you to your core, threatening to over take you but people make it , find joy and love and I pray daily I am one of those... God Bless you! Brita Tornquist tommysblessing.blogspot.com brita.tornquist@gmail.com |
| Name: | winfred mcrae |
| E-mail address: | mwovewinnie@yahoo.com |
| City, State, Country: | usa |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | My name is Winnie and I just want to thank you for sharing the life of your daughter Abigael. I too lost my daughter on 12/04/09 to trisomy 18 syndrome. Her name is Allyson.
I remember when I got the diagnosis, I felt very sad and angry, I cried alot and I just didn't know why this had happened to my daughter. God is powerful and he is in control. I believe she is in heaven smilling down at me. |
| Name: | Cheshire |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I have a friend who's not yet born baby boy has been diagnosed with Trisomy 18. At the moment I'm not sure if they will give their child the chance to live another 2 weeks. So I just want to say thank you for starting a website sharing your story and for not hiding your faith in God. Ive read so many consolations and responses to her pain right now and non involve the God who created her and her child. Never stop pointing people to Christ. |
| Name: | Charlene Leitner |
| E-mail address: | mjaleitner@gmail.com |
| City, State, Country: | new zealand |
| How did you find this site?: | Search Engine |
| Comments: | hi there, thanks so much for this site. i have been on a few times now. my baby was diagnosed with a cystic hygroma at 12 week scan. it had increased in size when i went for a 2nd scan to 11mm and was advised to have a CVS. during that time i looked into what a cystic hygroma could mean. i was pretty sure it wouldnt be T18 as no other soft markers but did come across your site at that point so i had a read. my CVS results came in and it was confirmed T18. i was devastated but returned to your site. it gave me so much information when there isnt a great deal out there, only clinical stuff. sadly i miscarried at 15 weeks 4 days (13 oct 2011) my beautiful little girl i shall never meet, we named her Celeste - heavenly it means, from heaven and back to heaven. your site has made me feel like i am not a nutter in my emotions. it certainly is up and down all the time and not a lot of people really know how to handle it all. thank you again i do wish i had the chance to hold her and love her for a little while, but i know i will see her again... :-) kind regards charlene leitner xx |
| Name: | Natalie Mardon |
| E-mail address: | nat_mardon@hotmail.com |
| Homepage URL: | http://www.sebastianlevi.blogspot.com |
| City, State, Country: | Australia |
| How did you find this site?: | Link from another Infant Loss Site |
| Comments: | I'm so sorry for the loss of your sweet Abigail. And thankyou for sharing your story and her with us.
I lost my little boy Sebastian Levi 5 weeks ago to T18 also. We knew he was to pass away for 3.5 months and he made it to 34 weeks before his little heart couldn't keep up anymore. We had the most beautiful 6 hours with him as a family. And I cannot describe the joy that carrying him to term has given me and my family. Can I just commend you on a BRILLIANT website. There is just SO MUCH information you have here - stuff that's really useful in sharing with other people about T18 or grief. I love how it all comes from a loving heart, yet is full of 'don't say this' and 'don't do this' - I think that's really needed- people need to know how to deal with us don't they? So many well-meaning things can be said yet they can be very hurtful. I love the sections on God and suffering too. Thankyou for a great resource. I have shared you on my blog tonight. Nat |
| Name: | Diane L. Gerry |
| E-mail address: | tiggerwoman04969@yahoo.com |
| City, State, Country: | St.Albans,Me |
| How did you find this site?: | Other |
| Comments: | I'm very sorry for loss. I know how you feel, because on Nov. 14, 2004 I lost my daughter to trisomy 18 plus a blood disease that was eating from the inside out. Her name is Shannon Eleanor Gerry. |
| Name: | Lori |
| E-mail address: | Marina del Rey CA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for cresting a beautiful memory for your daughter and for sharing your story of love, strength and courage.
I am 7 mo pregnant with my son who has trisomy 18 - I have known for 2 months and have spent most of that time breaking down and coming to acceptance of G-d's will. But my heart still breaks and the tears still flow not knowing when my son will be born or die. I have an 11 year old daughter- I am a single mother. Not much family or support in out lives and I have yet to tell my child the fate of her baby brother. And there are so many things to be done - I don't know where to start- and it is only me. And who will take care of my daughter during birth and death and funeral? I have felt so alone an I'm grateful to have found your site and read about the beauty u created from heartbreak. I aspire to so this same. I just need a helping hand with preparations and knowing what to do and when. Grief just seems to envelope me and everyday I feel like a clock is ticking. Any words of encouragement, information or help finding helping hands I would be so grateful for. I know I'm blessed to be chosen for this baby's soul journey- but as a mother I'm heartbroken to plan his birth for his death. Thank you for sharing and letting me share. Lori Loriandfaith@gmail.com Lori |
| Name: | Lori |
| E-mail address: | Marina del Rey CA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for cresting a beautiful memory for your daughter and for sharing your story of love, strength and courage.
I am 7 mo pregnant with my son who has trisomy 18 - I have known for 2 months and have spent most of that time breaking down and coming to acceptance of G-d's will. But my heart still breaks and the tears still flow not knowing when my son will be born or die. I have an 11 year old daughter- I am a single mother. Not much family or support in out lives and I have yet to tell my child the fate of her baby brother. And there are so many things to be done - I don't know where to start- and it is only me. And who will take care of my daughter during birth and death and funeral? I have felt so alone an I'm grateful to have found your site and read about the beauty u created from heartbreak. I aspire to so this same. I just need a helping hand with preparations and knowing what to do and when. Grief just seems to envelope me and everyday I feel like a clock is ticking. Any words of encouragement, information or help finding helping hands I would be so grateful for. I know I'm blessed to be chosen for this baby's soul journey- but as a mother I'm heartbroken to plan his birth for his death. Thank you for sharing and letting me share. Lori Loriandfaith@gmail.com Lori |
| Name: | Sue |
| E-mail address: | sandsg1952@yahoo.com |
| City, State, Country: | Springfield MO USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for your loving story. Today my grandson was stillborn from trisomy 18. He was 5 weeks early & only weigh 2lb3oz. We all said our goodbyes & told him how much he was loved & how happy he was going to be with our lord & savior. It is a sad day with many to follow &, once again, I thank you for your story. |
| Name: | LS |
| E-mail address: | mackayla5000@gmail.com |
| City, State, Country: | Mass |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you so much for sharing your story. On Feb. 6th of this year we lost our son exactly 18 months to the day that our beautiful little girl was born. We had just found out days earlier that he may not make it. The day we came home from the hospital, my brother in law and his wife annouced that they were having a baby! My husband and I prayed it would be a girl, so that we may have some peace. However, it didn't work out that way. When it was annouced that the baby was to be a boy, I nearly died. Although it upset my husband, he was quicker to get over this turmoil; and this angered me.
Two days ago our Nephew was born. Lets just say that it rocked my world which I had been working so hard to rebuild. I had found your site a few months ago and came back to it for support. As I began reading again, I realised that I'm not alone in my feelings of anger and resentment towards everyone who is fawning over this new addition. That made me feel so much better. It has been 7 months, but everyday is a struggle; and it is nice to read about someone who went through many similar feelings and experinces that I have been going through. So, thank you so much for sharing your story. It has been such a help. |
| Name: | stephanie |
| E-mail address: | bri99anna@yahoo.com |
| City, State, Country: | chicago ill |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | God bless you and your family! In 2001 my daughter also passed away from Trisomy 18. |
| Name: | phyllis |
| E-mail address: | phyllis.payne83@gmail.com |
| City, State, Country: | martinsville,va usa |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | First, let me say god bless you and your entire family and through god all things are possible. The memorials that have been setup for Abigail are beautiful. I am 31 and have a 4yr old daughter who came as bit of a surprise. My mom had her 1st child at 17yrs old and it was a girl named Debra. 2 months after her birth she dies from sids. This happened some 40+ years ago but she still has a hard time dealing with it. My mom now has 13 grands and 3 great grands but she will not allow any of the kids to stay with her over night because she is afraid the same thing will happen. She had to have help with her other 5 kids that were born after debbie because she thought the same thing will happen again. Just by looking at this site for 2 days I feel like I now have a new outlook on losing a child. I have to tell my mom that it isn't the losing part she should be focused on but the time she spent with her being a first time mom and the great memories. Once again thank you for the memorial, allowing me to get to know you, your family and precious baby abigail and the information. God bless you all and R.I.P Abigail sweet angel baby. |
| Name: | Tanya Dean |
| E-mail address: | tabidean72@yahoo.com |
| City, State, Country: | tipp city ohio |
| How did you find this site?: | Search Engine |
| Comments: | Thank you so much for your page! My daughter is pregnant and we are awaiting results from a CVS test. Edwards syndrome is one of the syndromes the baby may have. Reading your story was very uplifting for me. We also have a strong faith in God. You handled her care superbly! I admire the way you handled everything which was so very difficult. Hopefully, our baby will not have Edward's, but if he/she does, your story will give us the power to handle it with love and not so much sadness! Thank you, Thank you, Thank you!!! |
| Name: | Hollie |
| E-mail address: | holliewalden@yahoo.com |
| How did you find this site?: | Message Board |
| Comments: | Hi my name is Hollie I lost my son when I was 6 1/2 months pregnant we dont know why or what happened except I had an infection of some sort in my plecneta. I turned 19, 2 days after my son died, he lived for 12 wonderful hrs. My sister just lost her son to Trisomy 18 he was still born. I feel so bad for her because I kinda know what she is goin through and its very hard. We are trying to be a support systme for eachother although she just lost her son and I lost mine 5 yrs ago. No matter how much time goes by its still hard! |
| Name: | Elaine Hammond |
| E-mail address: | Elainejh155@verizon.net |
| City, State, Country: | Voorhees, NJ USA |
| How did you find this site?: | Search Engine |
| Comments: | A nurse I work with lost her son to Trisomy 18 6 months ago. He lived for 2 1/2 hours. He was such a sweet little boy. Thank you for sharing your story. I told her of your site and she said it has helped her. |
| Name: | Andrene' Schonberg |
| E-mail address: | rxrn93@aol.com |
| City, State, Country: | Lomita, California |
| How did you find this site?: | Search Engine |
| Comments: | I am a 40 yr old proud mom of 4 living children ranging from 11 months to 18 years old. My husband and I lost our second daughter Candace when she was 2 1/2 yrs old to urosepsis- a terrible tragedy- painful beyond compare to anything we had experienced before in our lives.
I am 17 weeks pregnant with a little girl who has complete Trisomy 18- and am so saddened by this news. When I found out I was pregnant I was so surprised- and now all I want is a chance to watch this little girl grow up- a chance I realize I won't get to experience. But if I can just hold her on this earth for whatever time God allows- it will be worth it. But I worry so much about my other children and how it will affect them. Our 18 yr old has already lost a sibling in her lifetime. What a hard place to be in. Thank you for your story. |
| Name: | Shawanda Benjamin |
| E-mail address: | shawandaben@gmail.com |
| City, State, Country: | Birmingham, AL USA |
| How did you find this site?: | Search Engine |
| Comments: | Hello. A dear friend of mine is about 4 months pregnant and she just found out today that her baby has Trisomy 18. I had never heard of it so I instantly looked it up when she informed us of what was going on. I applaud your strength/courage in sharing your story with the world. People never really know what other people are going through or have gone through. I am saddened by this because this is my friend's first pregnancy. Please continue inform people about this disorder. May God continue to bless you!! |
| Name: | John |
| E-mail address: | jbd@socialsecurity-disability.org |
| Homepage URL: | http://www.socialsecurity-disability.org |
| How did you find this site?: | Message Board |
| Comments: | Your family's story and attitude is the most touching. You are all in our prayers as we carry on our lives as advocates for the rights of those born with these types of hardships. |
| Name: | ilene |
| E-mail address: | ilene.storck@comcast.net |
| City, State, Country: | phila.,pa usa |
| How did you find this site?: | Search Engine |
| Comments: | I felt lke I was reading my story from 1997. My son Anthony was diagnosed with trisomy 18. He was born on 10/26/97 and we also cherished 11 hours of his life. My story is so similar to your story...it's so amazing. |
| Name: | Bev Macmillan |
| E-mail address: | treacherousroads@hotmail.com |
| City, State, Country: | Canada |
| How did you find this site?: | Search Engine |
| Comments: | thank you. My granddaughter has Trisomy 13 and my daughter has chosen to carry her to full term. Your journal has helped me understand and covered every question |
| Name: | seana |
| E-mail address: | seanaspears88@yahoo.com |
| City, State, Country: | Bridgeport,ct USA |
| How did you find this site?: | Search Engine |
| Comments: | I am a 22 year old female who is a high risk pregnacy I had a still born (SON) when I was 39 weeks I had a c-section and blood transfusions I was diagnosed with severe preclamsyia it was the worst thing to ever happen to me I have had 2 misscarriages after and a d&c dun this would b my 5th pregnacy smh I am beyond scared I am 15 weeks pregnant and jus found out that I have an increased trisomy with 1/99 risk but they can't be sure until im 18 weeks and they want me to get the amnio but I have decided against it. I worries me more because all you can do is wait if I do get bad newd god forbid I don't what to do. Do the dr. even recomend a d&c or they just want you to carry it out to see what happens im afraid that may be way more dangerous but its a loose loose either way because of my history |
| Name: | naomi forson |
| E-mail address: | naomi.forson@yahoo.co.uk |
| City, State, Country: | ghana |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | i am doing a research on trisomy 18 and i hope someday i can find a cure for all of my little friends with this disease |
| Name: | Casondra |
| E-mail address: | c.sullivan85@yahoo.com |
| City, State, Country: | Ithaca Ny |
| How did you find this site?: | Search Engine |
| Comments: | I am 25 years old and having my third child. At about 18 weeks Choroid Plexus Cysts were seen on the ultrasound. Our doctor ordered another ultrasound a few weeks ago and we have just found out that the cysts are still present. I am now being sent to a specialist for further counseling and level 2 ultrasound and testing. Thank you for this site. I am scared and praying for the will of God. I know that no matter what that there is others out their who understand and have their faith. |
| Name: | Kathleen MacKay |
| E-mail address: | mackay_kathleen@hotmail.com |
| City, State, Country: | Imlay City, Michigan, United States |
| How did you find this site?: | Message Board |
| Comments: | I am sixteen years old and I am doing research for Trisomy 18. Reading your story has put me into perspective of what others really go through. I am so sorry for your loss of Abigail Grace she is so cute. |
| Name: | Kim |
| E-mail address: | kim.tree@kpmg.co.za |
| City, State, Country: | Johannesburg South Africa |
| How did you find this site?: | Search Engine |
| Comments: | HI There, I just want to say that you all give us so much inspiration and hope. Our little boy has full trisomy 18 and is now 9 months old and doing well. This is a very very difficult journey but worth every single second |
| Name: | Nelissa |
| E-mail address: | nelissa_muttiah@yahoo.co.uk |
| City, State, Country: | Nottingham, United Kingdom |
| How did you find this site?: | Search Engine |
| Comments: | We lost our daughter, Joy, to Trisomy 18 about 7 weeks ago. The expectation had been that Joy would arrive early and/or that it would be a stillbirth or that at best, she would survive minutes. However, Joy surprised everyone by more or less going to term and surviving for 2-1/2 days.
Nothing prepares you for the death of your child. I feel like I am plodding on with life, engulfed by sadness under a facade of normality. However, God is present. He is the treasure I have found, through this difficult journey, and He is, indeed, the pearl of great worth. I have spent hours and hours reading through your site. I can't thank you enough for sharing your life and your journey with me. I have found comfort, reading of your painful experience. Now as watchmen wait for the morning, so our souls wait upon God. Dawn will come. Nelissa |
| Name: | RP Warren |
| E-mail address: | farmlife200268@hughes.net |
| City, State, Country: | Jackson, MS |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Isn't it amazing that Abigail is still touching people's hearts and lives after all these years? Only God can do something like that with parents who will allow their love to surpass their grief. I am a Disability Advocate working w/ a parent whose twin daughters have Partial Trisomy 18 (rare). They are now 17 years old(even more rare). God has a plan for their life, too.
Parents who get a death sentence for your baby--don't take their chance at life away. You don't know what a difference he/she can make. |
| Name: | Lynn Brown |
| E-mail address: | bbrown4127@msn.com |
| City, State, Country: | Tulsa, OK |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you for your story. My sister's child was just diagnosed at trisomy 18. She is at 20 weeks and is choosing to terminate the pregnancy. I'm having a hard time accepting her decision. I wish I could take away some of her pain. It breaks my heart but she will do what she feels is best for her. I only hope she takes time to read about parents who celebrated every second that God allowed this child into their lives. What a blessing their child was. My heart is broken for her and there is nothing I can do. I thank you for your story of encouragement!!! What an angel!!!
Standing by God, Lynn |
| Name: | Michele |
| E-mail address: | mpayne83@bellsouth.net |
| Homepage URL: | http://www.caringbridge.org/visit/katelynpayne |
| City, State, Country: | Pensacola, FL |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | Thank you SO much for allowing others in on your journey. I am scheduled to have our thrid baby girl in two weeks and she has been diagnosised with full Trisomy 18. We are so anxious to meet her and yet faced with so many questions that our doctors can't answer. Your birth plan for Abigail is excatly what we were looking for to communiticate our desires. I know your journey was several years ago, but just realize how much Abigail has touched others including our family. We thank God for you and putting your story out there! Blessings to you and your family!
Michele Mommy to Katelyn Elizabeth - Due December 17th, 2010 www.caringbridge.org/visit/katelynpayne |
| Name: | Wendy Kennedy |
| E-mail address: | wendyloowho@mchsi.com |
| City, State, Country: | Des Moines Iowa USA |
| How did you find this site?: | Other |
| Comments: | We Just found out Friday November 19th that The baby boy we so wanted is positive for Trisomy 18. We have been struggling with what to do next. We are already 24 weeks along and feeling him moving around inside makes the decisions that much harder. After reading Abigails story I want to keep my precious baby boy and meet him. Thank you so much for sharing her story. If not for this I dont know what I would have done. God bless you! |
| Name: | Laurie Roberts |
| E-mail address: | Zlxter@comcast.net |
| City, State, Country: | Columbia, MD |
| How did you find this site?: | Search Engine |
| Comments: | Our daughter, Sasha Grace, was born to Heaven September 26, 2010. It's only been a few short days since we had to say good bye to our little girl. We were also told incompatible with life, a shocking diagnose for a 45 year old first time mom. We struggled with the decision to interrupt but we knew that the right decision was to take her to term to realize her full potential. We have no regrets. I cherished every kick, every body change, every sign of her life and her strength. We believe that Sasha is our gift from God and that we were chosen to be her parents. We are so glad. We know that we will find a way to make a difference because we are Sasha's parents. Find the joy and celebrate the victories that you have. |
| Name: | Marilyn |
| City, State, Country: | Hampshire United Kingdom |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | A powerful testament to Abigail of the love of her amazing Mum, Dad, brother, sister and family.
I am humbled! God bless you all. |
| Name: | Tiffany Foxx |
| E-mail address: | tfoxx0419@yahoo.com |
| City, State, Country: | Xenia, OH |
| How did you find this site?: | Message Board |
| Comments: | Thinking of you, Abigail Grace! You and your mommy gave me courage and hope to heal and help others. You helped me create God's Tiny Angels and I'm so grateful. I couldn't have made the journey without you.
Mommy misses you Dominique and Roman! |
| Name: | martha and alex gonzalez |
| E-mail address: | alex02677@yahoo.com |
| City, State, Country: | fullerton ca |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | We just want to say , we are really sorry for your loss , i can almost immagine the pain , my wife is 20 weeks pregnant we we where just informed that our little girl has a CHOROID PLEXUS CYST. and please forgive to say but we are extremely scared . please if anyone has any info , share it with us . this site helped us understand what trisomy 18is, god bless you all. |
| Name: | Nani Moyano |
| E-mail address: | igmoyano@yahoo.com |
| City, State, Country: | Tampa, Florida, USA |
| How did you find this site?: | Other |
| Comments: | I found out today a daughter of a friend of mine was informed by her doctor the baby she is carrying in her womb has Edwards Syndrome. My friend is devastated with the news, I prayed for her and her whole family. There has to be a reason for me finding the story of Abigail Grace, I will just wait for the Holy Spirit to guide me.
Thank you for sharing your child and story. God bless! |
| Name: | Ineta Dementaviciene |
| E-mail address: | Ineta.dementaviciene@gmail.com |
| City, State, Country: | Kaunas,Lithuania |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | I have lost my litle angel 2003.10.30. She was 4 or years and 10 month of age.I had a wonderful time with her.If somebody needs or wantsto speak with me please write me anytime. |
| Name: | Gayle Billheimer |
| E-mail address: | katedave@atlanticbb.net |
| City, State, Country: | Dawson Pa U.S.A. |
| How did you find this site?: | Search Engine |
| Comments: | I have just lost my granddaughter to Trisomy 18. She was born to heaven on May 20 2010. Your site helped me prepare myself after we heard of the diagnois from the doctors. No words can express the grief you feel when you hold a perfect beautiful baby in your arms. I want to thank you for this site, for without it, I wouldn't even have know exactely what Trisomy 18 was. Ella Grace taught us a lot about joy, grief, compassion and so much love! She is forever in my heart. Thank you again,
Gayle |
| Name: | Mona B |
| City, State, Country: | Oregon |
| How did you find this site?: | Other |
| Comments: | Thank you Mindy for posting your experience and information on Trisomy. A very dear friend of mine lost a baby with Trisomy over 10 years ago. At the time her family was facing this tragedy, there wasn't much information available. It was heartbreaking to watch her and her husband face each day knowing their child wasn't going to survive.
When she went into labor the head nurse at the first hospital they went to was insisting on putting the baby on life support and was going to ignore their wishes for a peaceful passing after birth. Obviously she was totally ingnorant of Trisomy 18. Her husband yelled at the nurse and called for an ambulance to take his wife to another hospital. They made it in time. She gave birth to a live baby. Perfect and beautiful on the outside. She lived for about 2 hours and died peacefully in her mothers arms. My friends are smart, loving parents, so I NEVER questioned but supported the decisions they made. The information on your web site made me realize just how right they were. Thank you all for sharing with us. |
| Name: | Kristian Howard |
| E-mail address: | carlee.small@yahoo.com |
| City, State, Country: | Austell, GA, USA |
| How did you find this site?: | Other |
| Comments: | Hi, my name is Kristian Howard and I am 23 years old. Carlee was our 1st and only child. My fiance' and I have been looking on your site for quite sometime. It really helped us with getting prepare for our daughters homegoing. Your site is really comforting and I give everyone the site. We found out about Trisomy 18 when I was 4 months pregnant. My 1st reation was, "What is that?". Then when better explain I was devasted. I couldn't believe this was happening. Carlee was born August 19,2009. She was so beautiful. We were with her every moment for 4 weeks straight. She passed September 16,2009. So I thank you for this site. Because I woudn't know what to do. |
| Name: | Mary Ellen Wolf |
| City, State, Country: | Moberly, Mo, USA |
| How did you find this site?: | Link from another Trisomy 18 Site |
| Comments: | My husband and I have just received a call from a close friend to tell us that they have had a beautiful
grandchild who was born at 25 weeks with Edward's Syndrome -- Trisomy 18. I looked it up and found your story. Your beautiful little girl lived longer than their little Josie who lived only an hour. In that hour the family was there to hold and love her and they were thankful for that. Josie had a sister and her parents are very loving and will always treasure the time they had with her. We are several states away, so it's impossible for me to be the support I'd like to be. Your account of your time with your precious baby was the perfect account for me to read. Though I was a Parent Educator in Parents As Teachers and dealt with many difficult situations, Edwards Syndrome was new to me and I can only tell you that I know you have been a wonderful source of information to many families. Thank you for a very meaningful account of your family. It's obvious that there exists an abundance of love present there. Wishing you blessings -- Mary Ellen Wolf |
| Name: | Leena |
| E-mail address: | chand.s@telus.net |
| City, State, Country: | Canada |
| How did you find this site?: | Message Board |
| Comments: | Mindy
My heart goes out to you and your family. You have so much strength and courage. I read your grief journey and may GOD be with you. This is a beautiful website. Thank you for sharing your life with us. Leena |
| Name: | Linda Bridgeo |
| E-mail address: | lbridgeo@rogers.com |
| City, State, Country: | Canada |
| How did you find this site?: | Search Engine |
| Comments: | What a wonderful tribute to your beautiful daughter you have created. Its' amazing.
I have a neice, carrying a Trisomy 18 baby girl. Your site has helped me to understand it so much more. I sent the link onto her, in hopes that it gives her some insight and comfort as well. Thank You so much for sharing! |
| Name: | Tasha |
| City, State, Country: | RC,SD |
| How did you find this site?: | Search Engine |
| Comments: | Thank you for your sight. I recently had a close friend have her baby diagnosed with Trisomy 18. She is due in Feb. I was having such a hard time knowing what to say to her. How to approach her. I want to comment on how cute her belly is-- but I feel so insensitive. And guilty- because I have 3 healthy little girls. This would be their 2nd child. They were not going to find out the sex until after the baby was born. But she text me 2 days ago and said "It's a lil girl." And I did not know what to say? Congratulations? I am sorry? I cry thinking of everything that you have gone through and HOPE that I can be there for her during all of this. Thank you again for all of your advice and words. |
| Name: | Dawn |
| E-mail address: | Dawn_Bailey@nsmail.asun.edu |
| City, State, Country: | charlotte,ar |
| How did you find this site?: | Other |
| Comments: | My thoughts and prays will forever go out to you and your family. I'am currently a nursing student in the process of working on my RN lic. And I currently am studying this disease.
Dawn |
| Name: | Mindy Wilsford |
| Homepage URL: | http://trisomy18journey.org |
| City, State, Country: | Carrollton, OH |
| How did you find this site?: | Other |
| Comments: | Welcome to Abigail's newest guest book. Thank you for visiting the site. Please read previous messages, and please do add one of your own; we appreciate all feedback.
Much love, Mindy |